You actually got this a little wrong.... I have epilepsy. Not all epilepsy is (unknown what's causing it) for example, I'm a non-photosensitive epileptic. Which is exactly what YOU said epilepsy is. They don't know the cause of reoccurring seizures. Photosensitive epileptic's have reoccurring seizures caused by things like flashing lights. (there may be more than just those 2. But those are the only 2 my neurologist and I have discussed) Just a little extra info!
I have epilepsy. Normally, I'd be terribly scared to watch a video about seizures. But having you guys explain this fascinating concept makes me much more confident and accepting of my illness. Thank you for your precious gift!
You and me both. I normally never get phased by videos, but whenever I see a video of someone in an epileptic state, I always turn it off. It's scary to see someone go through it, and it's scary to know that you do the same.
Knowledge is power. So, it's good that we watch videos regarding diseases that we have. Understanding about seizures may help in controlling our emotion (especially when a recurrence of epilepsy happens) and overall better self-insight. Cheers.
I’m an epileptic with generalized Tonic-Clonic seizures. It’s so frightening waking up from one or any seizure to be honest. God bless all of my fellow epileptics and their family’s and partners!
I pray the frequency of your seizure reduces and you get back and lead a normal life. My Dad started having seizures in his early 70’s n after 10years he didn’t have anything .
I am diagnosed Epileptic and I hate it!! I've had many seizures and I hate them too. No doctor has ever offered this explanation and I cannot thank you enough for this video. It is scary when something like that happens but you have no idea why or how. I love you guys and this channel!!!!
I'm very sorry you have these seizures. The brain is the most complex and mysterious thing in the known universe. I have always been fascinated with it and how it functions as it does. Medicine knows very very little about how the brain works. I was speaking with my neurologist one time about the complexities of the brain and if medicine will come to ever fully understand it. I expressed my doubts that it would. She stated " I really don't think we were meant to understand it." 100 billion neurons that each have 1000 to 10,000 connections known as synapses. That's in the neighborhood of 1000 Trillion connections. That is amazing. That's just utterly astounding!
as someone with epilepsy, seeing informative videos like this makes me so happy. it’s such a misunderstood disorder, even to neurologists. there’s so much misinformation when it comes to seizure first aid that it puts us in danger. knowing that so many people have watched this video brings some peace of mind :)
Being a first responder around someone having a seizure in a somewhat public space can be an "interesting" experience as well. A lot of people just freak out completely. The result for me was that I glanced at my watch and moved a table out of the way, then proceeded to try (with moderate success) calming everyone else down while leaving the seizing patient alone, which felt just a bit odd... As things calmed down, we found out the patient had a known history of epilepsy and aside from being slightly confused, tired and terribly sorry for the upset (need not have been, since it wasn't her fault at all!) was fine. Bottom line: Awareness and first response training is a good thing. More of that, please.
Encouraging to hear this. I’ve had grand mal seizures since birth, and the worst was waking to see other people freaking out. Especially teachers in elementary school. Though I’ve had hundreds of seizures, I’ve never actually seen it happen live. So I do understand it’s disturbing to people, which is why I usually let people I spend time with know it could happen and what to expect, so it’s no big deal.
@@KathySierraVideo I don't find it very disturbing myself, since I have the training and knowledge to understand what's happening (though of course I have no idea how the seizing person feels!). The thing I really found unsettling was the sheer panic some of the other bystanders showed, to the point where the best I could do to keep the patient safe was keeping everyone else from doing anything stupid (possibly movie inspired). That's why I think that education and training for immediate medical response should be far more widespread than it is. It's not rocket science or surgery, after all. Or, in other words, I don't think it's something that should need a lot of explaining...
@@jandl1jph766 exactly, yes. As for how the seizing person feels, that’s the “good” part… we don’t feel *anything* until it’s over. And that’s when calmness from others is a massive help. For my specific case, the part *before* the seizure is the worst, as in the worst thing I can imagine feeling. By the time I lose consciousness, it’s a relief, and I’m usually MUCH better after. Thank-you for being a role model in this.
@@KathySierraVideo As usual, panic never helps and frequently makes things worse. That's for sure. It's good to know that the seizure isn't as bad as it looks (and it does look very painful). I think that's a big part part of the panic response - people wanting to do something, *anything* to "help" yet feeling completely powerless to do so. Of course, to anyone with decent (and recent!) emergency first response training, it's very obvious what needs to be done - which makes staying calm a lot easier as the training takes over.
Could never tell my grandparents that. Every time I would fall out with an epileptic seizure they would think I was dying. And the worst part is, and I dont think it has anything to do with EMTs, but being in the US I would be forced to go to the hospital against my will despite the fact all I really needed was a nap. Extremely frustrating and puts me in medical debt despite not actual wanting to bother the medical workers....
Same here, I learned a good amount about myself while watching this and my seizures. The keto diet worked the best out of all of the treatments, I recommend it because it literally saved my life during my coma.
My husband was blown up in Iraq and lost about a quarter of this head. He has a shunt and has been through several surgeries. This is a fascinating video packed with information. We deal with seizures constantly. Last year he had a seizure in our kitchen and hit his head on the ceramic floor and had two brain bleeds and brain swelling. He was placed on life support. I think he's has a seizure in every part of his brain after watching this video. Believe it or not it's helped me understand more why he reacted and experienced things before during and after seizures. I'm so thankful 🙏🏻 Wish I could talk to you.
yes me to like this video has explain to me so many things that happens to me an my parents often where thinking i would be intoxicated or just not paying attention
Thank your husband for his service and you as his wife ,I just want to hug you ,I'm extremely sorry about your husband and know your not alone ,my thoughts and prayers are with your family and forever will be ,may our heavenly father lay his hands upon your husband and our angels keep you wrapped up tightly within there wingspan bring you comfort ❤ as trying times may have there moments know your safe here and husband is not still over there ,,,God bless you both...thank you for sharing this with us all..
I’m so happy you brought up absent seizures being mistaken for ADHD. When I was about 7 and being tested for ADHD they had given me a sleep deprived EEG. The drs had said they thought it may be epilepsy but because my EEG was clear they just wrote it off. It wasn’t until I was 17 and had 2 tonic clonics within 3 weeks that they officially diagnosed me with epilepsy. When I got a little older I had brought it up to the Neurologist I was seeing and she had said they completely missed it, which is very frustrating. Also for me the only aura I get is my right ear gets a really high pitched noise for about 5 seconds and that’s all the time I have before I go down.
I have Psychogenic Non-Epileptic Seizures (PNES). I almost cried when you brought it up because most people don't. I've had people tell me that I'm faking my seizures. They happen with emotional stress and can only be ended with grounding techniques. I was put on an anticonvulsant, and it actually caused me to have more seizures. During my Aura phase I notice that I feel off and my thoughts become stuck and cyclical. My seizures have 3 stages however I can usually catch it before the 3rd stage. Whatever stage I get to I have to work backwards through. Stage 1: I go into an absent seizure and talk in the cyclical nature of my thoughts. I might get stuck repeating something such as "I'm not okay" or "Something's wrong." Stage 2: I develop an irregular twitch with my hands and wrists. I may also have stronger, more spaced jerks with my upper body and/or neck. If I try to talk it comes out as a harsh stutter. It may take me multiple minutes to say a complete sentence. My breathing becomes very shallow. I may also get stuck breathing out for extended periods of time then gasping sharply. Stage 3: All of my muscles give out simultaneously and I collapse. I can no longer talk and my head is filled with a dense emptiness. I feel unable to form any thoughts. My breathing becomes very shallow and usually my heart rate increases. I am completely conscious and have use of all of my senses while I'm seizing. This means I can usually make myself sit down or move to a position where I can't get hurt falling. Since PNES are atypical the symptoms and duration vary person to person. I have had a seizure, going between the 3 stages, that lasted 90min from start to finish. However my average seizure lasts approx. 15min. The repercussions of the seizure have a wide range, but it comes down to how bad the seizure was and how long it lasted. Most stage 1 and some stage 2 seizures have no impact. However, at some point I feel hazy, confused, and tired afterwards. That period will range from a few minutes to 2 days. In the worst seizures I will have intense memory loss to the point where I don't know who I am, where I'm at, or what happened (even though i maintain consciousness). I really wish I could meet with scientists to share my symptoms and experiences because it is very misunderstood, and I can explain my experiences fairly well with identified triggers and everything! Honestly I also want to know more about it.
I appreciate you sharing your experience. I wonder whether your condition may fall under the umbrella of conversion disorders, in the DSM. I don't know that it may necessarily help explain it better, but I wonder whether more psychological therapies might help reduce the onset of physiological reactions that are caused by emotional distress.
I'm in the middle of similar stuff right now. It's pretty severe. I didn't show up to work for 3 days and still am out of my mind. Lol. I have underlying bi-polar depression so that definitely doesn't help.
my Nephew was born with Seizures. he was diagnosed at age of 2. he had a Nervevega stimulator placed at age 8. he had granmal seizures on all 4 of the lobs of the brain. he passed away from a bad car accident back in 2018... he was 19. miss him sooo much!
Before going on medication, my father had both atonic and tonic/clonic seizures. After some trial and error on dosage, he has been seizure-free now for several years.
I was diagnosed with epilepsy after I had a brain hemorrhage due to an arteriovenous malformation (AVM) in my left frontal lobe. I really appreciate the way you explained this! It’s super scary, but like everyone else with epilepsy I’ve learned to deal with it. My auras are always dejavu feeling and almost like I’m detached from my body then boom there comes the seizure. Sending the best wishes to anyone reading this!!💜💜
Thanks for this video. My brother has epilepsy, and ironically, we had a dog when I was a child who also had epilepsy. My parents kept me away from seeing my brother's fits, but I remember seeing my dog have one. It was rather scary and mysterious for me as a child.
I suffer with grand mall seasures n When I had a dog ,he would know hours sometimes a Day before I was going to have a seasures After 20 plus years , I know about minutes before, sometimes I know a minute before Im embarrassed about it ,
Back in middle school one of my classmates had epilepsy, and when he first came to school the teachers went through a presentation of how to deal with seizures if he ever had one while we were around, seeing as he had such frequent seizures, sometimes multiple a day. It was honestly really scary to see at first, especially being a kid at the time, but eventually our class got better at helping and keeping our wits about us than most of our teachers. I’m glad I got a little experience with how to help someone in that situation. Because if I was freaked out at first, I knew most other people would be freaked out and would probably freeze like I did rather than helping the seizing person. Just glad that if someone ever has a seizure around me, I’ll know what to do and since watching this video, I can explain what’s going on to bystanders as well.
I'm a 76 year old Army veteran. I had my first seizure about 2 years ago and a few more since then -- the last one lasted 11 minutes with bowl release and bit tongue. The VA had me taking Bupropion for PTSD for over 20 years and I had slowly weaned myself off it. I believe there is a connection. Now I'm on the Keto diet and take 125 mg of Levetiracetam every 12 hours. EEGs show nothing. My VA neurologist thinks it is a sleep disorder "of some kind". Your video provided me MUCH more info than she has. THANK YOU!!
Omg, you are really lucky, please don't get me wrong, but to avoid any auras I have to take 1000 mg of levetiracetam am and 1500 mg pm. My brother in law take 500 mg am and pm
It was hard at first, as it started when I was 10 years old surrounded by people who are clueless as I am. I was made to feel lonely and different, even today at the age of 23 my friends are my family members but I've learnt to live and with my Absence seizures. That was a wonderful video! 😔
I’m not in the medical field but have always found it interesting. Just wanted to say I did not know there were so many different types of seizures, and this is why I watch this channel to expand my knowledge. Great videos and thank you.
💜💜💜 We need more videos like this. I was diagnosed with Epilepsy not very long ago still learning to accept and manage to losing independence. But it’s such a misunderstood disease it makes it even harder to live with but today this informative video was helpful and made me feel better. Thank you!
The aura phase is so weird to experience for me personally, because my automatism is looking behind me to the left. It makes me feel like my epilepsy is stalking me, and is the only way I've been able to successfully identify an oncoming convulsive seizure.
I do the same Thing ! your the first person who I've heard whose done that too! I'm and Epileptic with Absence seizures and I look to the left and stare during my aura phase . I have grand mall too sometimes but rarely.
My sister has tonic-clonic seizures. They are usually accompanied by intense painful headaches. We believe she has them during her sleep because of her having those intense headaches. Great informative video!
I also have partial seizures where my body shakes uncontrollably for about 20sec. Sometimes I can control a seizure as it is mild but not always as the seizures becomes intense. Doctors don't really have a clue what to call my seizures. I got them when I was 9 and now 33.
I have complex partial seizures. The best way to explain it based on this video is a combination of an aura and absent seizure. During the absent portion of the seizure you actually lose consciousness, but no one would know. You appear awake, but you're unresponsive to everything around you. Some people might just freeze during this phase and others might move around and do random things (I've locked myself in a room once before). It usually takes me 2-4 minutes to "come back to reality." I'll have little to no memory of anything that happened and be in a state of general confusion and exhaustion for a few hours or the rest of the day. In all honesty, they are the worst because I've done some embarrassing things during seizures and if people around me that don't know what's going on, I just look like a total nutjob. Not to mention the fear and panic I experience leading up to the seizure (typically during the aura) is awful.
My daughter has had epilepsy for years and just got cleared to go off meds. Thank you for pointing out the myoclonic seizures that I didn't know existed, as well as the stress-induced ones. I learned a lot from this today.
How long did she take medicine for? Was she able to drive while taking the medicine? Was she experiencing seizure while taking medication? What kind of medicine she used to take? Sorry for so many questions my daughter started having seizure in Jun 2020 she was 16 and 6 months later we finally go to see the neurologist and the medicine made everything worse she took it for 2 months then stop because it was really bad she has have 2 more seizures after stopping the medication
My 33 year old daughter had a "Grand Mal" in her bed just 3 days ago. No history of it. Very healthy. She would have probably choked to death if we had not been there. She had another 6 hours later in the hospital. I am terrified. She has anti seizure meds every 12 hours now. Everything seems back to normal. Thank you for this video with all of my heart.
I watched this with tears in my eyes. My mom went through a very traumatic event 13 years ago and suffers from seizures till this day. I know what to do when it comes to my mom. But this definitely opened my eyes to the many types of seizures and ways to treat them. Subscribed!
Omg seriously. My husband has epilepsy and has literally been doing tests for a year just to get a meeting with his neurologist and this was after a 6 mo th waitlist.
It’s important to know that all neurologist aren’t epilepsy specialist. Please make sure your doctor is an epileptologist because they have more formal training on epilepsy.
I've had grand mal seizures in the past where I've blacked out and my family called an ambulance just to have the doctors tell me they were "pseudo seizures". As in fake. It stopped me from getting the help I needed for about 10 years.
I have lived with epilepsy for about 14 years and have experienced nearly every type of seizure mentioned in your video. At one time, I was experiencing an aura that would cause me to hear the theme song to Laverne and Shirley in my head! My doctor and his whole staff thought that was a hoot! Now, my aura is hearing sounds and conversations in a very garbled manner-almost as if they are in a tunnel. This video helped me understand a lot, especially my aura having to do with hearing, as I have a right temporal lobe epilepsy diagnosis. Thanks
I've lived with Epilepsy my whole life. I really appreciate you making this video. This medical condition is misunderstood and a few years ago there was even a TikTok challenge that was mocking people living with Epilepsy. Educational videos like this are so important. In my case I would often get really dizzy and/or weird headaches before having a seizure, other times it was completely random.
Thank you so so much for using your reach to educate others about epilepsy and seizures💜 My dad suffered with epilepsy since he was a young boy, it affected both sides of his brain. It was heartbreaking to see him go through that, especially because how extreme his seizures were, constantly hurting himself. So many doctor visits, including getting the Vagus nerve stimulation, tons of medications, but never any luck. Always praying for a cure. May he rest in peace, and never feel any pain again. 07/02/2021 (age 49)
I have an AVM that started my seizures. I do take meds but doing the modified keto diet has been the best treatment for my seizures!! Loved this video ❤
My daughter got her first seizure at 6yrs old. It was the scariest experience I've ever been through with her. Her whole body got stiff, with arms and legs extended, and shaking violently. She's 18 now, and has had about 8 seizures in total, Doctors can't figure out why. She knows when she's about to have one when she starts to get a bad pain in her stomach, and starts to sweat. She's not on any medication, so I worry a lot about her. Every time she has one, I hope that it'll be her last. Thanks for the informative video!
I got this kind of seizure too. Several doctors can't diagnose what it is. I'm 29 now. I got my first one at 18. In total i've got 8 times. And it's a really bad pain all over my body. Stiff muscle from head to toe. Hard to breath. Cramp stomach. The pain is worse than labor pain. And it could last for 2 hours. I hope your daughter never get this seizure anymore. You can try to put something warm on her stomach,or her palm and feet. It helps reduce the pain.
@@devi.village Oh my gosh, I am sorry for you, and others who are suffering with no answers. I hope your doctors can get to the bottom of it soon. Sending you best wishes for restored health.
A cousin of mine had a seizure tonight at a family gathering. Her father acted calm and perfectly, but I realisez I know nothing about epilepsy, so I came here looking for a video that could help and teach me something. Thanks a lot for your work
Thank you so much for explaining autonomic seizures. I have epilepsy but the doctors cannot "make me have one" during an eeg so they have me under the category idiopathic. But once you started explaining autonomic, which was never bought up to me before, fits my aura symptoms perfectly. Now I'm going to have to look more into it.
when it comes to the brain, so much is literally dismissed simply because medicine really has no clue about how the brain works. it has a very general idea but that's it. The brain is the only organ in the body that affects who you are because it is, in fact, you. I have multiple personalities and it's one of those things that is dismissed too but it is gaining more traction. The brain is one of the many proofs that there is a God that meticulously designed us. It will never give up its mysteries. I don't think we were really ever meant to understand how the brain works.
@@scottcupp8129 They’re seizures without the typical electrical activity associated with epileptic seizures, as the video said. For myself the cause was psychological - untreated depression lead to stress manifesting itself as seizures.
@@scottcupp8129 Most people who study medicine end up becoming religious. The human body is so advanced and incredibly complicated, it’s literally impossible for it to have evolved. Im talking of course about macro evolution, which is going from a simple organism to a completely new species or advanced animal.
I have been diagnosed with both Epilepsy and PNES. Is this common? I had surgery on my right frontal lobe and still take a lot of medication and starting therapy for the PNES soon. Really appreciate your video!!
My mom is diagnosed with Epilepsy and the first time she had a seizure it scared me so much. But as the months went by I kept date when he had one, it was every two months. And just recently we found out her Epilepsy was caused from Lupus. Ever since we figured that out. We've had alot of hospital visits, clinic visits....and I'm just being here for my mom. She needs it the most. Every day I learn more. To know more. Thank you for this video
I was literally diagnosed 4 hours ago. (47 years old) I am so grateful because I know now why I am constantly tired, headaches, dropping things ect And the timing of this video is perfect. You confirmed everything my Psychiatrist said. 🌸
This is super helpful and valuable information. Thank you. My mother has epilepsy, she's not been aware or at least not able to tell me of any prodromal symptoms. She often starts saying things out of context and I know to get her sat down and somewhere safe. Not always though. I worry when she's alone, she doesn't know it's going to happen and can't get her self somewhere safe. It breaks my heart and I worry so much. My strength and thoughts to anyone it affects, the individual or those who love you. I hope you can get to a place where you are seizure free, meds are super important and I hope you can stay safe and well 😊
My mom gets non-epileptic absentee and sometimes myoclonic seizures, growing up it was really scary watching it happen and not being able to do anything to make it stop, just waiting it out and making sure she doesnt fall or get hurt etc. 😢 thank you so much for talking about them, it made us feel seen ❤
Very good explanation, I'm 61 had them since I was 12. I'm on dialantin and tegretal. Great advice to bystanders. I have broke ankles, broke feet, and scared the hell out of people. My seizures changed through the years more violent when I was younger, now very seldom. I am an epileptic.
I feel for you , Im the same had my first seizure when I was 13 , Im 54 now for the past 20 years Ive been seizure free stopped all meds and feel great . Im proud to say IM AN EPILEPTIC
@@cottagegrove5611 you stopped your medicines? Have you had any seizures? I take mine every morning and night, and still have hyperclonic jerks sometimes. I drive, had 3 kids, none are epileptic. 2 girls 37,40 and a son 24. Good for you. I'm happy for you.
I was diagnosed with epilepsy at the age of 8. Shortly after I turned 20, I was very fortunate to be one of the first patients to undergo a procedure using new laser technology. Since that surgery, I have been completely seizure-free. Unfortunately, those 12 years held me back a lot and I didn't really think about what I wanted to do with my life for a long time, as I was just happy to be living without epilepsy again. It also took a LONG time for the side effects of all my failed medications to wear off. But now I'm finally doing something that I actually enjoy, and I wouldn't be able to do it if I still had seizures!
I am in this exact situation right now, and I'm also going to be having a surgery using laser technology in about 4 days. Could you possibly explain to me about how it felt after the surgery itself? As in, the auras/seizures themselves, do they just completely go away? Or do they somehow stay there as something psychological but it doesn't have the side-effects of actually experiencing them? And how exactly did you truly find what you wanted to do with your life after being so uncertain for such a long time?
I had one seizure when I had a ruptured brain aneurysm. Then for about a year after I had the arm seizure thing. Which only happened when I was very tired or stressed. Best medical channel on UA-cam!
Being a epilepsy patient for a good 30 years, I do have a Vega nerve stimulator and it is terrible it feels like a stabbing pain in your throat where I am gagging and gasping for air to breathe, I had that device turned down to the lowest level so it is not basically working. When my doctor told me it would feel like a small scratch effect that was extremely wrong for me. He found out that checking it every visit I would have these effects every time where they would last for almost 18 minutes it would bring on my asthma symptoms where I could not breathe and was choking all the time, do your self a favor and don’t ever get this implanted.
Anything that affects the brain scares me so much and makes me teary, my mom had a stroke 2 years ago and till now I've not yet healed from that experience Thank you for all this information keep up the great work guys.
This was so informative, I am epileptic and I have such a hard time helping others understand exactly what happens especially because I have many different types of seizures. I am so grateful for your spreading awareness thank you so much for making this video 😍
I was diagnosed with epilepsy seizures when I was four, It was really really hard for my parents. I just wanted to say thank you for explaining this topic because some people don’t understand how this works and the people having The seizures Can’t help This. Thank you so much.
I really love you guys. My sister has seizures and we just discovered my moms bf too. This explains a lot being that we live in BR, LA. High stress environments are not healthy at all and will catch up with you if continually submerged in violence, abuses, and discomfort. This was great information. You guys are awesome.. 🙏🏾🙏🏾🙏🏾
I live in LA and had partial seizures since 9 and now 33. I remember another kid swung a swing onto my temporal part of the head and maybe that's what caused it.
I've had a seizure before+have anxiety that's the reason I have had it. All my seizures, anxiety,dayzhavue,+ mood -swings l've told is another problem l've had all from my car accident l had when I was 8 yrs old when out on a walk....
This made me cry but also gave me an understanding of my late 15 year old son that died from epilepsy seizures. It took him five years suffering from seizures every day. Why do we exist in the first place if all is going to end into frustrations one day no matter what. My family has never had a history of epilepsy.
I am so sorry for what you were going through with your son. I know how you truly feel. My son is 10 years old and he just got diagnosed with epilepsy, he had many tonic clonic seizures in the past month. I'm literally crying reading your comment. I pray that your faith will bring you strength and courage. That's all that keeps me going now. My faith is my strength. I hope you find yours my friend.
My elder daughter had febrile seizures. After the first one we were in the ER and the doctor asked how long it lasted. We didn’t know. The doctor then told us to look at the clock and tell us how long it lasted. I told him we could look at the clock forever because it felt like it lasted an eternity. (Yes, he was a jerk.) That’s why wonderful education (like you provide) is invaluable. Had we’d known it was a key piece of info, one of us would have checked the clock! Thank you!
I had febrile seizures as a baby too. Apparently, I was so sick that our neighbours refused to let us wait for the ambulance and drove my mum and me to the hospital because he was so worried about me. I was in for a couple of days while they treated me and did tests, but I didn't realise that our neighbour actually was the local coroner, so he's the person who would have been doing my autopsy had I not made it, and he had nightmares for weeks about me turning up on his autopsy table. I suppose I always underestimated how big of a deal that was, because I know febrile seizures are so common, but I guess I was sicker than I realised. And that was before I caught measles and ended up hospitalised again (I was vaxxed, and the medical staff said that was probably the only reason I didn't end up blind, deaf, brain-damaged or dead).
This is so incredibly helpful! I am a MA-C in Neurology, this is actually the best video I've ever seen to actually understand it. I have never seen a seizure, and I won't pretend to know everything. I really feel like I understand a little better and I absolutely will check the other videos out! Thank you!
Thank you so much for sharing this info! ❤️ I'm 38 & was diagnosed with first episode of seizure in 2020. My mother told me the last thing she saw was that I was staring at the food on the dinner table before dropping to the floor. I woke up confused, nauseous & puked. CT scan, EEG and ECG showed no abnormalities, but I was left with a big bruise on my right arm & a bitten tongue. I am not allowed to go swimming alone still, even though I had not had a recurring episode so far, hope it stays that way! - Love from Singapore ☺️
I’m epileptic and while I haven’t had an epileptic seizure in years, I do have focal seizures daily, not sure what type of focal seizure tho cuz to my knowledge I don’t experience an aura phase and don’t realize it happened until I “come to” to find myself holding my breath! I can still hear and comprehend everything around me, I just don’t respond until I come out of it!
@@opalescentmica I don’t think I have a specific trigger! I can just be having a conversation one minute and then the next I find myself holding my breath and I have my shoulders tensed up too so once I’m out I drop my shoulder and get my breathing back right then keep on with the conversation since I can still hear and comprehend while in an episode!
I hate this disease I’m sick of the seizures I’m on the edge, if it wasn’t for my fiancé I wouldn’t even bother anymore every single day is a struggle. I feel for every epileptic out there god bless you (if there is one)
Thank you for explaining many type of seizures. I’ve had two very intense seizures that happen during sleep, but not due to Epilepsy. I did suffer hard hits to my head as a kid though.
As someone who suffers from Grand Mal (Clonic-Tonic) seizures, this was extremely helpful, informative and interesting. When I was in my junior year of high school I contracted E-Coli, had a brain abscess draining and now have a mesh plate on the right side. This infection brought out the seizures.
Oh no, I'm so sorry you have to go through that, and it was bought on by a mesh of all things! Geeze.......I feel you very much, my mother's grand mal too :( .
One of my friends in middle school had a Grand Mal seizure in algebra and we were all rushed out into another classroom and she was taken away on a stretcher and i developed this irrational fear of seizures, but knowing how to help people makes me feel better now and knowing warning signs for myself or others makes me feel better too.
I was just recently diagnosed with epilepsy after having a a few different episodes with varying symptoms. For a while I thought I my life would never be the same... Thank you for making me feel that I'm not abnormal.
I’ve worked with people who have Epilepsy for 20 years and this was a great video. The worst type of epilepsy is the medication resistant types such as Lennox-Gastaut syndrome, it causes brain damage with every seizure, sometimes multiple times a day (which happen more frequently as the person ages) and is devastating. Hopefully one day there will be a gene therapy cure. I hope it doesn’t come too late for a wonderful woman I know who is now not able to walk and most days can’t indicate her choices anymore.
Fell and hit the back of my head as a child, suffered from seizures ever since. I've experienced all of these types, except for febrile, with no known aura. Despite all the tests and treatments, my brain still seizes when it pleases.
My dog is epileptic. I can tell when his eye expression changes he's getting close. His eyes get very wide and he begins looking around as if there is something he's earing or smelling. He will begin panting very heavily, too. He has had major seizures when he's been very fearful and stressed too. Fortunately he's pretty well controlled with a stiff dose of phenobarpitol twice a day. This video has given me more insight into my dog's disease.
Very helpful, I witnessed a seizure once when I was driving and stopped to do what I could to help but thankfully someone familiar with seizures was there and able to give instruction and look after the person
My dad has had epilepsy since he was about 23. He was on a ladder and felt weird, he then woke up in hospital. I've witnessed many seizures and have helped my dad numerous times when my mum can't help. It was a stressful time, I was constantly on edge waiting for the next one. In one severe seizure, he stood up, collapsed and smashed his head on the door frame. Blood everywhere but fortunately no damage.
Love this video! It really helped me get a better understanding of what being a epileptic is. I started having seizures randomly around the age of 19 and no one could ever give me a explanation. Especially because they only ever happen in my sleep. Strangest thing of it all is that probably around 2 weeks prior I had this obsession with learning on to help in a situation when someone is having a seizure. Little did I know it would be me 🤷🏻♀️
I think sometimes we get this kind of "aura" (pun intended) when something isn't quite right with our bodies. I feel like I jinxed myself by saying to my (at the time) partner that I felt so lucky that I'd never had cystitis - I woke up the next morning at 5am with the worst symptoms from what turned out to be my first attack of interstitial cystitis (which is kind of like having the worst UTI but constantly, and it's not caused by an infection so you can't fix it with antibiotics). 🤦♀
I had auras from age 16 to the age 22 when I had a grand mail seizure in my sleep also. I’m now 62 and have been on a low dose of carbamazepine since that one and only seizure. I tried weaning off of it for 6 months about 10 years ago but my auras returned one day so I went back on the medicine. Still seizure free since the first one. Good informed video
I'm an epilepsy patient and this is one of the best videos I've ever seen. It explains so many different things that I also personally experience. I get aura's first then go into really bad seizures get a really strong smell of copper gets really overwhelming and I get dizzy and either I'll slowly get better or I'll fall out and have a total grand mal seizure.
Wish I had found this video sooner! My mum had 3 seizures in the same place a month ago and is half paralysed. Amazing to FINALLY get an explanation as to what happened.
My nephew has epilepsy (since he was 11 and he's 33 now). His body is so messed up from having convulsions that he's in severe pain all the time. I wish everyone could see your video. Then they may understand why he looks tired all the time and speaks slowly (medicine). He does have a vagus nerve implant, and it does help, but not like we all thought it would. He has a lesion in his motor skills area, but the doctors are afraid to do surgery, which we understand.
I had partial seizures since I was 9 and now I'm 33. I feel his pain. Doctors still can't understand what type of seizures I have. During an episode my body shakes uncontrollable for about 20sec. Sometimes I can control a seizure when it is mild but not always as the seizure becomes intense and not controllable. Different things can trigger my seizures. I stopped taking Rx as it gave me dizziness and now just take CBD/THC drops.
I don't know why but I got hungry...otherwise, I love everything related to the brain and it all started back when I was 15. I received a very hard hit on the back of the head, I lost a big chunk of my long hair and had a very big bruise on the back of my head BUT after that, months later I was able to learn languages. I currently speak four languages fluently and understand other four languages that I am still studying. So my brain injury came to be a blessing in a way.
Enjoyed the content. One point I might add is that epilepsy is not commonly referred to as a disease, but rather a condition, or, disorder. Thanks for the informative video.
I have been diagnosed with PNES. Most of the time I know when one is coming. Smells cause most of my seizures. There are time's they just happen. When are the signs it is starting: 1. My eyes will fixat on an object. My head will move, but my eyes will stay fixate on that object. 2. My left hand will clinch into a hard ball and be pulled to my chest. 3. My right hand will reach out to pick something up, will draw back to my body. No matter how many times I try I can't pick up that object, not till after the seizures ends. These are just a few of the signs. My recovery period takes about 7 -10 days. During that time I go through many different phases. When I am going through these phases my family will leave me alone. I go through the same phase after each seizure. 1. I get mean and nasty. I am not abusive. 2. I don't care about anything. Nothing matters. 3. I want to pack up my bags and leave, never to be seen again. 4. Sleep a good part of the time. There are others. Depending on the severity of the seizure will determine how many days it takes for me to recover. I hope this isn't to long, maybe it will help others. Michael
my dad is an alcoholic had a had a seizure as a withdrawal symptom, it’s honestly interesting how that can happen and how the brain will just shut down like that
It happened to me via benzo withdrawal. I hit my head on the corner of a coffee table & it spit my left eyebrow right into. I had to have 7 stitches. Lucky I didn't damage my eyeball itself. I don't remember anything right before or during. I just remember coming to with a crowd of ppl standing over me & I was in the floor. An ambulance was already on it's way. I don't take benzos anymore. Took a long time & a lot of suffering to get completely off of them.
I have epilepsy. For me the aura phase involves anxiety, occasionally panic attacks, deja vu, light headedness, and eye twitching. At least those are the ones I can remember. I’ve been on medication since I got diagnosed so fortunately I’ve only had two major seizures, lost consciousness both times. This video helped me realize that I may have been suffering absent seizures without realizing
@@gideononwe8089 honestly don’t be, I don’t know how severe yours are but I’m on medication and haven’t had a seizure since 2014. Just make sure you have a good neurologist 😊
@@gideononwe8089I’ve had epilepsy for 33 years. I have grand mal seizures, which means I am unconscious and my body jerks, I bite my mouth, etc. epilepsy is scary, but you can live with it. Be careful, let people know you’re epileptic, and try not to stress, or get overtired. I know you’re afraid, but you will start to understand what triggers them, and hopefully you’ll get some control. I take Tegretol CR. It works well for me, and I’m an OG of epilepsy lol.
Thank you Justin! It's crazy to think of how bad my epilepsy was when I was your student.. 😅 so thankful for cannabis as that's been my most successful medicine. This was a great lesson on seizures. Thank you!
Once again THANK YOU for explaining in lay-terms what we mere mortals hear and yet are unfamiliar with. Thank you also for explaining to just allow nature to take her time and allow these seizures, for want of a more accurate description, to fulfil their duration and then how to help those afflicted. Such a lot to digest and hopefully a lot of us will never have to implement what you have shown us but it is worth while to know how to help if called upon!
Incredibly informative! I always though of seizures as the stereotypical tonic-clonic and I did not know other types existed. This explains events that would randomly happen to me and now I am looking more into seizures
I am from Europe and love your content! Thank you for making this video about seizures! I've had a right temporal lobe tumor, and had 4 seizures before I could finally take medication after diagnosis - I experienced 3 seizures completely alone not having a clue what the hell just happened to me. So this was close to my left side motor functions, and I would feel like I cannot swallow and kind of just weird, then my left arm and hand would tingle, then my face would start twitching on the left side, and then my arm and hand would start moving violently - meanwhile I am all awake, this phase probably lasted about a minute I am assuming, and then I would pass out for 20 minutes. A lot of people think having a brain surgery must be scary, but I assure you that experiencing a seizure alone inside your home during the pandemic, living in a different country than your family and people who know you is the scariest thing I have ever experienced in my life. I had to wait for a head MRI to finally have medication which completely controlled the seizures. I am still taking the medication for 2 years as a preventative measure after having a brain surgery.
This was very hard for me to watch. I have epilepsy with tonic-clonic seizures. Any time I see anything to do with seizures I get very stressed and scared, like it's going to happen. I'm glad I watched it though, I learned a lot that I didnt know. You did a great job breaking down each type, thank you.
I have a history of Epilepsy. When I was really young I would only have seizures in my sleep. Weird I know. Made a diagnosis difficult. These seemed to stop. At the age of twelve I had my first seizure during the day and it was the only time I had a warning that something was going to happen. I got very dizzy, called to my friend to wait for me, put down the box I was carrying, dropped to my hands and knees and nothing else. I became aware of my surroundings when we arrived at my home and then promptly went to bed and fell asleep. Since then no aura to speak of just waking up in my clothes and really cold hands when I wash them. I had my last tonic-clonic seizure at the age of sixteen in 1988 which I am very grateful for. I guess this illustrates how unique everyone's experiences of Epilepsy and seizures can really be. Still need a medical every year to be deemed fit to drive though. 30+ years since my last seizure... pain in the neck. For those still experiencing seizures regularly, I do realise how lucky I am and I hope that your situation improves.
@@bookaniabookskiduniya7274 I hope things improve for you. I still live with the fears though, strobing lights and other triggers etc, so I haven't completely let go of it. Blessings to you.
Thank God they stopped! Having seizures in your sleep can be really bad. Like it could either possibly put you in a coma or you'll go to sleep and never wake up (i.e., die).
Hard to watch, but thankful for the lesson. My mom was epileptic so I've seen my fair share. We never knew about the ketogenic diet option, or CBD. I'm happy to see this medical progression.
I had surgery to help stop my seizures November 1st 2022 and can't even fathom my luck. This video honestly helped my understand my condition. The cause of my seizure was on the right side of my brain. Thank you!
I have absence epilepsy. Stress is a huge factor. Not just physical stress but emotional stress. I do notice strange smells sometimes but never noticed automatic behaviours. I lose consciousness but maintain motor function and then be confused when I come back. I'm still experiencing the occasional seizure as an adult but they are so few in comparison to my childhood. The missing information idea is so accurate. I tell people it's like a cd skipping . I miss bits and pieces of reality and I can get a bit annoyed if people don't fill me in 😂 what are we talking about? So many times people can't be bothered to repeat themselves
Thank you for this video. I've been suffering from headaches since childhood and have had at least 2 seizures. I met with an accident when I was little where a solid log fell on my head. Having headaches really affected me, especially when I was in a lot of stress and strain. I later came to know that it was migraine because of experiences like aura especially visual- zig zag lines, nausea, throbbing headache, dizziness, sensitivity to light, sometimes black out eventually I suffered from anxiety. 3 years back towards the end of my post graduate nursing, it got worst, I felt very sick, my glucose levels tends to be lower even after eating. Fast forward, just after graduation, I had a seizure,even lost a tooth to that. I was later diagnosed with granuloma (calcified). Now I'm cured after treatment.Thank God. So yeah, I think knowing the triggers, signs and symptoms etc is vital and headaches should not be taken lightly I am sure. Consulting a physician is very important. The early the better. (This is long but I hope it helps someone)
I suffered from seizures until my early 30's. I experienced 80% of the symptoms you spoke of. I never knew what was happening. Most of the time they happened when I was alone and I just learned how I personally dealt with them, but trying to get someone else to understand what I was going thru was impossible. As I got into my teens and I would have one in school around other people It was assumed I was just on drugs or something, I even had a paramedic say "Just tell me what drugs you took so we can help you." On the few occasions I ended up in the hospital, I was not treated for anything, just left in a room alone for a few hours and let go. Once in my early 20's I had a seizure while in a medical setting and a doctor recognized it and I was sent for testing and was told I was "border line epileptic" what ever that means, was not put on any meds because "the side effects out weighed the benefits." I am now in my late 40's and haven't had a seizure in almost 20 years. I think about it all the time and am terrified of having another one again because I expect what others might ASSUME.
If I could go back in time, I would have wished for an *unmedicated* childhood. I got all the side-effects, yet still had breakthrough seizures. When I was 18 and on my own, I stopped the meds (not safe to do cold turkey, yes I was an idiot). And had even fewer seizures, though correlation/causation… childhood epilepsy often declines after childhood anyway. But yeah, I wish my doctors and parents had been more concerned about the meds. This was an earlier time though, and the main drugs were phenobarbital and Dilantin from age 4-18 and I won’t get those years back 😒. But it’s always about risks and I know imagine for many people the risk of high seizure rates makes meds the safer option / worth it. I still have seizures but rare and with a lot of warning.
@@KathySierraVideo i'm 30 and had what i assume is my first seizure. (because i've never had this type of thing happen before) I went to sleep and had a Tonic Clonic one that caused me to go to the hospital (because i had never had one before, and my husband didn't know if i had taken some kind of drug before i fell asleep and seized). while i was in the hospital i had a second seizure, and in under a day i went from non-medicated, to being prescribed levetiracetam sandoz. which i would be ok with if it didn't come across as a "well just in case" measure. i live in canada and our healthcare is in shambles. several month waiting periods for xrays or tests is common. and finding a family doctor is now becoming a rare commodity. i was incredibly lucky that i was able to be scheduled for a CT scan, MRI and EEG within a week of the incident. so when i tell you that i don't know what my doctor even looks like or sounds like (i was sedated when he was there) i want you to understand how unsettling it was being prescribed something strange from a mysterious name on a paper. but he not only was able to prescribe me very strong medication, he also automatically sign me up for auto refills for when i run out. which sounds great, except the results for my CT scan haven't even come in yet, and they already have me planned out for months worth of medication... on a maybe i have epilepsy? but you want to know what i do have now, regardless of what the original cause was? several months of slowly and carefully weaning myself off of the meds because if i do it too fast that could cause a seizure! thanks doc, i didn't need to be basically guaranteed to have seizure because you don't have the time to do your proper job. this effects my ability to drive, to own firearms, to operate heavy machinery. and to have seizures be potentially caused by anything from a tumor down to stress, or being too warm..... i feel screwed over by the Canadian medical system. thanks for the meds a** h***s i would have preferred actual tests first. but its not your life, so who cares i guess.
I've been a developmental service worker for the last 7 years. I've seen hundreds of seizures. The most amazing thing was using a VNS stimulator magnet on a 11 year old girl who's tonic-clonic was reaching the 4 minute mark. Just one swipe over her collar bone implant and she stopped and entered recovery phase. Truely amazing. With just a magnet!!
I was diagnosed with epilepsy, more specifically Juvenile Myoclonic Epilepsy at the age of 13. I’m now 32, have had a VNS implanted and have tried many different meds. Thank you so much for this; through telling my story throughout the years I’ve realized that many people are not aware of what to do for seizures prevention or how to support someone who has epilepsy.
I have epilepsy and my auras look like 100 little fireflies but each with a different colored light flying around me for 30 seconds to a minute I learned to appreciate them instead of be scared of them because the colors look so vivid and beautiful.
I've had epilepsy since around 12 when I started puberty. Mine always start with focal aware seizures. Sometimes that's it, sometimes it continues on with a focal impaired awareness or generalised tonic clonic seizure. My aura or focal seizures usually start with deja vu, then intense fear. I feel like I can feel a zap in my head when it starts, and then a tingling radiates outwards. The aura though is good as it gives me time to lay down or tell other people what's happening. But I have to do that quickly as communication becomes difficult quickly. I know what I want to say, but I can't say it. Or sometimes I think I'm saying something, but I'm just talking about random things or gibberish. If it turns into an impaired awareness, I will start lip smacking and may have tense muscles. I can definitely tell afterwards which kind of seizure I've had. Depending on how exhausted and confused I am, or if I've lost bladder control. It's been about 7 months now since my last tonic clonic. So I'm feeling pretty good at the moment.
I only had a strange feeling before the first one at age 14, and again at 24 when I was driving, but I dismissed it because I took my meds. Didn't realize the pharmacy had put two kinds of pills in the bottle. Always check your meds. Ended up totalling my brand new car, flipping upside down, and causing minor damage to 4-5 other cars, mostly parked. They even blamed me for damage to a car that hit me while I was upside down. I sleep for hours after because exhaustion but woke in hospital with some scratches on my knuckles. Worst part for me is fear of hurting someone else. Now I'm much older and beginning to think I may have autism, and learning there is a link with Epilepsy that starts in puberty might be related to being autistic. Wish I'd been diagnosed then.
My seizures almost always start with that "de javu" feeling ... then if I'm holding something, like the a can, either the can feels HUGE and my hands feel tiny or my hands feel huge and the can tiny 🤔 I talked to my Dr., he had no idea. I found it online and it's actually called "Alice in Wonderland" syndrome.
@@recoveringsoul755 - I'm seriously surprised they blamed you for another car hitting you. 😳 That's crazy. About 5 years ago I had a seizure while driving on the freeway with my daughter and drove off a overpass ... What a mess that was.
@@sarahdixon1943 omg that sounds terrifying! I hope you and your daughter weren't hurt bad. I carry maximum insurance now because of it. Luckily never had an accident with anyone else in the car with me. I guess the insurance companies just go after who caused the accident, even if I got bad meds from the pharmacy, even if someone else was tailgating me and pushed me into oncoming traffic, they are lazy and won't look into it
Hi guys. Thank you for doing more brain related talks. The brain is so vastly complex and it boggles my way of thinking to try and figure out the way it even begins to work. Thank you for shedding some light on it. I don't suffer from any seizure disorders nor have I ever. I have major depressive disorder with psychotic features (hallucinations) and I often wonder what my brain is doing as it hallucinates and what causes it. 1000 trillion connections and just one connection needs to be wrong in order for something to go wrong.
I’m watching this in attempt to learn more about my friend’s epilepsy. She happened to be conscious when it started, and was somehow able to dial 911. Eventually she coded and they had to use an AED to bring her back. Scared me nearly to death myself. Just watching this video is making me feel so scared, but it’s important to be informed of what seizures are, and when to be afraid and when not to.
I have a friend that has Epilepsy but also ADHD and I've noticed that everytime when her ADHD levels are very high that she falls asleep and after like a minute she starts to have jerks. So I'm glad to watch this so I know of what to ask her when she thinks she will have a seizure, to be able to help her through it.
As someone who has epilepsy having an aura is hands down one of the most scary things ever, just getting the deja vu feeling and knowing what is about to coming is just terrifying. Anyone with epilepsy know what I’m talking about
I know what you mean. I get migraines and seizures. When I get the aura in my eyes I know I've going to have a migraine and it scares me. There's nothing you can do. A blinding headache. Light hurts my eyes. Sound is excruciating (telephone ringing is the worst). Nauseous. But then what it's over, I feel like a new man. Seizures are a different story. It is external sights that provoke my seizures. Disco balls, houndstooth patterns, moire, watered silk and most especially, Sam's Club tissue boxes. After I've had a seizure I am exhausted.
Well, really I've had my seizures over 20 years and they're starting to calm down and easier to control, so it's easier to stop them whenever I feel the aura than it was before. It used to be scary though.
Thank you for talking about how hard getting a diagnosis for any kind of seizure disorder can be! I've had problematic seizures for years, but people don't take them as seriously because I don't have the dang diagnosis and it's extremely frustrating!
I was recently diagnosed with temporal lobe epilepsy and seizures caused by a TBI. My aura always occurs up to 3 days to right before a seizure. I see bursts of light that fade quickly almost like a camera flashing and experience extreme fear minutes to seconds before each seizure. My service dog knows when I’m about to seize and gives me time to get closer to the ground and tell whoever is with me what’s about to occur. I haven’t heard an explanation so concise and useful as this. Thank you for helping us (those with and without seizures) understand the physiology of seizures.
My cousin got epilepsy after a fall from her high chair. After years of not being able to control the seizures she had brain surgery in her 20’s. They cut that piece that connects the two sides of the brain. It totally changed her life for the better and stopped her seizures. She also matured to match her age. Before she was more like a 14 yr old. Fascinating stuff!
Go to thld.co/selfdecode_human_0122 and use code HUMAN to get 25% off your SelfDecode DNA test kit! Thanks to SelfDecode for sponsoring today’s video!
Is this service available in South Africa?
This is amazing! I want to learn more about my health with this kit
I suffer from epilepsy on a daily basis so thank you covering part of the topic it was very interesting
You actually got this a little wrong.... I have epilepsy. Not all epilepsy is (unknown what's causing it) for example, I'm a non-photosensitive epileptic. Which is exactly what YOU said epilepsy is. They don't know the cause of reoccurring seizures. Photosensitive epileptic's have reoccurring seizures caused by things like flashing lights. (there may be more than just those 2. But those are the only 2 my neurologist and I have discussed)
Just a little extra info!
Turkish subtitles pleaseeee
I have epilepsy. Normally, I'd be terribly scared to watch a video about seizures. But having you guys explain this fascinating concept makes me much more confident and accepting of my illness. Thank you for your precious gift!
You and me both. I normally never get phased by videos, but whenever I see a video of someone in an epileptic state, I always turn it off. It's scary to see someone go through it, and it's scary to know that you do the same.
Knowledge is power. So, it's good that we watch videos regarding diseases that we have. Understanding about seizures may help in controlling our emotion (especially when a recurrence of epilepsy happens) and overall better self-insight. Cheers.
Have you tried CBD oil?
Why watch a video about seizures when you can just have one
Lions Mane supplements help to heal the brain from seizures.
I’m an epileptic with generalized Tonic-Clonic seizures. It’s so frightening waking up from one or any seizure to be honest.
God bless all of my fellow epileptics and their family’s and partners!
I pray the frequency of your seizure reduces and you get back and lead a normal life. My Dad started having seizures in his early 70’s n after 10years he didn’t have anything .
God Bless ❤
My ex girlfriend has those types. I felt soi bad for her
thank you Fireblade 🙏
thank you Rainbow 🙏
thank you Paula 🙏
many blessings back at you 🙏🕊💚🦋✌
❤
I am diagnosed Epileptic and I hate it!! I've had many seizures and I hate them too. No doctor has ever offered this explanation and I cannot thank you enough for this video. It is scary when something like that happens but you have no idea why or how. I love you guys and this channel!!!!
I've always wondered what it's like to experience one.
My sympathies! Doctors can be dismissive!
Do you get a signal when the seizure is about to happen? I mean to disrespect or make you feel bad
I just wanna to know more about it
I'm very sorry you have these seizures. The brain is the most complex and mysterious thing in the known universe. I have always been fascinated with it and how it functions as it does. Medicine knows very very little about how the brain works. I was speaking with my neurologist one time about the complexities of the brain and if medicine will come to ever fully understand it. I expressed my doubts that it would. She stated " I really don't think we were meant to understand it." 100 billion neurons that each have 1000 to 10,000 connections known as synapses. That's in the neighborhood of 1000 Trillion connections. That is amazing. That's just utterly astounding!
I am also epileptic I woke up in an ambulance from a grandma seizure I'm sore af from thrashing so hard and they had me in restraints..
I have had Tonic Clonic seizures for 43 years...this is the most information, and the most concise information I have received 😢
as someone with epilepsy, seeing informative videos like this makes me so happy. it’s such a misunderstood disorder, even to neurologists. there’s so much misinformation when it comes to seizure first aid that it puts us in danger. knowing that so many people have watched this video brings some peace of mind :)
Being a first responder around someone having a seizure in a somewhat public space can be an "interesting" experience as well. A lot of people just freak out completely. The result for me was that I glanced at my watch and moved a table out of the way, then proceeded to try (with moderate success) calming everyone else down while leaving the seizing patient alone, which felt just a bit odd... As things calmed down, we found out the patient had a known history of epilepsy and aside from being slightly confused, tired and terribly sorry for the upset (need not have been, since it wasn't her fault at all!) was fine.
Bottom line: Awareness and first response training is a good thing. More of that, please.
Encouraging to hear this. I’ve had grand mal seizures since birth, and the worst was waking to see other people freaking out. Especially teachers in elementary school. Though I’ve had hundreds of seizures, I’ve never actually seen it happen live. So I do understand it’s disturbing to people, which is why I usually let people I spend time with know it could happen and what to expect, so it’s no big deal.
@@KathySierraVideo I don't find it very disturbing myself, since I have the training and knowledge to understand what's happening (though of course I have no idea how the seizing person feels!). The thing I really found unsettling was the sheer panic some of the other bystanders showed, to the point where the best I could do to keep the patient safe was keeping everyone else from doing anything stupid (possibly movie inspired). That's why I think that education and training for immediate medical response should be far more widespread than it is. It's not rocket science or surgery, after all. Or, in other words, I don't think it's something that should need a lot of explaining...
@@jandl1jph766 exactly, yes. As for how the seizing person feels, that’s the “good” part… we don’t feel *anything* until it’s over. And that’s when calmness from others is a massive help.
For my specific case, the part *before* the seizure is the worst, as in the worst thing I can imagine feeling. By the time I lose consciousness, it’s a relief, and I’m usually MUCH better after. Thank-you for being a role model in this.
@@KathySierraVideo As usual, panic never helps and frequently makes things worse. That's for sure.
It's good to know that the seizure isn't as bad as it looks (and it does look very painful). I think that's a big part part of the panic response - people wanting to do something, *anything* to "help" yet feeling completely powerless to do so. Of course, to anyone with decent (and recent!) emergency first response training, it's very obvious what needs to be done - which makes staying calm a lot easier as the training takes over.
Could never tell my grandparents that. Every time I would fall out with an epileptic seizure they would think I was dying. And the worst part is, and I dont think it has anything to do with EMTs, but being in the US I would be forced to go to the hospital against my will despite the fact all I really needed was a nap. Extremely frustrating and puts me in medical debt despite not actual wanting to bother the medical workers....
I'm diagnosed epileptic so its nice to hear it being talked about. I appreciate you guys so much
Same here @ Shelby C
Same here, I learned a good amount about myself while watching this and my seizures. The keto diet worked the best out of all of the treatments, I recommend it because it literally saved my life during my coma.
My husband was blown up in Iraq and lost about a quarter of this head. He has a shunt and has been through several surgeries. This is a fascinating video packed with information. We deal with seizures constantly. Last year he had a seizure in our kitchen and hit his head on the ceramic floor and had two brain bleeds and brain swelling. He was placed on life support. I think he's has a seizure in every part of his brain after watching this video. Believe it or not it's helped me understand more why he reacted and experienced things before during and after seizures. I'm so thankful 🙏🏻 Wish I could talk to you.
Thank u (him) 4 his service n I wish u all the best! 🙏🏽🙏🏽🙏🏽
yes me to like this video has explain to me so many things that happens to me an my parents often where thinking i would be intoxicated or just not paying attention
@@bubbagary5054 I'm sorry bubba! I need a seizure friend that understands n has a sense of humour (but seriousness of the condition) as well. 🙏🏽🙏🏽🙏🏽
Thank your husband for his service and you as his wife ,I just want to hug you ,I'm extremely sorry about your husband and know your not alone ,my thoughts and prayers are with your family and forever will be ,may our heavenly father lay his hands upon your husband and our angels keep you wrapped up tightly within there wingspan bring you comfort ❤ as trying times may have there moments know your safe here and husband is not still over there ,,,God bless you both...thank you for sharing this with us all..
@@meredithaherntamilio4553 AMEN, sis! 💗💗💗
I’m so happy you brought up absent seizures being mistaken for ADHD. When I was about 7 and being tested for ADHD they had given me a sleep deprived EEG. The drs had said they thought it may be epilepsy but because my EEG was clear they just wrote it off. It wasn’t until I was 17 and had 2 tonic clonics within 3 weeks that they officially diagnosed me with epilepsy. When I got a little older I had brought it up to the Neurologist I was seeing and she had said they completely missed it, which is very frustrating.
Also for me the only aura I get is my right ear gets a really high pitched noise for about 5 seconds and that’s all the time I have before I go down.
I have Psychogenic Non-Epileptic Seizures (PNES). I almost cried when you brought it up because most people don't. I've had people tell me that I'm faking my seizures. They happen with emotional stress and can only be ended with grounding techniques. I was put on an anticonvulsant, and it actually caused me to have more seizures.
During my Aura phase I notice that I feel off and my thoughts become stuck and cyclical. My seizures have 3 stages however I can usually catch it before the 3rd stage. Whatever stage I get to I have to work backwards through.
Stage 1: I go into an absent seizure and talk in the cyclical nature of my thoughts. I might get stuck repeating something such as "I'm not okay" or "Something's wrong."
Stage 2: I develop an irregular twitch with my hands and wrists. I may also have stronger, more spaced jerks with my upper body and/or neck. If I try to talk it comes out as a harsh stutter. It may take me multiple minutes to say a complete sentence. My breathing becomes very shallow. I may also get stuck breathing out for extended periods of time then gasping sharply.
Stage 3: All of my muscles give out simultaneously and I collapse. I can no longer talk and my head is filled with a dense emptiness. I feel unable to form any thoughts. My breathing becomes very shallow and usually my heart rate increases.
I am completely conscious and have use of all of my senses while I'm seizing. This means I can usually make myself sit down or move to a position where I can't get hurt falling. Since PNES are atypical the symptoms and duration vary person to person. I have had a seizure, going between the 3 stages, that lasted 90min from start to finish. However my average seizure lasts approx. 15min.
The repercussions of the seizure have a wide range, but it comes down to how bad the seizure was and how long it lasted. Most stage 1 and some stage 2 seizures have no impact. However, at some point I feel hazy, confused, and tired afterwards. That period will range from a few minutes to 2 days. In the worst seizures I will have intense memory loss to the point where I don't know who I am, where I'm at, or what happened (even though i maintain consciousness). I really wish I could meet with scientists to share my symptoms and experiences because it is very misunderstood, and I can explain my experiences fairly well with identified triggers and everything! Honestly I also want to know more about it.
I appreciate you sharing your experience. I wonder whether your condition may fall under the umbrella of conversion disorders, in the DSM. I don't know that it may necessarily help explain it better, but I wonder whether more psychological therapies might help reduce the onset of physiological reactions that are caused by emotional distress.
thank you for sharing your story
Thank you for sharing that. My dad suffers from something very similar.
I'm in the middle of similar stuff right now. It's pretty severe. I didn't show up to work for 3 days and still am out of my mind. Lol. I have underlying bi-polar depression so that definitely doesn't help.
I have PNES too! Was also so happy it was included in this video!
my Nephew was born with Seizures. he was diagnosed at age of 2. he had a Nervevega stimulator placed at age 8. he had granmal seizures on all 4 of the lobs of the brain. he passed away from a bad car accident back in 2018... he was 19. miss him sooo much!
I’m so sorry for your loss. ❤️
@febbyy🔞 not the time
But I heard people aren't born with epilepsy, it's something they may or may not develop.
Before going on medication, my father had both atonic and tonic/clonic seizures. After some trial and error on dosage, he has been seizure-free now for several years.
I was diagnosed with epilepsy after I had a brain hemorrhage due to an arteriovenous malformation (AVM) in my left frontal lobe. I really appreciate the way you explained this! It’s super scary, but like everyone else with epilepsy I’ve learned to deal with it. My auras are always dejavu feeling and almost like I’m detached from my body then boom there comes the seizure. Sending the best wishes to anyone reading this!!💜💜
My son has AVM or cavernous hymangiomas at least 12 of them. He also has epilepsy and had a brain hemorrhage.
Thanks for this video. My brother has epilepsy, and ironically, we had a dog when I was a child who also had epilepsy. My parents kept me away from seeing my brother's fits, but I remember seeing my dog have one. It was rather scary and mysterious for me as a child.
I suffer with grand mall seasures n
When I had a dog ,he would know hours sometimes a Day before I was going to have a seasures
After 20 plus years , I know about minutes before, sometimes I know a minute before
Im embarrassed about it ,
Back in middle school one of my classmates had epilepsy, and when he first came to school the teachers went through a presentation of how to deal with seizures if he ever had one while we were around, seeing as he had such frequent seizures, sometimes multiple a day. It was honestly really scary to see at first, especially being a kid at the time, but eventually our class got better at helping and keeping our wits about us than most of our teachers. I’m glad I got a little experience with how to help someone in that situation. Because if I was freaked out at first, I knew most other people would be freaked out and would probably freeze like I did rather than helping the seizing person. Just glad that if someone ever has a seizure around me, I’ll know what to do and since watching this video, I can explain what’s going on to bystanders as well.
skill diff
omg me too
I'm a 76 year old Army veteran. I had my first seizure about 2 years ago and a few more since then -- the last one lasted 11 minutes with bowl release and bit tongue. The VA had me taking Bupropion for PTSD for over 20 years and I had slowly weaned myself off it. I believe there is a connection. Now I'm on the Keto diet and take 125 mg of Levetiracetam every 12 hours. EEGs show nothing. My VA neurologist thinks it is a sleep disorder "of some kind". Your video provided me MUCH more info than she has. THANK YOU!!
Omg, you are really lucky, please don't get me wrong, but to avoid any auras I have to take 1000 mg of levetiracetam am and 1500 mg pm. My brother in law take 500 mg am and pm
I take max dose of lev 1500 + 1500 and 100 mg Vimpat twice a day and still have seizures almost every day.
@@TheCrusher2468 I'm so sorry 😔
Just followed you on twitter. Thank you for your service
Thank you for your service! I hope everything goes well for you :)
It was hard at first, as it started when I was 10 years old surrounded by people who are clueless as I am. I was made to feel lonely and different, even today at the age of 23 my friends are my family members but I've learnt to live and with my Absence seizures. That was a wonderful video! 😔
I’m not in the medical field but have always found it interesting. Just wanted to say I did not know there were so many different types of seizures, and this is why I watch this channel to expand my knowledge. Great videos and thank you.
💜💜💜
We need more videos like this. I was diagnosed with Epilepsy not very long ago still learning to accept and manage to losing independence. But it’s such a misunderstood disease it makes it even harder to live with but today this informative video was helpful and made me feel better. Thank you!
The aura phase is so weird to experience for me personally, because my automatism is looking behind me to the left. It makes me feel like my epilepsy is stalking me, and is the only way I've been able to successfully identify an oncoming convulsive seizure.
It feels like you’re disconnected from yourself.
Just leave alone..... would that be a correct response?
I have a tumor in my right frontal lobe and looking over my left shoulder and feeling like I'm not inside my body anymore is a common seizure for me.
my body starts jerking like a day or two before when I'm about to have a seizure
I do the same Thing ! your the first person who I've heard whose done that too! I'm and Epileptic with Absence seizures and I look to the left and stare during my aura phase . I have grand mall too sometimes but rarely.
My sister has tonic-clonic seizures. They are usually accompanied by intense painful headaches. We believe she has them during her sleep because of her having those intense headaches. Great informative video!
Incredibly you covered every type of seizure except "complex partial seizures", which are the kind that my son has.
I also have partial seizures where my body shakes uncontrollably for about 20sec. Sometimes I can control a seizure as it is mild but not always as the seizures becomes intense. Doctors don't really have a clue what to call my seizures. I got them when I was 9 and now 33.
These are the kind I have.
If I may ask what is this type of seizure? I've never heard of it before.
I have complex partial seizures. The best way to explain it based on this video is a combination of an aura and absent seizure. During the absent portion of the seizure you actually lose consciousness, but no one would know. You appear awake, but you're unresponsive to everything around you. Some people might just freeze during this phase and others might move around and do random things (I've locked myself in a room once before). It usually takes me 2-4 minutes to "come back to reality." I'll have little to no memory of anything that happened and be in a state of general confusion and exhaustion for a few hours or the rest of the day.
In all honesty, they are the worst because I've done some embarrassing things during seizures and if people around me that don't know what's going on, I just look like a total nutjob. Not to mention the fear and panic I experience leading up to the seizure (typically during the aura) is awful.
I had those also.
My daughter has had epilepsy for years and just got cleared to go off meds. Thank you for pointing out the myoclonic seizures that I didn't know existed, as well as the stress-induced ones. I learned a lot from this today.
Hi there Paula. I also have epilepsy. I hope to one day get cleared to get off of my meds. I’m so glad for your daughter!
How long did she take medicine for? Was she able to drive while taking the medicine? Was she experiencing seizure while taking medication? What kind of medicine she used to take? Sorry for so many questions my daughter started having seizure in Jun 2020 she was 16 and 6 months later we finally go to see the neurologist and the medicine made everything worse she took it for 2 months then stop because it was really bad she has have 2 more seizures after stopping the medication
My 33 year old daughter had a "Grand Mal" in her bed just 3 days ago. No history of it. Very healthy. She would have probably choked to death if we had not been there. She had another 6 hours later in the hospital. I am terrified. She has anti seizure meds every 12 hours now. Everything seems back to normal. Thank you for this video with all of my heart.
Having epilepsy my whole life is a struggle, learned how to live with it. I was always curious on how seizures work, knowledge is power.
I watched this with tears in my eyes. My mom went through a very traumatic event 13 years ago and suffers from seizures till this day. I know what to do when it comes to my mom. But this definitely opened my eyes to the many types of seizures and ways to treat them. Subscribed!
Blessings to you and your mom queen 🤞🏾🙏🏾
watch ( dr )ninja nerd for more details
What did she go through?
That’s how mine started learning new information myself it’s terrifying. Much love to you and your family. Good vibes. ❤️
I had a stroke 9 months ago and still suffering with hemiparesis. Thank you for your video, it has helped me come to terms with what happened.
I’ve learned more in this video than by having “phone consultations” with my neurologist. Thank you guys!
Omg seriously. My husband has epilepsy and has literally been doing tests for a year just to get a meeting with his neurologist and this was after a 6 mo th waitlist.
I had many neurologists in the last 24 years and they don't know which type of partial seizures that I have. Hopefully science can catch up to me
It’s important to know that all neurologist aren’t epilepsy specialist. Please make sure your doctor is an epileptologist because they have more formal training on epilepsy.
I've had grand mal seizures in the past where I've blacked out and my family called an ambulance just to have the doctors tell me they were "pseudo seizures". As in fake. It stopped me from getting the help I needed for about 10 years.
I have lived with epilepsy for about 14 years and have experienced nearly every type of seizure mentioned in your video. At one time, I was experiencing an aura that would cause me to hear the theme song to Laverne and Shirley in my head! My doctor and his whole staff thought that was a hoot! Now, my aura is hearing sounds and conversations in a very garbled manner-almost as if they are in a tunnel. This video helped me understand a lot, especially my aura having to do with hearing, as I have a right temporal lobe epilepsy diagnosis. Thanks
I've lived with Epilepsy my whole life. I really appreciate you making this video. This medical condition is misunderstood and a few years ago there was even a TikTok challenge that was mocking people living with Epilepsy. Educational videos like this are so important. In my case I would often get really dizzy and/or weird headaches before having a seizure, other times it was completely random.
Thank you so so much for using your reach to educate others about epilepsy and seizures💜 My dad suffered with epilepsy since he was a young boy, it affected both sides of his brain. It was heartbreaking to see him go through that, especially because how extreme his seizures were, constantly hurting himself. So many doctor visits, including getting the Vagus nerve stimulation, tons of medications, but never any luck. Always praying for a cure. May he rest in peace, and never feel any pain again. 07/02/2021 (age 49)
My honest condolences to you and the family 🙏
I have an AVM that started my seizures. I do take meds but doing the modified keto diet has been the best treatment for my seizures!! Loved this video ❤
Try the carnivore diet.
My daughter got her first seizure at 6yrs old. It was the scariest experience I've ever been through with her. Her whole body got stiff, with arms and legs extended, and shaking violently. She's 18 now, and has had about 8 seizures in total, Doctors can't figure out why. She knows when she's about to have one when she starts to get a bad pain in her stomach, and starts to sweat. She's not on any medication, so I worry a lot about her. Every time she has one, I hope that it'll be her last. Thanks for the informative video!
I wish her the very best, and hopefully there will something to diagnose and remedy it soon. ♥️
You should try the carnivore diet. Stop all carbs and sugar. Just eat meat.
@@nerychristian What kind of medical advice is this??
I got this kind of seizure too. Several doctors can't diagnose what it is. I'm 29 now. I got my first one at 18. In total i've got 8 times.
And it's a really bad pain all over my body. Stiff muscle from head to toe. Hard to breath. Cramp stomach. The pain is worse than labor pain. And it could last for 2 hours.
I hope your daughter never get this seizure anymore. You can try to put something warm on her stomach,or her palm and feet. It helps reduce the pain.
@@devi.village Oh my gosh, I am sorry for you, and others who are suffering with no answers. I hope your doctors can get to the bottom of it soon. Sending you best wishes for restored health.
A cousin of mine had a seizure tonight at a family gathering. Her father acted calm and perfectly, but I realisez I know nothing about epilepsy, so I came here looking for a video that could help and teach me something. Thanks a lot for your work
What kind of person is the father is the question.......
@@peacenholiness6855 a great person that knows exactly how to act and what to do when his daughter needs him. He taught us all what to do and what not
Thank you so much for explaining autonomic seizures. I have epilepsy but the doctors cannot "make me have one" during an eeg so they have me under the category idiopathic. But once you started explaining autonomic, which was never bought up to me before, fits my aura symptoms perfectly. Now I'm going to have to look more into it.
Thank you for acknowledging psychogenic non epileptic seizures! Used to have multiple a day and they’re dismissed so much in medicine.
what exactly are those?
when it comes to the brain, so much is literally dismissed simply because medicine really has no clue about how the brain works. it has a very general idea but that's it. The brain is the only organ in the body that affects who you are because it is, in fact, you. I have multiple personalities and it's one of those things that is dismissed too but it is gaining more traction. The brain is one of the many proofs that there is a God that meticulously designed us. It will never give up its mysteries. I don't think we were really ever meant to understand how the brain works.
@@scottcupp8129 They’re seizures without the typical electrical activity associated with epileptic seizures, as the video said. For myself the cause was psychological - untreated depression lead to stress manifesting itself as seizures.
@@scottcupp8129
Most people who study medicine end up becoming religious. The human body is so advanced and incredibly complicated, it’s literally impossible for it to have evolved. Im talking of course about macro evolution, which is going from a simple organism to a completely new species or advanced animal.
I have been diagnosed with both Epilepsy and PNES. Is this common? I had surgery on my right frontal lobe and still take a lot of medication and starting therapy for the PNES soon. Really appreciate your video!!
My mom is diagnosed with Epilepsy and the first time she had a seizure it scared me so much. But as the months went by I kept date when he had one, it was every two months. And just recently we found out her Epilepsy was caused from Lupus. Ever since we figured that out. We've had alot of hospital visits, clinic visits....and I'm just being here for my mom. She needs it the most. Every day I learn more. To know more. Thank you for this video
Not much time longer, please help my son when gone, I know not my aunt & uncles but my real family that has heart & God in ❤
I was literally diagnosed 4 hours ago. (47 years old)
I am so grateful because I know now why I am constantly tired, headaches, dropping things ect
And the timing of this video is perfect.
You confirmed everything my Psychiatrist said.
🌸
I’m sorry you had to join the epilepsy club
This is super helpful and valuable information. Thank you.
My mother has epilepsy, she's not been aware or at least not able to tell me of any prodromal symptoms. She often starts saying things out of context and I know to get her sat down and somewhere safe. Not always though. I worry when she's alone, she doesn't know it's going to happen and can't get her self somewhere safe. It breaks my heart and I worry so much. My strength and thoughts to anyone it affects, the individual or those who love you. I hope you can get to a place where you are seizure free, meds are super important and I hope you can stay safe and well 😊
My mom gets non-epileptic absentee and sometimes myoclonic seizures, growing up it was really scary watching it happen and not being able to do anything to make it stop, just waiting it out and making sure she doesnt fall or get hurt etc. 😢 thank you so much for talking about them, it made us feel seen ❤
Very good explanation, I'm 61 had them since I was 12. I'm on dialantin and tegretal. Great advice to bystanders. I have broke ankles, broke feet, and scared the hell out of people. My seizures changed through the years more violent when I was younger, now very seldom. I am an epileptic.
I feel for you , Im the same had my first seizure when I was 13 , Im 54 now for the past 20 years Ive been seizure free stopped all meds and feel great .
Im proud to say IM AN EPILEPTIC
@@cottagegrove5611 you stopped your medicines? Have you had any seizures? I take mine every morning and night, and still have hyperclonic jerks sometimes. I drive, had 3 kids, none are epileptic. 2 girls 37,40 and a son 24. Good for you. I'm happy for you.
@@jsdad48 Drs cant explain it at all , but yes I have stopped all meds .
I was diagnosed with epilepsy at the age of 8. Shortly after I turned 20, I was very fortunate to be one of the first patients to undergo a procedure using new laser technology. Since that surgery, I have been completely seizure-free. Unfortunately, those 12 years held me back a lot and I didn't really think about what I wanted to do with my life for a long time, as I was just happy to be living without epilepsy again. It also took a LONG time for the side effects of all my failed medications to wear off. But now I'm finally doing something that I actually enjoy, and I wouldn't be able to do it if I still had seizures!
I am in this exact situation right now, and I'm also going to be having a surgery using laser technology in about 4 days. Could you possibly explain to me about how it felt after the surgery itself? As in, the auras/seizures themselves, do they just completely go away? Or do they somehow stay there as something psychological but it doesn't have the side-effects of actually experiencing them? And how exactly did you truly find what you wanted to do with your life after being so uncertain for such a long time?
I had one seizure when I had a ruptured brain aneurysm. Then for about a year after I had the arm seizure thing. Which only happened when I was very tired or stressed. Best medical channel on UA-cam!
Being a epilepsy patient for a good 30 years, I do have a Vega nerve stimulator and it is terrible it feels like a stabbing pain in your throat where I am gagging and gasping for air to breathe, I had that device turned down to the lowest level so it is not basically working. When my doctor told me it would feel like a small scratch effect that was extremely wrong for me. He found out that checking it every visit I would have these effects every time where they would last for almost 18 minutes it would bring on my asthma symptoms where I could not breathe and was choking all the time, do your self a favor and don’t ever get this implanted.
Anything that affects the brain scares me so much and makes me teary, my mom had a stroke 2 years ago and till now I've not yet healed from that experience
Thank you for all this information keep up the great work guys.
This was so informative, I am epileptic and I have such a hard time helping others understand exactly what happens especially because I have many different types of seizures. I am so grateful for your spreading awareness thank you so much for making this video 😍
I was diagnosed with epilepsy seizures when I was four, It was really really hard for my parents. I just wanted to say thank you for explaining this topic because some people don’t understand how this works and the people having The seizures Can’t help This. Thank you so much.
I really love you guys. My sister has seizures and we just discovered my moms bf too. This explains a lot being that we live in BR, LA. High stress environments are not healthy at all and will catch up with you if continually submerged in violence, abuses, and discomfort. This was great information. You guys are awesome.. 🙏🏾🙏🏾🙏🏾
I live in LA and had partial seizures since 9 and now 33. I remember another kid swung a swing onto my temporal part of the head and maybe that's what caused it.
I've had a seizure before+have anxiety that's the reason I have had it. All my seizures, anxiety,dayzhavue,+ mood -swings l've told is another problem l've had all from my car accident l had when I was 8 yrs old when out on a walk....
This made me cry but also gave me an understanding of my late 15 year old son that died from epilepsy seizures. It took him five years suffering from seizures every day. Why do we exist in the first place if all is going to end into frustrations one day no matter what. My family has never had a history of epilepsy.
I am so sorry for what you were going through with your son. I know how you truly feel. My son is 10 years old and he just got diagnosed with epilepsy, he had many tonic clonic seizures in the past month. I'm literally crying reading your comment. I pray that your faith will bring you strength and courage. That's all that keeps me going now. My faith is my strength. I hope you find yours my friend.
I am so sorry for your loss.
My elder daughter had febrile seizures. After the first one we were in the ER and the doctor asked how long it lasted. We didn’t know. The doctor then told us to look at the clock and tell us how long it lasted. I told him we could look at the clock forever because it felt like it lasted an eternity. (Yes, he was a jerk.) That’s why wonderful education (like you provide) is invaluable. Had we’d known it was a key piece of info, one of us would have checked the clock! Thank you!
I had febrile seizures as a baby too. Apparently, I was so sick that our neighbours refused to let us wait for the ambulance and drove my mum and me to the hospital because he was so worried about me. I was in for a couple of days while they treated me and did tests, but I didn't realise that our neighbour actually was the local coroner, so he's the person who would have been doing my autopsy had I not made it, and he had nightmares for weeks about me turning up on his autopsy table. I suppose I always underestimated how big of a deal that was, because I know febrile seizures are so common, but I guess I was sicker than I realised. And that was before I caught measles and ended up hospitalised again (I was vaxxed, and the medical staff said that was probably the only reason I didn't end up blind, deaf, brain-damaged or dead).
This is so incredibly helpful! I am a MA-C in Neurology, this is actually the best video I've ever seen to actually understand it. I have never seen a seizure, and I won't pretend to know everything. I really feel like I understand a little better and I absolutely will check the other videos out! Thank you!
Thank you so much for sharing this info! ❤️ I'm 38 & was diagnosed with first episode of seizure in 2020. My mother told me the last thing she saw was that I was staring at the food on the dinner table before dropping to the floor. I woke up confused, nauseous & puked. CT scan, EEG and ECG showed no abnormalities, but I was left with a big bruise on my right arm & a bitten tongue. I am not allowed to go swimming alone still, even though I had not had a recurring episode so far, hope it stays that way! - Love from Singapore ☺️
I’m epileptic and while I haven’t had an epileptic seizure in years, I do have focal seizures daily, not sure what type of focal seizure tho cuz to my knowledge I don’t experience an aura phase and don’t realize it happened until I “come to” to find myself holding my breath! I can still hear and comprehend everything around me, I just don’t respond until I come out of it!
@@opalescentmica I don’t think I have a specific trigger! I can just be having a conversation one minute and then the next I find myself holding my breath and I have my shoulders tensed up too so once I’m out I drop my shoulder and get my breathing back right then keep on with the conversation since I can still hear and comprehend while in an episode!
I hate this disease I’m sick of the seizures I’m on the edge, if it wasn’t for my fiancé I wouldn’t even bother anymore every single day is a struggle. I feel for every epileptic out there god bless you (if there is one)
Burn frankincense daily with the window cracked ☯️ 🧘♂️🙏
I have absent seizures so this really makes me happy that you guys discussed this topic.
I have absence seizure too..can you tell me what medication you are having @Abria Hazard
Me too and my twin has chronic tonic
@@bookaniabookskiduniya7274 I have to take lamictal for the day and depicote for the night
How are you going about it?
@cedricwasike5309 what do you mean?
Thank you for explaining many type of seizures. I’ve had two very intense seizures that happen during sleep, but not due to Epilepsy. I did suffer hard hits to my head as a kid though.
As someone who suffers from Grand Mal (Clonic-Tonic) seizures, this was extremely helpful, informative and interesting. When I was in my junior year of high school I contracted E-Coli, had a brain abscess draining and now have a mesh plate on the right side. This infection brought out the seizures.
Oh no, I'm so sorry you have to go through that, and it was bought on by a mesh of all things! Geeze.......I feel you very much, my mother's grand mal too :( .
One of my friends in middle school had a Grand Mal seizure in algebra and we were all rushed out into another classroom and she was taken away on a stretcher and i developed this irrational fear of seizures, but knowing how to help people makes me feel better now and knowing warning signs for myself or others makes me feel better too.
I was just recently diagnosed with epilepsy after having a a few different episodes with varying symptoms. For a while I thought I my life would never be the same... Thank you for making me feel that I'm not abnormal.
I’ve worked with people who have Epilepsy for 20 years and this was a great video. The worst type of epilepsy is the medication resistant types such as Lennox-Gastaut syndrome, it causes brain damage with every seizure, sometimes multiple times a day (which happen more frequently as the person ages) and is devastating. Hopefully one day there will be a gene therapy cure. I hope it doesn’t come too late for a wonderful woman I know who is now not able to walk and most days can’t indicate her choices anymore.
I’m epileptic and I’m proud that you guys made this video. Taught me something new and I will share this with my family and friends to educate them
Fell and hit the back of my head as a child, suffered from seizures ever since. I've experienced all of these types, except for febrile, with no known aura. Despite all the tests and treatments, my brain still seizes when it pleases.
damn, i’m sorry bro. I hit my head quiet hard a few times when i was growing up cuz of others and i’m lucky to not have seizures from it.
Some kid swung his swing into my head and I guess that caused my partial seizures.
yes mine does to but im just realizing what is happening to me in this video so i will be seeing my doctor as soon as tomorrow
As an epileptic myself,I have learned a lot from this compared to what I was told by my doctors since I was diagnosed at 7
My dog is epileptic. I can tell when his eye expression changes he's getting close. His eyes get very wide and he begins looking around as if there is something he's earing or smelling. He will begin panting very heavily, too. He has had major seizures when he's been very fearful and stressed too. Fortunately he's pretty well controlled with a stiff dose of phenobarpitol twice a day. This video has given me more insight into my dog's disease.
Very helpful, I witnessed a seizure once when I was driving and stopped to do what I could to help but thankfully someone familiar with seizures was there and able to give instruction and look after the person
My dad has had epilepsy since he was about 23. He was on a ladder and felt weird, he then woke up in hospital. I've witnessed many seizures and have helped my dad numerous times when my mum can't help. It was a stressful time, I was constantly on edge waiting for the next one. In one severe seizure, he stood up, collapsed and smashed his head on the door frame. Blood everywhere but fortunately no damage.
You see? This is why I'm afraid of heights.
Love this video! It really helped me get a better understanding of what being a epileptic is. I started having seizures randomly around the age of 19 and no one could ever give me a explanation. Especially because they only ever happen in my sleep. Strangest thing of it all is that probably around 2 weeks prior I had this obsession with learning on to help in a situation when someone is having a seizure. Little did I know it would be me 🤷🏻♀️
I think sometimes we get this kind of "aura" (pun intended) when something isn't quite right with our bodies. I feel like I jinxed myself by saying to my (at the time) partner that I felt so lucky that I'd never had cystitis - I woke up the next morning at 5am with the worst symptoms from what turned out to be my first attack of interstitial cystitis (which is kind of like having the worst UTI but constantly, and it's not caused by an infection so you can't fix it with antibiotics). 🤦♀
I had auras from age 16 to the age 22 when I had a grand mail seizure in my sleep also. I’m now 62 and have been on a low dose of carbamazepine since that one and only seizure. I tried weaning off of it for 6 months about 10 years ago but my auras returned one day so I went back on the medicine. Still seizure free since the first one. Good informed video
I'm an epilepsy patient and this is one of the best videos I've ever seen. It explains so many different things that I also personally experience. I get aura's first then go into really bad seizures get a really strong smell of copper gets really overwhelming and I get dizzy and either I'll slowly get better or I'll fall out and have a total grand mal seizure.
Wish I had found this video sooner! My mum had 3 seizures in the same place a month ago and is half paralysed. Amazing to FINALLY get an explanation as to what happened.
My nephew has epilepsy (since he was 11 and he's 33 now). His body is so messed up from having convulsions that he's in severe pain all the time. I wish everyone could see your video. Then they may understand why he looks tired all the time and speaks slowly (medicine). He does have a vagus nerve implant, and it does help, but not like we all thought it would. He has a lesion in his motor skills area, but the doctors are afraid to do surgery, which we understand.
Lions Mane supplements help to heal the brain and nerve injuries.
I had partial seizures since I was 9 and now I'm 33. I feel his pain. Doctors still can't understand what type of seizures I have. During an episode my body shakes uncontrollable for about 20sec. Sometimes I can control a seizure when it is mild but not always as the seizure becomes intense and not controllable. Different things can trigger my seizures. I stopped taking Rx as it gave me dizziness and now just take CBD/THC drops.
Eat ketogenic diet, it will heal you
I don't know why but I got hungry...otherwise, I love everything related to the brain and it all started back when I was 15. I received a very hard hit on the back of the head, I lost a big chunk of my long hair and had a very big bruise on the back of my head BUT after that, months later I was able to learn languages. I currently speak four languages fluently and understand other four languages that I am still studying. So my brain injury came to be a blessing in a way.
Are you a zombie polyglot?
Sounds like the makings of a superhero movie. Have Netflix reached out to you by any chance?
@@Rizwaan122 makings of what? The fuck?
@@QBlackDeathQ polyglot, yes. Zombie no.
If cartoons has taught me anything, Do not hit back at that spot ever again or you might loose your omnilingualism..
Enjoyed the content. One point I might add is that epilepsy is not commonly referred to as a disease, but rather a condition, or, disorder.
Thanks for the informative video.
That surprised me too when he said disease
I have been diagnosed with PNES. Most of the time I know when one is coming. Smells cause most of my seizures. There are time's they just happen. When are the signs it is starting:
1.
My eyes will fixat on an object. My head will move, but my eyes will stay fixate on that object.
2.
My left hand will clinch into a hard ball and be pulled to my chest.
3.
My right hand will reach out to pick something up, will draw back to my body. No matter how many times I try I can't pick up that object, not till after the seizures ends.
These are just a few of the signs.
My recovery period takes about 7 -10 days. During that time I go through many different phases.
When I am going through these phases my family will leave me alone. I go through the same phase after each seizure.
1.
I get mean and nasty. I am not abusive.
2.
I don't care about anything. Nothing matters.
3.
I want to pack up my bags and leave, never to be seen again.
4.
Sleep a good part of the time.
There are others.
Depending on the severity of the seizure will determine how many days it takes for me to recover.
I hope this isn't to long, maybe it will help others.
Michael
Very good notes. Solutions can be helpful: frankincense, prayer, meditation ☯️ seek a mentor for further instruction
my dad is an alcoholic had a had a seizure as a withdrawal symptom, it’s honestly interesting how that can happen and how the brain will just shut down like that
It happened to me via benzo withdrawal. I hit my head on the corner of a coffee table & it spit my left eyebrow right into. I had to have 7 stitches. Lucky I didn't damage my eyeball itself. I don't remember anything right before or during. I just remember coming to with a crowd of ppl standing over me & I was in the floor. An ambulance was already on it's way. I don't take benzos anymore. Took a long time & a lot of suffering to get completely off of them.
My mom had the same thing and the ema was saying she wasn't having a seizure when she CLEARLY was 🙄
I have epilepsy. For me the aura phase involves anxiety, occasionally panic attacks, deja vu, light headedness, and eye twitching. At least those are the ones I can remember. I’ve been on medication since I got diagnosed so fortunately I’ve only had two major seizures, lost consciousness both times. This video helped me realize that I may have been suffering absent seizures without realizing
Please do you hear strange noises during aura stage
@@gideononwe8089 I don’t but some people do
@@etzweilerl thanks for clarifying 🙏 I just start having seizures this month and am scared
@@gideononwe8089 honestly don’t be, I don’t know how severe yours are but I’m on medication and haven’t had a seizure since 2014. Just make sure you have a good neurologist 😊
@@gideononwe8089I’ve had epilepsy for 33 years. I have grand mal seizures, which means I am unconscious and my body jerks, I bite my mouth, etc. epilepsy is scary, but you can live with it. Be careful, let people know you’re epileptic, and try not to stress, or get overtired. I know you’re afraid, but you will start to understand what triggers them, and hopefully you’ll get some control. I take Tegretol CR. It works well for me, and I’m an OG of epilepsy lol.
Thank you Justin! It's crazy to think of how bad my epilepsy was when I was your student.. 😅 so thankful for cannabis as that's been my most successful medicine. This was a great lesson on seizures. Thank you!
Yessss! Cannabis helps so much!
Once again THANK YOU for explaining in lay-terms what we mere mortals hear and yet are unfamiliar with. Thank you also for explaining to just allow nature to take her time and allow these seizures, for want of a more accurate description, to fulfil their duration and then how to help those afflicted. Such a lot to digest and hopefully a lot of us will never have to implement what you have shown us but it is worth while to know how to help if called upon!
Incredibly informative! I always though of seizures as the stereotypical tonic-clonic and I did not know other types existed. This explains events that would randomly happen to me and now I am looking more into seizures
I am from Europe and love your content! Thank you for making this video about seizures!
I've had a right temporal lobe tumor, and had 4 seizures before I could finally take medication after diagnosis - I experienced 3 seizures completely alone not having a clue what the hell just happened to me. So this was close to my left side motor functions, and I would feel like I cannot swallow and kind of just weird, then my left arm and hand would tingle, then my face would start twitching on the left side, and then my arm and hand would start moving violently - meanwhile I am all awake, this phase probably lasted about a minute I am assuming, and then I would pass out for 20 minutes. A lot of people think having a brain surgery must be scary, but I assure you that experiencing a seizure alone inside your home during the pandemic, living in a different country than your family and people who know you is the scariest thing I have ever experienced in my life. I had to wait for a head MRI to finally have medication which completely controlled the seizures. I am still taking the medication for 2 years as a preventative measure after having a brain surgery.
This was very hard for me to watch. I have epilepsy with tonic-clonic seizures. Any time I see anything to do with seizures I get very stressed and scared, like it's going to happen. I'm glad I watched it though, I learned a lot that I didnt know. You did a great job breaking down each type, thank you.
I have a history of Epilepsy. When I was really young I would only have seizures in my sleep. Weird I know. Made a diagnosis difficult. These seemed to stop. At the age of twelve I had my first seizure during the day and it was the only time I had a warning that something was going to happen. I got very dizzy, called to my friend to wait for me, put down the box I was carrying, dropped to my hands and knees and nothing else. I became aware of my surroundings when we arrived at my home and then promptly went to bed and fell asleep. Since then no aura to speak of just waking up in my clothes and really cold hands when I wash them. I had my last tonic-clonic seizure at the age of sixteen in 1988 which I am very grateful for. I guess this illustrates how unique everyone's experiences of Epilepsy and seizures can really be. Still need a medical every year to be deemed fit to drive though. 30+ years since my last seizure... pain in the neck.
For those still experiencing seizures regularly, I do realise how lucky I am and I hope that your situation improves.
I am still suffering with it @Sue Fraser
@@bookaniabookskiduniya7274 I hope things improve for you. I still live with the fears though, strobing lights and other triggers etc, so I haven't completely let go of it. Blessings to you.
Thank God they stopped! Having seizures in your sleep can be really bad. Like it could either possibly put you in a coma or you'll go to sleep and never wake up (i.e., die).
Hard to watch, but thankful for the lesson. My mom was epileptic so I've seen my fair share. We never knew about the ketogenic diet option, or CBD. I'm happy to see this medical progression.
I had surgery to help stop my seizures November 1st 2022 and can't even fathom my luck. This video honestly helped my understand my condition. The cause of my seizure was on the right side of my brain. Thank you!
I have absence epilepsy. Stress is a huge factor. Not just physical stress but emotional stress. I do notice strange smells sometimes but never noticed automatic behaviours. I lose consciousness but maintain motor function and then be confused when I come back. I'm still experiencing the occasional seizure as an adult but they are so few in comparison to my childhood. The missing information idea is so accurate. I tell people it's like a cd skipping . I miss bits and pieces of reality and I can get a bit annoyed if people don't fill me in 😂 what are we talking about? So many times people can't be bothered to repeat themselves
Thank you for this video. I've been suffering from headaches since childhood and have had at least 2 seizures. I met with an accident when I was little where a solid log fell on my head. Having headaches really affected me, especially when I was in a lot of stress and strain. I later came to know that it was migraine because of experiences like aura especially visual- zig zag lines, nausea, throbbing headache, dizziness, sensitivity to light, sometimes black out eventually I suffered from anxiety. 3 years back towards the end of my post graduate nursing, it got worst, I felt very sick, my glucose levels tends to be lower even after eating. Fast forward, just after graduation, I had a seizure,even lost a tooth to that. I was later diagnosed with granuloma (calcified). Now I'm cured after treatment.Thank God. So yeah, I think knowing the triggers, signs and symptoms etc is vital and headaches should not be taken lightly I am sure. Consulting a physician is very important. The early the better. (This is long but I hope it helps someone)
I suffered from seizures until my early 30's. I experienced 80% of the symptoms you spoke of. I never knew what was happening. Most of the time they happened when I was alone and I just learned how I personally dealt with them, but trying to get someone else to understand what I was going thru was impossible. As I got into my teens and I would have one in school around other people It was assumed I was just on drugs or something, I even had a paramedic say "Just tell me what drugs you took so we can help you." On the few occasions I ended up in the hospital, I was not treated for anything, just left in a room alone for a few hours and let go. Once in my early 20's I had a seizure while in a medical setting and a doctor recognized it and I was sent for testing and was told I was "border line epileptic" what ever that means, was not put on any meds because "the side effects out weighed the benefits." I am now in my late 40's and haven't had a seizure in almost 20 years. I think about it all the time and am terrified of having another one again because I expect what others might ASSUME.
If I could go back in time, I would have wished for an *unmedicated* childhood. I got all the side-effects, yet still had breakthrough seizures. When I was 18 and on my own, I stopped the meds (not safe to do cold turkey, yes I was an idiot). And had even fewer seizures, though correlation/causation… childhood epilepsy often declines after childhood anyway.
But yeah, I wish my doctors and parents had been more concerned about the meds. This was an earlier time though, and the main drugs were phenobarbital and Dilantin from age 4-18 and I won’t get those years back 😒.
But it’s always about risks and I know imagine for many people the risk of high seizure rates makes meds the safer option / worth it.
I still have seizures but rare and with a lot of warning.
@@KathySierraVideo i'm 30 and had what i assume is my first seizure. (because i've never had this type of thing happen before) I went to sleep and had a Tonic Clonic one that caused me to go to the hospital (because i had never had one before, and my husband didn't know if i had taken some kind of drug before i fell asleep and seized).
while i was in the hospital i had a second seizure, and in under a day i went from non-medicated, to being prescribed levetiracetam sandoz. which i would be ok with if it didn't come across as a "well just in case" measure. i live in canada and our healthcare is in shambles. several month waiting periods for xrays or tests is common. and finding a family doctor is now becoming a rare commodity. i was incredibly lucky that i was able to be scheduled for a CT scan, MRI and EEG within a week of the incident. so when i tell you that i don't know what my doctor even looks like or sounds like (i was sedated when he was there) i want you to understand how unsettling it was being prescribed something strange from a mysterious name on a paper. but he not only was able to prescribe me very strong medication, he also automatically sign me up for auto refills for when i run out. which sounds great, except the results for my CT scan haven't even come in yet, and they already have me planned out for months worth of medication... on a maybe i have epilepsy? but you want to know what i do have now, regardless of what the original cause was? several months of slowly and carefully weaning myself off of the meds because if i do it too fast that could cause a seizure! thanks doc, i didn't need to be basically guaranteed to have seizure because you don't have the time to do your proper job.
this effects my ability to drive, to own firearms, to operate heavy machinery.
and to have seizures be potentially caused by anything from a tumor down to stress, or being too warm..... i feel screwed over by the Canadian medical system. thanks for the meds a** h***s i would have preferred actual tests first. but its not your life, so who cares i guess.
I've been a developmental service worker for the last 7 years. I've seen hundreds of seizures. The most amazing thing was using a VNS stimulator magnet on a 11 year old girl who's tonic-clonic was reaching the 4 minute mark. Just one swipe over her collar bone implant and she stopped and entered recovery phase. Truely amazing. With just a magnet!!
I’m getting a VNS implant soon! I’m super excited
I was diagnosed with epilepsy, more specifically Juvenile Myoclonic Epilepsy at the age of 13. I’m now 32, have had a VNS implanted and have tried many different meds. Thank you so much for this; through telling my story throughout the years I’ve realized that many people are not aware of what to do for seizures prevention or how to support someone who has epilepsy.
I have epilepsy and my auras look like 100 little fireflies but each with a different colored light flying around me for 30 seconds to a minute I learned to appreciate them instead of be scared of them because the colors look so vivid and beautiful.
I've had epilepsy since around 12 when I started puberty. Mine always start with focal aware seizures. Sometimes that's it, sometimes it continues on with a focal impaired awareness or generalised tonic clonic seizure. My aura or focal seizures usually start with deja vu, then intense fear. I feel like I can feel a zap in my head when it starts, and then a tingling radiates outwards. The aura though is good as it gives me time to lay down or tell other people what's happening. But I have to do that quickly as communication becomes difficult quickly. I know what I want to say, but I can't say it. Or sometimes I think I'm saying something, but I'm just talking about random things or gibberish. If it turns into an impaired awareness, I will start lip smacking and may have tense muscles. I can definitely tell afterwards which kind of seizure I've had. Depending on how exhausted and confused I am, or if I've lost bladder control. It's been about 7 months now since my last tonic clonic. So I'm feeling pretty good at the moment.
That's the same way I feel when I have a aura like I been here before and to get somewhere safe.
I only had a strange feeling before the first one at age 14, and again at 24 when I was driving, but I dismissed it because I took my meds. Didn't realize the pharmacy had put two kinds of pills in the bottle. Always check your meds. Ended up totalling my brand new car, flipping upside down, and causing minor damage to 4-5 other cars, mostly parked. They even blamed me for damage to a car that hit me while I was upside down. I sleep for hours after because exhaustion but woke in hospital with some scratches on my knuckles. Worst part for me is fear of hurting someone else.
Now I'm much older and beginning to think I may have autism, and learning there is a link with Epilepsy that starts in puberty might be related to being autistic. Wish I'd been diagnosed then.
My seizures almost always start with that "de javu" feeling ... then if I'm holding something, like the a can, either the can feels HUGE and my hands feel tiny or my hands feel huge and the can tiny 🤔 I talked to my Dr., he had no idea. I found it online and it's actually called "Alice in Wonderland" syndrome.
@@recoveringsoul755 - I'm seriously surprised they blamed you for another car hitting you. 😳 That's crazy. About 5 years ago I had a seizure while driving on the freeway with my daughter and drove off a overpass ... What a mess that was.
@@sarahdixon1943 omg that sounds terrifying! I hope you and your daughter weren't hurt bad. I carry maximum insurance now because of it. Luckily never had an accident with anyone else in the car with me. I guess the insurance companies just go after who caused the accident, even if I got bad meds from the pharmacy, even if someone else was tailgating me and pushed me into oncoming traffic, they are lazy and won't look into it
Hi guys. Thank you for doing more brain related talks. The brain is so vastly complex and it boggles my way of thinking to try and figure out the way it even begins to work. Thank you for shedding some light on it. I don't suffer from any seizure disorders nor have I ever. I have major depressive disorder with psychotic features (hallucinations) and I often wonder what my brain is doing as it hallucinates and what causes it. 1000 trillion connections and just one connection needs to be wrong in order for something to go wrong.
Stress can cause a seizure in someone with dysautonomia too... I've only ever had one but it was unforgettable.
I was just dx’ed that. Great.
I’m watching this in attempt to learn more about my friend’s epilepsy. She happened to be conscious when it started, and was somehow able to dial 911. Eventually she coded and they had to use an AED to bring her back. Scared me nearly to death myself. Just watching this video is making me feel so scared, but it’s important to be informed of what seizures are, and when to be afraid and when not to.
I have a friend that has Epilepsy but also ADHD and I've noticed that everytime when her ADHD levels are very high that she falls asleep and after like a minute she starts to have jerks. So I'm glad to watch this so I know of what to ask her when she thinks she will have a seizure, to be able to help her through it.
As someone who has epilepsy having an aura is hands down one of the most scary things ever, just getting the deja vu feeling and knowing what is about to coming is just terrifying. Anyone with epilepsy know what I’m talking about
It's an experience right out of the Twilight Zone. Thankfully, it hardly ever happens to me any more. It isn't normal deja vu, either; it's distorted.
I know what you mean. I get migraines and seizures. When I get the aura in my eyes I know I've going to have a migraine and it scares me. There's nothing you can do. A blinding headache. Light hurts my eyes. Sound is excruciating (telephone ringing is the worst). Nauseous. But then what it's over, I feel like a new man. Seizures are a different story. It is external sights that provoke my seizures. Disco balls, houndstooth patterns, moire, watered silk and most especially, Sam's Club tissue boxes. After I've had a seizure I am exhausted.
Well, really I've had my seizures over 20 years and they're starting to calm down and easier to control, so it's easier to stop them whenever I feel the aura than it was before. It used to be scary though.
Thank you for talking about how hard getting a diagnosis for any kind of seizure disorder can be! I've had problematic seizures for years, but people don't take them as seriously because I don't have the dang diagnosis and it's extremely frustrating!
Wear selenite jewelry plus daily meditation and prayer
I was recently diagnosed with temporal lobe epilepsy and seizures caused by a TBI. My aura always occurs up to 3 days to right before a seizure. I see bursts of light that fade quickly almost like a camera flashing and experience extreme fear minutes to seconds before each seizure. My service dog knows when I’m about to seize and gives me time to get closer to the ground and tell whoever is with me what’s about to occur.
I haven’t heard an explanation so concise and useful as this. Thank you for helping us (those with and without seizures) understand the physiology of seizures.
My cousin got epilepsy after a fall from her high chair. After years of not being able to control the seizures she had brain surgery in her 20’s. They cut that piece that connects the two sides of the brain. It totally changed her life for the better and stopped her seizures. She also matured to match her age. Before she was more like a 14 yr old. Fascinating stuff!