What's Actually Happening During a Seizure
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- Опубліковано 29 тра 2024
- Go to thld.co/selfdecode_human_0122 and use code HUMAN to get 25% off your SelfDecode DNA test kit! Thanks to SelfDecode for sponsoring today’s video!
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What's Actually Happening During a Seizure
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In this video, Justin from the Institute of Human Anatomy discusses seizures, epilepsy, and their relevant anatomy.
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References
Thanks to Epilepsy Action for letting us use their seizure footage! Be sure to check them out here:
www.epilepsy.org.uk/
Here are the seizure management videos from Epilepsy Action
• How to help if someone...
• How To help if someone...
• How to help if someone...
• How to help if someone...
• How to help if someone...
• How to Help if Someone...
Here are published research articles regarding seizures:
www.epilepsy.com/article/2014...
www.ncbi.nlm.nih.gov/books/NB...
pubmed.ncbi.nlm.nih.gov/29650...
www.sciencedirect.com/science...
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Video Timeline
00:00 - 00:22 Intro
00:23 - 03:10 Brain Anatomy
03:11 - 05:02 Seizures vs Epilepsy
05:03 - 07:37 Causes of Seizures
07:38 - 08:40 Prodrome Phase
08:41 - 10:00 Aura Phase
10:01 - 11:11 Ictal & Postictal Phase
11:12 - 11:40 Focal Seizures
11:41 - 12:28 Motor Seizures
12:29 - 12:57 Sensory Seizures
12:58 - 13:37 Autonomic Seizures
13:38 - 14:13 Seizure Spreading
14:14 - 14:43 Generalized Seizures
14:44 - 16:16 Absence Seizures
16:17 - 16:56 Atonic Seizures
16:57 - 17:57 Tonic Seizures
17:58 - 18:27 Clonic Seizures
18:28 - 20:23 Tonic-Clonic Seizures
20:24 - 20:59 Myoclonic Seizures
21:00 - 21:35 Febrile Seizures
21:36 - 23:16 Treatment and Management
23:17 - 23:53 Thank You
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Audio Credit: www.bensounds.com
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#Sponsored #SelfDecode #Epilepsy
Go to thld.co/selfdecode_human_0122 and use code HUMAN to get 25% off your SelfDecode DNA test kit! Thanks to SelfDecode for sponsoring today’s video!
Is this service available in South Africa?
This is amazing! I want to learn more about my health with this kit
I suffer from epilepsy on a daily basis so thank you covering part of the topic it was very interesting
You actually got this a little wrong.... I have epilepsy. Not all epilepsy is (unknown what's causing it) for example, I'm a non-photosensitive epileptic. Which is exactly what YOU said epilepsy is. They don't know the cause of reoccurring seizures. Photosensitive epileptic's have reoccurring seizures caused by things like flashing lights. (there may be more than just those 2. But those are the only 2 my neurologist and I have discussed)
Just a little extra info!
Turkish subtitles pleaseeee
I have epilepsy. Normally, I'd be terribly scared to watch a video about seizures. But having you guys explain this fascinating concept makes me much more confident and accepting of my illness. Thank you for your precious gift!
You and me both. I normally never get phased by videos, but whenever I see a video of someone in an epileptic state, I always turn it off. It's scary to see someone go through it, and it's scary to know that you do the same.
Knowledge is power. So, it's good that we watch videos regarding diseases that we have. Understanding about seizures may help in controlling our emotion (especially when a recurrence of epilepsy happens) and overall better self-insight. Cheers.
Have you tried CBD oil?
Why watch a video about seizures when you can just have one
Lions Mane supplements help to heal the brain from seizures.
I’m an epileptic with generalized Tonic-Clonic seizures. It’s so frightening waking up from one or any seizure to be honest.
God bless all of my fellow epileptics and their family’s and partners!
I pray the frequency of your seizure reduces and you get back and lead a normal life. My Dad started having seizures in his early 70’s n after 10years he didn’t have anything .
God Bless ❤
My ex girlfriend has those types. I felt soi bad for her
I have Psychogenic Non-Epileptic Seizures (PNES). I almost cried when you brought it up because most people don't. I've had people tell me that I'm faking my seizures. They happen with emotional stress and can only be ended with grounding techniques. I was put on an anticonvulsant, and it actually caused me to have more seizures.
During my Aura phase I notice that I feel off and my thoughts become stuck and cyclical. My seizures have 3 stages however I can usually catch it before the 3rd stage. Whatever stage I get to I have to work backwards through.
Stage 1: I go into an absent seizure and talk in the cyclical nature of my thoughts. I might get stuck repeating something such as "I'm not okay" or "Something's wrong."
Stage 2: I develop an irregular twitch with my hands and wrists. I may also have stronger, more spaced jerks with my upper body and/or neck. If I try to talk it comes out as a harsh stutter. It may take me multiple minutes to say a complete sentence. My breathing becomes very shallow. I may also get stuck breathing out for extended periods of time then gasping sharply.
Stage 3: All of my muscles give out simultaneously and I collapse. I can no longer talk and my head is filled with a dense emptiness. I feel unable to form any thoughts. My breathing becomes very shallow and usually my heart rate increases.
I am completely conscious and have use of all of my senses while I'm seizing. This means I can usually make myself sit down or move to a position where I can't get hurt falling. Since PNES are atypical the symptoms and duration vary person to person. I have had a seizure, going between the 3 stages, that lasted 90min from start to finish. However my average seizure lasts approx. 15min.
The repercussions of the seizure have a wide range, but it comes down to how bad the seizure was and how long it lasted. Most stage 1 and some stage 2 seizures have no impact. However, at some point I feel hazy, confused, and tired afterwards. That period will range from a few minutes to 2 days. In the worst seizures I will have intense memory loss to the point where I don't know who I am, where I'm at, or what happened (even though i maintain consciousness). I really wish I could meet with scientists to share my symptoms and experiences because it is very misunderstood, and I can explain my experiences fairly well with identified triggers and everything! Honestly I also want to know more about it.
Smelling salts can help to stop them too if I'm not mistaken.
I appreciate you sharing your experience. I wonder whether your condition may fall under the umbrella of conversion disorders, in the DSM. I don't know that it may necessarily help explain it better, but I wonder whether more psychological therapies might help reduce the onset of physiological reactions that are caused by emotional distress.
thank you for sharing your story
Thank you for sharing that. My dad suffers from something very similar.
I'm in the middle of similar stuff right now. It's pretty severe. I didn't show up to work for 3 days and still am out of my mind. Lol. I have underlying bi-polar depression so that definitely doesn't help.
I have had Tonic Clonic seizures for 43 years...this is the most information, and the most concise information I have received 😢
I am diagnosed Epileptic and I hate it!! I've had many seizures and I hate them too. No doctor has ever offered this explanation and I cannot thank you enough for this video. It is scary when something like that happens but you have no idea why or how. I love you guys and this channel!!!!
I've always wondered what it's like to experience one.
My sympathies! Doctors can be dismissive!
Do you get a signal when the seizure is about to happen? I mean to disrespect or make you feel bad
I just wanna to know more about it
I'm very sorry you have these seizures. The brain is the most complex and mysterious thing in the known universe. I have always been fascinated with it and how it functions as it does. Medicine knows very very little about how the brain works. I was speaking with my neurologist one time about the complexities of the brain and if medicine will come to ever fully understand it. I expressed my doubts that it would. She stated " I really don't think we were meant to understand it." 100 billion neurons that each have 1000 to 10,000 connections known as synapses. That's in the neighborhood of 1000 Trillion connections. That is amazing. That's just utterly astounding!
I am also epileptic I woke up in an ambulance from a grandma seizure I'm sore af from thrashing so hard and they had me in restraints..
Being a first responder around someone having a seizure in a somewhat public space can be an "interesting" experience as well. A lot of people just freak out completely. The result for me was that I glanced at my watch and moved a table out of the way, then proceeded to try (with moderate success) calming everyone else down while leaving the seizing patient alone, which felt just a bit odd... As things calmed down, we found out the patient had a known history of epilepsy and aside from being slightly confused, tired and terribly sorry for the upset (need not have been, since it wasn't her fault at all!) was fine.
Bottom line: Awareness and first response training is a good thing. More of that, please.
Encouraging to hear this. I’ve had grand mal seizures since birth, and the worst was waking to see other people freaking out. Especially teachers in elementary school. Though I’ve had hundreds of seizures, I’ve never actually seen it happen live. So I do understand it’s disturbing to people, which is why I usually let people I spend time with know it could happen and what to expect, so it’s no big deal.
@@KathySierraVideo I don't find it very disturbing myself, since I have the training and knowledge to understand what's happening (though of course I have no idea how the seizing person feels!). The thing I really found unsettling was the sheer panic some of the other bystanders showed, to the point where the best I could do to keep the patient safe was keeping everyone else from doing anything stupid (possibly movie inspired). That's why I think that education and training for immediate medical response should be far more widespread than it is. It's not rocket science or surgery, after all. Or, in other words, I don't think it's something that should need a lot of explaining...
@@jandl1jph766 exactly, yes. As for how the seizing person feels, that’s the “good” part… we don’t feel *anything* until it’s over. And that’s when calmness from others is a massive help.
For my specific case, the part *before* the seizure is the worst, as in the worst thing I can imagine feeling. By the time I lose consciousness, it’s a relief, and I’m usually MUCH better after. Thank-you for being a role model in this.
@@KathySierraVideo As usual, panic never helps and frequently makes things worse. That's for sure.
It's good to know that the seizure isn't as bad as it looks (and it does look very painful). I think that's a big part part of the panic response - people wanting to do something, *anything* to "help" yet feeling completely powerless to do so. Of course, to anyone with decent (and recent!) emergency first response training, it's very obvious what needs to be done - which makes staying calm a lot easier as the training takes over.
Could never tell my grandparents that. Every time I would fall out with an epileptic seizure they would think I was dying. And the worst part is, and I dont think it has anything to do with EMTs, but being in the US I would be forced to go to the hospital against my will despite the fact all I really needed was a nap. Extremely frustrating and puts me in medical debt despite not actual wanting to bother the medical workers....
The aura phase is so weird to experience for me personally, because my automatism is looking behind me to the left. It makes me feel like my epilepsy is stalking me, and is the only way I've been able to successfully identify an oncoming convulsive seizure.
It feels like you’re disconnected from yourself.
Just leave alone..... would that be a correct response?
as someone with epilepsy, seeing informative videos like this makes me so happy. it’s such a misunderstood disorder, even to neurologists. there’s so much misinformation when it comes to seizure first aid that it puts us in danger. knowing that so many people have watched this video brings some peace of mind :)
My husband was blown up in Iraq and lost about a quarter of this head. He has a shunt and has been through several surgeries. This is a fascinating video packed with information. We deal with seizures constantly. Last year he had a seizure in our kitchen and hit his head on the ceramic floor and had two brain bleeds and brain swelling. He was placed on life support. I think he's has a seizure in every part of his brain after watching this video. Believe it or not it's helped me understand more why he reacted and experienced things before during and after seizures. I'm so thankful 🙏🏻 Wish I could talk to you.
Thank u (him) 4 his service n I wish u all the best! 🙏🏽🙏🏽🙏🏽
yes me to like this video has explain to me so many things that happens to me an my parents often where thinking i would be intoxicated or just not paying attention
@@bubbagary5054 I'm sorry bubba! I need a seizure friend that understands n has a sense of humour (but seriousness of the condition) as well. 🙏🏽🙏🏽🙏🏽
Thank your husband for his service and you as his wife ,I just want to hug you ,I'm extremely sorry about your husband and know your not alone ,my thoughts and prayers are with your family and forever will be ,may our heavenly father lay his hands upon your husband and our angels keep you wrapped up tightly within there wingspan bring you comfort ❤ as trying times may have there moments know your safe here and husband is not still over there ,,,God bless you both...thank you for sharing this with us all..
@@meredithaherntamilio4553 AMEN, sis! 💗💗💗
Incredibly you covered every type of seizure except "complex partial seizures", which are the kind that my son has.
I also have partial seizures where my body shakes uncontrollably for about 20sec. Sometimes I can control a seizure as it is mild but not always as the seizures becomes intense. Doctors don't really have a clue what to call my seizures. I got them when I was 9 and now 33.
These are the kind I have.
If I may ask what is this type of seizure? I've never heard of it before.
I have complex partial seizures. The best way to explain it based on this video is a combination of an aura and absent seizure. During the absent portion of the seizure you actually lose consciousness, but no one would know. You appear awake, but you're unresponsive to everything around you. Some people might just freeze during this phase and others might move around and do random things (I've locked myself in a room once before). It usually takes me 2-4 minutes to "come back to reality." I'll have little to no memory of anything that happened and be in a state of general confusion and exhaustion for a few hours or the rest of the day.
In all honesty, they are the worst because I've done some embarrassing things during seizures and if people around me that don't know what's going on, I just look like a total nutjob. Not to mention the fear and panic I experience leading up to the seizure (typically during the aura) is awful.
I had those also.
Back in middle school one of my classmates had epilepsy, and when he first came to school the teachers went through a presentation of how to deal with seizures if he ever had one while we were around, seeing as he had such frequent seizures, sometimes multiple a day. It was honestly really scary to see at first, especially being a kid at the time, but eventually our class got better at helping and keeping our wits about us than most of our teachers. I’m glad I got a little experience with how to help someone in that situation. Because if I was freaked out at first, I knew most other people would be freaked out and would probably freeze like I did rather than helping the seizing person. Just glad that if someone ever has a seizure around me, I’ll know what to do and since watching this video, I can explain what’s going on to bystanders as well.
skill diff
omg me too
I’m so happy you brought up absent seizures being mistaken for ADHD. When I was about 7 and being tested for ADHD they had given me a sleep deprived EEG. The drs had said they thought it may be epilepsy but because my EEG was clear they just wrote it off. It wasn’t until I was 17 and had 2 tonic clonics within 3 weeks that they officially diagnosed me with epilepsy. When I got a little older I had brought it up to the Neurologist I was seeing and she had said they completely missed it, which is very frustrating.
Also for me the only aura I get is my right ear gets a really high pitched noise for about 5 seconds and that’s all the time I have before I go down.
my Nephew was born with Seizures. he was diagnosed at age of 2. he had a Nervevega stimulator placed at age 8. he had granmal seizures on all 4 of the lobs of the brain. he passed away from a bad car accident back in 2018... he was 19. miss him sooo much!
I’m so sorry for your loss. ❤️
@febbyy🔞 not the time
But I heard people aren't born with epilepsy, it's something they may or may not develop.
I'm diagnosed epileptic so its nice to hear it being talked about. I appreciate you guys so much
Same here @ Shelby C
Same here, I learned a good amount about myself while watching this and my seizures. The keto diet worked the best out of all of the treatments, I recommend it because it literally saved my life during my coma.
Thanks for this video. My brother has epilepsy, and ironically, we had a dog when I was a child who also had epilepsy. My parents kept me away from seeing my brother's fits, but I remember seeing my dog have one. It was rather scary and mysterious for me as a child.
I suffer with grand mall seasures n
When I had a dog ,he would know hours sometimes a Day before I was going to have a seasures
After 20 plus years , I know about minutes before, sometimes I know a minute before
Im embarrassed about it ,
This made me cry but also gave me an understanding of my late 15 year old son that died from epilepsy seizures. It took him five years suffering from seizures every day. Why do we exist in the first place if all is going to end into frustrations one day no matter what. My family has never had a history of epilepsy.
I am so sorry for what you were going through with your son. I know how you truly feel. My son is 10 years old and he just got diagnosed with epilepsy, he had many tonic clonic seizures in the past month. I'm literally crying reading your comment. I pray that your faith will bring you strength and courage. That's all that keeps me going now. My faith is my strength. I hope you find yours my friend.
I'm a 76 year old Army veteran. I had my first seizure about 2 years ago and a few more since then -- the last one lasted 11 minutes with bowl release and bit tongue. The VA had me taking Bupropion for PTSD for over 20 years and I had slowly weaned myself off it. I believe there is a connection. Now I'm on the Keto diet and take 125 mg of Levetiracetam every 12 hours. EEGs show nothing. My VA neurologist thinks it is a sleep disorder "of some kind". Your video provided me MUCH more info than she has. THANK YOU!!
Omg, you are really lucky, please don't get me wrong, but to avoid any auras I have to take 1000 mg of levetiracetam am and 1500 mg pm. My brother in law take 500 mg am and pm
I take max dose of lev 1500 + 1500 and 100 mg Vimpat twice a day and still have seizures almost every day.
@@TheCrusher2468 I'm so sorry 😔
Just followed you on twitter. Thank you for your service
Thank you for your service! I hope everything goes well for you :)
My daughter got her first seizure at 6yrs old. It was the scariest experience I've ever been through with her. Her whole body got stiff, with arms and legs extended, and shaking violently. She's 18 now, and has had about 8 seizures in total, Doctors can't figure out why. She knows when she's about to have one when she starts to get a bad pain in her stomach, and starts to sweat. She's not on any medication, so I worry a lot about her. Every time she has one, I hope that it'll be her last. Thanks for the informative video!
I wish her the very best, and hopefully there will something to diagnose and remedy it soon. ♥️
You should try the carnivore diet. Stop all carbs and sugar. Just eat meat.
@@nerychristian What kind of medical advice is this??
I got this kind of seizure too. Several doctors can't diagnose what it is. I'm 29 now. I got my first one at 18. In total i've got 8 times.
And it's a really bad pain all over my body. Stiff muscle from head to toe. Hard to breath. Cramp stomach. The pain is worse than labor pain. And it could last for 2 hours.
I hope your daughter never get this seizure anymore. You can try to put something warm on her stomach,or her palm and feet. It helps reduce the pain.
@@devi.village Oh my gosh, I am sorry for you, and others who are suffering with no answers. I hope your doctors can get to the bottom of it soon. Sending you best wishes for restored health.
my dad is an alcoholic had a had a seizure as a withdrawal symptom, it’s honestly interesting how that can happen and how the brain will just shut down like that
It happened to me via benzo withdrawal. I hit my head on the corner of a coffee table & it spit my left eyebrow right into. I had to have 7 stitches. Lucky I didn't damage my eyeball itself. I don't remember anything right before or during. I just remember coming to with a crowd of ppl standing over me & I was in the floor. An ambulance was already on it's way. I don't take benzos anymore. Took a long time & a lot of suffering to get completely off of them.
My mom had the same thing and the ema was saying she wasn't having a seizure when she CLEARLY was 🙄
@@ladyscarfaceangel4616I’m really glad I quit Flualprazolam BEFORE I reached physical dependency. benzo WDs are deadly, not figuratively.
A couple days ago, I went to the ER because I was having just about one of the worst gastritis flare ups I've ever experienced. While waiting I of course noticed many people going before me, and I simply figured their issue was more of a priority than me (i.e. there was a child who apparently smacked his head smooth into the pavement, and a woman practically bawling her eyes out trying to pass kidney stones). But with my severe pain after waiting close to 3-4ish hours I just felt like I should take my chances at the urgent care that was down the street since the more people who came in with worst cases, the longer I knew I'd be stuck there. I couldn't help but to think that the moment I get up and leave is the exact moment they'll call my name. So I waited.
At some point during the night, a young girl who was rolled into the place by paramedics mentioned to the front desk that she was experiencing epileptic activity while she was at the park. I was like, damn. Now FOR SURE I'm not gonna get seen... while I was texting my mother about all of this and saying I'll be headed my way to the urgent care, I hear a big thud. I looked up and saw this woman go into another seizure, three times in a row. I have NEVER seen a seizure happen before with my own two eyes and it had to be the scariest thing yo witness. I didn't know what I could do other than dragging the table nearby away from her and the nurses while they held her still.
Man. I was so... heavily bothered and anxious. I placed my hand on my chest just to feel my heart was bursting out of it's cage. I felt so bad... she looked so tired and confused :( but I do hope me leaving after it all gave up a spot for her to be seen, cause even with all that happening poor doll had to wait like everyone else cause they were short staffed and full that night.
To everyone who's epileptic I wish you all the absolute best the world can offer, cause I'm sure as hell having this condition so casually has to be irrationally stressful for both you and family. ❤️ Be safe!!
Another terrible thing about having epilepsy is knowing how scared my mom has been watching me have these seizures. I’ve had many friends see them too and it scares the crap out of all of them. It breaks my heart that it’s not only traumatic for me but for them as well.
So many 'me' and 'I' in these comments, which aren't about my epilepsy, but all about you.
I was diagnosed with epilepsy after I had a brain hemorrhage due to an arteriovenous malformation (AVM) in my left frontal lobe. I really appreciate the way you explained this! It’s super scary, but like everyone else with epilepsy I’ve learned to deal with it. My auras are always dejavu feeling and almost like I’m detached from my body then boom there comes the seizure. Sending the best wishes to anyone reading this!!💜💜
My son has AVM or cavernous hymangiomas at least 12 of them. He also has epilepsy and had a brain hemorrhage.
Before going on medication, my father had both atonic and tonic/clonic seizures. After some trial and error on dosage, he has been seizure-free now for several years.
💜💜💜
We need more videos like this. I was diagnosed with Epilepsy not very long ago still learning to accept and manage to losing independence. But it’s such a misunderstood disease it makes it even harder to live with but today this informative video was helpful and made me feel better. Thank you!
Having epilepsy my whole life is a struggle, learned how to live with it. I was always curious on how seizures work, knowledge is power.
I've had epilepsy since around 12 when I started puberty. Mine always start with focal aware seizures. Sometimes that's it, sometimes it continues on with a focal impaired awareness or generalised tonic clonic seizure. My aura or focal seizures usually start with deja vu, then intense fear. I feel like I can feel a zap in my head when it starts, and then a tingling radiates outwards. The aura though is good as it gives me time to lay down or tell other people what's happening. But I have to do that quickly as communication becomes difficult quickly. I know what I want to say, but I can't say it. Or sometimes I think I'm saying something, but I'm just talking about random things or gibberish. If it turns into an impaired awareness, I will start lip smacking and may have tense muscles. I can definitely tell afterwards which kind of seizure I've had. Depending on how exhausted and confused I am, or if I've lost bladder control. It's been about 7 months now since my last tonic clonic. So I'm feeling pretty good at the moment.
That's the same way I feel when I have a aura like I been here before and to get somewhere safe.
I only had a strange feeling before the first one at age 14, and again at 24 when I was driving, but I dismissed it because I took my meds. Didn't realize the pharmacy had put two kinds of pills in the bottle. Always check your meds. Ended up totalling my brand new car, flipping upside down, and causing minor damage to 4-5 other cars, mostly parked. They even blamed me for damage to a car that hit me while I was upside down. I sleep for hours after because exhaustion but woke in hospital with some scratches on my knuckles. Worst part for me is fear of hurting someone else.
Now I'm much older and beginning to think I may have autism, and learning there is a link with Epilepsy that starts in puberty might be related to being autistic. Wish I'd been diagnosed then.
My seizures almost always start with that "de javu" feeling ... then if I'm holding something, like the a can, either the can feels HUGE and my hands feel tiny or my hands feel huge and the can tiny 🤔 I talked to my Dr., he had no idea. I found it online and it's actually called "Alice in Wonderland" syndrome.
@@recoveringsoul755 - I'm seriously surprised they blamed you for another car hitting you. 😳 That's crazy. About 5 years ago I had a seizure while driving on the freeway with my daughter and drove off a overpass ... What a mess that was.
@@sarahdixon1943 omg that sounds terrifying! I hope you and your daughter weren't hurt bad. I carry maximum insurance now because of it. Luckily never had an accident with anyone else in the car with me. I guess the insurance companies just go after who caused the accident, even if I got bad meds from the pharmacy, even if someone else was tailgating me and pushed me into oncoming traffic, they are lazy and won't look into it
I watched this with tears in my eyes. My mom went through a very traumatic event 13 years ago and suffers from seizures till this day. I know what to do when it comes to my mom. But this definitely opened my eyes to the many types of seizures and ways to treat them. Subscribed!
Blessings to you and your mom queen 🤞🏾🙏🏾
watch ( dr )ninja nerd for more details
What did she go through?
That’s how mine started learning new information myself it’s terrifying. Much love to you and your family. Good vibes. ❤️
Thank you so much for explaining autonomic seizures. I have epilepsy but the doctors cannot "make me have one" during an eeg so they have me under the category idiopathic. But once you started explaining autonomic, which was never bought up to me before, fits my aura symptoms perfectly. Now I'm going to have to look more into it.
My 33 year old daughter had a "Grand Mal" in her bed just 3 days ago. No history of it. Very healthy. She would have probably choked to death if we had not been there. She had another 6 hours later in the hospital. I am terrified. She has anti seizure meds every 12 hours now. Everything seems back to normal. Thank you for this video with all of my heart.
Thank you for acknowledging psychogenic non epileptic seizures! Used to have multiple a day and they’re dismissed so much in medicine.
what exactly are those?
when it comes to the brain, so much is literally dismissed simply because medicine really has no clue about how the brain works. it has a very general idea but that's it. The brain is the only organ in the body that affects who you are because it is, in fact, you. I have multiple personalities and it's one of those things that is dismissed too but it is gaining more traction. The brain is one of the many proofs that there is a God that meticulously designed us. It will never give up its mysteries. I don't think we were really ever meant to understand how the brain works.
@@scottcupp8129 They’re seizures without the typical electrical activity associated with epileptic seizures, as the video said. For myself the cause was psychological - untreated depression lead to stress manifesting itself as seizures.
@@scottcupp8129
Most people who study medicine end up becoming religious. The human body is so advanced and incredibly complicated, it’s literally impossible for it to have evolved. Im talking of course about macro evolution, which is going from a simple organism to a completely new species or advanced animal.
I have been diagnosed with both Epilepsy and PNES. Is this common? I had surgery on my right frontal lobe and still take a lot of medication and starting therapy for the PNES soon. Really appreciate your video!!
I’m not in the medical field but have always found it interesting. Just wanted to say I did not know there were so many different types of seizures, and this is why I watch this channel to expand my knowledge. Great videos and thank you.
I’ve experienced the smell of bananas as an aura before. It was so bizarre. I am always cautious now when I smell something that isn’t there now for the onset of a seizure, especially bananas.
During 1960 the doctor diagnosed me with epilepsy. When driving home late at night I would lose one side of my vision. Years later I became aware of the cause. The farm gate was in the dark and I drove through, and got out to shut the gate. I was young and coming home from a dance. In hindsight the vision loss was from fear.
My dog is epileptic. I can tell when his eye expression changes he's getting close. His eyes get very wide and he begins looking around as if there is something he's earing or smelling. He will begin panting very heavily, too. He has had major seizures when he's been very fearful and stressed too. Fortunately he's pretty well controlled with a stiff dose of phenobarpitol twice a day. This video has given me more insight into my dog's disease.
My sister has tonic-clonic seizures. They are usually accompanied by intense painful headaches. We believe she has them during her sleep because of her having those intense headaches. Great informative video!
I’ve learned more in this video than by having “phone consultations” with my neurologist. Thank you guys!
Omg seriously. My husband has epilepsy and has literally been doing tests for a year just to get a meeting with his neurologist and this was after a 6 mo th waitlist.
I had many neurologists in the last 24 years and they don't know which type of partial seizures that I have. Hopefully science can catch up to me
It’s important to know that all neurologist aren’t epilepsy specialist. Please make sure your doctor is an epileptologist because they have more formal training on epilepsy.
I've had grand mal seizures in the past where I've blacked out and my family called an ambulance just to have the doctors tell me they were "pseudo seizures". As in fake. It stopped me from getting the help I needed for about 10 years.
I have absence epilepsy. Stress is a huge factor. Not just physical stress but emotional stress. I do notice strange smells sometimes but never noticed automatic behaviours. I lose consciousness but maintain motor function and then be confused when I come back. I'm still experiencing the occasional seizure as an adult but they are so few in comparison to my childhood. The missing information idea is so accurate. I tell people it's like a cd skipping . I miss bits and pieces of reality and I can get a bit annoyed if people don't fill me in 😂 what are we talking about? So many times people can't be bothered to repeat themselves
This was very hard for me to watch. I have epilepsy with tonic-clonic seizures. Any time I see anything to do with seizures I get very stressed and scared, like it's going to happen. I'm glad I watched it though, I learned a lot that I didnt know. You did a great job breaking down each type, thank you.
I don't know why but I got hungry...otherwise, I love everything related to the brain and it all started back when I was 15. I received a very hard hit on the back of the head, I lost a big chunk of my long hair and had a very big bruise on the back of my head BUT after that, months later I was able to learn languages. I currently speak four languages fluently and understand other four languages that I am still studying. So my brain injury came to be a blessing in a way.
Are you a zombie polyglot?
Sounds like the makings of a superhero movie. Have Netflix reached out to you by any chance?
@@Rizwaan122 makings of what? The fuck?
@@QBlackDeathQ polyglot, yes. Zombie no.
If cartoons has taught me anything, Do not hit back at that spot ever again or you might loose your omnilingualism..
I was diagnosed with epilepsy at the age of 8. Shortly after I turned 20, I was very fortunate to be one of the first patients to undergo a procedure using new laser technology. Since that surgery, I have been completely seizure-free. Unfortunately, those 12 years held me back a lot and I didn't really think about what I wanted to do with my life for a long time, as I was just happy to be living without epilepsy again. It also took a LONG time for the side effects of all my failed medications to wear off. But now I'm finally doing something that I actually enjoy, and I wouldn't be able to do it if I still had seizures!
I am in this exact situation right now, and I'm also going to be having a surgery using laser technology in about 4 days. Could you possibly explain to me about how it felt after the surgery itself? As in, the auras/seizures themselves, do they just completely go away? Or do they somehow stay there as something psychological but it doesn't have the side-effects of actually experiencing them? And how exactly did you truly find what you wanted to do with your life after being so uncertain for such a long time?
I have lived with epilepsy for about 14 years and have experienced nearly every type of seizure mentioned in your video. At one time, I was experiencing an aura that would cause me to hear the theme song to Laverne and Shirley in my head! My doctor and his whole staff thought that was a hoot! Now, my aura is hearing sounds and conversations in a very garbled manner-almost as if they are in a tunnel. This video helped me understand a lot, especially my aura having to do with hearing, as I have a right temporal lobe epilepsy diagnosis. Thanks
It's is so nice seeing a video like this! I have always been confused about seizures and epilepsy and this video was done so well! ❤I used to have epileptic seizures called petite mal or absence seizures. It's interesting you said that it would only last about 10 seconds. Mine would definitely last longer and i definitely was yelled at as a kid because everyone like my teachers and parents assumed I was being a brat or choosing not to pay attention. it wasn't until my parents took me for a regular check up at the pediatrician and I happened to have an episode infront of her. The pediatrician called a Dr and they then diagnosed me with petite mal. It wa so hard to learn as a child because I definitely was "missing" information when I was being taught at school. So it took me longer to retain things. Some of the aura phase systems I would get was I would feel like I had to sneeze it was weird. And then I would either shake my head up and down like I was nodding yes or no. Then I would walk around in circles. Or I would just sit down. Very strange! Lol I had my last seizure in 6th grade a week before Halloween and I swear I had so many seizures that day it seemed like I had one long one for a couple of hours! I call it my big bang moment because after that day j never had it again!
Fell and hit the back of my head as a child, suffered from seizures ever since. I've experienced all of these types, except for febrile, with no known aura. Despite all the tests and treatments, my brain still seizes when it pleases.
damn, i’m sorry bro. I hit my head quiet hard a few times when i was growing up cuz of others and i’m lucky to not have seizures from it.
Some kid swung his swing into my head and I guess that caused my partial seizures.
yes mine does to but im just realizing what is happening to me in this video so i will be seeing my doctor as soon as tomorrow
My nephew has epilepsy (since he was 11 and he's 33 now). His body is so messed up from having convulsions that he's in severe pain all the time. I wish everyone could see your video. Then they may understand why he looks tired all the time and speaks slowly (medicine). He does have a vagus nerve implant, and it does help, but not like we all thought it would. He has a lesion in his motor skills area, but the doctors are afraid to do surgery, which we understand.
Lions Mane supplements help to heal the brain and nerve injuries.
I had partial seizures since I was 9 and now I'm 33. I feel his pain. Doctors still can't understand what type of seizures I have. During an episode my body shakes uncontrollable for about 20sec. Sometimes I can control a seizure when it is mild but not always as the seizure becomes intense and not controllable. Different things can trigger my seizures. I stopped taking Rx as it gave me dizziness and now just take CBD/THC drops.
Eat ketogenic diet, it will heal you
We have thought my son's seizures were caused by lack of sleep - but knowing about the prodrome maybe the lack of sleep is caused by a seizure - we will now keep a that in our logs. My son's auras are automatism hand movements but he knows it's coming by seeing flashing lights and tingling/numbness in his right-side extremities.
I am from Europe and love your content! Thank you for making this video about seizures!
I've had a right temporal lobe tumor, and had 4 seizures before I could finally take medication after diagnosis - I experienced 3 seizures completely alone not having a clue what the hell just happened to me. So this was close to my left side motor functions, and I would feel like I cannot swallow and kind of just weird, then my left arm and hand would tingle, then my face would start twitching on the left side, and then my arm and hand would start moving violently - meanwhile I am all awake, this phase probably lasted about a minute I am assuming, and then I would pass out for 20 minutes. A lot of people think having a brain surgery must be scary, but I assure you that experiencing a seizure alone inside your home during the pandemic, living in a different country than your family and people who know you is the scariest thing I have ever experienced in my life. I had to wait for a head MRI to finally have medication which completely controlled the seizures. I am still taking the medication for 2 years as a preventative measure after having a brain surgery.
My mom is diagnosed with Epilepsy and the first time she had a seizure it scared me so much. But as the months went by I kept date when he had one, it was every two months. And just recently we found out her Epilepsy was caused from Lupus. Ever since we figured that out. We've had alot of hospital visits, clinic visits....and I'm just being here for my mom. She needs it the most. Every day I learn more. To know more. Thank you for this video
It was hard at first, as it started when I was 10 years old surrounded by people who are clueless as I am. I was made to feel lonely and different, even today at the age of 23 my friends are my family members but I've learnt to live and with my Absence seizures. That was a wonderful video! 😔
I was just recently diagnosed with epilepsy after having a a few different episodes with varying symptoms. For a while I thought I my life would never be the same... Thank you for making me feel that I'm not abnormal.
I’m epileptic and I’m proud that you guys made this video. Taught me something new and I will share this with my family and friends to educate them
My daughter has had epilepsy for years and just got cleared to go off meds. Thank you for pointing out the myoclonic seizures that I didn't know existed, as well as the stress-induced ones. I learned a lot from this today.
Hi there Paula. I also have epilepsy. I hope to one day get cleared to get off of my meds. I’m so glad for your daughter!
How long did she take medicine for? Was she able to drive while taking the medicine? Was she experiencing seizure while taking medication? What kind of medicine she used to take? Sorry for so many questions my daughter started having seizure in Jun 2020 she was 16 and 6 months later we finally go to see the neurologist and the medicine made everything worse she took it for 2 months then stop because it was really bad she has have 2 more seizures after stopping the medication
My dad has had epilepsy since he was about 23. He was on a ladder and felt weird, he then woke up in hospital. I've witnessed many seizures and have helped my dad numerous times when my mum can't help. It was a stressful time, I was constantly on edge waiting for the next one. In one severe seizure, he stood up, collapsed and smashed his head on the door frame. Blood everywhere but fortunately no damage.
You see? This is why I'm afraid of heights.
This is super helpful and valuable information. Thank you.
My mother has epilepsy, she's not been aware or at least not able to tell me of any prodromal symptoms. She often starts saying things out of context and I know to get her sat down and somewhere safe. Not always though. I worry when she's alone, she doesn't know it's going to happen and can't get her self somewhere safe. It breaks my heart and I worry so much. My strength and thoughts to anyone it affects, the individual or those who love you. I hope you can get to a place where you are seizure free, meds are super important and I hope you can stay safe and well 😊
My mom gets non-epileptic absentee and sometimes myoclonic seizures, growing up it was really scary watching it happen and not being able to do anything to make it stop, just waiting it out and making sure she doesnt fall or get hurt etc. 😢 thank you so much for talking about them, it made us feel seen ❤
To clarify, The ketosis necessary to manage (usually) severe childhood epilepsy that is refractory to medication is very different from your regular keto diet. It MUST be carried out very strictly under medical monitoring because the risk is high and just one slip, one sandwich, one candy bar, one regular soda instead of a sugar-free one, will result in those uncontrollable seizures returning very suddenly. That's if the diet works at all (though, technically there are two). It's only about a 50:50 chance and there's no way to predict who will or won't respond well. Because they both are virtually carbohydrate-free, however, and may or may not also limit protein, they can also cause problems with cholesterol level, kidney issues, GI upsets, not to mention poor nutrition and growth. It's incredibly limiting, and this is why it's usually reserved for only those with the most uncontrollable seizures.
Why not just try the carnivore diet? Many people are thriving on this diet. They eat only meat. No carbs or sugar.
@@nerychristian yeah, no.
@@JustAnotherBuckyLover your loss..
@@jennyjen7000 😂🤡
Thank you so so much for using your reach to educate others about epilepsy and seizures💜 My dad suffered with epilepsy since he was a young boy, it affected both sides of his brain. It was heartbreaking to see him go through that, especially because how extreme his seizures were, constantly hurting himself. So many doctor visits, including getting the Vagus nerve stimulation, tons of medications, but never any luck. Always praying for a cure. May he rest in peace, and never feel any pain again. 07/02/2021 (age 49)
My honest condolences to you and the family 🙏
Incredibly informative! I always though of seizures as the stereotypical tonic-clonic and I did not know other types existed. This explains events that would randomly happen to me and now I am looking more into seizures
Wish I had found this video sooner! My mum had 3 seizures in the same place a month ago and is half paralysed. Amazing to FINALLY get an explanation as to what happened.
I was literally diagnosed 4 hours ago. (47 years old)
I am so grateful because I know now why I am constantly tired, headaches, dropping things ect
And the timing of this video is perfect.
You confirmed everything my Psychiatrist said.
🌸
I’m sorry you had to join the epilepsy club
My elder daughter had febrile seizures. After the first one we were in the ER and the doctor asked how long it lasted. We didn’t know. The doctor then told us to look at the clock and tell us how long it lasted. I told him we could look at the clock forever because it felt like it lasted an eternity. (Yes, he was a jerk.) That’s why wonderful education (like you provide) is invaluable. Had we’d known it was a key piece of info, one of us would have checked the clock! Thank you!
I had febrile seizures as a baby too. Apparently, I was so sick that our neighbours refused to let us wait for the ambulance and drove my mum and me to the hospital because he was so worried about me. I was in for a couple of days while they treated me and did tests, but I didn't realise that our neighbour actually was the local coroner, so he's the person who would have been doing my autopsy had I not made it, and he had nightmares for weeks about me turning up on his autopsy table. I suppose I always underestimated how big of a deal that was, because I know febrile seizures are so common, but I guess I was sicker than I realised. And that was before I caught measles and ended up hospitalised again (I was vaxxed, and the medical staff said that was probably the only reason I didn't end up blind, deaf, brain-damaged or dead).
I had absence seizures after a car accident I was in. It got a bit annoying at times because missing things going on and the feeling of delayed time can get frustrating. I'm actually watching this video because I've been having symptoms again after about 10 years of not having them. Just wanted a refresher on types and whatnot. Let's hope a new brain scan is going to be done, been terrified over a few reason. Thanks for three awesome videos!
One of my friends in middle school had a Grand Mal seizure in algebra and we were all rushed out into another classroom and she was taken away on a stretcher and i developed this irrational fear of seizures, but knowing how to help people makes me feel better now and knowing warning signs for myself or others makes me feel better too.
Very good explanation, I'm 61 had them since I was 12. I'm on dialantin and tegretal. Great advice to bystanders. I have broke ankles, broke feet, and scared the hell out of people. My seizures changed through the years more violent when I was younger, now very seldom. I am an epileptic.
I feel for you , Im the same had my first seizure when I was 13 , Im 54 now for the past 20 years Ive been seizure free stopped all meds and feel great .
Im proud to say IM AN EPILEPTIC
@@cottagegrove5611 you stopped your medicines? Have you had any seizures? I take mine every morning and night, and still have hyperclonic jerks sometimes. I drive, had 3 kids, none are epileptic. 2 girls 37,40 and a son 24. Good for you. I'm happy for you.
@@jsdad48 Drs cant explain it at all , but yes I have stopped all meds .
I have a history of Epilepsy. When I was really young I would only have seizures in my sleep. Weird I know. Made a diagnosis difficult. These seemed to stop. At the age of twelve I had my first seizure during the day and it was the only time I had a warning that something was going to happen. I got very dizzy, called to my friend to wait for me, put down the box I was carrying, dropped to my hands and knees and nothing else. I became aware of my surroundings when we arrived at my home and then promptly went to bed and fell asleep. Since then no aura to speak of just waking up in my clothes and really cold hands when I wash them. I had my last tonic-clonic seizure at the age of sixteen in 1988 which I am very grateful for. I guess this illustrates how unique everyone's experiences of Epilepsy and seizures can really be. Still need a medical every year to be deemed fit to drive though. 30+ years since my last seizure... pain in the neck.
For those still experiencing seizures regularly, I do realise how lucky I am and I hope that your situation improves.
I am still suffering with it @Sue Fraser
@@bookaniabookskiduniya7274 I hope things improve for you. I still live with the fears though, strobing lights and other triggers etc, so I haven't completely let go of it. Blessings to you.
Thank God they stopped! Having seizures in your sleep can be really bad. Like it could either possibly put you in a coma or you'll go to sleep and never wake up (i.e., die).
A cousin of mine had a seizure tonight at a family gathering. Her father acted calm and perfectly, but I realisez I know nothing about epilepsy, so I came here looking for a video that could help and teach me something. Thanks a lot for your work
What kind of person is the father is the question.......
@@peacenholiness6855 a great person that knows exactly how to act and what to do when his daughter needs him. He taught us all what to do and what not
I was so happy when you brought up PNES! I have this condition and it’s not often discussed when seizures are brought up so thank you!
I had a stroke 9 months ago and still suffering with hemiparesis. Thank you for your video, it has helped me come to terms with what happened.
I have an AVM that started my seizures. I do take meds but doing the modified keto diet has been the best treatment for my seizures!! Loved this video ❤
Try the carnivore diet.
I think it's also important to mention in the postictal stage that the pt is confused and may become extremely combative.
This is exactly correct. I had a massive seizure at work a few years ago that apparently lasted long enough to be life threatening. I was told when I came too I started throwing punches at everyone around me. Thankfully I didn’t actually connect on any of them.
Thank you for talking about how hard getting a diagnosis for any kind of seizure disorder can be! I've had problematic seizures for years, but people don't take them as seriously because I don't have the dang diagnosis and it's extremely frustrating!
Wear selenite jewelry plus daily meditation and prayer
As someone who suffers from Grand Mal (Clonic-Tonic) seizures, this was extremely helpful, informative and interesting. When I was in my junior year of high school I contracted E-Coli, had a brain abscess draining and now have a mesh plate on the right side. This infection brought out the seizures.
Oh no, I'm so sorry you have to go through that, and it was bought on by a mesh of all things! Geeze.......I feel you very much, my mother's grand mal too :( .
I’ve worked with people who have Epilepsy for 20 years and this was a great video. The worst type of epilepsy is the medication resistant types such as Lennox-Gastaut syndrome, it causes brain damage with every seizure, sometimes multiple times a day (which happen more frequently as the person ages) and is devastating. Hopefully one day there will be a gene therapy cure. I hope it doesn’t come too late for a wonderful woman I know who is now not able to walk and most days can’t indicate her choices anymore.
This is such a clear and concise explanation of seizures and epilepsy to help educate the public and even beginning level medical practitioners. I don’t even think I learned this clearly in EMT-B training or A&P. Thanks so much for sharing this much needed info. People want to help, and unfortunately, sometimes they can do more harm when they panic. It’s scary, I’ve witnessed a lot of different types of seizures, from tonic-clonic, pediatric neuro, diabetic (blood sugar 12!!) and and they are all scary because the person is so vulnerable. Love this info so much!!
Anything that affects the brain scares me so much and makes me teary, my mom had a stroke 2 years ago and till now I've not yet healed from that experience
Thank you for all this information keep up the great work guys.
I got my seizures during the first EEG test... So the diagnosis was clear as the day to do.
Not just stress gets me rolling on the floor, but not getting enough sleep also does it.
I was playing on pc week ago, and got aura phase, which lead me to that what you called automatism phase, but I actually quit the game and shut my PC and tried to go to sleep. Later on I realized that I have moved to bed, because I got a call which was the trigger to really wake me up. I guess I could have fallen asleep there.
My mom has epilepsy and my brother had non-epileptic seizures as an infant-I would smell a sweet chamomile scent during high stress as a teen but never had seizures.
That, my friend, is an aura. I smell gasoline and feel dizzy when I feel a seizure coming.
I've lived with Epilepsy my whole life. I really appreciate you making this video. This medical condition is misunderstood and a few years ago there was even a TikTok challenge that was mocking people living with Epilepsy. Educational videos like this are so important. In my case I would often get really dizzy and/or weird headaches before having a seizure, other times it was completely random.
I suffer from epilepsy mostly tonic-clinic seizures. I had them for 6 years they started when I became a sophomore in college. I love learning more about as much about seizure as I can. I usually get really nauseous and dizziness before a seizures.
Stress can cause a seizure in someone with dysautonomia too... I've only ever had one but it was unforgettable.
I was just dx’ed that. Great.
I have lived with grand mal seizures for over 30 years. I don’t know who I’d be without them tbh. All I know is that when I’m having a seizure, it’s worse for those watching me. I’m not there, I’m completely unconscious, but others have to see what they believe is huge stresses and violent reactions coming from me. I have left temporal lobe epilepsy….as in, the seizures start there.
That’s how I feel too, as in when I’m having a seizure it’s so much worse for everyone watching me. I always go totally unconscious, and I get stiff and convulse. I’m not sure which love mine start in but that’s what my parents have said. When they start my face starts to twitch and then I don’t remember anything after that
@@sydneycrass2278 i have grand Mal to
Have they done an MRI of your brain? My son started having seizures at age 28. Turned out he had an AVM or anterior Venus malformation and once it was removed most of the seizures stopped. He does have an occasional seizure but he does not have epilepsy. He was plagued by them for 18 years until one neurologist did an MRI and saw the AVM. It was removed in surgery and he came through it fine
@@wildangel0229 yes, I’ve had MRI. They only found an IOU from god! Lol. Seriously, they couldn’t find what was causing the seizures. I had to stay awake for two days and they did an EEG with strobe light, and I started to have a seizure. I normally pull to the right as I go into seizure, so I knew it was somewhere in my left side of the brain, because that’s how it works. No surgery for me, I’m afraid. But, I’m delighted to hear that your son is healthy and living his best life.
@@sydneycrass2278 ask your parents which side you turn to when the seizures start. If you turn left, it’s in your right brain, and visa versa. I take Tegretol CR. And it’s really helped. 🌹
I’m watching this in attempt to learn more about my friend’s epilepsy. She happened to be conscious when it started, and was somehow able to dial 911. Eventually she coded and they had to use an AED to bring her back. Scared me nearly to death myself. Just watching this video is making me feel so scared, but it’s important to be informed of what seizures are, and when to be afraid and when not to.
I'm am so thankful for you gentlemen. I have had 2 seizures. I have intracranial hypertension, with 3 elongated blood clots in the sagittal region, and a survivor of breast cancer. Whew, yeah, surprisingly enough I feel great and have truly witnessed the body's healing power. You guys will keep my skills sharp, because I'm also a Medical Assistant. I would have loved to be your student... I thank you 💕
Thank you for explaining many type of seizures. I’ve had two very intense seizures that happen during sleep, but not due to Epilepsy. I did suffer hard hits to my head as a kid though.
Enjoyed the content. One point I might add is that epilepsy is not commonly referred to as a disease, but rather a condition, or, disorder.
Thanks for the informative video.
That surprised me too when he said disease
I have been diagnosed with PNES. Most of the time I know when one is coming. Smells cause most of my seizures. There are time's they just happen. When are the signs it is starting:
1.
My eyes will fixat on an object. My head will move, but my eyes will stay fixate on that object.
2.
My left hand will clinch into a hard ball and be pulled to my chest.
3.
My right hand will reach out to pick something up, will draw back to my body. No matter how many times I try I can't pick up that object, not till after the seizures ends.
These are just a few of the signs.
My recovery period takes about 7 -10 days. During that time I go through many different phases.
When I am going through these phases my family will leave me alone. I go through the same phase after each seizure.
1.
I get mean and nasty. I am not abusive.
2.
I don't care about anything. Nothing matters.
3.
I want to pack up my bags and leave, never to be seen again.
4.
Sleep a good part of the time.
There are others.
Depending on the severity of the seizure will determine how many days it takes for me to recover.
I hope this isn't to long, maybe it will help others.
Michael
Very good notes. Solutions can be helpful: frankincense, prayer, meditation ☯️ seek a mentor for further instruction
I came looking for information about epilepsy after being diagnosed with JME, after looking through the comment section it really makes me feel normal again which I haven’t been feeling since my diagnosis so thank you UA-cam.❤️
I have absent seizures so this really makes me happy that you guys discussed this topic.
I have absence seizure too..can you tell me what medication you are having @Abria Hazard
Me too and my twin has chronic tonic
@@bookaniabookskiduniya7274 I have to take lamictal for the day and depicote for the night
Re: absence seizure.
In 2011 I was hit by a car. Brain shaken, 6 stitches on the back right side of my head, broken bones... the bones healed but for more than a year after that I had something I was calling "blackouts".
Just walking down a six lanes boulevard, with bag of groceries in my hand, and unknown time later I look around, I am on the other side of the boulevard, no crossings near me, no shopping in my hands... having no idea how I have crossed, where's my shopping...
Happen multiple times, I have been coming back to sence in unknown places, lost my wallet two times, left my home in pijamas ones... it was hell of a scary thing. Went to psychiatrist, he said it's because of stress. Took more than a year until I stop getting these. Pretty nasty stuff.
Thanks for posting, your drowning video brought me here. When I seize up I can't breathe & that is the most terrifying part for me. The rigidity, tongue biting, contortions, convulsions, inability to communicate or even blink are frightening, but nothing compares to running out of air & not being able to inhale, while conscious.
I get at most 1-2 minutes notice before the seizure hits. Perhaps it's all to new to me to completely understand, but I will get a buzzing in my left ear. I'll also become extremely dizzy. As if I'm on a boat spinning around and around, while bobbing up and down. My extremities may twitch, my jaw bites down repeatedly, and my limbs will grow weak until I collapse and convulse. The first time I thought I was dying, but I regained consciousness. Now I just try and "go with it." It's very distressing and inconvenient. I keep getting robbed while unconscious in public, but that's just Baltimore for you.
Anyway, thanks for posting. I've learned more here than 6 week-long inpatient hospital stays. The dx tests have all come back normal, which is good I guess. It seems as though I've had every type of seizure mentioned, although some aura; symptoms differ. Consults with JHU neuros haven't helped either. Please keep up the work and if you know anywhere else I can go for more info, I'd appreciate it. I live alone, and am doing the best I can with this.
In a positive vein, it seems as though more sleep, food, and basic health concerns reduce the number and severity of seizures. Although the psychological component always lingers. PTSD & Panic disorder are two other things I suffer from, and maybe the seizures are my bodies way of saying, "DUDE, CHILL THE FK OUT !!" I do wish people witnessing were less panicked and more compassionate.
Fascinating! I don't suffer from epileptic seizures. I've only had 2 that I'm aware of, but the symptoms from prodrome and predrome are very similar to what I experience with my complicated migraines.
Thank you for this video. I've been suffering from headaches since childhood and have had at least 2 seizures. I met with an accident when I was little where a solid log fell on my head. Having headaches really affected me, especially when I was in a lot of stress and strain. I later came to know that it was migraine because of experiences like aura especially visual- zig zag lines, nausea, throbbing headache, dizziness, sensitivity to light, sometimes black out eventually I suffered from anxiety. 3 years back towards the end of my post graduate nursing, it got worst, I felt very sick, my glucose levels tends to be lower even after eating. Fast forward, just after graduation, I had a seizure,even lost a tooth to that. I was later diagnosed with granuloma (calcified). Now I'm cured after treatment.Thank God. So yeah, I think knowing the triggers, signs and symptoms etc is vital and headaches should not be taken lightly I am sure. Consulting a physician is very important. The early the better. (This is long but I hope it helps someone)
I really love you guys. My sister has seizures and we just discovered my moms bf too. This explains a lot being that we live in BR, LA. High stress environments are not healthy at all and will catch up with you if continually submerged in violence, abuses, and discomfort. This was great information. You guys are awesome.. 🙏🏾🙏🏾🙏🏾
I live in LA and had partial seizures since 9 and now 33. I remember another kid swung a swing onto my temporal part of the head and maybe that's what caused it.
Thank you so much for making these videos- you guys are the best medical channel! You make everything so engaging and easy to understand. Always super happy when I see that you're covering a topic that I am studying!
Hard to watch, but thankful for the lesson. My mom was epileptic so I've seen my fair share. We never knew about the ketogenic diet option, or CBD. I'm happy to see this medical progression.
As someone who has epilepsy having an aura is hands down one of the most scary things ever, just getting the deja vu feeling and knowing what is about to coming is just terrifying. Anyone with epilepsy know what I’m talking about
It's an experience right out of the Twilight Zone. Thankfully, it hardly ever happens to me any more. It isn't normal deja vu, either; it's distorted.
I know what you mean. I get migraines and seizures. When I get the aura in my eyes I know I've going to have a migraine and it scares me. There's nothing you can do. A blinding headache. Light hurts my eyes. Sound is excruciating (telephone ringing is the worst). Nauseous. But then what it's over, I feel like a new man. Seizures are a different story. It is external sights that provoke my seizures. Disco balls, houndstooth patterns, moire, watered silk and most especially, Sam's Club tissue boxes. After I've had a seizure I am exhausted.
Well, really I've had my seizures over 20 years and they're starting to calm down and easier to control, so it's easier to stop them whenever I feel the aura than it was before. It used to be scary though.
As an epileptic myself,I have learned a lot from this compared to what I was told by my doctors since I was diagnosed at 7
I was diagnosed with epilepsy, more specifically Juvenile Myoclonic Epilepsy at the age of 13. I’m now 32, have had a VNS implanted and have tried many different meds. Thank you so much for this; through telling my story throughout the years I’ve realized that many people are not aware of what to do for seizures prevention or how to support someone who has epilepsy.
I was diagnosed with epilepsy seizures when I was four, It was really really hard for my parents. I just wanted to say thank you for explaining this topic because some people don’t understand how this works and the people having The seizures Can’t help This. Thank you so much.
Love this video! It really helped me get a better understanding of what being a epileptic is. I started having seizures randomly around the age of 19 and no one could ever give me a explanation. Especially because they only ever happen in my sleep. Strangest thing of it all is that probably around 2 weeks prior I had this obsession with learning on to help in a situation when someone is having a seizure. Little did I know it would be me 🤷🏻♀️
I think sometimes we get this kind of "aura" (pun intended) when something isn't quite right with our bodies. I feel like I jinxed myself by saying to my (at the time) partner that I felt so lucky that I'd never had cystitis - I woke up the next morning at 5am with the worst symptoms from what turned out to be my first attack of interstitial cystitis (which is kind of like having the worst UTI but constantly, and it's not caused by an infection so you can't fix it with antibiotics). 🤦♀
I had auras from age 16 to the age 22 when I had a grand mail seizure in my sleep also. I’m now 62 and have been on a low dose of carbamazepine since that one and only seizure. I tried weaning off of it for 6 months about 10 years ago but my auras returned one day so I went back on the medicine. Still seizure free since the first one. Good informed video
I was recently diagnosed with temporal lobe epilepsy and seizures caused by a TBI. My aura always occurs up to 3 days to right before a seizure. I see bursts of light that fade quickly almost like a camera flashing and experience extreme fear minutes to seconds before each seizure. My service dog knows when I’m about to seize and gives me time to get closer to the ground and tell whoever is with me what’s about to occur.
I haven’t heard an explanation so concise and useful as this. Thank you for helping us (those with and without seizures) understand the physiology of seizures.
I have epilepsy and really didn’t know half of this so thank you! Will be so much easier to explain to people now!