Epilepsy Surgery: Is it right for you?
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- Опубліковано 14 лип 2024
- Have you considered undergoing epilepsy surgery? For some brain surgery can result in a significant reduction or even a complete elimination of seizures. Learn about what you should consider before you decide.
The decision to explore brain surgery for epilepsy is both medical and personal. Discover how Howard Zwirn made this difficult decision and gained 15 years of freedom from seizures. Howard speaks about navigating the medical process, including his initial temporal lobe epilepsy diagnosis, the testing he underwent, and his recovery from the surgery. He also discusses how he and his family weighed the potential benefits and risks to his health, memory, and cognition.
Howard Zwirn is the Board Chairman for the Epilepsy Foundation of Greater Chicago and a Senior Project Manager at TRC Corporation.
For more information about epilepsy and what CURE Epilepsy is doing to find a cure, please visit: www.cureepilepsy.org/ - Наука та технологія
Wow, I can’t believe I’m seeing this video 4 days before going into my 3-7 day EEG as I try to get surgery. I am so thankful for you guys making this video.
How are you doing? I had the long-term monitoring twice and had temporal lobe resection 3 months ago. I was diagnosed with epilepsy 10 years ago and failed 12 different medications. I wish I had the surgery 5 years ago. The brain fog is lifting, and I retain full neurologic function. Alittle short-term memory issues, but nothing I can't deal with. My advice is, if you don't mind me giving it. Find a support group. Talk to people who have been where you are now. I waited way too long to do that. It has made a huge difference in my life. Be well.
Best wishes and best of health to you Howard 🙏🙏❤️❤️. Thanks Kelley for giving us the opportunity to highlight epileptic scenarios very much appreciated cheers Declan O Shaughnessy ❤❤
I had a partial temperalectomy for my epilepsy on 1-28-08 and my last seizure was 11-15-08
How was the recovery? I'm going through the pre-op testing for this surgery and am concerned about major pain afterwards?.
Ambrielle-Lyn McQuaker hello . How many test are for epilepsy surgery . Do you know how can it take until epilepsy surgery it will be accepted
@@malvinabala685 I have temporal lobe epilepsy due to sclerosis. I have to undergo inpatient EEG (5 days), cognitive-thinking testing, movement testing, psychoeducational testing, as well as basic surgical tests like blood work and ECG. The waitlist for the testing is 3-4 months and if I'm accepted for surgery I may wait 4 months to a year afterwards (total waiting 8 - 16 months.)
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WhatsApp num +2348058485598. God bless you sir............
@AmberMcQuaker Amber, how are you doing? Did the surgery go well. I just had temporal lobe resection 9 weeks ago. Too early for me to know if it was successful. No pain with mine. I hope your fear of pain wasn't realized.
Seeing this video after its been 4 years, I would love to see it considering the advancements in surgery. (using laser ablation, MRI....)
Congrats. I am Ian Anttila, the author of Work Hard, and Don’t Give Up as I am a historic case, averaging 20-30 tonic clonics and 200-300 complex partials a day. My first neurosurgery by the historic dr Frederick Andermann (he deemed me as the worst case in his career) brought it down to that much a month! My 2nd neuro in ‘89 was no assistance the historic dr Andre Olivier new where the problem was but the lesions were just too risky. I was then put experimentally on clobazam (frisium) which assisted me dramatically. I still average 5-8 tonic clonics a month.
I've had 10 opinions. Finally having surgery here pretty soon!
Best wishes and best of health to all in this group I love the truth and loving comments you put together on this story myself I am from Galway Ireland have suffered with epilepsy for 25 years went through all meds had brain surgery right temporal lobe surgery in Beaumont hospital Dublin January 2011 I remember that exam before surgery it is call the wada test which freezes the brain performance down to 50% to test which side is memory and body movement great to hear the good news you have and take care cheers Declan 👍👍👍🙏🙏
Thank you for giving hope
❤so happy for you I had operations but I’m still getting them
Thank you so much for this video. Kelly Cervantes you ask all questions that weigh on my decision for my daughter. This has helped me.
So happy for you 🙏
Awesome! Happy for you 😊
Partner is going to have surgery later this year for his epilepsy. I think it's only started to dawn on him that this is happening. I wish I could do more.
Hi Madeline, you are a strong person for helping your partner in taking on this surgery! I wish him the safest and most successful surgery as possible!
Had I not had my partner in life it may have taken many more years of suffering and injuring my brain before deciding to undergo surgery. I couldn't be more grateful I made that decision.
I have grandmal seizures and small episodes like him last year I started getting all the testing to see if I cualified for surgery and I did and now in December I'll be going in for surgery
Hello, my name is Maha my son is suffering from epilepsy..
Could you please tell me i how was your experience with surgery.. I would appreciate your reply..
I'm an army veteran and only did one contract but as I came back home I was working with a garbage company learning our routes. My boss was going to pay for my CDL and then I had my first grand mal. Had lost a lot because of it 3 years ago. This has been the scariest surgery I have ever had been recommended. I just feel like I need more information.
I have had epilepsy since about age 14. I am now 63. I've been on many medicines, and the one that really seemed to work for a long time was Trileptal, then it stopped working. I'm on 5 meds right now and I hate the side effects. I drive (off and on because my license gets suspended at times and I have to wait a while before I get it back)and have even driven across the country. So, I have had accidents. In 2006 I had surgery to remove a ganglioglioma located in my right temporal lobe. I remember waking up and seeing everything in double vision, which lasted for a few days. I stayed in the hospital for a few days then was able to go home, but spent maybe a week or more in the house and took my share of strong pain meds. I have never had a problem with my speech, memory, thinking, etc.I ended up as good as new. Just wish my surgery had worked. So I'm a candidate again. I'm all for it if it will stop or improve my seizures.
Thank you for sharing. It's nice to get the good with the bad. I hope that your future surgeries are a success.
Neurologist, that study’s Epileptic seizure and TBI’s
Do they do these brain surgeries to cure epilepsy here in South Africa? I started getting grand mal seizures (frontal lobe epilepsy) 25 years ago. I desperately need to get off the medication I am on because of the side effects that is essentially making me sick all the time to the point that I end up in hospital too often to lead a normal life. I really would benefit from surgery tremendously!
Hello, could you please tell me in which hospital the surgery is made.. I would appreciate your answer..
I have had seizures from shaking baby syndrome and died from being allergic to Deperkote
what is the success rate. if i follow through with this process, and it goes wrong. will i become a vegetable?
I've had epilepsy for 46 years now. Just starting the process to be considered for surgery; last time was 20 years ago, and I was not eligible. Hopefully this time, my seizures won't be firing from every lobe.
*Not Jane -- Susan Reminger
Focal seizure they call Petite mauls Grand Mauls break throughs
I had statues epilepsy
A lot of medication of every compound up my nose I was having 15 minutes seizure and all kinds of meds that made me feel like I was a Zombie in my own body and mind I had a VNS Implant in in 2006 to today been seizure free now is 9 year’s seizures free
Focal surgery Is it safety...,???
Can you drive now by laws please?
If epilepsy is managed by meds or surgery is it possible to drive
The requirements for being able to drive with epilepsy depend on what state you live in. Check with your doctor to discuss local requirements to see what would be required to make driving possible for you.
@@CUREepilepsy if I am not able to drive is there any other options that don't require a license other than riding a bike as soon as I'm able I'm moving to another state and I will not have anyone to help me move I want to avoid moving company's
Is treatment in india
Yes it is.
Plz can You suggest the right hospital in India , for this kind of surgery?
I’m interested but only if it’s worth it
Its worth it 👍 I still have a career as a musician, I cant drive atm thanks to a covid vaccine but I was seizure free 5 years post surgery til the day I took that needle. My doctors are sure it'd have continued to work if it werent for that
@@theepimountainbiker6551was it just the one seizure or have they started back up again?
Kenny you hi
I hope holographic med beds will be here soon.