This is so spot on and I needed to see this. So encouraging to know there are others dealing with the EXACT same thing. So tired of the struggle but we gotta kick it in it’s butt. Thanks man!
No doubt about it. You aren’t the only one that’s for sure. Share it with whatever T1D groups you are in and don’t forget to subscribe! I come out with a new one each week. You got this!
@@BetweenTwoLines hey man. I appreciate this video. I've been a type 1 since 2012. I was 25 when I was diagnosed, my blood sugar was 1400 when I was diagnosed. I had to be put in the ICU. It did permanent damage to my body and mind. I've tried getting disability because I'm broke, I don't have a good support system, I'm practically homeless, I stay in a rural area with very few opportunities, I really don't know how to get out of this hole, I struggle with mental health, depression, anxiety, and other shit I don't want to get into. I had blackout spells several months back and ended up in the ER again. I used to be extremely healthy and to go from everything being really easy to everything being complicated by T1D just sucks, and it is like no one understands.
My fav line: “it’s a full time job being a diabetic”. How true is that! Most people don’t realise the drag it has on diabetics. And you can’t forget about it for two hours, otherwise you’ll end up too high or too low...
Thank you. I'm a mother of a type 1, 21 year old son who is very private and doesn't complain ever (diagnosed at 9). This year he said he just wants to live his life and not deal with diabetes. I'm showing your video in hope that he will engage/follow someone that he can relate to. Thanks again.
Yolanda, I know EXACTLY how he feels. Too well. Encourage him to subscribe to the channel. He may choose never to watch another video, but each week the little notification will let him know I have made something and one week may catch him in the right mood. If he is anything like me, there is no way to force him to watch it, but if subscribed, the channel can be a weekly reminder to press on. Good luck!
21 year old diabetic here. Diagnosed at 10. Very similar story here. I do everything i can for my diabetes so most of the time im private about it. i dont want to talk about it because I think about it 24/7. Its like being reminded of a bad day at work. Best of luck to you.
Hello I’m a stepmom full time to a type 1 diabetes he has 8 nearly 9 and he is the same very very private and this year I’d say almost like he keeps it a secret. He hides at school and will only let his teacher check him and give him insulin in a private room and football and huge thing as it’s like the only time he can be free from diabetes like his escape almost… Me and his dad want to show him you are who you are and if people don’t expect that then they are not worth being around they are not friends which I’m sure is definitely not the case I think if anything they wouldn’t any different. We won’t him to as healthy as he can and have the best life!!!!!!!
@@leadercollectif7232 get him some yohimbe, you can even check articles in pubmed about yohimbe, sexuality and diabetes. That plant is strong as fuck and works perfectly (just start low till u find the sweet spot).
I went completely blind about 6 years ago. I have had type 1 diabetes since I was 11 months old. I can’t tell you how many times I’ve wanted to give up. I didn’t have insurance in my twenties and had to choose pay car insurance, rent, or buy a vial of insulin and test strips. It eventually caught up with me. I have a loving wife and kids that keep me going. My three year old was just diagnosed with type 1 last year on April. Thanks for the video. You’re 100% right. We need community to make it through.
Thank you for your comment Ismael. You are in a unique position to influence the youth to manage their diabetes and I know others have read your comment and been motivated to do better. Thank you and good luck!
Thank you for this. I’ve been Type 1 for 3 years now, and at 36 years old I am feeling this burnout. I’m deeply grateful that I was able to live 33 years without the disease, though, and I give enormous props to everybody who had to grow up with the disease... You all are so incredibly strong and courageous, I can’t imagine how terribly difficult this disease would be to live with as a child and adolescent. I’m just grateful for this community who give so much support to one another
You don't know still what diabetes burnout is, I'm 33, I lived since 3 yo with this SHIT that got me enslaved to the system and big pharma.. After 30 years of disease, when you wake up without barely any sleep done because you didn't manage the carbs and the extra dose didn't work... when you are trying to do a master thesis but you have adhd (due to diabetes) and you run low without any reason twice a day so you cannot focus at all... Then that's burnout. It doesn't gets better, it gets worse and worse.
I am happy you are talking about this. I have had people to tell me to stop complaining about my low blood sugar, when I was going low to let them know. I am tired of people talking sh*t and then complain how they aren't feeling well when they have a headache. Do what we do for a week and see how your mental health gets affected. Such hypocrites, obviously not everyone
I hear this... I dont have type 1 but my toddler daughter does and I can't tell you the amount of times places make me feel like a Karen because I need to know the nutritional info before I can feed my child.
@@lannar2004 Amen .. peope who don't deal with it don't know the half of it... they think oh it's just a sugar thing. This is like a shackle to the ankle to live with and I'm only watching my little one go through it and learning and doing all I can to make it easier for her. She is amazing and you are amazing! Don't you forget it 😉 we can be a couple of cool Karen's together 🤣😎😎
I’ve been type 1 diabetes for over 13 years. I hid my diabetes for the longest from people who didn’t know about it because I felt ashamed of it, and didn’t want to feel different from my peers or to be made feel different. Last year was my first ever going public about my diabetes. I’m now proud of it, and embracing it each and every day...which is why I’m currently writing a book about my journey of growing up with diabetes. Thank you for this.
Levi, you nailed it. I'm a T1D for 45+ years. The stress alone of managing diabetes is unbelievable. And like you said, it effects every part of your life, 24 hours a day, 7 days a week, never a break. How could you not get frustrated. I'm a veteran with diabetes and I still become frustrated with it, it's where I am now. My experience tells me it will pass to a point but never go completely away. I absolutely hate being tethered to a pump ALL THE TIME. It beeps and vibrates and sending all kind of messages to my phone so the phone is also beeping. Drives me crazy and I hate it...but it saves my life by waking me on those occasions I go low at night, it saves my life by telling me I'm going low before it's a crisis. Literally a little box that keeps me alive, and I hate it. Doesn't seem right to hate what keeps ya going, living as much of a normal life as you can. Thanks Levi, keep up the good work and keep taking care of yourself.
You can train your body to wake you up when low, it's in fact possible, I train my body (and probably God helps me too) to NOT SLEEP when running low, and in fact I don't sleep at all, if I feel super tired and start "sleeping" I wake up with the trembling and sweating, but conscious enough to get some sugar. I won't put that piece of electronics into my body, ever. Honestly, I know that is deeply irrational but I prefer to die without feeling like a cyborg.
I've been Type 1 for 51 years. People ask me what the worst thing about it is. My answer is how absolutely relentlessly invasive into my life it is. Not the complications I have developed, not that I can't eat candy orange slices (funny what one misses), not how it tries to kill me in my sleep. None of those are the worst It is just that there isn't 30 min in my waking life that I have not had some thought associated with it. Feel free to rage on brother. Your feelings are legit and you will have more days that you feel like this. Just realize when you have them that they are just temporary and will pass like all emotions do. :-)
NO ONE IN THE UNITED STATES OF AMERICA WITH T1D SOULD HAVE TO WORRY ABOUT PAYING FOR ANY LIFESAVING DIABETIC NEEDS! I am the grandmother of a precious child with diabetes. As a tax paying American, we as a country can do SO MUCH BETTER a helping our citizens who do to no fault of their own need LESS STRESS in keeping their T1 control going. It is TAX MONEY WELL SPENT!💕
Sometimes I think I’m going crazy, and when I complain to some of my family members, they’re like quit whining because they have type 2 and think it’s the same...thanks man for sharing it’s good to actually hear ppl express the same frustrations that I’m experiencing and know that: 1) I’m not being over dramatic. 2) I’m not alone.
My doc says I’m not really a type 1 OR type 2 because I’m only insulin dependent because I had part of my pancreas removed. THAT made me diabetic. AND I also MUST take CREON- 2 capsules (to help digestion ) each each meal & snacks! It really sucks. Have to take it with you everywhere! I lost 60 pounds, not by choice! Still trying to figure it out! Get worried when the alarm goes off! I use DEXCOM G7 on my arm with an app on my phone. It’s rough but what’s the choice?
28 years of frustration and burnouts. I’ve become the strongest person I know cause if what this disease has taught me. Also recently got into connecting with fellow warriors! Diabetes sets my vulnerability on fire and finding a community to share the struggles has been key for me! Thank you for your dedication and this show! Stay fighting 💙
My son has had diabetes since he was 4,..... he is 9 now.......it's a full time job,......I think people don't understand it's not going away.....ever..........I feel sorry for you and all diabetics.......it's hard.....thanks for the videos.
Michael you are welcome to feel sorry for other but please don’t feel sorry for me. No worries! Worse things could happen. Besides. Learning to manage diabetes requires developing a level of discipline that can propel your son forward in other areas of life. He will go on to do great things.
It’s so true - the closest people around you don’t even know what’s going on through your head , all of the time! ( numbers, numbers high & low ) I needed this video❤️ ty so much for sharing.
Once every 3 or 4 years (I've was diagnosed during my 2nd year of marriage - 32 years ago) I have a total meltdown. I just cry and let it all out. It usually lasts about an hour and I verbalize out loud everything I hate about being diabetic. And my husband just stays right next to me and listens. When I am finished and exhausted he just hugs me and then I take a few hour nap. Then I get up and I'm good for another 3 -4 years. I still get frustrated and mad in between these - but these are the giant full-on uncontrollable meltdowns. They are truly cathartic and have helped me 'deal' with all of the emotions that go hand in hand with this disease.
I hate it so much, I cant just stop thinking about it. No matter want i due (eat, sleep, walk, hangout with people) it's all about how will my diabete. One thing I dislike so much is everyone telling me.... I'm not doing it right, because by diabetes should be on my mind.... how due they know... having to take care of my kids and hope my BG doesn't go high or low at the time they need me the most. But this is the lift God give me. Most days are better then others. Yes, I still have the high and lows but we all due. Its been 21 years this March. It was hard but it is getting better. Yes I have gone though diabete burn out but I came back. That was over 12 years ago. I am an advanced for T1Ds. I could be one with out the bad and good.
I can certainly relate. T1D is a full time job. I think about it at LEAST once per minute. As I am sure you have grown to learn is that we adjust. It becomes the norm and things move on. It's work, but it is certainly do-able! Good luck!
I am not a diabetic but I am managing several autoimmune diseases and other conditions that are not evident to others. Your struggles speak to me and encourage me to manage these conditions so they don’t manage me! Great video! Keep up the good work. You are an encouragement to so many.
@@BetweenTwoLines god yes! my dad once showed off my dexcom g6 inserter to his girlfriend and helped me insert it and threw the inserter in the trash and she literally went "wait that isn't reuseable?" like its such a waste! my damn thing doesn't even work half the time. its mostly disconnected for some reason or another
@@saturncosmic4449 I agree that they could come up with a reusable inserter. I've been on the G6 for almost a year and learned early on not to breakoff the locking tab until it is stuck to your skin. Only get one chance at it.
You rock bud! Just say it, we don’t need it polished. I woke up 6 days after my 18th birthday after being in a coma for 3 days. I would have been dead if it wasn’t for a doctor who happened to to be walking though the ER on the way back to his office. He saw something and took action to save my life. 3 years later after going the denial stage I ended up in the hospital again not expected to live and he saved the second tine. With some good advice from him and no insurance I was able to make it through my 20s. Six kids later and a wife who really gets my struggles I am strong and deal with this every day. I was told when I came out of a coma my dream of being a paramedic and sheriffs deputy would never be possible. I had to hide my diabetes from everyone but was able to be a paramedic and sheriffs deputy for many years. Now with people like you we don’t have to hide it and now it’s accepted a few short years later to be a cop or anything you want to be. Brother thank you for having the courage to make these videos because many kids will see that this disease doesn’t have to stop them and best of all they will live many years being normal. Thank you and please keep it up. With much respect and tears in my eyes writing this thank you.
Kurt Duncan thanks a ton Kurt. That is a really cool story of how you came to where you are now. Definitely encouraging. I really appreciate the words. If interested in the channel, please subscribe and share with anyone you think may also like it!
I was diagnosed on July 31st 2018. I was in DKA and didn't know it. Previous to being diagnosed. I had to have neck surgery. So that meant pre surgery blood work. What pisses me off, is that not 1 but 2 DOCTORS dismissed my A1C of an 8!!! A month later I was admitted to the hospital for 5 days, 2 being in the ICU. My A1C was now a 12.9!!! I had no clue about T1D. Everyone in my family has T2D. I am the 1st person in my family to have T1D. It's been a wild ride. I hate being T1D. But the 1 thing it has taught me is, how freaking strong I am now! So thank you for making these videos! It helps to know we are all in this together! #T1DStrong
Hey man I hope you are still hanging in there. Having one of those days thats for sure. I hear you and feel every single word you said in this video. Much love and respect to you. Keep fighting brother
Totally feel you on this. I’m two years in so I’m lucky I had 28 years of life without diabetes. Is it a drain? Hell yeah, even when you’re on your game, you’re tired. To all those people with Type 1, I hear you, I get how fucking hard this can be and I’m here giving you a virtual hug. You all deserve it. You rock.
I call this disease fatigue. I was diagnosed at 41 and have been dealing with this life for 17 years. First two years I was a poster child for compliance. After that, I got mad. Then I got tired of dealing with it. Now I’m the poster child for inconsistency. It’s absolutely exhausting. Thank you for this channel. It helps to have community because people really don’t understand it at all.
I'm literally in tears. I'm so sick of all the things that come with this. Dr's blaming me for my rollercoaster sugars, friends or family talking to me about me cures and how I can do better and should I be eating anything ever. I'm tired, I'm so so tired - emotionally, physically, I just don't want to do it anymore. My pump constantly wakes me up, I am constantly obsessing over numbers.. OMG my brother (someone that should know better) asked me why I wasn't more prepared for a low sugar like I'm supposed to bring a suitcase with me always. I'm at the end of my patience. I've had it almost my whole life and I'm done.
I dont use facebook, but this comment list is great. It is so nice to see so many people going through the same thoughts and feelings that I get regularly. It is mighty frustrating at times, but the pump and the CGM has smoothed out a lot of the bumps in my life. Keep up the good fight my friends, it is worth it. 45yo T1
I have type 2 and I can really relate to your videos. Please keep making them, I struggle and know we all do. Its everyday and it wears me out. I hate it, it makes me mad it tares me down but i see it stealing my life so i fight back. God bless you.
Diabetes burnout is absolutely something I feel every now and then. Whether it’s alarm fatigue from a pump/CGM, sugars not going down after correcting over time until it’s inconvenient and finally plummets, food you eat normally not affecting your sugar the way it normally does so your sugar goes too low or too high, etc. And these things can drive me crazy some days and no one around me understands how frustrating it can be so I don’t bring it up and it just stews sometimes. Trying to improve and take control of your diabetes is definitely the first step to help but I think this video reminded me of an aspect I never use and that’s the diabetic community. Thank you so much for making this video and addressing this universal topic for us T1D’s. 😅
Thank you for bringing attention to an issue that can affect all diabetics at any time. Mental health is such an important part of managing type 1 diabetes 😊
Laura Craven thank you Laura. Agreed. Working on a video on that very topic as we speak. Hopefully it is helpful. Good luck with your second year as a T1D!
Recently diagnosed t1d at age 33. Thank you so much for this. Spot on with every point! Poltergeist in the kitchen! The stupid amount of supplies. The air plane. Insurance. Made me laugh and cry all in one video. Subscribed!
Thanks for watching Luke! I made these thinking that I wanted to create something that would have helped me when I was diagnosed. I hope they do just that for you! And for the record.. it levels out and life returns to a version of norm. It stinks at first but it isn’t a death sentence. You got this brother!
I just got diagnosed with type 1 diabetes at 29. Was rushed to the hospital for hyperglycemia. Somehow I’m happy because I feel so much better now than I did before. I’m sure dealing with it year in and year out will be annoying, yet it’s nothing compared to how I felt before. Keep on shooting.
WOW!!! If anyone ever saw me posed and ready to bash my insulin pump across the room into the other wall it must’ve been you. Whew. Don’t know how my husband did it with just a calm voice saying “ don’t do it” but it worked, but not w/o tears. And it’s only cause ya just get tired of the one more high that came outta nowhere. Dang! Or ya want food in pill form so you don’t have to count any more carbs. It’s just a flyin number. No fun eating anymore. EXEPT, I feel better today, thank you my friend. You are awesome. God bless.
I'm type 1. I regularly get fed up. Upset. Even with a good diet and exercise.. its overwhelming at times. Your down to earth straight talking message hit home. Keep it up!
Year 8 and finishing up a college semester. I am so burnt out with my school work and especially diabetes. I cant bother tracking and keeping on top of it again. But when I dont I feel like crap and I cant study its so difficult and i am so tired of it. It’s so nice to be reminded im not alone
I burst out crying to my partner a few days ago. I told him i didnt want to live if im diabetic because its too hard. He responded with 'you just have to try'. He annoyed me because i do try but sometimes not hard enough. I begged him to take over for a day and he refused. Im just at a loss right now and i just want to be perfect abd feel better but it doesnt work like that. Thankyou for your video❤
Need a video of you phoning your boss, trying to explain that you can't come into work yet because you still have low bloods and you can't drive until it gets higher....that awkward conversation. Good work.
I have had Type 1 Diabetes for 7 years and I do not find it much annoying or frustrating. I do not mind having it. I give it all to God. When Type 1 Diabetes, is hard, I take it one thing at a time and give it to God.
I had diabetes since I was 3 and now I’m 14 and I always cry my self to sleep for being type 1 diabetic and all my siblings can eat anytime they want with out taking any needles and always getting annoying questions
You don’t have a diabetes problem, you have a mindset problem! You can do this! I promise you, diabetes doesn’t own you. Don’t let diabetes beat you. You can win. You GOT THIS! Life will get SO much better when you put diabetes in its place! Good luck!
You just made my day thank you so much I will do what you told me I will not let my diabetes own me thank you soo much you can’t believe how happy I’m reading this ❤️❤️❤️
thank you! my kid is gong through burnout (again). he's 17 and his recent endo appointment confirmed he was not blousing, again. Burnout is real and i wish more people understood
Lizz Bates no doubt about it. Have him watch the “if your blood sugar could talk” video. Sometimes a good laugh can help snap one out of burnout. Good luck!
JAJohnsIP thanks for taking the time to say that man. Chomps to have wasted the time but a relief that we finally are owning it. You got this man. Good luck. Subscribe - I’ll keep more coming to motivate.
Watching this video makes me so emotional, this is my experience exactly. I do everything I can but I’m exhausted, last year I was in a coma due to high blood sugar... thanks for sharing it feels good not to be alone having these challenges dealing with my diabetes
I hope things are going better for you. I am a T1D daughter. Reading this made me smile. You are doing the right thing by trying to understand. Keep fighting on!
Diabetes is so hard most of the time. But it is always worth it to take care of yourself! Community is so important. Thank you for being a voice! I use a Freestyle Libre to check my glucose and insulin pens. I was on a pump for 8 years and got tired of having something attached to me. About I year ago a switched back to pens. It’s been working well for me in this season of life. Keep fighting on!
Had diabetic burnout awhile ago which led to hypoglycemia and unfortunately, a family fuss. But I’m so glad to know that you empathize, Levi. Thank you so much
i got diagnosed with T1D at 16 years old.. Im 17 now but i still remember and miss the carefree lifestyle of a regular teen... The thing that makes me angry is the fact that people don’t even know what diabetes does to your mentality.. Can you please cover how T1D affects mental health?
I think the hardest part for me is when I feel so horribly sick and no one understands that diabetes is a physical illness that makes me exhausted, confused and emotional at the worst times. I've been diabetic for 20 years and am in university and explaining it to friends and teachers that don't ever understand that it's not a DIET it's an illness that affects all parts of my body. No I don't wanna go for a run when my sugars are high. No I'm not acting this way for attention when they are low. No, I LITERALLY can not drink real sugar soda! Just living in a anti diabetic world is so cruel sometimes
Hello my people, it’s been a rough12 months with a disease I have had most of my life. It’s always nice to talk with my buddy that’s T1 as while but going online and reminding myself I am not alone helps. My family is my rock but they don’t know yesterday was a BS rollercoaster high low and in a bad mood. Right know I don’t have the $ for night my insulin and it’s day 3 and I am feeling the stress. I will be fine and am already feeling a new wave of energy to win against dieassbeting thanks bro.
I am with you on this. I had My burnout between 2004 and 2009. When I was on my only and had to pick between insure or rent. It was not fun. My A1C rent to over 12.0 and I was in and out of the hosptil with Highs and lows. Now I am a mother of 3 boys and still have T1D. Its hard to believe that its on me all the time.
Diabetic T1 for 19 years and counting from sweden here. Love this video. I really needed to hear that other also feel like this. Its so hard to explain it to non diabetics.
This made my day spot on. Type 1 for 51 years so glad 😊 😃 it's the same for everyone people who don't have it wouldn't understand this was a brilliant video 👏 😀
Thank you so much. My little brother (40) has been diabetic for 8 years and you just said everything he says! T1-ers need people like you. Thank you. Theres only so much a big sister thats overly nurturing that doesnt have diabetes can do.
I came to youtube looking for videos of how to deal with a burn out and you video popped up, and as i was watching i started to tear up. Because finally someone understands what im going through and it felt to good to be understood. I have had T1D since i was 7 years old and it felt like it took over my whole childhood and my life. I am now a teenager and i feel worse because as i got older,people assumed that i have gotten used to it and in control of it. But the truth is that i can barley take control of it. And you video help me feel understood and i felt like i could relate to something. Thank you so much i really appreciate it💗
my son is 3 yrs old and just got diagnosed with type 1 4 months ago it has been a challenge and soon as i found your page i subscribed and learned so much it tough he has good days and bad but i cant give up i cant work i take care of him full time anxiety is soo bad but i just wana thankyou for your words
I love this I was diagnosed almost 1 year ago and I'm 14 and its tough dealing with this I thank God that I'm able to live with this crap for almost a year
For me i stop the visits to my doctor since the beginning of 2020 because of Corona and im really happy because he told me that I'm the worst diabetic he's ever seen in his live and that makes feel bad, that why i hate him so much . And add on that my family yelling at me all the time . In my community being a diabetic can be so hard because some of those people are stupid 🙄
Love the video. The way ive learned to cope with it (somewhat) is what my grandpa told me. "You either control it,or it controls you" and thats resonated with me through the years. Best wishes to other T1D
This video is excellent! It was as if I was doing the presentation. I was diagnosed as a Type 1 diabetic in 2002. It is a challenge everyday and it does affect every part of your life. Even when you’re doing everything you’re supposed to be doing it still finds a way to affect you in some way. The levels are like a roller coaster ride even when you constantly monitor yourself and do the right things. Plus, you worry about what the disease is doing to your internal organs and your external limbs. Again, thanks for making this video and making folks aware of Type 1 daily challenges.
I turned diabetes type at 17. You are exactly right. In the last 3 years there have been more answers that have come forward. Last year 2 different docs were talking about taking me off of insulin. I did not because a 3rd doc screwed up some things on me. Back to working on the base. Find out how you wound up with diabetes and go after it! I am. I have answers that nobody wants.
I know exactly how you feel mate :( Ive been diabetic type 1 for over 34years, and some days I just want to feel normal, not having to have to do blood tests, injections, trying to inject in different places and hoping that my level will go down. It drives me bloody mad. So believe me you are not the only one. Doctors just dont understand how it fees to have to do all these every single day. Its all very well for them to tell us what do do but as you says, its constantly doing the same thing every day, But most days I just think to myself "Its could be worse, as least no one can see that im diabetic" and IM NOT letting this to take over my life so I dont, but its hard :(
Wanted to say thanks, this video is not only inspirational to me as a 20 year old type 1 diabetic man, but very relatable and i feel like i have a load off after watching this, i had just recently had a dka episode so bad, the acidity shocked my heart into a heart attack and tore 3 holes in my heart.
BaronHentai Kun no problem. If they are helping, keep watching them! You need to make a turn around but it isn’t as daunting as you may think. You got this!
Thanks for the video, I can definitely relate to what you said. I’m now 6 months living with T1, diagnosed at age 38!! It’s been such a huge adjustment to life, counting carbs every time you eat has to be one of the most frustrating things ever! It’s good to know I’m not the only one who gets frustrated. Family and friends are a great support but sometimes it’s only another T1 who can truly understand 👍🏻
I certainly agree that only a T1D can TRULY understand. Fortunately, the close support and contributions of loved ones can be an often acceptable 2nd place. We are all susceptible to getting frustrated but it’s important to vent, refocus, and keep going. You got this!
I'm a T1D who refuses to get off the needles. N, and R or Humalog/Novolog, and I'm good, great with the quicker acting insulins. I can't relate to the CGM stuff. Everything else, spot on.
Omg! I'm not the only one. For a long time, I couldn't afford the pump. Now that my insurance might cover it, I'd rather stick with my routine. Been a T1 for 27 years.
@@imywt Don't go on FB much anymore because people I know kept posting negative things and it started getting irritating. Maybe I'll check the group out since it sounds more positive. Thanks.
@@athenapoe3377 Yeah, I take FB breaks for the same reason. Everyone's got an opinion on politics, gender, race, and much like sphincters, they all stink. I like to try to keep my posts more about funny memes, and animal videos. Make 'em smile, they come back for more.
40 years a T1D. I tried the pump recently. After 10 months I have given it up. The site failure and you at bG 310 in 2 hours. Fail. The pump failed for me.
Just noticed this video was posted 2 years ago, but man I'm blessed I came across it. I could relate to every point you brought up and it honestly made me cry. I think im at a point where I'm feeling depressed because of T1 and I don't have anyone that I feel comfortable talking about it with. So to see a video that's so damn relatable is honestly the therapy I feel I'm searching for. Thank you for this.
thank you for this, im in a downward spiral, lost my job and being T1D for 22 yrs isnt helping, i may resort back to finger pricks as dexcom would be financially unrealistic i needed this motivation,much love from downtown Toronto canada
I got diagnosed when I was 10 and I’ll be 34 this June. There’s a lot I could say, but one of my biggest frustrations is that some people think I’m self sabotaging, when I have a low blood sugar, and it may not be an extreme low. However, if I act a little loopy or out of character because of my low, they automatically think I did something wrong. Like not calculating the correct amount of insulin or not eating enough 🤦🏽♂️. I’ve tried explaining that lows and highs are going to happen and that I won’t always be able to control what my body does. It gets so frustrating and tedious.
Diabetics type 1 (like myself) should aim for it to become a disability like many others. We are much more affected than many other people who has special benefits for their condition but we have been always told that we could be "normal" nust taking care of ourselves which is completely and utterly false. We are not normal nor we could be till the scientists invent some cure, we are affected by our condition most of the time. It's easy to see it, when I have 2-3 days of normal numbers I feel plethoric, I feel superhuman so to speak and in reality is just like normal people feel everytime, we feel like shit when we are going up and down, it's unhealthy and FEELS very unhealthy, unbalanced and disrupting. I grew so tired of those idiots trying to "normalize" diabetes as if it wasn't a big deal and like if it was totally manageable just with "some effort", it's much more difficult and disrupting than that...
I've just been told I have too much "drama" in my life by my SO. I had a low blood sugar episode, which I successfully dealt with, then had to spend HOURS on the phone with the insurance company AND my doctor. At this point, I think it's best to just be a hermit.
Hi Levi,I've been living with type 1 diabetes for 48 years and I have been dealing with it the old fashion way all this time, most of the time I have been just winging it and now I am paying for it mentally and physically although people say( wow you look good) or my dr says( your A1C is great)but I feel like crap,there are some days I wish it would just end, but today I'm finally going to my dr and get trained on how to use my new tandem pump and Dexcom G6 and hopefully I can start to feel better ,thank you for your honest video Levi, you take care.
I am also part of the Poltergeist Kitchen Club. Loved the Kramer reference. It's so accurate. Had a night 2 nights ago where my blood sugar seemingly went to 350 for no reason and spent all night trying to get it back down. It's crazy how diabetes can take over every aspect of your life when you arent controlling it. Thanks for another awesome video Levi! Keep up the great work!
Thanks a lot. You aren't kidding. I made that comment in the video and then literally had it happen the same night after overshooting insulin for a meal. Thanks for the comment!
Thank you. I understand it so much. The part that makes me mad sometimes is other people, who don't have diabetes and they always ask me about it. Or remember stories about their diabetic relatives who suffered from it. This information is overloading me🤦♀️
I am so grateful to have come across your video at just this moment in my 21+yrs with T1D. Over the past several weeks I have been experiencing a new issue with T1D, my overnight blood sugars have increased dramatically and no amount of correction bolus has been successful in bringing my BGs back into range. It's been extremely daunting on me and my family. I thought it was the Dawn Phenomenon, but turns out it may be the Somogyi effect. I had not heard of Somogyi until I researched why my BGs were jumping and staying high for hours while sleeping. Tonight, I was really feeling very alone and ready to give up. Then, I watch your video and start laughing because of how much I related to all that you said. I am currently not entwined with a T1D community and now realize that I need to be so that I can see that I'm not alone and have some great laughs over how ridiculous this disease really is at times. Thanks for making this video!
Thank you for you video, my son is 14 and is type 1 and watching the videos helps him see he's not alone with what he goes through. Im there for him and help him anyway I can but I don't go through it like he does...you all are so strong!!
Thank you Andrea, I am sure at 14 T1D feels WAY bigger than it is. He is definitely not alone and each year he will learn to manage it even better. He can do great, be great, and feel great. T1D is not a death sentence. Tell him I said good luck and please share with whatever T1D groups you are a part of!
@@BetweenTwoLines thank you so much, he just got his first job and that's a new experience being type one but he's a brave strong kid and doesn't let it hold him back from anything I could not be more proud of him...I've been sharing your videos on FB I think there great!! My son really liked the if blood sugar could talk 😁
I love u man! Thanks for this video! I was ready to give up after 20 years, stopped taking my insulin for 8 hrs and ended up at the ER throwing my guts out!
Thank you so much for this channel! My son is a 16 yr old T1D. He was diagnosed at 5. His a1c is 12.6 which is an improvement from the 14 it's been for a few YRS! He's burnt out and mad at this stupid disease! Your videos are so helpful and encouraging! Thank you again! So happy we found you!
No problem Amanda, one thing that I found helpful was a sport or hobby that T1D interferes with. Then there is some additional motivation to manage blood sugar better so that he can get the most out of the sport or hobby. I am no expert, just a weird thing that helped me do better. Tell him I said good luck and keep going!
Thanks for your video' man. I just discovered you today from if youf BS had a voice. So true. T1 for 15 years now. IT SUCKS. A!C is just under 7.8 now. It really changed once I just stopped eating heavy carbs and thought oh, I'll just take insulin for that. anywho, thanks for the videos man. I bet could talk to you for hours.
J thanks a lot. I am still working on the ‘lower carb’ part of it myself. Thanks for the motivation - much needed. Please subscribe and share it with someone that may need it!
Wow, thank you for this. I just stumbled across your channel and have watched a couple of your funny videos laughing going god yes! But this one has me in tears. I'm a single mum of an amazing type 2 warrior. She has been insulin resistant for 3 years, she was blamed, told she was bad, we wernt believed, i jad to take over everything jist so they wpuld take us seriously, a cycle of months of highs and ketones and tests every 2 hours around the clock, being admitted because of ketones to a sudden drop, stubborn lows lasting 4 hours, seizures, ambulances, hospital and then the high cycle and low and on and on and on. 3 years of no sleep, 3 years of barely any school, we do have a cgm which is so helpful. But my god we are in huge burnout!!! We are trying to win, we are constantly trying to be one step ahead, trying aggressive approaches and it just gives us the finger. Have to confess this made me cry (something I try not to do very often). Thank you. When your stuck in a box on a repeating cycle of hell it's so isolating and no one gets it if we do try and talk to someone about it. We are tired and depressed but what can we do other than keep fighting and keep testing 24 hours a day.
I don’t know if you still use this channel but I was diagnosed with T1D a couple years ago and watching this was so refreshing to see someone just speak about how it effects them. Recently it’s got me quite down effected my career, I workout quite alot I’ve just not had the motivation to go because I think what’s the point. I hope u keep this channel going because it was nice to come across something on UA-cam like this there doesn’t seem to be many others like it so keep up the good work
I was diagnosed 7 days after this video was posted, and didn't find this channel until, well not until just now. Good to know there are lots of others out there able to make good out of a crappy situation.
Thank you I was recently diagnosed with type 1 diabetes three months ago . It always feels like a fight I couldn’t win for long . As a result I kept getting frustrated and wanted to throw in the towel . It’s good to know that there are people out there that know your frustrations
I like your videos so much. It is hard to understand for someone that is not familiar. I have a 5 year old boy that is T1D… 😕 I am sure you probably know, maybe even tried, but if not: We do closed loop since a year and it changed our life. His HbA1C was 5.6% at the last check and his daily life improved so much. It was a game changer for us. Thanx for your great videos! 🙏🏼
![Introduction to Control IQ - Tandem T-slim [Dexcom]](http://i.ytimg.com/vi/b3ik5-VYQ0Y/mqdefault.jpg)
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This is so spot on and I needed to see this. So encouraging to know there are others dealing with the EXACT same thing. So tired of the struggle but we gotta kick it in it’s butt. Thanks man!
No doubt about it. You aren’t the only one that’s for sure. Share it with whatever T1D groups you are in and don’t forget to subscribe! I come out with a new one each week. You got this!
@@BetweenTwoLines hey man. I appreciate this video. I've been a type 1 since 2012. I was 25 when I was diagnosed, my blood sugar was 1400 when I was diagnosed. I had to be put in the ICU. It did permanent damage to my body and mind. I've tried getting disability because I'm broke, I don't have a good support system, I'm practically homeless, I stay in a rural area with very few opportunities, I really don't know how to get out of this hole, I struggle with mental health, depression, anxiety, and other shit I don't want to get into. I had blackout spells several months back and ended up in the ER again. I used to be extremely healthy and to go from everything being really easy to everything being complicated by T1D just sucks, and it is like no one understands.
My fav line: “it’s a full time job being a diabetic”. How true is that! Most people don’t realise the drag it has on diabetics. And you can’t forget about it for two hours, otherwise you’ll end up too high or too low...
Thank you. I'm a mother of a type 1, 21 year old son who is very private and doesn't complain ever (diagnosed at 9). This year he said he just wants to live his life and not deal with diabetes. I'm showing your video in hope that he will engage/follow someone that he can relate to. Thanks again.
Yolanda, I know EXACTLY how he feels. Too well. Encourage him to subscribe to the channel. He may choose never to watch another video, but each week the little notification will let him know I have made something and one week may catch him in the right mood. If he is anything like me, there is no way to force him to watch it, but if subscribed, the channel can be a weekly reminder to press on. Good luck!
21 year old diabetic here. Diagnosed at 10. Very similar story here. I do everything i can for my diabetes so most of the time im private about it. i dont want to talk about it because I think about it 24/7. Its like being reminded of a bad day at work. Best of luck to you.
Hello I’m a stepmom full time to a type 1 diabetes he has 8 nearly 9 and he is the same very very private and this year I’d say almost like he keeps it a secret.
He hides at school and will only let his teacher check him and give him insulin in a private room and football and huge thing as it’s like the only time he can be free from diabetes like his escape almost…
Me and his dad want to show him you are who you are and if people don’t expect that then they are not worth being around they are not friends which I’m sure is definitely not the case I think if anything they wouldn’t any different.
We won’t him to as healthy as he can and have the best life!!!!!!!
Type 1 for 30 years here, I feel your pain. It sucks but we got to keep on keeping on brother
Hi my fiancé is type 1 and i fear that he suffers from weak secuality. For me it's something very importance in marriage ... what do you think ?
@@leadercollectif7232 accepted or leave him don't make his life stressful he already living in pain and stress because of diabetes
@@leadercollectif7232 get him some yohimbe, you can even check articles in pubmed about yohimbe, sexuality and diabetes. That plant is strong as fuck and works perfectly (just start low till u find the sweet spot).
Ya got me tearin up. Thanks man, not many understand.
10rzedx thanks brother. It has definitely helped me let others in my life know what it’s like. Share it with anyone you think should see it!
I understand. Handling stress and anxiety is often overlooked.
Agreed, and it has a big impact on blood sugar numbers. Thanks Caged.
I went completely blind about 6 years ago. I have had type 1 diabetes since I was 11 months old. I can’t tell you how many times I’ve wanted to give up. I didn’t have insurance in my twenties and had to choose pay car insurance, rent, or buy a vial of insulin and test strips. It eventually caught up with me. I have a loving wife and kids that keep me going. My three year old was just diagnosed with type 1 last year on April. Thanks for the video. You’re 100% right. We need community to make it through.
Thank you for your comment Ismael. You are in a unique position to influence the youth to manage their diabetes and I know others have read your comment and been motivated to do better. Thank you and good luck!
Thank you for this. I’ve been Type 1 for 3 years now, and at 36 years old I am feeling this burnout. I’m deeply grateful that I was able to live 33 years without the disease, though, and I give enormous props to everybody who had to grow up with the disease... You all are so incredibly strong and courageous, I can’t imagine how terribly difficult this disease would be to live with as a child and adolescent. I’m just grateful for this community who give so much support to one another
You don't know still what diabetes burnout is,
I'm 33, I lived since 3 yo with this SHIT that got me enslaved to the system and big pharma..
After 30 years of disease, when you wake up without barely any sleep done because you didn't manage the carbs and the extra dose didn't work... when you are trying to do a master thesis but you have adhd (due to diabetes) and you run low without any reason twice a day so you cannot focus at all...
Then that's burnout. It doesn't gets better, it gets worse and worse.
I am happy you are talking about this. I have had people to tell me to stop complaining about my low blood sugar, when I was going low to let them know. I am tired of people talking sh*t and then complain how they aren't feeling well when they have a headache. Do what we do for a week and see how your mental health gets affected. Such hypocrites, obviously not everyone
I hear this... I dont have type 1 but my toddler daughter does and I can't tell you the amount of times places make me feel like a Karen because I need to know the nutritional info before I can feed my child.
@@emd1494 I feel this. I always feel like a Karen requesting nutritional info, but in reality, I need it to live!
@@lannar2004 Amen .. peope who don't deal with it don't know the half of it... they think oh it's just a sugar thing. This is like a shackle to the ankle to live with and I'm only watching my little one go through it and learning and doing all I can to make it easier for her. She is amazing and you are amazing! Don't you forget it 😉 we can be a couple of cool Karen's together 🤣😎😎
@@emd1494 Lol, right back at you. We're both kicking butt at something we never asked for. Much love 💚
I’ve been type 1 diabetes for over 13 years. I hid my diabetes for the longest from people who didn’t know about it because I felt ashamed of it, and didn’t want to feel different from my peers or to be made feel different.
Last year was my first ever going public about my diabetes. I’m now proud of it, and embracing it each and every day...which is why I’m currently writing a book about my journey of growing up with diabetes.
Thank you for this.
Levi, you nailed it. I'm a T1D for 45+ years. The stress alone of managing diabetes is unbelievable. And like you said, it effects every part of your life, 24 hours a day, 7 days a week, never a break. How could you not get frustrated. I'm a veteran with diabetes and I still become frustrated with it, it's where I am now. My experience tells me it will pass to a point but never go completely away. I absolutely hate being tethered to a pump ALL THE TIME. It beeps and vibrates and sending all kind of messages to my phone so the phone is also beeping. Drives me crazy and I hate it...but it saves my life by waking me on those occasions I go low at night, it saves my life by telling me I'm going low before it's a crisis. Literally a little box that keeps me alive, and I hate it. Doesn't seem right to hate what keeps ya going, living as much of a normal life as you can. Thanks Levi, keep up the good work and keep taking care of yourself.
You can train your body to wake you up when low, it's in fact possible, I train my body (and probably God helps me too) to NOT SLEEP when running low, and in fact I don't sleep at all, if I feel super tired and start "sleeping" I wake up with the trembling and sweating, but conscious enough to get some sugar. I won't put that piece of electronics into my body, ever. Honestly, I know that is deeply irrational but I prefer to die without feeling like a cyborg.
I had my pump fail when I was at a concert last year, seeing my favorite artist, and it ruined the whole experience!!
This made me laugh, I can't imagine how mad you must have been! That stinks!
I can definitely understand that one. I have just gone without for the day to not mess the day up. Not a good idea
@@kimmieanne1987 yeah, well didn't know it failed until later in the concert lol
I've been Type 1 for 51 years. People ask me what the worst thing about it is. My answer is how absolutely relentlessly invasive into my life it is. Not the complications I have developed, not that I can't eat candy orange slices (funny what one misses), not how it tries to kill me in my sleep. None of those are the worst It is just that there isn't 30 min in my waking life that I have not had some thought associated with it. Feel free to rage on brother. Your feelings are legit and you will have more days that you feel like this. Just realize when you have them that they are just temporary and will pass like all emotions do. :-)
Thanks a lot for taking the time to share this. I am in one of these ruts currently and trying to break out. Perfect timing to read this. Thank you!
NO ONE IN THE UNITED STATES OF AMERICA WITH T1D SOULD HAVE TO WORRY ABOUT PAYING FOR ANY LIFESAVING DIABETIC NEEDS! I am the grandmother of a precious child with diabetes. As a tax paying American, we as a country can do SO MUCH BETTER a helping our citizens who do to no fault of their own need LESS STRESS in keeping their T1 control going. It is TAX MONEY WELL SPENT!💕
Sometimes I think I’m going crazy, and when I complain to some of my family members, they’re like quit whining because they have type 2 and think it’s the same...thanks man for sharing it’s good to actually hear ppl express the same frustrations that I’m experiencing and know that:
1) I’m not being over dramatic.
2) I’m not alone.
You are certainly not alone! It can be maddening sometimes so I hope that these videos are a helpful resource!
My doc says I’m not really a type 1 OR type 2 because I’m only insulin dependent because I had part of my pancreas removed. THAT made me diabetic. AND I also MUST take CREON- 2 capsules (to help digestion ) each each meal & snacks! It really sucks. Have to take it with you everywhere! I lost 60 pounds, not by choice! Still trying to figure it out! Get worried when the alarm goes off! I use DEXCOM G7 on my arm with an app on my phone. It’s rough but what’s the choice?
28 years of frustration and burnouts. I’ve become the strongest person I know cause if what this disease has taught me. Also recently got into connecting with fellow warriors! Diabetes sets my vulnerability on fire and finding a community to share the struggles has been key for me! Thank you for your dedication and this show! Stay fighting 💙
Sarah Chludzinski thank you Sarah! It can be so frustrating but keep it up! You got this.
My son has had diabetes since he was 4,..... he is 9 now.......it's a full time job,......I think people don't understand it's not going away.....ever..........I feel sorry for you and all diabetics.......it's hard.....thanks for the videos.
Michael you are welcome to feel sorry for other but please don’t feel sorry for me. No worries! Worse things could happen. Besides. Learning to manage diabetes requires developing a level of discipline that can propel your son forward in other areas of life. He will go on to do great things.
If my blood sugars could talk video.......so funny.
It’s so true - the closest people around you don’t even know what’s going on through your head , all of the time! ( numbers, numbers high & low ) I needed this video❤️ ty so much for sharing.
How do you get energy?
Once every 3 or 4 years (I've was diagnosed during my 2nd year of marriage - 32 years ago) I have a total meltdown. I just cry and let it all out. It usually lasts about an hour and I verbalize out loud everything I hate about being diabetic. And my husband just stays right next to me and listens. When I am finished and exhausted he just hugs me and then I take a few hour nap. Then I get up and I'm good for another 3 -4 years. I still get frustrated and mad in between these - but these are the giant full-on uncontrollable meltdowns. They are truly cathartic and have helped me 'deal' with all of the emotions that go hand in hand with this disease.
I hate it so much, I cant just stop thinking about it. No matter want i due (eat, sleep, walk, hangout with people) it's all about how will my diabete.
One thing I dislike so much is everyone telling me.... I'm not doing it right, because by diabetes should be on my mind.... how due they know... having to take care of my kids and hope my BG doesn't go high or low at the time they need me the most.
But this is the lift God give me. Most days are better then others. Yes, I still have the high and lows but we all due. Its been 21 years this March. It was hard but it is getting better. Yes I have gone though diabete burn out but I came back. That was over 12 years ago. I am an advanced for T1Ds. I could be one with out the bad and good.
I can certainly relate. T1D is a full time job. I think about it at LEAST once per minute. As I am sure you have grown to learn is that we adjust. It becomes the norm and things move on. It's work, but it is certainly do-able! Good luck!
So true.
I am not a diabetic but I am managing several autoimmune diseases and other conditions that are not evident to others. Your struggles speak to me and encourage me to manage these conditions so they don’t manage me! Great video! Keep up the good work. You are an encouragement to so many.
Janice Morrison thank you Janice - I had not taken the time to consider being burned out on diseases other than diabetes. You make a great point!
T1D for 23 years and counting. This was encouraging to hear. Thank you, Levi!
I hate the diabetes “junk” laying all over too 😆
For real. It’s a ton of money for 90% of it being trash!
@@BetweenTwoLines god yes! my dad once showed off my dexcom g6 inserter to his girlfriend and helped me insert it and threw the inserter in the trash and she literally went "wait that isn't reuseable?" like its such a waste! my damn thing doesn't even work half the time. its mostly disconnected for some reason or another
@@saturncosmic4449 I agree that they could come up with a reusable inserter. I've been on the G6 for almost a year and learned early on not to breakoff the locking tab until it is stuck to your skin. Only get one chance at it.
You rock bud! Just say it, we don’t need it polished. I woke up 6 days after my 18th birthday after being in a coma for 3 days. I would have been dead if it wasn’t for a doctor who happened to to be walking though the ER on the way back to his office. He saw something and took action to save my life. 3 years later after going the denial stage I ended up in the hospital again not expected to live and he saved the second tine. With some good advice from him and no insurance I was able to make it through my 20s. Six kids later and a wife who really gets my struggles I am strong and deal with this every day. I was told when I came out of a coma my dream of being a paramedic and sheriffs deputy would never be possible. I had to hide my diabetes from everyone but was able to be a paramedic and sheriffs deputy for many years. Now with people like you we don’t have to hide it and now it’s accepted a few short years later to be a cop or anything you want to be. Brother thank you for having the courage to make these videos because many kids will see that this disease doesn’t have to stop them and best of all they will live many years being normal. Thank you and please keep it up. With much respect and tears in my eyes writing this thank you.
Kurt Duncan thanks a ton Kurt. That is a really cool story of how you came to where you are now. Definitely encouraging. I really appreciate the words. If interested in the channel, please subscribe and share with anyone you think may also like it!
I was diagnosed on July 31st 2018. I was in DKA and didn't know it. Previous to being diagnosed. I had to have neck surgery. So that meant pre surgery blood work. What pisses me off, is that not 1 but 2 DOCTORS dismissed my A1C of an 8!!! A month later I was admitted to the hospital for 5 days, 2 being in the ICU. My A1C was now a 12.9!!! I had no clue about T1D. Everyone in my family has T2D. I am the 1st person in my family to have T1D. It's been a wild ride. I hate being T1D. But the 1 thing it has taught me is, how freaking strong I am now! So thank you for making these videos! It helps to know we are all in this together! #T1DStrong
Helen Saez Deverter you are completely right. The discipline required to manage T1D gives us an advantage in many other aspects of life.
5:05 I learned long ago to stop using the term conrol. I use management instead. 39 year T1.
Daniel Lightner excellent point. Control can be elusive. And discouraging when you don’t have it. Management is achievable.
That's a positive term to use. Love it! I'm going to start using that. 38 yr old T1, since I was 11.
Hey man I hope you are still hanging in there. Having one of those days thats for sure. I hear you and feel every single word you said in this video. Much love and respect to you. Keep fighting brother
Totally feel you on this. I’m two years in so I’m lucky I had 28 years of life without diabetes. Is it a drain? Hell yeah, even when you’re on your game, you’re tired. To all those people with Type 1, I hear you, I get how fucking hard this can be and I’m here giving you a virtual hug. You all deserve it. You rock.
I call this disease fatigue. I was diagnosed at 41 and have been dealing with this life for 17 years. First two years I was a poster child for compliance. After that, I got mad. Then I got tired of dealing with it. Now I’m the poster child for inconsistency. It’s absolutely exhausting. Thank you for this channel. It helps to have community because people really don’t understand it at all.
I am a type 1 diabetic and I completely feel this thanks man I am 26 now I've had diabetes since I was 15
I'm literally in tears. I'm so sick of all the things that come with this. Dr's blaming me for my rollercoaster sugars, friends or family talking to me about me cures and how I can do better and should I be eating anything ever. I'm tired, I'm so so tired - emotionally, physically, I just don't want to do it anymore.
My pump constantly wakes me up, I am constantly obsessing over numbers.. OMG my brother (someone that should know better) asked me why I wasn't more prepared for a low sugar like I'm supposed to bring a suitcase with me always. I'm at the end of my patience. I've had it almost my whole life and I'm done.
I dont use facebook, but this comment list is great. It is so nice to see so many people going through the same thoughts and feelings that I get regularly. It is mighty frustrating at times, but the pump and the CGM has smoothed out a lot of the bumps in my life. Keep up the good fight my friends, it is worth it. 45yo T1
I have type 2 and I can really relate to your videos. Please keep making them, I struggle and know we all do. Its everyday and it wears me out. I hate it, it makes me mad it tares me down but i see it stealing my life so i fight back. God bless you.
Keep it up! Thanks for commenting!
Diabetes burnout is absolutely something I feel every now and then. Whether it’s alarm fatigue from a pump/CGM, sugars not going down after correcting over time until it’s inconvenient and finally plummets, food you eat normally not affecting your sugar the way it normally does so your sugar goes too low or too high, etc. And these things can drive me crazy some days and no one around me understands how frustrating it can be so I don’t bring it up and it just stews sometimes. Trying to improve and take control of your diabetes is definitely the first step to help but I think this video reminded me of an aspect I never use and that’s the diabetic community. Thank you so much for making this video and addressing this universal topic for us T1D’s. 😅
Thank you for bringing attention to an issue that can affect all diabetics at any time. Mental health is such an important part of managing type 1 diabetes 😊
Laura Craven thank you Laura. Agreed. Working on a video on that very topic as we speak. Hopefully it is helpful. Good luck with your second year as a T1D!
Recently diagnosed t1d at age 33. Thank you so much for this. Spot on with every point! Poltergeist in the kitchen! The stupid amount of supplies. The air plane. Insurance. Made me laugh and cry all in one video. Subscribed!
Thanks for watching Luke! I made these thinking that I wanted to create something that would have helped me when I was diagnosed. I hope they do just that for you! And for the record.. it levels out and life returns to a version of norm. It stinks at first but it isn’t a death sentence. You got this brother!
Just found this channel. Man, I couldn't agree with you more, this life sucks sometimes. I can't even get a pump. And I'm a brittle diabetic. Ugh.
I absolutely love your short videos. I have been a diabetic for 59 years And your videos make me laugh because they are so true to life.
Thank you so much Joanne! I’m so glad you like them!
I just got diagnosed with type 1 diabetes at 29. Was rushed to the hospital for hyperglycemia. Somehow I’m happy because I feel so much better now than I did before. I’m sure dealing with it year in and year out will be annoying, yet it’s nothing compared to how I felt before.
Keep on shooting.
WOW!!! If anyone ever saw me posed and ready to bash my insulin pump across the room into the other wall it must’ve been you. Whew. Don’t know how my husband did it with just a calm voice saying “ don’t do it” but it worked, but not w/o tears. And it’s only cause ya just get tired of the one more high that came outta nowhere. Dang! Or ya want food in pill form so you don’t have to count any more carbs. It’s just a flyin number. No fun eating anymore. EXEPT, I feel better today, thank you my friend. You are awesome. God bless.
I'm type 1. I regularly get fed up. Upset. Even with a good diet and exercise.. its overwhelming at times. Your down to earth straight talking message hit home. Keep it up!
I am really glad to hear that you found this vid helpful! Thanks for watching and take care!
Year 8 and finishing up a college semester. I am so burnt out with my school work and especially diabetes. I cant bother tracking and keeping on top of it again. But when I dont I feel like crap and I cant study its so difficult and i am so tired of it. It’s so nice to be reminded im not alone
I burst out crying to my partner a few days ago. I told him i didnt want to live if im diabetic because its too hard. He responded with 'you just have to try'. He annoyed me because i do try but sometimes not hard enough. I begged him to take over for a day and he refused. Im just at a loss right now and i just want to be perfect abd feel better but it doesnt work like that. Thankyou for your video❤
they just don't understand
Need a video of you phoning your boss, trying to explain that you can't come into work yet because you still have low bloods and you can't drive until it gets higher....that awkward conversation.
Good work.
Having a tough day with sugars and this video helps me not feel alone in struggles
Really glad to hear that Kate, you are certainly not alone!
I feel You. My Sister has 4 Kids, the oldes ist now 20 and the youngest is know 6, and both are T1D, both got diagnosed with just 3 years old!
Thanks! That is wild, and a handful I’m sure!
I have had Type 1 Diabetes for 7 years and I do not find it much annoying or frustrating. I do not mind having it. I give it all to God. When Type 1 Diabetes, is hard, I take it one thing at a time and give it to God.
Exousia
I had diabetes since I was 3 and now I’m 14 and I always cry my self to sleep for being type 1 diabetic and all my siblings can eat anytime they want with out taking any needles and always getting annoying questions
You don’t have a diabetes problem, you have a mindset problem! You can do this! I promise you, diabetes doesn’t own you. Don’t let diabetes beat you. You can win. You GOT THIS! Life will get SO much better when you put diabetes in its place! Good luck!
You just made my day thank you so much I will do what you told me I will not let my diabetes own me thank you soo much you can’t believe how happy I’m reading this ❤️❤️❤️
thank you! my kid is gong through burnout (again). he's 17 and his recent endo appointment confirmed he was not blousing, again. Burnout is real and i wish more people understood
Lizz Bates no doubt about it. Have him watch the “if your blood sugar could talk” video. Sometimes a good laugh can help snap one out of burnout. Good luck!
@@BetweenTwoLines that was the first video of yours we watched! So accurate! I shared that video with every T1D I know!
Hey dude. My name is Jeffrey. I'm coming up on my 30 year diaversary. I ignored things for a long time. I'm Changing that.
Best of luck! Be well!
JAJohnsIP thanks for taking the time to say that man. Chomps to have wasted the time but a relief that we finally are owning it. You got this man. Good luck. Subscribe - I’ll keep more coming to motivate.
Watching this video makes me so emotional, this is my experience exactly. I do everything I can but I’m exhausted, last year I was in a coma due to high blood sugar... thanks for sharing it feels good not to be alone having these challenges dealing with my diabetes
Thanks so, so much. I found you, trying to understand my son. I'm scared
I hope things are going better for you. I am a T1D daughter. Reading this made me smile. You are doing the right thing by trying to understand. Keep fighting on!
Diabetes is so hard most of the time. But it is always worth it to take care of yourself! Community is so important. Thank you for being a voice!
I use a Freestyle Libre to check my glucose and insulin pens. I was on a pump for 8 years and got tired of having something attached to me. About I year ago a switched back to pens. It’s been working well for me in this season of life. Keep fighting on!
100% agree. Thanks for taking the time to comment. I certainly appreciate the input!
Had diabetic burnout awhile ago which led to hypoglycemia and unfortunately, a family fuss. But I’m so glad to know that you empathize, Levi. Thank you so much
i got diagnosed with T1D at 16 years old.. Im 17 now but i still remember and miss the carefree lifestyle of a regular teen... The thing that makes me angry is the fact that people don’t even know what diabetes does to your mentality.. Can you please cover how T1D affects mental health?
Love your channel btw❤️
Thank you Frida! I will certainly be talking about this in the future at some point. Great idea!
Thank you Frida! I will certainly be talking about this in the future at some point. Great idea!
I think the hardest part for me is when I feel so horribly sick and no one understands that diabetes is a physical illness that makes me exhausted, confused and emotional at the worst times. I've been diabetic for 20 years and am in university and explaining it to friends and teachers that don't ever understand that it's not a DIET it's an illness that affects all parts of my body. No I don't wanna go for a run when my sugars are high. No I'm not acting this way for attention when they are low. No, I LITERALLY can not drink real sugar soda! Just living in a anti diabetic world is so cruel sometimes
Hello my people, it’s been a rough12 months with a disease I have had most of my life. It’s always nice to talk with my buddy that’s T1 as while but going online and reminding myself I am not alone helps. My family is my rock but they don’t know yesterday was a BS rollercoaster high low and in a bad mood. Right know I don’t have the $ for night my insulin and it’s day 3 and I am feeling the stress. I will be fine and am already feeling a new wave of energy to win against dieassbeting thanks bro.
I am with you on this. I had My burnout between 2004 and 2009. When I was on my only and had to pick between insure or rent. It was not fun. My A1C rent to over 12.0 and I was in and out of the hosptil with Highs and lows. Now I am a mother of 3 boys and still have T1D. Its hard to believe that its on me all the time.
Diabetic T1 for 19 years and counting from sweden here. Love this video. I really needed to hear that other also feel like this. Its so hard to explain it to non diabetics.
Thank you! Please share it so more of our non-diabetic friends can understand!
This made my day spot on. Type 1 for 51 years so glad 😊 😃 it's the same for everyone people who don't have it wouldn't understand this was a brilliant video 👏 😀
Thank you so much. My little brother (40) has been diabetic for 8 years and you just said everything he says! T1-ers need people like you. Thank you. Theres only so much a big sister thats overly nurturing that doesnt have diabetes can do.
I'm (t1d) so tired all the time and it makes me so mad
I came to youtube looking for videos of how to deal with a burn out and you video popped up, and as i was watching i started to tear up. Because finally someone understands what im going through and it felt to good to be understood. I have had T1D since i was 7 years old and it felt like it took over my whole childhood and my life. I am now a teenager and i feel worse because as i got older,people assumed that i have gotten used to it and in control of it. But the truth is that i can barley take control of it. And you video help me feel understood and i felt like i could relate to something. Thank you so much i really appreciate it💗
my son is 3 yrs old and just got diagnosed with type 1 4 months ago it has been a challenge and soon as i found your page i subscribed and learned so much it tough he has good days and bad but i cant give up i cant work i take care of him full time anxiety is soo bad but i just wana thankyou for your words
I love this I was diagnosed almost 1 year ago and I'm 14 and its tough dealing with this I thank God that I'm able to live with this crap for almost a year
For me i stop the visits to my doctor since the beginning of 2020 because of Corona and im really happy because he told me that I'm the worst diabetic he's ever seen in his live and that makes feel bad, that why i hate him so much . And add on that my family yelling at me all the time .
In my community being a diabetic can be so hard because some of those people are stupid 🙄
Love the video. The way ive learned to cope with it (somewhat) is what my grandpa told me. "You either control it,or it controls you" and thats resonated with me through the years. Best wishes to other T1D
This video is excellent! It was as if I was doing the presentation. I was diagnosed as a Type 1 diabetic in 2002. It is a challenge everyday and it does affect every part of your life. Even when you’re doing everything you’re supposed to be doing it still finds a way to affect you in some way. The levels are like a roller coaster ride even when you constantly monitor yourself and do the right things. Plus, you worry about what the disease is doing to your internal organs and your external limbs. Again, thanks for making this video and making folks aware of Type 1 daily challenges.
I turned diabetes type at 17. You are exactly right. In the last 3 years there have been more answers that have come forward. Last year 2 different docs were talking about taking me off of insulin. I did not because a 3rd doc screwed up some things on me. Back to working on the base. Find out how you wound up with diabetes and go after it! I am. I have answers that nobody wants.
I know exactly how you feel mate :( Ive been diabetic type 1 for over 34years, and some days I just want to feel normal, not having to have to do blood tests, injections, trying to inject in different places and hoping that my level will go down. It drives me bloody mad. So believe me you are not the only one. Doctors just dont understand how it fees to have to do all these every single day. Its all very well for them to tell us what do do but as you says, its constantly doing the same thing every day, But most days I just think to myself "Its could be worse, as least no one can see that im diabetic" and IM NOT letting this to take over my life so I dont, but its hard :(
Wanted to say thanks, this video is not only inspirational to me as a 20 year old type 1 diabetic man, but very relatable and i feel like i have a load off after watching this, i had just recently had a dka episode so bad, the acidity shocked my heart into a heart attack and tore 3 holes in my heart.
BaronHentai Kun no problem. If they are helping, keep watching them! You need to make a turn around but it isn’t as daunting as you may think. You got this!
Im so glad you are doing this! My brother and my son are type 1. Its soooo damn hard. Thank you
Shawna Holm thanks Shawna. No doubt. But it’s doable. I’ll keep the videos coming.
Thanks for the video, I can definitely relate to what you said. I’m now 6 months living with T1, diagnosed at age 38!! It’s been such a huge adjustment to life, counting carbs every time you eat has to be one of the most frustrating things ever! It’s good to know I’m not the only one who gets frustrated. Family and friends are a great support but sometimes it’s only another T1 who can truly understand 👍🏻
I certainly agree that only a T1D can TRULY understand. Fortunately, the close support and contributions of loved ones can be an often acceptable 2nd place. We are all susceptible to getting frustrated but it’s important to vent, refocus, and keep going. You got this!
I'm a T1D who refuses to get off the needles. N, and R or Humalog/Novolog, and I'm good, great with the quicker acting insulins. I can't relate to the CGM stuff. Everything else, spot on.
Omg! I'm not the only one. For a long time, I couldn't afford the pump. Now that my insurance might cover it, I'd rather stick with my routine. Been a T1 for 27 years.
@@athenapoe3377 33 years here. Ever find Fk T1D on Facebook? Decent group of people, mostly.
@@imywt Don't go on FB much anymore because people I know kept posting negative things and it started getting irritating. Maybe I'll check the group out since it sounds more positive. Thanks.
@@athenapoe3377 Yeah, I take FB breaks for the same reason. Everyone's got an opinion on politics, gender, race, and much like sphincters, they all stink.
I like to try to keep my posts more about funny memes, and animal videos. Make 'em smile, they come back for more.
40 years a T1D. I tried the pump recently. After 10 months I have given it up. The site failure and you at
bG 310 in 2 hours. Fail. The pump failed for me.
Just noticed this video was posted 2 years ago, but man I'm blessed I came across it. I could relate to every point you brought up and it honestly made me cry. I think im at a point where I'm feeling depressed because of T1 and I don't have anyone that I feel comfortable talking about it with. So to see a video that's so damn relatable is honestly the therapy I feel I'm searching for. Thank you for this.
thank you for this, im in a downward spiral, lost my job and being T1D for 22 yrs isnt helping, i may resort back to finger pricks as dexcom would be financially unrealistic
i needed this motivation,much love from downtown Toronto canada
I got diagnosed when I was 10 and I’ll be 34 this June. There’s a lot I could say, but one of my biggest frustrations is that some people think I’m self sabotaging, when I have a low blood sugar, and it may not be an extreme low. However, if I act a little loopy or out of character because of my low, they automatically think I did something wrong. Like not calculating the correct amount of insulin or not eating enough 🤦🏽♂️. I’ve tried explaining that lows and highs are going to happen and that I won’t always be able to control what my body does. It gets so frustrating and tedious.
Diabetics type 1 (like myself) should aim for it to become a disability like many others. We are much more affected than many other people who has special benefits for their condition but we have been always told that we could be "normal" nust taking care of ourselves which is completely and utterly false. We are not normal nor we could be till the scientists invent some cure, we are affected by our condition most of the time. It's easy to see it, when I have 2-3 days of normal numbers I feel plethoric, I feel superhuman so to speak and in reality is just like normal people feel everytime, we feel like shit when we are going up and down, it's unhealthy and FEELS very unhealthy, unbalanced and disrupting.
I grew so tired of those idiots trying to "normalize" diabetes as if it wasn't a big deal and like if it was totally manageable just with "some effort", it's much more difficult and disrupting than that...
I've just been told I have too much "drama" in my life by my SO. I had a low blood sugar episode, which I successfully dealt with, then had to spend HOURS on the phone with the insurance company AND my doctor. At this point, I think it's best to just be a hermit.
Hi Levi,I've been living with type 1 diabetes for 48 years and I have been dealing with it the old fashion way all this time, most of the time I have been just winging it and now I am paying for it mentally and physically although people say( wow you look good) or my dr says( your A1C is great)but I feel like crap,there are some days I wish it would just end, but today I'm finally going to my dr and get trained on how to use my new tandem pump and Dexcom G6 and hopefully I can start to feel better ,thank you for your honest video Levi, you take care.
I am also part of the Poltergeist Kitchen Club. Loved the Kramer reference. It's so accurate. Had a night 2 nights ago where my blood sugar seemingly went to 350 for no reason and spent all night trying to get it back down. It's crazy how diabetes can take over every aspect of your life when you arent controlling it. Thanks for another awesome video Levi! Keep up the great work!
Thanks a lot. You aren't kidding. I made that comment in the video and then literally had it happen the same night after overshooting insulin for a meal. Thanks for the comment!
My son who is almost 50 was diagnosed at 17. Thank you for your insight.
Thank you. I understand it so much. The part that makes me mad sometimes is other people, who don't have diabetes and they always ask me about it. Or remember stories about their diabetic relatives who suffered from it. This information is overloading me🤦♀️
That is the truth. "My aunt has the diabeetus and she takes cinnamon. you should try that!" -_-
I always get, "Hey, my parents have a diabetic dog!"
I always hear other diabetics talking about this kinda stuff but for some reason this never really happens to me 😅
I am so grateful to have come across your video at just this moment in my 21+yrs with T1D. Over the past several weeks I have been experiencing a new issue with T1D, my overnight blood sugars have increased dramatically and no amount of correction bolus has been successful in bringing my BGs back into range. It's been extremely daunting on me and my family. I thought it was the Dawn Phenomenon, but turns out it may be the Somogyi effect. I had not heard of Somogyi until I researched why my BGs were jumping and staying high for hours while sleeping. Tonight, I was really feeling very alone and ready to give up. Then, I watch your video and start laughing because of how much I related to all that you said. I am currently not entwined with a T1D community and now realize that I need to be so that I can see that I'm not alone and have some great laughs over how ridiculous this disease really is at times. Thanks for making this video!
You hit the nail right on the head. T1 for 26 years.
Thanks for putting this out there.
i was just diagnosed 2 weeks ago, its really rough
Thank you for you video, my son is 14 and is type 1 and watching the videos helps him see he's not alone with what he goes through. Im there for him and help him anyway I can but I don't go through it like he does...you all are so strong!!
Thank you Andrea, I am sure at 14 T1D feels WAY bigger than it is. He is definitely not alone and each year he will learn to manage it even better. He can do great, be great, and feel great. T1D is not a death sentence. Tell him I said good luck and please share with whatever T1D groups you are a part of!
@@BetweenTwoLines thank you so much, he just got his first job and that's a new experience being type one but he's a brave strong kid and doesn't let it hold him back from anything I could not be more proud of him...I've been sharing your videos on FB I think there great!! My son really liked the if blood sugar could talk 😁
That is awesome. Good for him! And thank you. More to come!
I love u man! Thanks for this video! I was ready to give up after 20 years, stopped taking my insulin for 8 hrs and ended up at the ER throwing my guts out!
Thank you so much for this channel! My son is a 16 yr old T1D. He was diagnosed at 5. His a1c is 12.6 which is an improvement from the 14 it's been for a few YRS! He's burnt out and mad at this stupid disease! Your videos are so helpful and encouraging! Thank you again! So happy we found you!
No problem Amanda, one thing that I found helpful was a sport or hobby that T1D interferes with. Then there is some additional motivation to manage blood sugar better so that he can get the most out of the sport or hobby. I am no expert, just a weird thing that helped me do better. Tell him I said good luck and keep going!
Thanks for your video' man. I just discovered you today from if youf BS had a voice. So true. T1 for 15 years now. IT SUCKS. A!C is just under 7.8 now. It really changed once I just stopped eating heavy carbs and thought oh, I'll just take insulin for that. anywho, thanks for the videos man. I bet could talk to you for hours.
J thanks a lot. I am still working on the ‘lower carb’ part of it myself. Thanks for the motivation - much needed. Please subscribe and share it with someone that may need it!
Wow, thank you for this. I just stumbled across your channel and have watched a couple of your funny videos laughing going god yes! But this one has me in tears. I'm a single mum of an amazing type 2 warrior. She has been insulin resistant for 3 years, she was blamed, told she was bad, we wernt believed, i jad to take over everything jist so they wpuld take us seriously, a cycle of months of highs and ketones and tests every 2 hours around the clock, being admitted because of ketones to a sudden drop, stubborn lows lasting 4 hours, seizures, ambulances, hospital and then the high cycle and low and on and on and on. 3 years of no sleep, 3 years of barely any school, we do have a cgm which is so helpful. But my god we are in huge burnout!!! We are trying to win, we are constantly trying to be one step ahead, trying aggressive approaches and it just gives us the finger. Have to confess this made me cry (something I try not to do very often). Thank you. When your stuck in a box on a repeating cycle of hell it's so isolating and no one gets it if we do try and talk to someone about it. We are tired and depressed but what can we do other than keep fighting and keep testing 24 hours a day.
Thank you. My son struggles with burnout. I appreciate your videos because unfortunately this is our normal.
I don’t know if you still use this channel but I was diagnosed with T1D a couple years ago and watching this was so refreshing to see someone just speak about how it effects them. Recently it’s got me quite down effected my career, I workout quite alot I’ve just not had the motivation to go because I think what’s the point. I hope u keep this channel going because it was nice to come across something on UA-cam like this there doesn’t seem to be many others like it so keep up the good work
I was diagnosed 7 days after this video was posted, and didn't find this channel until, well not until just now. Good to know there are lots of others out there able to make good out of a crappy situation.
Thanks a ton and good luck brother! You’ve got this.
Thank you I was recently diagnosed with type 1 diabetes three months ago . It always feels like a fight I couldn’t win for long . As a result I kept getting frustrated and wanted to throw in the towel . It’s good to know that there are people out there that know your frustrations
No doubt about it. It can be maddening! You can do it!
So nice to see a T1 that is real. Thanks!
You bet!
Your words reach everyone. Because everyone has their own personal battles
I like your videos so much. It is hard to understand for someone that is not familiar. I have a 5 year old boy that is T1D… 😕
I am sure you probably know, maybe even tried, but if not: We do closed loop since a year and it changed our life. His HbA1C was 5.6% at the last check and his daily life improved so much. It was a game changer for us.
Thanx for your great videos! 🙏🏼
Thanks for the video. So true! It's really hard to share this crap as most people just don't get it.
My 2 year old son just got diagnosed with type 1 ive been very stressed out over this thanks for sharing this video