Hope this will give someone here hope and strength l am 16 years Her2 survivor l am so grateful to all the new treatments and all the medical staff and lab scientist that made this happen for Her2 women.
I know of a friend's wife who had her2+ breast cancer and it became stage iv. She has been on anti her2 drugs and treatments and 12 years later she is still here. The treatments have changed over the years and it's not been an easy journey for her, but she has seen her children grow up.
Hi Doc.. I was diagnosed breast cancer her2 positive… under treatment .. can you help me more on how to deal with it and prevent recurrence… what should I do.
Hi, I'm writing from Italy. I am 40 years old and I was diagnosed in March 2024 with carcinoma in situ but then after the mastectomy it turned out that it was predominantly in situ with two microinvasions of infiltrant only her2 +++ I made the mistake of reading the internet and I was very scared but then thanks to your video I calmed down a little and I believe that after having done Taxol 12 cycles and now Herceptin there are good hopes... Herceptin has profoundly changed the history of HER2 +++... Many thanks for everything the work you do for breast cancer...
Thank you Liz, for this once more very interesting video. It's exactly my situation, HER- positive, stage IV. Just had a breast MRI where new lumps were found. Thanks to you, I am not completely devastated. There are still a lot of things that can be done! Thank you and all the best for you! Beate from Germany
I admire as a doctor myself whose mother is going through her+ breast cancer. Your dedication despite going through this time is remarkable. I know you will get through this. ❤
Thank you so much. I realize these videos take a lot of time and research to produce, so I appreciate that you share this information in a personable and approachable manner.
I was diagnosed with HER2 + Hormone negative BC stage 2B in Jan 2021. Had PCR after 4 rounds chem (TCHP) (this is 2 less than protocol in the US and my choice), had mastectomy/reconstruction in one surgery and there was 0 cancer at surgery. I did not do the hercepton/perjeta maintenance, (again not protocol in the US). I fasted for 2-3 days before all chemo, was extremely sensitive to the TCHP, lost all hair, lost weight, had skin rashes, eye problems, etc., but everything came back exactly the same afterwards. Feeling great, and very positive. I always check to see the latest treatments and information on HER2 + BC.
I’ve only come across this video liz. I had her2 positive ER positive and PR positive. Found out it was stage 3 after the pathology report. Had chemo, surgery radiotherapy.Doing 14 cycles of tratuzamab, also on tamoxifen. Doing well apart from the tiredness. Thank you for taking the time to do these very informative videos which such a full plate already.
I’m exactly the same as you got my surgery in 2 days it seems a lot doesn’t it but we have to be thankful there is medication to help. Good luck with everything I’m with you 🙏
@@helensmith8349 you’re the only other person I’ve spoken to that’s the same. Most I’ve met are triple negative or ER positive. Hope you’re healing well. Are you doing the adjuvant treatment after?
@@sueb9692 sorry got confused I’m just HER2 positive and E R positive . Having lumpectomy in few days then chemo for about 4 months ,trastuzumbub injections for a year and radiotherapy and I’ve started on tamoxifen already. Not too nervous about surgery but dreading chemo it’s going to be a trying year ahead. Good luck Sue 🦋
@@helensmith8349 tratuzamab is so much easier. Tiredness is bad with it. I’ve neuropathy in my feet now but I’ve just done cycle 10. I’ve 4 more to go. We will get through this. Good luck on the road ahead 💕
I am triple positive stage 3 breast cancer too. Did your oncologist suggested to undergo chemo with trastuxumab and pertuzumab or just chemo and trastuzumab?
Thank you so much Dr.Liz. Very well explained. I am currently on herceptin injection 3rd weekly. I am sure your videos been very informative to many of us . Thank you 🙏 God bless!
Thank you so much for that wonderful video. I’m ER PR postive and my her 2 test was a one. Which is now considered HER 2 Low. Which is great is some ways because now I have more drug options down the road 🎉
Hello Liz, Thank you so much for all the information you are putting out there. I've watched all of your videos. I was recently diagnosed with HER2 Stage 2; a month after having my baby (found the lump while breastfeeding), I just turned 34. I have talked to my oncologist about recurrence rate and it seems like statistics are somewhat limited because of the fairly new treatments. I would just love to know if in your opinion, HER2 is the type of cancer that always finds its way back, or has there been cases where HER2 stays away for good?
All i know is Her2 positive are active cells and there are specific drugs to address it. The thougjt of its recurrence is haunting me sonetines even if im still under medication. But thank you so much for such an enligthening discussion on this topic. It gave us, her 2 positive patients more hope now. God bless
Dr Liz thank you so much, the information you share is awesome. I am Her2+ which metastasized and started ricocheting off of my bones so my Dr who Is at MSK and is nationally know for this specific cancer decide to start chemo right away and it worked. Pet scan shows NO sign of cancer and now I’m on herceptin & projeta and she’s saying that surgery is not warranted now. It’s so hard to stop thinking of the chance of recurring. I trust my Dr and she has also told me that if I still feel the same way in a couple of months that I can visit with the surgeon. She will be doing periodic pet scans. Your thoughts?
I’m her2 positive. 3 tumors total. 2 of them were 2 cm and the other was .9 I had chemo plus the immunotherapy. I had a double mastectomy and reconstruction, no lymph node involvement. I’m doing well now and just trying to keep avoid reoccurrence.
Thank you so much for this video. I’ve just been diagnosed with HER2 + grade 3 breast cancer and need all the information I can get about what is going to happen during my treatment.
Great video breaking it down for people to understand. i am Triple positive with small tumor size, and considering clinical trial using Kadcyla, or TDM1.
@@mariemiller6756 that’s nice that you get to choose. I thought we all start off with Taxol and Herceptin then if treatment is partial response we start kadcycla.
Hello doctor thank you so much for this informative post I am 71 and I would like to mention that I have HER2 positive I had my surgery and 5 sessions of radiotherapy and then Letrozol but I couldn’t manage so they switched to Tamoxifen and nothing of what you’re speaking about I forgot to say I had my surgery enf of March 2023 Once again thank you so much
My wife was misdiagnosed as hers2 negative on core needle biopsy and then changed to hers2 positive after her surgery. She had already had her chemo because her doctor talked her into this new age "chemo before surgery" crap. Now they are going to just give her TDM1 and hope for the best. NEVER let them talk you into chemo first!
Please help, what do recommend should come first, my friend is scared to the moon, she’s been asked to start chemotherapy on Monday before her surgery. She has hers +ve.
I am currently undergoing neoadjuvant chemo for my stage iv HER2+ ER/PR- breast cancer. I have had two rounds of chemo & targeted theraphy and my tumour in my breast (which was around 10cm before we started with treatment) is now completely gone. My lymph nodes are also back to normal. This only after 2 rounds of treatment. I still have 4 to go, but not sure if that will stay that way given the incredible response. I have a PET scan again in 2 weeks then we will see how the metastic tumours on my liver has also been responding to the treatments. I am glad we started with chemo first. However, I must add, that since my initial diagnosis was stage iv from the get-go, the oncologist did tell me there is no use in surgery as the cancer has already spread. They were also positive/convinced that my cancer is HER2+ based on the biopsy results and could therefor use the correct chemo and targeted theraphy combo. But every patient is different, every doctor's approach is different. I had confidence in my medical team that what they suggested as the best treatment plan for me, was in fact the best plan. And now the results show it too. In the end, every patient should trust their own intuition and do their own research as well. If a doctor suggests something that you are not comfortable with or it does not make sense, ask the questions and get your answers before you say yes. I can also recommend reading Dr Kelly Turner's book "Radical Remission" and "Radical Hope"! Thinking of all my fellow cancer warriors and their loved ones 🙏
Hi, my name is Ricardo and I'm from Ecuador. My mom is sixty-two years old and was diagnosed with breast cancer. The biopsy says it's HER2 negative with a score of 1+ but the oncologist wants to run a FISH test to confirm it. According to the video, it says it's not necessary, but why does the oncologist want to confirm that HER2 is negative?
Great video. 7 yr HER2+ bc survivor/warrior. I had TCHP and was wondering if heart problems could come about years after taking Herceptin. I had MUGA scans during treatment and my cardiac output remained ok. I'm now 72 yrs old and am having issues with cholesterol, HBP and kidney issues (elevated urine ACR). I also take Letrozole because that tumor was also estrogen and slightly progesterone positive. No node involvement, Stage 1c or 1a. thanks.
Thank you Liz for a very informative video. Very helpful and easy to understand explanations. I am also a health care worker diagnosed with breast cancer, with no known risk factors. Currently on Kadcycla. Are CDK inhibitors ever used for HER2 + cancers?
Dear Liz, what is the best way to care for my mastectomy scar? Two weeks after surgery and later. Can you recommend scar care products? Thank you for your answer and your commitment.
I am upset that I did not get a clear response after chemo and herceptin. With such a low percentage of a clear response, why would people not be given the 2 drugs for a better result?
Thank you for this. I can attest to how good herceptin and perjeta are- I had pcr at surgery. I’m still on herceptin for 10 more rounds. What is the likelihood of recurrence if you had pcr and no node involvement ( stage 2 grade 3)?
After a biopsy in 2020 I was diagnosed with stage IV HER2+. To make a long story short, I went through six cycles of chemo and the tumor in my breast is gone, gone from my liver, but remains in my spine. I did not have surgery. I am currently still get the PHESG0 monitored with Echocardiogram and CT scan every four months. I get a rash and constipated on the third day after the shot. I still lack physical strength. I walk everyday and garden during the summer. Getting up off the ground is a chore. Can you suggest weight baring exercise routines that would be helpful and not harmful for patients? More research studies should be done on nutrition and natural herb support for patients. We all want to participate as no one wants to do more harm than good to themselves.
My mother got her2 positive breast cancer stage 4 im from india i don't want to lose her please suggest me what to do. Present she is on chemo herceptin and docitoxel. Please reply me doctor
Thank you very much for your video. I was diagnosed with Her2+ one year before. Ι had demobilizations inside my right breast, the laregest one was 0.7 mm. My oncologist said i was stage 1, but i did all the therapies you mentioned for stage 2 (chemo, radiation, herceptin-perjeta-fesgo) for 1 year. I am a little confused for that , do you think that this case would be different due to the fact i had demobilizations and not 1 normal tumor like everybody?
I was ER and Her2 + but wasnt given chemo or herceptin because they said the tumour was tiny (4mm). Although glad not to have gone through the awful treatment I'm still in two minds about the risk of recurrence.....
HER2+ and wasn't given chemo!? Did you do a genetic test? (I'm negative) I was initially diagnosed with stage 0. After the biopsy and surgery, they found the 4mm tumor, and I'm ER, PR, and HER2 positive. The lymph node is clear. For HER2+, I'm told that the risk of recurrence is about 10%, but if it does recur, it will be very fast and aggressive. If I get treatment, there is a 98% chance of preventing recurrence. I'm in the US so UK might be different but I'm also told that there isn't a standard treatment for under 5mm because there isn't enough study. So, my oncologist and breast cancer specialist told me that I should either get standard treatments or participate in a clinical trial (Harvard Medical, Dana-Farber, and BIDMC team) for prevention. I decided to do a clinical trial, which can be randomized to either standard treatment or TDM-1. Fortunately, I'm randomized into Arm 1, which is TDM-1, aka mini-chemo (less side effects/no hair loss). After that, I will undergo Herceptin, radiation, and then take a pill. This is only my day 3 on TDM-1, but I haven't experienced any side effects so far.
I’m trying to find out what are the possible effects of the 20,000 plus units of hyaluronidase in Phesgo. I’ve looked up the reviews for hyaluronidase which has many bad reviews from patients who receive a fraction of that amount to dissolve facial fillers. I’m concerned about it and would like to know whether any of the Phesgo patients have experienced side effects from receive such a large amount monthly. And would making the tissue more permeable be bad in terms of spreading cancer as well ad the other side effects. Supposedly there are also people who are allergic to hyaluronidase. Is this a concern? I haven’t found anyone talking about this and haven’t found info on it so far. Thank you.
I am er/pr + HER2+. Got 12 weeks of Taxol and Herceptin. Year of herceptin. 7mm tumor. But, looked like starry sky. It was every where. NOT in lymph nodes. Doing radiation. Then tamoxifen for 5 years. Lupron shots Also did Mastectomy first, then chemo and Herceptin. Only stage 1 Alot of DCIS some invasive
Hi Dr. Liz, ive been diagnosed with stage 3, her2 positive, er/pr negative, with 3 lymph nodes, im 34 years old, and frightened of recurrence, I’m receiving chemo 6 sessions then surgery and radiology, what are chances of recurrence?
Coming in... read your comment giving you hope and courage l was Stage 3 myself with ER negative and Pr negative 16 years later l am still here. They have so many new treatments and always coming out with new ones. Sending you a hug and you got this one day at a time.
Why do anti-HER2 treatment be given with chemo? Why? My friend had only Herceptin/Projetta and it melted all her stage 4 tumors bone liver breast away. It worked that good without chemo. So why chemo?
Hi Liz, Thanks you for the videos. My mom has triple positive stage 4 breast cancer and is undergoing treatment using PHESGO alongside chemo. Recent PET scan after 4 cycles of showed that the tumor is her lungs is gone while the tumon in breast has significantly shrinked. Is it now safe to do go for surgery ? or is surgery an option ?
I had grade 3 and had chemo (with CPR), surgery, rads and Phesgo. Last of 18 injections in October 2023. How long does it take to fully recover from treatment? Plus, you say Herceptin reduces the risk of recurrence so what risk is there? Also, how long does it take to fully recover from SMX + axillary node clearance on the inside i.e. on the inside plus scar area flattening out. Thank-you
@@hallilthompson8001 No scans, but I did have a blood test that checked for cancer cell markers several months after surgery, once I had completed radiotherapy.
My mother has been diagnosed with her 2 breast cancer stage 2 and she underwent mastectomy and radiation therapy chemotherapy and targeted therapy Is there any chances to get her daughter
Super helpful- thank you. I have a question please. What if you have CPR, double mastectomy (because you are young) and have had the Phesgo - should you be scanned at some point? I'm not hearing of a any scans post treatment. How would you know of recurrence? Surely a PET scan is advisable? If anyone knows anything please respond to me with info. Thanks in advance, and to all of you out there in the midst of the journey, I send you love.
My oncologist said no scans- just come in if you have symptoms. She said that there’s no real difference in outcomes from scans vs symptoms, and scans expose you to needless radiation.
We were told the same No scans unless symptomatic As Detection would not change the outcome. This is probably the only thing about cancer treatment that I just do not believe. To me even being able to have a pet scan every 2 or 3 years would make sense And hopefully provide peace of mind.
Hi Dr Liz, have you ever thought about building a global audience? We know how to help you reach more cultures, cross the borders, expand your image, boost your brand worldwide and increase revenue through AI or human dubs and translation. Say the word, and our team will get you settled 😉
Hope this will give someone here hope and strength l am 16 years Her2 survivor l am so grateful to all the new treatments and all the medical staff and lab scientist that made this happen for Her2 women.
I know of a friend's wife who had her2+ breast cancer and it became stage iv. She has been on anti her2 drugs and treatments and 12 years later she is still here. The treatments have changed over the years and it's not been an easy journey for her, but she has seen her children grow up.
That’s wonderful news. There are so many new drugs being developed and I hope she’ll be here for many more years to come xx
Hi Doc..
I was diagnosed breast cancer her2 positive… under treatment .. can you help me more on how to deal with it and prevent recurrence… what should I do.
Mine is hers negative
Thanks bro, your reply sound very positive
Thank you for sharing your story we need to have hope here.
Hi, I'm writing from Italy. I am 40 years old and I was diagnosed in March 2024 with carcinoma in situ but then after the mastectomy it turned out that it was predominantly in situ with two microinvasions of infiltrant only her2 +++ I made the mistake of reading the internet and I was very scared but then thanks to your video I calmed down a little and I believe that after having done Taxol 12 cycles and now Herceptin there are good hopes... Herceptin has profoundly changed the history of HER2 +++... Many thanks for everything the work you do for breast cancer...
All the way from Indonesia. Currently on my TC Chemo for my her 2 +++ BC. I believe this too shall pass.. thank you for accompanying Liz ❤
Thank you Liz, for this once more very interesting video. It's exactly my situation, HER- positive, stage IV. Just had a breast MRI where new lumps were found. Thanks to you, I am not completely devastated. There are still a lot of things that can be done! Thank you and all the best for you! Beate from Germany
Dear Beate. Thank you so much for sharing your story with us. Sending you a huge hug x
I admire as a doctor myself whose mother is going through her+ breast cancer. Your dedication despite going through this time is remarkable. I know you will get through this. ❤
Thank you x x and I hope your mum is OK
Thank you so much. I realize these videos take a lot of time and research to produce, so I appreciate that you share this information in a personable and approachable manner.
This video and comment section restores hope❤
I was diagnosed with HER2 + Hormone negative BC stage 2B in Jan 2021. Had PCR after 4 rounds chem (TCHP) (this is 2 less than protocol in the US and my choice), had mastectomy/reconstruction in one surgery and there was 0 cancer at surgery. I did not do the hercepton/perjeta maintenance, (again not protocol in the US). I fasted for 2-3 days before all chemo, was extremely sensitive to the TCHP, lost all hair, lost weight, had skin rashes, eye problems, etc., but everything came back exactly the same afterwards. Feeling great, and very positive. I always check to see the latest treatments and information on HER2 + BC.
Keep up the incredible work, Liz
I’ve only come across this video liz. I had her2 positive ER positive and PR positive. Found out it was stage 3 after the pathology report. Had chemo, surgery radiotherapy.Doing 14 cycles of tratuzamab, also on tamoxifen. Doing well apart from the tiredness. Thank you for taking the time to do these very informative videos which such a full plate already.
I’m exactly the same as you got my surgery in 2 days it seems a lot doesn’t it but we have to be thankful there is medication to help. Good luck with everything I’m with you 🙏
@@helensmith8349 you’re the only other person I’ve spoken to that’s the same. Most I’ve met are triple negative or ER positive. Hope you’re healing well. Are you doing the adjuvant treatment after?
@@sueb9692 sorry got confused I’m just HER2 positive and E R positive . Having lumpectomy in few days then chemo for about 4 months ,trastuzumbub injections for a year and radiotherapy and I’ve started on tamoxifen already. Not too nervous about surgery but dreading chemo it’s going to be a trying year ahead. Good luck Sue 🦋
@@helensmith8349 tratuzamab is so much easier. Tiredness is bad with it. I’ve neuropathy in my feet now but I’ve just done cycle 10. I’ve 4 more to go. We will get through this. Good luck on the road ahead 💕
I am triple positive stage 3 breast cancer too. Did your oncologist suggested to undergo chemo with trastuxumab and pertuzumab or just chemo and trastuzumab?
Thank you so much Liz x you know how much you making this means to me. You’re amazing 🤩 x
You are so welcome!
Thank you so much Dr.Liz. Very well explained. I am currently on herceptin injection 3rd weekly. I am sure your videos been very informative to many of us . Thank you 🙏 God bless!
Dr Liz. Is her 2 positive hereditary? I mean if my mom had her 2 positive breast cancer i will have it?
Thank you so much for that wonderful video. I’m ER PR postive and my her 2 test was a one. Which is now considered HER 2 Low. Which is great is some ways because now I have more drug options down the road 🎉
It’s reassuring isn’t it?
For sure!!! Your amazing ❤️
Hello Liz, Thank you so much for all the information you are putting out there. I've watched all of your videos. I was recently diagnosed with HER2 Stage 2; a month after having my baby (found the lump while breastfeeding), I just turned 34. I have talked to my oncologist about recurrence rate and it seems like statistics are somewhat limited because of the fairly new treatments. I would just love to know if in your opinion, HER2 is the type of cancer that always finds its way back, or has there been cases where HER2 stays away for good?
All i know is Her2 positive are active cells and there are specific drugs to address it. The thougjt of its recurrence is haunting me sonetines even if im still under medication. But thank you so much for such an enligthening discussion on this topic. It gave us, her 2 positive patients more hope now. God bless
Hi Dr. Liz, Does the Her2 vaccine come into play during the Her2 (in my case triple positive) journey? If so, at what point? Thank you.
Dr Liz thank you so much, the information you share is awesome. I am Her2+ which metastasized and started ricocheting off of my bones so my Dr who Is at MSK and is nationally know for this specific cancer decide to start chemo right away and it worked. Pet scan shows NO sign of cancer and now I’m on herceptin & projeta and she’s saying that surgery is not warranted now. It’s so hard to stop thinking of the chance of recurring. I trust my Dr and she has also told me that if I still feel the same way in a couple of months that I can visit with the surgeon. She will be doing periodic pet scans. Your thoughts?
Hello,are you in the UK? I would love to know the name of your doctor,..fantastic news! I wish you all the best x
A great and well-informed video, thank you
Thank you so much Dr.Liz. please make a video on metastatic triple positive breast cancer and its treatments
There aren’t many new treatments for Er+ cancers but I’ll add this to my list x
I’m her2 positive. 3 tumors total. 2 of them were 2 cm and the other was .9 I had chemo plus the immunotherapy. I had a double mastectomy and reconstruction, no lymph node involvement. I’m doing well now and just trying to keep avoid reoccurrence.
Praying for full recovery
Thank you so much for this video. I’ve just been diagnosed with HER2 + grade 3 breast cancer and need all the information I can get about what is going to happen during my treatment.
I was diagnosed with Hers 2 i have already did surgery now waiting for chemo all will be well
This is exciting and wonderful news. Thank you so much!
It really is!
Great video breaking it down for people to understand. i am Triple positive with small tumor size, and considering clinical trial using Kadcyla, or TDM1.
Have you started the kadcycla?
@ no i chose the standard route of taxol herceptin. i just finished taxol 3 weeks ago. minimal side effects
@@mariemiller6756 that’s nice that you get to choose. I thought we all start off with Taxol and Herceptin then if treatment is partial response we start kadcycla.
@ my facility offers clinical trials in why i was offered but yes taxol herceptin is the standard route and that's why i chose it
Hello doctor thank you so much for this informative post I am 71 and I would like to mention that I have HER2 positive I had my surgery and 5 sessions of radiotherapy and then Letrozol but I couldn’t manage so they switched to Tamoxifen and nothing of what you’re speaking about I forgot to say I had my surgery enf of March 2023
Once again thank you so much
That makes sense. Many older ladies can’t tolerate the side effects of herceptin so are just given Tamoxifen.
@@DrLizORiordan many thanks doctor for your reply I said to myself you will kindly answer me so thanks again
Dr. Liz, what about triple positive, but calcificacions not tumor, 1cm. No lymph nodes involved. Is the same treatment? Thanks
Thank You so much this video!
My wife was misdiagnosed as hers2 negative on core needle biopsy and then changed to hers2 positive after her surgery. She had already had her chemo because her doctor talked her into this new age "chemo before surgery" crap. Now they are going to just give her TDM1 and hope for the best. NEVER let them talk you into chemo first!
Please help, what do recommend should come first, my friend is
scared to the moon, she’s been asked to start chemotherapy on Monday before her surgery. She has hers +ve.
I am currently undergoing neoadjuvant chemo for my stage iv HER2+ ER/PR- breast cancer. I have had two rounds of chemo & targeted theraphy and my tumour in my breast (which was around 10cm before we started with treatment) is now completely gone. My lymph nodes are also back to normal. This only after 2 rounds of treatment. I still have 4 to go, but not sure if that will stay that way given the incredible response. I have a PET scan again in 2 weeks then we will see how the metastic tumours on my liver has also been responding to the treatments.
I am glad we started with chemo first.
However, I must add, that since my initial diagnosis was stage iv from the get-go, the oncologist did tell me there is no use in surgery as the cancer has already spread.
They were also positive/convinced that my cancer is HER2+ based on the biopsy results and could therefor use the correct chemo and targeted theraphy combo.
But every patient is different, every doctor's approach is different.
I had confidence in my medical team that what they suggested as the best treatment plan for me, was in fact the best plan. And now the results show it too.
In the end, every patient should trust their own intuition and do their own research as well. If a doctor suggests something that you are not comfortable with or it does not make sense, ask the questions and get your answers before you say yes.
I can also recommend reading Dr Kelly Turner's book "Radical Remission" and "Radical Hope"!
Thinking of all my fellow cancer warriors and their loved ones 🙏
very interesting, thanks for your time , doctor!
Glad you enjoyed it!
Hi, my name is Ricardo and I'm from Ecuador. My mom is sixty-two years old and was diagnosed with breast cancer. The biopsy says it's HER2 negative with a score of 1+ but the oncologist wants to run a FISH test to confirm it. According to the video, it says it's not necessary, but why does the oncologist want to confirm that HER2 is negative?
Ive done left mastectomy last month, now I'm waiting the result of my biopsy
Great video. 7 yr HER2+ bc survivor/warrior. I had TCHP and was wondering if heart problems could come about years after taking Herceptin. I had MUGA scans during treatment and my cardiac output remained ok. I'm now 72 yrs old and am having issues with cholesterol, HBP and kidney issues (elevated urine ACR). I also take Letrozole because that tumor was also estrogen and slightly progesterone positive. No node involvement, Stage 1c or 1a. thanks.
Thanks for your care.
Always!
Hi doc Liz.You have mentioned so many medicine for Her2 positive..Here in the Philippines we only use herceptin trastuzumab..
I'm in Canada and we don't have some of these treatments either. I only received herceptin and nerlynx
I hope that you will get access to the newer drugs soon x
Thank you Liz for a very informative video. Very helpful and easy to understand explanations. I am also a health care worker diagnosed with breast cancer, with no known risk factors. Currently on Kadcycla. Are CDK inhibitors ever used for HER2 + cancers?
The CDK Is are only used for Er+ cancers at the moment.
I’m on TC and phesgo, my initial Phesgo was given as a 15ml injection to the thigh, and since then 10ml every following injection
Dear Liz, what is the best way to care for my mastectomy scar? Two weeks after surgery and later. Can you recommend scar care products? Thank you for your answer and your commitment.
Just a simple moisturiser. My breast care nurses used to recommend Aveno
Why do you have to have chemotherapy first before Herceptin and Perjeta?
I am upset that I did not get a clear response after chemo and herceptin. With such a low percentage of a clear response, why would people not be given the 2 drugs for a better result?
Is doctor giving you something after chemo?
Thank you for this. I can attest to how good herceptin and perjeta are- I had pcr at surgery. I’m still on herceptin for 10 more rounds. What is the likelihood of recurrence if you had pcr and no node involvement ( stage 2 grade 3)?
It’s lower
I got Herceptin and perjeta infusion for a year after I finished THCP, is that the same as the injection?
After a biopsy in 2020 I was diagnosed with stage IV HER2+. To make a long story short, I went through six cycles of chemo and the tumor in my breast is gone, gone from my liver, but remains in my spine. I did not have surgery. I am currently still get the PHESG0 monitored with Echocardiogram and CT scan every four months. I get a rash and constipated on the third day after the shot. I still lack physical strength. I walk everyday and garden during the summer. Getting up off the ground is a chore. Can you suggest weight baring exercise routines that would be helpful and not harmful for patients? More research studies should be done on nutrition and natural herb support for patients. We all want to participate as no one wants to do more harm than good to themselves.
Have a look at Wellen, an online program created by a physiotherapist for osteoporosis
How are you madam I'm from India my mother has same her2 please give me suggestions to help her better
My mother got her2 positive breast cancer stage 4 im from india i don't want to lose her please suggest me what to do.
Present she is on chemo herceptin and docitoxel.
Please reply me doctor
Hi, where is your mother getting treatment in India?My mother also has her2 positive. Please share your experience
@@lavanyamadan6151 in Hyderabad
Thank you very much for your video. I was diagnosed with Her2+ one year before. Ι had demobilizations inside my right breast, the laregest one was 0.7 mm. My oncologist said i was stage 1, but i did all the therapies you mentioned for stage 2 (chemo, radiation, herceptin-perjeta-fesgo) for 1 year. I am a little confused for that , do you think that this case would be different due to the fact i had demobilizations and not 1 normal tumor like everybody?
Does herceptain cause aching muscles
I was ER and Her2 + but wasnt given chemo or herceptin because they said the tumour was tiny (4mm). Although glad not to have gone through the awful treatment I'm still in two minds about the risk of recurrence.....
HER2+ and wasn't given chemo!? Did you do a genetic test? (I'm negative) I was initially diagnosed with stage 0. After the biopsy and surgery, they found the 4mm tumor, and I'm ER, PR, and HER2 positive. The lymph node is clear. For HER2+, I'm told that the risk of recurrence is about 10%, but if it does recur, it will be very fast and aggressive. If I get treatment, there is a 98% chance of preventing recurrence. I'm in the US so UK might be different but I'm also told that there isn't a standard treatment for under 5mm because there isn't enough study. So, my oncologist and breast cancer specialist told me that I should either get standard treatments or participate in a clinical trial (Harvard Medical, Dana-Farber, and BIDMC team) for prevention. I decided to do a clinical trial, which can be randomized to either standard treatment or TDM-1. Fortunately, I'm randomized into Arm 1, which is TDM-1, aka mini-chemo (less side effects/no hair loss). After that, I will undergo Herceptin, radiation, and then take a pill. This is only my day 3 on TDM-1, but I haven't experienced any side effects so far.
I’m trying to find out what are the possible effects of the 20,000 plus units of hyaluronidase in Phesgo. I’ve looked up the reviews for hyaluronidase which has many bad reviews from patients who receive a fraction of that amount to dissolve facial fillers. I’m concerned about it and would like to know whether any of the Phesgo patients have experienced side effects from receive such a large amount monthly. And would making the tissue more permeable be bad in terms of spreading cancer as well ad the other side effects. Supposedly there are also people who are allergic to hyaluronidase. Is this a concern? I haven’t found anyone talking about this and haven’t found info on it so far. Thank you.
What is the solution if cancer caused bone compression in spine?
Hi I'm from India Telugu
Be strong our body has immunity to fight
My mother got breast cancer
@@Telugumoviemagics same here, stage 4
@@radhanaidu9979 eni years ayindhi can you give your number
@@radhanaidu9979 how many years back traced
@@radhanaidu9979 my mother also stage4 what is the medicine your taking
I am er/pr + HER2+. Got 12 weeks of Taxol and Herceptin. Year of herceptin. 7mm tumor. But, looked like starry sky. It was every where. NOT in lymph nodes. Doing radiation. Then tamoxifen for 5 years. Lupron shots
Also did Mastectomy first, then chemo and Herceptin.
Only stage 1
Alot of DCIS some invasive
Hi Dr. Liz, ive been diagnosed with stage 3, her2 positive, er/pr negative, with 3 lymph nodes, im 34 years old, and frightened of recurrence, I’m receiving chemo 6 sessions then surgery and radiology, what are chances of recurrence?
Coming in... read your comment giving you hope and courage l was Stage 3 myself with ER negative and Pr negative 16 years later l am still here. They have so many new treatments and always coming out with new ones. Sending you a hug and you got this one day at a time.
Why do anti-HER2 treatment be given with chemo? Why? My friend had only Herceptin/Projetta and it melted all her stage 4 tumors bone liver breast away. It worked that good without chemo. So why chemo?
I have also wondered this as I been through the chemo too but I'm not sure which meds shrunk my tumours Perjeta and or herceptin...
Hi Liz, Thanks you for the videos. My mom has triple positive stage 4 breast cancer and is undergoing treatment using PHESGO alongside chemo. Recent PET scan after 4 cycles of showed that the tumor is her lungs is gone while the tumon in breast has significantly shrinked. Is it now safe to do go for surgery ? or is surgery an option ?
I can’t give personal medical advice but your mom’s team will know what to do
I had grade 3 and had chemo (with CPR), surgery, rads and Phesgo. Last of 18 injections in October 2023. How long does it take to fully recover from treatment? Plus, you say Herceptin reduces the risk of recurrence so what risk is there? Also, how long does it take to fully recover from SMX + axillary node clearance on the inside i.e. on the inside plus scar area flattening out. Thank-you
I hope you don't mind me asking, but did they give you any scans post-treatment after your CPR?
@@hallilthompson8001 No scans, but I did have a blood test that checked for cancer cell markers several months after surgery, once I had completed radiotherapy.
It can take 6-12 months to recover depending on the treatment you had but everyone is different. For surgery 2-4 weeks
My mother has been diagnosed with her 2 breast cancer stage 2 and she underwent mastectomy and radiation therapy chemotherapy and targeted therapy
Is there any chances to get her daughter
No.
Super helpful- thank you. I have a question please. What if you have CPR, double mastectomy (because you are young) and have had the Phesgo - should you be scanned at some point? I'm not hearing of a any scans post treatment. How would you know of recurrence? Surely a PET scan is advisable? If anyone knows anything please respond to me with info. Thanks in advance, and to all of you out there in the midst of the journey, I send you love.
My oncologist said no scans- just come in if you have symptoms. She said that there’s no real difference in outcomes from scans vs symptoms, and scans expose you to needless radiation.
We were told the same No scans unless symptomatic As Detection would not change the outcome. This is probably the only thing about cancer treatment that I just do not believe. To me even being able to have a pet scan every 2 or 3 years would make sense And hopefully provide peace of mind.
Thank you for responding I wish you a cancer-free forever!@@ireneshonle2942
Thank you so much. I wish you a cancer-free forever@@nancybee250
We don’t routinely scan people unless they have symptoms
I cannot do kadcylis
My cancer is SNB 13mmGr2+HGDCIS(total 14mm)
Thanks for sharing this
Have you seen the recent research on Ivermectin?
Are whole flaxseeds bad for breast cancer .
Absolutely they are not. They will help you against the constipation during chemo. Just have 2 teaspoons per day
I don’t know.
As a doctor should you not find out
@user-ew9or8ct3v what a rude person you are!!! No she does not!!!!
Is Her 2 positive breast cancer hereditary
It doesn’t work like that. Hereditary cancers can have any combination of ER and HEr2 receptors. Most are TN
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No kadcula no cancer only trastuzumab only
3 times, did you have a very aggressive type ?
No. I just had 2 local recurrences
The