I have autism spectrum disorders, and this is exactly why I'd never move to a group home or attend a day program. Government assistance is very inefficient in funding disability services and taking care of adults with disabilities. I'd hate to have my life planned for me and have no autonomy.
I have high-funtional autism and learning disabilities and hypotonia. I'm living on my own and I have a caregiver that cleans and cooks every week and I have a couple of days of day programs. However, my case manager is forcing me to go to a group home. I don't want to move out of my apartment. She's scaring my aunt Cheryl and thinking that my apartment is a prison, because I don't have a job. I can vote in my building and I can get groceries delivered to my apartment from Kroger. Everyone else lives in my building and some people are not working or anything and they get to keep their apartments Meadowbrook Manor apartments in West Bend, WI, is for the disabled and elderly. I'm happy where I am.
This is why patients/individuals dread the thought of going into a nursing home. There is no choice, no autonomy and always limited staff to tend to their needs.
I live in a group home at the moment and they are so good to us. We have the same staff week to week with set schedules. We get to choose what we eat and cook ourselves and staff helps us as needed. The true down side I found to group home living is these: 1. We deal daily with people with different disabilities and they do effect us and our progress negatively at times. 2. We do not get community involvement and do not get out of the house much unless we go to day hab. Also we do not get to chose our activities or choose who lives with us. I decided to move to a host home where I will get community involvement and one on one care as I will be the only disabled person in the home.
I was living in 4 different group homes from my late 20's to my mid 30's. I was bullied mercilessly to where one accident left me with no front teeth. It was hell there in each group home especially the guy that bullied me and was always looking at porn on my government phone when I let him use it. I wish I should have chosen to be homeless instead of going to the group home. I'm now in my late 30's living in what appears to be a boarding home and it's hell here. I'm traumatized From my past experience and each day things seem to get worse. I can't catch a break no matter where I go, what I do.
I wonder whether the senior-style assisted living model could be adapted to cater to younger people. There's no denying that most people with intellectual and developmental disabilities need assistance with at least a few basic activities of daily living, and in an assisted living type community, they'd be able to have their own suites, apartments or cabins/cottages and get the freedom and autonomy to thrive. The only real Achilles heel I can see with this model is the cost, we'd have to somehow bring the cost down such that younger adults with neurological disabilities could afford it.
Even though I agree that group homes and day programs are not a good option and CAN be dangerous what options do we as parents have when your adult child requires 1:1 care and support to have a meaningful life? I’m a professional and I’ve scoured the area to find these options and they are just not there! I’ve created great 1:1 programs but when you cannot hire caregivers and have complex needs I’ll be curious what you’ll share cuz I’m a bit lost and how this will happen as I’m already in my 60’s!
What about lower functioning adults? We need a live-in caregiver for our son with Down Syndrome and trusting a supportive roommate is a LOT of trust. What if it doesn't work out? We need some kind of agency that has continuity of care
But I wish I could live with my family since they say I'm ready to live on my own right now and I'm stuck going to the day program too instead of getting a job
I have autism spectrum disorders, and this is exactly why I'd never move to a group home or attend a day program. Government assistance is very inefficient in funding disability services and taking care of adults with disabilities. I'd hate to have my life planned for me and have no autonomy.
I agree with you.
Same here! Also autistic!
I have high-funtional autism and learning disabilities and hypotonia. I'm living on my own and I have a caregiver that cleans and cooks every week and I have a couple of days of day programs. However, my case manager is forcing me to go to a group home. I don't want to move out of my apartment. She's scaring my aunt Cheryl and thinking that my apartment is a prison, because I don't have a job. I can vote in my building and I can get groceries delivered to my apartment from Kroger. Everyone else lives in my building and some people are not working or anything and they get to keep their apartments Meadowbrook Manor apartments in West Bend, WI, is for the disabled and elderly. I'm happy where I am.
I live on my own too! But get support from my parents over the phone.
This is why patients/individuals dread the thought of going into a nursing home. There is no choice, no autonomy and always limited staff to tend to their needs.
It's worse than prison to be in a system where life is prescribed by family and determined by the government, and you have no autonomy.
I have to live in a group home. I've never been in a group home. I dont want to live in a group home. I'm not use to living with strangers.
Sadly, there are not many options for lower functioning people with more medical concerns.
I live in a group home at the moment and they are so good to us. We have the same staff week to week with set schedules. We get to choose what we eat and cook ourselves and staff helps us as needed. The true down side I found to group home living is these: 1. We deal daily with people with different disabilities and they do effect us and our progress negatively at times. 2. We do not get community involvement and do not get out of the house much unless we go to day hab. Also we do not get to chose our activities or choose who lives with us. I decided to move to a host home where I will get community involvement and one on one care as I will be the only disabled person in the home.
I was living in 4 different group homes from my late 20's to my mid 30's. I was bullied mercilessly to where one accident left me with no front teeth. It was hell there in each group home especially the guy that bullied me and was always looking at porn on my government phone when I let him use it. I wish I should have chosen to be homeless instead of going to the group home. I'm now in my late 30's living in what appears to be a boarding home and it's hell here. I'm traumatized From my past experience and each day things seem to get worse. I can't catch a break no matter where I go, what I do.
I wonder whether the senior-style assisted living model could be adapted to cater to younger people. There's no denying that most people with intellectual and developmental disabilities need assistance with at least a few basic activities of daily living, and in an assisted living type community, they'd be able to have their own suites, apartments or cabins/cottages and get the freedom and autonomy to thrive. The only real Achilles heel I can see with this model is the cost, we'd have to somehow bring the cost down such that younger adults with neurological disabilities could afford it.
WILO in West Montreal
I DIDN’T WANT TO MOVE INTO A GROUP HOME GROUP HOMES OFFER A ONE SIZE FITS ALL THAT DOES NOT WORK
Even though I agree that group homes and day programs are not a good option and CAN be dangerous what options do we as parents have when your adult child requires 1:1 care and support to have a meaningful life? I’m a professional and I’ve scoured the area to find these options and they are just not there! I’ve created great 1:1 programs but when you cannot hire caregivers and have complex needs I’ll be curious what you’ll share cuz I’m a bit lost and how this will happen as I’m already in my 60’s!
Eric you and me are on the same 🛥️ we are against group homes I almost wanted to move into 1️⃣
My upstairs neighbours go downstairs into my bathroom to do their laundry.
I am my own guardian too.
Same here!
What about lower functioning adults? We need a live-in caregiver for our son with Down Syndrome and trusting a supportive roommate is a LOT of trust. What if it doesn't work out? We need some kind of agency that has continuity of care
Eric I lived in 4 group homes
But I wish I could live with my family since they say I'm ready to live on my own right now and I'm stuck going to the day program too instead of getting a job
well said
Eric I almost wanted to move to cherry wood on Seymour lake rd.on candy cane Christmas tree 🎄 farm