Is the Hospice Industry Really Corrupt?
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- Опубліковано 18 гру 2022
- Here is my second/next video on Hospice:
• How Can Being on Hospi...
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Joe is a Certified Senior Advisor, Dementia Care Certified, and owner of Assisted Living Locators (Bergen County, NJ).
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As my mother's caregiver, I have realized that she has been sent to hospice care at home. I was lied to and she did not even realize where she was being sent. I almost lost my mother due to a medication she was prescribed by her RN which she did not even need. I'm working towards getting justice done to others who are being killed by this system.
I am very sorry to hear this. I hope you can find peace a resolution to this.
@@AssistedLivingAnswerMan thank you very much for your sweet comment. I'm praying that I could find justice for others who are suffering what she has gone through.
❤
Yes. Hospice is not what it was years ago. It's all about the money. My mom was put on hospice 2 weeks ago fur a brain tumor. Now of the 4 diff nurses or the head RN KNOW A DAMN THING ABOUT MY MOM. I have been caring fur her at home 2 yrs now with no family near and no help at all. I was already so exhausted before the 911 to hospital that' is 2 hours from home. Hospice sucks. They sent so much crap that we don't need. o2 machine, portable o2 . A bed that is awful. And she fell and hurt her back last week. Automatically morphine. She don't need that. She had never taken pain medication. And they will not listen to the caregivers at all. I'm in eastern KY. And I am a nursing home Nurse. I know Hospice and what they used to be. They will not send help at all. If you are lucky a nurse will show up once a week to take vitals. That's it. I'm gonna take my mom off Hospice. As soon as she can stop the Ativan she anxiety. That's why she fell 9 xs in one day she goes manic and will not be still.
@@Jeannie70 I'm sorry that you are going through all this. My mother was given weeks to live and the nurses didn't even know what they were doing. Her blood pressure was in the 60s, which made me think she was not to make it. Fortunately, I did not allow them to give them any more anxiety pills, which she had never taken or needed. All this did was lower her blood pressure and put her to sleep all day. As soon as I stopped the anxiety pills and the painkillers, my mother's bp started to go up and she is under my care alone as like you, I have no one in Florida to help me with her. I started to complain and took her out of hospice. She has been under my care since January and has a clinic and home health that comes to see her at home and treat her wounds. She no longer has anemia, high cholesterol, or any of the other conditions they claimed she had. I have to admit that if I had to work I would have never been able to do it. Being a caregiver has affected my physical and mental health, but at least she is doing great. She could walk and is not bedbound any longer. I know she is 87 and may go at any time, but it will be God's will when she goes and not hospice. I wish you the best and may the Lord bless you and give you all the health and strength in the world. It is very difficult and stressful to be a caregiver, especially when we are alone and it is our parents who we are caring for. Take good care of yourself, please.
Another eye opening video. Appreciate being educated on this sensitive subject.
Thank you Mark!!!
ua-cam.com/video/-UikHCFTQI4/v-deo.html
While there are a few bad hospice companies. Assisted living centers rarely if ever tell the new residents families they will need to step in and either pay more or medicate the resident when they decline. As a health care provider, I don't recommend assisted living centers as the families often end up paying more than a nursing home and receive less care. In addition, the assisted living centers rarely if ever are staffed with a nurse to medicate the patient so they their the family stays the night or they have to pay an outside nursing company to stay with the resident of an assisted living center. Who's more likely to be corrupt?
ua-cam.com/video/-UikHCFTQI4/v-deo.html
Thank you for sharing this comment. Although I don't agree with everything you shared. There are many good and reputable Assisted Living companies. If a person does not need "Skilled Nursing Care" then they probably will not be admitted into a Nursing Home.
Assisted living can be expensive as services are added on. They also do not coordinate or make referrals.
Medicate, that's the problem right there people are being poisoned
They are trying to push my mom on hospice…… a company owned by united healthcare……she is not even terminal
Many people consider Hospice as a way to get extra help without paying for it. Many people get on and off hospice multiple times. Wishing your mother strong health and a strong recovery. And I hope you do not stress too much about this. Thank you for sharing your comment.
Go to God He cares learn true health the ministry of healing by Ellen g white explains everything free download God bless you richly
I am new at being sick. When covid was around, the parks and libraries were shut down. I stopped exercising. Nowhere to go. After a year of that, a itchy spot became apparent on my ankle. I thought it was poison ivy. Then this spot got bigger and bigger to the point that both my legs were covered with it. The itchy stopped, but my muscles weakened. My legs were draining some kind of fluid I had never experienced before. I could no longer move like I wanted to. My diet changed. Nothing tasted good. Milk was all I could tolerate. I wanted to lose weight anyway. But then I fell and couldn't get up. I was taken to a hospital that knew how to lessen the swelling of my legs, but these legs hurt a lot for some reason. No one would tell me why.
Then I got a ride to a nursing home. They did nothing but put bandages and ace wraps on my legs. Pills did nothing and the foods were toxic carbohydrates and sugars. This was a huge, nice place where everyone got their own bedroom. After a month it was time to go. No one spoke to me about where I should go. They gave me no suggestions. People showed up with places to live way above my budget. Then a man showed up on the last day that insurance would pay. I wasn't warned of him. It was scary, yet I had to get out of there. He did say he was taking me to a group home, I think. So I went. This group home put 2 people in the same small bedroom. The bathroom was too small for a wheelchair. I had to use a portable potty in the closet. This house was too small for the 5 people they were taking money from. The first two weeks they could get no money from me. But I was allowed to stay because they thought they would get money later. But I could not stand to be there anymore because they locked the door from the INSIDE. Plus a whole lot of hospice type people showed up. They wanted me to sign papers. No money was involved. My first experience with hospice people.
Somewhere in there I had received papers from a doctor saying that he expected my health to go down in 6 to 12 months. My health is fine except for the metabolic acidosis diagnosis I was given. Since when does itchy, hurting legs turn into death?
I didn't know I was on the edge of dying. No one in that place was on the edge except one man did have some kind of stroke.
I moved from that house soon after to go back to the RV I had been living in. These hospice people showed up there, too. Maybe 2 or 3 times somebody wrapped my legs with products they brought. A man showed up maybe 5 times just to talk. I still could not walk except for leaning on things. Then they stopped. Later on while I was in another nursing home I got a medicare bill. Medicare had paid this hospice $5200 for only a few visits. This sounds like a whole lot of cheating to me.
Thank you for sharing these details of your experience. I am very sorry to hear that people were dishonest and took advantage of you. I hope you are able to get the right help and advice in the future.
@@AssistedLivingAnswerMan The nursing home I am in now is taking $858 of my social security a month for what? I don't know. These nursing homes are taking in around $6000 a month per person. That means $12000 for two people in the room I share with another person. This is one bedroom that fits two twin beds and 2 drawers and 2 wheelchairs, even though these block the ways to get out unless they are moved. That is outrageous. HHS - health and human service is in this scam with them. They sent me papers saying I owe $858 a month to this nursing home. This while this nursing home has decided to not furnish me with incontinent pads. When I came into this facility they had me sign a paper saying I had to drop the insurance I had if I wanted to live there. I signed a paper and now they can stand over me while I take pills because that is the rules- in case I decide to not take the pills. A couple of staff are rude about it, so I stopped taking all of the pills. The residents rights poster on the wall says I can take care of myself.
In July I am going to stop paying them from my social security money. My roommate says she is not paying them and so far she has a bed. She says medicaid is paying for her stay and that should be good enough. I need a lot of things they won't furnish, so they are taking money and not giving back. How cruel is that? Most of the people here have dementia or are too tired to get up. Or are very lost and yell a lot. These people probably have their SS money being taken from them too.
They didn't even ask me about why I am in a wheelchair. Losing the cartilage between my leg and hip bones is painful and debilitating. They don't ask me why I must sleep in a lounge chair next to their hard, steel framed bed. They don't try to fix the situation. They are so highly unprofessional here it is heart breaking.
You had chronic veinous insufficiency and just needed radio frequency ablations! Ive had same physical symptoms as you and googled everything and found a good vascular surgeon…. go get a great vascular surgeon!
Plz read my comment!
That’s what I’m wondering. I was recently diagnosed with cancer and only have 2-6 months to live, so they say. I did not have any insurance. I was only in the hospital for a week. No surgeries, just tests. They told me that I need to be on hospice and that it would cost me nothing. Hospice has been here several times for me to sign,papers and to just talk. They didn’t even do anything. I have heard that they can put a lien on my house.
I am starting to journal when they come, what they do and how long they stay. I think I need an attorney?
Dear Lord I'm in hospice & this is scary.
Prayers for healing and peace upon you.
Ask for a certified hospice nurse CHPN and transfer to a non-profit hospice if you arent happy. Best wishes
My father is being itimidated into palliative care (stepping stone to hospice) and i can tell cardiology is just tired of working w him. He is older w whole realm of issues but the “sales rep” doctor that came to their home definitely fluffed up his numbers to make it seem he was dying shortly. There is also a great article titled DOCTORS SAY HCA HOSPITALS PUSH PATIENTS INTO HOSPICE CARE TO IMPROVE MORTALITY STATS by NBC. Great article. Big healthcare is trying to rid itself of needy patients to help their own stats.
Thank you for your video!
I definitely need to look into this article!
ua-cam.com/video/-UikHCFTQI4/v-deo.html
Your father needs to file a case with the State showing that the doctor has violated his legal patients rights "To participate in decisions involving their health care if capable." The person that has durable power of attorney and medical directive needs to step up and take over immediately. If he does not have them you need to get a lawyer and file for guardianship/conservatorship for your father. Last up, the person the now has the legal rights to care for him needs to find him a new doctor.
Wow, thank you very much for sharing this info. I am sorry for your father's situation. I hope everything works out for the best for him.
Thank you for sharing these details!
I didn’t listen to the whole video, but hospice was an incredible blessing to my family for both my parents. And yes, my parents both lived much longer than 6 months. My dad was 100% bedridden and was on hospice for 2 1/2 years. He died at 92 years old in the home he lived in for over 60 years. Without hospice, we would not have been able to honor my dad’s wishes to die at home. I feel he lived much longer because of hospice. He had consistent nurses, bath aide’s, chaplain and social worker. They also brought in pet therapy and music therapy. I highly recommend hospice to everyone who is in a similar situation.
❤ God's will before your parents .
Thank you for sharing your experience. I am glad to hear it worked out well for your father. Hospice is a great service for those who need it! (The problem is when people who do need hospice are put on hospice.)
My mom is 93 and has pneumonia. She was discharged from the hospital to the hospice floor, which is not owned by the hospital, at the urging of someone who came to talk to our family about the benefits of the sixth floor hospice program. It sounded great to us and sounded terrific for my mom because we wanted comfort care for her because she had multiple illnesses and was very sick, almost dying several times in the past week. She has been in hospice on that floor for 24 hours and we get a surprise call from their social work staff saying they wanted to Basically boot my mom out of their facility and put her in a nursing home where they would provide hospice care. The social worker wanted to know how much my mom could put up as collateral for the nursing home. Our understanding was that my mom would stay there in her final moments and be cared for, but they said no, that was not the case. They claim my mom is doing better, but she is not. They gave her morphine because she was in pain, which I thought meant that she was dying. Essentially, I feel like we were scanned and now the family is reeling because we don’t know where to put Mom. She is extremely weak and her breathing is very irregular and shallow, then we’ll get fast. She has Medicare and we signed papers for her to have hospice there and she was excepted into the hospice program, but then we get this totally unexpected call saying she was getting the boot and we have no idea what to do now. my brother and I live here and we both have disabilities, but since the house will have to probably be put up as collateral, we will be looking for a place to live. I don’t understand any of this. We will be meeting with the social worker tomorrow. we cannot care for Mom without lots of help, but we would be willing to have her at home if we had that help. But they wanted to know about my mom‘s assets for the nursing home transfer, which was never discussed with us at all when we signed up for this program. please keep us in your prayers. I never thought I would be homeless because of this situation. We love my mom so much and would do anything for her, but without help at home, especially at night, we cannot care for her.
I am so sorry to hear about this. As you requested, I will lift up a prayer for your mother and this whole situation. I believe the laws and practices differ according to which state you are in. I strongly encourage you to try to get to know people in your area who know the system and know the right people in the industry. Knowledge is power. And knowing the right people always helps.
In order to qualify for Hospice and be certified as eligible, you must have a terminal condition. Next, the doctor has to prognosticate that the terminal condition is likely to result in death within 6 months. That prognostication is quite tricky, depending on the diagnosis. It is very possible for someone to qualify for Hospice, and to live for another year or two after the certification of eligibility, although that is uncommon. In fact, about 1/3 of patients are only on Hospice for one week or less. Hospice is actually most beneficial for patients who are able to utilize it for 6 months. Having had a father, mother-in-law and close family friend who lived one month or less once Hospice was in place, I wish we had realized how close to death they were at that time and put Hospice into place much sooner than we did. Many familieis feel that way. I now work for a non-profit Hospice and I am extremely proud of the service we provide to our patients and their families.
Thank you for sharing your experience. And thank you for the good work you continue to do!
One of my colleague is being scammed into staying at hospice because he is NOT dying and easy to maintain. This maximise the profit for the hospice while getting government funds.
ua-cam.com/video/-UikHCFTQI4/v-deo.html
Sad situation. Thank you for sharing. Changes need to be made in the system.
Thank you so much for this video! I really needed it. I take care of my 86 year (young) dad. It’s been 6 weeks since I brought him home. He was diagnosed with Parkinson’s disease, diabetes, rheumatoid arthritis, enlarged prostrate, anemia, congestive heart failure, and he has a urine (foli catheter) for 2-years.
My kids think my dad should be in a nursing home or Hospice. He is bedridden and cannot feed himself or use the bathroom on his own. He is vision impaired. He is on a puréed diet. He cannot eat solid foods. I have to feed him and give him meditation 6 times a day. I clean him and change his diapers and empty his urine every day. I also turn him from side-to-side to prevent bed sores. The kids help sometimes. I feel so sorry for my dad!
The only thing my dad can do is tell me what he wants and listen to Minister Jimmy Swagger on the tv. My dad believes he will be healed. He is holding to life by a thread. I stand with him until he tells me he is ready. I WANT MY DAD TO MAKE HIS OWN DECISION ABOUT DEATH AND DYING, BUT WE ARE GETTING TIRED.
Do you think me and the kids should make the decision to put my dad in hospice or wait until my dad is ready?
Thank you so much for sharing these details. Your father is blessed to have you in his life. I strongly suggest that you speak to a reputable Hospice Agency. The majority of hospice service is sent to you. I also strongly suggest that you research "Caregiver Stress Syndrome". That is where the Caregivers experience extreme stress and can even die before the person they are caring for. Here is a short video I made on that subject. ua-cam.com/video/iXEOhp9bib0/v-deo.html
Please take care of yourself.
@@AssistedLivingAnswerMan I hear you. The Home Healthcare Agency is trying to use my dad as an “ATM MACHINE.” But it won’t happen on my watch. I’m his legal power of attorney. My dad will rest in peace until that time comes. - I GOT THIS!!! 🙏🏾
My heart and my prayers are with you and your father.
@@AssistedLivingAnswerMan Thank you!
I just uploaded a second video with some updates on the Hospice Industry: ua-cam.com/video/b45VxNUIHbE/v-deo.html
I believe that. Same with the medical industry as a whole.
Yes. It's important to find the good and honest people in every industry. Especially when it impacts our health.
ua-cam.com/video/-UikHCFTQI4/v-deo.html
I like how the hospice nurses always and repetitively ask the patient /family : " Is he in pain ? " they are so
" kind, helpful quick " to come , but only to help you die faster ....and not help you live and enjoy whatever its left of person's life"...
Pushing opioids into someone who is NOT screaming / moaning of pain is in my opinion euthanasia...I call it " glorified euthanasia" .
You gave me a lot to think about. Thank you for sharing your perspective.
It is absolutely euthanasia! Permissible euthanasia. They drug the patient and convince the family that it’s what is best for the patient. They play on the guilt of the loved ones. It’s completely disgusting!!
Thank you for sharing your comment. You definitely gave me more to think about on this issue.
Well they are right to ask if he/she is in pain. And "screaming / moaning" isn't a good measure, because many couldn't do that. The palliative care industry can be overly optimistic about finding solutions when there are none, and under concerned with pain. I have regrets about how my father was treated for this reason. When he finally went into hospice they were concerned that he was in pain and I think rightly so. He was unable to speak. There is nothing wrong with morphine for those that are dying. It isn't a good thing to die in pain.
@@5metoo There are ways of assessing pain ( like pain assessing scales, etc) , but I haven't seen any of that in hospice practice..
The palliative care industry is a twenty billion dollar business, which got busted few years ago for medicare fraud and false claims., this has been well documented. For each potential patient, hospice gets paid by medicare for only a limited amount of time ( about 3 -6 months or so) to bring the patient to " the other side". If the patient lives past this time ( perhaps he refuses the morphine or doesn't need it) , then the hospice loses the nedicare money. That's why Hospice comes across as pushy with the morphine and overly focused on " pain" even when it's not present . . And since pain is a subjective state of health and not measurable , it's even easier to juggle with meds / or dosages ..how convenient, huh?
In theory, the original goal of hospice is to provide relief from pain and suffering of the terminally ill patients, at the end of life - which means in the last few days / weeks , not 6 months. According to an article posted in NY Times , a good number of patients who enter hospice, , leave hospice after 6 months because they didn't die soon enough . When Hospice dismisses the patient they take away all the so called " "comfort care " supplies they provide ( like home care aides, diapers, suppositories , and the old , donated rusty & squeeky hospital beds from the 70's 🤣). Yep.
I've worked for many crooks
I am sorry to hear that. But thank you for sharing. Hopefully the industry will get cleaner with more accountability.
In home patient care. Why does hospice want to keep all the equipment that was assigned to my husband from “The Veterans Administration “, now deceased. Doesn’t the patient family keep the equipment for future family use.Thank you
Apologies for the late reply. I am sorry for the loss of your husband. I really don't have a good answer to your question. If I hear something insightful about this, I will let you know.
Very sorry for your loss...Most hospices are renting equipment from a Durable Medical Equipment provider. When the patient dies, the equipment is picked up, clean/sanitized, repaired and placed back into circulation for other patients
Yes they are in Alaska for sure.Hospice put my mom into the hospital for 5 weeks with stage 4 Infection and she had to take antibiotics every day.We took pictures of her wound from very start and they never had a wound person come out or let us buy things to help my mom..and told us that we couldn’t get certain meds or a Hoyer lift to help Mom that’s what hospice told us ..Medicare person told us hospice they didn’t tell us the truth.So hospice put mom into hospital and I’m sure a huge bill for Medicare to pay for…They made her worse by neglecting her period.They are a shame in Alaska and other states. They bend rules to make money on shit service..not all places but definitely in Alaska.
I noticed that at the top of my chart, my primary care doctor wrote continuity of care. I am 72 years old and in very good athletic shape. I don't know what's going on. But I have some concerns. Does anybody have any answers about this about this term continuity of care?
Hello. I pasted below a google definition:
What is a continuation of care?
But in some cases, you may be able to keep your doctor, medical group, or hospital for a limited time. This is called "continuity of care." To receive continuity of care, you must call your health plan to ask for continuity of care. Also, your doctor, medical group, or hospital must agree to keep you as a patient.
You might be interested in finding a "Geriatric Care Manager" (GCM). Someone who can oversee all of your care.
I have a 16 bedroom 10 bath house with cooking areas meeting room and movie theater room. Just wondering if you guys need extra space to lease for Hospice services, im just trying to put this house to use. We also have our cat,,, most hugged cat in the world ,,, to help comfort people.
I am sorry I am personally not in need for that kind of space. Thank you!
Hospice says" Sure, we'll be there in 15 min with the morphine box" !!!! 😂😂😂
It just really sounds like you all came across some really awful hospices, and I hate that for you. When done correctly, hospice can be a beautiful thing
Thank you for your comment. I think Hospice is a great service for people who really need it. The problem is when people who do not need hospice are put on hospice.
You need to understand that in some cases, everything was done before the hospice teams come in and they'll contract with nursing homes to either make a resident comfortable or give them a place to let their patient pass.
My hospice experiences have been nothing but good. They helped me let my nephew go when his cancer was beyond treatment and care. My stepdaughter stole my hospice experience when my husband had gone beyond treatment and care with his chronic conditions, but I work with a nursing home that allows hospice companies to perform their care.
Thank you for sharing these details! It's good to know that the hospice industry is helping so many people who legitimately need the help.
People should die with dignity, at their own time , not be pushed into a drugged state , gurgling and rattling and gasping for air...thats not dignity or comfort care AT ALL!!!!
Thank you again for sharing more details. You really did give me a lot to think about.
I have a resident right now who was fine yes demented but could walk talk eat on their own ect he was put on hospice they started the meds he no longer eats walks talks and sleeps all day this was all in a FEW DAYS hospice kills!!!!
@@aeeieoo yes, exactly similar scenario here. : dementia patient still eating and ambulating , hospice pushy to stop food and mobility , stating that " his body doesn't need calories" , and that walking puts a lot of stress on his body & makes him very tired "...in reality when the patient is still eating & drinking and moving around, he will live longer of course . Also another interesting ( and scary) thing : they want the patient to be in bed / immobile - which puts the patient at risk for complications like pneumonia, skin wounds / infections / pain /constipationr etc so that they can justify the use of morphine for " pain " and suppositories . Many hospice patients actually die from those kinds of complications that are not related to their terminal illness, but rather induced by the hospice.All the meds incl antibiotics & treatments are stopped or dicontinued in hospice, the only meds patient gets is the morphine for their pain ( from the wounds, pneumonia etc) .which was caused by immobility, but t hospice calls this " comfort care"....🤣
" comfort care " 🤣..
Very sad. Thank you for sharing this.
I have been a hospice nurse for 3 years, and have many patients that still receive treatments and medications for their cancer. Medicare hospice benefits allow for chemotherapy, and radiotherapy as long as the purpose is symptom relief. Medicare’s hospice rules do not allow for hospice and treatments intended as a cure at the same time.
Thank you for your work as a hospice nurse! And thank you for sharing this information!
So basically Medicare wants them to die?
It's all about profit..
Hospice is useful for really sick, ( terminally ill/cancer patients) patients who are in a lot of pain!!!! And not for someone with dementia or high blood pressure, or diabetes!!!
.
The patient should be allowed to keep taking medications and treatments to alleviate their symptoms. Taking away blood pressure meds, antibiotics, nebulizer treatments is NOT okay.