♡ How I Shower with P.O.T.S!?
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- Опубліковано 14 жов 2024
- ♡ How I Shower with P.O.T.S!? #PotsTips (29.01.19) ♡
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Going back and rewatching these... Feel so sad for Tom , her family ,she affected many ... I would bring her up in conversations, I couldn’t believe what this girl lived with and she tried to stay so positive .. Which says a lot for her support group too .. Hard not to 😢 when you watch these . She will be missed by many ❤️ RIP Amy
Ditto!!!!
Same. I feel so sorry for her family and friends. She was a very strong young woman, and had an amazing support team. I pray Tom is doing well.
Same :(
So
Sorry for the delay in
I'm so sad you're gone, you did SO much for so many. Not just bringing awareness to EDS, but building a sense of community for the chronically ill. This is the first time I've seen this video, and knowing that there are other people (especially adults) who have to be supervised in the shower. Thank you for that.
Your man is literally so good to you.. your blessed to have someone like him in your life.. ❤ I love watching your videos your such an inspiration.. I love how positive and strong minded you are.. you remind me that life has its ups and down but that everything will be ok in the end and that life is short and to live every day to the fullest.. thank you for being you❤
I agree with you Kimberly
She could probably have many like him, but I guess only one is enough for her...
:P
I'm sure she's good to him too...it goes both ways!!
I've spent so much time this last week watching Amy's videos on both channels... I've been spending so much time trying to take in and appreciate what a strong, loving, caring, beautiful young lady she grew up to be. She was an absolute joy and light in the life of her friends, family, peers, and fans.
She taught all of us SO much... not just about her conditions and illnesses... But she taught us what it means to be a wonderful person who has so much positive worth to society. Getting to know Amy and learn about her life through her hard work and videos has been nothing short of a true blessing. Thank you for sharing so much with us - and teaching us what it means to be strong and get as much out of life as humanly possible.
Rest in peace and settle in Heaven, sweet angel. There's no more hurting... no more pain. All of our love goes out to you, your wonderful soulmate Tom, and the rest of your friends & family. Fly high + soar far, dear Amy. You shall always hold a place in our hearts.
“Sometimes I pretend I’m on the phone because I don’t want to get stopped” can relate/ 10
Jenna.Elizabeth my husband and I pretend I’m full mute/deaf as I can speak auslan.
I could probably do that 😂
@@MsGingerBread0216 I just pretend
I know a lot of us are allergic to so many laundry products, it's getting harder and harder to find laundry soap. If you discover your reactions are being caused by the laundry soap you're currently using, try adding a quarter cup of white vinegar to the rinse cycle, then run a second rinse cycle after with clear water. The vinegar breaks down all the left over detergents, and the extra rinse gets rid of any possible vinegar odor. I've had to do this many times, and usually my rashes start on my back since I lay on my back at night. So, yeah, night clothes are the biggest triggers.
Chronic Butterfly this is what I do!
Im gonna try this. Bc i bought a sensitive fabric sheet and broke out all over my chest.
Vinegar is actually a great natural fabric softener so I second this
@@hannahjorgensen3598 I agree, I've always used vinegar as my rinse aid/fabric softener. There is no need for the second rinse, which Chronic Butterfly says she does, as th evinegar smell does not linger.
I have very sensitive skin. One time I bought a pair of jeans at a resale shop, didn’t wash them first, and my whole lower body was in a burning rash.
tom standing shirtless and motionless just staring in the background @ 12:25 is absolutely sending me omg
omg how did you notice,I had to pause 3 times lol,my attention is terrible
lmao hes in his pants
It's so strange to have found someone with so many of the same issues, I was told I have POTS a year ago, I have EDS, IBS and had a brain tumor and am now being tested for a TON of joint problems to explain the swelling and pain. You have made me feel like I'm not alone in my fight thank you so much and stay strong
After all that she went through
she was always so strong brave and positive.
It was a very sad day when she passed.
RIP Amy.
You were so loved by many. Miss you
I miss Amy's positive attitude and videos teaching and bringing awareness of lots of illnesses. RIP beautiful lady xx
I want to say how awesome you are for taking time out of your day to help your neighbor out. I know so many people heading out to do their own errands wouldn't stop to help another person out and it makes me sad. You're awesome!!! The nail color is gorgeous too! I love purple anyway and I do think it suits you nicely. Sorry to hear you seem to be in the midst of a flair. I hope it clears up and stops soon!!!
RIP. You were such an inspiration to me and so many others. You’re in a better place now Amy
I usually don't skip adds on your viedeos to help you out, but I just got a 3 min asmr add and I just can't cope with that haha
Anna Kleaber haha all good 😅
That's funny by the way I love your videos amy
ASMR rapidly reduces the amount of brain cells I have.
Mr. beast said if you play 10sec it will still pay them. Idk if that’s true
ASMR helps me sleep without medication which is amazing for a chronic insomniac
*tube explodes* Tom: "Have you wet yourself?" Amy: "My tube exploded on my legs!" *Tom farts* I DIED LAUGHING
nooo missed that! Haha
O my God! That's a riot!! XD
Abigail when?
Marley Zepeda 10:18
I think we all did on that! Holy cow!! I can't stop laughing about it.
She will always be remembered 😭😭😭
your always so sweet with the “it’s not much but it’s all i can offer” and the “pretty please like” you kill me with the feels 😫😫😫
Your so amazing in do many ways. I'm sitting here rewatching so many of your video's. I still can't believe you're no longer with us. Miss you do much. My condolences to Amy's family and to Tom. You guy's were the true definition of TEAM WORK❤😪😥
It is quite amazing the charisma you have Amy. ❤️ Still coming back to listen to you, even though I do not even know anyone with these conditions. RIP ❤️🦓
The lawnmower and Tom’s fart was hilarious. Keep smiling and doing what you do! You are absolutely beautiful, smart and courageous!
OmG Amy, u r a role model for a lot of people, everything u go through and u do it so well, I have MS, MD, and FM, low immune system, heart failure and suffer cronic pain 24/7, so I sympathize with u 100%. Thanks for teaching the need. God bless you, love u😘
When i watched your video i realized how blessed i am. U made me realized not to give up no matter what problem is, fighting and be positive instead. Thank you.
Love Love Love the color! I like dark colors for my nails, even in the summer. Purple is my favorite color.
You and Tom are such a cute couple!! 💞
Love your 💅 nails!
Your nails look great, the color suits you.
Boobs are also great, really balances out your thorax.
@@BoopSnoot My coworkers outer mandibles really balance out her proboscis.
mmh... man I could just stare at those mouthparts all day......
DumbDuck44 um what am i missing
So I am having and EEG and tilt test done on Monday afternoon to confirm that I do indeed have POTS and I am nervous. Watching your videos these past few weeks has given me so much joy though and I just want to thank you because I have learned so much from your tips on living with POTS that if it is confirmed Monday that I do indeed have POTS then I will at least have some knowledge ahead of time on how to get a better handle on it if that makes any sense. I am will honestly be so thrilled to just have a diagnosis on Monday after having gone through 6 months of not knowing why I have been passing out and having other issues. Hope you are doing well and thank you so much for making these videos
In regards to the "night shorts" I've found that showering/bathing can rid the skin of a protective barrier making it more sensitive. So try putting lotion on after showering/bathing before putting any clothes on
You really were a trooper, you are so missed! So positive even in the darkest of times.
Never apologize for something you have no control of.
You are and still a amazing inspiration to me.
Feel better & know you’re loved by many. 🥰🙏♥️
Ugh I hate Chuggers (charity muggers) because I have anxiety and am super poor so end up feeling super guilty.
Your money is your labor; I could understand someone feeling shame, but *never* guilt.
Just realize it's important to never give to anyone you don't personally know anyway bc most unintended consequences of charity are due to violation of that principle.
....so, for example if you often give to homeless people, only do it after you've _at least seen_ the guy once before....
Thank you for posting this Amy ! I have just been diagnosed with POTS and I was wondering how the hell I would be able to shower. But thanks to this I know how ! But I am still gonna be cautious and make sure someone is here with me because I would rather be safe than sorry !
Just found your channel!! I'm 27 and have been diagnosed with POTS for 10 years now. I eventually found a big community through Dysautonomia International, but it's cool to see someone outside Facebook groups making educational content about it. I wish this was around when I was a bed ridden teenager, but I'm sure this channel will help so many people going through the same thing. Thank you Amy!!!
where can i buy a tom?
campbell heaven
I’m so glad that you showed how you shower! I have a port and of course don’t have any trouble showering, unless it’s the one week out of the month that I am doing my treatment. On treatment week, I can still shower I just have to be incredibly careful. Thanks for always adding things into your vlogs!
I love the colour! And I love Tom! Or should I say, I love you two together ♥️ Hugs and love to you both. X
That's a pretty nail color! It's a color I've never really seen before. So pretty!
Hi Amy, I would like to say that all your video's and blogs are absolutely marvellous, and you explain things so well, and you and the lovely Tom are a great couple,,
honestly - Ik this is kind of unrelated - but I literally love and adore you soooo much🧡
You are such a strong individual and I admire you for every single thing you go through, and still manage to be so hilarious and have a good attitude and positivity. My best friend, Hannah, suffers from POTS, and watching your videos has helped me to understand so much of what she goes through.
Keep being you and ilysm💕
RileyElizabeth aww thank you so much! Love you too ❤️
Love the nail color! Also the fart was hilarious 😂 you guys crack me up.
I’m opening up my house to people with all kinds of problems that don’t have anyone. It’s amazing how people with disabilities help one another you make life beautiful.
I’m editing a video right now where I documented some of my Tachycardia occurrences over the past year. I obviously only filmed if I felt well enough, and I’ve only fainted a few times. I had 45 minutes of footage I had to condense, and it was weird to look back at last year. I’m hoping by making this video I can show it to my parents and to my gp to try and get a diagnosis. It’s so annoying to deal with everyday, but I’m glad I’m not alone. Your videos help loads to watch and are always entertaining. Hope you have a great day tomorrow!
I’ve just now found your channel. I admire how you handle everything you’ve been through and continue to go through. You’re amazing! I love your bullet journals. 💕I’ve watched a lot of your vlogs, but not in any sort of order.
I have your condition too and i never new someone with it. You inspire me to set true everything . Ps love your videos😘
Get the lawn mower out!!! LMAO! 😂 I have to wash my hair in the sink lately. And then do my body separately. I can’t be in the shower long enough to do both at the same time, even sitting down, HR gets up to 170 and it feels so awful. I don’t even pass out, but I hate that chest pounding, pre-syncope dizziness so bad, I just avoid it now.
DarkBlue Matter same it makes me feel depressed sometimes I’ve even went out side and washed my hair with the hose 😂
I had a similar issue wrt staying in the shower long enough to wash my hair (even with a carer who was actually doing the washing bit)...
I ended up shaving my head to a #2. Takes about 30sec to wash now and it's amazing. I'm SO glad I did it.
May not be an option for you (not everyone wants a shaved head!), but may be something to consider...
I love her and toms relationship it's so cute 😁❤😊
For the laundry detergent, try soap nuts! Me, and most of my family are sensitive to most detergents so we tried them. You put about 6 in a small cloth bag and you can reuse it about 6 washes then put the shells of the nuts into the compost! Hope you feel better soon though! X
I just love this girl so much. Nothing stands in her way and it's so inspiring. Keep on keeping on Amy .
Thank you so much for your videos. I've learned more about gastroparesis after having being diagnosed with it last month in August. Your videos helped me so much so thank you a bunch. I will buy your stuff when I can because I love your videos and am a huge fan of them. Keep uploading and keep being you, Amy!
Dark green or emerald polish would look lovely on you!
THE FART MADE MY DAY, THANKS TOM
New to your channel and I have to say, from the few videos I have watched so far...you are awesome. I can literally feel your life energy and zest through the screen.
We love you Amy. You inspire me and many. You are so loved and so missed 💞
CARA AMY. GRAZIE PER IL TUO CORAGGIO E PER IL TUO INSEGNAMENTO DI VITA.
TI ABBRACCIO FORTE FORTE E SPERO CHE PRESTO TI RIMETTERAI.
PREGO PER TE, PER LA TUA FORZA, PER IL TUO SORRISO. DIO TI BENEDICA SEMPRE,
FIORE PURISSIMO.
TANTI BACI DA FLORENCE,
ITALY.
Sorry, I don't speak English but I LOVE you with my heart.
Enza
I know this was a while back, but it’s good to see that you have someone so special to be there for you
Just going to say that your videos are awesome. I'm a nurse and I'm super impressed with your home care of your line/feedings/medications/self care. You're so clean and careful. It's a nurses dream
So sad while rewatching this i haven't been able to follow the video's for quite a while and now suddenly knowing that she is gone is heartbreaking to me sending all the love to tom and her family may she rest in peace 💙
I have POTS and I just got a chair for my shower and it really has helped a lot but still get so close to passing out while I’m still sitting...luckily I have my fiancé with every time I shower ♥️
You're so strong and brave you have all this stuff happening to you and yet you don't complain you just get on with it, I admire that!
Your nails are beautiful the color is very pretty that you picked .i love doing my nails its so nice to look down and you get to enjoy looking at them over and over again .
Just wanted to let you know I’m over here cross the big pond (USA) and I am on TPN for life. I have a Hickman single lumen!! So you’re not a lone girl! Praying for you and good vibes and love sent your way!
10:26 I'm 33 years old, things like this should not still crack me up but it does 💨😂
LOVE THE COLOR! THAT COLOR WOULD ALSO LOOK GREAT WITH BLACK TIPS.
So interesting that others pick your polish. I paint my moms toes and I bring her 5-6 choices and one is always a more me color AKA green, blue oilspill multicolor. She usually picks a pink or red and I am currently wearing jade green on my toes. As a nurse in the US I can’t have painted fingernails or gels so yep I own way to many nail polishes and I only paint my toes. I do LOVE the PLUM color you picked may have to do that color next week or maybe tomorrow.❤️❤️
I love your channel amy. Thank you for sharing you life with us 🥰
love you and your videos! being a 22 year old with a chronic kidney condition i can definitely somewhat relate to you and i love watching your vids! you're amazing
Tom is great, been watching a while and he is great!! You are a strong and awesome woman.
Showering with pots is flipping awful. I have to pick a time of day when I think I will be able to cope. However its still a rush because it makes me feel so poorly and afterwards so weak dizzy and exhausted. Shower seat, handrails, cool water and having everything ready is a god send. Love your video's. So real warts and all. Best wishes
I’ve found that when showering with pots get a handheld sprayer and open the shower door or curtain to let more of the steam and heat out. The handheld allows you to keep the water in the shower
That is my absolute FAVORITE color of nail polish!!!! I love dark colors and dark purple is my favorite! Even in the summer, I usually go for dark. My nail lady makes fun of me lol!
The color looks great with your coloring - pale skin and dark hair. I’m pale too, so I love how my skin looks with dark colors. It makes them stand out more.
I was born with eczema when I was 9 months old. And I'm now 15 years old I usually have to go see a dermatologist or something like that. It has gotten worse through those years. I have to be put on steroids, certain types of creams. My eczema scabs are everywhere and I only have to wear baggy clothes because if it's too tight I begin to sweat then I end up having a rash. I'm able to get rid of it if I use goat milk soap or drink goat milk. By the way, we can both fight our different conditions together! I pray for you. PS: I have already watched about 5 of your videos! 👊❤️
You're such a sweetheart 😍 awwwwwww! You seriously make me smile, thank you Amy x.
I also react to clothing and to laundry detergent and fabric sheets. I always make sure to wash everything before wearing anything.
You and Tom are literally goalsssssssssss xxxxx🥰🤣💕
I think you made a good choice of choosing your nail color because I like purple and its very pretty color on you
If I would have this chronic illness like you, I would never survive... I would be so extremely scared and I would always cry 😂😂 But *You* are sooo amazing how you deal with it and how much power you have, that is something very amazing and I love watching your Videos, because you’re not just showing what you do, you are also helping in my Eyes and that is so inspiring!! I love you and your Videos ❤️❤️❤️ Greetings from Germany 🇩🇪
Much respect to you and your family.
You are so right life goes on despite what challenges crop up.
I love that color on you! I need to look for something similar next time I get my nails done
Stumpled across your videos - so informative! I love how real you are with everything and you are in WA!!! I am just a couple suburbs over. The world is so small!
Love the nail color looks really good. I lost it when Tom was drinking you drink and kept making all ths funny faces. Hopefully this flare won't last very long. Take care.
you have such a pretty accent:) i have P.O.T.S. as well and showering is a task that i always dread because i’m scared i’ll fall and hit my head on the tile from fainting, but luckily that hasn’t happened haha.the worst thing that’s happened is my face turned really green and i quickly had to go lay down. anyway great video girly💗
It’s so interesting that I found your site today. I have MCAS but not nearly as sick as you. Thank God I can eat normally as long as I avoid triggering foods.
I found washing my body in the shower, then washing my hair out of the shower with a central line helped me a lot. My skin reacts to a lot of things and I never know what it will react to. I can be fine with one thing one day but the same thing then next day I will rash out I'm not sure why. It's been happening a lot lately. One more thing I use baby clothing detergent.
Awwww your mom just loves you guys and wants you save💖
I love your accent and the way you talk and that is so sweet of you to help out your neighbor and pick up their trash, most people would have just left it there but that's how I am too and my boyfriend, he goes outside every morning and picks up the trash out front of our house and pretty much the whole little St. we live on and there are like seven or eight houses up on this hill that we live on and he cuts all their grass like once a week or once every two weeks depending on what it needs and he does not charge them oh, one of them gets him $20 here and there but he's does not ask for it. He will see some trash all piled up somewhere and we'll clean it up even if it takes him hours and the only thing I don't like is that the people start throwing trash down there immediately he cleans it up they start throwing trash they are again and they leave the trash from their house like in a big trash bag there and sometimes old furniture and stuff, it's just ridiculous and I don't know why people would want to live like that because it just makes the neighborhood look trashy! 💜🌼💙🌸💟
It was me that commented about POTS I just want to thank you I’m trying to find anything out about it at the minute and it means a lot that you took the time to speak about it, I didn’t know anything about it until I was diagnosed so I’m doing as much research as I can!! If anyone else has any helpful videos please can you reply to this comment so I can check your videos out! Thank you xxxx
Shannon Fisher I have a few videos on my main channel about it ‘I think’ Amy Lee Fisher xx
Yeah I have watched them all, that’s how I found your channels originally from searching POTS xx
When he was tasting the lemonade , his reaction was just like scot Calvin in the Santa clause movie when he tasted soy milk lol
Its so hard to watch these, she helped so many people. ❤rip you beautiful inspiring woman❤
I'm glad to see you got to do something nice for yourself
I love watching you guys!!! Like always you guys have made me laugh really hard!! Tom with his lawnmower comment and thinking you wet your self then farting... You can definitely tell he has gotten way more comfortable with you vlogging!! You guys are such an amazing couple #relationshipgoals. I dream that I can one day find a guy that is as amazing and understanding with all of my health issues and keeps my laughing and smiling as much as Tom does for you!!! I also love your nail color it is beautiful. I hope that your mass cell flair starts to calm down very soon cause that can be very painful and annoying also... Sending lots of hugs and love from Oregon ❤❤❤❤
i get the dermaid 1% soft cream over the counter for excema on my hands and that stuff is so good literally magic
My POTS tips for the shower, use warm water, not hot. Sit on chair or stool, wash quickly, have someone checking on you frequently. Use bars to stand up extremely slowly, allow time for blood pressure to equalize before getting dressed, for me, my robe goes on and I have to lay down afterwards, before getting dressed.
You and Tom are very cute couple! He looks very supportive and nice person like you! May God give you both lots of happiness and endless love!
Omg 5:14 is the cutest thing I’ve ever seen!
You’re Australian?!?! Wtf this whole time I thought you were English living in the UK!! So confused
aoife Duffy i am English born and raised but I moved to Australia with Tom at the end of 2017 😅
Amy's Life ohh no way! Can tell I’m new here
Adrianna Stone nobody is saying anything bad
Adrianna Stone whaat??
Adrianna Stone and? What’s your point?
Please Tell Tom I think he is an awesome guy! I was just talking to my ex about how special she was and Tom also! It takes a special person to help take care of someone else!
The color is pretty definitely a good choice
I absolutely adore you and your positive attitude! 💖
You are such a role model to me. You are such a sweet, and strong person
So I just started watching your videos like a month ago and when I was watching this it just came to my how much work it is for you to stay healthy, you are definitely a beautiful and amazing person! But I very much appreciated how videos like these bring to light a lot of medical situations, I think I had your videos pop up from watching molly berk ( not sure how to spell her last name lol)
*_"Never, never, never give up."_** -- Winston Churchill*
hi! I also have POTS and I have a tunneled line and I use something called an aqua guard or water guard and if possible I suggest that versus just another dressing atop another dressing. but everybody does everything differently :)