I am a nurse and I am so impressed with your organization skills and your sterile technique! I couldn’t imagine living with a chronic illness like yours but you handle it with such grace and dignity! I love that you show off your tubes! Keep up the amazing work!
zebralover1217 I was never a nurse but I worked in home care for 2 years. And she does so much better than some parents and home nursers. Very much impressed.
I don't think she means this as a sad thing I think it's a way to get her story and what she has out there so others don't feel so scared or depressed or whatever emotion they're feeling. I'm proud of her that she's moving forward yes it seems scary but I think she means this as a way of showing how she just goes about her day with a illness that's painful idk how she does it but she's a queen
Trekkifulshay me too! I wonder where she got it and if I can buy one with locking drawers. #kidsafety. If not I’ll lock it in a closet, lol. I’m new here. Was your name Amy, OP? Where did you get it, zebra friend?
@@elfsj5939 Can I ask how she died? Did she die of this? They suspect I have gastroparesis but I can't get any further workup until October. I'm still eating, but in pain a lot and following a low FODMAP diet, which seems to help some.
Don’t let someone else’s suffering take away from your own suffering. We’re human. Everyone feels things. “Saying you can’t be unhappy because someone has it worse is the same thing as saying you can’t be happy because someone has it better.” It’s all about perspective.
the slightest things are important too. you may think that they aren't after seeing this vid but you don't have that illness and every person is going though their own problems. so yeah small probs matter too either for mental health/happiness or physical appearance
Same here .. I thought I had it bad my son being born last monday n me getting let go from my job on Tuesday out of no where.. after seeing her n how strong she is I wont complain again
I opened this by accident but I’m grateful I did . You are too brave . If this was me I would complain alot and never be able to do all this medication myself. It’s too hard. Love for girl . I hope you recover somehow and have good health. I’ll pray for you girl 💕❤️
I am surprised you don't get your meds prepackaged l always spent a few hours a month sorting mine now they are prepackaged and l can take them easier.
Alisha you would do it because you would have to . We all started out without lines and then we learned adapted and adjusted . It’s part of the routine we just want you to understand how we work a bit of overtime to get it done
The 217 people who disliked this video are obviously ungrateful for the life they live. I can’t believe you wake up everyday and do this, hats off to you seriously. This video had me thinking that I take my life for granted and that I should appreciate the things I get to do and that I have. You’re such an inspiration, and I pray that your routine never fails you and that God keeps his hand over your at all times.
Actually I think they're just wondering when she took a bath cuz I was wondering the same thing. I wouldn't have down voted someone because of it but it may be a reason.
@@EvilAlyssa why tf would ppl expect her shower or bath to also be on video? Ppl really are putting stupid sauce on their food or something. Weirdos. Smh
Don’t let someone else’s suffering take away from your own suffering. We’re human. Everyone feels things. “Saying you can’t be unhappy because someone has it worse is the same thing as saying you can’t be happy because someone has it better.” It’s all about perspective.
I am so inspired on how u dont complain about life! While us even complain about waking up early or eating tooo much 😫 basically to complain about everything.... Love love love you... so inspirational and highly motivated lady 😻
SallyG May It’s really is, plus that doesn’t include all the medical phone calls scheduling appointments and staying on top of insurance issues/referrals and appointments and testing. It’s honestly exhausting and if you’re not super organized and stick to a schedule then you feel like you’ve gone mad and at times feel like pulling out your hair.
Yes it really is - I live with a before birth-to-death disability (plus other health conditions), I heard a saying last year "living with disability (and/or chronic illness) is like having a fulltime job, that you cant clock off from"..and it is so true. Your necessary daily medical routine etc, plus the aspects CailinMarie mentions above regarding all your appointments, therapies, tests etc, and the paperwork - you really do need to stay on top of it all, to keep your life (and body) running as well as you can.
SallyG May My ex’s lawyer would agree. Then argue that I should go get one since I’m so “able”. 🙄 It touched me when I saw so many supporting her needs. No one said “why aren’t you going to work now?” She took care of herself all day. It’s her job. Sounds like people get that.
I watched this video and amazed by her then I learned from the comments that she passed away. I am so sad right now. Rest in peace. You were so strong.
Can you maybe do a video in the future about your life right before you "got sick". 😀That sounds like quite a silly thing but I'm interested. I know you mentioned you started getting sick in high school. What was that like, when did you start to think you had problems that weren't the norm (like clues to chronic illness)? How were the doctors? What symptoms appeared first and how did that affect your life? I'm in high school right now, and in the past few years my health has declined a good bit. I wanted to see your story/experience☺
I suffer from POTs, Mastocytosis and fibromyalgia. Thank you for spreading awareness for chronic illness and helping people like me feel less alone when they are suffering from bad days.
Wow. As someone living with a rare chronic illness, she is such an inspiration. Her attitude towards her condition and life is amazing. A beautiful soul, with such strength. I admire her immensely.
This is probably a bit late but I just wanted to say that other peoples problems and situations do not make yours irrelevant. That's something my therapist told me when I told her I felt self conscious about taking antidepressants, pain killers, muscle relaxers, and other forms of medicine. Sure, Amy's life seems difficult but dont downplay your own struggles and compare your life to Amy's. I hope this helps somewhat :)
This was one of the first videos I have seen of Amy's. And now watching it knowing there won't be anymore breaks my heart. But she is an angel now resting in peace with nomore pain. She will be gratefully missed.💜
i love the iv pole wrapped in Christmas tinsel, it must helped with keeping you happy during the Christmas time. i love your videos, ive been binge watching you videos for the past few weeks now. hope everything goes well throughout the holiday period. x
Check out her vlog channel too. Amy's Life. I found her channel.a couple years ago and started watching and then I found her vlogs and was in heaven. :)
This is the second video of yours, the first one i watched was your morning routine in hospital.. I’m so happy you are out of hospital and are able to sleep in your own bed. Keep living your best life and stay positive girl!!
Hoenstly don’t know how you do this everyday...I complain so much about having to wake up early to get the bus for school but I would never be able to do this every morning. You are so strong ❤️
Yeah so I am done complaining about taking medications or things in my life period! This made me realize things could be alot different. I applaud you on how strong you are, you do all of this everyday and you don't complain, or feel sorry for yourself. Your a beautiful young lady, you dress cute and your smart!! GOD will always be with you!! You are a true definition of the saying "life is what you make it"..........blessings to you daul 😘😘😘👑❤👆🙏🙏💪💪👍👏👏👏👏👏🙌💖
this video came up as recommendations when I was admitted to hospital (youtube know where I am...?). not EDS but I also have chronic illness, there some ups and downs in my life. your videos teach me how important to be educated and organized to cope with my own illness. thanks Amy, you're such an inspiration!
I feel like crying now . I showed this to my husband and we were quite sad about pur complaints in life. I have endoemtriosis and I don't know until when it will stay. It has been bothering me a lot. But now I think I can endure it knowing that you even endured life You are such an inspiration to us! God bless you!
Omg girl I feel you I was on a feeding pump for 15 years they took the gtube out when I was 18 but I know exactly how you feel and the pain god bless you are still alive today, and I feel you on how my pump would go off and push that pole everywhere and we literally i had the same feeding pump as you but girl I’m glad someone has a UA-cam channel like this because it shows what people don’t understand but once again God bless❤️
I have chronic pain and feel sorry for myself often. I am on a pain patch and about 4 other meds that I hate taking daily! As I watch this, I have to commend you for being so organized and positive. You have inspired me to try harder and stop whining and get up and move! I have Chronic Adhesive Arracnoiditis, failed back syndrome. Other issues too but they pale in comparison to what you do every day! I never have a day without major pain but I have to try harder to focus and get moving, pain or no pain!! Thank you for sharing this video!!
@Ella Sparkles yeah to people like you salvation and damnation of people's ETERNAL souls , is a joke to you , you know why cause your not born again in the holy spirit of King Jesus Christ, calm down , why so you can San say , lord with no actual Gospel , HOW CONVIENIENT FOR YOU
@Ella Sparkles my life is in King Jesus Christ, where's yours m.ua-cam.com/video/y8aIS-dhU-s/v-deo.html 🎥 Justin Peters: Clouds without water - False prophets - UA-cam
You are an inspiration i feel so bad complaining all time about my body and appearance i always struggled to love myself ( Still struggling but will be able to one day 💜 ) and this video made me see that I'm able to do things that others aren't able to do it made me see that some people don't have it so easy and you are so strong amazing and incredible to be able to get up every morning with chronic illness God bless you 🙏❤
I don't know what to say . You do so well with managing all them tablets and pain patches and needles etc. Got more medication then a chemist shop. Lol. All through that and you still keep a smile on your face and get on with it. I feel so bad for you having to go through all that and your only young. I just want to give you a big hug and a kiss on your hand . Your a special person. I hope you feel better after all the meds because they can make you poorly in its self. I know they do me. I will say a special prayer for you amy. Blessings. 🧚♀️🧚♂️
my mom has a chronic illness, and i recognized everything you did & you did it fantastically! i do all of that for my mother & she has gastroparesis ,, all my good wishes and love💓
TPN stands for “total parenteral nutrition. The “line” is going into a larger central vein where the body can quickly dilute the concentrated solution of up to 20% or higher glucose and amino acids, minerals and often a bag of lipids every third bag of TPN. Thanks for showing the reality of living with chronic illness
And this is just the morning routine. Wow - I have so much admiration and respect for you. You make it look easy but I know this is a lot of work. I wish you all the best and applaud your positive attitude! ❤️
At least she's still living her life despite of it. Shows how much we take for granted. Gone are the days when people with these illnesses just sat at home and waited to die.
@@vladapetrovic1644 She has Ehlers-Danlos Syndrome, which causes a lot of other issues like her gastroparesis/intestinal failure. She also has POTS and several other various conditions.
ladydmethify Not entirely true. I have a friend with Gastroparesis, a classmate yanked on her feeding tube. It caused a lot of issues and she had to have the whole tube replaced.
We have the same dosette! I’m in recovery from anorexia and bulimia and am currently in hospital (just about live here).. I was diagnosed with type 1 diabetes at age10 and CFS at 17... delayed gastric emptying a few years ago and recently possible diabetes related gastroparesis and fibromyalgia. I feel like its sooo much work just to ‘exist’ physically when I’m so miserable, I often feel like there’s no point. Watching this today has been somewhat comforting and validating. You’re a tough girl. Sending love 💕
I have Fibro also.. I have really been struggling since the shutdown because of a lot of really drastic changes. I could have never anticipated how severely it would affect me. It’s been one flare up after the other for the last several months and it gets really overwhelming. There’s been some REALLY dark times.. but you just have to keep going, right?
I too have fibromyalgia (I experience sciatica backpain and intense headache)...I take 3tramadol for lower backpainand antidepressants for headache....may I ask you ,what medicine you take?
Sumaiya Khan I’m not sure if you’re asking me or her but I will tell you anyway Lol I also take tramadol, and hydrocodone for pain. I take a low dose of Ritalin for the chronic fatigue. Otherwise I would be so fatigued I wouldn’t be able to function. I have opted not to take an antidepressant because of the terrible side effects. Although there are still some side effects with other meds.. one thing that has made a HUGE difference for me is I started taking Glucosamine Chondroitin. It has helped immensely with the overall ache in my body. I do Myofascial Release therapy that also makes a big difference. Regular massage can be helpful but it’s not really what our bodies need to release the muscles from spasming. Hope this is helpful!
@@princessangerloo5905 thank you very much...I was asking both of you....I took screenshot of your comment n will search about your medicine ....I also take massage... thank you very much dear
And here I was complaining about my back hurting really bad and needing to take a lot of different medicines that irritate my ulcer and IBS. It's nothing compared to your every day tasks, you are such a inspiration 💜
Jessica Lind just because her life is hard doesn’t mean that your struggles don’t matter. don’t get caught in the mindset that “someone has it worse” - we’re human! we all face difficulty. sorry your back hurts. i hope you feel better.
Wow....you're an inspiration to many. I'm suffering from an autoimmune disease but I'm really grateful that things are not as bad as it could have been. I'm no longer on medications.... Watching this brings back a lot of memories. As an aspiring nurse practitioner, I have to say I really admire how well you're handling everything and the positive mindset that you have. You're always in my prayers.
I think that she should be remembered by the whole world, for me she was and she is a true warrior, they should make a movie about her because people like her deserve to be remembered in a big way. we will miss you amy ekisses and hugs to heaven
I had to take 4pills a day and clean my amputation spot and i tought that was hard to do everyday, now ive seen you and i tought now this must be hard to do every day. Respects. Btw you are really beautiful❤
Lady, your morning makes my celiacs disease look like nothing. I have been struggling with the symptoms of my illness, and your willingness to share your life seriously puts things in perspective for me. Truly thank you.
I’m blown away with this. Just wow! I have chronic pain all day every day and on morphine a lot. But honestly I feel bad for moaning when there is people like you who just get on with life even though life’s give you a shit hand. Definitely subscribing 😀
She’s definitely an inspiration to looking at things in a more optimistif light, but please don’t compare your struggles to others. Your problems are no less significant 💕
I have chronic pain from bone erosion, I'm on a shit ton of muscle relaxers that dont work thanks to the pain killer overdose epidemic... how the hell did you get pain killers?! Lol I'm 22 in a walker 😂
I’m really impressed with how well you’re managing at home! Just be careful crushing your pills together since you’re compounding them. It can cause the medication to interact with each other.
@@laurabove8428 Ihr Magen und Darmsystem (inklusive Blase) funktionieren nicht (gastroparese). Sie kann zwar essen aber nicht verdauen/Nährstoffe aufnehmen, deswegen die ganzen anhänge. Es gibt zwar Dinge die sie dann über die Sonde im Bauch wieder "loswerden" kann, sollte sie jedoch etwas essen was sie so nicht wieder loswerden kann wird ihr extrem schlecht und sie leidet unter starken Schmerzen. Amy hat noch einige andere Diagnosen die durch Ehlers Danlos Syndrome (ihre "Haupt" Krankheit, wie sie selbst gern sagt) ausgelöst werden und hat zusätzlich, wenn ich mich recht entsinne, noch andere Krankheiten die mit EDS nichts zu tun haben... Die weiß ich aber gerade nicht auswendig 😅
I also have EDS, gastroparesis and POTS + general dysautonomia! (as well as an auto inflammatory disease) Fck it's hard, haha but you are so amazing. My symptoms are not quite as severe as yours but also not managed well by meds. It's so admirable to see someone bringing awareness to our struggles like this, major kudos. Every day I pray for more med research that can help people like us because these conditions are majorly painful and difficult to live with
I’m intrigued. But definitely heart broken. I had a massive heart attack at 26, but through the years made a complete recovery except medications and bi yearly checkups. I can’t even imagine doing this every day forever? I’m assuming. Much respect and love.
Happy belated birthday Amy. My birthday is 2 days after yours. I am a nurse and I must say that I have learned so much from watching your videos. I too have chronic health conditions, autoimmune disorders and I get much encouragement from you.
Im studying to be a pharmacy tech & this video amazed me with how organized you are about your meds . Cause I always wondered if people kept their stuff neat fr 😂 This video was really informative and interesting to me THANKS GIRLY ❤️
Nada Luqman prepare prescriptions , bill insurance, gather general information about a patient, answer the phone , screen calls for the pharmacist, stock pharmacy, compound meds , order new stock get rid of old stock . If in a hospital fill IVs & med carts .That’s really it . Some people don’t do half of that , some do it all , some never have to fill a prescription. It all depends on where you work .
Bizarre to say but I am jealous about how many meds you get to put in your tube. I am only allowed hycet (liquid Norco) and my powdered potassium. I wish they would let me crush and flush my muscle relaxers. I feel like things would be so much better. So glad your pain patches haven't caused massive Mast Cell response. I can't do them at all bc of the adhesive.
It is just incredible the way you face the reality every day . People like me are always complaining about every thing you are such a motivation to me a lot of prays for you . Some times you just have to believe in miracles and have faith on him who created all of us . And you will pass every thing you ever were afraid of .
I love the deathly hallows patch around your port site I did not know you could get them personalized so cool!!! I'm interested to know more about you so off I go to hunt for videos with the info haha
I am a nurse and I am so impressed with your organization skills and your sterile technique! I couldn’t imagine living with a chronic illness like yours but you handle it with such grace and dignity! I love that you show off your tubes! Keep up the amazing work!
zebralover1217 I am a nurse too and thought the same thing!
I was thinking the exact same thing, incredible organization and your sterile techniques is fantastic! You’re an inspiration.
Excuse me.. What s the name of that illness
@@khadijamihrane7576 she has Ehlers Danlos Syndrome as well as other genetic disorders
zebralover1217 I was never a nurse but I worked in home care for 2 years. And she does so much better than some parents and home nursers. Very much impressed.
I'm so grateful she recorded all of these videos. Her legacy will live on forever
when she said hope u guys enjoyed it. this literally broke my heart.
EvasaurusYT BRUH !
Fr 😓
Same
I don't think she means this as a sad thing I think it's a way to get her story and what she has out there so others don't feel so scared or depressed or whatever emotion they're feeling. I'm proud of her that she's moving forward yes it seems scary but I think she means this as a way of showing how she just goes about her day with a illness that's painful idk how she does it but she's a queen
Oh no ! Don’t let this break your heart . This is our lives and we are proud to love it and live it . We just want people to understand us 😀
DO NOT skip the ads, help her to pay the expensive treatment and medicines she needs!!💯 brave girl!
Zaryna Girasol she’s in Australia where healthcare is free 😊
no it dose not she only gets money if she has a sopnser
@@amzybabes193 Oh really? That's wonderful , in my country it is very expensive :((
Zaryna Girasol i can imagine. UK and Australia are very lucky x
@@amzybabes193 And Europe 😊
I love how organized you are. I love that drawer you have with all the supplies.
Trekkifulshay me too! I wonder where she got it and if I can buy one with locking drawers. #kidsafety. If not I’ll lock it in a closet, lol.
I’m new here. Was your name Amy, OP? Where did you get it, zebra friend?
Its a medication cart. You can buy them from medical supply stores.
She never complained, like ever. She was so sweet and smart. Rest In Peace, Amy. No more lines, no more pain
Did she dice?
@@rosaliagil5694 yes
OMGGGGGGG SHE died???!!! Omgggg noooooo I used to watch her for yrs
@@michellem8751she died last year 04/01/2021
@@elfsj5939 Can I ask how she died? Did she die of this? They suspect I have gastroparesis but I can't get any further workup until October. I'm still eating, but in pain a lot and following a low FODMAP diet, which seems to help some.
This video made me feel bad for complaining about the slightless bad things that happen to me. You're so strong.
Leonard Robinson yeah I was thinking the same thing
Don’t let someone else’s suffering take away from your own suffering. We’re human. Everyone feels things. “Saying you can’t be unhappy because someone has it worse is the same thing as saying you can’t be happy because someone has it better.” It’s all about perspective.
the slightest things are important too. you may think that they aren't after seeing this vid but you don't have that illness and every person is going though their own problems. so yeah small probs matter too either for mental health/happiness or physical appearance
Same here .. I thought I had it bad my son being born last monday n me getting let go from my job on Tuesday out of no where.. after seeing her n how strong she is I wont complain again
@@sloanhouseholder6169how is your son doing?
Bby girl...you're now at peace. No tubes, no pumps. You got wings.
Fly🕊
😭
🥰
She died!?
@@opreanandrei3146 yes she died
That is so sad, what a sweet young lady.
I opened this by accident but I’m grateful I did . You are too brave . If this was me I would complain alot and never be able to do all this medication myself. It’s too hard. Love for girl . I hope you recover somehow and have good health. I’ll pray for you girl 💕❤️
a lucky accident hahah x
Me to
I am surprised you don't get your meds prepackaged l always spent a few hours a month sorting mine now they are prepackaged and l can take them easier.
Unfortunately as she is chronically ill it’s not possible she can get a little better or worst no 100% recovery unless a cure is found
Alisha you would do it because you would have to . We all started out without lines and then we learned adapted and adjusted . It’s part of the routine we just want you to understand how we work a bit of overtime to get it done
The 217 people who disliked this video are obviously ungrateful for the life they live. I can’t believe you wake up everyday and do this, hats off to you seriously. This video had me thinking that I take my life for granted and that I should appreciate the things I get to do and that I have. You’re such an inspiration, and I pray that your routine never fails you and that God keeps his hand over your at all times.
Actually I think they're just wondering when she took a bath cuz I was wondering the same thing. I wouldn't have down voted someone because of it but it may be a reason.
People are always going to have something negative to say or do. But you're right, she truly is an inspiration! 😊
@@EvilAlyssa why tf would ppl expect her shower or bath to also be on video? Ppl really are putting stupid sauce on their food or something. Weirdos. Smh
I'm randomly watching morning routines and I suddenly bumped into your video. You made me realize things! You're a fighter and I admire your spirit!
So hard to believe Amy is no longer with us such a nice down to earth person I hope Tom is doing well
I feel so dumb now for complaining today about the pettiest things.
I do too, she inspires me not to give up. :) God bless everyone who has to go through this or any other chronic illiness!
Same...ya just never know what others are dealing with. It's so easy to drowned in our own self pity. I need to practice gratitude more for sure.
Analyz Gmz I was thinking the same thing
Don’t let someone else’s suffering take away from your own suffering. We’re human. Everyone feels things. “Saying you can’t be unhappy because someone has it worse is the same thing as saying you can’t be happy because someone has it better.” It’s all about perspective.
Everybody has problems. We all feel different about different things. So don't worry, don't feel guilty..
I am so inspired on how u dont complain about life! While us even complain about waking up early or eating tooo much 😫 basically to complain about everything....
Love love love you... so inspirational and highly motivated lady 😻
amal zaini Your struggles are valid too!
It’s pretty fascinating...it’s like a full time job
SallyG May It’s really is, plus that doesn’t include all the medical phone calls scheduling appointments and staying on top of insurance issues/referrals and appointments and testing. It’s honestly exhausting and if you’re not super organized and stick to a schedule then you feel like you’ve gone mad and at times feel like pulling out your hair.
Except jobs pay you.
Yes it really is - I live with a before birth-to-death disability (plus other health conditions), I heard a saying last year "living with disability (and/or chronic illness) is like having a fulltime job, that you cant clock off from"..and it is so true. Your necessary daily medical routine etc, plus the aspects CailinMarie mentions above regarding all your appointments, therapies, tests etc, and the paperwork - you really do need to stay on top of it all, to keep your life (and body) running as well as you can.
SallyG May yup it sucks
SallyG May My ex’s lawyer would agree. Then argue that I should go get one since I’m so “able”. 🙄 It touched me when I saw so many supporting her needs. No one said “why aren’t you going to work now?” She took care of herself all day. It’s her job. Sounds like people get that.
UA-cam suddenly recommended me this after I heard the news. Rest in Peace, Amy. Much love to her Family and you Tom. Take care!
Same 😕
Same here bro. I hope her precious soul rests in eternal peace. 😔❤🕊
Yepp. every day and here and there her videos pop up. RIP again Amy. Take care everybody.
@Sophie Yh she has unfortunately
She passed away?? I just got recommended this video because I’m living he same thing right now. I’m so sorry 😢
I’m a nursing student and this video is such an excellent educational resource! Thank you for sharing
What is TPN? I dont understand english good so can you tell me what illness is this? Thank you.
TPN means total parental nutrition
Vlada TPN is the formula/ nutrition in the bottle. She has Ehlers-Danlos Syndome with gastroparesis, POTS, etc. that usually comes with EDS.
Elise go to med school
I watched this video and amazed by her then I learned from the comments that she passed away. I am so sad right now. Rest in peace. You were so strong.
Can you maybe do a video in the future about your life right before you "got sick". 😀That sounds like quite a silly thing but I'm interested. I know you mentioned you started getting sick in high school. What was that like, when did you start to think you had problems that weren't the norm (like clues to chronic illness)? How were the doctors? What symptoms appeared first and how did that affect your life? I'm in high school right now, and in the past few years my health has declined a good bit. I wanted to see your story/experience☺
Chloe Crownover i started getting sick in HS as well, almost 40. pm me if you like
@@gboneske I'd love to hear your story! Not quite sure how to PM though😂
that sounds like a cool video!
Bless your heart. I hope things become easier
Chloe add Geri as a friend in your inbox area then you can private message
This girl deserves all the love coming her way.
Yes of course ❤️❤️
I agree with you
She died
i know it’s probably not what you want to do, but you’d make an amazing nurse! the way you’re organized and careful with sterilization! love it (:
My thoughts exactly! She does a better job at me staying sterile ..im still learning! I believe she would make a great, safe nurse.
I suffer from POTs, Mastocytosis and fibromyalgia. Thank you for spreading awareness for chronic illness and helping people like me feel less alone when they are suffering from bad days.
Wow. As someone living with a rare chronic illness, she is such an inspiration. Her attitude towards her condition and life is amazing. A beautiful soul, with such strength. I admire her immensely.
To Amy Lee Fisher, thank you so much for giving hope to the hopeless and touching lives. And keep living healthy we hope you enjoy the best.
It's hard to care for a line. You can tell she's done this for a while, she knows what she's doing. She makes it look easy.
She most likely has Hickman cath for TPN..infection can occur..she does a great job❤
Did she die from infection in it like Jacquie?(sp)
I feel so bad for complaining in the morning because I take 2 pills. You rock girl, I love your videos and I loove see you healthy
I take three at night and I'm always moaning because of it but now ...I feel so stupid.
This is probably a bit late but I just wanted to say that other peoples problems and situations do not make yours irrelevant. That's something my therapist told me when I told her I felt self conscious about taking antidepressants, pain killers, muscle relaxers, and other forms of medicine. Sure, Amy's life seems difficult but dont downplay your own struggles and compare your life to Amy's. I hope this helps somewhat :)
@@Sam-rr6hf yes I know that, everyone have their own journey, thanks for your words!
@@flowerpinkvibes no problem!:D
Same I take 5 every night
I suffer from chronic headaches that drop me to my bed. But seeing this video made me want to be stronger and thankful. You are an inspiration
This was one of the first videos I have seen of Amy's. And now watching it knowing there won't be anymore breaks my heart. But she is an angel now resting in peace with nomore pain. She will be gratefully missed.💜
i love the iv pole wrapped in Christmas tinsel, it must helped with keeping you happy during the Christmas time. i love your videos, ive been binge watching you videos for the past few weeks now. hope everything goes well throughout the holiday period. x
Check out her vlog channel too. Amy's Life. I found her channel.a couple years ago and started watching and then I found her vlogs and was in heaven. :)
@@the1mrsmalinski136 i have been watching those, thats how i found her channel
This is the second video of yours, the first one i watched was your morning routine in hospital.. I’m so happy you are out of hospital and are able to sleep in your own bed. Keep living your best life and stay positive girl!!
I really wish this was accessible to more people... looks quite expensive!
Patricio Cantú in Norway, 90% of that would be free, I love my country
THICC Chungus in your country you’d be waiting 2 months for each of these things, I love my country
Garkillack - no ofcours not because without that gear pepoel with that condition would die
She has explained in previous videos that quite a lot of it is paid for
In America if I had to use any of this i would die
Rip you graceful soul 💜 I will always remember you thank you for being an inspiration to the chronic illness community 💜💜
I love how you don't complain doing it every day, steralizing everything, how organized you are. ♥♡
Hoenstly don’t know how you do this everyday...I complain so much about having to wake up early to get the bus for school but I would never be able to do this every morning. You are so strong ❤️
Yeah so I am done complaining about taking medications or things in my life period! This made me realize things could be alot different. I applaud you on how strong you are, you do all of this everyday and you don't complain, or feel sorry for yourself. Your a beautiful young lady, you dress cute and your smart!! GOD will always be with you!! You are a true definition of the saying "life is what you make it"..........blessings to you daul 😘😘😘👑❤👆🙏🙏💪💪👍👏👏👏👏👏🙌💖
this video came up as recommendations when I was admitted to hospital (youtube know where I am...?). not EDS but I also have chronic illness, there some ups and downs in my life. your videos teach me how important to be educated and organized to cope with my own illness. thanks Amy, you're such an inspiration!
Me too i have type 1 diabetes💙
I feel like crying now . I showed this to my husband and we were quite sad about pur complaints in life.
I have endoemtriosis and I don't know until when it will stay. It has been bothering me a lot. But now I think I can endure it knowing that you even endured life
You are such an inspiration to us! God bless you!
You have the strength and courage of a lion. Stay positive queen, you inspire me to be even more grateful for my blessings
Omg girl I feel you I was on a feeding pump for 15 years they took the gtube out when I was 18 but I know exactly how you feel and the pain god bless you are still alive today, and I feel you on how my pump would go off and push that pole everywhere and we literally i had the same feeding pump as you but girl I’m glad someone has a UA-cam channel like this because it shows what people don’t understand but once again God bless❤️
Just saw this video, so touching. May your soul continue to rest in peace
I have chronic pain and feel sorry for myself often. I am on a pain patch and about 4 other meds that I hate taking daily! As I watch this, I have to commend you for being so organized and positive. You have inspired me to try harder and stop whining and get up and move! I have Chronic Adhesive Arracnoiditis, failed back syndrome. Other issues too but they pale in comparison to what you do every day! I never have a day without major pain but I have to try harder to focus and get moving, pain or no pain!! Thank you for sharing this video!!
Lord, this young lady has such a beautiful spirit!!
Why don't you tell her the gospel , since your saying lord what Lord are you talking about
@Ella Sparkles yeah to people like you salvation and damnation of people's ETERNAL souls , is a joke to you , you know why cause your not born again in the holy spirit of King Jesus Christ, calm down , why so you can San say , lord with no actual Gospel , HOW CONVIENIENT FOR YOU
@Ella Sparkles my life is in King Jesus Christ, where's yours m.ua-cam.com/video/y8aIS-dhU-s/v-deo.html
🎥 Justin Peters: Clouds without water - False prophets - UA-cam
Christopher1 bernal I wanna go to hell lucifer seems nice
@@morganhenry4826 m.ua-cam.com/video/-1nCYwHt_20/v-deo.html
🎥 Charles Lawson -HELL FIRE!! POWERFUL SERMON - UA-cam
I am nursing student and I am so impressed . You should be so proud of yourself Amy . Merry Christmas.
I don't understand 1 think ,why clean healthy people get sick ,and people who live in slums r healthy
raj patel maybe bc sick people would just die somewhere without healthcare rather than get the chance to live w their sickness?
R. I. P. She is deeply missed. Such a love lost!!!
I won't ever complain about my daily routines. Truly inspirational 💪
Thanks to GOD forever. In Cry in Laugh. Life is so bless for us
Young lady you are strong
you’re about the strongest human being i’ve ever witnessed. wow. such an inspiration.
You are an inspiration i feel so bad complaining all time about my body and appearance i always struggled to love myself ( Still struggling but will be able to one day 💜 ) and this video made me see that I'm able to do things that others aren't able to do it made me see that some people don't have it so easy and you are so strong amazing and incredible to be able to get up every morning with chronic illness God bless you 🙏❤
I have cancer but I have survived with it for 8 and a half years and your organisation really inspired me so I did it my self so useful
I don't know what to say . You do so well with managing all them tablets and pain patches and needles etc. Got more medication then a chemist shop. Lol. All through that and you still keep a smile on your face and get on with it. I feel so bad for you having to go through all that and your only young. I just want to give you a big hug and a kiss on your hand . Your a special person. I hope you feel better after all the meds because they can make you poorly in its self. I know they do me. I will say a special prayer for you amy. Blessings. 🧚♀️🧚♂️
my mom has a chronic illness, and i recognized everything you did & you did it fantastically! i do all of that for my mother & she has gastroparesis ,, all my good wishes and love💓
TPN stands for “total parenteral nutrition. The “line” is going into a larger central vein where the body can quickly dilute the concentrated solution of up to 20% or higher glucose and amino acids, minerals and often a bag of lipids every third bag of TPN. Thanks for showing the reality of living with chronic illness
And this is just the morning routine. Wow - I have so much admiration and respect for you. You make it look easy but I know this is a lot of work. I wish you all the best and applaud your positive attitude! ❤️
Wow she is amazing and doesn’t deserve to have her life taken over by this horrible disease ❤️
I think she is very good
At least she's still living her life despite of it. Shows how much we take for granted. Gone are the days when people with these illnesses just sat at home and waited to die.
@@ricog8209 hi, Rico g
I have been reading what you said and it is quite true so thanks stay in touch
Cheers Vanessa
I am sory but i need to ask you,what deseise is this cuz i don't understand english good...Thank you...
@@vladapetrovic1644 She has Ehlers-Danlos Syndrome, which causes a lot of other issues like her gastroparesis/intestinal failure. She also has POTS and several other various conditions.
Wish we had raspberry pepsi in the United States that sound delicious.
Its horrible tbh
Sounds disgusting
sprite cranberry??
I was thinking the same, I love raspberry!
We have raspberry coke in nd in a glass bottle and its soooo good.
this showed up in my recommended but I'm glad I clicked on it.. this girl is so strong to be able to do all of that herself
I’m just curious, aren’t you scared of the tubes etc being pulled on? That is my worst fear
charlotte smith somtimes! But I can’t live my life fearing little things like that, I just do my best to be carful not to catch them on things
same here i feel the same
charlotte smith omg my stomach hurts thinking about it ripping out
@@maxhampter2283 you can't rip the whole thing out. It would just disconnect if caught on something.
Nobody will walk up to her and yank on the tubes.
ladydmethify Not entirely true. I have a friend with Gastroparesis, a classmate yanked on her feeding tube. It caused a lot of issues and she had to have the whole tube replaced.
She so clean 🧼 with everything. You go girl yes it take a lot of time specially the meds part
My mom is a TPN pharmacist, and she describes this process as being so complicated. Good on you for being so organized!
We have the same dosette! I’m in recovery from anorexia and bulimia and am currently in hospital (just about live here).. I was diagnosed with type 1 diabetes at age10 and CFS at 17... delayed gastric emptying a few years ago and recently possible diabetes related gastroparesis and fibromyalgia. I feel like its sooo much work just to ‘exist’ physically when I’m so miserable, I often feel like there’s no point. Watching this today has been somewhat comforting and validating. You’re a tough girl. Sending love 💕
I have fibro and Rheumatoid Arthritis and I can't get up some days. Thanks for the inspiration you gave me today. ❤️
I have Fibro also.. I have really been struggling since the shutdown because of a lot of really drastic changes. I could have never anticipated how severely it would affect me. It’s been one flare up after the other for the last several months and it gets really overwhelming. There’s been some REALLY dark times.. but you just have to keep going, right?
@@princessangerloo5905 most definitely 💟💟💟💟💟
I too have fibromyalgia (I experience sciatica backpain and intense headache)...I take 3tramadol for lower backpainand antidepressants for headache....may I ask you ,what medicine you take?
Sumaiya Khan I’m not sure if you’re asking me or her but I will tell you anyway Lol I also take tramadol, and hydrocodone for pain. I take a low dose of Ritalin for the chronic fatigue. Otherwise I would be so fatigued I wouldn’t be able to function. I have opted not to take an antidepressant because of the terrible side effects. Although there are still some side effects with other meds.. one thing that has made a HUGE difference for me is I started taking Glucosamine Chondroitin. It has helped immensely with the overall ache in my body. I do Myofascial Release therapy that also makes a big difference. Regular massage can be helpful but it’s not really what our bodies need to release the muscles from spasming. Hope this is helpful!
@@princessangerloo5905 thank you very much...I was asking both of you....I took screenshot of your comment n will search about your medicine ....I also take massage... thank you very much dear
And here I was complaining about my back hurting really bad and needing to take a lot of different medicines that irritate my ulcer and IBS.
It's nothing compared to your every day tasks, you are such a inspiration 💜
Jessica Lind just because her life is hard doesn’t mean that your struggles don’t matter. don’t get caught in the mindset that “someone has it worse” - we’re human! we all face difficulty. sorry your back hurts. i hope you feel better.
+ Jessica Lind Are you feeling well now? I sincerely hope so
As a nurse myself, you’d be a great nurse!
Yes as a nurse myself..she has a great routine!
@sky not saying No I do not work in these areas
Wow....you're an inspiration to many. I'm suffering from an autoimmune disease but I'm really grateful that things are not as bad as it could have been. I'm no longer on medications.... Watching this brings back a lot of memories. As an aspiring nurse practitioner, I have to say I really admire how well you're handling everything and the positive mindset that you have. You're always in my prayers.
I think that she should be remembered by the whole world, for me she was and she is a true warrior, they should make a movie about her because people like her deserve to be remembered in a big way.
we will miss you amy ekisses and hugs to heaven
What happened to her
@@cathysworld5903 she died
I can’t believe everything you have to do in a day. Truly inspirational. You are so strong and beautiful ❤️
Prayer sent, brave lady. 😇🙏 God is bigger than any Illness. We're all cheering and praying for you from ph. Sending hugs 💖
Oh man, this came up on my recommended, I watched this video 2 years ago. What a beautiful soul she was 💗
I had to take 4pills a day and clean my amputation spot and i tought that was hard to do everyday, now ive seen you and i tought now this must be hard to do every day. Respects. Btw you are really beautiful❤
Street Rossi what did you get amputated I might have to get my toe amputated
@@adalimagallanes3665 i had my big toe amputated, its not that bad.
May God bless you! 😊
Adali Magallanes did you end up having to get your toe amputated? :/
Rest in peace Amy! Fly high girl!
I wish I would have known about her before she died... we've lost a precious lady.
Yea she as a fighter :(
Lady, your morning makes my celiacs disease look like nothing. I have been struggling with the symptoms of my illness, and your willingness to share your life seriously puts things in perspective for me. Truly thank you.
I’m blown away with this. Just wow! I have chronic pain all day every day and on morphine a lot. But honestly I feel bad for moaning when there is people like you who just get on with life even though life’s give you a shit hand. Definitely subscribing 😀
She teaches us that life is what we make it. ❤
She’s definitely an inspiration to looking at things in a more optimistif light, but please don’t compare your struggles to others. Your problems are no less significant 💕
*optimistic
Rach Violet Your struggles are valid too. Just like mine. I have CRPS so I live with daily chronic pain as well. Stay strong, love! ♥️
I have chronic pain from bone erosion, I'm on a shit ton of muscle relaxers that dont work thanks to the pain killer overdose epidemic... how the hell did you get pain killers?! Lol I'm 22 in a walker 😂
So much to do in the morning your such an amazing person your a role model !😍
I’m really impressed with how well you’re managing at home! Just be careful crushing your pills together since you’re compounding them. It can cause the medication to interact with each other.
I'm happy UA-cam exists. We get to learn from others. Thank you for the video 🕊
this is a job and you are so good at it!!
Dieses Video macht mir bewusst, wie glücklich ich sein kann dass ich gesund bin!
Und ich wünsche dir noch viel Gesundheit💗
So denke ich auch....
Wir sehen immer nur was wir NICHT haben und nicht was wir haben, vorallem wenn wir gesund sind.
Hab ich mir auch gedacht. Sie ist toll. Wünsche dir alles Gute.
Bin nicht so gut in Englisch, was genau hat sie denn? Kann sie essen?
@@laurabove8428 Ihr Magen und Darmsystem (inklusive Blase) funktionieren nicht (gastroparese). Sie kann zwar essen aber nicht verdauen/Nährstoffe aufnehmen, deswegen die ganzen anhänge. Es gibt zwar Dinge die sie dann über die Sonde im Bauch wieder "loswerden" kann, sollte sie jedoch etwas essen was sie so nicht wieder loswerden kann wird ihr extrem schlecht und sie leidet unter starken Schmerzen. Amy hat noch einige andere Diagnosen die durch Ehlers Danlos Syndrome (ihre "Haupt" Krankheit, wie sie selbst gern sagt) ausgelöst werden und hat zusätzlich, wenn ich mich recht entsinne, noch andere Krankheiten die mit EDS nichts zu tun haben... Die weiß ich aber gerade nicht auswendig 😅
RIP dear beautiful Amy, u will be sorely missed.
RIP mean is she died?
@@Miniflower25 yes. She died around 3 months ago 🥺😭😭
I also have EDS, gastroparesis and POTS + general dysautonomia! (as well as an auto inflammatory disease)
Fck it's hard, haha but you are so amazing. My symptoms are not quite as severe as yours but also not managed well by meds. It's so admirable to see someone bringing awareness to our struggles like this, major kudos. Every day I pray for more med research that can help people like us because these conditions are majorly painful and difficult to live with
You're practically a doctor. I'm proud of you ❤
Technically nurses do these things usually
@@lMissC3 that's precisely why I'm so impressed 😊
*nurse
I’m intrigued. But definitely heart broken. I had a massive heart attack at 26, but through the years made a complete recovery except medications and bi yearly checkups. I can’t even imagine doing this every day forever? I’m assuming. Much respect and love.
Wow that's so young to get a heart attack ,do you know why you got it ?
Wow glad you’re ok! Wondering the same thing!
Wow. Completely randomly came across this video but that was fascinating. You go girl.
Happy belated birthday Amy. My birthday is 2 days after yours. I am a nurse and I must say that I have learned so much from watching your videos. I too have chronic health conditions, autoimmune disorders and I get much encouragement from you.
We will never forget you, Amy. Thank you for everything you taught us. ♥️
هي اي عندها
First time I've seen your video. For a young lady, you seem to be doing amazing on your own. Keep up the good work
I can't imagine not be able to eat foods that i love, hiking and doing labor intense stuff as i love to just move... You're amazing
dont worry amy.. your in a better place now.. no more tubes, pain, medication, worries or ivs. i hope you enjoyed your life
Im studying to be a pharmacy tech & this video amazed me with how organized you are about your meds . Cause I always wondered if people kept their stuff neat fr 😂 This video was really informative and interesting to me THANKS GIRLY ❤️
What does a pharmacy tech do?
Nada Luqman prepare prescriptions , bill insurance, gather general information about a patient, answer the phone , screen calls for the pharmacist, stock pharmacy, compound meds , order new stock get rid of old stock . If in a hospital fill IVs & med carts .That’s really it . Some people don’t do half of that , some do it all , some never have to fill a prescription. It all depends on where you work .
Shara Lei
Thank you for the info and, good luck.
If you’re taking the PTCB soon you should probably take it before the year ends, the 2020 update is going to be much more medicine heavy and harder.
Im a nurse and in so impressed by you.you are truly amazing
Bizarre to say but I am jealous about how many meds you get to put in your tube. I am only allowed hycet (liquid Norco) and my powdered potassium. I wish they would let me crush and flush my muscle relaxers. I feel like things would be so much better.
So glad your pain patches haven't caused massive Mast Cell response. I can't do them at all bc of the adhesive.
how did she remembered all of these things? amazing! salute this girl! sending love and hugs! 🤗🙏
She was a warrior who was sadly taken far too soon. 😭
😭😭😭😭😭 Comming here to see you again!!! We all miss you..... 😭
After seeing yesterday’s video I’ve been going through all of her older videos. Rest In Peace Amy ❤️
Wow, I can’t imagine take this much medication in a day. I would feel so nauseous. You’re a true warrior
It is just incredible the way you face the reality every day . People like me are always complaining about every thing you are such a motivation to me a lot of prays for you . Some times you just have to believe in miracles and have faith on him who created all of us . And you will pass every thing you ever were afraid of .
I love the deathly hallows patch around your port site I did not know you could get them personalized so cool!!! I'm interested to know more about you so off I go to hunt for videos with the info haha
Gabriel love 🌹🌷🌷🌷🌷
My father has Crohn’s and lives off tpn but must live in the hospital, great to see you be able to do most of your own nursing!!
Mikaela Brosnan sorry this is late I have crohns as well and so far living off a feeding tube that is temporary atm
This video made me think about how greatful I can be for life and healt.
You're such an amazing woman❤
I admire this beautiful woman's strength. Thank you for posting!
I feel so selfish now for complaining about small things you are so strong and organized and you are strong