The diagnostic difference between OSDD and Dissociative Identity Disorder, and prevalence figures
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- Опубліковано 29 вер 2024
- I received lots of questions about the category Other Specified Dissociative Disorders (OSDD) so have discussed in this video how this and DID are diagnosed, and what sets them apart from each other. Also included are published prevalence rates for these conditions, from Lowenstein (2018) Dissociation Debates: everything you know is wrong, Dialogues in Clinical Neuroscience, Vol 20 (3).
I was very struck by you saying that in OSDD1-a and 1-b the alters are highly influential but they don't front and take over the body. In the U.S., that's not a trait that shows up in discussion of OSDD1a and 1b. I'm intrigued because, with a few exceptions, that describes the way I've experienced my alters. As I've gotten to know them since my recent diagnosis, I've offered to let them from front. I am usually right there, listening and observing. If they front for more than half an hour or 45 minutes, they talk about how tiring it is to operate the body. We seem to be designed to operate with me mostly at the front, and the others blending or co-conscious. Very interesting to hear a professional describe this.
That IS an interesting note, b/c our doc originally said OSDD, then later DID, but has gone back to OSDD... yet alters in our system DO "take over" the body- free to act however they will, and I (the host typing), have NO IDEA what's going 99% of the time. They act, they speak, they watch/do whatever they want... they can do things around the house, etc.
That, imho, sounds like it's DID clearly by how you described the differences.
What difference does it make if a doctor SEES a switch happen?!
The way I've seen it described is it comes down to "executive control." With my system, it seems like the vast majority of the time, yes, an alter may front and they'll have a huge amount of influence on the way we feel, what we do, how we move, etc., but like you say, I'm always there in the background, sort of "supervising" I guess. I can't always intervene if something goes wrong but it's often the case that I can, like stopping someone from saying or doing something that would lead to disastrous consequences.
(I'm really more of a "backseat driver" though... I kind of hate fronting, but I get a kick out of watching everyone else do it...)
Your alters who get "tired" after being out front for a while might get stronger if they practice. That's what happened with us. It hasn't helped every part, but it did help some of them. HTH.
I think it's sort of a fuzzy definition... it's not like everyone is going to fit in exactly the category of OSDD or exactly DID. Amnesia and who fronts can change over time.
My system is like this, typically. But I've definitely got a lot of long term missing time/memories and have recently been informed of some conversations I don't remember having at all and are out of character for me. So I have no idea what's going on anymore lol
this channel is extremely informative,as a psychology student that has been dealing with DID,its a comforting thought to know that it's handled with competence and kindness instead of prejudice and incompetence
Thank you!
I have no idea what I have, I do feel like i lose control of my body when the behavior takes over & I don't fully lose memory, usually my memory becomes fogged & if I try really hard to remember it then i probably could. I do have memory loss from a lot of my childhood & some of the abuse.
In the USA there are systems diagnosed as OSDD1b, they have no or very little amnesia between alters, but they do take over the body fully. What would you say to a OSDD1b diagnosis in that case in general terms?
SusanS. Radio Collectiv I answered a similar question elsewhere on here. Each clinician will determine many factors to achieve the best compromise for diagnosis. The five categories within DID are likely to have a degree of flexibility for some individuals, and where there is a lack of absolute certainty, making a cautious diagnosis is reasonable. In your example, it may depend on factor three, the degree of distress/functionality. It is not an easy task!
Reading the comments section answers many questions I had about this, thank you all so much!
Sparkle Heartz So much involvement, it really does help!
The comments I have seen here are the best! Such good information all the way around. This is how it should be.
Thank you for clearing things up so well! I do experience amnesia but because the fog I experience usually comes back to me a little bit, for example if somebody had a breakdown we could have a basic explanation of it eventually, so even with our diagnosis of DID already said and done for some reason I overthink this. 😅 Smart of psychologists to blanket DID-OSDD as just DID because we’re all going through close enough shit
I've been struggling for twenty years now with something I really do not understand, and now I've come to think that might be dissociative disorder. My daily problem is if I get just a tiny bit of social stress it becomes all floaty, I stop feeling my body and lose coordination to the point, where I can trip and fall, and then I start acting just uncontrollably and lose any comprehension of reality, and I always have great difficulties in recollection of the events of the day afterwards. It takes days to remember, to reconstruct by crumbs what has been happening and what I've been saying, and then enormous shame just overwhelmes me. I keep hearing embarassing stories about myself, that I don't remember happening. Years ago I would go into similar states, but could sometimes witness what is happening, feeling like being operated by another person with a character unlike mine. I've been searching for answers for all my life now, but still clueless about what that could be. My life is just tides of losing control and forgetting, and then welling up with burning shame, and my social connections are instantly ruined by my erratic behaviour I can't even remember. Whatever it is, it casts my self image and dignity to dirt just every day.
I recognize these feelings you describe. It is a hard and often lonely journey. Keep educating yourself. One day, hopefully, you will find the peace and joy of acceptance of who you are - all of you.
@@janel4582 Thank you so much for your words. I will be trying
in germany, we work with the ICD-10 or ICD-11, it doesn't have OSDD, but it does have a dissociative disorder called partial DID, which resembles OSDD or even covert DID a lot, what do you think about that diagnosis? do you think the DSM diagnoses are better?
1. you must be suicidal/homicidal or manic to be admitted usually. 2. The inpatient atmosphere encourages dissociation. 3. in some countries like Russia and China, I doubt people are diagnosed or treated or see a doctor other than a GP equivalent for proper diagnosis. 3. A country must admit there is severe child abuse below the age of 3 happening in your country to acknowledge DID. 4. In the US, we still deny ritual abuse even while admitting sex trafficking. And rarely are "americans" considered possibly guilty. 5. We are still ruled somewhat by the false memory people. 6. And did I miss the difference between osdd 1 and 2?
do you happen to have a link to the source of the data you showed? I am interested to learn more about that.
Hi Theresa, the article is referenced at the very end of the video, it is open access so you can search it on Google.
Now, we're in therapy because something has occurred for us, and we're not sure what it is. For example, I Declan live in Vinicius's body with other people, and we believe it's OSDD-1b because we don't have much amnesia. ~ Declan
I'm looking for this because of the way I see myself.
I see my personality fragmented in four people- is that normal?
Like.. They are all me, for sure- but- not? At the same time... Yk? They have their way of acting yk?
I just need somebody to help me ;7;
Is EMDR ineffective for people with CPTSD with derealization and depersonalization?
It all depends on a good assessment and knowing when and when not to apply it.
I am from Israel. I didn't knew we have a DID check ups.
Please help.
This was brilliant Mike! Thank you for educating us 🙏 it was great to see the uniqueness in each country’s prevalence rates too - what’s got me curious is the prevalence within the population as I know these figures are also varied and so I’ve tended to hear that it’s around 1% of the population... but is that DID specifically? What about Dissociative disorders prevalence? And then what about dissociating (within other MH disorders) in general?
This was a topic I was going to explore myself but there’s just so so much to read through and explore! I’m sure you’ll be far more concise and accurate than I could be!
Thanks, Jess! Yes, 1% seems the right % from different countries; if you look at DDs across all categories, it is between 9-18% (for general population) and between 5-46% in mental health populations. Loads of variety, and not enough studies to say much with absolute certainty. But then, it is the same problem working out true prevalence for many health conditions unless there is a public health notification requirement.
I agree! So very helpful, thank you! And thank you to Jess for all that you've done (and put up with) by putting you and your guys out there - you all are so brave! Husband too! ;)
Thank you!!!!!!! Love, All "11" of us
MultiplicityAndMe hi. Please can you tell me what is the benefits of getting a proper diagnosis. Thanks Andy
@@thectadclinic Hi I was wondering if the amnesia can count retroactively in DID? As in at times I feel as though I’m present to a degree in any given situation but later on I lose a lot of the details or even lose the whole time frame. Is that something you’ve seen in your practice? It feels different from simply not bad short term memory.
Btw I absolutely love your channel. It has been so helpful and I’ve even watched a video in therapy with my amazing therapist and it has defined the direction we are taking in our approach to opening communication with my brain family. So thank you!
I was diagnosed OSDD1b in the US. Some of the Others front and we have had some long term fronters (I've been here 3 years) but we're co-conscient always (sometimes it's a little bit fuzzy after the fact and I don't quite remember the whole thing. Sometimes, in highly emotional situations a protector will push his/her way to the front and move me aside (quite rudely!) but I have never 'lost time'.
I don’t really have a protector lol there’s only two of us here
@@jellyandthecrewman1834 'Only two' so far...I used to think there were only five of 'them' (before I realized I was part of the system) we are now about 47, a new person came forward just last week. You never know maybe there are more than you think.
@@janel4582 oh my god Lily we aren’t alone
@@jellyandthecrewman1834 😊
@@janel4582 check up: we have two more! Julia is literally a jock and Sophie idek about her
So yeah now there’s four of us
Could you do a video on OSDD 1A? It seems to be the least known and understood of the dissociative disorders
Yes please!
OSDDB1 AND A1 are acually not a diagnostic just yet. Just thought u should be aware before saying your diagnosed with it. OSDD is but not b1 or a1 they are a theory. - ua-cam.com/video/FjvpHj6D-s4/v-deo.html
I don't remember my child hood until last year, and it is coming back in flashes which is scary. Sister smashed her husband's chip's at lunch and went into a rage at him and the panic attack in me was horrible.
I didn’t realize how many heated arguments I got into until I started getting an alter
SAME ITS COMING BACK IN FLASHES
Just want to say that I REALLY appreciate you putting this information out there.
I havent been diagnosed but I feel like I may have OSDD. I've always had a presence in the back of my head. But it never came to the point of them fronting. I thought I may just be crazy. Theres times I get random thoughts. Almost like a discussion that influences me to certain choices I've made in life. Theres times where I feel like I'm not ME either. But someone else? Idk. I sound crazy loo
same i seem too crazy i already started to refer to my other “personas” in 3rd person its that my actions when im not this me i do soo much stuff i wouldnt do
i counted like 4-6 of them and my mindaet changes sometimes its fuzzy and i feel like someone wont let me say stuff and some of mes get influenced? i honestly have no idea :(
also i feel disconnected from some of “their” memories and feelings
@@phostentialrotinrainyfishc9447 yo exactly this I get that shit all the time
@@8Starry_Sky8 at first i thought they were just personas i came up with to be cool around others but than i feel like they started to have their own feelings or i realized they kinda had their own stuff.
like for example Daki is super sensitive: hates people, touching, food, herself, always cries and is always anxious but i cant imagine ever feeling like that.. is there a chance i have OSDD...
theres some stuff i dont even remember anyone doing and literally cant differ reality from dreams.
I’m feeling awful right now for no reason and I feel like thats just Daki...
also there always were inner conflicts with me and fights and always ended up crying
deciding stuff has also been very hard idk what to do...
@@phostentialrotinrainyfishc9447 no I get that. I've always had feelings I couldn't explain. Logically my head was like. Why are you doing this. I'd always come up with different names to identify myself as. And sometimes I think that was for a reason. I have alot of moments where My PTSD will pop up then time is like scrambled again. And I dont feel like me
@@8Starry_Sky8 same all my personas kinda are here to deal with stuff that others cant process or understand.. when Dakis or others emotions are too overwhelming and processing stuff becomes too hard the body kinda turns on autopilot and Akadia the emotionless me fonts it always feels empty when ur Akadia... im kinda glad to see im not alone also hope you get better!
thank you for this great video. watched the other ones and immediately subscribed to you. Id like to give a little bit of onstructive feedback about presenting information. maybe if you highlight the things which you are talking about while showing it on the screen, that would be helpful. seeing the wall of numbers while youre talking is a little bit confusing and while searching for info on the screen im not paying attention to what youre saying :)
i guess your videos have a perfect timing for a lot of people right now. i was wondering, is there any possibility to mistake some forms of epilepsy for dissociation or did?
I second the thing about highlighting. My eyes are betraying me at the moment and I had to pause, lean forward and squint at a large screen to break the text apart. And there are people with way way waaaaay worse eyesight them me, and usually smaller screens!
(Other than that, 10/10 video, informative and to the point, without waffle, skirting around the information or attempting to explain anything away like I've seen some people do.)
I totally know what you mean! It was difficult figuring out how to do it better, and I am still learning. The only answer is to pause and read, but the text is still small. In future, I will try and highlight the text in smaller chunks as I go along. Thanks for the great feedback!
Plus, yes, conversion symptoms, such as dissociative episodes / seizures are often mistaken for epilepsy. Advice is always get things checked first via neurology and go from there.
They tested me for epilepsy a couple of times when I was in my teens to mid-twenties, waay before any1 even mentioned possibly having D.i.D, due to time loss. x
You mentioned that for OSDD alters dont front. I believe i have OSDD-1b as im being treated with the DID treatment and have been told by professionals that I mostly likely have OSDD-1b because my lack of amnesia. I have distinct alters that do front but no amnesia. (They do have different voices, age, handwriting, likes/dislikes etc.) As far as I know my first alter came around age 8? So it's been a while (12 years). At first she wouldn't front or much but as time went on she (and others) did start fronting, taking over the body, making decisions etc. Because my alters do tend to front and take control of the body (often actually) what does that mean exactly?
Its an excellent question and highlights the imprecise nature of diagnoses in mental health. The absence of any amnesia would normally prevent diagnosis of DID according to strict criteria, but if there is clear evdence of alters coming out with distinct personalities, significant alteraion in affect. behaviour etc, then this could lead to DID. The compromise could be OSDD-1b, even with fronting alters, as without amnesia, the 'loss'of functioning is not apparent as the person is fully aware of all that is happening. It isn 't easy to get it right in every case, so compromises are made to be cautious. The true key is whether the treatment offered works!
@@thectadclinic Thank you so much for explaining! In the future would you maybe be willing to include a small segment in any of your videos about that compromise in diagnosis and how it works?
Or is it more like a long spectrum where you have all the dissociative disorders but can have something similiar to between 2 disorders on the spectrum.
If you don't want to explain it do you have any resources or websites where i can learn more about it?
@@thectadclinic bumping Crystal's second question as I'm interested, too.
@garby that's true. I do experience emotional amnesia as well as blurring. Adding other more common things to the mix like depression anxiety can make it a lot more difficult.
I guess I just tend to say I'm functional in the sense of being able to hold a job, do chores, be with friends etc
This definitely effects those things but doesn't make it impossible you know? While there's others who aren't able to at the moment
(I don't remember The context- I should've reread my comment so I'm sorry If I'm way off) but I want to say I completely agree with you.
@garby not to say at all that I know your experience! My symptoms may just be more mild. But you had a good point. Thank you for correcting me :)
huh, this was helpful in trying to figure out if i have osdd-1b, or i just have bpd manifesting itself in multiple "personalities" that aren't actually a system but rather just figments of my imagination. my therapist is in the hospital so i cannot see her for a month, so i'm just looking around on my own now. still unsure if i have osdd-1b or not, but i do have an alter who's frequently coconscious and experiences his own identity separate from my own. he doesn't front, but does influence me heavily, and sometimes i allow him to influence what i type to let him talk to others. i even fixed up his own social media account, and sometimes i go on there when i sense his presence and let him hang out. of course, you can see why i'd be worried i'm faking everything if he never fronts, especially as someone with a bpd diagnosis, a fragmented sense of self identity being a symptom of bpd.
i know this is 7 months old, but i have NEVER heard anyone say the same things i go through. literally, everything you said is me, kinda freaky. ide love to talk to you + maybe we can help eachother out w this, i’m learning and struggling lol. 🤍
@@sns22895 ya’ll are not alone! Im kind of in a similar boat!
@@sns22895 this is late but i'd love to talk to you about our similar experiences :) i've discovered a lot about myself and my system since nine months ago.
@@abbiepancakeeater52 Hello!! I also very heavily relate to what you've said, I assume I have OSDD 1b and I have 2 alters as well as the host,, me. Sometimes I let both of my alters [a little and a caregiver] influence me and sometimes they co-front/are co-conscious. I've tried to speak to them and sometimes I hear responses back but it's hard for me to tell if my caregiver is speaking to me or if it's my conscious, but they do influence me a lot. I put name tags after I speak to let everyone know who is actually speaking in the moment. - Le
@@abbiepancakeeater52 hello, I know this comment is from 9 months ago, but I saw your original comment and this is EXACTLY the kind of shit I am currently struggling with (Bpd/c-ptsd vs OSDD or even extremely well hidden DID, but OSDD seems a lot more likely). Could you perhaps message me back and tell me about the stuff you have learned? Especially since you mentioned your system and all. Thanks in advance!
Great video but we hope you can answer some questions still:
1. Most people claim full DID needs amnesia between headmates, but the criteria says ANY amnesia even just of past traumas. So if day to day memories are generally shared but there's past amnesias, is that more DID or OSDD?
2. The DSM 4 differentiated on whether headmates switch, or just use influence/similar. This parallels how the ICD differentiates DID and partial DID. Is OSDD-1a the equivalent of ICD partial DID, or are they different?
3. Why is OSDD talked about tons but partial DID is basically completely unknown, despite the fact that ICD is used worldwide and DSM only applies to the USA?
4. DSM-5 criteria 4 reads "the disturbance isn't part of your normal culture/religion", this heavily implies the existence of plurality in many cultures/religions which don't fall under DID/aren't considered disordered/pathologies. If so, then that means DID/OSDD/pDID aren't the only forms of plurality, and there are other causes of plurality in different cultures. What are your thoughts on this?
(And if other forms of plurality don't exist, then why does this criteria exist?)
I know this is an old comment, but I ended up on this video because I’ve realized over the past year or so that I’m probably not just really great at compartmentalizing trauma, but dissociating pretty regularly, and according to this video likely have OSDD (not sure which variant because I also have the same question about traumatic amnesia but not day to day amnesia)
I’m certainly not a professional by any means, just another person trying to figure out what’s going on up there, but that being said I think I can answer your 4th question to some extent. My experience with religion is limited to being raised in a protestant christian household and taking a couple of religion courses in college, so I can’t speak on anything outside of that.
Two examples of religious multiplicity came to mind as I read your comment, the first being shamanistic practices/religious healers, and second being the “holy spirit.”
From what I gathered in my college courses, shamans can allow “others” to take over and act through their bodies by putting themselves into a trance state. Whereas some spiritual/religious healers report sharing their bodies with doctors or healers who have the knowledge/skills/etc. required to give medical advise and in some cases even perform surgeries, when the individual themself has no medical background whatsoever. (If anyone wants to read about this stuff, I read Magic Witchcraft and Religion by Pamela A. Moro in school. 10/10 recommend.)
Then there’s the good ol’ holy spirit, that’s supposed to work sort of like a scary “gods always watching” conscience. (Side note this is more anecdotal because I haven’t actually studied Christianity as a whole nor do I have any interest in doing so, but I did spend 16 years of my life being dragged to several different churches throughout the years, and it was a common theme among almost all of them). Anyhow, every pastor in every church I ever went to said quite frequently that they “heard” the holy spirit, that the holy spirit was speaking through them, that the holy spirit drove them to do one thing or another, and SO MANY people in every congregation would say the same sort of thing (just not on stage in front of a mic).
Sorry for the long response to an old comment, but part of me found your line of questioning really intriguing since I’ve been wondering many of the same things, and just thought I’d reply, at least partially, to the one question of yours I think I have a pretty solid answer to.
I've noticed that I have alot of different interests every week then go back to my original interest within a month later, I space out alot too, and lastnight I started feeling weird, so I looked at my husband and he looked as if I just met him knowing that weve been together for 9 years, I've also noticed that everything in my house looked new, it lasted for about 10 minutes. So I'm curious is that osdd or am I just losing my mind??..give also noticed the name "alex" stays in my mind and idk who that is. I also remembered everything when that happened lastnight, but it was a little fuzzy. So can you please explain to me if that's what I have or is it something else????
As with any symptoms like these, a thorough assessment is needed. Worth mentioning to who refers you to specialist services to see what might be going on for you.
Interesting presentation. I've been a bit puzzled because I've had distinct 'voices' in my head guiding my behaviour since childhood, but as far as I know neither have ever taken over my functioning. I thought I was psychotic rather than dissociative, but hearing the DDNOS criteria I'm questioning that now.
I've been diagnosed with bpd for years but most recently my little personality in my relationship has been constantly triggered out.
For me it definitely feels like depersonalisation. It's not my vouice and I feel like I'm watching it. It feels like I have to push my adult vouice and mind back sometimes.
I wonder how common this is for people with bpd. And if this would be considered as DID nos.
Thank you for showing the differences among categories. It seems as though, like many other mental health disorders, DID is on a spectrum. The prevalence rates were very interesting as well, and show that it is not just a "Western" disorder. Great information!
Jedi Jen I would agree with this, there is so much individual variation, and things do change over time, so we have to be flexible in our assessment and measurement.
I keep having to rewind because I'm distracted by the picture of (what appears to be) a tarantula on the wall.
If you could see my search history you'd know what a weird coincidence that is.
(They're so cute and awesome oh MY GOD)
Also, if the alters never front and only influence, how do you as the clinician know they're there? How does the host know they're alters and not just feelings/daydreams/what-have-you?
I've seen a lot of people saying how "alters are completely autonomous, separate people", but how do you tell that in a system without fronting?
It's actually a drawing I did of a mouse spider (which is tiny). Have a watch of my video on phobias to explain why that picture is there!
Hi! What would be the difference with C-PTSD and OSDD? I've understood in CPTSD there can be dissociated parts/alters as well, according to the theory of Structural Dissociation. As I've understood CPTSD is part of the secondary structural dissociation with one ANP and 2 or more EP, and DID having 2 or more ANP and EPs.
I think one of the differences is that C-PTSD forms after a single personality has formed. OSDD has to form before a cohesive personality is developed. I forget what age it is that this normally happens but generally before the age of ten.
C-PTSD is a more extreme form of PTSD, the difference being that PTSD generally forms from a single traumatic event where C-PTSD generally forms from multiple traumatic events or extended trauma. OSDD and DID can develop as a result of PTSD or C-PTSD. PTSD and C-PTSD do not involve the presence of a system, but they do exist in all systems, since OSDD and DID are trauma-based disorders. OSDD and DID are essentially technically extreme forms of C-PTSD. You need trauma to develop OSDD and DID, so it makes sense for all systems to have PTSD or C-PTSD.
Ohh, I'm just wondering, if it only comes down to a semantic argument and maybe severity, but treatment is the exact same, why are they different diagnoses at all? Wouldn't it be easier and less confusing for patients to group them all as Dissociative spectrum disorders or something? Shouldn't diagnoses be routed in the practical realities of treatment?
Interesting point! I'm curious to see what others comment on this? 👍
Doseneis Doseneis I agree, actually. If we saw all of this as complex trauma, or traumatised personality, it could even things out where services have disparity in what is available. The DSM committee would never go for it, though.
The graphs were difficult to see... perhaps putting links to them in the video descriptions. Thanks for all thr info as always.
I feel always like I'm the first commander of a Space Ship, and my "alters" or better "components" are part of the camaraderie. I control our/my body, and they can coexist within me without the permission to take my place. They have the ability to partly influence my behaviour but not to overcome.
Thanks Mike, much needed channel to dispel myths and misunderstandings of DID.
It was lovely speaking to you this morning 😊 Looking forward you your next videos!
Sabrina
Fact: i dissociated 3 minutes into the video and now I'm giving it another try
Jokes on me
😂
I have to listen to this video without looking at it cause your spider makes me super uncomfortable. I have no idea why haha.
Hi there. I'm fairly new to having a DID diagnosis, and have only become aware of alters fully over the last year (I'm 26 now). In my system, my oldest formed alter has a great control over who is allowed to front. She can stop alters from fronting and often decide who is best when it comes to handling a situation. However, she also believes as I'm the host, I should be challenged and learn how to better handle things myself, with the others being moreso there for when I'm mentally worn or completely incapable of handling a situation. So it's me at the front the majority of the time. I experience memory loss when my alters do front, but they tend to fill me in on essential informatin after, so our shifting is less noticeable. My alters also tend to experience fatigue if they front for long periods of time. I've been talking about this with my therapist and my other doctors and after listening to this I wonder if you'd tentatively put what I explained under DID or some form of OSDD. I know that the way my system functions doesn't perfectly match what is considered standard for DID, and while I know I can't ask for a definitive answer, I just thought I'd ask your opinion if you have the time to respond. Thank you.
It doesn’t really matter what label is put on it, for you, it sounds like the experience and understanding of what is happening and why, is what counts.
Hello. I'm 48 and in the UK. I was diagnosed with DID about 8 years ago but over time, I'v come to believe its more likely OSDD.
Regardless, why am I being treated so badly by the mental health services here? Have you noticed that the NHS doesn't like to acknowledge dissociative disorders?
I'm also diagnosed with Schizotypal PD which I agree with but my trauma from childhood abuse is ignored. I'm just medicated for anxiety and depression but it doesn't work. What could I do? The only help I get is from peer support groups and its not enough of course.
Any advice hugely appreciated, thank you for your wonderful videos.
Hi, yes, you are right, the NHS has an odd relationship with dissociation, with some areas accepting and some not. It seems that dissociation is the only diagnostic category in the DSM that is questioned in this way. We all hope this will change, in the meantime your GP can apply for specialist help from NHS commissioners if you have unmet needs.
@@mikelloyd3055 I have never heard of NHS commissioners, wow. I'll look into that, thanks so much! 😊 And thanks for the reply 👍
If you only have a memory of someone as a baby and remember only 1 adult part about that person; are those memories gone forever for that particular alter? Is there a way to make all the alters memories come together and stay in living order? Will ccptsd affect that physiological part of the brain? Is it permanent damage?
As someone who has been diagnosed with C-PSD and DID NOS and has recently experienced new and different traumas and is also facing the death of one of my 5 remaining grown children from cancer, I have been desperately seeking a therapist/doctor. My problem is that I am living on SSI disability and cannot find a therapist/doctor who takes Medicare/Medicaid. I tried using the state-funded program, but the social worker was not up to the task. My PCP just wants to give me drugs. I could really use some help. I live in Nashville, TN.
do you know anything about how these stats were collected?
every way of doing it i can think of has problems.
if it is based on diagnosis- not everyone who has DID, has a diagnosis for DID.
if it is based on self reporting- not everyone who has DID, knows they have DID, or even suspects they have DID.
do you know if or how they may have corrected for this?
i am very curious about this.
the prevalence is of course a little fluid ... i mean ... how many people have not actually been to the doctor to discuss any mental health issues they may be suffering with (like myself), because of stigma or whatever? Not that im criticising in any way or form or anything, just a thought?!!?
REALLY looking forward to watching this channel grow and evolve, its gonna be a huge journey of learning and self discovery we feel ... specifically as this channel is from a well qualified medical and psychological perspective.
Thanyou very much for starting this Mike.
And a HUGE thankyou to MultiplicityAndMe for interviewing your good self on their awesome channel, and pointing us to this channel :)
Subscribed, notifications on etc etc etc.
Back to binge watching this channel?!!?
Thanks, Leigh. You are right, of course, no prevalence data for non-identifiable conditions is truly correct. Only conditions that require reporting to Public Health are properly known. Glad you are enjoying the channel content, I hope to keep putting out interesting content!
As someone who's been diagnosed with Dissasociative disorder, I watch videos like yours to help me understand. My therapist said that I needed to connect with myself during high emotional times and use mirrors to witness my behaviors like crying when happy or laughing when extremely sad. I think this is what you mean by an alter influencing without completely controlling the body.
I am massively enjoying seeing things from a clinical perspective and would love to continue watching.
I do have one ask though, (although I know I am just one voice out of many and you, of course, can have whatever you like on your walls) Is there any chance you could take down or change out the picture of the spider on your wall? It's very hard for me to pay attention to anything else as a person with arachnophobia and I know I am not the only one who experiences it. Thank you
Derpy Loo of course, such a thing is easy to do, and has already been swapped out. Hope my drawing did not cause too much grief!
@@thectadclinic no, thank you very much!
Aha I'm having the opposite problem, I'm obsessed with spiders so I was distracted like "SPOOD! FLOOF SPOOD!"
That's how I tackled my fear of crawly things, by obsessing about them and becoming somewhat of a hysterical nerd aha.
came back here after a while of avoiding system stuff and things make a lot of sense. i only have three memories of someone else "taking over." once, i allowed a part to take over and he did so because we felt safe and secure. haven't heard much of anything from that part in a long while. second time, something stressful was going on, so a part took over to do what had to be done within a certain time frame because i couldn't. third time, during a traumatic event, another part took over and i forget what happened other than a very vague, grayishness, then i was back and crying on the floor.
no other switches that i remember in the past two and a half years of considering being a system. i think parts would like to be more close to the front, but i worry about faking so i end up suppressing them. i want to hurry and get to therapy so i can settle once and for all if i'm part of a system or not, so i'll feel less anxious or ashamed of letting other parts come forward and interact with the world. it's so easy to get into that "oh, i'm just faking/confused" mindset when switches are more non-possessive than possessive.
Moore Scott Lewis Robert Walker Angela
Thomas Donna Hernandez Anthony Allen Kevin
Thank you so much for your effort :) your channel is such a great entry point for people who might feel a bit overwhelmed by the more personal and emotional introductions of other UA-camrs. Keep it up!
Allen Timothy Lewis George Moore John
Taylor Donna Clark Ronald Garcia Shirley
Gonzalez Jose Young Ronald Davis Ronald
Johnson Mark Lopez Karen Taylor Carol
We're pretty sure we have OSDD because we hardly have black outs but we definitely do have diffrent people who front
Oh a couple of things I'd like to learn about if you're willing to do videos on the.: 1..What causes Dissociative seizures, how to prevent them and how to stop one if it starts and 2. How to ground when all grounding techniques cause severe dissociation. These are two problems I face and would love some insight.
Great idea! I will consider this, thank you. As for grounding, not all techniques will lead to difficulty, its about finding your unique and individual methods that work, so don't give up hope! I often look to stuff like gardening, bird feeding, bookcase arranging. There's a lot of things to be done, hope you find the one that works!
@@mikelloyd3055 I hope so. I have tried so many and so far all but 2 things seem to work. One is my cat, who I had to leave in the UK with a friend while I was forced back to Australia (long story) and 2, people irritating the crap out of me seems to ground me really fast. But I can't always guarantee I will have a convenient pain the butt following me around all the time?!
I had thought of another idea just now but it's gone. Ugh.. first world DID problems. I got interrupted by an internal conversation. If I think of it, I'll post it.
@@mikelloyd3055 oh yes, I remember now... what causes headaches when switching and/or dissociating? And actually, headaches happen with the seizures too, I've noticed. Maybe that could come up in one of your videos. I'd love to learn more.
@@sapphiregraver7906 physical grounding never helps us, we need social grounding. You might be similar, why your cat helps so much. Cats are the best
What is a dissociative seizure?
My system didn't make itself known to me until I was in my late 50s, but has definitely been around since I (host) was 7. I'm very unlikely to ever get access to a proper assessment, but my therapist (who has a lot of experience with systems) says I fall on the cusp of DID/OSDD because alters occasionally cofront and I have had amnesia earlier in life but I'm essentially an always-on host? In the UK it's almost impossible for someone my age to access an assessment without paying for one (in the current political climate, my GP gets penalised for making too many referrals), so we just do the best we can
Oh I wanted to add that one of my alters will take over my right arm sometimes, I find this scary so I think I repress them a bit and that's sad, but we have found an equilibrium
I'm having issue because i can't fit into any category, and blend in quiet well.... How ever i never really forget but i do forget doing things or there are gaps where i say things and it's hard for me to understand why I said that. It's so sad. .....
I've given up on trying to figure it out. I was diagnosed with DID a few months back, but still question the validity of this since I don't have blackouts. I found a therapist I liked, but they can only provide minimal care through a charity group and so I moved on to another therapist, a psychiatrist who is willing to bulk-bill with Medicare, but I don't feel comfortable with him. I can't afford to see shrinks or psychologists who don't bulk-bill and even if I could, there are very few who want to work with or understand DID. So, I am seeing this shrink and hoping things get better. If things don't get better by August, I think I will stop therapy and just get on with life as best as I can, despite it's limitations. I do think about suicide a lot, but I've made it so far.
I really hope you can figure out a way through this. Not being able to deal with such a diagnosis is common (check the video on denial), but blackouts are not 'necessary' for DID, as long as there is amnesia somewhere - so it could be for things long in the past, not recent things. Stay safe, and keep working on it.
it's also really common to not know that you don't remember things, including trauma and day-to-day life. We forget shit as it happens constantly, but the majority of the things we forget, we don't notice that we've forgotten something until it's brought up and there's just a blank space in place of any knowledge/memory of the situation. Emotional amnesia is also a thing - yea, "knowing" that something happened but not being able to pull up any details is also a form of amnesia! You're gonna be okay. Keep on keeping on, the sun will come out again.
Can someone with DID have only one alter? I have the body who feels and functions much younger (age 9), and a little ( age 2-3). The little fronts only when he is confortable or involuntly when triggered. I don't know if what I have fits more into DID or OSDD . The little is a different version of the body, but the same person. We both have autism (diagnosed), but the little functions more on the lower level, while the body higher functioning. I don't think I have any other alters, and if I do they are not known. It feels like the little is looking out of the eyes of the body, and will come out when triggered. I have a therapist (and psychiatrist) who said it sounds like dissociation.
Yes, the diagnostic criteria for DID requires only the presence of ‘one or more’, alongside all the other factors.
@@thectadclinic Thank you :)
Please, what is an example of being influential vs. taking over? I never realized I experienced depersonalization because I'd always been in that state. There's so much i thought didn't apply to me only because I'd never experienced anything different. Im in the process of diagnosis and my therapist is wonderful, but I'm still trying to wrap my head around this mindf***.
Influential is like backseat driving, offering suggestion or criticism, pointing to choices rather than leaning over and taking the wheel.
A very big question that I’ve heard several answers to is can a person who has past amnesia (trauma and childhood) certainly have DID or with the lack of day to day/present amnesia it is osdd1b? I’ve heard people say yes and no and im so confused
After that day I feel a lot of flashes of my self crawling in the floor to get away, I'm 64 years old! But the flashes are me as a 4 or 5 years old
Love this! Thanks so much for the informative video! X
QUESTION.. how different is treatment for ddnos/osdd from C-PTSD with dissociation. With knowing that dissociation is a spectrum and the theory of structural dissociation & them being both in the secondary structural diss.
To be honest, the general approach to working with complex dissociation applies really well to CPTSD with dissociation. It comes down to the specific nature of the dissociation as the linking factor to the CPTSD and then how the trauma is being experienced in the present day. Most OSDD has CPTSD within it anyway, in clinical experience.
If you do not have identity alteration, with parts of the personality that act outside of your control even with co-consciousness, treatment will indeed be different. Treatments such as EMDR and DBT will also be different because there is no structural dissociation to address.
Thanks dotor I know more about my feelings and situations 😀
Non speaking when spoke before?
Thank you for explaining the differences. Really helpful.
That was informative and well presented! Thank you so much for these videos, we enjoyed seeing the statistics from different countries and the difference in percentages between the general populace and inpatient facilities.
Can alters go away or go quiet? I’m still a little confused I guess
Yes to both, all about context.
Yes. This is called going dormant. Alters can also merge into one.
Hiya! So I have OSDD-1a, and you mention that alters in 1a systems cannot take control of the body, but are highly influential, I agree as to me, we all identify with ‘our body’ if that makes sense. Like we know what we look like and we don’t split off who has control if that makes sense? However at times I as the host (which is out 90% of the time) is leading life and occasionally when I’m not, I’m not really conscious. This sounds silly but is this valid? Also would love if you could do a video just on OSDD-1a.
So when another alter ‘fronts’/takes the lead, I as the host still gets the amnesia and lost time as it’s not me.
Alfie Hitchman Hi Alfie, I put out a video with a lot of OSDD information today, hope you get to see this.
i feel like i have osdd but im very confused because the previous alter had been fronting for such a long time (5-ish years) and i cant even recall most of what they did but i can remember before they took over so i cant help but feel like im the host or core im very new to all this since "coming back" if that makes sense. i might e been subconscious or something because before i became the pain controller i can remember him talking about being upset that hes fighting for control or something. i dont really know how to explain it
I have osdd-b1, and when someone fronts, they take over, but it can be tiring for them if they front for large times, and I’m kind of just sitting on the sidelines. I’m still there, but not controlling the body.
@thectadclinic
Thank you for your very useful videos. I have a question if that's OK. I was diagnosed with DDNOS around 7 years ago. I've struggled knowing how to work with this diagnosis because the experiences I've had in my life don't appear, to me, to be traumatic enough to have caused the issues i experience today. What's confusing to me is how to work through my difficulties in therapy using the trauma model you talk of (the 3 stages - stabilisation, trauma work etc) when i have no knowledge of specific trauma which, i believe, could have caused my dissociative issues. I do have past trauma but i generally don't remember it in a way which was terrifying. And don't believe on the scale of this it was so bad. And some trauma in earlier childhood I'm unsure about whether they are my memories or what I've been told by others. Disorganised attachment is involved for sure though.
How can i work through any of this if i don't know of the cause of my dissociative issues? How does the therapeutic model for trauma work in this case?
Thank you
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THANK YOU! This clarification helps so much in my understanding of my diagnosis. I greatly appreciate it.
Hi. I was just wondering what the benefit of getting a proper diagnosis is. Thanks Andy
Andy Driver as with most health conditions, the diagnosis is often the gateway to the correct treatment.
The CTAD Clinic thank you
Can we please get a video on UDD there doesn't seem to be as much out there on this. Our Therapist tells us it's like OSDD but just not specified on how we dissociate but parts are still influencing.
Hey, doctor! Thanks again for doing these videos! I was left a bit confused and worried -- it's mentioned that if you've got ODDS, the alters don't front. I do have alters that take over -- sometimes for entire days -- and we have changed host several times throughout many years. However, we don't have amnesia between one another. That doesn't seem to even be an option! Or did I misunderstand the explanation?
Maybe stupid question but can it be simmilar with introspective OCPD people (bedeviled Milon's type)? Those who are in a * war * with themselves (they and their ' superego " ).
Thank you this is a very necessary video especially with many voices trying to define systems by some set stereotypes when there are many possible dissociative disorders that a system may fit into
how come all your pictures in the background are mounted in random places?
I have alters who front but don’t get amnesia, is this still DID or OSDD? And if so which one would it be?
If one has been diagnosed with a medical condition, isn't the right thing to do is inform your future to be a doctor. Why is informing a therapist about your previous diagnosis a no-no? I thought honesty is the best policy.
I believe I have OSDD (1b) i noticed my system about 3 years ago I was around 15 years old. But my first alter formed around the age of 6. My alters take full control of the body, make their own decisions, names, handwriting, tastes, etc. It's very scary I'm still a minor so I am not seeing a therapist at this time. Most of the time my memories are very fuzzy or not fuzzy at all. Usually (not all the time) fuzzy if an alter/personality was fronting at that time. But I dont remember much of my childhood/trauma (I do remember some but not all). Thank you for educating other this helps a lot.
So when you confirm that based on current information, about 1% of the population in reporting countries has DID, do we know if OSDD1a and OSDD1B have been included with DID?
The studies are based on difference in DID and DDNOS, so these are separate figures. The table in the video shows the two as separate.
Sorry. I had a lot of trouble reading the tables.as ii can only use my phone for the time being. It would be so helpful if you could place links to these sources in the description box. I will look at the tables again when I have access to a computer.
@@ceridwentaliesin798 I thought I had done already, up there now.
I apologize. My mistake .
It all sounds deep but when dynamic psychotherapy as been used to bring altered perceptions to the surface and worked with a person can go into an altered perception with awareness present but the person can not change their pattern of thought at the time
We think we have osdd
Like we don’t have the amnesia part of did
Yeah we do forget things a lot
But
That’s because of adhd
It will join new DSM-IV right?
Not sure what counts as amnesia but I’m a teenager & I don’t remember anything at all maybe two memories?
Doesn’t sound good, hopefully you can get this properly assessed.
So I just want to make sure I understand this 100%, but with OSDD-1B it’s really just little to no amnesia + alters that influence the person extremely or less extremely depending on the case? So alters in OSDD-1B can’t /really/ take over fully?
Prudence Pegg There are some variations, but generally the active control of the person with consistency over time is not seen in either OSDD.
We believe we have DID for example our first host Jade recently returned and had no idea what was happening and only got through the day because Anon cofronted with her. We get blackout amnesia along with other amnesia types.
Hopefully you manage all this ok.
Can OSDD develop after childhood or is it just like DID?
It develops the same as DID. Alters exist due to the personality states never being able to all fully merge, the merge occuring in childhood.
This is great video. Thank you for educating us about the DID and OSDD.
Lately I have been Searching a Dr to clarify my doubts lucky I have found your channel
I have met my part who already exists but I couldn't see their faces properly or their full appearance and Evey time we switch ,my part don't have the full control. After I switched back I only remember the main events and the next day it is hard to remember them. I also some times feel chest pain and head ache.
Sometimes I am unable to connect them so I think they my imagination and doubt that Did I really switch. For some reason I am unable to consult a Dr.
So I don't really know whether I really have a disorder or not?
Hi, thanks for the message, not something I can tell you, this is about talking with your healthcare provider to see if they can help with a therapist, they will have these answers. You can also do self-screening, like the DES, which may give some indication.
What about a person who has only 1 alter(excluding the host) and doesn't have amnesia? Which category of osdd they belong to? And the alter can also control the body.
They could have more. They could be in the background.
Thank you 😊
This was so helpful. Thank you!
Is yours a inpatient or outpatient clinic and how would you treat severe did thank you
We only offer outpatient therapy, treatment is described in one of the other videos!
Thanks for the content!
So if there are influential parts that dont take over fronting the body and there is NO amnesia, is that OSDD 1a?
Court ney Hi, that needs careful analysis from all the clinical and observable information available.
Thar sounds like it, yes.