Let’s be clear . . . your disorder is NOT you; this is NOT your personality. But the fact that you are going through this again and again and again-does affect you and the way you feel. The people around you often are not comfortable with the sadness and uncertainty and pure ANXIETY that you are going through . . . so sometimes they say things that are not helpful, things that make you feel more alone . . . This is so hard. You have to have someone that you can talk to about this . . . and you probably need to find some things that can help you pass the time while you are going through this. You are so brave to share all of this, my heart aches for you . . . Prayers-sooooooooo many prayers are coming your way!
Hi Cozy, Sent here by the wonderful Jenny from Senior Perspective! I want to subscribe and support you & your page :) I pray and declare good things are coming your way. I dare say we’re all in agreement! -Best to you and your family🤍
I too have IIH. It’s a process and a lot of grieving at times. I decided against a shunt and got a second opinion. I went the less invasive route of stents. There are many videos on this on youtube. There is also the IIH Hub channel. I also found a great book by Dr. Kyle Fargen called Idiopathic Intracranial Hypertension Explained. It was very helpful in explaining this rare disease in simple terms and what options i have.
If people around you are telling you you're no fun because you have a very scary and serious illness, that those people do not deserve to be around you. Please try and find a support group, or at the very least surround yourself with people who will support you unconditionally. You deserve that and you need that.
Oh, Cozy! I’m so so so sorry you’re dealing with so much. You have not done anything wrong. You have not failed. You are taking care of yourself the very best you can, and you’ll leave no stone unturned! I applaud you, admire you, respect you. Your spirit shines through. Take the time you need. Your videos have always been such fun, I don’t think you know much your work is appreciated. I had a bad injury last year and slow healing.. your review videos are something I looked forward to on my bad days. Know that. You are so very loved. Sending prayers and good energy to you.
Sent here by Jenny of Senior Perspectives. Haven’t seen any of your regular videos yet but I will certainly be praying for you. 🙏🏼🙏🏼🙏🏼 Talk through your options with your medical care providers. One thing my doctors told me was to stop googling my condition because everyone’s situation is different. I’ve been battling a condition for 3 years and the anxiety alone has been difficult to manage. You’re not alone. Your concerns are real. Maybe keep a journal. Then keep talking through your options with your counselor. I work with a therapist on my provider’s palliative care team. It helps to have someone to check in with. They have resources you might not even be aware of, like getting you hooked up with support from your community to get you or your children transportation, taking some things off your platter so you can concentrate on healing. Deep breaths. Know you Are loved and many prayers are coming your way. 🙏🏼🙏🏼🙏🏼
Neurosurgery sounds so so scary. We all have those things that are scary. I was terrified the first time I had to have my blood drawn, 20+ years ago. Am I a pro now? Yes. Does that change my legitimate feelings back then? No. And this is wayyyy bigger. So big and scary and real and complicated. Brain surgery. It's the thing. Like rocket science. It's brain surgery. Oh the feeling of terror of being stuck in your home, of your world becoming small, I know it. I have felt it and I am sorry that you are also. It isn't fair. The vibes I want for you are the empowerment to find the bestest, most skilled and badass surgeon out there. Top doctors, best teams. You are worth finding the best options. You are worth being cared for.
I'm definitely trying to do my research in neurosurgeons. I'm fortunate to live where there are several respected hospitals, so I'm hoping that I won't have to travel too far to find a great team. It's hard to know what direction to look, but I'm determined to find the absolute best I can. My kids need me to be sure that I find the best.
Please don’t pressure yourself to “entertain” anyone. Your reviews are insightful and funny and I enjoy them, but if that’s not where you are right now, post anyway. You are valuable in whatever capacity you choose to share. You can use this channel as an outlet to talk. There are people that are going through the same or similar health struggles who will benefit from your story. They also have friends and family members who need to hear what you have to say. And there are plenty of people that just simply care. You don’t need to apologize to anyone or pretend to be in a place you are not. Don’t feel pressured to qualify your experience with “I know that I need to” or “I should just”. No one can tell you to feel what you don’t or do what you can’t. Stay true to your reality. Choose to believe people who leave encouraging and supportive comments. Delete negative comments. Fight against the pressures others put on you by telling you how to think or feel, even if they mean well. Keep what is helpful and discard anything that isn’t. If something doesn’t benefit you, don’t dwell on it. I have dealt with a chronic illness for over 20 years. It’s extremely hard and lonely at times. Combined with grieving the death of my son for the last 6 years, there are days I don’t want to try and I sit in my dispare. I may not be moving forward at these times, but I’ve decided to not stay stuck or go backwards. I need to be here for my surviving son and family. It has taken time to find ways to do that and patience with myself to get back up when I’m not successful. The things that work for me may not work for you, but I encourage you to find what keeps you going. I want my time on this earth to be as full of as much joy as possible, even though joy is now filtered through my pain and heartbreak. It’s a process and takes time, but I believe you will get to where you need to be by moving forward everyday in ways you are comfortable with. I will continue my prayers for you sweet lady.
I was wondering where you were. You are not alone. Please don’t be sorry. It’s hard to do anything when your life changes so drastically. It’s always a big deal to have surgery. I have been a nurse for just over 30 years, I don’t know how many times I have told people it’s going to be okay. Until it happened to me at 42 I had my life threatening cardiac issue for the first time. I know you are only 35 you have small children and life as you knew it hit a brick wall. I will pray for you to covered in Gods grace and blessings he will carry through this. I had teenagers who couldn’t drive yet, groceries to get (without Uber eats, postmate,etc. ) no work no money. I only have 3 really close friends to help. I was so greatful to them. But here I am 10 years later 3 more procedures 5 vessel open heart complicated by an infection battling type 2 diabetes and high cholesterol. No matter what I do some days my body just hates me even when I do all the correct things- diet excersize. And I’m still nauseated, vomitting, dizzy all the time, driving can be a -itch. I am in a rural area without convenient Ubers or taxis. So I pray it will be a good day and thank God for the good ones. So I know you will make the best decision you can in your own time. ❤❤❤❤. Don’t forget you are loved.
OMG, sweetie, I definitely noticed that you hadn't been on and I was worried. Next time you're not uploading I'm going to message you. I have to figure out how to do that on UA-cam. I think I can speak for everyone here when I say we care and we worry about you and we notice.
I’m going to go right into this….. 1. Get a second opinion (that’s just good overall advise) 2. If your in a church community reach out for scheduling rides, getting your kids to and from places 3. Utilize Walmart pick up and have someone help pick them up and put them away. 4. One thing at a time! Otherwise you will get way too overwhelmed. 5. Always know you are not alone!!!! 6. PRAY!!!!!!!!!!!! I will be praying too!
Definitely working on the second opinion to be sure! But thank you for mentioning it. I was so overwhelmed I didn't even consider it. Now that I've been able to step back and breath, it seems so obvious, ya know? But I appreciate all the advice. This is such a weird, tough journey and I am so appreciative of all the care and help!
And you know what. You should be overwhelmed with all of this. If you WEREN'T overwhelmed, that would be weird. It is a big deal. And it is all important and overwhelming and humans are only designed to be able to deal with so much. You can do it. One minute at a time. One hour at a time. One day at a time. One week at a time. But you will make the best decisions you can each day, and you will get there. ❤❤❤❤❤❤❤
If people around you are telling you that you're no fun due to your diligent efforts to stay healthy, then there is something wrong with them! Not you! Sending love & prayers your way as you traverse this road and make these important decisions. 🙏🩷🙏❤️
I hope that I can help but don’t know if it will. I drove a wheelchair school bus for 15 years. Only a few are actually in wheelchairs but they are kids who have had to deal with too much. Anyway i know about shunts because many kids had them. The shunt was a huge relief to them. Also surgery is such a scary thought but it’s there to improve your quality of life. They always tell you what can go wrong because they have to but you’ll come through it fine. For various reasons some of these children have gone through as many as 25 surgeries in their young life. I’m telling you this just to let you maybe see that the odds of all the tragic things that could happen, normally don’t. I just believe you have had to go through so much to avoid surgery and that the surgery after recovery is going to take all that burden away. I’ve had a lot of surgeries, and I can tell you I have no regrets for any of them. They all made my life much better and I strongly believe yours would too. I’ll be sending you positive thoughts.
Oh sweetie, I'm sorry that you are going through this. You can rely on your UA-cam community to be here for you. I know you are going to get through this with the power of prayers 🙏
Oh honey, we do care. I can't pretend to understand it all, but I've been dealing with some physical issues and if nothing else I feel empathy for you. You're so young, and I hope that helps you. ❤❤❤
Surgery is always a big deal, but this procedure will give you the relief you need. Somehow, the details that you’re worried about, like driving, with work out. God will take care of the details.
I hate you're going through this! My mommy instincts kicked in when you started crying and talking about all the measures you've taken and yet now surgery looms, I wanted to hug and rock you! 😭 I know you're scared & I know you're frustrated. You have every right to feel those feelings. We are on your side and we want to support you! You aren't alone bc your YT community is here to lift you up ❤
I’m so sorry that you were dealing with this, and that you feel, or worse, actually are, alone with this decision and the ramifications. I want you to know that you are not alone in the world, and even though we may not know each other, IRL, I care about you, and I noticed you were not here. If you need proof, you can double check your last video and I wrote a comment asking if everything was OK and that I was thinking about you over the weekend. As someone who struggles with THOSE thoughts at least weekly, I really struggle that anxiety and depression every day. I understand how scary it is and the lack of interest in things that you used to care about is definitely a warning sign. I’m glad that that symptom went away when you stopped that medication and I’m sorry you don’t have any other options. life is tough, I also feel alone, and I’m doing everything I can to manage my illness but even with doing everything, I’m not capable of working full-time right now and I’m scared out how I’m gonna pay my bills because I’m alone too. I just want you to know that your community will always be here for you if you need to take a break or if you need to post a personal video like this and that we all care.❤ it’s not your fault that the medication didn’t work or that this happened to you in the first place and even though it is probably consuming a good portion of every day, it is NOT your personality. It’s not who you are, it’s just something that is happening to you and you’re doing a very best to manage it. I love you and I am thinking about you and I hope things take a turn for the better very quickly.
Thank you ❤️ there has been so much surrounding all of this and support has been... A bit shallow at times IRL. But it has been really eye opening to see how you guys really do care. It has been a big deal to me and I appreciate it so much. This has been such a whirlwind and it's far far from over, but I'm glad to know there is a place for me to go and to let it all out. I understand the struggles very well. Depression, anxiety are no strangers to me either. It had been a long time since I had really had those types of thoughts, so the sudden reoccurrence was scary. But I want you to know I pay attention to comments. I see the people who comment regularly and those who comment infrequently. I notice when others aren't around too and mention to husband if I haven't heard from viewers. I'll be looking out for you, so that you will know someone cares ❤️
Praying for you! This is hard and scary. But! God is with you. He has you. I'm praying over your health, your doctors, the surgical team. I'm praying God will give you a supernatural peace over what is happening in your life. I'm having faith that one day this will all just be a part of your testimony and a testsment to the goodness of our God. In Jesus name. ❤
Hi Cozy! I have missed you and your videos and was hoping you were fine. ❤️🩹 Thank you for sharing and take care of yourself! ❤ We will still be here when you have the energy to do new videos. 🤗🥰
Hugs to you Cozy. You are missed! Take care of yourself. Turn towards the storm and hopefully you'll get through it faster. ❤ And have a good birthday 🎂 🎉
Cozy, we do notice when you're not around. You never have to apologize for being human. If you need a good cry, this is the place to come and vent it all out. I looked online and there is an IIH support group. I don't know what kind of personal support group you have now, but if there comes a time where you need help because you can't drive I would think the area you live in would have some sort of service/support group to help you and your children. Good luck.❤
Never be sorry about how you feel and how you are processing this. It is a lot. We do not have this but my brother, cousin, and I all have shunts. It is most definitely A LOT to process! BIG HUGS! Praying for you!
I'm so sorry you have to have surgery. I have the same terror, and that's just for little things that are supposed to be in-and-out surgeries, but they never are for me because I am so sensitive to anesthesia. So, yeah, *brain* surgery -- scary. It just is. About the driving. Docs *HAVE* to tell you not to drive *because of liability.* I was sternly told I was legally forbidden to drive when I had my arm in a cast due to a broken wrist. So for a while I drove the two miles to the grocery store at night, in the last hour before closing, when there was no one else on the road to be harmed. And my driving was just fine anyway, even with a stick shift. For transporting kids, you enlist other moms. The kids can ask their friends if they can catch a ride for a bit, because mom will be recovering from brain surgery, and give them your phone number so their moms can call you to make that personal connection to help. If you have a church, they are a good place to start, too. People will help. People will drive kids and bring you groceries and all of the things. Human beings are social and protective of each other. We missed even the masses of total strangers when we were in lockdown. We want to interact. We LIKE to help. Americans. We, by our very nature, are so giving and caring. It's our thing. Trust in that. The hard part is just the unfamiliarity and awkwardness of asking. It is a wonderful thing that you are responsibly checking labels and taking care of yourself. That's not an easy chore. I so admire you. If the criticizing is from your husband, ... well, 🤐I have to censor myself. Whoever is doing that, I'm sizzling. You never leave my feed. I make sure you are still popping up, even though it's only Sister Wives commentary that I can follow along with. I'm so glad you have this virtual community that loves you. ❤
Please know 🙏🙏🙏 for you, but I hope you talk talk talk knowledge is power, keep meeting with your doctors for all your questions. My nephew had brain tumor and shunt since age two performed at UW Hospital , these doctors are phenomenal I can't say enough how much they will do for you and your family! He's 32 now healthy as can be, as a male he had multiple surgeries because males and teenagers develop diff proteins. Put your faith in God, your guardian angels are watching over you! We care for you!
And I would (and have) missed seeing your reviews! Love your take and humor regarding these reviews. Please, keep us all posted, and you and your family will be in my prayers.
Oh dear, I’m so sorry. I pray for you healing and inner peace. And I would like to say that your friends/loved ones that tell you you’re making them uncomfortable when you check food ingredients are weirdly self-centred or very scared for your well-being and coping poorly. Please keep doing what you need to to protect your health.
Cozy, I did miss you!! Holy Hannah you’ve been through a lot! Everything just accumulated at once. Huge speed bump in life. The dependence for a yr ( driving) I went through due to a seizure. It took awhile to stabilize, so I sure understand what a pain in the ass it is. Can be done…. Kids and all. Your other thing going on ( whatever it is) just compounds. It. I understand why you need a shunt. I’m almost thinking you have no choice. A work friend went thru this same thing. Her “ gift” was occasional HA that had to be addressed. The side effects from the medication is terrifying….. you don’t want to go thru that again!! Bottom line is , you’re supported from your UA-cam community. These shows you cover are crazy and I absolutely love your reviews. I am drawn to a few of them because I just don’t understand why/ how people actually would want to live like this! So it’s super interesting. Crazy to me and many of us. Crochet away, hug your babies and try to chill while you’re making decisions. You will get through this!! Many prayers ❤️
This is alot to process and you are handling the best you can. Everyone would be scared of brain surgery. I wanted to say I hear you and see you and think you are a wonderful person. You are not being punished, you did not do anything wrong, its just the cards you were dealt. I'm not minimizing it but when you said I'm doing everything right I made all these changes... I immediately wanted to hug you and say all the above. Your family loves you, your friends love you, your viewers love you. ❤️
I want to reach through this screen and hug you. I work in surgery and honestly its a straightforward procedure that being said dont make a quick decision about it. Listen to yourself and your fears but dont let the fears takeover. You are in the middle of processing this so let it process first then make decisions. Write down all your fears for your neurologist because luckily in surgery we dont want to have worse case scenarios ever happen however we are trained IF they do. One thing i do know if you truly arent ready for surgery listen to that for now
Would you be willing to let me know what you feel like is the most important thing for me to know while I make the choice? Like, if there are regular complications or even if it's as simple as self care beforehand? I've only ever had emergency surgery, so I don't really know what to do or think.
@@cozygamingmomof course and please take my advice with a grain of salt because as staff that helps with these surgeries we see them as routine so sometimes we dont think you should worry but worrying is absolutely natural. So from a human to human. Get through processing the shock of the news first. If you can. Get a 2nd opinion. At the very least they might say what youve already heard and thats not a bad thing. Or they may offer another option that works for you. Also do an old fashioned pros and cona list. You were worried about not driving through recovery etc but what are the long term effects of not being treated. Also know that you will be nervous going into surgery and thats perfectly normal. Learnas muchas you can about the surgery from both people who have been through it and your care team. Dont fall for my cousins uncles best friends dog park buddy had this done. UA-cam is actually an incredible sourcw for videos just make sure they are legit from rhw surgeons etc. If everything is still ovwrwhelming then take your time if time isnt a pressing issue. Therapy etc may also give you the tools to be less afraid of the what ifs. And please know that evwb the day of surgery you CAN cancel. If something feels completely off go with your gut. You got this girl youre strong and intelligent and your kids are blessed to have you!
Oh, sweetheart, I am so so sorry. Please try not to listen to those negative people. You are doing the best you can with the information you have. I wish I lived by you so I could give you a hug. My prayers are with you, take as much time as you need to process all of this.
I cannot imagine trying to process all this and live a “normal” life after learning this information. Bless your heart. May God give you peace about your decision on what to do. God loves you; He wants what’s best for you. And He doesn’t make mistakes. Just take care of yourself and we will be here when you’re ready! 🙏🙏🙏😊♥️
Im sorry to hear of your condition. It is complicated. I understand that. I have MS so I understand the chronic part of your struggle. We support you 100%. And we will wait for you. Take care of yourself first. ❤ luv and hugs
You do what's best for you! I hope your anxiety about the surgery is lifted and you can find peace with whatever you decide to do. Your family needs you to be healthy and there for them! You're stronger than you give yourself credit for GF! ❤ We're all praying for you! 🥰
It must feel like such a dark place right now. I will be praying for you. It sounds like you aren’t getting support in your immediate family. I hope this is not the case. I enjoy your reviews but genuinely want you to prioritize your health over everything else. ❤️
Sending Love ♥ and Prayers 🙏 for sure. Wish I was closer and could do more. You're amazing. Take the time you need. In the meantime, we can rewatch all your content and like everything. It's a small thing, but hopefully is helpful. Sending you hugs across the miles.
Thank you so much! Several people have said you sent them my way and I appreciate that more than you could know. This journey is tougher than I thought it would be. Thank you for all your kindness ❤️❤️❤️❤️
Prayers for you Cozy. Have you been offered a stent? I'm sure the neurologist knows best. I will share a good story for you. I have a client with a shunt who has had it successfully for 18 years. And it is a big deal but you are going to be okay. Take your time. ❤
Topamax is a rough rough medication. It's one of those where it is either the exact right medication or it is the exact wrong thing. For me, personally, it is the exact right and necessary one, and it has cut my migraines down by about 80%. I needed to dose all the way up to 200mg per day. But several people I know have not been able to tolerate it at all. At alllll. I had a very similar experience to you when I attempted to switch from my SSRI to an SNRI. When I was even part way switched over, my brain started down old dangerous paths and it was clearly the medication.
I have a friend who it was absolute great for her migraines, so we were so hopeful. But it was a nightmare for me and that was hard to come to terms with at the time. But I'm so glad I stopped when I did and I'm so glad it works for others the way it's intended!
I’m so so sorry you’re going through all this. It’s a massive decision to make especially when it seems support is thin on the ground for you. Try and find some online groups for your condition maybe and talk to people who have had the procedure. Your neurologist may have some patients that would be happy to speak with you. Sometimes it’s the fear of the unknown that makes the anxiety worse. I know it is for me. Anyone that treats you poorly because you are trying to manage a health condition are the problem, not you. That is such narcissistic behaviour! Sending you lots of hugs and prayers ❤
You are so very very brave. Thank you for having the courage to share your story. Do you know how impactful that is? We’re all here for you in spirit and with so much love. Of course you’re scared. It’s too much. There is support out there with regards to helping you cope and take care of your little ones. Ask your doctor for help with that. I’m so sorry this is happening to you. ❤.
I love your Sister Wives videos and never really comment, but I had to today. Thank you for being vulnerable and sharing what you're going through. You are loved and appreciated, and whatever you need to do to take care of yourself, don't let anyone make you feel bad for doing it. ❤
Let’s be clear . . . your disorder is NOT you; this is NOT your personality. But the fact that you are going through this again and again and again-does affect you and the way you feel. The people around you often are not comfortable with the sadness and uncertainty and pure ANXIETY that you are going through . . . so sometimes they say things that are not helpful, things that make you feel more alone . . .
This is so hard. You have to have someone that you can talk to about this . . . and you probably need to find some things that can help you pass the time while you are going through this.
You are so brave to share all of this, my heart aches for you . . . Prayers-sooooooooo many prayers are coming your way!
Hi Cozy, Sent here by the wonderful Jenny from Senior Perspective! I want to subscribe and support you & your page :) I pray and declare good things are coming your way. I dare say we’re all in agreement! -Best to you and your family🤍
❤️❤️❤️
I too have IIH. It’s a process and a lot of grieving at times. I decided against a shunt and got a second opinion. I went the less invasive route of stents. There are many videos on this on youtube. There is also the IIH Hub channel. I also found a great book by Dr. Kyle Fargen called Idiopathic Intracranial Hypertension Explained. It was very helpful in explaining this rare disease in simple terms and what options i have.
If people around you are telling you you're no fun because you have a very scary and serious illness, that those people do not deserve to be around you. Please try and find a support group, or at the very least surround yourself with people who will support you unconditionally. You deserve that and you need that.
Oh, Cozy! I’m so so so sorry you’re dealing with so much. You have not done anything wrong. You have not failed. You are taking care of yourself the very best you can, and you’ll leave no stone unturned! I applaud you, admire you, respect you. Your spirit shines through. Take the time you need. Your videos have always been such fun, I don’t think you know much your work is appreciated. I had a bad injury last year and slow healing.. your review videos are something I looked forward to on my bad days. Know that. You are so very loved. Sending prayers and good energy to you.
Love and prayers to you dearest Cozy. 💕
Sent here by Jenny of Senior Perspectives. Haven’t seen any of your regular videos yet but I will certainly be praying for you. 🙏🏼🙏🏼🙏🏼
Talk through your options with your medical care providers. One thing my doctors told me was to stop googling my condition because everyone’s situation is different. I’ve been battling a condition for 3 years and the anxiety alone has been difficult to manage. You’re not alone. Your concerns are real. Maybe keep a journal. Then keep talking through your options with your counselor. I work with a therapist on my provider’s palliative care team. It helps to have someone to check in with. They have resources you might not even be aware of, like getting you hooked up with support from your community to get you or your children transportation, taking some things off your platter so you can concentrate on healing. Deep breaths. Know you
Are loved and many prayers are coming your way. 🙏🏼🙏🏼🙏🏼
Neurosurgery sounds so so scary. We all have those things that are scary. I was terrified the first time I had to have my blood drawn, 20+ years ago. Am I a pro now? Yes. Does that change my legitimate feelings back then? No. And this is wayyyy bigger. So big and scary and real and complicated. Brain surgery. It's the thing. Like rocket science. It's brain surgery.
Oh the feeling of terror of being stuck in your home, of your world becoming small, I know it. I have felt it and I am sorry that you are also. It isn't fair.
The vibes I want for you are the empowerment to find the bestest, most skilled and badass surgeon out there. Top doctors, best teams. You are worth finding the best options. You are worth being cared for.
I'm definitely trying to do my research in neurosurgeons. I'm fortunate to live where there are several respected hospitals, so I'm hoping that I won't have to travel too far to find a great team. It's hard to know what direction to look, but I'm determined to find the absolute best I can. My kids need me to be sure that I find the best.
Please don’t pressure yourself to “entertain” anyone. Your reviews are insightful and funny and I enjoy them, but if that’s not where you are right now, post anyway. You are valuable in whatever capacity you choose to share.
You can use this channel as an outlet to talk. There are people that are going through the same or similar health struggles who will benefit from your story. They also have friends and family members who need to hear what you have to say. And there are plenty of people that just simply care.
You don’t need to apologize to anyone or pretend to be in a place you are not. Don’t feel pressured to qualify your experience with “I know that I need to” or “I should just”. No one can tell you to feel what you don’t or do what you can’t. Stay true to your reality.
Choose to believe people who leave encouraging and supportive comments. Delete negative comments. Fight against the pressures others put on you by telling you how to think or feel, even if they mean well. Keep what is helpful and discard anything that isn’t. If something doesn’t benefit you, don’t dwell on it.
I have dealt with a chronic illness for over 20 years. It’s extremely hard and lonely at times. Combined with grieving the death of my son for the last 6 years, there are days I don’t want to try and I sit in my dispare. I may not be moving forward at these times, but I’ve decided to not stay stuck or go backwards. I need to be here for my surviving son and family.
It has taken time to find ways to do that and patience with myself to get back up when I’m not successful. The things that work for me may not work for you, but I encourage you to find what keeps you going.
I want my time on this earth to be as full of as much joy as possible, even though joy is now filtered through my pain and heartbreak.
It’s a process and takes time, but I believe you will get to where you need to be by moving forward everyday in ways you are comfortable with.
I will continue my prayers for you sweet lady.
I was wondering where you were. You are not alone. Please don’t be sorry. It’s hard to do anything when your life changes so drastically. It’s always a big deal to have surgery. I have been a nurse for just over 30 years, I don’t know how many times I have told people it’s going to be okay. Until it happened to me at 42 I had my life threatening cardiac issue for the first time. I know you are only 35 you have small children and life as you knew it hit a brick wall. I will pray for you to covered in Gods grace and blessings he will carry through this. I had teenagers who couldn’t drive yet, groceries to get (without Uber eats, postmate,etc. ) no work no money. I only have 3 really close friends to help. I was so greatful to them. But here I am 10 years later 3 more procedures 5 vessel open heart complicated by an infection battling type 2 diabetes and high cholesterol. No matter what I do some days my body just hates me even when I do all the correct things- diet excersize. And I’m still nauseated, vomitting, dizzy all the time, driving can be a -itch. I am in a rural area without convenient Ubers or taxis. So I pray it will be a good day and thank God for the good ones. So I know you will make the best decision you can in your own time. ❤❤❤❤. Don’t forget you are loved.
OMG, sweetie, I definitely noticed that you hadn't been on and I was worried. Next time you're not uploading I'm going to message you. I have to figure out how to do that on UA-cam. I think I can speak for everyone here when I say we care and we worry about you and we notice.
We care about you! Your health is the #1 priority. We'll be here sending prayers and positive thoughts to hopefully give you a boost on this journey.💕
We care and are always here to support you!❤️❤❤️🙏🏻🙏🏻🙏🏻
Sending you the biggest hug! ❤️🙏
Thank you ❤️
@@cozygamingmom We're here for you not Sister wives. You're welcome Cozy!❤
You are stronger than you give yourself credit for. You’ve got this. My husband and I are praying for you and your family.
Prayers, thinking of you. ❤❤❤
I’m going to go right into this…..
1. Get a second opinion (that’s just good overall advise)
2. If your in a church community reach out for scheduling rides, getting your kids to and from places
3. Utilize Walmart pick up and have someone help pick them up and put them away.
4. One thing at a time! Otherwise you will get way too overwhelmed.
5. Always know you are not alone!!!!
6. PRAY!!!!!!!!!!!! I will be praying too!
Definitely working on the second opinion to be sure! But thank you for mentioning it. I was so overwhelmed I didn't even consider it. Now that I've been able to step back and breath, it seems so obvious, ya know? But I appreciate all the advice. This is such a weird, tough journey and I am so appreciative of all the care and help!
Soooooo many of us care ❤️
And you CAN do this. Whatever it is, YOU CAN.
And you know what. You should be overwhelmed with all of this. If you WEREN'T overwhelmed, that would be weird. It is a big deal. And it is all important and overwhelming and humans are only designed to be able to deal with so much.
You can do it. One minute at a time. One hour at a time. One day at a time. One week at a time.
But you will make the best decisions you can each day, and you will get there.
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Praying for you Cozy & sending❤
Sending you love and prayers. You are stronger than you know. ❤
Lots and lots of good vibes coming your way!!🙏💙
If people around you are telling you that you're no fun due to your diligent efforts to stay healthy, then there is something wrong with them! Not you! Sending love & prayers your way as you traverse this road and make these important decisions. 🙏🩷🙏❤️
I hope that I can help but don’t know if it will. I drove a wheelchair school bus for 15 years. Only a few are actually in wheelchairs but they are kids who have had to deal with too much. Anyway i know about shunts because many kids had them. The shunt was a huge relief to them. Also surgery is such a scary thought but it’s there to improve your quality of life. They always tell you what can go wrong because they have to but you’ll come through it fine. For various reasons some of these children have gone through as many as 25 surgeries in their young life. I’m telling you this just to let you maybe see that the odds of all the tragic things that could happen, normally don’t. I just believe you have had to go through so much to avoid surgery and that the surgery after recovery is going to take all that burden away. I’ve had a lot of surgeries, and I can tell you I have no regrets for any of them. They all made my life much better and I strongly believe yours would too. I’ll be sending you positive thoughts.
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So sorry! Sending good mojo your way…lots of luck
I will be praying. I've been through something similar. It is frightening. I will keep you in my my prayers.
I am praying for your complete healing from this. May a sense of calm and peace surround you. May you find comfort in the small and ordinary things.
Hugs. I noticed your absence. I see you. I care. Hugs.
Oh sweetie, I'm sorry that you are going through this. You can rely on your UA-cam community to be here for you. I know you are going to get through this with the power of prayers 🙏
Of course it's a big deal! I'm sending you loving vibes ❤❤
Oh honey, we do care. I can't pretend to understand it all, but I've been dealing with some physical issues and if nothing else I feel empathy for you. You're so young, and I hope that helps you. ❤❤❤
Surgery is always a big deal, but this procedure will give you the relief you need. Somehow, the details that you’re worried about, like driving, with work out. God will take care of the details.
Don’t be sorry. I think it was good for you to get it out. Be assured that we care about you. ❤️❤️❤️I will be praying for you. 🙏🏻
Prayers ... As many as needsd
I hate you're going through this! My mommy instincts kicked in when you started crying and talking about all the measures you've taken and yet now surgery looms, I wanted to hug and rock you! 😭 I know you're scared & I know you're frustrated. You have every right to feel those feelings. We are on your side and we want to support you! You aren't alone bc your YT community is here to lift you up ❤
I'm so sorry you are going through this. Praying for strength , peace, and healing for you.
I am SO SORRY you have to go through this. It's super difficult when things start to impact your kids.
I’m sorry you have to deal with this. I’ll be thinking of you.
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I’m so sorry that you were dealing with this, and that you feel, or worse, actually are, alone with this decision and the ramifications. I want you to know that you are not alone in the world, and even though we may not know each other, IRL, I care about you, and I noticed you were not here. If you need proof, you can double check your last video and I wrote a comment asking if everything was OK and that I was thinking about you over the weekend.
As someone who struggles with THOSE thoughts at least weekly, I really struggle that anxiety and depression every day. I understand how scary it is and the lack of interest in things that you used to care about is definitely a warning sign. I’m glad that that symptom went away when you stopped that medication and I’m sorry you don’t have any other options. life is tough, I also feel alone, and I’m doing everything I can to manage my illness but even with doing everything, I’m not capable of working full-time right now and I’m scared out how I’m gonna pay my bills because I’m alone too.
I just want you to know that your community will always be here for you if you need to take a break or if you need to post a personal video like this and that we all care.❤ it’s not your fault that the medication didn’t work or that this happened to you in the first place and even though it is probably consuming a good portion of every day, it is NOT your personality. It’s not who you are, it’s just something that is happening to you and you’re doing a very best to manage it. I love you and I am thinking about you and I hope things take a turn for the better very quickly.
Thank you ❤️ there has been so much surrounding all of this and support has been... A bit shallow at times IRL. But it has been really eye opening to see how you guys really do care. It has been a big deal to me and I appreciate it so much. This has been such a whirlwind and it's far far from over, but I'm glad to know there is a place for me to go and to let it all out.
I understand the struggles very well. Depression, anxiety are no strangers to me either. It had been a long time since I had really had those types of thoughts, so the sudden reoccurrence was scary. But I want you to know I pay attention to comments. I see the people who comment regularly and those who comment infrequently. I notice when others aren't around too and mention to husband if I haven't heard from viewers. I'll be looking out for you, so that you will know someone cares ❤️
Praying for you! This is hard and scary. But! God is with you. He has you. I'm praying over your health, your doctors, the surgical team. I'm praying God will give you a supernatural peace over what is happening in your life. I'm having faith that one day this will all just be a part of your testimony and a testsment to the goodness of our God. In Jesus name. ❤
Hi Cozy!
I have missed you and your videos and was hoping you were fine. ❤️🩹
Thank you for sharing and take care of yourself! ❤
We will still be here when you have the energy to do new videos.
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Hugs to you Cozy. You are missed! Take care of yourself. Turn towards the storm and hopefully you'll get through it faster. ❤ And have a good birthday 🎂 🎉
Cozy, we do notice when you're not around. You never have to apologize for being human. If you need a good cry, this is the place to come and vent it all out. I looked online and there is an IIH support group. I don't know what kind of personal support group you have now, but if there comes a time where you need help because you can't drive I would think the area you live in would have some sort of service/support group to help you and your children. Good luck.❤
It's NOT your fault, please believe this. 😘
We care. I don't usually pick notifications for my you tube subscriptions but I have you. I love your funny personality and comments! Be well ❤️🩹
Never be sorry about how you feel and how you are processing this. It is a lot.
We do not have this but my brother, cousin, and I all have shunts. It is most definitely A LOT to process!
BIG HUGS! Praying for you!
I'm so sorry. Just big hugs ❤
I’m sorry you are going through this. Prayers for you 🙏❤️
Take good and gentle care of yourself.
Oh, sweetheart, we are crying with you. Do you have family to help?😢
That's been a bit complicated as of late. But I have people close by that are looking out for me ❤️
I'm so sorry you have to have surgery. I have the same terror, and that's just for little things that are supposed to be in-and-out surgeries, but they never are for me because I am so sensitive to anesthesia. So, yeah, *brain* surgery -- scary. It just is.
About the driving. Docs *HAVE* to tell you not to drive *because of liability.* I was sternly told I was legally forbidden to drive when I had my arm in a cast due to a broken wrist. So for a while I drove the two miles to the grocery store at night, in the last hour before closing, when there was no one else on the road to be harmed. And my driving was just fine anyway, even with a stick shift.
For transporting kids, you enlist other moms. The kids can ask their friends if they can catch a ride for a bit, because mom will be recovering from brain surgery, and give them your phone number so their moms can call you to make that personal connection to help.
If you have a church, they are a good place to start, too.
People will help. People will drive kids and bring you groceries and all of the things. Human beings are social and protective of each other. We missed even the masses of total strangers when we were in lockdown. We want to interact. We LIKE to help. Americans. We, by our very nature, are so giving and caring. It's our thing. Trust in that. The hard part is just the unfamiliarity and awkwardness of asking.
It is a wonderful thing that you are responsibly checking labels and taking care of yourself. That's not an easy chore. I so admire you. If the criticizing is from your husband, ... well, 🤐I have to censor myself. Whoever is doing that, I'm sizzling.
You never leave my feed. I make sure you are still popping up, even though it's only Sister Wives commentary that I can follow along with. I'm so glad you have this virtual community that loves you. ❤
Posting here, too... cause you haven't posted anything in another 10 days. So, you're not okay. But we're still here, and still care.
Hey Cozy baby steps sending love 💕 Lynne
Please know 🙏🙏🙏 for you, but I hope you talk talk talk knowledge is power, keep meeting with your doctors for all your questions. My nephew had brain tumor and shunt since age two performed at UW Hospital , these doctors are phenomenal I can't say enough how much they will do for you and your family! He's 32 now healthy as can be, as a male he had multiple surgeries because males and teenagers develop diff proteins. Put your faith in God, your guardian angels are watching over you! We care for you!
Sending prayers 🙏 ❤
And I would (and have) missed seeing your reviews! Love your take and humor regarding these reviews. Please, keep us all posted, and you and your family will be in my prayers.
Cozy, love ya, you will get thru this. If I lived near you I would help with driving. ❤
Oh Cozy!! Im so sorry! I echo so much of what has already been said! Just know that all of your feelings are valid!!!
We would notice!
Oh dear, I’m so sorry. I pray for you healing and inner peace. And I would like to say that your friends/loved ones that tell you you’re making them uncomfortable when you check food ingredients are weirdly self-centred or very scared for your well-being and coping poorly. Please keep doing what you need to to protect your health.
Cozy, I did miss you!! Holy Hannah you’ve been through a lot! Everything just accumulated at once. Huge speed bump in life. The dependence for a yr ( driving) I went through due to a seizure. It took awhile to stabilize, so I sure understand what a pain in the ass it is. Can be done…. Kids and all.
Your other thing going on ( whatever it is) just compounds. It. I understand why you need a shunt. I’m almost thinking you have no choice. A work friend went thru this same thing. Her “ gift” was occasional HA that had to be addressed. The side effects from the medication is terrifying….. you don’t want to go thru that again!!
Bottom line is , you’re supported from your UA-cam community. These shows you cover are crazy and I absolutely love your reviews. I am drawn to a few of them because I just don’t understand why/ how people actually would want to live like this! So it’s super interesting. Crazy to me and many of us.
Crochet away, hug your babies and try to chill while you’re making decisions. You will get through this!! Many prayers ❤️
This is alot to process and you are handling the best you can. Everyone would be scared of brain surgery. I wanted to say I hear you and see you and think you are a wonderful person. You are not being punished, you did not do anything wrong, its just the cards you were dealt. I'm not minimizing it but when you said I'm doing everything right I made all these changes... I immediately wanted to hug you and say all the above. Your family loves you, your friends love you, your viewers love you. ❤️
I'm very new to your channel, but I still wanted to send my thoughts, prayers, and good vibes your way as well as a virtual hug.
Thank you so much!
I want to reach through this screen and hug you. I work in surgery and honestly its a straightforward procedure that being said dont make a quick decision about it. Listen to yourself and your fears but dont let the fears takeover. You are in the middle of processing this so let it process first then make decisions. Write down all your fears for your neurologist because luckily in surgery we dont want to have worse case scenarios ever happen however we are trained IF they do. One thing i do know if you truly arent ready for surgery listen to that for now
Would you be willing to let me know what you feel like is the most important thing for me to know while I make the choice? Like, if there are regular complications or even if it's as simple as self care beforehand? I've only ever had emergency surgery, so I don't really know what to do or think.
@@cozygamingmomof course and please take my advice with a grain of salt because as staff that helps with these surgeries we see them as routine so sometimes we dont think you should worry but worrying is absolutely natural. So from a human to human. Get through processing the shock of the news first. If you can. Get a 2nd opinion. At the very least they might say what youve already heard and thats not a bad thing. Or they may offer another option that works for you. Also do an old fashioned pros and cona list. You were worried about not driving through recovery etc but what are the long term effects of not being treated. Also know that you will be nervous going into surgery and thats perfectly normal. Learnas muchas you can about the surgery from both people who have been through it and your care team. Dont fall for my cousins uncles best friends dog park buddy had this done. UA-cam is actually an incredible sourcw for videos just make sure they are legit from rhw surgeons etc. If everything is still ovwrwhelming then take your time if time isnt a pressing issue. Therapy etc may also give you the tools to be less afraid of the what ifs. And please know that evwb the day of surgery you CAN cancel. If something feels completely off go with your gut. You got this girl youre strong and intelligent and your kids are blessed to have you!
@@cozygamingmomoh and soery for all the tyoos fat fingers and lack of autocorrect are not a good combo lol
@@killsa I typo all the time. My notes for my episode reviews are probably unreadable to others!
Cozy sending prayers your way. God will provide the way. XOXO to you❤❤❤
Oh, sweetheart, I am so so sorry. Please try not to listen to those negative people. You are doing the best you can with the information you have. I wish I lived by you so I could give you a hug. My prayers are with you, take as much time as you need to process all of this.
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Very sorry that you have to deal with this! Love your reviews.
I'm so sorry.
Please be kind to yourself.
I cannot imagine trying to process all this and live a “normal” life after learning this information. Bless your heart. May God give you peace about your decision on what to do. God loves you; He wants what’s best for you. And He doesn’t make mistakes. Just take care of yourself and we will be here when you’re ready! 🙏🙏🙏😊♥️
Im sorry to hear of your condition. It is complicated. I understand that. I have MS so I understand the chronic part of your struggle. We support you 100%. And we will wait for you. Take care of yourself first. ❤ luv and hugs
You do what's best for you! I hope your anxiety about the surgery is lifted and you can find peace with whatever you decide to do. Your family needs you to be healthy and there for them! You're stronger than you give yourself credit for GF! ❤
We're all praying for you! 🥰
Thank you ❤️ this is my worst case scenario playing out, so it is so appreciated!
It must feel like such a dark place right now. I will be praying for you. It sounds like you aren’t getting support in your immediate family. I hope this is not the case.
I enjoy your reviews but genuinely want you to prioritize your health over everything else. ❤️
Sending Love ♥ and Prayers 🙏 for sure. Wish I was closer and could do more. You're amazing. Take the time you need. In the meantime, we can rewatch all your content and like everything. It's a small thing, but hopefully is helpful. Sending you hugs across the miles.
Thank you so much! Several people have said you sent them my way and I appreciate that more than you could know. This journey is tougher than I thought it would be. Thank you for all your kindness ❤️❤️❤️❤️
Prayers for you Cozy. Have you been offered a stent? I'm sure the neurologist knows best. I will share a good story for you. I have a client with a shunt who has had it successfully for 18 years. And it is a big deal but you are going to be okay. Take your time. ❤
I also have IIH. Praying for you!❤
I Hope you’re feeling a little calmer now as you’re processing through all this. Sending you lots of love ❤
Topamax is a rough rough medication. It's one of those where it is either the exact right medication or it is the exact wrong thing. For me, personally, it is the exact right and necessary one, and it has cut my migraines down by about 80%. I needed to dose all the way up to 200mg per day. But several people I know have not been able to tolerate it at all. At alllll.
I had a very similar experience to you when I attempted to switch from my SSRI to an SNRI. When I was even part way switched over, my brain started down old dangerous paths and it was clearly the medication.
I have a friend who it was absolute great for her migraines, so we were so hopeful. But it was a nightmare for me and that was hard to come to terms with at the time. But I'm so glad I stopped when I did and I'm so glad it works for others the way it's intended!
@@cozygamingmom I am convinced that it really only works if your problem is electrical. If not, it will mess you up.
I’m so so sorry you’re going through all this. It’s a massive decision to make especially when it seems support is thin on the ground for you. Try and find some online groups for your condition maybe and talk to people who have had the procedure. Your neurologist may have some patients that would be happy to speak with you. Sometimes it’s the fear of the unknown that makes the anxiety worse. I know it is for me. Anyone that treats you poorly because you are trying to manage a health condition are the problem, not you. That is such narcissistic behaviour! Sending you lots of hugs and prayers ❤
You are so very very brave. Thank you for having the courage to share your story. Do you know how impactful that is? We’re all here for you in spirit and with so much love. Of course you’re scared. It’s too much. There is support out there with regards to helping you cope and take care of your little ones. Ask your doctor for help with that. I’m so sorry this is happening to you. ❤.
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I love your Sister Wives videos and never really comment, but I had to today. Thank you for being vulnerable and sharing what you're going through. You are loved and appreciated, and whatever you need to do to take care of yourself, don't let anyone make you feel bad for doing it. ❤
I’ve been thinking about you and wanted to say hi. I’m rewatching all your videos.
Thank you! I have a new one uploading right now! Hoping it will be done and ready for release in an hour or so!
We care!!! 😢
I know you guys care! I promise I do! ❤️
Hon, do you have a po box or an address you can send me? I have something’s I’d like to send you. You are never alone…. Marissa
I don't currently have anything public ally available, but I will let you know if and when I do 🙂
Please go get a P.O. Box …. We can help you!
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