I was diagnosed at 20yrs old with Complex Partial Epilepsy in right temporal and occasional frontal lobe. 5 months ago, I had brain surgery and I've been seizure free since!!! God is so good!
@@rama6061 No, I do not have any side effects from the surgery. That's because of where my seizures were starting; they were able to remove it without causing any issues. The only side effects that ive had are from the seizures, I have some long term memory loss. That's it though
I'm 42 and I just had my first seizure last Wednesday. I had 2 in one day and have been trying to educate myself ever since. I'm very thankful to read your positive experience. It's been an ordeal trying to understand what is happening to me. I wish you continued success and well being. God Bless!
@@iyahnah1854 Thank you so much. I pray that you have an evening more encouraging story than I. May God bless your doctors, physicians, nurses and even the beds you lay on. He'll work it out
What I have learned As a Epilepsy Patient • It’s hard to bear, but we cannot lose hope to get healthy one day. • We can reduce ratio of attacks, if we follow doctor’s advices in our daily routine. • We have to spread awareness about epilepsy, and show the world that nothing is impossible in life. • There are many people who are suffering from epilepsy, but they are living their lives very happily. • It’s a continuous struggle to keep Yourself focus on your goals rather then worry about your disease.
I was around 3 years old when I had my first seizure, but no one in my family noticed it at that time. Then, when I was in 8th grade, I had a seizure in school. Since then, it happens once or twice a year. It always occurs in the morning and I have a headache throughout the day afterwards
I hear a lot of videos like yours about seizure disorders, but as you know, seizures are just the tip of the iceberg when it comes to epilepsy. I have had epilepsy my whole life, and it's the anxiety, sleep disorders, memory loss. ... I have found a good side though. Creativity. I found that I can make anything. You might want to look into that. A friend and I were talking, he is the same way. Yes, he has epilepsy too.
How did treat your epilepsy? My son is 30 yrs old and diagnosed 15 yrs ago.hes on diff AED but still having seizures..can you share how you manage yours? Thank you
@@reginadionessaddi6961 my Aunt used HILTON ANTI-SEIZURE HERBAL Medicine got her permanently cured from years of frequent seizure. Maybe you can look up the key word HILTON ANTI-SEIZURE HERBAL Medicine. Wish you good luck.
In my experience (50+ years w/ epilepsy), the stuff about memory loss due to seizures is often nonsense. I speak, read & write 3 languages fluently, and another 2 proficiently. A friend (also w/ epilepsy) writes books - including textbooks. Save during and just after seizures, I've not suffered memory loss due to epilepsy.
Thank you for answering questions I always forget to ask my doctors. I have drug-resistant focal impaired awareness seizures on both my temporal lobes near my hippocampus. I pray to be seizure free....
This is the most advanced, informative information I have found , thank you Dr TriciaTing , you have explained epilepsy so clear and easy to understand for me and my fellow family members xxx keep them coming please. I was diagnosed in my late 20s and it is Catamenial. Whilst also it was very hard to fall pregnant with being diagnosed with PCOS and Endometriosis, It took a lot of study and research to understand my seizures, I’m looking now to hopefully find a cure such as removing my hormones ASAP to keep living a normal life.
I noticed while logging down my seizures that there were similarities. At night with cloudy weather & fog. The atmosphere has electricity in it and we are the ones who suffer as a result to a seizure.
Dr. Ting seems highly competent and very caring. Who ever has her as their Neurologist is very fortunate. I wonder what the success rate and side effects are with surgery. Also is there any information on how vaping or marijuana increases the occurrence of seizures.
When I was 5 I was hit in the head with a baseball and first I had a. Grandmall seizure rhen I started having seizures every day I'm 58 and I have a seizure four time or more a month. I am married and I have a house we own so you can have a life and I have 6 kids stay positive it will get better trust God first Doctors can do so much God can stop your seizures when your having cluster seizures.God Bless you.
I was diagnosed with epilepsy in 2011 upto now I've it.i was told that i suffered a stroke and i was found hiv positive, and I was injured on the forehead.i have changed medications what and how may you help me please with this
Personally I find EEG absolute torture! It means 3-4 weeks of Hell!! I don’t tend to have seizures during the EEG but side effects show up within 12 hrs. About 2weeks of seizure after seizure, then 10 day of adrenaline levels so high that sleeping is almost impossible. Do any other epileptics suffer like this after an EEG or is it just me. Those flashing lights and electrical pulse are just about to bring on a seizure when they release pressure. However the seizure doesn’t just go away, it just delayed for a few hours.
Yeah there is over 100 types of epilepsy unfortunately thay can't find where mine is coming from and when you want to have children if you are a man the lady she always scared that the child may get epilepsy can affect having a family i think it's good to share with other people about this
My epilepsy started in 2014. I had gone without seizures for 2 years. Then in November I had a tonic Clonic seizure. I have facial injuries on the right side of my face and my knees. My right eye. Looks like I was punched in the eye. I guess that in 2 weeks everything will be healed. Exactly. I had TBI in 1993. That must be why I developed epilepsy 21 years later.
My daughter got 1st attack of Seizure when she was 13 yrs, she did her M. D. In Pediatrics, she got her 2nd attack at the age of 29,she was diagnosed as JME, is it curable, With proper medication, Please 😫🙏🙏💓 explain, I am worried
Same here, I had my first seizure last year in august 2023 in sleep then another one in November 2023 and one more day before yesterday, I hope you found the cute and don’t get them anymore 🤗
My son aged 21 years is suffering from epilepsy and cerebral palsy since birth and getting medication since then but his condition has not improved. I have ct scan mri and eeg test reports. Can any neurophysian can advise me for right treatment. I shall send his reports if he agrees.
Am get FUC of seizure epilepsy but still am not get healthy, and i treatment with medicine like locosam, zorapine, but i want how to do and what are treatment to do, and i have in epilepsy in 10 years till now, but i have no hope 😔😔
Dr, my daughter is diagnosed with, JME, she had her first attack at 13yrs, she got 2nd attack at the age of 29,during her marriage, she was done MRI brain, EEG and diagnosed as JME, she is taking Levitrecetem 750,mg two times, a day, now she is not having seizures, but she is suffering from depression, with suicidal tendencies, she is on tab sertaline she is also a doctor, aPediatrician, Please advice why she suffers from depression
I'm on 5 medications that are high only for my seizures. I take them 3 times a day. I believe they're genetic. One of my mom's uncle had seizures when he was 17 years old and passed away at that age. They all lived in the Philippines. Then out of nowhere I started having seizures at 17 years old and am now 23 years old. Please reach out to me.
Same. I was diagnosed at 16 and they dont know the name of it. Every time they do a scan they find nothing. I even did a sleep study and they found nothing.
@@krystalharris9919 my son had the staring spell from 3 1/2 yrs. then clonic seizures at 7 yrs he's now 50 and still gets seizures like crazy. He has done sleep therapy, took many cat scans, mri's, eeg's been on every seizure medication taken off of many increased in milligrams and still the Drs. can't find out what causes the seizures. His last hope was to the vns surgery but he can't breathe at times and they never turn on the stimulator so he's about to have them removed it plus he had two seizures for two days and the magnet didn't stopped neither seizure. His dad had fits in his younger days and grew out of them. His next goal is to try medicinal marijuana or CBD gummies since the medicine is not helping and he's on 3 high milligram meds
My partner has epilepsy due to a traumatic brain injury. She was at work and a 30 lb metal shredder fell on her head. Workers comp stated that she didn't have an injury from work but might have multiple sclerosis. Then abandoned her. She put in an application for get assistance over a year ago. We are both struggling BADLY now. How do I make them help us?
You can't make anyone help you. You can apply to SSDI and SSI. You can also get evidence that there was no epilepsy in her medical record prior to this; make an appointment with a neurologist; then record some seizures; describe in detail her seizures without emotions involved. I would also suggest getting a pro-bono lawyer if applying to SSDI and SSI. If you intend to pursue a case against the workplace, your main job is to build a case showing why she did not have epilepsy, and how she does now. Include pictures, videos, letters from friends, neighbors, strangers, trusted people in the community who have seen her have seizures. Describe the worst days for both this case and her SSDI/SSI case. This is not the time to be modest.
i forgot things easily, i wonder if it has anything to do with my seizures eg : have i showered? where did i put my clothes (literally just lay it down on the bed 30secs ago) have i eaten today? have i this? have i that?
Hi mam, I have seizure for past 9yrs. Once is every 6 months I have this problem even i am taking a medican. It's curable or not. Or i need to take medicine for lifetime
I took 4 medications and eventually chose to get brain surgery. It was the best decision of my life. I had it 5 months ago and I've been seizure free since.
Don't watch to much t.v. stay away from laser pointers and strobe lights,if you see a movie be careful it doesn't have a lot of flashing moments on screen.
Maybe it’s how they’re doing the eeg. Cause I’m diagnosed with with epilepsy But I did one in a different country and it was normal but I did one in my home country and it was abnormal
Hello doc...I had my first seizure when I was in my highschool life.i was 3rdyear highschool in that time,and almost 1 year when I take a medications,because no one knows what kind of illnesses I have in that time...I am now 34 years of age but I never stop the medicine that doctor give me,,,I never try to have an EEG before because of luck of money...do I have a chance to be cure...
Hello Dr. Tricia, my brother having epilepsy since he was 7 year old now he's 27. It normally come and go but always treated with medication, however 2 weeks back we keep blanking out and on the 2nd January he started with the seizures none stop. He was admitted but from then to now he's still having seizures from his hip down. The doctors keep telling us they are working on it but nothing more. Could you advise me.
Soy lowers my seizure threshold. Different people have different sensitivities. I had a pre-existing allergy to soy before I started having seizures and suspect that might be an element. Soy has a lot of weirdness that means it could lower threshold from a number of different angles.
I am 100% soy free. I eat whole wheats and whole grains and i do much better. I take keppra as well. Im not seizure free but since leaving soy and changing to keppra im so so much better. Hope it helps even though you asked a long tome ago!
Get tested for Celiac disease because drug resistant epilepsy can be a symptom of Celiac Disease. Research and insist GI and neurologist to look for it. CD has intestinal manifestation, neurological, or both.
I have jme, I recently had a grand mal seziures, I was 10 years seziure free!, then I had 2! With high dose of medication. I wish I could just die! Better for me loving family
I have complex focal seizures. They are controlled by the medication which I have been taking for about 40 years now. They have not been eliminated, but they are much less frequent and less severe, than when I was first diagnosed 43 years ago.
If you experience anger when you have a seizure, you may have what used to be called psychomotor seizures. They were called this (in the 1970s when I was first diagnosed w/ epilepsy) because they can include emotional characteristics (fear, anger, irritation, confusion) and motor symptoms (repetitive chewing motions, regular twitching, or body movements). For my part, I found over the years that the more I grew to accept the fact that I have this neurological condition and will continue to experience some seizures, the less anger and irritation I feel. I am not happy that I have them, but there is no point in anger about this condition. I can control some factors via healthy lifestyle w/ balanced diet & activity levels, reducing stressors, getting enough sleep & taking my meds regularly. Other than this, I cannot do much. So why become angry?
The electrical storms (clusters of neurons in the brain firing irregularly) which cause the seizures also wipe out much of the memory of the seizures themselves. HOWEVER, the stuff about people with epilepsy suffering from general memory loss due to this neurological condition is nonsense. I've had seizures for 50+ years. I speak, read & write 3 languages fluently and another 2 proficiently. A friend (also w/ epilepsy) writes textbooks. Save during and just after the seizures, I have no memory loss from epilepsy.
@@susandihle9752 I’m on 5 different medications and I take them like they’re vitamins. People are definitely different. I wasn’t able to speak. I wasn’t able to move my legs. I’ve been through 3 induced comas, yet I still go out as if it was nothing. We all live from our past. You can keep moving forward or you can stay. I believe things happen for a reason because of God.
@@janeanbraverman9879 true my daughter has been having seizure after she got very sick. But I believe we're science ends that were God start. So have brought her to be prayed for by a man of God Wiseman Daniel
If you mean to ask is epilepsy hereditary, the answer is sometimes yes. But most of the time, it is not hereditary. I've had seizures for over 50 years. No one else in my family (in 3 continents) has epilepsy. Neither my daughter nor son has it.
@@susandihle9752 My moms uncle had it when he was 17 and passed away at that age. They all lived in the Philippines. Now I’ve had it since I was 17, how do explain that? I’m the only one out of my family with epilepsy. I truly believe that it’s my genetics. Not one doctor has been able to listen and treat me.
@@janeanbraverman9879 Some kinds of epilepsy are, unfortunately, more hereditary than others. As you already know, some kinds are also more easily treatable in that different kinds of seizures respond more easily to medication. I have read that this is also true of surgical treatments (including implants in the brain), but I've no direct experience of any kind of surgical treatment. Have you looked into both options - medication & surgical treatments? In my experience, most surgeons are reluctant to perform surgery on people with seizures that can be more or less controlled by medication. Since your seizures cannot be easily controlled by medication, you may want to explore surgical options in order to at least decrease (ideally, eliminate) your seizures. Speaking statistically, there is very little evidence that epilepsy, as a whole - including all forms of this neurological condition - is hereditary.
@@daisywilliams7750 they wanted to take more tests they thought it was panic attacks. Then after I had a seizure breaking 6 ribs and puncturing my lungs they prescribed Keppra. My seizures were awful. It’s was like convulsions! I’d have 4-5 a day. It started after serious head injury by 2 months. Then they kept on increasing my dose everytime I would have a seizure till the seizures stopped. That’s how they got the correct dose. I’m one of the stubborn types where I convinced myself it’s not epilepsy so I decided to lower my dose ended up with a seizure so now I just take my meds correctly and so far no seizures.
@@daisywilliams7750 what’s strange is I get the exact same results’notmal’ for the EEG before and after taking meds. Would you have any insight about that?
@@Victoria.Angelina.Lillie I have no idea 😂 I have had multiple seizures, in the process of getting an appointment with a neurologist, taking forever so not allowed to do anything while im waiting, but I have been told I need to either get a note from a doctor saying it wont happen again or be put on medication to stop them to be able to go back to work, so just thinking if nothing shows up on on the eeg! I havent had one in three weeks at the time of writing this
@@daisywilliams7750 ugh!!! Ok I hope you don’t get any seizures. Make sure you’re not stressed and watch out if lights bother you or you get deja vu. This is funny but when I get hungry and not eat I get a seizure so make sure you eat! Keto diet helps a lot. I hope you get an appointment soon. It’s hard not understanding why your body reacts the way it does. Good luck love. Xxx
Hello doctor, I got my first seizure when I was 30 years old 1 year after my daughter was born..2nd seizure after 1 year 3rd and 4th after 6 month in 2018- 2019 ,now in 2020 I got one in April than since August one seizure every month... On 13 October I got one and one on 2nd November... Now seizures are coming very very frequently... I really scared.. Usually I have seizure in waking up hours focal tonic clinic type ....Currently iam on Levicetram 750mg morning -night.... what should I do ,, I seeing doctor in south korea... Please suggest me
Unfortunately, there is a fair amount of rubbish in this show. Particularly given the exorbitant costs of medical procedures (including EEGs) in this country, the advice to get EEGs is not helpful. I've had epilepsy for more than 50 years, and I've had 1 EEG. I have no intention of having another while still living in the States. If I returrn to the UK or if my seizures alter, then I might consider having another EEG. Otherwise, undergoing yet more expensive diagnostic procedures would be far more helpful to the financial "health" of the doctors, nurses, and hospitals than to me!
I'm sorry you've had a bad experience, and I'm glad your meds are working. However, some people who have onset later are not used to having seizures and their doctors need to see their brainwaves using EEGs or they have seizures often and they do not have a treatment plan that is working, despite attempts. EEGs are used by doctors as tests to determine what, if any, kind of epilepsy there is, or if another treatment course should be attempted.
I was diagnosed at 20yrs old with Complex Partial Epilepsy in right temporal and occasional frontal lobe. 5 months ago, I had brain surgery and I've been seizure free since!!! God is so good!
Denise Cardwell are there any side effects? Because I wish I do it
@@rama6061 No, I do not have any side effects from the surgery. That's because of where my seizures were starting; they were able to remove it without causing any issues. The only side effects that ive had are from the seizures, I have some long term memory loss. That's it though
Denise Cardwell oh god I’m so scared of the memory loss 😭 but I think I will do no matter what
I'm 42 and I just had my first seizure last Wednesday. I had 2 in one day and have been trying to educate myself ever since. I'm very thankful to read your positive experience. It's been an ordeal trying to understand what is happening to me. I wish you continued success and well being. God Bless!
@@iyahnah1854 Thank you so much. I pray that you have an evening more encouraging story than I. May God bless your doctors, physicians, nurses and even the beds you lay on. He'll work it out
This lady is changing the world. What a noble and rewarding profession. Thanks for the content.
What I have learned As a Epilepsy Patient
• It’s hard to bear, but we cannot lose hope to get healthy one day.
• We can reduce ratio of attacks, if we follow doctor’s advices in our daily routine.
• We have to spread awareness about epilepsy, and show the world that nothing is impossible in life.
• There are many people who are suffering from epilepsy, but they are living their lives very happily.
• It’s a continuous struggle to keep Yourself focus on your goals rather then worry about your disease.
Good comment
I was diagnosed in 2013 and I actually embrace my epilepsy now. Thank you for this video doc.
I've had frontal love epilepsy for almost 24 years now. They have gotten better, so I'm not losing hope.
Same here
I was around 3 years old when I had my first seizure, but no one in my family noticed it at that time. Then, when I was in 8th grade, I had a seizure in school. Since then, it happens once or twice a year. It always occurs in the morning and I have a headache throughout the day afterwards
Thank you so much for doing what you do
I hear a lot of videos like yours about seizure disorders, but as you know, seizures are just the tip of the iceberg when it comes to epilepsy. I have had epilepsy my whole life, and it's the anxiety, sleep disorders, memory loss. ... I have found a good side though. Creativity. I found that I can make anything. You might want to look into that. A friend and I were talking, he is the same way. Yes, he has epilepsy too.
were you born with epilepsy ?
How did treat your epilepsy? My son is 30 yrs old and diagnosed 15 yrs ago.hes on diff AED but still having seizures..can you share how you manage yours? Thank you
@@reginadionessaddi6961 my Aunt used HILTON ANTI-SEIZURE HERBAL Medicine got her permanently cured from years of frequent seizure. Maybe you can look up the key word HILTON ANTI-SEIZURE HERBAL Medicine. Wish you good luck.
@@christopherjohn7546 so sad,we are here in the Philippines...
In my experience (50+ years w/ epilepsy), the stuff about memory loss due to seizures is often nonsense. I speak, read & write 3 languages fluently, and another 2 proficiently. A friend (also w/ epilepsy) writes books - including textbooks. Save during and just after seizures, I've not suffered memory loss due to epilepsy.
Haha wish my neurologist was 1/2 this encouraging and informative. 😅
Do we share the same one
Experiencing dizziness
Same situation 😔😏
I've been having seizures for two years now. I don't know why they started but it's really hard to deal with.
Stay strong! I'll be praying for you💜
I understand. I had the same problem since I was 15. Prayers don't work. The right medicine does. Find the best doctor for you.
Prayers do work. I'll pray for you. I'm also and epileptic and I prayed and prayed for healing and my seizures are very rare now. God bless u
@@denisecardwell8623 I also have seizures stress management and prayers help me I live a normal life
@@lovealways4159 praise God! I'm so happy for you love
I wish she's my Dr. she's a true specialist that I need and hope.She's given more info then the Dr. I had last 10 years thank you Dr. Tricia Ting.
Thank you for answering questions I always forget to ask my doctors. I have drug-resistant focal impaired awareness seizures on both my temporal lobes near my hippocampus. I pray to be seizure free....
This is the most advanced, informative information I have found , thank you Dr TriciaTing , you have explained epilepsy so clear and easy to understand for me and my fellow family members xxx keep them coming please. I was diagnosed in my late 20s and it is Catamenial. Whilst also it was very hard to fall pregnant with being diagnosed with PCOS and Endometriosis, It took a lot of study and research to understand my seizures, I’m looking now to hopefully find a cure such as removing my hormones ASAP to keep living a normal life.
i wa diagnosed in 2017 thanks for the info i have a rare case.
Thank you Dr. Ting.
@Dorris Tammy im in cape town South Africa im in much need of help please
Thanks for the info about epilepsy
I noticed while logging down my seizures that there were similarities. At night with cloudy weather & fog. The atmosphere has electricity in it and we are the ones who suffer as a result to a seizure.
Very clear in explaining things
Dr. Ting seems highly competent and very caring. Who ever has her as their Neurologist is very fortunate. I wonder what the success rate and side effects are with surgery. Also is there any information on how vaping or marijuana increases the occurrence of seizures.
I had my first seizure on my 18th birthday 🎂 and I never 👎 thought that any seizure meds would help!
Dr Trica, is there a cure for JME, with Proper Medication
@@jyothijyothi-ts3yeYes, with the appropriate medication. Please see a doctor.
Thank you.u are so peaceful .
When I was 5 I was hit in the head with a baseball and first I had a. Grandmall seizure rhen I started having seizures every day I'm 58 and I have a seizure four time or more a month. I am married and I have a house we own so you can have a life and I have 6 kids stay positive it will get better trust God first Doctors can do so much God can stop your seizures when your having cluster seizures.God Bless you.
I was diagnosed with epilepsy in 2011 upto now I've it.i was told that i suffered a stroke and i was found hiv positive, and I was injured on the forehead.i have changed medications what and how may you help me please with this
Hi thanks open this way to learn more
great information , thank you for sharing
Personally I find EEG absolute torture! It means 3-4 weeks of Hell!!
I don’t tend to have seizures during the EEG but side effects show up within 12 hrs.
About 2weeks of seizure after seizure, then 10 day of adrenaline levels so high that sleeping is almost impossible.
Do any other epileptics suffer like this after an EEG or is it just me.
Those flashing lights and electrical pulse are just about to bring on a seizure when they release pressure. However the seizure doesn’t just go away, it just delayed for a few hours.
Yeah there is over 100 types of epilepsy unfortunately thay can't find where mine is coming from and when you want to have children if you are a man the lady she always scared that the child may get epilepsy can affect having a family i think it's good to share with other people about this
I would love to be seizure free
Very nice detailed informations about Epilepsy
Great information and thanks.
Seizures for 24 years over here! Got more consistent 5 years in. I'm always in fear.
Hope you’re doing good now 🤗
Please, Where is this ?
My epilepsy started in 2014.
I had gone without seizures for 2 years.
Then in November I had a tonic Clonic seizure.
I have facial injuries on the right side of my face and my knees.
My right eye.
Looks like I was punched in the eye.
I guess that in 2 weeks everything will be healed.
Exactly.
I had TBI in 1993.
That must be why I developed epilepsy 21 years later.
are you still on medication?
@@itsmaleeha987
Yes.
@@davidchmielecki5595 Sir can you tell me which medicine you are taking, what's your age??
@@itsmaleeha987
I am taking Levetiracetam and Lamotrigine.
3000 mg.of Levetiracetam and 300 mg.of Lamotrigine.
I am 66 years old.
I am in good health.
@@davidchmielecki5595 okay sir Thank Your for your precious time!! I wish that you remain in good health!!
What is the difference between a spell and a seizure?
I Have Epilespy But i always wonder if i could live alone and just adopt children?
My daughter got 1st attack of Seizure when she was 13 yrs, she did her M. D. In Pediatrics, she got her 2nd attack at the age of 29,she was diagnosed as JME, is it curable, With proper medication, Please 😫🙏🙏💓 explain, I am worried
Have been diagnosed with Seizure since 2018. But Seizure occurs to me only when I am sleeping. And it occurs also every 3 months
Same here, I had my first seizure last year in august 2023 in sleep then another one in November 2023 and one more day before yesterday, I hope you found the cute and don’t get them anymore 🤗
i have had seizures before.
I'll be love to be free on this 😩😩😢😢😢
Why would an 18month baby have seizures? How is this handled?
Hi Dr. Tricia!
Thanks a lot for your crucial words. I’m wondering if loneliness, being introvert, and trauma cause epilepsy or not.
Epilepsy isn't psychological, so no. Stress can worsen epilepsy, not cause it.
M ,John in 6
Epilepsy is mostly by genetics too . Sadly stress and lack of sleep can worsen it more.
Nope.
My son aged 21 years is suffering from epilepsy and cerebral palsy since birth and getting medication since then but his condition has not improved. I have ct scan mri and eeg test reports. Can any neurophysian can advise me for right treatment. I shall send his reports if he agrees.
Does topamax causes seizures to be more current have focal epilepsy but like if go today without medication at risk for another seizure
I suffer from 2 types of epilepsy
I am sick and I have epilepsy but the medicine that I drink is very strong I drink the lamotriginr and the fivecompa
Am get FUC of seizure epilepsy but still am not get healthy, and i treatment with medicine like locosam, zorapine, but i want how to do and what are treatment to do, and i have in epilepsy in 10 years till now, but i have no hope 😔😔
Dr, my daughter is diagnosed with, JME, she had her first attack at 13yrs, she got 2nd attack at the age of 29,during her marriage, she was done MRI brain, EEG and diagnosed as JME, she is taking Levitrecetem 750,mg two times, a day, now she is not having seizures, but she is suffering from depression, with suicidal tendencies, she is on tab sertaline she is also a doctor, aPediatrician, Please advice why she suffers from depression
Was she taking medication between the ages of 13 - 29? I hope her suffering will be less and her quality of life can be back to normal.
Am living with epilepsy for 15y I want help
I'm on 5 medications that are high only for my seizures. I take them 3 times a day. I believe they're genetic. One of my mom's uncle had seizures when he was 17 years old and passed away at that age. They all lived in the Philippines. Then out of nowhere I started having seizures at 17 years old and am now 23 years old. Please reach out to me.
Same problem started when i was 10 year old now i am 23 and 3 times a day
@@omkarways I’ve been through everything the doctors could do to me but still no reason as to why
@@janeanbraverman9879 how about CBD the medicinal oil,ask from professionals , .
@@kumarijayasundera9770 Already tried that and it made me have more seizures
Great grandpa had epilepsy my uncle had epilepsy @31 no I got epilepsy @ 29 genetic I feel. I started on 1 med 13 yrs ago didn’t work now on 4 meds
I just recently was diagnosed with epilepsy at age 30 and have not found a reason for it. I’ve had 10 seizures in the past 6 months, what can I do?
You need to see a neurologist and he/she will do an EEG, whether it’s sleep or awake. And it’s be determined from there.
Same. I was diagnosed at 16 and they dont know the name of it. Every time they do a scan they find nothing. I even did a sleep study and they found nothing.
@@MultiThuthuka Please read my response to Yvette Martinez as it might be helpful to you too!
@@krystalharris9919 Please read my response to Yvette Martinez as it might be helpful to you too!
@@krystalharris9919 my son had the staring spell from 3 1/2 yrs. then clonic seizures at 7 yrs he's now 50 and still gets seizures like crazy. He has done sleep therapy, took many cat scans, mri's, eeg's been on every seizure medication taken off of many increased in milligrams and still the Drs. can't find out what causes the seizures. His last hope was to the vns surgery but he can't breathe at times and they never turn on the stimulator so he's about to have them removed it plus he had two seizures for two days and the magnet didn't stopped neither seizure. His dad had fits in his younger days and grew out of them. His next goal is to try medicinal marijuana or CBD gummies since the medicine is not helping and he's on 3 high milligram meds
My partner has epilepsy due to a traumatic brain injury. She was at work and a 30 lb metal shredder fell on her head. Workers comp stated that she didn't have an injury from work but might have multiple sclerosis. Then abandoned her. She put in an application for get assistance over a year ago. We are both struggling BADLY now. How do I make them help us?
You can't make anyone help you. You can apply to SSDI and SSI. You can also get evidence that there was no epilepsy in her medical record prior to this; make an appointment with a neurologist; then record some seizures; describe in detail her seizures without emotions involved. I would also suggest getting a pro-bono lawyer if applying to SSDI and SSI. If you intend to pursue a case against the workplace, your main job is to build a case showing why she did not have epilepsy, and how she does now. Include pictures, videos, letters from friends, neighbors, strangers, trusted people in the community who have seen her have seizures. Describe the worst days for both this case and her SSDI/SSI case. This is not the time to be modest.
i forgot things easily, i wonder if it has anything to do with my seizures eg : have i showered? where did i put my clothes (literally just lay it down on the bed 30secs ago) have i eaten today? have i this? have i that?
Hi mam,
I have seizure for past 9yrs. Once is every 6 months I have this problem even i am taking a medican. It's curable or not. Or i need to take medicine for lifetime
I have seizures despite being on medication. Please what do I do and can seizures be prevented or controlled
Did you talk to your neurologist? You might have to change your medication but a doctor has to guide that
I took 4 medications and eventually chose to get brain surgery. It was the best decision of my life. I had it 5 months ago and I've been seizure free since.
Don't watch to much t.v. stay away from laser pointers and strobe lights,if you see a movie be careful it doesn't have a lot of flashing moments on screen.
I am suffering from seizures but mostly my eeg reports are normal
Maybe it’s how they’re doing the eeg. Cause I’m diagnosed with with epilepsy
But I did one in a different country and it was normal but I did one in my home country and it was abnormal
Ho. Do. I. Get. Out. Of. Epilepsy. Dice. I. Was. 5. So. How. Do. I. Get. Better
However if you end up in the 7-11% where no answer are given are just deal with it (like me), you get sadden. Especially if born with with.
Hello doc...I had my first seizure when I was in my highschool life.i was 3rdyear highschool in that time,and almost 1 year when I take a medications,because no one knows what kind of illnesses I have in that time...I am now 34 years of age but I never stop the medicine that doctor give me,,,I never try to have an EEG before because of luck of money...do I have a chance to be cure...
Hello Dr. Tricia, my brother having epilepsy since he was 7 year old now he's 27. It normally come and go but always treated with medication, however 2 weeks back we keep blanking out and on the 2nd January he started with the seizures none stop. He was admitted but from then to now he's still having seizures from his hip down. The doctors keep telling us they are working on it but nothing more. Could you advise me.
Hello, how is your brother ? is there any control over seizures ?
Is there any correlation between high soy consumption and decreasing the seizure threshold?
Soy lowers my seizure threshold. Different people have different sensitivities. I had a pre-existing allergy to soy before I started having seizures and suspect that might be an element.
Soy has a lot of weirdness that means it could lower threshold from a number of different angles.
I am 100% soy free. I eat whole wheats and whole grains and i do much better. I take keppra as well. Im not seizure free but since leaving soy and changing to keppra im so so much better. Hope it helps even though you asked a long tome ago!
@@kekkelpenneypeckeltoot5700 I cut down on my soy. I only eat tofu occasionally now. Seems to be working. I'm on Keppra as well.
When I started having seizures I had to go gluten-free/wheat free. Soy is ok. I'm vegan and only eat tofu though.
I've took surgery yet it changed nothing, what do I do😑
Get tested for Celiac disease because drug resistant epilepsy can be a symptom of Celiac Disease. Research and insist GI and neurologist to look for it. CD has intestinal manifestation, neurological, or both.
@@sooverstereotypes219 Thank you
Can any one help that seizure can come while eating something bcoz my son mouth stucks while he keeps one or two spoons of rice
I have jme, I recently had a grand mal seziures, I was 10 years seziure free!, then I had 2! With high dose of medication. I wish I could just die! Better for me loving family
Seizure affect tha stomach
How can I do my part to trigger a seizure?
What caused
Is focal seizure care by medi
I have complex focal seizures. They are controlled by the medication which I have been taking for about 40 years now. They have not been eliminated, but they are much less frequent and less severe, than when I was first diagnosed 43 years ago.
Do you get angry when you get one
If you experience anger when you have a seizure, you may have what used to be called psychomotor seizures. They were called this (in the 1970s when I was first diagnosed w/ epilepsy) because they can include emotional characteristics (fear, anger, irritation, confusion) and motor symptoms (repetitive chewing motions, regular twitching, or body movements). For my part, I found over the years that the more I grew to accept the fact that I have this neurological condition and will continue to experience some seizures, the less anger and irritation I feel. I am not happy that I have them, but there is no point in anger about this condition. I can control some factors via healthy lifestyle w/ balanced diet & activity levels, reducing stressors, getting enough sleep & taking my meds regularly. Other than this, I cannot do much. So why become angry?
Why do after having a seizure occurs memory loss?
Not always. I’ve been dealing with seizures and haven’t lost my memory
I've lost (part of) my memory and some ability at my last seizure. So, I suggested not to underestimate any symptom.
The electrical storms (clusters of neurons in the brain firing irregularly) which cause the seizures also wipe out much of the memory of the seizures themselves. HOWEVER, the stuff about people with epilepsy suffering from general memory loss due to this neurological condition is nonsense. I've had seizures for 50+ years. I speak, read & write 3 languages fluently and another 2 proficiently. A friend (also w/ epilepsy) writes textbooks. Save during and just after the seizures, I have no memory loss from epilepsy.
@@susandihle9752 I’m on 5 different medications and I take them like they’re vitamins. People are definitely different. I wasn’t able to speak. I wasn’t able to move my legs. I’ve been through 3 induced comas, yet I still go out as if it was nothing. We all live from our past. You can keep moving forward or you can stay. I believe things happen for a reason because of God.
@@janeanbraverman9879 true my daughter has been having seizure after she got very sick. But I believe we're science ends that were God start. So have brought her to be prayed for by a man of God Wiseman Daniel
Is Epilephsy disease is transmitted ?means can it be transmitted to thier children?
If it’s in your genetics, then yes. That’s why I plan on adopting because I don’t want my children to go through what I’m still going through.
If you mean to ask is epilepsy hereditary, the answer is sometimes yes. But most of the time, it is not hereditary. I've had seizures for over 50 years. No one else in my family (in 3 continents) has epilepsy. Neither my daughter nor son has it.
@@susandihle9752 My moms uncle had it when he was 17 and passed away at that age. They all lived in the Philippines. Now I’ve had it since I was 17, how do explain that? I’m the only one out of my family with epilepsy. I truly believe that it’s my genetics. Not one doctor has been able to listen and treat me.
@@janeanbraverman9879 Some kinds of epilepsy are, unfortunately, more hereditary than others. As you already know, some kinds are also more easily treatable in that different kinds of seizures respond more easily to medication. I have read that this is also true of surgical treatments (including implants in the brain), but I've no direct experience of any kind of surgical treatment. Have you looked into both options - medication & surgical treatments? In my experience, most surgeons are reluctant to perform surgery on people with seizures that can be more or less controlled by medication. Since your seizures cannot be easily controlled by medication, you may want to explore surgical options in order to at least decrease (ideally, eliminate) your seizures. Speaking statistically, there is very little evidence that epilepsy, as a whole - including all forms of this neurological condition - is hereditary.
Dr Ogie on UA-cam is my saviour i thought all hpoe was lost untill i was recommended to him here on UA-cam. I recommend him also🙏🙏
EEG never worked for me.
Sorry for asking, but what happened after the EEG didnt work? Did you still get put on medication?
@@daisywilliams7750 they wanted to take more tests they thought it was panic attacks. Then after I had a seizure breaking 6 ribs and puncturing my lungs they prescribed Keppra. My seizures were awful. It’s was like convulsions! I’d have 4-5 a day. It started after serious head injury by 2 months. Then they kept on increasing my dose everytime I would have a seizure till the seizures stopped. That’s how they got the correct dose. I’m one of the stubborn types where I convinced myself it’s not epilepsy so I decided to lower my dose ended up with a seizure so now I just take my meds correctly and so far no seizures.
@@daisywilliams7750 what’s strange is I get the exact same results’notmal’ for the EEG before and after taking meds. Would you have any insight about that?
@@Victoria.Angelina.Lillie I have no idea 😂 I have had multiple seizures, in the process of getting an appointment with a neurologist, taking forever so not allowed to do anything while im waiting, but I have been told I need to either get a note from a doctor saying it wont happen again or be put on medication to stop them to be able to go back to work, so just thinking if nothing shows up on on the eeg! I havent had one in three weeks at the time of writing this
@@daisywilliams7750 ugh!!! Ok I hope you don’t get any seizures. Make sure you’re not stressed and watch out if lights bother you or you get deja vu. This is funny but when I get hungry and not eat I get a seizure so make sure you eat! Keto diet helps a lot. I hope you get an appointment soon. It’s hard not understanding why your body reacts the way it does. Good luck love. Xxx
Best thing about epilepsy? I have "spazz" word privilege.
Hello doctor, I got my first seizure when I was 30 years old 1 year after my daughter was born..2nd seizure after 1 year 3rd and 4th after 6 month in 2018- 2019 ,now in 2020 I got one in April than since August one seizure every month... On 13 October I got one and one on 2nd November... Now seizures are coming very very frequently... I really scared..
Usually I have seizure in waking up hours focal tonic clinic type ....Currently iam on Levicetram 750mg morning -night.... what should I do ,, I seeing doctor in south korea... Please suggest me
Y not talk medcne .many comnt at this video.no body said about medcn.im taking Apptiom.medcne name .whn I tak.pain or bp then I happen.
Christina yang
#DrObahistoricalherbs.
You can stop living with epilepsy with help of Ayahuasca.
You can read every book and study,study, study. Until you live like this you know nothing
this literally THIS
Unfortunately, there is a fair amount of rubbish in this show. Particularly given the exorbitant costs of medical procedures (including EEGs) in this country, the advice to get EEGs is not helpful. I've had epilepsy for more than 50 years, and I've had 1 EEG. I have no intention of having another while still living in the States. If I returrn to the UK or if my seizures alter, then I might consider having another EEG. Otherwise, undergoing yet more expensive diagnostic procedures would be far more helpful to the financial "health" of the doctors, nurses, and hospitals than to me!
I'm sorry you've had a bad experience, and I'm glad your meds are working. However, some people who have onset later are not used to having seizures and their doctors need to see their brainwaves using EEGs or they have seizures often and they do not have a treatment plan that is working, despite attempts. EEGs are used by doctors as tests to determine what, if any, kind of epilepsy there is, or if another treatment course should be attempted.
focal seizure patient died
Dr Ogie on UA-cam is my saviour i thought all hpoe was lost untill i was recommended to him here on UA-cam. I recommend him also🙏🙏