Life Update (Diagnosed with Epilepsy)
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- Опубліковано 21 чер 2024
- This year has been a major roller coaster for us behind the scenes, & today we’re finally ready to fill you in on everything that’s been going on. This video is the long story of my recent epilepsy diagnosis. Thank you for being here 🙏 Go to our sponsor betterhelp.com/kandn to get a special discount off your first month of therapy with BetterHelp & get matched with a therapist who will listen and help ❤️
Episode 929 | Filmed June 2024
www.epilepsy.com/what-is-epil...
0:00 I have epilepsy
1:06 Goals for this video
2:59 My Epilepsy Journey
6:04 the day everything changed
10:03 first doctor’s appt
13:14 back to 2018 problems
16:48 my memory issues
19:16 I love you
20:58 Neurologist Diagnosis
23:43 EEG and MRI tests
27:25 test results
29:48 my treatment plan
32:52 our future plans
I just wanted to say that I’m a doctor, I’ve seen so many patients have seizures and it’s still scary each time - I can’t imagine how terrifying it must have been for Nate to wake up and see Kara having a seizure for the first time. Luckily, epilepsy is something that is fairly straightforward to manage (although it can take some time to get the right type and dosage of medications) and you guys sound like you’re already handling it really well. It’s great that you’ve both got each other for support during this difficult time; please continue to do what you need to do to put your physical and mental health first above all, everything else can wait 💕
@hayleyevans7697 I have epilepsy and am also a travel vlogger, and I agree with you that it is very straightforward to manage when your case is not as severe, and you take your medicine daily, which based on her story, seems to be the case. Thank you for reassuring her of that instead of some of these other fear-mongering type comments!!
sigh ...cannabis will reduce seizures to almost zero ? why not give that advice
@@MPezant1215 Charlottes Webb
May the new road in your life’s journey, give you many blessings, allowing you to continue to bless others with sharing your life adventures. I made it thru 2 weeks of Covid years ago, binge watching your content. You blessed me to be in your world and to temporarily forget my sickness.
I’m not sure if you’re a neurologist, but respectfully, epilepsy is a very individual disorder and it is not always straightforward to manage and treat. Hopefully it will be for Kara, but it can be incredibly difficult and complex for some with epilepsy.
Nate and Kara,
I'm a neurologist and watching your account is exactly why I do what I do. People deserve to know what is happening in their health, that's the sacred foundation of all physician - patient interactions that has been eroded in modern medical practice. Your neurologist knew rather easily the diagnosis because she listened to you. There's a famous quote from one of the fathers of modern American medicine, William Osler. The quote is "Listen to your patients, they are telling you the diagnosis."
Thank you for taking the time to so thoughtfully share what you two have been living through. In epilepsy in particular, there are even studies that show peer to peer support is a health benefit for people living with epilepsy. Your narrative and the heart with which you have told your story has SO MUCH IMPACT - just look at all the loving comments that telling your story has brought. Thank you so much for your openness and helping others see themselves validated as well as presenting to society the journeys that we all are on when health problems arise. We are socialized to believe that symptoms should be "toughed out" or dismissed and there is so much stigma associated with any form of illness or disablity. When you speak up, you battle those negative aspects of human nature and you are a light for others. Again, thank you.
as a neurologist, can the stress of such an active/changing lifestyle contribute to exacerbating this condition?
@@forgiven213 sleep deprivation, infection, substances like alcohol and marijuana can make it easier for a seizure to occur. The mesial temporal sclerosis is a clue related to the epilepsy as described by Kara's neurologist. In most of the cases we cannot find a "smoking gun" type structural problem causing the epilepsy. An active lifestyle does not cause epilepsy however head injuries can.
@@forgiven213 Shots from cradle to grave. Did she get the jab?
As a neurologist do you ever warn your patients about shots? Shots that have Thermosol in them (Mercury)??? Mercury has no business in the human body. It is a neurotoxin. Let me tell you my experience. I have crohns disease. My "Dr" told me it was "hereditary." No one in my family history has crohns. No one. Doctors lie and make things up. I then did tons of research and found out about vaccinations. One author stated once you inject that newborn baby with shot(s) you are forever making them a candidate for big pharma. Also since I have crohn's I read many natural cures books. I was able to get off all medications. Lost a ton of weight. One med leads to the next. Anyway, I eat all organic foods. This keeps my crohns in check and in remission. If I eat a bagged snack or all fruit "natural" popsicles....I get vertigo and I get restless leg syndrome. I have tested this myself. Once I introduce something new into my body I will continue to eat it if it doesn't cause a flare up. Well...to my surprise I had negative things happen to my body but not crohns. Once I get the symptoms ie: vertigo or restless leg I will stop eating that snack for a month. Usually within a week the vertigo or restless leg goes away. Just to fact check or double check I will reintroduce that snack again and the symptoms return. So for you as a neurologist might I suggest if you really want to help your patients, ask them what kind of snack foods do they eat? Anything with chemicals is a NO NO!!!! I now make my own potato chips. I kettle pop my own popcorn. I grow my own food. So if you really want to help your patients. Have them only eat food that they make. Nothing in a box for a month. No fast food. No diet soda's. Then introduce foods and snacks one at a time. Yes, I know....lots of work for the patient when everyone has been conditioned to take pills. People can cure themselves. It takes time and dedication. There is a great book I could recommend to you and anyone interested but I fear my comment will be shadow banned if I do. This book got me off of 5 different medications!!!!! It saved my life! It opened my eyes to the corruption in the med industry.
@@5GreenAcresthere is zero peer reviewed evidence that the Covid vaccine causes neurological issues. However, there is ample peer reviewed evidence that a covid infection can lead to neurological issues including seizures. I am not saying this is the case with Cara, since her symptoms started before Covid. I work in pediatric medicine for 2 decades, and I have never seen the amount of new onset seizures, neurologic issues, and out of season respiratory illnesses than in the last 4 years. Many many of the children are not vaccinated for Covid but have suffered through multiple infections in their short lives. Read the research and evidence and talk to actual medical doctors.
Can I just say how nice are the people in this comment section? This is a very positive community and I super love it. May God Bless you more Kara and Nate ❤❤
Nate, I was a nurse for 5 years in an Epilepsy unit, where we would trigger seizures, to pinpoint where they were coming from. They are terrifying, every single time. You're not being overdramatic.
Thank you for saying this…seizures are scary and it’s not over dramatic, it’s a real scary emotion.
he is a hero
Nate saying “stop, you can’t carry this” should tell you everything about the kind of person he is, the kind of character he has inside, and the amount of love he has for Kara. You’re a great person Nate and I don’t think you’re told that enough by this community.
Jesus loves you and is with you
@@jesusworksbro4Life cool bro, but this isn’t the time
Much love to this comment. Alot of people don't realize it's not just the patient that carries the load. It's also the "other half". It's very very hard for that person to watch this happen to the person you love and you can't fix it. That is just as damaging as the diagnosis. Much love to you Nate. Be the rock! You got this.
Sending good vibes your way!
@@roganvegathis is so true. I have recently been diagnosed with interstitial cystitis and other health issues but for 4 months before hand i was having unexplained fainting spells i was very fatigues and could not drive or do much but sit on the couch. while i was and have been carrying a huge load with my health issues my partner has had to carry this load as well. he has stepped up tremendously and has taken on so much to help me and comfort me. we have cried together we have thought the worst together but he has always remained my biggest supporter and comforter. I am so glad Kara not only has Nate to be that person for her but also to receive a diagnosis is absolutely life changing even though having a diagnosis itself is hard to handle and manage. there are so many people with chronic illnesses that dont get diagnosed or get medications/treatments and that is definitely the worst part. i agree so much about the relief of hearing that you have something that they can help try to manage. Kara and Nate are both so strong and a beautiful representation of a good partnership. To anyone living with a chronic illness/condition you are stronger then you think 💖
Dear Kara please don't talk yourself out of crying. I think in situations like yours or any other health change of any kind crying is good for your soul and mind. So if you feel like crying just let it out. Sending you a big and comforting hug, Kara. ❤🩹
Great advice ❤
It's very important to let it out. Holding it in causes so much stress on your body and mind. Release the tears. Let them flow. We are here to support Kara ❤always🙏 Thank you for this comment
Yes ❤️❤️❤️ repair follows that release
agreed! crying helps our brain process our emotions!
Agreed….its totally fine to cry if that’s what you need to do. It can be quite cathartic
Nate your an absolute hero. The way you're always there for Kara, so supportive. She is super lucky.
NATE has seen horrible thing which is indescribable, during that time the close person is more in bad shape than the suffering one I know from my experience for 37 years 🥲
I have lived with a seizure disorder for 50 years. I have triggers; not the proper sleep, caffeine, alcohol, not eating right and not having a routine. I now go to bed at the same time every day, avoid caffeine,etc. Travel and changes in time are my toughest.
My adult daughter has epilepsy. Staying on medication is key & routine. Biggest triggers for her have been not enough sleep especially, & stress! Prayers💜🙏💜
As a Paramedic, I highly encourage you get a Medical Alert Bracelet like Road ID, especially since you travel and may be alone at times. You can list your medical condition, medications and any allergies or adverse reactions you have to medications, and most importantly, Nate's contact info!
I second this. My brother had epilepsy and passed at 23 because he suffocated from the seizure he suffered during sleep. A medical alert bracelet would have saved his life considering we were all in the house when he died.
Stellar advice!
Excellent advice!!
I forgot to say that. Our son wears one. It says seizures, place on side. His name and our phone numbers on back.
I agree! I especially like that the Road IDs are so travel friendly. I exclusively use the flexible ones that are stretchy and come in many different colors. The others are too bulky in my opinion for active lifestyles. I am 77 years old and also have ones for my shoes. Being active requires being proactive.
Hey guys! I am both a physician and a person living with epilepsy. Many of your experiences were mine (except they were 20+ years ago!). I haven’t had a seizure since starting medication as a teenager and would not stop them if given the chance. With the right medication and healthcare team, your quality of life is only going to be better from here onwards! It’s okay to grieve for the days where our bodies were indestructible and infallible but believe it or not, many of your best years are ahead of you. Much love
I’m surprised your comment hasn’t gotten 100 likes. It’s exactly what I would want to hear (from a physician no less) if I were diagnosed with epilepsy.
100% on all points.
❤
Sending huge hugs to you both! Your courage in sharing this journey may help someone else down the line. Thank you for sharing something so very personal.
Hey I have been going through anxiety and now my muscles are feeling tired and don’t know what it is, any thoughts?
My sister was diagnosed with epilepsy at 2 years old. She's now 62 and eventhough she has huge grand mal seizures, she lives on her own, travels around by herself etc. Things haven't always been easy for her but she gets on with life and never lets epilepsy hold her back. As scary as it is for you right now, people can and do live full lives with epilepsy. You still have awesome adventures and sights to see ahead of you. Live a beautiful full life. Don't let epilepsy hold you back ❤
You'll never get over watching someone seize. I had febrile seizures as did my little brother when we were little, and I remember them well. I also saw my grandfather seize after quadruple bypass surgery when I was 9. it's been 20 years and thinking about it now still makes me sick. You are absolutely NOT being overdramatic. It is pure terror to witness.
I am praying for you both.
Childhood shots. Not only destroy gut flora and making us forever candidates/customers for big pharma, but they also cause all kinds of neurological disorders. Fibromyalgia, restless leg, vertigo etc. I have even since discovered that certain chemicals in foods cause restless leg and vertigo!!!! I eat all organic because of crohns disease (childhood shots) so when I eat something different and continue to eat it for a few days and I get symptoms I know what it is from. I then stop eating that snack or whatever it was for a month. Symptoms go away within a week. After a month I eat it again to see if symptoms recur. YES!!! They do.
I am a physician and let me give you some advice. If you are ever concerned about a test result, tell the medical office your concerns and ask to talk with the doctor. There was no reason that office could not have told you on the phone that the neurologist was going on vacation. Sometimes offices don't understand the worry when waiting for test results, but they should.
Thank you for such compassionate advice.
The amount of times I get rung by the doctors office on a Friday afternoon telling me the doctor needs to see me but I have to wait till next week is unbelievably stressful. It's not untill doctors get the same problem do they realise what you're going through
Thank you, Doctor, for sharing this advice.
@@CarlottaART My pleasure.
Some people really lack basic bedside manners!
I've got Epilepsy, it's nothing to worry about! You can easily live with it once you've learnt your warnings. You'll be grand hope you're okay 🎉
Epilepsy is not the same for everyone, my is a huge control over my life what I can and can’t do what I can’t eat. Glad it’s easy for you but not for everyone.
My dad had it and the medication he took for it had horrible side effects.
Everyone's epilepsy experience is different. I'm glad you have warnings, and that works for you, but it is not the case for everyone.
@@BrodyYYC the side are effects terrible, especially when you have to take multiple medications, you’re getting them from every one . I know I was a totally different person before so long ago but I can remember I miss doing things.
Thank you for the thoughtful and encouraging words for her sake! ❤
It took guts and courage to share this to the world. Keep on fighting, you’ve got a big support network, Kara and Nate.
My dad had epilepsy since childhood. He once pretended to have a seizure to get out of a fight. He was surrounded by good people who took care of him and he was loved just like you. I drove him all over the place and bonded with him on each drive. He lived a normal life.
Psychologist/counsellor here. Be kind to yourself. You may have to change some aspects of your lifestyle, but that is not a failure. You may have to slow down a bit, and that is not a failure. You may have to modify your self-concept, and that is not a failure. The only failure is if you beat yourself up over those changes. So be kind to yourself.
❤
Icu nurse here!! Obviously as a nurse I’ve seen a lot of seizures, but I just wanted to give my support to Nate having watched a loved one go through that cannot be easy especially when you cannot stop it at that moment! Watching you be a rock for Kara is amazing. And to Kara, the vulnerability you are giving to your audience by sharing this story is so inspiring. From a healthcare provider, people’s health is not talked about enough on social media. As you said, it’s a highlight reel. Thank you for sharing your story. I wish you all the best and hopefully an easy journey in your treatment. I’m so glad the medication is working and you’re healthy and happy! 😊
it’s the bare minimum to take care of your wife tho?
Nate's mom is a RN too, so pretty sure he was on the phone with her right away, and she talked him through it.
@@nirmalasingh7677 Please don't be heartless. It doesn't make it any less scary to be on the phone with a professional when someone you love is IN a violent crisis and all you can do is watch.
@@nirmalasingh7677 I think you are wrong there. Just because his mom is an RN doesn't mean she can diagnose from afar.
I can't imagine going through seizures, and not knowing the cause. It can be from a dangerous brain condition or many other issues. Nate having to watch his wife seize, and not breathing, must be terrifying. I'm just glad they have a diagnosis and have medication to help.
💯💯💯💯💯💯 I totally agree thanks for commenting
Important note if anyone in the comments is working through the medical system, please keep advocating for yourself. Women in particular are often told their symptoms are less than or not red flags, when they are signs of major underlying concerns. I have a friend who was having issues and the doctor sent her home. She decided to keep advocacting herself and they found a major blood clot. I have another friend that took 8 years to get her endo diagnosis.
So this is just a reminder please keep advocating for yourself!!!
From a wife that sat in Nate’s shoes, my neck is sore from nodding along with you. The feelings, the fear, the relief….and I feel like you guys are going through it beautifully! Medication can be annoying, but life is still amazing. The big events were scary, but they push us into loving life more, appreciating everything, and always having each others backs. Your video has brought back a lot of the grateful feelings, and I am sending huge encouragement your way. ❤️❤️
When my sister, at 19, was diagnosed with Epilepsy she was told that no one knew what or how long her future would be. She just turned 65 last November. She has two beautiful, intelligent, accomplished children who have given her four grandchildren. She has retired after teaching elementary school for thirty six years. Her life has been challenging, certainly, but in no way would she allow it to rule her life.
I have two pieces of advice. 1) Be proactive. You are in charge of your life, health, and future. Don't let anyone make your decisions for you. Research everything. Find a doctor you trust. If you aren't comfortable, change doctors!!! 2) Decide what you want your life to be. Don't let your disorder rule your decisions. Take your meds, eat well(which you do) exercise regularly (which you do) get enough sleep (?). Be aware, not wary.
Blessed Be Kara, you've got this!
I know you are well cared for. Our God has his hands on you. Keep posting wonderful adventures and showing all of us how beautiful and great this world can be if we only take that chance to know it. Love you guys. # Number 1 trip power couple.❤❤❤❤❤
What a lovely, encouraging note. Your sister has a very kind person in her corner. ❤️
The change doctor thing. YES! we are allowed to fire medical professionals who do not hold our best interests!!
I have a special needs autistic epileptic daughter 28 years old on 3 medications to control he seizures still she gets seizures .. her seizures got horrible horrible during PMS ..and her actual period so I took the decision to give her the DEPO provera shot to stop her menstrual periods it did make a huge difference ... This must have been a humbling experience for Miss Kara as I found you were gettin g to be quite a show off in tour vlogs....
Kara,
I have epilepsy and I am a first responder. My wife has seen me have my 1st grand mal seizure that caused a full shoulder dislocation. So we know what it feels like to have an uncertain future. I am still a first responder and we used these tricks to help control my epilepsy. Number one No energy drinks, they counteract most antiseizure meds. Coffee, and teas are fine. Number two sleep sleep sleep. Do your best to get not just 8 hours of sleep but qaulity sleep. Start a nighttime rountine. No matter where you are. And lastly I know it is scary but make fun of it. You are a strong and sweet person. Define your epilespy don't let it define you. My wife and I call mine the worm. With Nate at your side there is no doubt you can live a normal life. Take your meds, recognize your signs and everything will be fine.
I love hearing everyone’s feelings!! We are all so different and so happy you are a first responder! I’m thankful how caring every first responder has been when I have had a seizure. Favorite comment - you can stay here if you can tell me what year it is….. I was WAY off 😂
A great bit of information! ❤️
100% agree from a retired nurse
So happy Kara can still have her coffee 😊
I was diagnosed with cancer six years ago. Successfully treated. While I was going through it, I stopped telling people about it because I couldn’t handle other people’s reactions.Ninety percent of people were unaware of it.
I am so glad you found a neurologist who took such good care of you. And that you're taking care of you, Kara. Please be well and continue to take care of your health! None of us are infallible, so please prioritise your health and rest! We, your audience, will be here.
Spoken as a health care professional, you were a dream patient. The fact that you had logged your symptoms and everything associated with them was SO helpful to your neurologist. 90% of a diagnosis comes from the history we get from the patient. The tests are just to confirm. Hang in there! You guys will handle this with grace and love just like everything you do❤
If you ever want a seizure alert dog, let me know. I do this for a living, I love helping people live their best lives with the help of a service dog. I would do this behind the scenes. Sending positive vibes your way. You got this girl!!
I have a diabetic alert service dog. I have really low blood sugars sometimes that result in having seizures. These dogs are amazing and help you get through the seizure. Please keep this in the back of your mind Kara. They truly are lifesavers. @margaretpittman9650: thank you for providing these dogs for us. I admire anyone who works with these dogs and helps people who need an assistance dog. Thank you so much!
Do you have a way for anyone with Epilepsy to learn about getting a service dog? I have 3 grown daughters that have it. It would be awesome to have someone to talk to about it....Thank You
I have a family member with general seizure disorder, and when I asked him if he'd looked into it, he said he can not come anywhere close to the cost of getting. one, @margaretpittman9650 Send me a pm on your alert dogs, if you can, please.
I used to know someone with seizures who had a seizure alert dog and it was a game changer for her in feeling comfortable on her own. Her dog would nudge her in a particular way when it sensed one coming on so she could lie down and not injure herself when it happened.
Your body chemistry changes, so your scent changes. At least enough for a dog to smell it. There are bigger non profit companies that provide service dogs, but a long waiting list. Canine for companions is one.
I do have some advice that I had used when I had my complex migraines where I faint I throw up and have leg tremors. I always had my councilor to talk to everything about when it came to it. It has been a scary journey for me having EEG’s, emergency room visits, and MRI scans. But having that one person I could talk to about it has been a blessing.
My grandma has epilepsy and she’s doing amazing, you have absolutely nothing to be worried about. You are loved by millions ❤❤❤❤❤❤❤❤❤❤
I was diagnosed with epilepsy at age 5, am 63 now, so it’s been with me all my life. You’ll be ok! Trust your body and trust yourself. Take notes and partner with a good neurologist. Epilepsy is manageable and it’s possible to build a rich life around it. Wishing good things for you both.
The best thing a student did for me was to tell me in front of the class that she had epilepsy, and what to do about it. She described what it could look like, as she had two types of seizures. At the time, I wondered why she'd say something so personal in front of everyone, but the day she experienced a seizure in class, everyone remembered what to do. No one panicked, she didn't have to be embarrassed. It was a good experience for all of us. I imagine Nate's reaction when he had no warning. Thank you for being open. It IS helpful.
My husband had epilepsy since he was 17 but last year at 41 it turned out it wasn’t epilepsy at all it was the meds causing him to have the some tape of seizure Kara has but he has chronic migraines and it was all due the medication he was on. It was a scary experience to see him in that state but I thank god after his 5th neurologist they figured everything out. Seizure free for a year this August.
I have been watching you for so many years. I have laughed with you, cheered with you, cried with you and enjoyed every video. You have become like family. Know that I will be praying for you both and that you will have perfect peace over this.
No advice. Just know we understand if you don’t post in a timely manner! We are just privileged to have you share your lives with us!
My sister had her first grand mal seizure at 13 years old and is now 53 and an Iron Woman, who is competing in yet another Olympic triathlon tomorrow! Her medication has controlled her epilepsy 100%! Keep living your awesome life and let the meds give you comfort and confidence. ❤
Nate handled your first seizure so incredibly well. Staying calm for you was the best thing he could have ever done.
Our prayers and best wishes are with you both! Peace, strength and happiness to you both.
I’m hearing that beautiful quote of Nates Grandfather “Good health is the crown on the well man’s head that only the sick can see.” You’re doing all the amazing things for you & Nate.
Hi Kara and Nate, I'm a 58 year young guy...
I have had severe epilepsy since I was 17 years old and it was said that I would never get rid of the seizures,
in October 2006 I got a new medicine called Keppra, 30 days after I started whit the new medicine, my seizures went away and I haven't had a single seizure since...
What I mean by that is that you can get medicine that suits your Epilepsy, and it can go away completely…
But unfortunately you have to take this medication for the rest of your life.
Sleep properly, eat at fixed times, take more time, plan everything in advance so you don't have to stress, such as not having to stress for the next flight 😁...
As an Epileptic, stress and poor sleep are your biggest enemy.
Big hugs Kara, you have a great guy taking care of you, big hugs to you too Nate and take care...
Best regards from Lars in Karlstad, Sweden 🙂😎
Awesome Advice!
Yes, Resting enough is so Important.
Glad Your Seizures are also well controlled! 😀
(I have Seizures, but from Temporal Lobe Seizure Disorder, but have been Seizure Free for 5 Years, thanks to My Medication.)
This epileptic in Oklahoma agrees wholeheartedly. Thanks for sharing!
I take Keppra too! I was diagnosed last year though I had been twitching (mini seizures I guess) for nearly 10 years before having a seizure and blacking while I was with a customer. I finally got the diagnosis. Abnormal front lobes suck but Keppra has done wonders for me
Keppra is just amazing. I’m on it too. ❤
Keppra is amazing for those it works for. When it works at all it works really really well. Its great it can help some people with epilepsy. When it doesn't though, it's horrible. It's known as the rage drug because the mood issues it causes can be so severe and horrible. Just a heads up.
Sending love to you guys from Canada. My son (9) wants you to know you're doing great. He's a big fan and was so concerned on your behalf, but is happy to hear that you're doing alright.
In December 2018, my older brother (49 years old) had a seizure and it turned out to be Glioblastoma. We lost him March 2020. Your initial fear was completely understandable. I’m SO GLAD that you have a diagnosis. Wishing you the best with managing this. 🙏🏼
Tough watching that first big seizure moment, must have been terrifying for both of you. Glad it led to a diagnosis and Kara's getting the needed care!
You feel helpless when you don't know what to do. Just make sure the seizure is not going to make them hurt themselves and swallow their tounge.
really scary !!
@@johnstover4584it's physically impossible to swallow your tongue, you can choke on your saliva or vomit during a seizure
@@harper_anne2089 same here, Kara and Nate!
*Kara, as their channel name shows
My daughter is a HUGE fan of your channel. She was diagnosed with epilepsy this year and I just wanted you to know that you being so honest and sharing your diagnosis was REALLY helped her a lot and inspired her to feel more validated in coping with her own diagnosis. Keep being super awesome and strong as you are more of an inspiration than you know ❤praying for you!
Sending you both so much love as you navigate this journey. Thank you for sharing with us. I hope you feel lifted up by this community that appreciates you so much.
Kara you are so strong! Thank you so much for sharing your journey with us all. We are all here for you and love you!!
My wife has epilepsy and has been seizure free for about 5 years or so? She found a terrific doctor who found the perfect medication management program for her. I’d be typing all day if I told countless stories of our first years of marriage and watching her have a seizure at 7 months pregnant. Believe it or not? Nate will have to be the hero in this journey.
I also had one of my seizures when I was 7 months pregnant but I was driving. Fortunately baby and I were fine.
YOU ARE ABSOLUTELY RIGHT🥲😥
Even better than medications that will cause other health problems, I recommend a holistic chiropractor who can renew your nervous system through adjustments. I met a lady at my clinic who has been going from doc to doc for 20 years and on meds, but it wasn't until she started getting adjusted that she could sleep through the night without a seizure. It's wild how much our nervous system controls and if your spine is misaligned, your nervous system can't work properly.
@@lydiarose3553 Everyone is different so what might work for one might not work for another.
My husband has a really rare neurological condition that also causes seizures, memory issues, and mobility issues. When we were going through this same scary diagnostic process, I was having to watch and make sure my husband stayed breathing through the night. To everyone reading: please don't underestimate the impact Kara's condition can have on Nate too. It's genuinely traumatic to deal with a scary health situation like this, and as the "caretaker" you have to do everything you can to advocate and remain strong for your partner. People tend to underestimate how much of a toll these kind of diagnosis take on BOTH partners (just in very different ways).
How Is he doing now. I hope he gets better ❤
I also hope he gets better .....as well as you
Hi Kara. I was helping my son with his Spanish. Next thing I know I am being off loaded to ER. I had just come too and overheard the ER doc say I probably had a Brain Tumor My heart sank. I guess I am right. The neurosurgeon said I had a brain tumor that was fortunately benign. That was back in 2009, and am still hanging in there,though I have had 4 additional seizures. I am all too familiar with your description of what I call mini-seizures. Anyway I am well and take 1000MG of Keppra twice a day and that seems to be keeping the big seizures in check. I am glad you are doing well. Lean on your husband figuratively and literally when you are feeling out of sorts. Take care
Sorry living right
@@Oecanside He's much more stable now, thankfully. He definitely isn't "healthy," but I haven't had to help him stay breathing in almost a year
Good for you both! You are so strong. You’re a wonderful couple and it’s amazing to watch the support you give to each other. You’re going to be ok. Try to remove that guilt. It helps no one. Sending strength your way.
Big hugs to you two-I’m so sorry you’ve had to go through this but can’t thank you enough for your strength and vulnerability in sharing. I couldn’t respect you two more!
My daughter collapsed with a 7 minute seizure a decade ago. Leading up to the grand seizure we thought she had Tourette’s. She would throw cups. Fall down the steps. Etc. she has been on every anti seizure medication and she experienced so many side effects. She is currently on zonisamide and pregnant with her second child. She lives a full, normal life. You will be great! The initial experience was absolutely emotional. We lived in terror. A lot of crying. But modern medicine is amazing!
My beautiful daughter was just diagnosed today after dealing with this for half of her life. She’s 16 and I feel so distressed thinking of how long it has taken for someone to help her. I’m still in the afraid part.
Is it possible to love Kara (and Nate) anymore??? Thank you for sharing your authentic selves, letting us into your life and to grow with you.
This! They are just so human and relatable. ❤
I do not love them at all. They are okay😂
IMPOSSIBLE!! They are lovely ❤❤
Sending love as you navigate this new chapter. I’m so glad you had a tremendous amount of people to rally in your corner on your many “distraction” trips during this journey. ❤
I'm so glad you felt ready to share and I'm thankful you're taking care of yourselves and each other. Your videos have given my daughter and I so much joy and comfort in a rough patch of our journey. Thank you, and God Bless you both. It is brave to share your truth and we support you whole-heartedly ❤️
I am a nurse and watching seizures is so upsetting, especially if it is someone you love. My daughter started having seizures as a teenager. With medication she has been seizure free over 20 years. Lives a perfectly normal life, had two healthy babies. She has to get her sleep, no alcohol, and take meds on time. You got this! ❤
my daughter was pretty much the same. First tonic clonic seizure at 14. She has been on medication since and has been seizure free for over 15 years. She has had 3 healthy children and is fine as long as she gets sleep and takes her meds. It was very scary seeing that first seizure though as I'd never seen one before
Nate said what is so important to remember. We don’t know what people are going through and we need to give each other grace!
I'm so sorry you've had to go through this. How scary for you both. I totally understand the "relief" of a diagnosis. Having a path forward and reason for why is just comforting. I had that a year and a half ago and it was a relief for me too. Finding that path forward is really everything. It's the not knowing that brings you down. I'm glad you have each other and an amazing network of friends, family, and followers to help you. We love you. And hope the best for you going forward.
Thank you for your courage and bravery to be real with all of us during what has most certainly been a difficult time in your lives. Heal, rest, and take time to do what is best for your health! Praying for you both.
Seizures are scary, especially witnessing one for the first time. Don’t ever think you’re over dramatic. It is traumatic to see a loved one (or anyone) having a medical emergency, does not matter the “severity”. You guys are strong and even stronger together!
True. It's even scary seeing your pet have one.
@@divscifres2674 100%! My husband’s family dog growing up had seizures and it was always so heart breaking to see her go through that!
Med student here. I just want to thank you for trusting us and sharing your story. I know you were talking about how you hope sharing could help someone else, so I just wanted to say that hearing your story will help me recognize symptoms in other patients, and hopefully help get my future patients to a definitive diagnosis/treatment sooner. Sharing this has probably helped so many people in so many different ways. More than anything, I'm glad you are on your way towards an answer, and hopefully getting back to some sense of normalcy. Your presence in the world has brought me so much joy over the years and all I want is the best for you two.
Wishing you all the best !! Thank you for sharing with everyone who follows and supports you ❤
Sending you both so much love. My dad has cancer that spread to his brain and I witnessed some brutal seizures during that time. Seeing someone you love go through that is so hard. Take care of yourselves. We love you 💛
After reading approximately the first 100 comments, I had to stop. Everyone will have a different experience and opinion. Please don't take these to heart. You're very brave to share your own experience. You're doing the right thing for your own healthcare. Big hugs to the both of you, from an 81 y.o. grandmother. ❤❤
Love this comment! I have epilepsy and am a travel vlogger and my epilepsy is mild and very controlled with medicine and doesn't stop my travel lifestyle. Based on Kara's 6 year journey and confirmations from neurologists, she seems to have a pretty mild case too. But i see in this comments section here, phase 2 of epilepsy for her: the constant stream of unsolicited fearmongering, judgment and advice that doesn't apply to her specific story, lol
As a mom of a kiddo with Epilepsy, I can 1000% identify with how scary a first seizure experience can be. Thank you all for sharing your journey in such a real way.
I love you guys, I binged your videos during 2020 to scratch my travel bug itch. Thank you for your honesty and vulnerability, it will only bring you more love and support! I feel your frustration with the healthcare system and long waits for appts, omg. But I'm so glad you got some answers and now it's just about managing it. The most important thing is you have each other. I look forward to your continued health and happiness, and many more adventures, whether or not they're documented on UA-cam.
Kara, you are such a beautiful person ❤ Your courage, joy, vulnerability, and positive presence inspire me every time. Thank you for being you! And thank both of you for letting us be a part of all your journeys. Much love
No one need ever apologize for feeling emotion. You don't apologize when you're ecstatic, or wowed... elated, or in love... so none of us should be apologizing for sadness, grief, fear, or trauma either; it's what makes us HUMAN. 💜 Thank you for sharing your story. I'm glad you guys have slowed down a bit this year and started prioritizing your health. It's so important for all of us to advocate for our health in every way. Hugs to you both.
The support Nate gives through this is phenomenal but at the very end when he says so sweetly “you can’t carry this” just broke me in so many ways. You two are such beautiful, amazing souls. I love that you found each other and that you share your lives with us. Thank you.
So glad you’re getting answers and working towards managing this! Love seeing the love between y’all and how you both support each other through the hard stuff. You guys are amazing ❤
Love you guys so much! Thank you for being so open and vulnerable. You have such a beautiful marriage and relationship and you share that with all of us, AND all your adventures. Prayers for you as you continue to navigate this new "normal"
My worst seizure happened when I was miscarrying my daughter. I was sitting in the restroom my husband was helping me clean up when I fell over having a seven minute long seizure. He had to call the ambulance and perform CPR on me. I came to as the paramedics arrived I got in to the ambulance and had another massive seizure. It’s been two years and my husband still talks about how terrifying it was to watch me go through that.
Kara, I was diagnosed at 36 w/epilepsy. The neurologist believes it presented itself b/c my entire body was under stress from cancer treatments. My sister was diagnosed at 15 and it was triggered by her starting her menstrual cycle. Epilepsy has no rhyme or reason. I have not had a seizure since 2018 and that was due to another medication interfering w/my epilepsy medication. Thank you for sharing your journey. It is scary. I'm incredibly proud of you. Do NOT EVER apologize for your tears. You need that release. HUGE HUGS and lots of love! (side note: sleep deprived EEGs are the WORST!! Right?)
Jesus Encounter Ministries UA-cam channel
Kara and Nate, I love your videos and how you share your lives with us. i live through your adventures. You are both so brave sharing Kara's medical issues with us. Hoping the meds work and that you both remember to give yourselves the rest and peace you need to keep living your dreams. Looking forward to watching more of your travels
That’s Great News.!!! Sending you so much Love Kara.
I’ve lived with epilepsy for almost 10 years, once you figure out which meds work for you life is totally normal!
My son was diagnosed with absence seizures after years of his pediatrician ignoring my concerns. He had multiple episodes per day. It affected his ability to pay attention in class and his grades suffered. He was a sad, frustrated kid. When we finally got the diagnosis and medication he became a straight “A” student. Thank you for your story. I know by telling it you will help others know that they need to listen to their bodies. You are in my prayers!
My best friend has epilepsy, with absence seizures. We were in high school when I did a little research and told her they should speak to a doctor, and my concerns! It took awhile for her to find a medication that worked for her, but she did find one, and she just graduated college this winter!
My daughter was the same. The medication has helped her tremendously. They are really smart kids!
Same with our middle son. He would stare off and miss parts of the teacher’s lesson. He seems to have outgrown it. Our nephew also outgrew his epileptic seizures, too.
My son (much older than you two) was diagnosed with what was then called petit mal seizures (now called absence seizures). We were so lucky we lived in an area that had a pediatric neurologist. At that time the thinking was that if you had one form of epilepsy you could develop a breakthrough in another type. That's obviously what happened to you. My son was medicated for all seizures and tested annually until he simply outgrew it. It was so scary but well-controlled...and that was over 45 years ago! And I'm sorry, but all those doctors who didn't have a clue about your 'dizzy spells' need to go back to school.
Love, Love, LOVE you both! You're on the right path. Thank you for sharing. I am 100% sure you've helped more than 1 person ❤
You two are such an amazing team! I am so happy that you have each other to work through this challenge. I will be sending you good vibes and hoping for nothing but the greatest for you both!
My Dad (77yrs) has been living with Epilepsy all his life for the most part. He had surgery to correct it 20yrs ago but he has now been Epilepsy free for that span. He has been on meds all his life so trust me girl I know your fears. I work in a hospital and I understand how hard it can be to get into Neuro but believe me that they are top in the field. Many Blessings to you on your health journey.. much love!
Petit Mal Absence Seizure gal here
Kara, thank you for being so vulnerable and open telling this community, I can fully appreciate how daunting it can be talking about something which is scary.
Waking up from your first seizure is terrifying as is having to witness your loved one going through one and there’s nothing you can do to stop the situation.
Nate, if people didn’t see you as Kara’s rock before now, they soon will.
Whether you post a video a day, 3 a month or 5 a year know that this community is with you and has your back so make sure you take the time for you, your health & wellbeing! 💪🏼
Dear Kara and Nate,
I'm so sorry you had to go through this tough journey. Thank you for sharing real life with us as much as you did all the fun adventures you've been through, you are always great energy to watch and connect to (and now more than ever)
I hope it gets better soon.
Much love.
Praying for you both that you find peace in the storm and ultimately the best solution.❤
My mom had epilepsy. She started having seizures in her late 40s. Once she found the right med, she lived another 40 years seizure free. You got this! Sending you and Nate all the love❤
I genuinely felt like I was sitting in a room with a good friend telling me a story about their life. You were so vulnerable… you didn’t need to tell us this. Proud of you - I’m sure this was hard. Speaking from all the true fans… bless you - we are here for you!!
Kara, such a brave post. Thank you for sharing your journey. I too have epilepsy and love travelling too. I love watching you and Nate jumping all over the globe. Take care of yourself, listen to medical advice and don’t stop taking adventures!
You’re an amazing person Kara!!! You are stronger than you think! We all love you and pray your health continues to be on the uprise!
My grandmother had epilepsy. I NEVER saw her seize. They were able to control it with medication. In her later life she decided she didn't have epilepsy, went off her medication and ended up faceplanting into a sidewalk when, surprise surprise, she had a seizure. Always put your health first. ❤
Lots of wisdom here.
I had my first seizure 40+ years ago. After high school prom. The key to living a ‘normal’ life is to find a medication that works for you and to find you triggers that you need to avoid. My triggers are lack of sleep, stress, trauma. I have been seizure free for 12 years.
I wish you all the best! You’ve got this!
I’m not epileptic but I do deal with a lot of chronic and genetic health conditions so I relate to that rollercoaster that is the journey to a diagnosis and treatment. Thank you for being so open, visibility and representation are so important and so lovely to see in this community. I’m a big believer in that there’s always a way to do things. It may not be exactly as you would have done it before but there’s a way. I struggle to walk due to my conditions and I went to New York earlier this year. Everyone told me I couldn’t do it, there was too much walking, I’d never cope, it was a stupid idea. I rented a wheelchair some days, got a hotel which was central so I could rest and listened to my body. It wasn’t what most people picture a New York trip to be but I did it and it was incredible! You’ve got this guys ❤
Thank you for sharing this with us, Kara!
We love both of you so so much and want nothing but a long and happy life for the both of you!
My daughter has epilepsy and it has been almost two year since she was diagnosed. She loves watching you all and even when we were in the hospital many many times she lived off you all
I've been a silent watcher for 2yrs. This subject brought me out. I'm 54, been having grand Mal and petite seizures since I was 15yrs old. It hurts to see you crying and not knowing what's coming ur way. You'll be OK! They are scary, to wake up and not know why ur in the floor or outside on the ground. Mine is caused from stress and being a manic depressive. Kara please know you will be OK! Love you both! Good luck!
Thank you
OMG. I'm crying with you guys. I love you both!!!!❤❤
Awww! What an intense thing to go through!!! I'm so sorry!
Blessings on your continued healing journey and incredible life of adventure!💝🫂☮🙏❣
Also Nate it is not over dramatic. My husband does a lot to help take care of me, witnessed a partial seizure and it’s all so much on a spouse. You’re doing amazing! You’re both an inspiration
Kara- I had so many tears for you watching this. My husband has epilepsy and has had several different types of seizures. Doctors that put him on too many meds and made symptoms worse and a doctor that finally made his life better. He has held a job for the past 6 years and finally has found peace. If I had one piece of advice it would be, Nate, you will be the one to see signs (especially others won’t see) that Kara may not notice first. We have lived our lives different from others but that hasn’t stopped us from living our best lives! Hugs to both of you!
Thank you for sharing ❤
It was incredibly brave of you to be so open.
I have enjoyed watching your videos for years. hope that you find the balance that works best for you.
Awww thanks for sharing this personal news. You two are just such great people. Hugs to you both!
I have a handful of comments as the wife of someone with epilepsy:
1. You didn't wait too long or push anything off getting diagnosed. My husband was having partial seizures for 5 years before his grand mal when he finally got the attention he needed.
2. You need to get good sleep and use the meds. It's a partnership! We've found that slower travel is better now, and always building in a rest day after a long flight has helped tremendously (especially remembering those meds every 12 hours).
3. It's okay to feel your feelings both of you! I watched my husband have his big seizure and it was one of the most traumatic experiences of my life. Cry it out, it feels better.
4. Once you find the right meds, you can live your life however you want, just as long as you find a way to get sleep.
5. Hearing your story was so amazing and it's lovely knowing we're not alone with this diagnosis.
This is a great summary. I've had a similar experience with my husband. He's had 7 grand mal seizures in the last 10 years (starting at age 46 and just after we moved to Colorado). It's traumatic and incredibly scary to witness, but you find a way to live with it. We manage a mostly normal life with some added precautions including as you said making sure he gets enough sleep. We have always wondered how much altitude contributed since it started in Colorado and he had 2 of his seizures on flights.
Guys, prioritise health first, YT second. Make sure you give yourself the right time to work everything out, don't go putting yourselves in danger in a remote location. 🤗
I've been following since the first video, and this video literally had me in tears. You'll both ok. Sending hugs. ❤
My wife has epilepsy and watching her have seizures is a nightmare for me, I feel you Nate.