I started having sisures after a bad breakup at 23. I had lots different types of medications. At my 30 I started taking keppra. The side effects were not what my doctor told me. At my 40th started with meditation, my life changed. Now I'm 53 and I barely take any type of madication. Meditation helps a lot and I have been sleeping much better.
Any one feels the strange sensation when you wake up after a seizure, I feel in a different world, age, everything I feel is like a nightmare, confused and of course with pain (always in my tongue,brain and muscles) I'm using Dilantin, but I feel more secondary effects than pros...
The majority of my seizures occur at the moment I go into deep sleep. I had some seizures during the day, but most occur in my sleep. I am currently off prescriptionsn and have maybe three or four per year. Where I am today compared to where I was in my twenties is a big difference considering I was having four or more seizures per week to just a few per year. My biggest problem today is mood swings and anxiety.
Thank you very much for your information. I take Phenytoin for the last two years, I smoke just a little marijuana in the evening and it really help me to get quality sleep
I was born with epilepsy and cerebral palsy. I have a twin brother, i was born first. My brother was born with no problems. I take phenytoin for my epilepsy, as a child I was on phenabarbatone, then at 14 i was put on Epilim 500mg. Which caused me to gain lots of weight. I went to live in Canada for a few years where I was taken off eperlim & switched to phenytoin. Which I still take today. As a child I had grand mal seizures, which doctors said I would grow out of. Which I did, but I now have petit mal. It' feels weird when I have it, i can hear all thats going on around me, but ppl and any noise, sound much louder, plus it feels like I'm floating on water. Before the seizure I get the smell like burnt toast. I can have a seizure at any time, night or day. Unpredictable. I feel a little confused when I come round, which lasts for a couple of minutes, then I'm back with you again. Usually a cup of tea helps me recover. I read a lot of blogs where people who shared their testimonies kept mentioning Anti-seizure Herbal medication. I searched for a website I just followed the email address of Doctor Patrick that was shared on these testimonies; I got lucky when I got a reply from Dr. Patrick. I followed his instruction, used Herbal Medicine in less than 2 months, I was already cure because of the changes I was seeing. Within a period of 5 months, I was cured totally forever. I went back to my neurologist, I was checked up and marked epilepsy free. If you need his help you can Contact this herbal doctor via his email herbalmedicalhome@gmail.com and WhatsApp connection is +2348102558553 for help...
That ESS is horrible for me. I was so tired I forgot where I worked and couldn't remember which driveway was mine, couldn't talk, couldn't remember anything, but I had such bad anxiety and hypervigilance that I could stay awake from brute force. I don't randomly fall asleep places. Ever. They gave me that scale and then told me I don't have an issue because I am not sleepy. It took like 15 years after that to be diagnosed with two debilitating sleep disorders
Since my epilepsy, I get more sleep but often 2-4 hour periods. My sleep hours and times are all over the place but I am afraid to adjust my hours because it might trigger a seizure. I may not go to bed until 7:00 AM. I take Lacosamide and Divalproex, Keppra caused depression.
Heres the situation: Decades of severe daytime sleepiness. 10+ years eeg testing shows Temporal lobe epileptiform spiking with some frontal lobe involvement. I have never had a known seizure. Was treated with cpap for severe OSA a couple years ago, but my apnea events increased dramatically along with central apnea events developing during treatment . Ive been through 3 overnight sleep studies with no mslt. I have definitely gone into rem sleep during dayrime naps, but not always, and at 57 years old, have experienced only 2 obvious cataplectic full body drops in my lifetime. My last neurologist suspected complex partial seizure/epileptiform disorder but attributed my brief, weak muscle drops with full consciousness to 'something else' If an mslt does not show narcolepsy what in the world could be going on with me. Feels like brain damage. My daytime sleepiness is crippling.
Ps. Epstein- barr virus showed up active on a routine blood test in my late 30s. I am otherwise VERY HEALTHY. Past MRIs unremarkable- besides a higher ratio of white matter found than is typical- which i was told could cause migraines. Who really knows.
I have no idea what happened. I was asleep. I woke by electricity from behind my right ear, down my spine all the way to my toes. It pulled my arms, legs, & head off the bed. My heart is racing. Panting for breath hard & fast. My whole body hurts. My head is buzzing. I feel like I ran a marathon then stuck a fork in a wall socket. This has happened before, many times; usually if I overdo it physically, which I did today. It alway starts behind my right ear.
I also identify with that same type of seizures , it starts in my forehead and as the electricity moves from my forehead and travels to the back of my head my body feels the electricity is felt as it travels down , it leaves me exhausted and tired , after many medicines that didn't work , levetiracetam has worked great , I will get auras sometimes but no seizures since 2003 and not one seizure when waking up . Thumb size brain tumor behind my right eye was the cause of my seizures
I have ended up in hospital many times after having seizures in my sleep, whereas I have no Idea how I got there and being asked by medical personal if I know how I got there which i dont
*in regard to grandmal seizures, what interests me is how each seizure is near IDENTICAL from person to person but the causes are so vastly varied. it's so interesting and confusing. what else compares to such a major crisis like a grand mal seizure but has so many different causes??* *it looks to me like this type of seizure is specifically a sleep disorder and is very closely related to narcolepsy. a narcoleptic falls suddenly asleep and wakes up as suddenly but an epileptic seems to have extreme turbulence falling into sleep and waking out of it. but that's exactly what it looks like, a sudden and spontaneous plunge into a sleep state and thereby, a sleep disorder. but, there are so many different causes of a grand mal seizure so it's definitely and absolutely **_not_** congenital or genetic. each grand mal seizure is astoundingly the same, it's the causes that are vastly different.*
I started having grandmas seizures - it started 5 years ago the first one outside ended up in the hospital. now I have them at home. Could coming off street drugs after a few years could this also- cause people to start having seizures. when they didn't have it before,
Cold turkeying from benzodiazepines (Xanax, Kpins, etc) and high doses of Ambien will give you a grand mal seizure (tonic clonic seizure). This also happens when alcoholics cold turkey
What is Deja vu seizures? I’m a little baffled by this. I’ve been back to the seizure before ? Lol ? Don’t understand. I’ve had 4 spikes before. I’m 69. They scratch their heads. Seizures began after Covid vaccines. This is a nightmare. My life is destroyed. I can’t sleep. They won’t give me anything to sleep. Why ? Ugh. These seizures are just horrible. Medicine does not help. I’ve been on too many meds.
I went to sleep early after taking my last 2 dilantin pills this happened like after 11pm last night,I have questioned doctors concerning not getting enough sleep they said as long as I take the recommended amount of pills ill be good but I disagree bcuz I can't feel like I am lacking sleep all over
I have recently been having siezures in my sleep. And I wake up feeling tired and dizzy, exhausted, sleep deprived and my husband says I wake up day dreaming and sleep walking and feeling dizzy and get a headache during the night and I don't know what is happening and I have a siezure.
Christians and Christian Science followers have no relief from this God given seizure life despite decades of prayer. However you correct in advising that PEACE within one’s soul despite horrendous God given seizures of any type can be achieved through prayer in any faith.
@@jaysantana3078 🤣 Doing The Lawds Work Is Paid Off Only By A Ticket To A Place Really Far Away, High Up In The Sky With An Omnipotent Being & His Immortal Winged Humans & Is Labor Enforced Through Coercion, Manipulation & The Detriment Of Eternally Being On Fire (Despite Having No Nerves To Feel The Pain Of Being On Fire) If You Aren't In Compliance!
Amen! In the MIGHTY name of Yeshua Ha’Machiach (Christ Jesus) every knee shall bow and every tongue will confess that Jesus Christ is Lord to the glory of the Father ❤️
Found you while researching today after 5 seizures since 5 A.M. You really helped me with your lecture! Can't thank you enough.
wow, this video explains exactly what I have... my neurologist is clueless and I will be seeing a new one soon! thank you!
Here I am with epilepsy watching this at 2am LOL
Its a night owl's worst nightmare
😆 Its either Sleep Disorder or.,, Seizure Disorder... 🙄🤔😂
Might as well add some mushrooms to the mix
Who else just woke up from sleep paralysis and had a little seizure meeeee
MEEEEEEEEEEEEEEE
Meeee
Does sleep paralysis mistaken to seizure?
Meed
I started having sisures after a bad breakup at 23. I had lots different types of medications. At my 30 I started taking keppra. The side effects were not what my doctor told me. At my 40th started with meditation, my life changed. Now I'm 53 and I barely take any type of madication. Meditation helps a lot and I have been sleeping much better.
what kind of mediation do you do?
What you do in meditation
@@sanjaymishra-of4yptry breathing exercises
Any one feels the strange sensation when you wake up after a seizure, I feel in a different world, age, everything I feel is like a nightmare, confused and of course with pain (always in my tongue,brain and muscles)
I'm using Dilantin, but I feel more secondary effects than pros...
Yes it's like an amnesia and you forget everything, yourself, your room, your life, time feels like it's slow
I feel like im on another planet....seriosly its strange...like into another dimension
But yeah...last time i broke my tooth ....so i think it wasnt fun at all
I feel very confused and irritated and a headache.
Sometimes I bite my tongue which is very painful.
The majority of my seizures occur at the moment I go into deep sleep. I had some seizures during the day, but most occur in my sleep. I am currently off prescriptionsn and have maybe three or four per year. Where I am today compared to where I was in my twenties is a big difference considering I was having four or more seizures per week to just a few per year. My biggest problem today is mood swings and anxiety.
😢🎉🎉🎉😢😢😢😢😢😢😢😢😢😢
Yes I totally agree the meds make me cry for nothing that's not good when you are a construction worker😢
Very informative. Thank you for sharing this.
I'm tired of doing the Harlem shake😄
RIP Cameron Boyce :(
Thank you very much for your information. I take Phenytoin for the last two years, I smoke just a little marijuana in the evening and it really help me to get quality sleep
Do you take this due to nocturnal seizures?
I was born with epilepsy and cerebral palsy. I have a twin brother, i was born first. My brother was born with no problems. I take phenytoin for my epilepsy, as a child I was on phenabarbatone, then at 14 i was put on Epilim 500mg. Which caused me to gain lots of weight. I went to live in Canada for a few years where I was taken off eperlim & switched to phenytoin. Which I still take today. As a child I had grand mal seizures, which doctors said I would grow out of. Which I did, but I now have petit mal. It' feels weird when I have it, i can hear all thats going on around me, but ppl and any noise, sound much louder, plus it feels like I'm floating on water. Before the seizure I get the smell like burnt toast. I can have a seizure at any time, night or day. Unpredictable. I feel a little confused when I come round, which lasts for a couple of minutes, then I'm back with you again. Usually a cup of tea helps me recover. I read a lot of blogs where people who shared their testimonies kept mentioning Anti-seizure Herbal medication. I searched for a website I just followed the email address of Doctor Patrick that was shared on these testimonies; I got lucky when I got a reply from Dr. Patrick. I followed his instruction, used Herbal Medicine in less than 2 months, I was already cure because of the changes I was seeing. Within a period of 5 months, I was cured totally forever. I went back to my neurologist, I was checked up and marked epilepsy free. If you need his help you can Contact this herbal doctor via his email herbalmedicalhome@gmail.com and WhatsApp connection is +2348102558553 for help...
And this Dr Patrick is in Chad, right 😊
That ESS is horrible for me. I was so tired I forgot where I worked and couldn't remember which driveway was mine, couldn't talk, couldn't remember anything, but I had such bad anxiety and hypervigilance that I could stay awake from brute force. I don't randomly fall asleep places. Ever. They gave me that scale and then told me I don't have an issue because I am not sleepy. It took like 15 years after that to be diagnosed with two debilitating sleep disorders
Since my epilepsy, I get more sleep but often 2-4 hour periods. My sleep hours and times are all over the place but I am afraid to adjust my hours because it might trigger a seizure. I may not go to bed until 7:00 AM. I take Lacosamide and Divalproex, Keppra caused depression.
The meds make me depressed...I just be crying over nothing and iam an construction worker.
Heres the situation:
Decades of severe daytime sleepiness. 10+ years eeg testing shows Temporal lobe epileptiform spiking with some frontal lobe involvement. I have never had a known seizure.
Was treated with cpap for severe OSA a couple years ago, but my apnea events increased dramatically along with central apnea events developing during treatment .
Ive been through 3 overnight sleep studies with no mslt.
I have definitely gone into rem sleep during dayrime naps, but not always, and at 57 years old, have experienced only 2 obvious cataplectic full body drops in my lifetime.
My last neurologist suspected complex partial seizure/epileptiform disorder but attributed my brief, weak muscle drops with full consciousness to 'something else'
If an mslt does not show narcolepsy what in the world could be going on with me. Feels like brain damage. My daytime sleepiness is crippling.
Ps. Epstein- barr virus showed up active on a routine blood test in my late 30s. I am otherwise VERY HEALTHY.
Past MRIs unremarkable- besides a higher ratio of white matter found than is typical- which i was told could cause migraines. Who really knows.
very simply explained. Thank you
thank you for this information.
he was my epileptologist at Temple in Philly.
No sleep = seizures, seizure medication side effects = lack of tiredness. Me watching this at 2:51am 😭😂
Remember, there are 40 types of epilepsy. Lots of different experiences.
Gawd damn u might as well sip lean 😂
I have no idea what happened. I was asleep. I woke by electricity from behind my right ear, down my spine all the way to my toes. It pulled my arms, legs, & head off the bed. My heart is racing. Panting for breath hard & fast. My whole body hurts. My head is buzzing. I feel like I ran a marathon then stuck a fork in a wall socket.
This has happened before, many times; usually if I overdo it physically, which I did today. It alway starts behind my right ear.
I also identify with that same type of seizures , it starts in my forehead and as the electricity moves from my forehead and travels to the back of my head my body feels the electricity is felt as it travels down , it leaves me exhausted and tired , after many medicines that didn't work , levetiracetam has worked great , I will get auras sometimes but no seizures since 2003 and not one seizure when waking up . Thumb size brain tumor behind my right eye was the cause of my seizures
Yes sleep is definitely different from every person with epilepsy
Thank you very much for the info
I have ended up in hospital many times after having seizures in my sleep, whereas I have no Idea how I got there and being asked by medical personal if I know how I got there which i dont
Zonisamide also called zonigran keeps me awake but then I feel fatigue during the day.
Same here,shit drug.
*in regard to grandmal seizures, what interests me is how each seizure is near IDENTICAL from person to person but the causes are so vastly varied. it's so interesting and confusing. what else compares to such a major crisis like a grand mal seizure but has so many different causes??*
*it looks to me like this type of seizure is specifically a sleep disorder and is very closely related to narcolepsy. a narcoleptic falls suddenly asleep and wakes up as suddenly but an epileptic seems to have extreme turbulence falling into sleep and waking out of it. but that's exactly what it looks like, a sudden and spontaneous plunge into a sleep state and thereby, a sleep disorder. but, there are so many different causes of a grand mal seizure so it's definitely and absolutely **_not_** congenital or genetic. each grand mal seizure is astoundingly the same, it's the causes that are vastly different.*
Mine are stress related. Physical or emotional stress. Lack of sleep , cramming for a exam, being sick, moving, sex,
****💯💪💯***** ***GREAT POINT***
@@recoveringsoul755sex? As in having sex or wanting sex or not having? ...my son maybe going through is!!
I wish my family would believe atleast some of this
I started having grandmas seizures - it started 5 years ago the first one outside ended up in the hospital. now I have them at home. Could coming off street drugs after a few years could this also- cause people to start having seizures. when they didn't have it before,
Cold turkeying from benzodiazepines (Xanax, Kpins, etc) and high doses of Ambien will give you a grand mal seizure (tonic clonic seizure). This also happens when alcoholics cold turkey
Yup alcohol and Xanax will cause them. But u won’t keep having them once you’re off
What is Deja vu seizures? I’m a little baffled by this. I’ve been back to the seizure before ? Lol ? Don’t understand. I’ve had 4 spikes before. I’m 69. They scratch their heads. Seizures began after Covid vaccines. This is a nightmare. My life is destroyed. I can’t sleep. They won’t give me anything to sleep. Why ? Ugh. These seizures are just horrible. Medicine does not help. I’ve been on too many meds.
I have experienced most of them
i can’t sleep which effects my memory etc 😔
Good stuff
I went to sleep early after taking my last 2 dilantin pills this happened like after 11pm last night,I have questioned doctors concerning not getting enough sleep they said as long as I take the recommended amount of pills ill be good but I disagree bcuz I can't feel like I am lacking sleep all over
Have you tried Earthing or grounding for epilepsy?
Interesting
I have recently been having siezures in my sleep. And I wake up feeling tired and dizzy, exhausted, sleep deprived and my husband says I wake up day dreaming and sleep walking and feeling dizzy and get a headache during the night and I don't know what is happening and I have a siezure.
I have them in my sleep really bad
me too.. 😞 i hate it!
Me too made me attempt suicide a couple times
Is sleep very important or the side effects of medicines taken.
Idek the meds don’t even help
Very informative thanks
Seizure meds tend to stupify me... ☘️😥☘️
4 days str8 only 4hrs sleep, now most are when sleep or within hrs of sleep
How do I sleep without dying from seizure
I have seizure when i was sleeping
I had also few days ago it was scarring
@@panospap5867I hope you don’t have them anymore 😢
@@Vibbe_rant i start ketogenic diet trying to stop them physically
@@Vibbe_rant thanks
@@panospap5867 how often you get seizures in sleep?
Seek Christ Jesus
Christians and Christian Science followers have no relief from this God given seizure life despite decades of prayer. However you correct in advising that PEACE within one’s soul despite horrendous God given seizures of any type can be achieved through prayer in any faith.
@@jillmiller9886 Christian’s lost they minds trying to advertise
You lost ya mind trying to be a advertiser and they not even paying u
@@jaysantana3078 🤣 Doing The Lawds Work Is Paid Off Only By A Ticket To A Place Really Far Away, High Up In The Sky With An Omnipotent Being & His Immortal Winged Humans & Is Labor Enforced Through Coercion, Manipulation & The Detriment Of Eternally Being On Fire (Despite Having No Nerves To Feel The Pain Of Being On Fire) If You Aren't In Compliance!
Amen! In the MIGHTY name of Yeshua Ha’Machiach (Christ Jesus) every knee shall bow and every tongue will confess that Jesus Christ is Lord to the glory of the Father ❤️