Narcolepsy Medications: My Experience (treatments part 1/4)

My (Free) Book/Blog about my experiences: daydreamsnightthoughts.blogsp...
My Fav Support Groups:
Narcolepsy Support Group: / narcolepsysupportgroup
Narcolepsy Humor: / 760324190697068
Xyrem Support Group: / 204112109766609

[@aleezak18]

This was extremely helpful thank you for posting this.

[@amberrodriguez851]

Thank you! I’ve been taking Vyvanse for the past 2 years and before that was taking adderall. My doctor is trying to switch me to provigil and it’s just not doing it. It’s kinda throwing me into a panic because I have things to do and I’m falling asleep by noon! The doctors don’t listen either! Ughhh! About to watch your other videos now too!

[@aleezak18]

I would love to know how much your quality of life improved on the medications % wise

[@davidkruse4030]

Try low dose naltrexone

[@cokers4life]

Are you experiencing any angry issues?

[@alperenmercan747]

Hello, nice video, I have asked for baclofen to my doctor two months ago, and she approved, and it's working out really well. Thank you for that. I mean EDS seemed like impossible to get rid of, probably the sleep quality is the most important thing, that's why baclofen ( my dosage 20mg but recently 30mg) helps. I have scanned the Narcolepsy Support Group a lot, but you really touch the essence of the problem(I studied philosophy). Sleep quality, med breaks, ritalin(also works for me I also use modiwake, also have ADHD). Couldn't work for some time just because of EDS. But I believe I still need time.
I have used Xyrem, I can say it is giving you a good sleep and you wake up and say, "I am alive again." I strongly suggest you try it, I gave up the med because no appetite, nausea, feeling bad( sth like headache and you're unhappy), anxiety and worrying too much. 6gr was working well, but too many side effects made me lower it down to 4,5gr, also ran into a bad batch(probably pharmacy kept it in a fridge or sth). I recommend it because life is hard, and with EDS, you can't do your best, I need to work for example but I can't, and if xyrem was working, I would also be, my xyrem experience is bad but I recommend trying.