Q+A about Cushings

I am Noura and I have Cushings Disease and PCOS!
Follow me on TikTok and Instagram @Chronicallyyours_
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[@NormaGonzalez04]

I’m in the hospital now for a 3t mri but my doctor wants one of the whole abdomen not just my pituitary glands. My endocrinologist suspects tumors on my adrenal glands.
Since the adrenals are in the abdomen based off your experience with MRI’s do you think they’ll catch them since it is a 3T like you had suggested? Thanks for sharing all of your tips with us!

[@Chronicallyyours_]

Hopefully! how did it go? Abdomen could be because theyre checking other areas for tumors, as you said. Have they checked your ACTH levels?

[@amybcopy1]

Thank you so much for the information! What is the type mri we should get to look for a pituitary tumor?

[@Chronicallyyours_]

3T Pituitary Focused MRI

[@kawaipotatisen0748]

Can i Ask you something (i cant find any answere om Google) I have been eating cortison for 6 years , and my body need It (doctors Can see at synachtentest ) i have all symtoms of cushing BUT The doctors i meet say i cant have cushing because i eat cortison because my body dont producerar It self...
Do you understand my bad english? 🙈

[@utube9056]

I am not a doctor, but from what I read people with Cushing’s usually overproduce cortisol, probably that’s why your doctors say you don’t have. Still it never hurts to take opinion from a second or third doctor

[@Chronicallyyours_]

Have you looked into CAH? It's the opposite problem, lack of cortisol. Might be more what you have.

[@kawaipotatisen0748]

@@utube9056 thank u 💓 Can you have over produktion some days and some days less? Or is It high all days? And does It matter If you eat corsison?

[@kawaipotatisen0748]

@@Chronicallyyours_ strange because i have all symtoms 😳😨💓 Do you know If somedays kortisol
Can be high and somedays Low? I mean what If It somedays (days like when i cant sleep at all
Night for a week for exemple then its really high and somedays its lower? I dont know... i just wish i could test It more then one time.. and The doctor say It cant be... do you know If It Can be high Sometimes and lower somedays ? Sorry for my bad english 🙈💓 and Thank you for writing back

[@kawaipotatisen0748]

@@Chronicallyyours_ what is CAH? 💓🌷

[@MartaLino]

Hello Noura! I'm doing exams to know if I have cushing disease, can we talk about your journey. I have some questions. Thank you! @martalino

[@MartaLino]

Hope you are okay. :)