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Noura Costany
Приєднався 22 сер 2013
Noura Costany is a writer and creator. She is a healthcare advocate and a Cushings Disease Survivor!
Follow on Tik Tok and Instagram at : @chronicallyyours_
linktr.ee/NouraCostany
Read more about Noura's Journey at Bio News! Link in my link tree!
Follow on Tik Tok and Instagram at : @chronicallyyours_
linktr.ee/NouraCostany
Read more about Noura's Journey at Bio News! Link in my link tree!
Відео
Weird Symptoms that could be Cushings Disease
Переглядів 872Рік тому
Weird Symptoms that could be Cushings Disease
How to Support your Chronically Ill Friends
Переглядів 155Рік тому
How to Support your Chronically Ill Friends
Which labs are off with Cushings Disease?
Переглядів 492Рік тому
Which labs are off with Cushings Disease?
Support and Communication for those with Chronic Illnesses
Переглядів 5502 роки тому
Support and Communication for those with Chronic Illnesses
How To Reach Me When I'm Not on YouTube
Переглядів 2763 роки тому
How To Reach Me When I'm Not on UA-cam
Cushings Disease Post Op and Dealing with Mental Health Issues
Переглядів 7553 роки тому
Cushings Disease Post Op and Dealing with Mental Health Issues
Cushings Disease - Tapering Off Steroid Medication
Переглядів 1,3 тис.3 роки тому
Cushings Disease - Tapering Off Steroid Medication
Cushings Disease - Ketoconazole and Hydrocortisone
Переглядів 1,3 тис.3 роки тому
Cushings Disease - Ketoconazole and Hydrocortisone
I have to say (js bc its on my mind lmao) that i think it’s easier to make fun of fat ppl which is why skinny ppl get made fun of *less* and why nobody really talks abt it (nt really related js had to say it)
Body positivity movement is the only movement without any movement.
But obesity increase significantly the risk to get tumors. Its the same way with smokers; smoking can cause lungcancer. Not all smokers gets it, but it does increase the risk. What your saying here is that it is wrong for the doctor to point out the smoking issue but instead focus on the lungcancer?
My weight gain was CAUSED by the tumor. after the tumor removal, I lost 50 pounds.
How long is the recovery? I got diagnosed and scared to death to go through surgery.
I really needed this video today
Hoping you’re doing well these days! Your videos are very helpful to me right now. I would love to chat if you ever have time, but I hope you’re out there enjoying life and feeling better 🙏
I’ve had 3 abnormal tests so far, every one I’ve done is abnormal. A high blood 2 years ago, ignored. A high blood recently and then a 24hr urine which was also high. But I don’t look like I have cushings so.. I’m not sure if they are going to agree to look into it for me..I have to wait to hear back from specialists but Im used to being dismissed after all this time so I’m so nervous it’ll happen again now. I’ve been suffering for years 😭 I’m so hopeful that maybe this is the answer, finally
Can you please do another update. It is so hard to find information and I'm terrified.
Like you, I had chusting syndrome and it was a difficult process. I had surgery on the pituitary gland and thank God I am fine now. How is your condition now? I have a lot of mobility in my intestines and extreme constipation. Have you had it too?
Omgg is that the kuffiyeh print 🇵🇸🔻
Hi there baby how are you doing today. Hope you are doing well miss you
Hi there how are you
Can you have a buffalo bump from overweight instead ?
Love to send you a quick thank you
Love it 2 and delicious chest
Amazing beautiful n sexy n cute and funny and delicious 😋 😍
Today is my birthday so happy to meet you
Can you tell me more about cortisol drop causing a period? Is this a known thing? Cause i've noticed when i'm calmer it comes.
Im sorry to hear about your story . Do you remember what your am cortisol level was? I been having weird symptoms and my cortisol levels in the was 6.5 and when i just did the blood test the level was 20.9 mcg at 12 p.m . Kinda worried now
Great advice! I will add, 3T *or 7T MRI if you can get it.* 😅
omg ive never been approved for a 7T BUT YES! If you can ABSOLUTELY! Thanks for adding
Is there any way I can talk to you? I messed up my tests and I am in a really bad spot. I am on my second endo. My regular doctor caught it. I have a confirmed MRI.
So i no longer have the dark spots or hump but i feel like garbage. I also have multiple high mornings but my 4 10 to 11 pms were low e exept 1. And my urines have been normal
so saying you are unhealthy and need to become healthier and fitter is fatphobic now?
I have a brain tumor lol. I was misdiagnosed by doctors as being "fat" when the tumor was causing an issue. this happens to a lot of people.
@@Chronicallyyours_ Sorry about your tumour, i’m pretty sure you can’t be diagnosed as fat tho, i get it tho
Ketoconazole: that is an antifungal ...isnt it?
Hi Noura! I recently discovered I have a tumor on my pituitary gland and I’ll have surgery soon, I been watching videos of former Cuchies 😅 and yours pop out in my feed, I been watching some of your videos but after watching this I’m wondering, do the surgery really help? 😅 is not only you, other girls in their videos talk a lot of the effects after the surgery, so I’m scare 😣 is it worth it? ☹️ Btw thank you for all the very informative content you have, is been very helpful to prepare myself! 🫶
I have to have a mri. And the doctor put me at the wrong on( not the 3T mri but they fixed it so I’m going this Sunday 😊
I'm sorry to bother you, but could you please explain to me again how I should take the urine sample please? Thanks in advance
Hi! So you want to discard your first urine at 8am, and then collect for 24 hours. The last pee you put in the jug should be the next day at 8:00 AM. Its preferred if you can test with the little tablet, but you can do it no matter what. Keep refrigerated, and drop off at lab same day
Who was the physician?
i have a question! I am noticing stretch mark on my leg . i am not overweight I don’t have any other symptoms and .I first notice them 7 month ago . They are now healing a little bit . I didn’t lose or gain weight. And last month i diagnosed with pcos. Can i have cushing syndrome? Should i go for a test?
if this is your only symptom, i wouldnt stress. stretch marks are very normal! However, its always good to consult with a doctor.
Well done Noura, so many people going undiagnosed with Cushing's and most doctors very arrogant and dismissive, and not at all interested in diagnosing it... because it's so rare! It's rare because they never correctly diagnose it, it's always put down as PCOS. You videos are so incredibly helpful. Doctors should see them so they might actually learn something about this disease.
So glad my videos have helped you!
Well done Noura, so incredibly helpful.
Have you ever experienced swollenness, painful or infected salivary glands?
Hi came across this video for years ive been struggling with my body and what in feeling. for years doctors told me i had pcos. Last year i decided to go onna weight loss and wellness journey. I did everything cardio i was counting calories i got organic protein, strength training, and yoga. Drank lots of Water no sugar, organic vitamins ect. Unfortunately, i only lost like 18 pounds in one year. To make matters worse my symptoms didn't go away. All the symptoms that you mentioned i still have, whent to the women's clinic and the "specialist" rolled her eyes said its just pcos and I would have to just take birth control and learn to live with the symptoms like extreme fatigue, mood swings, low lebido, the severe stretch marks. I've gone to 3-4 different doctors and they still cant really answer my question of what really is the problem. I have a question if I go to another doctor what do you think I should ask to get the proper diagnosis. after the surgery do you have to take medicine for your rest of your life? I would like to have kids in the future. would that affect.
*Yeah, Internet fails to understand cushing syndrome/disease isn't toxic body positivity!*
She gives an Unauthethic information?
?
Is it sarcasm or you really got diagnosed with other disease along with cushing and why exactly surgery isn't available or done to you?
i have cushings disease and pcos. i had surgery in 2020, but unfortunately a second tumor grew. right now, im on medication treatment, which has done wonders for me. we expect ill have surgery again in the future but since i have a complicated case, this is the best option for me.
Can you please explain the vision symptoms and how cushions causes them. Thanks!
i have blurry vision, spots, peripheral issues, and more. to my understanding, it's really just because of the hormones.
Case
My GP suspected Cushing's disease 6 years ago. One suppression blood test done, came back negative, told i don't have Cushing's! No retesting done at all. Finally got to see an endocrinologist in November 23, same test and 24 hour urine test done, both came back negative. The doctor was 100% certain i have Cushing's! Next appointment is in May 24. How long do I have to suffer?
I can relate 100%. I'm trying to get a diagnosis, but experiencing a serious cognative decline.
I'm so sorry
@Chronicallyyours_ thank you. It's so excruciatingly terrible. Thanks for sharing your experiences. They are very helpful.
Also if you're able to put out a video that is oriented towards friends and family. I think that would be helpful for people who are struggling with Cushing's. Often are symptoms and struggles are overlooked or are dismissed, in some cases patently denied. But there's also this incredible physical, mental, and cognitive turmoil that results from this condition and it is honestly the worst thing I have ever experienced and let me say that I have been through many traumatic situations have PTSD and have lived through some incredible nightmares. But nothing comes close and nobody understands. So just at the time where we need support, the people we know aren't there and don't understand how to help
Hi! @@misse7154 I wrote an article on this - cushingsdiseasenews.com/columns/how-help-friend-with-chronic-illness/
You are such a beautiful person inside and out! It takes brilliance, selflessness and bravery to share a personal story with strangers. Thank you thank you ! You have most likely have saved many lives 🥰🙏🏻👏🏻👏🏻❤
This comment is so sweet thank you <3 <3
@@Chronicallyyours_ 🤗🥰
Thank you for sharing.
The irony. As soon as one can develop self love the world will attack you until it goes away.
me: “ohh its just some *CATS* in a clan.”
Wth does that even mean? First time you've lived this long??
It’s a joke
i relate to this lmao
Facts bro!
What is this supposed to mean?
I love to brag about how quickly I can write stories that are around 1000 words or more each, but HATE telling ppl what they are about 😭
I'm actually writing one now but it got boring and i didnt really make it interesting so i am writing another one so far so good
Authors will NEVER tell what they are writing about and readers will NEVER tell you what their book is about parents and nosy peeps.