Thank you so much for these videos and your determination to finding a cure. I’ve suffered from visual snow since I was very young, so much so I thought it was normal till my teens. I searched for so long online hoping something would pop up, at least a name for the condition but that’s pretty much all I found no one knew what even caused it. All the doctors and neurologist I’d gone to said nothing was wrong and never cared enough to find out what was really going on. I’m just happy that we finally know what it is and what’s causing it.
Are you guys doing research or something? I’ve had this syndrome since I can remember, found out it wasn’t normal when I was 19 and found out that it actually was a condition when I was 21.. i would love to be apart of the initiative and learn more about what it is I have and would like to help any way possible.. it’s been getting so bad these past few months if their is no cure some information would nice..
Mine consists of blue field entoptic phenomenon or what it's called in any lightning condition and static in dim light conditions / darkness colours and blue or purple objects but mine is drug induced
Yeah I read about that to. Had VS tinnitus as long as I can remember started at age 6 I did notice something was wrong. Years passed without me noticing it. Once it came to drugs I developed depression and anxiety wich made me notice more. I also got new symptoms such as trailing afterimages seeing colours I think it's called phosphenes and sometimes I can get the feeling I am very high when im in complete darkness wich makes it worse for a short period of time wich might be related to HPPD and not VS.
Anton Sjödahl however hppd works, i do believe it acts similar to vs and its probably linked somehow, maybe its the same part of the brain or maybe its causing a hypersensitivity sensory perspection problem
Tons of thanks to all that are working on this, also thankyou Sierra!
Man it saddens me that this doesn't have much views, you guys explained it really well.
Thank you so much for these videos and your determination to finding a cure. I’ve suffered from visual snow since I was very young, so much so I thought it was normal till my teens. I searched for so long online hoping something would pop up, at least a name for the condition but that’s pretty much all I found no one knew what even caused it. All the doctors and neurologist I’d gone to said nothing was wrong and never cared enough to find out what was really going on. I’m just happy that we finally know what it is and what’s causing it.
Thank you Crystal for sharing and for your kind words.
Crystal Velasquez does your VS getting wrose with time?
furqan ahmed i feel like it’s gotten slightly worse over time but I’m not sure if it’s stress related
Crystal Velasquez okay are you in fb group of VS?
furqan ahmed yes
Are you guys doing research or something? I’ve had this syndrome since I can remember, found out it wasn’t normal when I was 19 and found out that it actually was a condition when I was 21.. i would love to be apart of the initiative and learn more about what it is I have and would like to help any way possible.. it’s been getting so bad these past few months if their is no cure some information would nice..
Its like seeing the air
Mine consists of blue field entoptic phenomenon or what it's called in any lightning condition and static in dim light conditions / darkness colours and blue or purple objects but mine is drug induced
Anton Sjödahl thats hppd. But i really believe they are pretty similar conditions anyway
Yes I do have some symptoms of HPPD. drugs made me notice it 24/7 while I've had weak ignorable VS all my life.
Anton Sjödahl Dam. I was researching into microdosing psychedelics to help mine lol. I suppose its a hit and miss, its helped some people
Yeah I read about that to. Had VS tinnitus as long as I can remember started at age 6 I did notice something was wrong. Years passed without me noticing it. Once it came to drugs I developed depression and anxiety wich made me notice more. I also got new symptoms such as trailing afterimages seeing colours I think it's called phosphenes and sometimes I can get the feeling I am very high when im in complete darkness wich makes it worse for a short period of time wich might be related to HPPD and not VS.
Anton Sjödahl however hppd works, i do believe it acts similar to vs and its probably linked somehow, maybe its the same part of the brain or maybe its causing a hypersensitivity sensory perspection problem
I have low central vision in only one eye... does anyone else experience this also?