I have chronic AVN on my left side of hip. The bone collapsed and I have to have full hip replacement. All from drinking ALOT of booze for years. I had never heard of alcohol destroying bones. I'm 45 and paying for it now! PLEASE stop and get help if you have a serious drinking problem.
Keep fighting the good fight. I was diagnosed with AVN in all of joints because of prednisone use. Lack of blood supply to bone-bone dies, joint collapses. we have a public support group on Facebook. OUCH osteonecrosis.
Our entire mission is education... Plain & Simple, so I'm really glad it helped you! Yes, our 5 year old has SCD she's the inspiration for our organization😀
Avriel Hillman1 second ago I am the Founder of an organization that helps patients battling AVN and also that fights to change the medical landscape with regenerative solutions and improved awareness and medical responsibility and prevention measures. Anyone with AVN who has been wronged in battling it, please go to the CURE AVN FOUNDATION on Facebook and reach out to me. I want to help. We are all in this together and can make a difference. Take a stand.
I just DX with hip. Seeing a specialist on Thursday. The pain is unreal. I also dealing with a pitched nerve in my back. And chemotherapy induced neuropathy to just hit the top 2.
Wow thanks for the information! I have SC and I appreciate you making and advocating for Sickle Cell. We survive through education! If I'm not mistaken your daughter (?) has sickle cell?...? I know she's a little fighter and I hope and pray she's doing well. :-)
I'm doing ok now. The AVN in my other joints seems to be at a halt. My left knee has collapsed but the pain is manageable right now. I do have my bad days where I can hardly walk, but to be stagnant is just a terrible way to live. Good luck everyone.
If your avn stage is under 1-2 stage or 3 too You can save your joints by Changing lifestyle Diet, Oil massage to body, Sunbath, Regular non load bearing exercise and specific yoga, meditation and increasing immunity Easy way to treat avn is 1. Veg Raw Diet plan 2. Ayurvedic medicine with massage 3. Traditional Chinese medicine with massage 4. Homeopathic medicine 5. Deep Magnetic Resonance Therapy ( DMRT ) 6. Shock wave therapy Cure of avn depends on Stage of avn , Age factor, immunity, body weight and thinking of patient.
There's absolutely no reversing AVN. It only gets worse. I know this because I tried every trick in the book for 4yrs and it may have slowed it down but I eventually ended up getting a total hip replacement because the pain became unbearable.
i am a 60 year old white male,never drank,never smoked nor have doneany illegal drugs.I was diagnosed easter week this year of having a dead femur bone due to poor blood supply to my femur boneon left leg.I can barely walk on it due to excruciating pain.My fear is I will lose my left leg.Can you suggest any info?Thank you for sharing this video 😅😅
They don't do any "treatment" for us here in Canada. I caught mine less than half a year in. It's get your hip replaced or take a fuckload of painkillers and deal with it until the pain is so bad you need to get your hip replaced lol. I wasted a lot of time looking for solutions as well as ventured to London ON recommended by my "doctor" and they basically said though shit live your life with painkillers. Fun stuff especially when doing physical labour.
I also have (almost my entire legs) it for almost a year now and because of some complications it's gotten worse. I have it because of a chemotherapy so I don't know if it just applies to me, but there is no real "treatment". There are some things that could potentially work (hyperbaric oxygen therapy, relief through microfracturing of the bone, physio therapy, transplantation of healthy bone, ...) but haven't been tried out often enough to confirm that they work... it can heal, depending on how bad it is and the age of the patient... Anyways, I hope you are better by now (: and sorry if my English sounds bad but I'm kind of a beginner (I learn it at school since 4 years) ... (:
I hate to break it to you, but its like that in the states too. And I know it sounds crazy, but you're going to have to stop the physical labor. I have t worked in 3 years and waiting on disability hearing.
I REALLY HOPE THAT SOMEONE SEE THIS. I DO HAVE A APPOINTMENT THURSDAY WITH MY orthopedic dr. he is a new one due to moving in just hope he understands AVN
Lakisha Clark. wow. so ppl this young is getting this? is it cause vaccines or what happened? bless her heart and these other girls im 53 and got diagnosed today with it... its very painful
My ortho tried to prolong joint replacement by giving me two different medications. One to build bone, one to slow my body down from carrying away dead bone. He said dead bone is just as strong as live bone. I had both hips replaced and my knee replaced after numerous failed ortho surgeries. The other joints have so far been in the same holding out. It may have worked, might not, I'm not sure. I was 22 when diagnosed I'm 34 now, I had to get replacements as 28 & 29. Good luck to your daughter!
Hi! Just want to help how to stop AVN, the pain associated with it and to prevent AVN affecting other joints. I have also AVN for 3 years and its not easy.I try many ways until I found a product and it helps me lot and now my AVN stops and it did'nt affects my other joints. My email add ( uachomedeco@outlook.com)
For improvement follow any of it 1. Raw diet plan 2. DMRT therapy 3. Chinese medicine 4. Ayurvedic medicine 5. Homeopathic medicine With help of Doctor / specialist and regular Yoga, pranayam and non load bearing exercise
I have it in both hips and have had it for over 10 years can't find a dr to replace them I had a core decompression but it didn't do nothing the doctor told me he found it I needed them replaced but said I was to young to have it done said I would have to have it done again in 20 years if I did so I was put in a wheelchair and it's gotten so bad I can't site or stand to long so I'm 51 and spend my life laying in my bed in pain ... it's now messed my knees up so bad the pain is unbelievable I have tried so many pain meds and nothing works for the pain I went off all my meds and just lay here waiting for the Good Lord above to take me home... I have tried to take my life by taking a bunch of pain meds witch did nothing ... I don't sleep well because the pain gets so bad... I couldn't be there for my kids growing up because I hurt so bad there 21 and 22 now and I have a grandson who's 1 that I wish I could do things with and can't ... like I tell my husbend I'm just a waste of space... and useless to all ... I was supposed to be the one taking care of my kids growing up not them taking care of me need to go now because I'm bawling my eyes out
Hi I am39 years old female from Philippines. I also suffer AVN. I dont like titanium in my hips. For 3 years my two hips are already affected and I'am almost lying in bed beacause of pain, cant no longer climb upstairs and lossing up hope. I search an other option because I dont like surgery, AVN dont stop even if you go on surgery and it will probably affects all the joints. But then I found a food supplement that is so very effective in this case and now I can able to climb upstairs and walk in a distance without pain. I tried many food supplements but none of them treats AVN until I found this product that helps me a lot. Its DNA repair and cell/tissue regeneration,it repairs joints and cartilage. Remember that AVN occurs because there is no blood supply in the bone thats why cells and tissue dies. Why go on surgery if there is natural treatment. I just want to help and share the option that I use in treating AVN. email add ( uachomedeco@outlook.com)
Cynthia Hess i totally understand im 36 and at the moment and got told 3 years ago that i had a severe case in bothe my hips and need 2 ful replacement wot sum people dont understand is the problems the hips but the pains come all over sumetimes my shins feel like there going to stap and the only thing that actaully chills me out is a few smokes all the tramodol s and other pain relief like u said just dont do much but make us feel even worse ive had sleepers all sorts as for anti depression tablets they dont work for sum 1 thats in pain and not being able to do much it is horrid muscle s seizing up all time i personally think there shud be more help part from just take this take that i end up like a zombie takin all these and it cant be good takin tablets day after day year after year so just remember ur not a waste of space at all ur just ill and need sum support ur not on ur own ur loved bye lots and lots ov people
Cynthia, we serve a great God who by his stripes we are healed. God will provide our strength. Call on him and he will give you the peace and healing that you need.
Hi I'm 33yrs old and just found out I have Avascular Necrosis I just had my second set of nerve block shots but I have it in my knee and it's I just had saphenous nerve block yesterday and I'm n so much pain
*I sympathize with you it is a very severe pain I know - stop Co co- damol and ask your GP for 15mg /hr patch which sticks on your skin that will ease the pain and you will start thinking straight patches are for 1 week and you strip off and put a fresh one for next 7 days
After 2 rotator cuff repairs n still in pain. Went to ER and had an XRay and now they are telling me that I have AVN of the shoulder. I am havng a Reverse Total Shoulder Replacement June 18th.
Was just diagnosed last month after 3 years of pain. Stage 3. Looking at having both hips replaced this year. I just thought I had strained a hip flexor. 🤦
I am 60 years old, was diagnosed with AVN in my knee joint.. So I am trying to learn as much as I can about AVN, So any help you can share with me would be very appreciated..
I've had AVN for many years, had my hip replaced 11 years ago at the age of 36, best thing i ever did. I can do everything that i did before with a few minor exceptions. Cynthia Hess why don't you try other Dr's, there are a lot of great Dr's that do a lot of new stuff. I have AVN in 6 joints and had had multiple surgeries with some working out better than others. Right now, it's my Talus that has gone through multiple surgeries with most recent being a failed ST fusion but I'm looking at talar replacement &/or revascularization with Dr Saad. Hope this can help someone, never accept no, find another Dr who will find another way to help!!!
What country are you from? I'm interested in where you are due to your doctors agreeing to preform anything but complete bone replacements. I'm from Canada BTW.
I'm 48 and I started noticing hip and back pain many years ago. I was on my way out the door for work and I slipped on some ice and came down on my side. Several days or weeks latter I started having a very noticeable limp. I went to the doctor and he told me I was in stage 3 almost at 4 of complete hip collapse which in fact happened. I ended up doing a total hip replacement on both sides and have peripheral nephropathy in my hands and feet. Both of my surgeries did not go well in my opinion as I still have pain in my left after having the surgery sep 17th 2016 and the last one just 3 days ago. He told me I would be up and walk around with hardly any pain. This latest operation was horrible because I am in excruciating pain and can barely walk walk even with a walker. I have gotten a lawyer and am pursuing possible disability. With this chronic AVN and other conditions it will be impossible for me to work ever again let alone almost bed ridden and racked with unbelievable pain the rest of my life.
I do have sickle cell anemia which caused AVN in both ankles and hips and you can't imagine the pain the I have. I'm 28 years and I'm taking Tramadol 100mg everyday to minimize the pain.
Hi! I am 39 years old, I suffered AVN for 3 years. If AVN dont stop it will affect all your joints. Pin reliever will not stop the pain. I just want to share my natural treatment of AVN and I thank God for finding this product. my email add (uachomedeco@outlook.com)
Joseph Chitheer I am 28, I have Sickle cell ss and I have had my right hip replaced. had a core depression 12 years ago in my left hip. now I have avn in my right shoulder. I am also taking tramadol 100mg to help with the pain. I am also doing physio the slow down the degeneration so I can delay the replacement op for as long as I can.
I also have toddler twins that I am mum to. they want to be carried and cuddled all day long. the pain is unbearable most of the time. I can't sleep most nights
I have AVN with Bone Infarcts in my legs. It's the worst pain ever. Is there a chat room for AVN? I struggle with my Dr being on the same pain page as me. Help.
For improvement follow any of it 1. Raw diet plan 2. DMRT therapy 3. Chinese medicine 4. Ayurvedic medicine 5. Homeopathic medicine With help of Doctor / specialist and regular Yoga, pranayam and non load bearing exercise
Holli you got this. Just keep in mind everyone with AVN gets through it. Keep you focus on where you want to be when this is over. At the end of the day you are going to be fine just know that and smile through the worst of it to show this disease, or whatever AVN is that you are stronger. Good luck. Smile often
Hi. I really hope you see this. I'm age 50, about 100 lbs overweight,& take epidurals in my lower back every 3 mos. I've been doing this for about 5 yrs now. I also take steroid shots in each hip about 3 times a year & have recently began needing them in both feet. I also have fibromyalgia pretty bad & suffer from pretty much every symptom listed for it. My back is a complete mess from a work injury 20+ yrs ago (thus the epidurals) Lately, I've had severe aching pain in both hips. Not really even my hips. More like where my entire leg attaches to my body. I've been reading & am wondering if mine could be caused by all of the steroids I've had or if it's just arthritis. Can't get in to see my Dr. till next month. Hoping you might have some insight. Thanks!
I have sickle cell SC At 17 I was terribly sick the whole year Finally when I was 18 and perfect I had avascular necrosis so sad on my left hip Now am 19 I heard stem cell can be used instead of bone replacement if its early?
What would cause the bones to not get enough oxygen?? And what are some supplements that can be taken to maybe strengthen or prevent further damage to the bones??
I'm 53 and just got diagnosed b several months ago and can't have hip surgery CAZ they scared my hip bone will crumble. This breaks my HEART seeing so many young ppl cause I hurt bad plus my L4 AND L5 fractured, how do we sign up for news letters? do you have link underneath. what did you mean what have you done to overcome it? I didn't think you could hon. Thank u and God bless each THTS suffering
Diagnosed with AVN over 12 years ago. Doctors think it was due to radioactive iodine treatments for Graves Disease. It really hurts like crazy. Almost drives me out of my mind. Hip has fractured twice simply from standing up. It is a horrible disease that shows zero mercy. I had holes drilled into my knee to try and increase the blood flow. It did not work and caused me to have to have another surgery to try to straighten out my knee after the drilling It was stuck and I could not straighten it out. Both surgeries failed..
Had a meniscus repair 5 years ago. When they did it the removed bone, did decompression, and inserted screws. For the last 5 weeks I've had severe hip knee and ankle pain. I can barley walk. I'm so freaked out that I'm going to need multiple surgeries or joint replacments. If avn is already present in my knee and I'm having hip and ankle pain, what's the chances it's there too?
as av just been diagnosed with avascular necrosis the hip specialist/surgeon has told me stright he doesnt want to operate on me anytime soon as theres fluid puss inflammation all present but the problem is a also have a abnormal hip structure a dont think hes seen anything like it or where to start he keeps tellin me maybe just maybe it will go away on its own through time
I have friebergs disease (a rare type of AVN) I had it in my right foot (the third metatarsal) and then I just got diagnosed with it in the left foot (the third metatarsal as well) I had surgery on my right foot, and I’m probably going to have surgery again if it progresses.
Abby Beardsley Same! exactly the same place. Any updates would be great. I was in a medical boot for 5 months no healing. Now I'm just having to get use to it.
I have it in both my shoulder joints talk about being painful, I need joint replacement on both sides it's that bad, the only thing that helps is narcotics I use to get the steroid injections into the joint but it did zero & I mean zero but like a fool I kept getting them until me & my doctor agreed it was worthless, my doctor said I have the shoulders of an 80yr old man, they even had a problem getting the needle into the joint because there was so little space. The was a very slow process it started over 15yrs ago it totally sucks.
Good evening Dr ... I am 35 year-old now and I have a vascular necrosis in my right ankle since I was 18 . Now i can't walk from the pain despite I tried different types of medical shoes as they advised me. My questiin Dr. Is there any solution or even any treatment to relief this pain?
Hello, I am not a professional, but I found some potential therapys. I wrote a comment under the top comment were I named some of them. I hope it helps you (:
I developed a tumor on my hip when I was 10,I was suppose to get a mri but before I could get it done I fell and I fractured my hip.i ended up developing avascular necrosis
I went through a living hell with Avascular Necrosis. My surgeon said he has never seen hips like mine. He said it was like picking up a hand full of sand from a beach and it would just fall in-between his fingers. Whatever that means. So here is my concern. Doctors had no idea how I got it so I have no idea but I am going on 2 years now and I and still have pain. Everyday pain I can live with. However I am so worried about what happens next. Is there some kind of chain reaction. Whatever caused my hips to die wouldn't it be business as usually for whatever caused it. So now the hips are gone where does it go next? Whatever it is. Here is a question people that had ANV 10 to 20 years ago is there a common medical condition that they had after AVN? What if I have a lot of fat in my blood? Before medicine I had 900 Triglycerides could that cause AVN and then attack other parts of my body? And is sugar a cause of my misery? Thank you Happy Holiday
I have it in my ankle from dexamethasone, I have to wear an ankle brace but it's not causing to much trouble (yet😂) Also can oxygen chambers help it? My grandfather said something about that
I have it in both hips they found it well over 10 years ago.. but wouldn't replace them the Dr said I was to young and would need them replaced again afyet 2 years , the doctor told me I had to wait for them to break completely off Before He'll replace them he put me in a wheelchair and told me I'll probably be in at the rest of my life I've gained 100 plus pounds now and I'm bedridden cuz I can't sit for long amounts cuz the pain gets so bad 52 years old and can enjoy life and I'm just getting more and more health problems because I can't get up and move around my knees are going like I said I've gained weight from not being mobile,, I tried to OD years ago because the pain gets so bad I have RSDS/fibromyalgia in my lower back my shoulders my neck I have neuropathy really bad in the bottom of my legs I have a hernia that spit fixed twice within five months apart and now I have to have it done again but I can't find a doctor that will do it around my area cuz I've gained weight.. I feel like my kids missed out on there childhood because they wanted to be with me all the time because they worried a lot about me... there 22 and 24 now and I have a grandson I can't enjoy much because I'm stuck in a bed ... it has me so depressed and I hate myself I hate life... I was told to go out of my state to a different Dr but I can't afford to do that... I think daily about taking my life...
I have a healing playlist. See if anything in there will help u! I’m sending u Lovee and light. Prayers to u. I understand. I was in the same boat. Now I can walk though it hurts. I did physical therapy and it really helped me a lot. Dr. Mandel and Dr Berg are great with free info on everything. Try some stuff. Be open minded and your situation can absolutely change. Check out vids on Ted talks with ppl who have chronic health issues and what they are doing about it. It helps release the sadness and give great info as well. It’s some really good ppl in the comment section that can related to u. Talk it out ! Keep fighting . Set goals one day at a time. I lost 40 pounds in 6-8 months by chasing my eating ! U can do it. Try dr sebi diet and my playlist HEALING as well
Do something that is least expected. I almost afraid to say this because I went through a very bad time and if someone told me this I would have never mind. Smile through the worst of it freaking smile. Have your family eat Sunday dinner in your bedroom. Good luck
I have been in pain and limping now and use a cane since the end of june 2016 after countless xrays and 2 mris my ortho doc says im not getting blood to my hip joint,first they tried therapy didnt work,5 different pain meds celebrex,mobic,diclofena,nothing helps with the pain,sometimes ibprofin helps a little.As soon as I stand up and put wieght on it its very painful.So my doc is sending me to a chief ortho dr for a secound opinion about having this decompression surgery.Im not so sure what to do ,I dont want to have this done and still be in pain ,does anyone know what the success rate is on this?Or would i be better getting a total hip replacement im 62 and i cant take this pain its been 4 months and my appointment is nov 8th with this other dr for 2nd opinion.This really sux .what is homoeopathic treatment?I was able to walk with no problem up until this crap happened. I already had 2 hip replacements on my left leg the first hip part they put in in 2007 and then had a recall 2010 and had that part taken out and replaced, lol so at least i thought i had a one good leg left meaning my right leg ,but now this is happening and my good leg is going bad on me with this circulation problem,I would appreaciate any advice or suggestions on what to do hip implant or decompression surgery Im in pennsylvania im not sure they even do this in my state,,Thank you wish i understood what that guy was saying in last part about his situation....thank y
I have chronic AVN on my left side of hip. The bone collapsed and I have to have full hip replacement. All from drinking ALOT of booze for years. I had never heard of alcohol destroying bones. I'm 45 and paying for it now! PLEASE stop and get help if you have a serious drinking problem.
What's considered drinking alot in your opinion?
Sorry! Good luck ! Good advice👌
At least you had a good time getting yours. Nobody has any idea how I got my shit.
@@KDBSPORTS_ENT doctors say several drinks daily for several years can lead to avn
@@LuchadorMasque Damn! I think my father had this condition. He just got a total hip replacement on his left side. He drinks a whole lot.
Keep fighting the good fight. I was diagnosed with AVN in all of joints because of prednisone use. Lack of blood supply to bone-bone dies, joint collapses. we have a public support group on Facebook. OUCH osteonecrosis.
Kristin Gee Same. FML. What a nice post cancer present..
Xç§avas avascu lair. 0
Vascular 88$¥*&$%^€*_"%#&*&5€&"'7?^$^(74ecf7g88fs528
I would like to join your grouo
@@PimpMatt0 yeah, same... Did it go away?
@@worm_pentacle Nope. It's permanent. My cancer went away though.
Our entire mission is education... Plain & Simple, so I'm really glad it helped you! Yes, our 5 year old has SCD she's the inspiration for our organization😀
www.rawfigs.com/video-play/q-a-166/?sid=61266
10:28 Avascular Necrosis
Avriel Hillman1 second ago
I am the Founder of an organization that helps patients battling AVN and also that fights to change the medical landscape with regenerative solutions and improved awareness and medical responsibility and prevention measures. Anyone with AVN who has been wronged in battling it, please go to the CURE AVN FOUNDATION on Facebook and reach out to me. I want to help. We are all in this together and can make a difference. Take a stand.
I just DX with hip. Seeing a specialist on Thursday. The pain is unreal. I also dealing with a pitched nerve in my back. And chemotherapy induced neuropathy to just hit the top 2.
Wow thanks for the information! I have SC and I appreciate you making and advocating for Sickle Cell. We survive through education! If I'm not mistaken your daughter (?) has sickle cell?...? I know she's a little fighter and I hope and pray she's doing well. :-)
I'm doing ok now. The AVN in my other joints seems to be at a halt. My left knee has collapsed but the pain is manageable right now. I do have my bad days where I can hardly walk, but to be stagnant is just a terrible way to live. Good luck everyone.
TY💜💜💜❤️❤️❤️! So glad I found your channel!
If your avn stage is under 1-2 stage or 3 too
You can save your joints by
Changing lifestyle
Diet, Oil massage to body, Sunbath, Regular non load bearing exercise and specific yoga, meditation and increasing immunity
Easy way to treat avn is
1. Veg Raw Diet plan
2. Ayurvedic medicine with massage
3. Traditional Chinese medicine with massage
4. Homeopathic medicine
5. Deep Magnetic Resonance Therapy ( DMRT )
6. Shock wave therapy
Cure of avn depends on
Stage of avn , Age factor, immunity, body weight and thinking of patient.
There's absolutely no reversing AVN. It only gets worse. I know this because I tried every trick in the book for 4yrs and it may have slowed it down but I eventually ended up getting a total hip replacement because the pain became unbearable.
I started having pain a few months ago and found out now I have Avascular Necrosis
Andre Shephard how are you doing ?
It fucking sux
i am a 60 year old white male,never drank,never smoked nor have doneany illegal drugs.I was diagnosed easter week this year of having a dead femur bone due to poor blood supply to my femur boneon left leg.I can barely walk on it due to excruciating pain.My fear is I will lose my left leg.Can you suggest any info?Thank you for sharing this video 😅😅
They don't do any "treatment" for us here in Canada. I caught mine less than half a year in. It's get your hip replaced or take a fuckload of painkillers and deal with it until the pain is so bad you need to get your hip replaced lol. I wasted a lot of time looking for solutions as well as ventured to London ON recommended by my "doctor" and they basically said though shit live your life with painkillers. Fun stuff especially when doing physical labour.
I also have (almost my entire legs) it for almost a year now and because of some complications it's gotten worse. I have it because of a chemotherapy so I don't know if it just applies to me, but there is no real "treatment". There are some things that could potentially work (hyperbaric oxygen therapy, relief through microfracturing of the bone, physio therapy, transplantation of healthy bone, ...) but haven't been tried out often enough to confirm that they work... it can heal, depending on how bad it is and the age of the patient... Anyways, I hope you are better by now (: and sorry if my English sounds bad but I'm kind of a beginner (I learn it at school since 4 years) ... (:
I hate to break it to you, but its like that in the states too.
And I know it sounds crazy, but you're going to have to stop the physical labor. I have t worked in 3 years and waiting on disability hearing.
Had my left hip replaced a year ago due to AVN. From steroid use to control my asthma since child hood I’m 40 yrs old!!!!
Yes I got AVN after having covid. I was on oxygen. I never had problems before. Both hips and both shoulders.
I REALLY HOPE THAT SOMEONE SEE THIS. I DO HAVE A APPOINTMENT THURSDAY WITH MY orthopedic dr. he is a new one due to moving in just hope he understands AVN
How did your appointment go?
I have AVN (hip) and im 15 but I have a lot of good support around me
flamingobandit my daughter is 14 and was just diagnosed today. Any updates?
Lakisha Clark. wow. so ppl this young is getting this? is it cause vaccines or what happened? bless her heart and these other girls im 53 and got diagnosed today with it... its very painful
I've had a big surgery over the winter (osteotomy) currently 16 almost 17 and this surgery will help my hip to live for about 10-20 more years
Thank you for the update! She had core decompression in Jan and just got off of her crutches last week. What a long process and a long road ahead.
I am 19 and I was diagnosed 3 months ago also AVN (on left hip) it is painful as heck and God bless, we can all get through this!!!
My ortho tried to prolong joint replacement by giving me two different medications. One to build bone, one to slow my body down from carrying away dead bone. He said dead bone is just as strong as live bone. I had both hips replaced and my knee replaced after numerous failed ortho surgeries. The other joints have so far been in the same holding out. It may have worked, might not, I'm not sure. I was 22 when diagnosed I'm 34 now, I had to get replacements as 28 & 29. Good luck to your daughter!
Kristin Gee Thanks for sharing the process for you. I hope it hold up!
How are you holding up Kristin? I have AVN in my right hip and was told i'd need a hip replacement at age 50. Seems like I need one way sooner.
Hi! Just want to help how to stop AVN, the pain associated with it and to prevent AVN affecting other joints. I have also AVN for 3 years and its not easy.I try many ways until I found a product and it helps me lot and now my AVN stops and it did'nt affects my other joints. My email add ( uachomedeco@outlook.com)
www.rawfigs.com/video-play/q-a-166/?sid=61266
10:28 Avascular Necrosis
For improvement follow any of it
1. Raw diet plan
2. DMRT therapy
3. Chinese medicine
4. Ayurvedic medicine
5. Homeopathic medicine
With help of Doctor / specialist and regular Yoga, pranayam and non load bearing exercise
I have it in both hips and have had it for over 10 years can't find a dr to replace them I had a core decompression but it didn't do nothing the doctor told me he found it I needed them replaced but said I was to young to have it done said I would have to have it done again in 20 years if I did so I was put in a wheelchair and it's gotten so bad I can't site or stand to long so I'm 51 and spend my life laying in my bed in pain ... it's now messed my knees up so bad the pain is unbelievable I have tried so many pain meds and nothing works for the pain I went off all my meds and just lay here waiting for the Good Lord above to take me home... I have tried to take my life by taking a bunch of pain meds witch did nothing ... I don't sleep well because the pain gets so bad... I couldn't be there for my kids growing up because I hurt so bad there 21 and 22 now and I have a grandson who's 1 that I wish I could do things with and can't ... like I tell my husbend I'm just a waste of space... and useless to all ... I was supposed to be the one taking care of my kids growing up not them taking care of me need to go now because I'm bawling my eyes out
I say 10 years but it's been longer 10 years of being in bed
Hi I am39 years old female from Philippines. I also suffer AVN. I dont like titanium in my hips. For 3 years my two hips are already affected and I'am almost lying in bed beacause of pain, cant no longer climb upstairs and lossing up hope. I search an other option because I dont like surgery, AVN dont stop even if you go on surgery and it will probably affects all the joints. But then I found a food supplement that is so very effective in this case and now I can able to climb upstairs and walk in a distance without pain. I tried many food supplements but none of them treats AVN until I found this product that helps me a lot. Its DNA repair and cell/tissue regeneration,it repairs joints and cartilage. Remember that AVN occurs because there is no blood supply in the bone thats why cells and tissue dies. Why go on surgery if there is natural treatment. I just want to help and share the option that I use in treating AVN. email add ( uachomedeco@outlook.com)
Cynthia Hess i totally understand im 36 and at the moment and got told 3 years ago that i had a severe case in bothe my hips and need 2 ful replacement wot sum people dont understand is the problems the hips but the pains come all over sumetimes my shins feel like there going to stap and the only thing that actaully chills me out is a few smokes all the tramodol s and other pain relief like u said just dont do much but make us feel even worse ive had sleepers all sorts as for anti depression tablets they dont work for sum 1 thats in pain and not being able to do much it is horrid muscle s seizing up all time i personally think there shud be more help part from just take this take that i end up like a zombie takin all these and it cant be good takin tablets day after day year after year so just remember ur not a waste of space at all ur just ill and need sum support ur not on ur own ur loved bye lots and lots ov people
Cynthia, we serve a great God who by his stripes we are healed. God will provide our strength. Call on him and he will give you the peace and healing that you need.
Hi I'm 33yrs old and just found out I have Avascular Necrosis I just had my second set of nerve block shots but I have it in my knee and it's I just had saphenous nerve block yesterday and I'm n so much pain
*I sympathize with you it is a very severe pain I know - stop Co co- damol and ask your GP for 15mg /hr patch which sticks on your skin that will ease the pain and you will start thinking straight patches are for 1 week and you strip off and put a fresh one for next 7 days
After 2 rotator cuff repairs n still in pain. Went to ER and had an XRay and now they are telling me that I have AVN of the shoulder. I am havng a Reverse Total Shoulder Replacement June 18th.
Was just diagnosed last month after 3 years of pain. Stage 3. Looking at having both hips replaced this year.
I just thought I had strained a hip flexor. 🤦
Hello michelle.
Am aslo suffering from AVN.
How are you now? How is your life after hip replacement?
Can pysiotherapy help if i have got capitellar avn after communited dislocated fracture of elbow humerus fracture?
I am 60 years old, was diagnosed with AVN in my knee joint.. So I am trying to learn
as much as I can about AVN, So any help you can share with me would be very appreciated..
www.rawfigs.com/video-play/q-a-166/?sid=61266
10:28 Avascular Necrosis
What about the jaw
I've had AVN for many years, had my hip replaced 11 years ago at the age of 36, best thing i ever did. I can do everything that i did before with a few minor exceptions. Cynthia Hess why don't you try other Dr's, there are a lot of great Dr's that do a lot of new stuff. I have AVN in 6 joints and had had multiple surgeries with some working out better than others. Right now, it's my Talus that has gone through multiple surgeries with most recent being a failed ST fusion but I'm looking at talar replacement &/or revascularization with Dr Saad. Hope this can help someone, never accept no, find another Dr who will find another way to help!!!
lisa miller Thank you! That makes me feel hopeful! I am 36 now and have been worried sick.
What country are you from? I'm interested in where you are due to your doctors agreeing to preform anything but complete bone replacements. I'm from Canada BTW.
Thank you for the reply. What city and state is Dr Saad's practice? Stay well.
I'm 48 and I started noticing hip and back pain many years ago. I was on my way out the door for work and I slipped on some ice and came down on my side. Several days or weeks latter I started having a very noticeable limp. I went to the doctor and he told me I was in stage 3 almost at 4 of complete hip collapse which in fact happened. I ended up doing a total hip replacement on both sides and have peripheral nephropathy in my hands and feet. Both of my surgeries did not go well in my opinion as I still have pain in my left after having the surgery sep 17th 2016 and the last one just 3 days ago. He told me I would be up and walk around with hardly any pain. This latest operation was horrible because I am in excruciating pain and can barely walk walk even with a walker. I have gotten a lawyer and am pursuing possible disability. With this chronic AVN and other conditions it will be impossible for me to work ever again let alone almost bed ridden and racked with unbelievable pain the rest of my life.
Man I'm really sorry! Good luck man and hope things get better for you!
Has any research been found on auto immune issues or deficiencies?Any findings on possible silica deficiencies?
I like to know that too?
Common with lupus
I do have sickle cell anemia which caused AVN in both ankles and hips and you can't imagine the pain the I have. I'm 28 years and I'm taking Tramadol 100mg everyday to minimize the pain.
Hi! I am 39 years old, I suffered AVN for 3 years. If AVN dont stop it will affect all your joints. Pin reliever will not stop the pain. I just want to share my natural treatment of AVN and I thank God for finding this product. my email add (uachomedeco@outlook.com)
Joseph Chitheer I am 28, I have Sickle cell ss and I have had my right hip replaced. had a core depression 12 years ago in my left hip. now I have avn in my right shoulder. I am also taking tramadol 100mg to help with the pain. I am also doing physio the slow down the degeneration so I can delay the replacement op for as long as I can.
I also have toddler twins that I am mum to. they want to be carried and cuddled all day long. the pain is unbearable most of the time. I can't sleep most nights
I had AVN when I was between the ages of 5 and 10 in my ankle. I am so grateful that I haven’t had it since.
You "had" AVN? What in the hell fixed it?
Sepulchral Miasma ikr I have it and it just doesn’t go away
I have AVN with Bone Infarcts in my legs. It's the worst pain ever. Is there a chat room for AVN? I struggle with my Dr being on the same pain page as me. Help.
For improvement follow any of it
1. Raw diet plan
2. DMRT therapy
3. Chinese medicine
4. Ayurvedic medicine
5. Homeopathic medicine
With help of Doctor / specialist and regular Yoga, pranayam and non load bearing exercise
I would love to talk with you. I have AVN in my right hip.
I have AVN in my knee but I just got diagnosed today and I'm 11
Holli Dolli05. at 11?
Holli you got this. Just keep in mind everyone with AVN gets through it. Keep you focus on where you want to be when this is over. At the end of the day you are going to be fine just know that and smile through the worst of it to show this disease, or whatever AVN is that you are stronger. Good luck. Smile often
Holli Donaghy I have AVN in both hips and it hurts like hell
Hi. I really hope you see this. I'm age 50, about 100 lbs overweight,& take epidurals in my lower back every 3 mos. I've been doing this for about 5 yrs now. I also take steroid shots in each hip about 3 times a year & have recently began needing them in both feet. I also have fibromyalgia pretty bad & suffer from pretty much every symptom listed for it. My back is a complete mess from a work injury 20+ yrs ago (thus the epidurals) Lately, I've had severe aching pain in both hips. Not really even my hips. More like where my entire leg attaches to my body. I've been reading & am wondering if mine could be caused by all of the steroids I've had or if it's just arthritis. Can't get in to see my Dr. till next month. Hoping you might have some insight. Thanks!
I have sickle cell SC
At 17 I was terribly sick the whole year
Finally when I was 18 and perfect I had avascular necrosis so sad on my left hip
Now am 19
I heard stem cell can be used instead of bone replacement if its early?
What would cause the bones to not get enough oxygen?? And what are some supplements that can be taken to maybe strengthen or prevent further damage to the bones??
I'm 53 and just got diagnosed b several months ago and can't have hip surgery CAZ they scared my hip bone will crumble. This breaks my HEART seeing so many young ppl cause I hurt bad plus my L4 AND L5 fractured, how do we sign up for news letters? do you have link underneath. what did you mean what have you done to overcome it? I didn't think you could hon. Thank u and God bless each THTS suffering
Diagnosed with AVN over 12 years ago. Doctors think it was due to radioactive iodine treatments for Graves Disease. It really hurts like crazy. Almost drives me out of my mind. Hip has fractured twice simply from standing up. It is a horrible disease that shows zero mercy. I had holes drilled into my knee to try and increase the blood flow. It did not work and caused me to have to have another surgery to try to straighten out my knee after the drilling It was stuck and I could not straighten it out. Both surgeries failed..
julie wagoner same here
Had a meniscus repair 5 years ago. When they did it the removed bone, did decompression, and inserted screws.
For the last 5 weeks I've had severe hip knee and ankle pain. I can barley walk. I'm so freaked out that I'm going to need multiple surgeries or joint replacments.
If avn is already present in my knee and I'm having hip and ankle pain, what's the chances it's there too?
as av just been diagnosed with avascular necrosis the hip specialist/surgeon has told me stright he doesnt want to operate on me anytime soon as theres fluid puss inflammation all present but the problem is a also have a abnormal hip structure a dont think hes seen anything like it or where to start he keeps tellin me maybe just maybe it will go away on its own through time
could this be confused with sceroisis of the joints
Can the dead bone come good with exercises
I have friebergs disease (a rare type of AVN) I had it in my right foot (the third metatarsal) and then I just got diagnosed with it in the left foot (the third metatarsal as well) I had surgery on my right foot, and I’m probably going to have surgery again if it progresses.
Abby Beardsley Same! exactly the same place. Any updates would be great. I was in a medical boot for 5 months no healing. Now I'm just having to get use to it.
I was just diagnosed this morning in my left knee. I'm panicking and having trouble coping with this.
Allie S Don’t worry
Same here
I have it in both my shoulder joints talk about being painful, I need joint replacement on both sides it's that bad, the only thing that helps is narcotics I use to get the steroid injections into the joint but it did zero & I mean zero but like a fool I kept getting them until me & my doctor agreed it was worthless, my doctor said I have the shoulders of an 80yr old man, they even had a problem getting the needle into the joint because there was so little space. The was a very slow process it started over 15yrs ago it totally sucks.
Good evening Dr ...
I am 35 year-old now and I have a vascular necrosis in my right ankle since I was 18 . Now i can't walk from the pain despite I tried different types of medical shoes as they advised me.
My questiin Dr. Is there any solution or even any treatment to relief this pain?
Hello, I am not a professional, but I found some potential therapys. I wrote a comment under the top comment were I named some of them. I hope it helps you (:
How long it take for a fractured piece of bone to die from lack of blood supply?
Sloppy Toppy months to years.
I'm 14 and I have Avascular necrosis right on my hip joint,I have to wait until I'm older to get it replaced now
yeah im 34 and they still didn't want to do it due to me being to young
How did you get the AVN, I had Sliped Capital Femoral Ephisis. When I was 11
Cause
I developed a tumor on my hip when I was 10,I was suppose to get a mri but before I could get it done I fell and I fractured my hip.i ended up developing avascular necrosis
My wussy please make kapalbhati and anulom vinilom pranayama for 15-15 minutes to grajualy 1.5-1.5 our daily. I am also pationt of avn of hip.
I’m 17 with Avn in both my hips
Linda Bruster my brother has it in his bones
I went through a living hell with Avascular Necrosis. My surgeon said he has never seen hips like mine. He said it was like picking up a hand full of sand from a beach and it would just fall in-between his fingers. Whatever that means. So here is my concern. Doctors had no idea how I got it so I have no idea but I am going on 2 years now and I and still have pain. Everyday pain I can live with. However I am so worried about what happens next. Is there some kind of chain reaction. Whatever caused my hips to die wouldn't it be business as usually for whatever caused it. So now the hips are gone where does it go next? Whatever it is. Here is a question people that had ANV 10 to 20 years ago is there a common medical condition that they had after AVN? What if I have a lot of fat in my blood? Before medicine I had 900 Triglycerides could that cause AVN and then attack other parts of my body? And is sugar a cause of my misery? Thank you Happy Holiday
N P what stage of AVN are you in? I know a doctor that may be able to save your joints.
@@TheOpinionSports could you tell me who would it be?
Jhunmar Hidalgo look up a Dr. Brannon out of Kansas City, KS
@@TheOpinionSports Thank you so much!
I have it in my ankle from dexamethasone, I have to wear an ankle brace but it's not causing to much trouble (yet😂)
Also can oxygen chambers help it? My grandfather said something about that
I had 2 ocd lesions in my shoulder and i had avascular necrosis i dont have sickle cell.
I have it in both hips they found it well over 10 years ago.. but wouldn't replace them the Dr said I was to young and would need them replaced again afyet 2 years , the doctor told me I had to wait for them to break completely off Before He'll replace them he put me in a wheelchair and told me I'll probably be in at the rest of my life I've gained 100 plus pounds now and I'm bedridden cuz I can't sit for long amounts cuz the pain gets so bad 52 years old and can enjoy life and I'm just getting more and more health problems because I can't get up and move around my knees are going like I said I've gained weight from not being mobile,, I tried to OD years ago because the pain gets so bad I have RSDS/fibromyalgia in my lower back my shoulders my neck I have neuropathy really bad in the bottom of my legs I have a hernia that spit fixed twice within five months apart and now I have to have it done again but I can't find a doctor that will do it around my area cuz I've gained weight.. I feel like my kids missed out on there childhood because they wanted to be with me all the time because they worried a lot about me... there 22 and 24 now and I have a grandson I can't enjoy much because I'm stuck in a bed ... it has me so depressed and I hate myself I hate life... I was told to go out of my state to a different Dr but I can't afford to do that... I think daily about taking my life...
I have asthma and now COPD and I got the AVN from all the steroids I was told
I have a healing playlist. See if anything in there will help u! I’m sending u Lovee and light. Prayers to u. I understand. I was in the same boat. Now I can walk though it hurts. I did physical therapy and it really helped me a lot. Dr. Mandel and Dr Berg are great with free info on everything. Try some stuff. Be open minded and your situation can absolutely change. Check out vids on Ted talks with ppl who have chronic health issues and what they are doing about it. It helps release the sadness and give great info as well. It’s some really good ppl in the comment section that can related to u. Talk it out ! Keep fighting . Set goals one day at a time. I lost 40 pounds in 6-8 months by chasing my eating ! U can do it. Try dr sebi diet and my playlist HEALING as well
Where do you live? What Country?
Do something that is least expected. I almost afraid to say this because I went through a very bad time and if someone told me this I would have never mind. Smile through the worst of it freaking smile. Have your family eat Sunday dinner in your bedroom. Good luck
Cynthia Hess i am so sorry, friend. Just wanted you to know I care. You don’t know me and I don’t know you, but you got a friend here... ❤️🙏🏻💪
I have been in pain and limping now and use a cane since the end of june
2016 after countless xrays and 2 mris my ortho doc says im not getting
blood to my hip joint,first they tried therapy didnt work,5 different
pain meds celebrex,mobic,diclofena,nothing helps with the pain,sometimes
ibprofin helps a little.As soon as I stand up and put wieght on it its
very painful.So my doc is sending me to a chief ortho dr for a secound
opinion about having this decompression surgery.Im not so sure what to
do ,I dont want to have this done and still be in pain ,does anyone know
what the success rate is on this?Or would i be better getting a total
hip replacement im 62 and i cant take this pain its been 4 months and my
appointment is nov 8th with this other dr for 2nd opinion.This really
sux .what is homoeopathic treatment?I was able to walk with no problem
up until this crap happened. I already had 2 hip replacements on my left
leg the first hip part they put in in 2007 and then had a recall 2010
and had that part taken out and replaced, lol so at least i thought i
had a one good leg left meaning my right leg ,but now this is happening
and my good leg is going bad on me with this circulation problem,I would
appreaciate any advice or suggestions on what to do hip implant or
decompression surgery Im in pennsylvania im not sure they even do this
in my state,,Thank you wish i understood what that guy was saying in
last part about his situation....thank y
hdbagger4266 i saw a naturopathic doctor and she gave me RUTA and SYPHYTUM ones for bones and ones for tendons.. there homeopathic medicine
VERY INTERESTING MY SON IS ABOUT TO HAVE OP ON BONE IN FOOT. THANK YOU
Hey I’m curious if any of y’all who have AVN have any autoimmune problems?
Kelsey West I don’t
I was recently diagnosed with AVN and I also have a autoimmune disease, which is multiple sclerosis.
Watched video
I have avn in both knees and ankles and I'm 16
Opal Sapphire I'm sorry to hear that :( I'm 23 and just got diagnosed with AVN in my left foot. I wish you well in your recovery
bri thank you x
Which cause?
is there any way to deal with the pain??
Tramadol ibuprofen tylenol kratom cannabis and stay off it