Think Ammonia, Save Lives. Phoebe's hyperammonaemia story.

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  • Опубліковано 27 жов 2024

КОМЕНТАРІ • 3

  • @mattstagg9881
    @mattstagg9881 7 місяців тому +1

    Such a rare and terrifying condition but you guys have done amazing!

  • @Sue-bx4co
    @Sue-bx4co 5 місяців тому

    My story is too long to tell all. Between my mother, myself, my sisters and my daughter, we have had 6 male babies die early on after birth from OTC. Of the females that are carriers, some don't seem to be affected and some do. You are very lucky that your daughter was diagnosed and treated. Have you found out if you are a carrier?

    • @metabolicsupportuk4342
      @metabolicsupportuk4342  13 днів тому +1

      Hi Sue, I'm really sorry to hear about the loss you and your family have faced. We are always here to listen, whatever the length of your story. Take care