Think Ammonia, Save Lives. Phoebe's hyperammonaemia story.

Поділитися
Вставка
  • Опубліковано 11 січ 2025

КОМЕНТАРІ • 4

  • @mattstagg9881
    @mattstagg9881 10 місяців тому +1

    Such a rare and terrifying condition but you guys have done amazing!

  • @Sue-bx4co
    @Sue-bx4co 7 місяців тому

    My story is too long to tell all. Between my mother, myself, my sisters and my daughter, we have had 6 male babies die early on after birth from OTC. Of the females that are carriers, some don't seem to be affected and some do. You are very lucky that your daughter was diagnosed and treated. Have you found out if you are a carrier?

    • @metabolicsupportuk4342
      @metabolicsupportuk4342  2 місяці тому +1

      Hi Sue, I'm really sorry to hear about the loss you and your family have faced. We are always here to listen, whatever the length of your story. Take care

  • @phoebecampbell-qd3yx
    @phoebecampbell-qd3yx 2 місяці тому

    thats me