I Think I Might Be Autistic... Now What?!
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- Опубліковано 29 вер 2024
- After living a pretty "normal" life, I was diagnosed with autism at 31 years of age. Pursuing the diagnosis was a big decision that came with many questions. I'm here to answer those questions for you and explore the overall challenges and benefits of the diagnostic process.
My brain does better off of social media, so you won't find me on Facebook or Instagram, but I'd love to have a convo in the comments. Let me know if you've started the diagnostic process and how it's going, or what's holding you back. I'm here to offer support!
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***EDIT: Since posting this video, I have learned more about the horrific origins of the term "aspergers" and have since stopped using this term as well as "aspie" which is a derivation of the word, and renamed my channel. In future videos I will make sure to address this issue when referencing any materials that use this term. If you are interested in learning more about the origins of this term, please be warned that you will be reading very upsetting information regarding TRIGGER WARNING child violence. I apologize for any upset or harm I may have caused by using these terms without knowing their origins.
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#autism #asd #autistic #autisticfemale #adhd #mentalhealth #autismdiagnosis #adultautism #adultdiagnosis #mentalhealthmatters #autismdx
My son was diagnosed at 2 and he's now 4. I went onto UA-cam for support and advice and I kept getting suggested videos on autism in adult and in females. I clicked and almost had a panic attack once I realized I'm on the spectrum too. I just thought I was overly sensitive, anxious, individual who suffered from depression. Throughout my life most doctors thought my behavior came from my childhood trauma and I began to consider myself a bit of a basket case. I actually just got my diagnosis at age 30 this month. Looking back on life through a different lens is interesting and a little painful at times. I'm still processing how I feel about it, but I'm glad to know I'm not alone. Thanks for sharing this video!
Wow what a journey! I'm so glad you shared it with me. It is so interesting to look back at your life through a different lens. All the feels - relief, comfort, understanding, pain, sadness, disbelief... it's a roller coaster. It's also interesting how I've seen that many times, seeing it in our kids first is what leads us on our own journeys of discovery. Best of luck to you! Please let me know if there are any additional resources I can share that might be helpful to you.
@@MomontheSpectrum Thank you I really appreciate it!
This is also what happened to me. It didn’t even click when I was researching for my son, only when I saw how it manifested in females! 🤯
@@torib5461 Exactly! My son is support level 3 and nonverbal so when he was diagnosed I never considered it for myself since we present so differently. I was initially baffled how no one in our family had been every diagnosed with autism and suddenly I have a child with it. Now a lot of my extended family members are starting to consider it for themselves and their parents and children. It's amazing how just one child could unlock knowledge for so many, thanks for sharing! :)
@@whitneymason406 Seeking health and wholeness is contagious!
I debated going for a diagnosis, but for me in my situation, I just couldn't justify it to myself. The wait list where I live is two years if I'm lucky, and to find a private practitioner I would have to drive almost five hours one way. Also, everything I would want for myself in accommodations are things I already do for myself.
So for now at least, I am content just in knowing based on my experiences researching autism and interacting with autistic people online. I may change my mind in the future
Thank you for making content like this, though. I grew up feeling quite alone in this world, and there are not words to express how enlightening it has been to find out that there are other people like me out there
I agree finding others with similar experiences has been life-changing for me. Sounds like you've thought through your options and are doing what is best for you at the moment! For me, once I started studying autism, I knew that I knew that I knew that I was autistic. The formal diagnosis was mostly for those close to me.
Me too
Ive taken other tests like the aspie quiz as well, I scored 172/200 for the aspie quiz.
loved this video I have just been referred for an autism diagnosis at 52! and knowing that I probably am makes my life so far make so much more sense
And me at 56, so I understand
Great video! Love watching them. Scored 31 on AQ test. My counselor thinks I might be autistic, wants me to be assessed. This has BLOWN my entire world! Since then I've been researching videos, articles day and night until I can get formally diagnosed. My wife thinks I'm autistic too which really shocked me after reading the DSM-5 criteria. A lot of things have made sense recently. A real eye opener to say the least. Btw, I followed the link for community but didn't understand what needed to be scheduled?
I don't understand why so many people are saying getting a professional diagnosis wouldn't matter to me getting a professional diagnosis would change my entire life make it so much better because if I could get my SSI disability I could live on my own and not have to depend on people that don't really care about me as I'm living with somebody now who verbally emotionally and mentally abuses me.
I pray you find the happiness in your life that you are looking for ... you do not deserve to be treated that way! 💚
Thank you, your videos are always helpful. Luckily, in Sweden where I live I don't pay for the evaluation. I'm on it now.
I took 2 tests so far and receive 26/30 and 42/50. Should I congratulate myself for having high scores? 👀😬
Everything suddenly makes sense. From being that weird kid in school, at home, at work and at any social event. Last large meeting was a company meeting at night with foods and drinks and all, I walked out only 20 minutes hanging around 😂 felt horrible, yet relieving. Sensory overstimulation is also a big problem. Very sensitive sleeper and truly hate spotlights, especially if they're directed towards me.
What sort of jobs are there for us to help adults with autism that are autism friendly? I looked into a state job once for an agency that runs a housing system for people with autism who have higher support needs. The entire application process was not ND friendly in the least. I work with kids on the spectrum as a nanny. But self employment as a nanny is not really a "steady" job. And taking care of kids with violent tendencies, while a passion of mine, is taking a toll on me physically. I would love to translate my experience and expertise into a position that my family will worry less about in terms of steady income, but also be helpful to others. I used to wonder why I related so much to these kids I've worked with, while not necessarily seeming to qualify as being on the spectrum myself. And I wondered what "high functioning" adults looked like in the real world, as I could never figure out how to identify one or learn about them. Now, with the newer guidelines in the DSM, it all makes sense and I can see that *I'M* what a high functioning autistic adult looks like. Now I understand why I have always related to these kids so well. But I know I can't do what I am doing forever. There's certainly no retirement in it. I would love to find other job opportunities to keep me feeling like I'm making a difference, while also finding something that I'm capable of sustaining long term. A typical office type job just wouldn't be sustainable for me.
Thanks for quiz suggestions ❤❤
Ive been ghosted by so called besties 3 x and it hurt me deeply.people can be so mean.
While not on the spectrum myself, I am interested in psychology, so I ended up in this corner of the internet. There is something in these comment sections I don't understand: a lot of people with late diagnoses seem to be oh so happy to finally get a label attached to them. Personally, I'd say that there is no such thing as "normal". We are all a little different, and we all have to spend our lives discovering ourselves and putting our personality into some context with our environment. When I read that people at 40, 50, sometimes 60 "finally" get diagnosed with some degree of autism, I don't understand what changes at this point. Does autism affect self-consciousness somehow? Is the condition associated with a weak ego? Or in other words: shouldn't you guys, after decades of having to live with yourself, have figured out how you tick and how to interact with the world in a somewhat bearable manner?
This is a serious question. I really don't get it, and would appreciate some insight into the world of autists and how that changes after being diagnosed.
I took the Autism Spectrum Quotient Test and got a 28 out of 50 or in other words it's between the 26-32 range showing signs of Asperger's Syndrome.
Of course I'd like to get a official diagnosis especially since I feel like I could have OCD as well from my hair pulling, trichotillomania. Of course also self diagnosed but I know that for sure.
I diagnosed myself..the " professionals" always put it down to everything but asd1.
Thank you for sharing. I think the frame of paying or investing in a diagnosis is somewhat misleading. You’re paying for a thorough assessment. Diagnosis is not necessarily the outcome but the data will be enlightening regardless of Dx.
Only a specialist in autism saw it in me. Regular therapist or dr? Nope. You have to research and find a good one with good reviews. And hate to say it …but you gotta open your or someone else’s wallet too. But do it….definitely do it. It does qualify for disability and you never know if you may need it.
Funny thing - I'm originally from Texas, and I live in Colorado now. Laura Sanders was the first option I looked up for diagnosis, and it was going to be $1800. I had no idea at the time it was that expensive, and had no clue why, so my immediate response was hell no! I looked around, and I'm doing mine via teleconference with GRASP (an international organization). I have no idea if they're particularly legit, but it's much more affordable.
How did the appointment go? I live in a provider desert and I'm struggling to find someone who can test for Autism in adult women.
Basically I think I’m autistic, many others also do, but I want to see what strangers on the internet say, so here are my symptoms:
1. Sensory issues (mainly sound and touch)
2. Planning conversations ahead of time
3. I always finish what I start
4. I can only pick up on extremely obvious social queues
5. Extremely socially awkward and anxious
6. I find eye contact weird and cannot hold it longer than a minute
7. When I take interest of something, it becomes my whole life
8. Changes in voice
9. (Not sure if this is an autism thing) I tend to not worry about other’s (who are not close to me) problems
Is that the A.C fan making that loud sound in the video?
It's a 2 year wait here to get tested as an adult. Anything online to get diagnosed you know about?
I can't follow this video because she's speaking too fast, and without pauses, for me to take in what she is saying.
how do you deal with your autism ?
What made you get checked at 31?im seeing more older women now saying they r austic in 2024??????
I am currently self-diagnosed at 39. I haven't gotten official because of the money and much gaslighting and uneducated professionals to/and about adult women. Also, I wouldn't know what to know what to do with an official diagnosis, there is not adult support for autism. The best thing for me I think is to educate my self and start to unpack and understand myself and how I think and act, and listen to others and how they handle, adapt, accommodate, and more for various situations.
Yes educating yourself and better understanding your patterns can change everything! For me it led to greater self compassion and acceptance.
My daughter has been diagnosed recently (although we knew it since she was 4). Surprisingly the specialist told me that after talking to me for 5 min I am definitely on the spectrum. I’m thinking about getting official diagnosis so that I can make piece with some of my “troubles” that I now realise are just my differences from the “normal “ world”. I did the Aspie quiz got “broader autism cluster 126/200. Does it mean I am highly likely autistic or something else?
So true about uneducated "professionals." I went to my GP today to try and begin the path to diagnosis, and this twerp (brand new doctor) looked at me and said, "That's something that should have been diagnosed 54 years ago." 😡I could not believe that I had to educate HIM on this. So needless to say, I will not be seeing him again.
Same here. 45 and found out from a counselling session I probably have ASD. but what is the point in getting an official diagnosis? no point. I already understand why I do things and the world isn't going to change just because I have apiece of paper. seems pointless.
@@forestsunset9617I agree!
I got diagnosed a month ago at 40. I am so glad I did. It took 2 years for me to get my appointment. I realized I was autistic after my daughter was diagnosed. Growing up I thought there was something wrong with me. Now i have something to explain it. I’m not broken. I also understand my daughter. We are so much alike. 😊.
So glad you were able to get some answers! I bet that waiting period was challenging. Thanks for sharing this! It made me smile.
What? There IS something wrong with you. Well, maybe not wrong, but different from the majority, and you knew it all the time. Why would you need a doctor to validate your perception?
@@Volkbrecht I wonder the same. What's the use. I've suffered my whole life for *something* that, if it's ASD, isn't accepted by society as "good enough" and for which no accommodations really exist anyway.... and which I might not even have... so in my opinion, if I can skip the thousands of dollars of diagnostic costs, public stigma, and months or years of work, while in the meantime use behavioral and pharmaceutical options that work for me... what's to gain from getting it on paper? It's like having to write a resume after you've already worked at the place for years.
Yes same!!! My two daughters just got diagnosed, then I did!! I'm 44!!! I'm ADHD too!!! Cheers for us awesome neurodivergents!
I recently was diagnosed at 57. It has been wonderful to finally understand the questions of why I am the way I am.
Diagnosed at 56. I wish I had been privy to this information decades ago, but people of our generation either didn't know about it, or it was shameful to talk about. Even today, my mother is ashamed of my diagnosis.
Is the why really that important? Once you know yourself and how to deal with your peculiarities, does the label really matter?
@@astralarchaeology5840 50something year old woman here. The problem was, the diagnostic criteria was *way* different. When we were little kids, “Autistic” meant that non-verbal kid rocking and stimming in the corner who you probably never met because they were institutionalized, or else the person who was mostly nonverbal and not independent, but was a genius at math or music, that maybe you saw on a TV show once.
My brother was diagnosed in the 80s with PDD-NOS, and at that time, the concept of autism being on a spectrum was very new among professionals, and definitely not a mainstream concept. My brother had significant impairments, but was verbal and even cuddly with our mom and me (he’s a lot younger than me).
Girls who didn’t fit in were “late bloomers” or “kind of an odd duck”. But if you weren’t disruptive, there was no perceived need for diagnoses 🤷🏻♀️.
@@Volkbrechtmy life ‘hacks’ don’t work anymore, and that’s why I needed to find out what was wrong/happening. Everything turned upside down at 45. At 56 I’m just now starting to understand.
As the video stated, you don’t have to find out. If you r good, then no need, but if you r struggling and would like possible answers it may be a direction to look.
I’m struggling.
I’m 59 and have just started down this path. I’ve always struggled and “knew” that I was most likely autistic, but as I’ve gotten older it’s been harder to keep the mask on. Just not enough “spoons” to keep up the facade. I’ve done every self diagnostic test that I could find out there multiple times just to be sure. The “Aspie Quiz” is my favorite as it is the most in depth. It scored “144 of 200. 99% probability of being atypical (autistic/neurodiverse)”. Do. I have an official diagnosis? No. Would it benefit me to have one? Probably not, other than confirmation. After the quizzes, observing autistic adults on UA-cam and in life, reading experiences on various autistic forums, I’m confident that yes, I am autistic. Having a better understanding of why I’ve always been “different”, or weird” has helped tremendously. Finding out life hacks to deal with the problems has been a godsend. I probably won’t completely unmask myself, but unmasking certain parts of my life, and not holding so tightly to the mask in others is giving me the use of more of my “spoons”. Burnouts and meltdowns are definitely not going to go away, but are fewer and further between. Hopefully this helps someone.
I haven't gotten an autism diagnosis but I really need to.
What's holding me back:
Feeling overwhelmed/executive function overload
Not knowing a provider
Cost. Though, shouldn't health insurance pay for that?
Yeah. I guess that's it.
My life is turning upside down without a diagnosis, so that’s what’s really making me want something official so I can finally properly find a way to cope.
I’ve been relating to you and Autism. I now understand everything that I struggled as a child and adult. Does anyone else who is undiagnosed feel like they have been overcompensating to try and be what is wanted in society and that leaves you drained and not wanting to do anything for awhile. This has been my life for as long as I can remember. It’s like a breath of fresh air to now know the “WHYs” I have struggled for so long. Thank again for sharing your truth
Shalom
I wasn’t even half way through the Aspie Quiz before I started to realize a lot of these traits are familiar. I’m turning 49 tomorrow and I keep fluctuating between relief and mourning for all of the unnecessary suffering. The result was 100% likely I am on the spectrum. My graph was very lopsided. I was surprised and, naturally, started to cry. I can best describe it as the moment I understood what a person feels when a cochlear implant is turned on for the first time. I’m overwhelmed, relieved, and things are finally clear. Mostly I feel relief, but I definitely want to get a professional diagnosis.
I'm at 93%, and everyone in my family thinks all the stuff we do is just normal, like being really introverted, and anxious, and not being able to relax because someone on the other side of the house is listening to an audio book, is normal. And I don't think even if I had a diagnosis, that there will be resources to help where I am. But it is a relief.
@@s.f.nightingale1735 I feel the same way about a diagnosis. The struggles I've had with socializing have persisted my entire life, from my earliest memories. I'm 35 now so I'm pretty sure there's not much out there that's going to change how my brain responds in these settings. But yeah, it would explain a LOT that's for sure.
Asperger's hasn't been a diagnosis for ten years...
@@thelastmotelfeel free to take that up with the folks who run the aspie quiz website.
I just did the Aspie Quiz and my result was 99% lol And I had the same experience of familiarity. Have been going down the rabbit hole of research this past week and finally feeling the relief of getting some answers (there's been a lot of tears). I even spoke with my former therapist yesterday, I had asked her if she ever suspected that I might be autistic, and her answer was "yes, I definitely think you are" lol On the fence about pursuing an official diagnosis. My brain wants the validation of it being "official" but my wallet doesn't :p So glad you're feeling relief too, and can also relate to the feeling of mourning.
I'm pretty sure I'm on the spectrum but haven't got an official diagnosis yet still working on it. I will definitely be looking at adding ASD in adults to my focus as a future psychologist for sure.
Awesome! We need more representation.
Change is extremely traumatic and yet I’m constantly seeking it and feel ok/alive when some degree of it is always happening. Very strange. I dread trips, but live for them. I love people, but get drained by worrying about what I say, and how much I say, etc. it’s like Intro/extrovert, HSP and Novelty seeker. The biggest challenge is deciding how much to be honest , how much help to ask for without taxing someone but also not avoiding communication because you’re worried about what happens. Not a diagnosed Aspie, but have to say that …. Anyone have experience with this kind of neurotype?
YES! I read this and it completely resonated. It's this constant tension--I'm happiest alone but get lonely, love adventures but dread them (how will I eat the same breakfast I've been eating for the last 25 years!), and getting taxed by people, but wanting friends.
Definitely relate - thank you for sharing, I was just wondering what’s the point in knowing / having a diagnosis, but it’s nice to have validation and know I’m not alone (already feel those, and more so after reading your comment)
Have you watched any videos on autism and ADHD. I had been trying to describe what you say to my husband and the next video I watched (not by “mum”) was about autism and ADHD. I just burst into tears watching it as I felt she was describing me.
Btw I am a 73 year old self diagnosed but have been in the “mental health system” for most of my life getting diagnosed with depression, a variety of different anxieties, OCD etc etc. it finally came together when I started watching videos to try to understand my grandchildren better. I have several who are on the spectrum.
I just got diagnosed with ASD at 32. I feel so free and more like myself. I’m so happy I did this. Thanks for your beautiful message and video, this is such a positive video and I hope others discover their true selves too ☺️
I'm 55, agoraphobic and I live off cannabis. I just scored 99% probability of being atypical (autistic/neurodiverse). I've suspected for years that I might be.
I love your authenticity and how you make it safe to be real. I'm not autistic. I'm an 80-year old HSP - Highly Sensitive Person, diagnosed with anxiety disorders, depression and bi-polar. Yet SO MUCH OF WHAT YOU DESCRIBE IS TOTALLY applicable - like difficulties with socializing, the need for routines and predictability to help us feel SAFE, unusual sensitivity to noise/ food and fabrics! I wish there were an "acceptable" diagnoses like Aspie or Autistic that would help other HSPs develop self-compassion. Too many HSPs are put on psych meds which destroy their ability to function, to feel pleasure and to build self-respect. I teach people how to MANAGE their emotions instead of trying to suppress them, as many therapists do.
According to the Aspie Quiz I’m somewhere on the spectrum so I feel like an official diagnosis would be helpful for me I’ve been suspecting that I might have either ADHD, or be somewhere on the spectrum. Thank you for the information!
You’re welcome! Thanks for watching and sharing your experience here.
Those tests mean nothing friend. You cant look at yourself objectively.
Recently took the Autism Quotient Test: scored 46 out of 50. Significant traits for Autism.
Explains so much that's occurred in my life and why I struggle so much to do "simple," "normal," "average" everyday things.
Absolutely!
Thank you for validating self diagnoses!
I just took the test and scored 33. It said scores between 33 and 50 indicate significant autistic traits. I’m not real sure how to feel about that… I have felt like I am different all my life, but I don’t know what to do with a confirmation that it might be true. All I want is to be able to fit in and not draw attention to myself as “different”
I did the same one and got 42 out of 50.
You can wait until awetistic burnout, find yourself unable to mask and then get a diagnosis, presuming you survive … this is a hard path (figured it out at 47)
I feel close to this and not sure if it’s giving less Fs in my maturity, or becoming more of myself (both?) - but have been close to divorce this year in part because I’m having such a hard time being a parent to someone who is very different from me, and my husband constantly sides with our daughter - saying she’s just being a kid and I’m the adult, however, I need boundaries - I think everyone does and this is normal, but it’s certainly not the first time I’ve felt broken or different.
@@fractaldonut-embodythrough4169 I feel you, my partner and I are in couples therapy, but I'm not sure how it's going. M
EXACTLY what I'm going through at 55.
I just took the aspie quiz and thankfully it agrees with my self diagnosis of being autistic ☺️.
Asperger's hasn't been a diagnosis for 10 years
It's been a difficult week for me mentally. I've had adhd for a while, but following an examination from an NP, she concluded that I was on the spectrum, coupled with evidence of childhood documents from school and a remembrance of things I've experienced as a youngster. In addition, my son has autism and my daughter has adhd. I knew I was different as a child, but not in this way.
I was diagnosed at 33. For me it was definitely worth it. I gained a lot of clarity about myself. I decided to start a channel as well 😊 I love supporting other neuro divergent creators! I subscribed.
Thanks so much! You have so many great videos on your channel. How long have you had your channel?
@@MomontheSpectrum hi I just started my channel 6 weeks ago 😊
@@BriBooth wow!! that's great! so happy to be connected to you.
I would like to help others. I studied psychology because I felt different and I never felt like I quite fit in no matter how much I tried. I felt alone, but I just knew I couldn't be the only one, so I wanted to help others that might be going through life similar to me.
I haven't been able to establish a way of life that works for me. I've tried, and I've been met with constant resistance from various things and people. I'm still trying.
I have a very important question. I would love to self diagnose myself only. But is it possible to get a diagnosis officially when all you have is Medicaid, no job, no money at 29? Or even get disability for a mental health diagnosis for autism, other mental health condition or anxiety etc? Because i feel disabled daily and can't find a work from home job to save my life due to requirements some jobs have. I need so much help
Anyone else here because you just know you're on the spectrum and looking for validation and support? Hi. My name is Jay, I'm 99 percent sure I'm in the club. I struggle all day everyday. I'm seeking help soon because I'm 36 and can't handle daily life very well anymore and I know something is up. Anyone else feel this way also? I can't be the only o e struggling to cope with everyday stress at work or home
Hi jay im so glad you’re here. Id love to connect with you in an autistic community group if you’re interested. MomOnTheSpectrum.life/community
Here to say autism doesn’t mean your disabled in any way . We just think different if u ask me it’s a super power from god honestly
It really isn't a super power. People seem to forget that the average ACTUAL person with ASD is a violent non-verbal rage monster. The whole "quirky nerdy" version is rare ... well, rare amongst those actually formally diagnosed, but common amongst the liars
I think a better way of thinking is to say “yes, I am disabled, and I have deficits in some areas where other people are sufficient. Does that mean I can’t live a happy life just like anyone else? No.•
It's not a super power, just another lense that photographs the human existence. Let's not forget that autism at its worst is doomed to a very unfortunate and genuinely confusing end for those who have it. My boss has a son my age. We even share a name and diagnosis. We both rely on my boss for our next week of survival, but I'm able to stay living without him. I have no ill thoughts towards his son, it's just that it's a rather dark mirror.
@@thelastmotel not everyone with ASD has high support needs..
Alright, I have a little bone to pick with the Aspie Quiz. For Neurotypical relationships and attachment traits, it says that low scores are related to intimacy problems. I got a 0/10 because I'm aro/ace and romance repulsed. As far as I can tell, that's something different from intimacy problems- I enjoy being physically close with people, I just don't like romance and didn't since I was very young. So either I'm just misunderstanding what "intimacy problems" mean, or the Aspie quiz should take into account being aro/ace.
This and every autistic video is confirmation that i will continue to suffer. There is nothing for me wx ept to try to aquire stimulants from a friend to try to be NT enough to do all the things Im supposed to do and still burn out and never have a dr believe me if I can even get myself to the dr anymore. Hopeless. I dont need to know more about myself. I get it. I need help.
I think I have autism and it’s becoming more um obvious the older I’ve gotten and I am struggling
The last few days ive been suspecting to have Autism. Before that i thought i had adhd but the autism Symptoms just fit better. I never could sit still and thought i was shy bcs of social pressure. After some research i actually saw patterns. I am self diagnosed but that explains a lot i guess.
Thank you for all that you do. I’m 37, I have my initial meeting with my GP tomorrow. It will determine whether I receive an ASD referral or not. I am currently labelled as depressed, but when my counsellor at uni said that she thinks I might be autistic I looked up the symptoms and it seemed to explain a lot about my childhood and things at work that made me feel uncomfortable. I’m so nervous, I hope I get the referral so that I can understand myself better.
Sending good vibes! You’ve got this.
@@MomontheSpectrum The doctor called in sick. I have to wait until next week. I had mentally prepared for what I was supposed to be doing today. Last minute changes really stress me out.
Did I miss something, or did this video not address the title question, "Is self diagnosis valid?"?
At 69, I recently realized that there ae tons of reasons for me to think I might be autistic. The only reason it took me so long to come to this realization, is because I wasn't aware of the spectrum. I don't think anyone was aware of it when I was young, as far as I know, people just assumed that there was only one level of autism...the most severe level. Since I was never a person with high support needs, it just didn't even occur to me. As soon as I made the realization, I started looking for a way to get an assessment and an official diagnosis. It would just explain so much. I don't consider myself self-diagnosed, because I don't feel qualified to diagnose myself, and for me that just wouldn't be good enough. I say things like "I have many reasons to think I might be autistic ". Now, I have found a doctor, and it looks like I am going to get an assessment very soon. My insurance will pay for it.
I’m 63 & wondering🤷🏼♀️
so I'm 13 and think that I may be autistic. My parents are super supportive people, but I haven't asked them or told them about it at all. Does anyone have any idea on how i should ask/tell my parents about my suspicion? This would really help☺
Just ask them straight up.
One of the things that scare me about being diagnosed as autistic is that people could downplay my opinions on topics because my brain is "wrong". I'm very opinionated, and very argumentative, and I don't want my arguments to get discredited with a: of course you think that, you are autistic.
I am from the Netherlands and I am 38 in June 39. I have 22q11. I was diagnosed when I was 15. Now I have had many struggles in my life. And I stopped working last year. I ended up on sick leave and couldn't get out. I now receive benefits through various agencies. But because I'm sick and not because I don't want to work. I can't handle it right now. Many (specialists) have already used the word autism in my mouth. But I dare not look into it. For me, the dianosis 22q11 was already very difficult. I don't want another label, but on the other hand maybe it also gives peace. I just don't know what to do. At the moment I am going through a difficult time. Burnout and depression. So I don't know if it's the best time to do it and if I'm doing it at all.
I was diagnosed last week at 35. Wish I would have know earlier. This changed everything in a good way.
$1500 bucks out of pocket and it took me months to actually find someone. Best decision of my life though. Oh course $1500 is a lot, but having the protection of the American Disability Act is worth its weight in gold.
@Custom BatchServices Thank you so much for the info. I will be trying that next. Wish us luck
Getting a diagnosis doesn't mean you have to change your life. If anything it makes sense of so many frustrating aspects you've wondered about a long time.
yes! 🙌
I am 64... what feels like suddenly autistic.... always been of course...:-)))
Probably not getting a diagnosis. What help I can get at this point I will have to give myself...already started going essier on me. Been gaslighted enough by the medical profession to deeply hate almost all of them.
But I am sharing my self- diagnosis with my close family. It does run in families.
All the autism tests I’ve taken said I was likely autistic, but I’m not sure if it’s just my ADHD. For some reason I can’t bring myself to ask my doctor
about it. I’m just now trying meds for ADHD
Know thyself. -ancient wisdom
I'm 39 and my friend who is also autistic. She brought it up to me and she had me take the quizzes and I always get on the markers.
I got a 182
@@jennifernybergpixie7958 Hopefully the quizzes have given some insight about how to understand yourself a little better!
They have thank you. It's help me realize so much about myself.
There is a 2yr waiting list where I am in the UK, so I am glad you mentioned looking at this as self investment, it is a big bit of dough, and I am like you, I don't spend easily, especially on myself. Thanks for this post. X
Hi Janine! You're welcome. Thanks for taking the time to comment. I sat with these online assessments for about 9 months before seeking an official diagnosis. For me, there was plenty to process and it brought a lot of clarity to my life even without an official diagnosis. Sending you warm wishes for clarity and patience, acceptance of where you are now and the ability to acknowledge the self nourishment available to you in this moment. If you'd like any reading suggestions, I have a video that might point you in the right direction!
I just talked with a professional that quoted me $3000 for a full neuropyschological assessment. That's a chunk of change.
My family was extremely abusive and neglectful. Lots of drugs/alcohol/domestic type situations. At almost 6 my sister was born. I raised her as best I could in this environment until I couldn’t take it anymore and worked towards moving out at 14ish. I truly believed my brain just didn’t form properly because CPTSD makes sense. It still does. However, my daughter has been speaking on how she believes she may be autistic. I started researching because I love her and have no faith in the medical system. I was very surprised to see so much of this in myself. I have gotten to the point in my life, as a nearly 43 year old adult, that I have no idea how to continue making life work. I had to put my soul dog down about a year ago, my daughter moved out with her boyfriend, and I seemingly made one of the most horrible decisions of life in moving closer to some of the most unhealthy family I have. Some of my childhood was spent here and all I remember was severe bullying (physical and mental). I’ve become a target at my new job and am being bullied again. I’m trying to get a new job and figure it’s probably best I live in a vehicle moving forward to decrease my dependence on money to give myself the time and energy to find a way to live life. I’ve never actually lived I was a caregiver my whole life until now. The first time I was hospitalized for trying to move past this life was 12. First thoughts about it…around 5. My “mother” (I’ve never considered her one she just wanted child support and benefits) would bring me to doctors and have me medicated. When she was asked to speak with the doctor and told I was not the soul cause of her problems in life she’d bring me to a new doctor who’d medicate me. Needless to say I feel completely done with medical care which sucks because I’m slowly (I hope) losing my body now. I’m finding this too exhausting to continue but I don’t want to erase it because your videos are starting to make me feel like maybe I am not alone. I think they will be helpful in trying to find a healthy way to live if I can become a caregiver for myself. Thank you truly
🙏💚🙏
I discovered i have autism a few weeks ago and have recently been referred by my gp to join the waiting list in the uk for an assessment. Im really worried about the length of the wait and am terrified of the prospect that, after all these years of struggling and then finding out why, what if they dont give me a diagnosis? Ive also found getting support from other people very hard. My dad has been very cold about it and told everyone has problems and i should just cope with it and when i told my boss im being referred to a specialist for an assessment she just laughed at me and told me im not autistic
Goodness I'm so sorry to hear this. You deserve to be seen and understood, and other people have no idea what it's like to live inside of your brain with your own unique experiences. You are not alone, and you are worth the time and effort it takes to seek the support you deserve. Hang in there and know that you have inner strength that will carry you through!
@@MomontheSpectrum thank you. I have found my discovery very bitter sweet as on one hand i finally have answers as to why i have always felt different and as though there was something wrong with me and it has given me this huge sense of self awareness but on the other hand i’ve found so many people are ignorant about what autism is
I have very similar feelings! If you want to hear more of my thoughts here, my video “from grief to gratitude” may be helpful.
@@MomontheSpectrum yes that is a very good and informative video. Since i figured out i was autistic i have spent quite a lot of time binge watching videos by yourself and many other autistic UA-camrs because at first i was researching what autism is and now i find myself doing it because i find it soothing hearing people talk about things i thought nobody else could relate to and finally finding out there are other people out there who understand how i have always felt.
So glad to hear they’ve been helpful to you. Always happy to hear suggestions for future videos! And if you didn’t already see, I’m doing a live session tomorrow at 2:00pm CST
170/200 now what?
I know I'm struggling, how do I get help?
I'm currently self UNdiagnosing myself. I just dont see myself on this spectrum anymore since theres so many people on it now. I think all these diagnoses lately are a result of social distancing and a world that is in disorder. Sensitive humans struggle in a world like this... ...
What do you make of those that have struggled their entire lives, long before the social distancing happened?
@@heatherwilliams3748 Those probably fall under the spectrum but I can't tell. Don't get me wrong I'm not undiagnosing everyone ;D I just noticed that there's so many videos of people self diagnosing themselves lately and wondered why.
I just see a difference and cannot understand how a handicap that holds me back so so much in my life cannot be noticed till your mid 50s even with whatever financial status or medical care you had to get the diagnosis or not. I know many people who lived in institutions and have been diagnosed very early and will never have a fully independent life because they can't and they can't mask. Then it's hard to understand when someone says I think I have that too! Hope you understand what I mean ...
And the autism spectrum got quite wide but we are all individuals : when you know one person with autism you don't know all of them! This is what I learned :D
@@cherryfieldsinc I have the same qualms with it as well as I too know someone, my nephew, that's autistic, nonverbal, totally dependent, no mask, etc. That coupled with the rise in self diagnosis, it's peculiar. It's hard to come to terms with the possibility that my social anxiety and other things could be due to autism. I'm 35 so I doubt an official diagnosis would benefit me. Anyways, I think I understand where you're comment is coming from, thank you!
I took the aspie quiz and I got 133 out of 200, 97% probability of being autistic/neurodiverse 😊
I have been wondering about it for a while and was recently diagnosed with ADHD. I’ve known I had OCD for a while. Took a couple of online self diagnoses. I even looked up which ones might be the most valid. They both suggest that there’s a high probability that I am autistic. After my brain exploded I’ve been reading about it and looking it up and I have already sent messages to like four friends saying am I autistic? Could this be real? And now I realize that is over sharing way too quickly and is a sign of autism.
153/200 for my Aspie quiz score, with 100% probability of being neurodiverse...........
I'm STILL self-diagnosed because my father assumes everything I've explained to him are all regular characteristics of a child and that it's 'normal' in my generation. Dawg.. 🐺
I’m so sure I’m AuDHD, I’ve been diagnosed with ADHD since 12, but I’m so confident that’s not all, especially because my twin brother is AuDHD…. Like hello… I’m so grateful for people bringing more awareness to female based experiences with autism, it’s so overlooked
I truly believe I am on the spectrum somehow. I have so many of the traits. I was diagnosed with Tourettes when I was in my early 20s after living with Tics and vocal releases since childhood. My parents never addressed my tics and I was made fun of and learned over time to hide them. I am extremely sensitive to so many things. I have always felt on the fence about my Tourettes Diagnosis because it always felt "more" than that. I have not been diagnosed with Autism and am just starting my journey in figuring it out. Thank you for posting this! I joined your page too
Yes, tourettes can be quite common alongside autism. I am glad you are here and hope you find some helpful resources to support you on your journey!
@@MomontheSpectrumcan I ask you a question? Tinnitus when the environment is quit and when the sound is 60-70 DB feel load is that a sensory issues ?
Hi. I'm 45 years old. I took 2 different tests to see if I'm on the spectrum. The first I scored 20 out of 30 of having autistic traits. The second test 30 out of 40 of having autistic traits.
But, I was diagnosed with ADHD 1.5 years ago. I got no tools other than here is some Adderall. Not even an explanation and this is a Psychiatrist!!! This is the good ol' American doctors. What a frigging joke!
I tried to tell him today, but he blew me off!!! I can't believe you have to pay for a diagnosis. It explains my entire life. Yes, trauma was a huge part of my childhood. I feel like I found my people.
I have never been able to hold down a job in my life. I'm frustrated, angry, alone, and feel frozen. 😮
I really appreciate your perspective here! Thank you for sharing. I guess I'd like to just mention getting a formal diagnosis for those that have trauma or complex trauma can take a much longer time than without. Unfortunately
I hope you see this Taylor I am 60 I will be getting my assessment in December If I can come up with the money I am struggling to keep my head above water. I am going with the place in New Mexico that I found on the BARG It seems to be the best for me personally. I need to write about why I think I am autistic and I am having such a difficult time putting my experience on paper. Any suggestions for me
Hi. I live in Texas. I am self diagnosed autistic, I scored 100% on my aspie test. I'm going to the doctor this month for a check up to make sure the weird painful almost passing out (I go limp but can see and hear everything) thing is not a vitamin deficiency. But I'm going to try to get an autistic and adhd diagnosis but I'm scared. Because when I was about 3 years old I remember a doctor at helen farabee threatening my Mom to lock me up in a padded room. And I was ripped away from my parents not too long after that by CPS. So I'm scared that if I go get an autistic and adhd diagnosis that they'll try to take my kid away. My husband helps me with everything, he is very understanding.
Also what are the restrictions that come with an autistic and adhd diagnosis? Am I not allowed to do curtain things anymore?
So i fiund out there is a really high chance im autistic and now not knowing really really fucks with me if i do get diagnosed then i can be ah cool now lets move on
I am currently going through the self-diagnosis process. Is it normal to go through the stages of grief? I feel like when I first started considering the possibility, I was heavily denying it... it couldn't be, I'm absolutely not.... but the more and more I watch/listen/read about autism in women, there are things clicking and now I'm going through the... maybe I am? phase, if that makes sense...? I did do the Aspie quiz from Dr. Natalie's page, and my score surprised me with an overwhelming yeah, you're there lady
I think it's normal to go through grief because of course you wonder how much less trauma and stress you would have had if you found out earlier.
I mainly want a diagnoses so I can give it to my mom who does not believe I'm autistic.
It's not an excuse for bad behavior
Nor something to strive to attain
@@abigailh7715 what?
@@mistiroberts1576 Don't worry too much about that unkind comment here. She is going around trashing everyone in the comments section here. The rest of us here support you in having a written diagnosis that legally states the truth that you already know. Hugs.
@@anyascelticcreations thank you 🤗
Me too!
i have almost all the symptoms of adhd, and my mom has adhd
it drives me to the point i forget everything - i cant remember to do my chores, i always lose track of time, i cant focus in class, i cant focus in literal sports games and conversations, i get multiple missing assignments, and my hyperfixations make me forget to brush my teeth, go to my classes, eat, sleep, and i just feel burnt out :[ maybe im just lazy thiugh…
so im wondering if i actually do have it or if its just my anxiety
also my sister who studied psychology and had seasonal depression said that i have seasonal depression??? i mean i do feel unusually tired in winter so maybe i do…
Unfortunately I have some noise sensitivity and this recording has a rumbling sound in the background (is it your laundry machine?). Good info but cannot listen to it for a long time.
I'm in my mid thirties and honestly feel completely baffled by how I slipped through the cracks. I haven't been able to find anyone who does actual screenings that takes our insurance, but I'm pretty confident I'm on the spectrum because of our oldest kid. He was diagnosed at 6, and watching his behaviors is like looking in a window to my own childhood. So much has started to make sense to me through an autistic lens than just ADHD, and all the research and self-tests I've done strongly support me being autistic, but between finances and availability (mental health services are ABHORRENT in my state), I might never be able to get an official diagnosis as an adult. It excludes me from a lot of autistic spaces that don't accept self-diagnosis, and while I understand the arguments against self-diagnosis I also believe firmly that there's a big difference between taking a few quizzes and saying "I'm autistic" and doing quite literally years of research and learning on the topic while identifying closely with autistic experiences, plus having close relatives (like a parent or child) with professional diagnosis. It feels so restrictive to be shut out of autistic spaces that could be genuinely benificial to me just because I haven't been able to find a doctor willing to even consider me when those spaces could provide comfort and support that I pretty desperately need. I have a hard enough time finding a therapist who'll prescribe the meds I need for my ADHD (which I DO have a diagnosis for) and an even harder time finding a pharmacy that actually stocks said medication, so on top of the financial struggles and the lack of proper mental health care in my area, I have to deal with the memory issues and lack of focus/follow through on top of that and it's just so freaking exhausting.
This comment got away from me, I don't really know what point I'm even trying to make. I just feel like I'm screaming into the void.
This is a good video, I am scoring as being on the spectrum according to the aspie and took the AQ 5x and it’s always between 32-34, wondering bc of my 20 year old who we suspect is Asperger’s as it was formerly called.
I got diagnosed so many times with depression and anxiety and Tourette etc and fed awful medicine I’m really afraid of going to any specialist. I’m gonna try because panic attacks kinda disable me in my everyday life but I don’t expect any help. Maybe I’m wrong but I always hear that I’m too sensitive dramatic anxious etc. for me it’s just a good thing that there is finally an explanation to what I experience but I don’t expect to be understood by the specialist. I filled few AQ tests and aspie quiz. Results were high and I got responses like “see specialist”. Interesting, I’m a weirdo and my behavior is quirky to everyone except for my mom. She always tells me I’m just like her. I think it’s better to not share these things with her it could be a shock for her as it was for me when I discovered for first time.
Hello there! I wanted to see if you could help me get the help i need. I am involved with cps (child protective services) or in my area is called dcf (Department Of Children And Families) i was diagnosed with Autism and adhd on June 15 2021 At 39 years old. I feel like they are using my autism and adhd Anna my mental health against me. My 8 year old daughter was taken from me from neglect alligations. I feel like the Department dcf or the school could have offered me support before they reported me and/or took my daughter away. It only caused us all more trauma (me, my daughter, and her dad) my daughter's father and I are no longer together so Reunification is going to be with him. That is a short summary of my situation. I feel ok putting my info out there for the purpose of letting everyone know that they are not alone. Is there a way to get in touch with you somehow? If you decide you can help?
Thank you for reading my comment.
Autistic. Oh my goodness. Autistic. Oh my gosh, Autistic. SupercallifragilAutisticExpialidocious. I get it, I'm mildly autistic. The internet is constantly referencing "autistic this/autistic that" around every corner. Autistic, Autistic, AUTISTIC. The electronic algorithm is so keen on reminding me of how autistic I am or might be. I mean I'm atypical and high-functioning. Nobody's completely normal these days anyway. For one, I see through narcissists and don't worship them like many people are finessed into doing in our culture, so I have that going for me. A lot of well-known people are austistic. It may be a mental disability but it doesn't mean that I'm mentally challenged to this severe degree. I might just have quirky traits and oddly specific habits. But it doesn't mean that it's a huge deal. Because it's really not. I mean, at least it's not a big deal in my eyes.
I have felt like it made since finally when i heard about what autism truly is and i feel like im autistic. But my mom wont have it. Because of one psycyatrist who saw me once thought i I wasn't autustic when im pretty sure it should be more than a 1 hr appointment to figure it out. And i did so much research on it (me being 16) so i tried to explain to my mom but she got mad.
I have felt like it made since finally when i heard about what autism truly is and i feel like im autistic. But my mom wont have it. Because of one psycyatrist who saw me once thought i I wasn't autustic when im pretty sure it should be more than a 1 hr appointment to figure it out. And i did so much research on it (me being 16) so i tried to explain to my mom but she got mad.
Uh I took all of the self tests and... I scored off the charts on everything 😂. I don't care about the title, I just want to know. I'm not after any special help or handouts or pitty. I just want to know if this is what has been my issue my whole 40 dang years on this planet. Changes nothing however Im already very successful in my career... Not so much on the social side of things which is what's really driving the diagnosis. I don't drop 1-2grand if it didn't mean something to me, especially when I have nothing to gain from being diagnosed other than yes or no. I just... Want to know...edit: I have adhd, but I always felt like that wasn't the whole story.
Welp, I took the quiz and got 100%! Chance of being autistic/neurodivergent. Guess it's time to talk to a doctor...
I'm searching for provider/insurance. In therapy today i mentioned how left out i feel about so little research about middle-aged autism.
Most of the youtubes I see emphasize late diagnosis as women and emphasize that it is different. How do things work for middle-aged men? I've been diagnosed with bpd. I know in women that's a common misdiagnosis for women who instead are more accurately diagnosed as asd. As a man, is this going to make professionals less likely to consider asd?
With a history of trauma and eccentricity both dating to early childhood, how likely is a diagnosis of both bpd and asd (and possibly adhd)? My psychiatrist-therapist last week said adhd unlikely because i have a master degree in chemistry. They're just a PGY3 so I plan to send them some resources about the underdiagnosis of asd/adhd in high IQ people. I'm scared if i finally find someone they'll not be able to tease out the ND from the trauma.
I hope i didn't dump too much.
Just landed a 99% likelihood of being autistic from the Aspie Quiz, just as I suspected. Still doing my research on specialists to see who to go to about getting an official diagnosis, but I'm VERY certain at this point lol
It's sad that I'm a "first world" country where gofund me is even a valid suggestion. Nothing against you or what you said, love your channel now that I've come across it...but I was told it'd be at least 700 before insurance here even started to cover getting evaluated or helped
Only just self-diagnosed 'AuDHD. Had misconceptions about what Autism and ADHD are which definitely delayed the discovery plus growing up with the pervasive social myth that 'we're all the same'. Labels and nicknames given to me growing up were, with hindsight, strong clues before the long process of figuring myself out had really started. Hard to say which has had the biggest impact on my life. At present I think CPTSD (only recently discovered this condition was a thing) is the biggest single challenge day to day as I don't seem to have evolved the same degree of coping strategies with that one.
It will be used against you whenever you being yourself is inconvenient to others’ agendas.
in class a girl with autism came up to me and asked if i had it and i said "um i dont think so?" and she fr said "i think so" and walked away so ive had that on my mind and i just took the aspie quiz and got 175/200 and it said 100% chance of being neurodivergent. i do have anxiety is that it??
Good night everyone. I took the Autism assessment here. It says I have indicative autistic traits. I am 42 years old. somethings I go, it makes sense.
My son is diagnosed with
Autism spectrum disorder and
My ex-wife blamed me as being
Autistic Adult 😠