Caregiver crisis, dementia in Down syndrome adults

Поділитися
Вставка
  • Опубліковано 26 січ 2025

КОМЕНТАРІ • 12

  • @DebbiePotter-xh7kv
    @DebbiePotter-xh7kv 11 місяців тому +5

    Man I would hate to put my family in a group home. I worked in many, and I tried, I did the best I could by them. But management in these agencies are just horrible. Like everything in this country, it’s all about the money. The cars they drive were unbelievable, their houses. All on the backs of developmentally disabled. It would be one thing if they were in the least bit interested in their well being and happiness. I loved the work but I just can’t with the agencies. It was horrible

  • @murielbedford8950
    @murielbedford8950 11 днів тому

    I too have had my brother living with us. He was diagnosed with Alzheimer’s at 45 years old. He is now 59. He has lived with us for about 20 years. He was VERY active all his life, could read, write cursive, play piano two handed and very active in sports. It’s almost all gone now. It’s very hard to live the decline. Medication has helped throughout years, more lately. He has become obstinate, moody, doesn’t like to go out at all, talks to all his “friends” in his head. Sometimes we see the old him but those times are few and far between. It is a challenge everyday for all of us but keeping him safe and as healthy as possible are our main goals now. Care givers remain strong and flexible as things can change everyday day , hour……minute 😊

  • @BasedRanger
    @BasedRanger 2 роки тому +17

    It's never occurred to me that parents of people with down syndrome often hope to outlive their children, just so that their children are never left alone. God bless him and his wonderful sister and all caregivers. I knew a number of DS children when I was growing up (some of the purest and kindest souls I've ever met), but nowadays because of the normalization of abortion on demand, I don't think I've seen a single person with DS in many, many years.

  • @tracidavis2278
    @tracidavis2278 9 місяців тому +3

    Sad that resources are not available. What happens after parents die? It's terrifying

  • @nathanthesubzeromangold4615
    @nathanthesubzeromangold4615 Рік тому +5

    Kind of like me I was born with the gift of down syndrome for 37 years I've been suffering with dementia Ben fruit so many surgeries like pacemaker removes a heart infection but instead I've been through worse but I am very thankful God took it all away amen Lord. Until this day I still pray for everyone who has the same ability like me.

  • @808hey
    @808hey Рік тому +3

    Wonderful sister to take care of her brother. My youngest son has down syndrome. He’s the baby brother of 3 sisters, 2 brothers and a huge supportive and loving ohana. I know when his dad and I leave this earth, he’ll be okay. Bless this family. ❤❤

  • @justinoiler9749
    @justinoiler9749 5 років тому +9

    Justin and Jessica
    Melissa with Mike
    Danielle with Luis
    Misty with Scott
    Megan with Mike
    Michelle with Kevin
    Nancy with Richard
    Bobby with Emily
    Amie with Eugene
    Dustin with Emily
    Mike with Maggie
    Charline and Matt

  • @janem5900
    @janem5900 2 місяці тому

    Prenatal diagnosis prevents infinite suffering.

  • @dr.avalanche4994
    @dr.avalanche4994 4 роки тому +4

    :,)

    • @justinpullin98
      @justinpullin98 2 роки тому +1

      Justin who has down Syndrome
      Melissa Oiler who has mom say