My Extra Chromosome And Me (Down's Syndrome Documentary) | Real Stories
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- Опубліковано 7 бер 2018
- As of yet, nobody knows why some babies are born with the chromosomal anomaly that causes Down Syndrome. This moving documentary will show what its like for three people living with the condition. It follows Laura, Maeve and Joe as they overcome hurdles, strive for greater independence, and take part in extraordinary events. Three heart-warming stories about individuals who are facing lifes challenges head on, whether in education or employment. They show what is possible for people with Down syndrome when they are given the opportunities to thrive.
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I do have downs syndrome mild intellectual disabilities and I am very outgoing doing things for myself
That’s great to hear, I hope wherever you are that you are having a great day ! Thanks for sharing your story with your comment.
I would love to hear even more about you. I work for a nonprofit that consists of many group homes for adults with intellectual and physical disabilities. My particular group home that I help run doesn't have anybody with Downs, but I would love to work with, and learn more about people who have Downs. My life has been enriched so much since knowing first hand just how much people with intellectual disabilities really bring to the table in the community.
💯🤍🤍🤍🙌🙌🙌
I have high functioning autism and other disabilities, such as hearing impairment, visual impairment and a musculoskeletal disorder. I don't have Down Syndrome.
@@tracyfinch918 JustinPullin
Awww Joe's life coach is so cute, she's his own cheerleader. We need more people like Yvonne out there.
Who’s joe?
@@lauritorni4879
The one with Down Syndrome
Time 1:18PM Sat 7/31/21
I babysat a young girl with Down’s syndrome. She was the happiest lil girl around. She did enjoy playing or singing on her own, but she was a delight. Today, we have a man in our neighbourhood affected as well. He too is a delight. He helps neighbours cutting grass, rides he bike around visiting, and hangs out at the local fire house with the boys.
Nice. I grew up living at a fire station as my dad was a very senior officer. Kids and let's face it like seeing how it all works with the equipment and how's it is used I'm so happy the firefighters showed compassion and acceptance and I'm sure they were probably just as happy to see him as he was them. Most of the firemen I grew up with would have made the effort to make him feel special as long as he understands that when the call out siren goes he has to leave them to their potential emergency.i spent quite a few evenings sitting alone in the station as a teenage boy. It can go from exciting to a little bit intimidating as you are sitting in a big empty building on your own. I grew up in a rough neighbourhood. That would be my only concern. I'm sure the boys explained that to him though and in my experience with a few down syndrome teenagers they listen and follow instructions better than most adults. Like you I found them a pleasure to be around. I took a little extra time with one boy and wow what a really nice fantastic kid he was. I would take one on as an apprentice if I could afford it. I think you could teach them a certain amount of construction and they be better than most young blokes I've worked with who just want to slack off every chance they get. Down syndrome kids listen and take delight in doing a task well. And do it how you show them. The more patient and understanding and encouraging you are the more they thrive. As an almost fifty year old carpenter it would bring joy to my heart seeing them do a job well and enjoying their job
@@matthewcullen1298 the firemen are great with Mike! They all seem on the same level, when the boys meet outside for a guy chat. Mike really gets a healthy boost of guys getting together. It’s great to see.
@@Rock_Girl_Daze that is so great. Kids in general need both positive male and female adult role model to teach them good values and for Mike it must be a real boost to his confidence and self-esteem. I love hearing stories like his . Thanks for sharing. Best wishes from Queensland Australia 😀😀
@@matthewcullen1298 ✌️ 🇨🇦
I've only met one person with down syndrome. He went to school with me when I was a kid and he was loved by the entire school. I can only hope it's that way for everyone with this condition but sadly I don't think it is.
"Everything is a challange in this life. But if you have a heart and you have the strength, the challange is worth it."
Those are beautiful and wonderful words. It's sweet and pure people like them that truly teach us to love and tackle life with a smile and full heart. ❤
And he stopped himself from saying balls he switched to strength that’s od
DS folks are gentle, kind and helpful.
Attitudes used to be horrible. Within my lifetime, children were called "mongoloid" and almost always institutionalized. One woman wrote about having her baby (before preliminary tests could be done), and when it turned out to have Down Syndrome, "nobody visited me in the hospital, nobody sent flowers or cards or called me". They whispered about it or acted as if the baby had never been born. Someone said "are you still going to name her after your grandmother?" as if the baby was too defective to be given a family name.
I love Maeve independence spirit, Joe has positive attitude, love it, I love Laura confidence. All the Parents are awesome and supportive
Joe is the man.. that guy speaks and carries himself like a true gentleman
These kids are so sweet and lovable. God watches over these kids in a special way.
My sister Natalie was 18 when she passed away!! She wasn't supposed to make passed 12!! But she did!! She was awesome i loved her sooo much!! She was very severe though!! I give my mom alot of credit for never giving up and loving her and raising all 6 of us!! Natalie ..even though she was severely down syndrome she was very smart!!! I miss my sis!! But she's definitely in better place! She was in so much pain in the end and developed 3 holes in her heart! I miss her so much!! RIP NATALIE
i always felt that people with this disorder will tend to live a happier life because they don't feel worry about stuffs that most of us simply can't get over with.
They have the same or greater rates of depression than the general public.
@@NAConen People with physical problems who especially can't communicate at all tend to be typically clinically depressed (have seen it personally myself), but yeah I'd say that rate with people with Downs is like that of the general population, or can be at least depends largely on the individual of course.
They all are so so adorable and loveable. We miss out on so much if we keep thinking we have to exclude certain things from our lives because we think everything just has to be "perfect". But people like this and their families who show so much love for them are just a sign that things that people consider as imperfection is just perfection, its life and it can be beautiful.
I think Joe understands living life to the fullest more than anyone. ❤
Makes me tired just watching.
Oh, Joe. You are so dear and such a bright light in this world!
They're all amazing ! But Joe is quite something, bowls, golfs, DJ's... Just incredible !
I work with a little girl in school for a peer tutoring class and she is the sweetest thing ever. I love her
Just amazing beautiful people, joe's smarter & more independent than most people I know! Also how gorgeous is maeve's mum!
Yes they really are. A Buddhist monk told my mum that they are enlightened. That is his beliefs anyway and I can really resonate with that
As someone working with down syndrome people, I feel like they KINDA left out a big part of the picture by only showing high functioning individuals.
About 1/3 of babies with down syndrome have severe heart and respiratory issues and will have open heart surgery a few weeks after birth. A lot of them will also have autism spectrum disorders or other comorbid illnesses and therefore have way less possibilities, sometimes never talk. And most of all, with the lengthening of their life expectancy, we have discovered how susceptible they are to dementia and especially Alzheimer's disease. It is suggested that half of them will develop Alzheimer's disease, sometimes as early as 40.
I think these are points that are more and more missed out when talking about Down syndrome. Sure, we live in the best conditions for them to have a healthy life that we ever had. But I also see this almost glamorized version, with happy healthy kids laughing and running around. This is far from the whole picture of Down syndrome's realities.
I had a friend who had downs and autism. She was very sweet and kind hearted but unfortunately I don’t think she will ever get to the point that these people are at.
Malika Thueler Thank you for sharing this info with us, because it's important for people to know. However, you must be a great person and extremely patient if you can handle this hard job. Personally, I could never...:D
Hopelessme Down Yes exactly...
Connie Hardman Yes it was mentioned indeed. But they still showed high functioning individuals with relatively few health concerns, when a lot of health concerns come with Down syndrome
I was thinking the same. I've worked with people with Downs too and while it is lovely to see such wonderful families doing their best for their children it does gloss over the hardships a bit. Particularly the range of complex health problems and the strain that puts on them and their families. Having said that, it's programs like this that help breakdown the awful prejudices people with Downs face so they do have their place. And I think that's really the point of this program. To highlight that they are unique and worthy of love and support just like everyone else.
Maeve is just adorable. God bless them.
I loved this documentary! The beautiful people with down syndrome were placed on this earth as good examples for the rest of the population...they are kind, gentle and lovely people.
They always have a positive energy to them all I can do is smile
Not all of them are!🥰
In downtown NYC where I lived for many years FINESON HOUSE had a residential program. People lived there, and I remember one man in particular. Dave would go off to work every morning, and announce proudly, "I have a job, I have to get to work, don't wanna be late." He was a bakery employee and his bosses said he was cheerful, did a great job, never missed a day. He had Down's and was at that point, close to 40. He also did his own laundry, commented on the news on tv, went shopping at the supermarket unassisted, rode the busses, and bowled a perfect score!
Hi Cynthia,
That’s such a nice story ☺️
I’ve recently released a Mini Documentary on Down Syndrome.
If you would like to watch it, You can find the Documentary on my Channel or search on UA-cam for
Nicola and Jessica | Living With Down Syndrome
If you end up watching one, I would love to hear your feedback ☺️♥️
Wishing you a lovely Monday,
Steph
I volunteer at a dance this church puts on for young adults with disabilities. There's a high functioning 20 year old with downs that goes there. She's really pretty, sassy, and she works at a dollar store and has a boyfriend with developmental delays. It's so great to see people with disabilities like this have social lives and work like anyone else. Really improves their happiness and also their independence.
The way some professionals deal with a diagnosis can be terrible. We were basically just told to go to the DS association for more info.. no celebration that our baby was beautiful, alive and happy 🙄
Hi Hansel,
That’s shocking to hear 😞 I’m so sorry.
I’ve recently released a Mini Documentary on Down Syndrome.
If you would like to watch it, You can find the Documentary on my Channel or search on UA-cam for
Nicola and Jessica | Living With Down Syndrome
If you end up watching one, I would love to hear your feedback ☺️♥️
Wishing you a lovely Monday,
Steph
As a 40 yr old American. I've noticed through my life that the intelligence of people with Downs are much more aware and capable and obviously smarter than they were during my younger yrs. Ive been around many helped many so my surmised opinion is from experience.
I agree. We're giving these great people better educational opportunities than what was available when you and I were kids. We really owe a big thanks to every educator and doctor across the globe who decided that "take them home and love them" was not good enough. E very person who said, it's not enough to teach them simply to survive is a hero. The parents blessed with these children are the true tip of the spear, though. They demanded these changes. It's great.
We finally have a much better understanding of how to help people with Downs. Early interventions, special classes, medication, everything combines to help them become more capable adults. It's really wonderful how good science can help people live more fulfilling lives.
Yes, that's great , It has something to do with society's acceptance and exposure to more education, physical and mental activities and technology.
John Paul Simpson prince
John Paul Simpson it's because they are actually educated and cared for medically now.
Sometimes they can have thyroid issues that cause cognitive disability. If you don't treat that, you get a VERY low functioning person. They didn't use to treat that.
I absolutely love to see these beautiful people and how they live their lives! Smiled the entire video!
My husband and I met at a facility for mentally challenged adults, married there, and live in the same city again now since 2009! We have friends that have mental challenges and we wouldn't have it any other way!
Maeve was born not only with Downs, but red hair. What a pretty and special little girl.
They all seem pretty happy. It's good to know that they haven't let that extra chromosome get them down.
These wonderful people were all born into the right families -Lovely families 😊
What extraordinary young people so inspirational in their outlooks of life and true achievers . Mauve is absolutely adorable and Joe is so hardworking , intelligent and independent and Laura is such a free spirit taking part in different sports and very centred , three people who doesn’t let their disabilities define them .
The only problem with this documentary is it end’s ! I just couldn’t get enough learning about these wonderful people ! 💕👍🏻❤️👍🏻💕
Hi Melissa, ,
Well said 👏 it really is a beautiful documentary.
I’ve recently released a Mini Documentary on Down Syndrome.
If you would like to watch it, You can find the Documentary on my Channel or search on UA-cam for
Nicola and Jessica | Living With Down Syndrome
If you end up watching one, I would love to hear your feedback ☺️♥️
Wishing you a lovely Monday,
Steph
@@AMILLIONVOICES Hi Steph how are you doing ? Thanks for the suggestion & I look forward to watching your documentary ! Take care stay well ! 💞❤️💞
@@melissalove2463 Hi Melissa, I’m really good thank you, how are you?
Have a great week and please do let me know your thoughts once you’ve had a chance to watch the video. Xx
it has always amazed me how ppl with down syndrome are always happy, willing to learn n work.. yet "normal" ppl are always complaining n cant hold a part time job.. we got so much to learn from this very special group of ppl..
Michelle Garcia as someone working with down syndrome people, let me tell you they're not always happy. Especially when they get dementia at 40
I love these Down Syndrome people, because they typically have a great attitude, which is nearly impossible to find within the general population. They are authentic and don't seem to be materialistic. You can learn a lot about life through being around these people. I am happy that they aren't being aborted as frequently as in the past.
i know they can get depressed and some things are a bit harder for them. but what I have notice is that they don't get stuck on the self pity stage. they get up n try again. something that some of us "normal" people dont do that easy.. we always stuck on the "poor me" stage n are always complaining about everything. we spend so much time complaining n so little time actually doing something to better ourselves.. now im not saying all of us.. but a good chunk of our society dont fight for life like this awesome ppl do..
n as for the dementia comment not all of them get it at 40.. n besides dementia is more common in people without DS. n is just as hard for both group of ppl.
Michelle Garcia I personally disagree, I really haven't seen that more in people with DS. And yes they definetly have more occurance of Alzheimer's disease, almost one in two will develop it.
Britney I agree, I think putting people in baskets like this is not useful, although I didn't think it was this person's intention
They're all Angels on Earth. Watching over us. Not us watching over them.
We all watch our children no matter what
touching documentary. They are still beautiful.
oh my goodness Joe is adorable!! He's such a classy dignified man with a huge vivacious personality!
This is beautiful. God bless them all. So lovely to see them well loved and cared for and getting a chance to learn skills which allows them to be independent and thrive.
This was beautiful to watch 💖😍 so much wonderful potential in these individuals 💖 I wish more people were aware of the ability and important contribution individuals with down syndrome can have on society. Just beautiful to see 😊
Such a warm and happy video/documentary. I wish them all the best!
I had a neighbor who had DS, we used to play together when we were kids. I moved but my parents kept in contact with his family. He's 30 now and started to work on his very first job.
This puts a big smile on my face . Thanks , needed that .
Joe is just a awesome awesome guy. He is the type of person you want as friend. He is so chilled and yet at the same time he is bigger than life! I am not surprised he is a celebrity in his town.
You may not deal with stars in radio but some people are just born that way ⭐ You don't have Hollywood to make a star. Joe has the heart of a total sweet heart.💖
Laura really does have good form for gymnastics and you can tell that it's natural. Bravo to all subjects in this documentary👏🥇. They are all winners.
Wonderful documentary. I worked as a teacher with the developmentally disabled and they are so loving. Thank goodness today that societies are more enlightened and progressive and don't hide these beautiful, loving and happy Souls away in institutions
I think raising them brings out the best in the parents as well..
planetizationrising not really most people want them aborted nowadays it breaks my heart
One of my sisters was told her baby would have down syndrome and they encouraged her to abort her baby and claimed she would have a long life of suffering. My sister refused and then they basically guilt tripped her the rest of her pregnancy. In the end my neice was born healthy and did not have down syndrome. I'm still mad that they even said that to her and it's been 20 years sinse that happened.
"Joe is just so opinionated" she says, well, so was my Irish Grandad and he was, as we call it, 'normal'.
Lovely show, I have a 37 year old daughter with Down Syndrome.
Fantastic documentary. Many thanks. 💕
special thanks to Maeve , Laura ,Joe and their families ,,,,,♥♥♥
Just amazing documentary. I've learned a lot and enjoyed watching it. Kudos to everyone in the documentary!
Being a mum you always worry about them gowning up becoming independent and who they meet .keeping them involved and social it is good for there confidence and i be so proud ...i thiink there so lovely and they do try so hard more than regular people there happyness is important and being comfortable in adulthood.
This was a heart warming documentary. 😊❤🇦🇺
People with downs are wonderful people inside and out I worked with people with downs they were wonderful ❤
To me, it was like Joe was speaking a different language. Very thick accent. Other than the lack of subtitles for him, great documentary.
After hearing him say a few sentences, something just "clicked" in my head and suddenly I could understand him. I agree that subtitles would have been good, but if you concentrate hard enough, you don't need them
this program showed people in such a positive light
thanks for the warning i wont be watching this
@@johnjonjhonjonathanjohnson3559nobody cares if you watch it or not, you're not that special lol
@@gwendolyn0515 actually i am, but i wasnt saying that i was, i was being hum ball.
Much respect to the families of these children and adults. I have a Syndrome where I'm missing my X chromosome and every support I get is appreciated, as I'm sure these children appreciate too.
OliviaWeber After But don't women have two X chromosomes, or are you missing one of them? I don't know much about chromosomal stuff, but it's interesting.
If she is missing an X chromosome, then she is missing one of the two that women have, Sharky.
Sharky McShark yes. Missing one of them
Livin' Like Larry yes.
Livin' Like Larry you’re correct :)
loving caring and intelligent - that's my experience with people with downs syndrome. Parents naturally are concerned when first aware and the concern is for their child, because , life at times throw things at us but imo it makes us a stronger -
Elaine Bines
I was thinking them same.
A terrific film and well done all who took part and those who made it * Great people ..
Beautiful documentary!
Maeve is a little sweet little cupcake☺️May God bless her and her family ❤️
Good documentary.
My daughter emma has ds and also had that sleep apnea issue until she got her adnoids(sp) removed. That surgery has been a huge success. No more waking in the night unable to breath episodes.
They all look so pure and beautiful
Absolutely wonderful ❤️
''If you have a heart, and you have the strength, the challenge is worth it'' - well said Joe 100% agree.
everyone is special just the way they are.
Amazing folks. Enjoyed watching this. 🦄
Love Joe! He has a better social life than me! And what a lovely guy :D
Superb Documentary love it's
Lovely little ladies in this documentary and Joe living his best independent life made me smile 😊
I totally adore Joe!!
Beautiful sweet human beings. 💕💕💕
they are adorable! Really sweet people.
Such beautiful inspiring people ❤ thank you for sharing 😊
I’m greatful for these happy good lucky people because they make my day better and I have friends that are downs I enjoy there humour and learning from them
When I was young Down Syndrome was the worst thing that could happen to a child. Now that I'm older Microhydranencephaly is the worst thing that can happen to a child and compared to that Down Syndrome kids seem normal.
I’m not sure if the families will read this but I read a book about a year ago by Paul Daugherty called an Uncomplicated life: a fathers memoir of his daughter. it’s the story of a families daughter Jillian and it starts From when she was born to now with her living on her own and married. It is an amazing book and I hope more people read it. It defiantly opened my eyes to the struggles a family can go through to have their children included in society and school. Amazing book.
In 1992, when I was pregnant w/my third child… and my husband’s second we were told she had an increased chance of having DS. We had amniocentesis and waited one week for the results. She didn’t.. so we felt fortunate. While we were waiting we determined we would not have her. I feel so horrible that is what we would have done.
Back then the life expectancy was around 30 years… we did not want to”burden” her three older siblings. But, we were wrong.
I am so sorry.
Things have improved.
Bless everyone who is better than we were.
I would die for Laura Heron. Purely for being a fellow one direction fan. Lovely.
I like how Joe want to start up his own company. And that 6 years old is so adorable.
They are such sweeties
What beautiful souls they are!
amazing.
My sister has down syndrome... my mom is having a hard time with her often. Shes now 28 I hoping that I can have a business so I can have my sister work light duties
Joe is more independent than most of my ex boyfriends!
such amazing people, all love
Such love in these families.
Their milestones might take a little longer.However they are completely normal.Love and more love is the answer.
Very beautiful video of how awesome they all are! Blessings to everyone!🩷🩵
If this degree of attention and dedication were given to "normal" children, perhaps we could end shootings at schools.
Anita Mitchell agreed
Every child should get this kind of attention. We're doing something wrong by dumping 30 kids in a classroom with a teacher who won't even remember their names for the first three months of the school year
Beautiful ❤️
This programme was great at showing what three individuals with Downs are able to do but why didn't the ask the people themselves what they thought about their disability rather than family members or support staff?
There's a fine balance between empowering a person and weighing them down by making them solely responsible for justifying their own value and existence.
Jane Msxrayspecs with my brother it made him sad to remember he was different. It’s not always easy. He would’ve loved to drive but couldn’t. Wanted to be a police officer amongst many other things but couldn’t. Can be sad at times
Thanks
God bless them all.
Such lovely lovely video
You go joe you i amazing you are the best person 😇😗😭 i just got a emotional.
They always seem so loving and happy. People without disabilities could take a leaf out of their book.
I agree they all live life to fullest with no fear. It’s very inspiring.
laura is way more intelligent and confident than i was at that age.
They are the best ❤️
My biology teacher always said that remember that down syndrome people are send by God for us to teach us to never forget to smile ( because they are always friendly and smiling) they have this innocence about them that we usually long for. She also said that they are angels and they go straight to heaven when they pass. So I grew up thinking they are literally angels and use to be jealous of them.
Your comment is very sweet. 😇
Laura’s coach speaks so fast
I was told when I had Tom aged 35 now that the dr didn't like his face, he had an extra fontenelle and they thought he had down syndrome, totally out of the blue, I was so shocked and made to feel he was worthless that I left him in hospital for adoption, if only that dr had cuddled him and said he was a beautiful baby,I would have felt so different. He was number 4 of 6, I eventually went back to pick him up 4 days later, breast fed him for 3 years, he walked at 16 months and I home schooled him. I went on to have two more boys with no tests as I would rather have had another baby with DS than no more babies. The way you are told initially is so important. Tom is now a model and actor with two mainstream AGENCIES.
I have ADHD, FASD, Dyslexia, anxiety, and other learning disabilities. I’m a competitive swimmer in the special Olympics and I want to swim in the Paralympic.
I GOT LIAAAAAAAARS ON THE LIAR LIIIIST
❤️
Oh my goodness, Maeve's chubby cheeks are just too freaking adorable.
Maeve is adorable. 💖
God bless you. Amen
THIS IS A NEAT VIDEO.