Losing Greg: A Dementia Story

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  • Опубліковано 6 кві 2019
  • When Greg Kelly was diagnosed with early-onset dementia at 59, it turned his family's lives upside down. This report follows his exploration of a Danish dementia village, as he seeks the best care solutions.
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    For 40 years Greg worked in finance, but now the weekly grocery shop is too much for him. "This is a terminal illness, with an average of 6-8 years", he explains. With limited care options in Australia for young dementia patients, Greg heads to Denmark, where €63m has been spent developing new approaches to the disease. Can he find independence in Svendborg Dementia Village?
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    SBS Australia - Ref. 7585

КОМЕНТАРІ • 1,6 тис.

  • @chellegriggs
    @chellegriggs 4 роки тому +1011

    My husband was diagnosed with Lewy Body Dementia two years ago. He was a pilot, loved to go on very long and strenuous hikes, loved traveling and doing very active things. Now he can't find the bedroom, go to the bathroom by himself, he has major hallucinations, can't dress himself. I'm his 24/7 caregiver. He watched his first wife die of leukemia, loved her till end, took amazing care of her (they were together 37 years). Then he met me. We have been together 12 years. He has given me a wonderful life. I will NEVER put him in a nursing home. I'm beside him every second of the day (he is hallucinating right now). I will be by his side until the end. Lewy Body Dementia (all dementias) is a horrible disease. I have also (in the last ten months) been taking care of my elderly mother and father...I promised them like I promised my husband I would never give up on taking care of them. Thank you for your story. Much respect 💔

    • @asafaust6774
      @asafaust6774 3 роки тому +70

      I am very impressed with your compassion, patience and tender care of your husband. Bravo. You are to be commended.

    • @chellegriggs
      @chellegriggs 3 роки тому +49

      @@asafaust6774 thank you for your kind words. I'm just grateful God has granted me the ability and am financially stable...I so feel bad for those unable to do this due to health or finance.

    • @artparty222murphy9
      @artparty222murphy9 3 роки тому +41

      I know the disease as my daughters father had it. The cruelty was that he was a neurosurgeon and watched his demise sadly, knowing all that he knew

    • @shiningstar3312
      @shiningstar3312 3 роки тому +14

      @@chellegriggs u do not need money...u only need God given wisdom and a plant based diet including the incorporation of the additional 7 principles of health....this medical system has duped everyone...ask GOD for wisdom and HE will provide...be blessed.

    • @toffeelover2558
      @toffeelover2558 3 роки тому +28

      chelle I understand your passionate fight...I too am going through it with my brilliant husband....we both lost our spouses and were introduced 18 years ago, he also has given us a wonderful, fun life......I feel the same way, I will never let him go into a residential home...he is my love and I will be by his side always.......it is such a heartbreak......nobody understands that the brain is shrinking.......I feel emotionally paralyzed sometimes..but always hide my sadness.....I make him laugh, and lead our lives as normal as possible...my husband is older though, but great fun...so sorry .....

  • @maryannanderson2213
    @maryannanderson2213 Рік тому +73

    My husband had Alzheimer's and I wanted to be with him, so I planned to sell our home and move with him into a care facility. His doctor told me in the strongest terms possible that this was a very bad idea. He said that if my husband died, I would be homeless because I did not have Alzheimer's and therefore, I would not be allowed to stay there by myself. So I would lose my husband and my home at the same time. Fortunately, I listened to him and followed his advice, and I am extremely glad I did because my husband has been dead for 14 years and I cannot imagine where I would now be living if I had sold our home.

    • @susanleslie4809
      @susanleslie4809 Рік тому

      That is the dumbest thing I hav ever heard

    • @nonawolf7495
      @nonawolf7495 Рік тому +7

      Good advice - thank you for sharing!

    • @juliamundt101
      @juliamundt101 10 місяців тому +6

      You Doctor was brutally honest. This is what we need as caregivers.

  • @satpurush2592
    @satpurush2592 3 роки тому +298

    Whoever created this centre in Denmark for dementia patients.... I thank him/her or them with all my heart for providing such an exquisite service !

    • @lynncombs7069
      @lynncombs7069 2 роки тому +6

      This is a remakable place. I pray that God will give all the care givers of all people with these dreaded diseases the strength they need to care for them. To the medical community and researchers I pray God give them the grace and support to maybe one day soon to find a cure. Bless all of you.

    • @patriciarambert9261
      @patriciarambert9261 2 роки тому +7

      You dont have to thank them, the families deep pockets do. Woe to the poor thrn.

    • @avrilthurlow7528
      @avrilthurlow7528 Рік тому

      @@patriciarambert9261 Aaron

    • @michaelhudecek2778
      @michaelhudecek2778 Рік тому

      🙏🙏🙏🙏🙏🙏😇😇😇😇😇😇😇😇

    • @thomasjensen6243
      @thomasjensen6243 Рік тому

      If you are rich you can buy good care.....if you're poor you're just trash.

  • @mockingintercessor
    @mockingintercessor 4 роки тому +107

    He's not slowly turning into another person. He's vanishing. One of the worst things that happens to you once a loved one you have cared for, and watched decline over time, is the relief you feel once it's over. You miss them, but they were not 'them' for a long time and they're finally free...but so are you. And it's hard to forgive yourself for the relief.

    • @majorbarbara1
      @majorbarbara1 Рік тому +10

      Thank you for saying this. We just can’t blame ourselves for the burden it places on us.

    • @kimhunter2
      @kimhunter2 Рік тому +8

      I said goodbye to my Dad in January, after spending the last 3 months with him. The firsts words I felt and said was "You're free." 🤍💙

    • @bridgetmonica31
      @bridgetmonica31 Рік тому +5

      One lady told me it's like a enforced divorce..but at least one has closure with divorce..with this, it's like being between life and death.I only watched this today it came up randomly, so I see your 3 comment is 3 years old now..I Do hope you are ok, my mother was recently diagnosed as well..

    • @susanleslie4809
      @susanleslie4809 Рік тому

      @mocking intercessor where did u get this from? She NEVER mentioned anything close to this. YOU hav no idea how she was feeling or what she went through. Never assume. Everyone has their own experiences & feelings. How old r u, haven't u figured out not to speak for others???

    • @taraalan1131
      @taraalan1131 11 місяців тому +6

      @@susanleslie4809 Yes , sadly- she said most of the him she knew was gone , and he had become more aggressive. It’s a tragedy.

  • @debraderoos5225
    @debraderoos5225 4 роки тому +460

    Thank you for sharing this. I worked in a nursing home when I was in my early 20's. Many of the people had dementia. I would go home crying every night. Then I decided the best way to deal with it was to come into work singing. That's what I did everyday. I walked around the hallways singing as loud as I wanted too. The patients loved it. It brought joy to them and to me. We need the dignity that is shown to these people in Denmark right here in America. Can you imagine that? Money does not defined the care you get. It shouldn't. It's about the dignity of life.

    • @4UStevePerry
      @4UStevePerry 4 роки тому +8

      ALS and Alzheimers are way different things yes they are both horrible diseases but not nearly the same. My SIL died of ALS at 51 diagnosed at 49. Her cousin died of it in his 20s. Worrying about my brothers children now. We also have MS and Alzheimer's in our family too plus cancer. All these diseases need to find a cute NOW!

    • @debraderoos5225
      @debraderoos5225 4 роки тому +3

      @@4UStevePerry I have 4 siblings with MS

    • @teresaconiglio3214
      @teresaconiglio3214 4 роки тому +4

      @@debraderoos5225
      And I have a daughter dying a horrible death because of MS. Primary Progressive MS for 20+years. 46 years old, 5'7" and less than 60lbs with 10 or more bed sores some to the bone.

    • @debraderoos5225
      @debraderoos5225 4 роки тому +7

      @@teresaconiglio3214 I am so sorry to hear that. It's tough for everyone having to deal with this disease.

    • @victoriaofthevictoriavicto7270
      @victoriaofthevictoriavicto7270 4 роки тому +8

      I do the exact same thing. I work in a group home for developmentally disabled seniors....they all have levels of dementia. I love my job so much & sometimes cant believe they even pay me. I sing to them or have music playing all the time. Especially during bathing & other intimate requirements. They love it....so calming.

  • @lorij6796
    @lorij6796 3 роки тому +177

    Rest in peace Greg.
    Sympathy to his wife Janet and family.

  • @angelaandel622
    @angelaandel622 4 роки тому +169

    As a therapist in the US, it brings tears to my eyes to watch this. I wish there were more places like this. A peaceful environment is everything to some one under so much stress and anxiety from this illness. The creators of this are angels!!

    • @brendarawlins9417
      @brendarawlins9417 3 роки тому +11

      The staffing levels are so much better

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

  • @Anth4044
    @Anth4044 3 роки тому +133

    I'm at beginning stages of vascular Dementia and it's very frustrating, I've completely shut down and by that I mean wanting to see friends workout for that I was so addicted to working out 2 hours a day nor do I socialize because I get so so frustrated when explaining what it is or the things I do. I'm very aware of things I do and it really gets to me from leaving my wash in the washing machine forgetting my groceries in my car finding them the evening or even next morning. And when my daughter forgets that I have it and makes me feel as if I don't listen to her because I forget so much. I was watching this and thought it was so interesting and was scrolling on the comments and Damm I've seen it already 11 months ago and even commented on it and I had no idea , Having this is very frustrating but I just keep my faith with God and I truly believe he has a plan for me🙏❤️

    • @rosatalavera181
      @rosatalavera181 Рік тому

      Ikwñis

    • @leecowell8165
      @leecowell8165 Рік тому +5

      Lost my spouses to this. she had it 4.5 years. Anthony I see the date up there 2 years ago you posted. You probably cannot relate here any longer. horrible disease.

    • @hazel9903
      @hazel9903 3 місяці тому +3

      I was diagnosed with early onset dementia over 10 yrs ago in my 50s due to extreme forgetfulness and from an MRI scan which showed shrinkage on the brain and other tests. I gave up driving straight away as I believed that was the responsible thing to do as I believe memory problems and the ability to concentrate are linked and I wish more people would be self aware or at least their relatives. The problem is people either aren't self aware or are in denial and will often hide symptoms from their relatives.
      I'm a widow now and live by myself but I'm still here but my quality of life is questionable. Due to severe scoliosis and arthritis I went from being capable of doing a 5 mile walk to struggling to walk across a room within 2 years. This loss of mobility devastated me so I envy anyone my age who still has good mobility. I'm determined not to end up in a care home and would prefer not to be here if that was my only option. I do however have my mobility scooter as that is the only way I can independently leave my house now and with a max speed of 8mph reduced to 4mph or below in the town centre I'm no danger to anyone.

    • @Anth4044
      @Anth4044 3 місяці тому +3

      @hazel9903 May God Bless you thank you so much for sharing this your Avery strong woman and I Wish you all the Best💜🙏🙏

    • @anshuman7113
      @anshuman7113 28 днів тому +1

      God bless you. My mom has it and we were very impateint with her, until we as family started to get an idea that something is off with her. Now that we know, its tough, but thats life. I love my mom

  • @christinawatts1438
    @christinawatts1438 Рік тому +54

    I cried throughout this whole thing because you loose your loved one while they’re still in the house with you, what an devastating thing to have to witness.

    • @susanleslie4809
      @susanleslie4809 Рік тому

      Lose, a ... SPELL check if u r unable to use proper grammar

    • @jenniferloftus2363
      @jenniferloftus2363 Рік тому +2

      @@susanleslie4809 Get help. You're angry, that's for sure.

    • @hazel9903
      @hazel9903 3 місяці тому +1

      Many go through the process of losing their loved ones twice. They grieve when they need to go into a care home and they grieve when they finally die.

  • @Catajbr
    @Catajbr 4 роки тому +180

    Greg basically got what he wanted. He didn't have to live in a facility and was lucky that he escaped the horribleness of alzheimer's end stages. R.I.P. Greg. Condolences to Mrs. Kelly and family.

    • @melindawilliams1833
      @melindawilliams1833 3 роки тому +9

      Such a horrible thing to have happen to anyone especially someone Young. But what a lovely place, I believe we could use more of those.

    • @chloe5susan
      @chloe5susan 3 роки тому +8

      Johnson Jack fake

    • @helzwar007
      @helzwar007 Рік тому +15

      It says he died but not cause of death. It's very possible he committed suicide

    • @MrTruckerf
      @MrTruckerf Рік тому +7

      @@helzwar007 I would understand completely and do the same thing myself when it started destroying my wife and family.

    • @susanleslie4809
      @susanleslie4809 Рік тому

      @chloe 5susan why do u post such stupid sh*t?

  • @patriciabilinkas3911
    @patriciabilinkas3911 4 роки тому +36

    My dad had this. His personality completely changed over three years, but the saddest part was he died from mesothelioma, not really knowing any of us. He was in the Navy during WWII and a fire chief. To see his decline was more than heartbreaking.

  • @cazw179
    @cazw179 4 роки тому +234

    My mum had dementia. We have nothing like this in the UK. Every country should have facilities like this. 🇬🇧

    • @starquant
      @starquant 4 роки тому +2

      There's nothing like this anywhere.

    • @macclift9956
      @macclift9956 4 роки тому +9

      It looks so peaceful. One has to wonder whether sleeping tablets, antidepressants or perhaps the medications for hypertension (which often include blood thinners), aren't causing early onset dementia.

    • @debraderoos5225
      @debraderoos5225 4 роки тому +6

      @@waterbearer6331 I've seen that over and over. I taught in a residential facility for children with disabilities. Severe emotional disorders, etc. It lacked a moral and ethical compass because of its need to hold on to clients(as they were called) longer than they were suppose to be there. I needed the job but was very angry. So, I prayed everyday that it would close. I stayed longer than I had too because I decided the best thing I could do was to teach my students how to become a strong advocate and believe in themselves. I was there for over 9 years. One day I decided to quit. Less than a week later the facility announced it was closing. It had been there since the 1940's. Prayer works.

    • @naomiemoore5725
      @naomiemoore5725 4 роки тому

      @@macclift9956 And I take all of those . . .

    • @macclift9956
      @macclift9956 4 роки тому +5

      @@naomiemoore5725 So many people are; I have a family member who started on medication for hypertension and then started having sleeping problems so went onto sleeping tablets. He's tried to come off the sleeping tablets but develops flu-like symptoms almost immediately and can't sleep at all, so he just goes back onto them. I feel he's starting to show signs of cognitive slowness (which is what happened to my mother, who was also on all of these medications and developed dementia at a relatively early age), so I'm terrified that this, Alzheimer's, is also happening to him; he's in his sixties. One doesn't really have a choice when it comes to these medications, and it might not be these medications at all, but I do think each patient should have a history of exactly which medications they were or are on and perhaps eventually the medical world can connect the dots regarding what is *causing* early dementia. They say to keep the brain active, which I try to do, but look at Iris Murdoch: she had a very active mind and developed Alzheimer's anyway. Take care.

  • @Pink_143_6
    @Pink_143_6 Рік тому +66

    I lost my mom recently to this horrible disease. Luckily we kept mom home surrounded by all those who loved her. Mommy you are free now. What a glorious day it will be when we see you again ❤🙏🏼

    • @fluffyanne1177
      @fluffyanne1177 Рік тому +7

      My dads funeral was today. He had early onset dementia and after having the vax his dementia was off the map. Lots of mounting evidence coming out regarding this

    • @janeyd5280
      @janeyd5280 Рік тому +3

      @@fluffyanne1177 I am so sorry Anne. My brother had a stroke on day of his retirement
      He was in his early 60s. When he got the van he collapsed face down and taken to hospital where it was confirmed he had a stroke. It seems similar to dementia.

    • @CovidConQuitTheCensorship
      @CovidConQuitTheCensorship Рік тому

      @@fluffyanne1177 it apparently (vax) makes symptoms worse for existing conditions, cancer patients coming out of remission, cancer is then aggressive which takes their life. I'm so sorry your Dad went through that. Bad enough without the mandated poison making it worse

    • @CovidConQuitTheCensorship
      @CovidConQuitTheCensorship Рік тому +4

      @@janeyd5280 I'm so sorry. Early 60's, the govt needs to pay for their crimes against humanity. I'm hopeful that day will come

  • @markoembarko9045
    @markoembarko9045 4 роки тому +108

    As a caregiver in a Memory Care unit, the family often disappear not knowing how to handle it. It scares them more than the patient.

    • @teresaconiglio3214
      @teresaconiglio3214 4 роки тому +13

      Scares off family and friends when you need them the most!

    • @eltonjohn3236
      @eltonjohn3236 4 роки тому +14

      I have terminal cancer and find the same thing.

  • @donnatate6327
    @donnatate6327 4 роки тому +192

    I think that he was blessed to be spared nursing homes like he wanted.

    • @suzannesandoval973
      @suzannesandoval973 4 роки тому +16

      I agree. I would rather die.

    • @vivianamorrison5753
      @vivianamorrison5753 3 роки тому +8

      I pray for the same ending as GREG. ❤️. So sorry for her loss tho’

    • @Manda11.11
      @Manda11.11 3 роки тому +4

      I think so too XOXO

    • @robjohnson8861
      @robjohnson8861 3 роки тому +1

      So, it was better to burden her. In his mind, it was all about him. Good riddance for her sake.

    • @bev_ovchic76
      @bev_ovchic76 3 роки тому +4

      Yes. It is what he wanted. 😢

  • @enchantedapril5233
    @enchantedapril5233 4 роки тому +63

    My husband was diagnosed at 65. I saw subtle signs long before his diagnosis. When it was becoming more obvious, I had just completed my annual physical. My doctor asked if I had any other concerns, and I was concerned about may husband. The doctor just dismissed my worries. Six months later, I took my husband in and demanded a mental acuity test. He scored 20/30. The doctor was immediately on the phone with a neurologist and neuropsychologist. Further testing showed he scored on a battery of tests from low-normal to profoundly affected. Three years later, he scored 1/30 on the mental acuity test. He is now in memory care. I can understand only 5% of what he says. He hallucinates, and now his gait is being affected. He is 69. He was an English teacher, then a lawyer, then a CEO. He was good with words, but his speech was the one of the first things to fail.

    • @irenerattray7742
      @irenerattray7742 Рік тому +8

      I see your husband deteriorated within 5 yrs. Is 5 yrs the norm to lose memory and speech after around 5 years? I thought 8 yrs was average to lose memory and speech . It's an awful disease. I hope there will be a cure. I became aware of Alzheimer's when l was told that my friend, who had moved to another province, was in an an advanced stage of Alzheimer's . She passed away at age 72. We phoned every day on the landline until she told me her phone needed to be repaired.
      I am looking back and l discovered that she couldn't use the cable. He husband had passed away so she was alone. She visited the UK every year but she suddenly stopped travelling overseas telling me she couldn't leave the cat because the neighbour who injected her cat while she was overseas had left the neighbour.
      Alzheimer's has haunted me since Anne's passing. Fortunately, her husband left her money to lead a comfortable life and her step daughter arranged for her to live in a gated complex in her own home. She had an all day nurse and all night nurse who took her out for walks around the estate. It's scary because many people, myself included, couldn't afford the luxury of a day and night nurse.

    • @irenerattray7742
      @irenerattray7742 Рік тому

      Anne's friend who had injected her cat while she was away left the neighbourhood.

    • @speaktruth9313
      @speaktruth9313 Рік тому +3

      Please look into NPH…normal pressure hydrocephalus… person can come back to life if treated properly, even years later..

    • @JEESSZZOO1
      @JEESSZZOO1 Рік тому

      & if your doc had listened to you you could have begun treatment earlier & staves this off for a period

    • @susanleslie4809
      @susanleslie4809 Рік тому +1

      @ Irene Rattray mayb u should c a dr since u r talking crazy abt a random cat being injected

  • @fortifiedgaze8688
    @fortifiedgaze8688 4 роки тому +21

    The scariest aspect of dementia is not the loss of who you are and your loved ones, but the awareness and fear knowing you will lose everything

    • @susanleslie4809
      @susanleslie4809 Рік тому

      @Fortified Gaze when were u diagnosed with dementia?

  • @markrumfola9833
    @markrumfola9833 4 роки тому +43

    My landlord is in the Veteran Dementia unit. We have been friends for over 50 years. He is 66 & I'm 64. I just woke up & saw this. Thank you so much. Love all of you involved.

  • @lillygirl8436
    @lillygirl8436 4 роки тому +353

    I worked in a dementia ward for 5 years. It's a cruel ruthless disease that takes no prisoners . The youngest we had was 47. I felt it an honor to care for them actually. And it taught me so much 💔

    • @donnarupert4926
      @donnarupert4926 4 роки тому +3

      July Rain....😔

    • @lillygirl8436
      @lillygirl8436 4 роки тому +4

      @@donnarupert4926 💛

    • @virginiaschott4482
      @virginiaschott4482 4 роки тому +9

      Thank you July Rain, My father and I just made the decision to put my mom in home (she is getting violent) Knowing that there are people caring for them that care helps. Thank you.

    • @lillygirl8436
      @lillygirl8436 4 роки тому +3

      @@virginiaschott4482 💚

    • @EmmaDee
      @EmmaDee 4 роки тому +10

      July Rain yes, it takes a truly special, caring, TRAINED and patient person to be a caregiver for Alzheimer’s patients. Sadly, here where I live in the US, even paying $4K a month out of pocket for care, my Dad had SHITTY CARE and had my MOM not been there EVERY SINGLE DAY, there is NO telling how they truly would have taken care of him.

  • @mnmdisney
    @mnmdisney 4 роки тому +82

    I was diagnosed at 50.....just turned 52, and its never a dull moment, which is a sucker punch to the gut EVERYTIME.

    • @marticaL
      @marticaL 4 роки тому +14

      So very sorry, my friend....God Bless and keep you!

    • @blossomofmyheart854
      @blossomofmyheart854 4 роки тому +6

      Hi dear, how are you holding up...?

    • @suek7086
      @suek7086 4 роки тому +5

      Thank you for you for you honesty. My hubby was in the same spot.

    • @raegruder4626
      @raegruder4626 4 роки тому +3

      Keep fighting my friend.

    • @forever1623
      @forever1623 3 роки тому +4

      Please, take Vitamin D3 K2 every Day 10.000ib , and Vitamin B12 , Magnesium, OPC

  • @Mike-ks6qu
    @Mike-ks6qu 2 роки тому +28

    Honestly, losing mental faculties is the most terrifying thing to face as far as I'm concerned. My mother and I have the same thoughts, as soon as you have to wipe my ass, let me die. Saw my grandfather go through it, wouldn't wish it on anyone. To see a once strong and stable man deteriorate to that of an infant, it's heartbreaking.

  • @terrilongden275
    @terrilongden275 4 роки тому +34

    I worked on a dementia ward at the end of most individuals lives, I loved my patients but was a job I could not deal with watching and learning how a person used to be to this person led in front of me wasting away because their brain had wasted away and they could no longer eat or sleep, or dealing with aggressiveness because they didn't know where they were or who you was. It's horrific and the thought of this illness reduces me to tears.

  • @beverlykennedy126
    @beverlykennedy126 4 роки тому +126

    I’ve lived this story my husband gotAlzheimers when he was in his early80s I was his only care taker and life was horrible for the both of us as he got worse the Drs said he had to go to a managed care place . He was only there for a few weeks when he fell striking his head causing a massive brain bleed he died 2 Days later. Even though he got very mean especially towards me. I miss and love him still. Life for me has gotten a lot easier in the 8 mos he’s been gone but because we were married 62 yrs and had 5 kids togather I still think he should be here .. I know one thing I would never want another husband and I kind of like living alone.

    • @Sashazur
      @Sashazur 4 роки тому +13

      It sounds like you had a good life together and you’re smart not to dwell on what the disease did to him, but remember what he was before.

    • @jgjg3848
      @jgjg3848 4 роки тому +8

      God Bless you and your husband's memory Mrs. Kennedy.

    • @MC-in8mc
      @MC-in8mc 2 роки тому +4

      Well done for the care and love you gave him despite the problems. I'm a nurse so know what you would have had to deal with. You deserve to enjoy the time you've got for yourself now😊

  • @donnahague8983
    @donnahague8983 4 роки тому +117

    What a Beautiful couple, so in love even after 20 years...Janet, I'm so sorry for your loss. 🙏 sending you prayers of comfort during your time of need, from the USA 🇺🇸

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

  • @Joy-W777
    @Joy-W777 Рік тому +21

    I agree with Greg saying “we are not elderly so don’t put us in an elderly home!” I totally agree. My husband was diagnosed shortly after we were married and he was 55. He was in late stage 3 then. I never want him to go in a home. He is 6’7” 340 lbs and I am 4’11” and 140… I pray I can find the right help at home. He is former Law Enforcement and I’m terrified that if they treat him bad, he will fight and he will end up in restraints. I pray, pray, pray that I find the right care for him in our home. God bless Greg’s wife and rest in peace Greg.

    • @jenniferloftus2363
      @jenniferloftus2363 Рік тому

      I don't think it's legal to use restraints in the US now. They would be more likely to heavily medicate him for his own safety and the safety of those around him. I strongly suggest you start looking into it now as there are long wait times for almost all services. You should check with his union too.

  • @terrytezzbigtel
    @terrytezzbigtel Рік тому +26

    My dad has dementia (early) and 5 years after diagnosis he is physically the fittest I’ve EVER seen him. I hate to think of him going to an old folks home. I think he would love this village. Also It was heartwarming to see how Janet and Gregg were so devoted to each other ❤😊

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

    • @terrytezzbigtel
      @terrytezzbigtel Рік тому +1

      @@blackfeel9172 ?
      Sorry I don’t understand

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Hi man I mean be good morning to
      Each other can help renew the world do you believe it

  • @mandkqatar
    @mandkqatar 3 роки тому +11

    Such a tragically sad disease. Watching my mum's decline over 7 yrs before passing - truly heartbreaking. Passing was a bitter-sweet blessing.

  • @1Kaileegirl
    @1Kaileegirl 4 роки тому +233

    Janet your love for Greg shone through so brightly
    Greg was a very lucky man to have you by his side
    I'm so sorry for your loss
    I hope you are doing ok
    RIP Greg

    • @starquant
      @starquant 4 роки тому +7

      How about you RIP all the financially destitute women in aged care facilities with the same illness in Australia?. How can you be so dense?. This dude had the best life possible, flash house, flash cars, top paying job, diligent and dutiful wife and even a trip to Denmark. Do you have the Super savings in your own right, so you can buy a flash car and take overseas holidays when you retire?, or are you going to end up with the majority of Aussie women, who get chucked into a facility where you get to starve to death in your old age, just like they did to the Jews in the German concentration camps?. www.thesenior.com.au/story/6278038/malnutrition-a-silent-abuser-in-aged-care/. Take your head out of your arse and see the world as it really is. Why does it take the suffering of a "rich" man to bring out any empathy in a woman?. Go to your local aged care center and check it out for yourself. Chances are you'll be a resident there yourself in the next 40 years.

    • @rebeccalavoy6655
      @rebeccalavoy6655 4 роки тому +28

      @@starquant ...this American is telling you to shut your big trap. Cathyann, was expressing her condolences. Your ignorant tirade was misdirected and inappropriate here.

    • @rebeccalavoy6655
      @rebeccalavoy6655 4 роки тому +15

      Cathyann...your comment was gracious. They were a lovely couple.

    • @starquant
      @starquant 4 роки тому +2

      @Myrt Myrtle My comment is in response to someone who is completely removed from reality. You too, sound like a sickophant (not sycophant). This isn't a new born baby Cathy is cooing over, it's an over privileged cashed up old fart, who can afford to waste his money on a "fact finding tour". Gee I'm so sorry he can't ride his Harley anymore.
      Women will always come to the aid of men and never the other way around... You didn't come running, you sprinted. Did you remember to bring some sandwiches with you, I think the Mens Shed needs some.

    • @starquant
      @starquant 4 роки тому +3

      @@rebeccalavoy6655 How about you give yourself a dose of reality too, or are you independently wealthy in your own right so that this isn't going to be an issue for you?. Because in Australia lack of retirement savings is going to be a harsh reality for 80% of Aussie women. If you don't know what's going on in this country, mind your own business. This story is so one sided it's a joke. Do you think women are cashed up in their own right with their "Super", cause they are not. One in three have no Super at all and those that do will have less than half that of her male counterpart. Why don't they do a story showing how the other half live.. you know the ones with a Vagina?. Because these women have a different life entirely: One that doesn't include overseas holidays and Harley Davidson's, but one of extreme poverty.

  • @lornaklassen8092
    @lornaklassen8092 4 роки тому +16

    I think this is wonderful. My partner did not even get out of the hospital. He passedin july 7 of 2019. I am glad for him, i do not know if his fragile body, could have gone through and survive. I was his caregiver for four months, scared me, his progression was changing, almost daily. I watched it happen in front of my eyes, i had a nervous break down. I cannot even still imagine this wicked disease, wicked, i am so much missing him, i still so miss him, i love him so much, it is almost a year, i still am beside myself. Wicked disease!! I hate it.

  • @hannahrosa5485
    @hannahrosa5485 4 роки тому +164

    My husband developed FTD in his late 50s. He was a professor and after only three years of our marriage his personality changed so dramatically that it became clear he could no longer teach. He was 69 when he passed, a stranger whom I didn't know. I longed for him to come back to me years before he died but to no avail. I still love that man and liked the one he became. I couldn't help myself. Thank you for sharing. RIP Greg.

    • @CharlotteWebb1952
      @CharlotteWebb1952 4 роки тому +9

      I am so very sorry. Sending you love.

    • @AlaskanAndie
      @AlaskanAndie 4 роки тому +17

      I am so sorry my dear. I believe that this is not the end... our deaths are just a transition over to the spirit world!!! I can hardly wait for mine because I live in chronic pain! I've been researching life after death experiences and I'm convinced that we really don't even die... just our bodies do and once your spirit pops out of your body... YOU'RE FREE!!!! They say that there are people like Jesus and family and friends waiting to greet you in a massively huge room like a lobby that's brightly lit up!!! How cool is that??? Oh they told me much more but you'll enjoy researching it for yourself!!! I'm just saying please don't be sad.... You'll see all your loved ones soon enough... Because our time here on EARTH... is a drop in a bucket in comparison to GOD'S HEAVENLY TIME CLOCK!!! GOD BLESS YOU MY DEAR!!!

    • @hannahrosa5485
      @hannahrosa5485 4 роки тому +5

      @@Raminakai blessings

    • @joycefinney2735
      @joycefinney2735 4 роки тому +11

      Joann Smith You have to accept Jesus as your personal saviour to have eternal life.He’s coming back soon,time is running out.

    • @starquant
      @starquant 4 роки тому +2

      @@joycefinney2735 For fucks sake Joyce, go get a frontal lobotomy and take your misogynistic belief system with you. Yes when all else fails... pray to the sky. Get a life, a brain and some common sense.

  • @livingauthenticallyonmyownterm
    @livingauthenticallyonmyownterm 4 роки тому +41

    I am a retired RN who specialized in Dementia/Alzheimer's. I wish homes like this one would be in every city and town around the globe. What a wonderful gift to have such a loving environment. Rest in Peace. Prayers and blessings ♥️🔆🙏🏼♥️

  • @MyHelga1
    @MyHelga1 4 роки тому +64

    My mother has dementia and she has a very hard time with it. I just cannot bring myself to take her to a home.She likes her solitude and to have to change yet another thing in her life would kill her. God bless you mom.

    • @nancynunke9783
      @nancynunke9783 4 роки тому +1

      Go to fb page No Drugs Here Fight Alzheimer's Naturally. Keep going back. They are adding more cures daily.

    • @MaryElizabeth99
      @MaryElizabeth99 4 роки тому +3

      I went through same feelings with my mother. My mother wanted to stay home, so I quit my job of 28 years and stayed with her 24/7 care. I'm so happy I did. I worked in nursing homes when younger and it scared me to put my mother in one. My father had advanced Alzheizer's disease and such cruel illnesses to live with, and so hard on loved ones. This show, Greg and Janet, made me want to cry at several points.

    • @missjo174
      @missjo174 4 роки тому +3

      MyHelga1 you’re an angel and your mum is so lucky to have you. Stay strong . Sending love your way .

    • @missjo174
      @missjo174 4 роки тому

      Nancy Nunke what a lowlife you are

    • @missjo174
      @missjo174 4 роки тому

      MaryElizabeth99 fair play to you. God forbid if that time ever comes in my life , I would like to do the same for my parents ....

  • @gilliandelledonne4713
    @gilliandelledonne4713 Рік тому +10

    I watched my best friend die of early onset dementia. In her early sixties, she went to casually forgetting things, to a quick slide down with no chance of reversal. There were days when she'd rave at me about who I was or why I was ignoring her even though I did not. Her daughter was and still is a saint, she cared for her until the end. I miss her dearly, but I'm also grateful that she's no longer trapped inside her body.

  • @rhondaholland719
    @rhondaholland719 Рік тому +19

    America should take a lesson from these. Our senior and dementia care is pretty much non existent. Thank you Janet for sharing you and Greg’s story may he rest in peace 🙏🏻

    • @lesliecurran1704
      @lesliecurran1704 Місяць тому +1

      Here in America instead of this we have billionaires who have to have more houses and cars and stuff. Think of the things that these people could do to help others, to give back to the community, there are so many ways you could change the world if you had that kind of money. Instead, here in America we are obsessed with money to the point of pathology. These kinds of facilities should literally be a necessity, not a luxury and available to anyone who needs it.

  • @christian5707
    @christian5707 4 роки тому +30

    My mom was about the same age when she started acting odd, took about 3 years for my dad to finally allow me to take her to the doctor. She was diagnosed with picks disease it’s a frontal lobe dementia. Here in the US care options are limited so my dad took care of her. For about 6 years before he became ill with cancer. She died 2 weeks before him. It’s such an ugly disease, watching your loved one just fade away, not being able to speak, eat, walk...

    • @blackfeel9172
      @blackfeel9172 Рік тому +1

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

  • @adamkirby2570
    @adamkirby2570 4 роки тому +77

    What a sad story. What a love story. Greg was so lucky to have such a caring and loving wife until the end. You could tell in her eyes how much she loved him. I'm so sorry for your loss🙏

  • @nolagirl7082
    @nolagirl7082 3 роки тому +19

    I recently saw a long documentary, I wish I could remember what it was called for a reference but it was about this guy named Malcolm and his wife. Malcolm got Alzheimer’s/dementia and within 2-4 years, he was an absolute vegetable! He could not walk, dress, eat by himself. He needed full round the clock care and it ended up being such a strain on his wife who was caring for him all by herself in those first few years. After the first few years he became completely incapacitated and helpless and ended up in a home. He went on to live for 15 years!! And it only took a few years to get him to that “vegetable” point, so he had to spend the next 10-12 years living in a shell of himself and had to drag his poor wife and family through hell. After watching that, I truly believe Greg Kelly and his wife were totally spared by the universe! I know Greg said that the goal was to be one of those people who lasted 25 years, but at what quality of life? I hope his wife is able to move on and find love again. She is still so young and beautiful

  • @claudettemonty4077
    @claudettemonty4077 4 роки тому +73

    I was a R.N. with Alzheimer patients and that village is marvellous for them. It’s make them keeping their dignity!

    • @shaneluke346
      @shaneluke346 4 роки тому +5

      I am surprised he is STILL DRIVING , he SHOULD of been TOLD or at least ADVISED to STOP AGES ago as he cause SERIOUS to NOT ONLY HIMSELF but other people and sadly HE will get the BLAME because of his health , but sadly he is NO LONGER ALIVE , MY DEEPEST sympthies go out to not only his wife but also his family XX GOD BLESS and take care

    • @grayskindablue
      @grayskindablue 4 роки тому +1

      Melissa Blanchard Nope, that’s a place in Denmark.

  • @LBart218
    @LBart218 4 роки тому +36

    This was heartbreaking to watch, as my mother dealt with it as well. Bless Janet for being such a patient, understanding, and loving wife.

  • @dm4469
    @dm4469 2 роки тому +29

    I just recently lost my mom to dementia, and terrible health issues that she had. She had very severe symptoms, and acted out tremendously. The fact that she also had an ileostomy made things so much more difficult and complicated. The Healthcare System here in the US failed her! She never even got a diagnosis until she was having severe symptoms. We don't even know how she was really making it. She was a very intelligent woman with a strong mind, and I think that's what got her through for so long. Dementia is such a heartbreaking disease. It just completely Rob's a person of their life, and Rob's their loved ones as well. This story was so sad. I wish that they had Villages like this one everywhere for people with dementia. My mother was badly abused in a Memory Care Facility. She ended up with fractures and bruises all over her. I will live with guilt for the rest of my life because I should have never put my mother there. But I was all alone with no family and help for my mother and her care was extreme. The system here did not allow for me much help and they had a hard time finding a caregiver, and didn't even want to give us enough care. And when you are not well-off or wealthy it makes every bit of difference. As was said in the video, this is so much harder for people who do not have money. What a tragic illness this is. And I'm terrified because I'm starting to have problems with my memory and cognitive abilities as well. I'm only 59 years-old.

    • @irenerattray7742
      @irenerattray7742 Рік тому +1

      I hope you don't have dementia. The dementia home in Denmark was almost free for the patient's because the citizens pay high taxes. The welfare system is excellent with top education for all and free uni.
      I am also scared about getting dementia.
      The couple who visited Denmark are probably affluent so they would have the finances to pay a million to obtain permanent residence. His wife who appeared younger would have no problem getting a job .

    • @denastanley2255
      @denastanley2255 Рік тому +3

      I'm 61 and have noticed for about a year that my brain just blanks out. Dad had dementia. im still doing good. I had to back off some of my activities because I couldn't remember stuff. that has helped a lot. I just tell myself 1 day at a time. stop worrying about stuff in the future, just live for today. that has helped me too.

    • @JEESSZZOO1
      @JEESSZZOO1 Рік тому +1

      Speak to your doc & start meds to slow

    • @jenniferloftus2363
      @jenniferloftus2363 Рік тому +1

      @@irenerattray7742 When you look at the overall taxes they pay and then figure out what we pay in the US for taxes and for medical coverage and copayments and the like, they are paying less.

  • @myroom4640
    @myroom4640 4 роки тому +127

    Broke my heart when the poor wife started crying. She said she wants to nurse him til the end. What a hideous illness.

    • @HandbagDiva
      @HandbagDiva 4 роки тому +4

      My Room I think she knows Greg was going to choose when he checks out.

    •  3 роки тому

      Its too devastating. Heartbreaking.

    • @robjohnson8861
      @robjohnson8861 3 роки тому +1

      He was a selfish ass. It's not all about him. Good riddance and now she is free. Too bad she has his selfishness at the end to remember.

    • @robjohnson8861
      @robjohnson8861 3 роки тому

      @Andrea Wylie Stop enabling. He clearly knew what he was saying.

    • @catg714
      @catg714 3 роки тому

      @@robjohnson8861 It is unfortunate.. but I do tend to agree.. have a friend who worked in dementia care nursing for years who confirmed..as I'm currently living with a relative with dementia.. it peels the layers of societal expectations & uncovers their true personalities.. She said most were sad cases.. but many were not nice underneath it all. I'm currently living with one who is still semi capable of living on his own but is still best off with us..but I am learning so much about the difference between the symptoms of the disease...and who he really is... and how he's been really good at fooling alot of people for a long time.. I am trying very hard to be more understanding.. But when you don't have the emotional attachement..you really do see much clearer... I have SO much respect for all the caregivers who have the patience & kindness & commitment to this vocation..

  • @bobbypaluga4346
    @bobbypaluga4346 5 років тому +71

    What a crushing development for both Janet and Craig. I feel terrible that this disease took one too young. I’m 67, retired from a 30 year career in pharmaceutical sales, single and living in Arizona, it scares the hell out of me to think I might be among those who will also be fighting dementia. Janet I wish you the best in life, I’m sorry for your loss.

    • @shiningstar3312
      @shiningstar3312 4 роки тому +7

      Dear Bobby........do not be afraid....ask God that u do not develop symptoms of this disease, then do EVERYTHING to prevent it.............see Fransescas post above for tips on prevention..........u could also ask God to send u a loving caretaker.........trust me, He will........also, share what u have.........be blessed

    • @ritajimmie3361
      @ritajimmie3361 4 роки тому +4

      Yes same @ Bobby Paluga. I live alone too

    • @shiningstar3312
      @shiningstar3312 4 роки тому +3

      @@holycow3355 ...well I guess someone hates the name of God.........u will not know unless u try it.......so go on now.......u have nothing to lose but everything to gain.......!!!!!

    • @motelman6036
      @motelman6036 4 роки тому +6

      @@shiningstar3312 Yes God will answer. I found a book in a thrift store called "A more excellent way" by henry wright. It is so awesome, their is a cure for most dis-eases, and yes it is through God, He made us and we have to have a sound mind.

    • @shiningstar3312
      @shiningstar3312 4 роки тому +4

      @@motelman6036 Amen

  • @daddybob6096
    @daddybob6096 Рік тому +5

    I am an 82yo New Zealander married to the most wonderful Filipina lady in the world. I don't have dementia but i have a younger brother and a younger only sister who do. I know i shouldn't cry watching Greg and Janets story, but i did, especially the Kiwi label on Janets jacket told me, they have been here. It was terrible for me to hear of Gregs passing. Poor Janet, be brave, you have to move on, i know it's not easy. God bless you. Bob and Lina. New Zealand.

  • @61detlef
    @61detlef 3 роки тому +13

    I've heard so many wonderful things about this Village. I watched my Mother-in-Law go thru this dreaded disease. I would not wish this on my worst enemy. It stole her life, her zest, her memories ...

  • @AsAboveSoBeelow
    @AsAboveSoBeelow 2 роки тому +10

    We lost my grandfather (Papa) January 16, 2021 from dementia. Because he lived in England and it was the height of the pandemic, we could not make it there to be with him in person before he died or to be at his memorial service. We did get to say our goodbyes via video chat but obviously that was all we could do in those circumstances. I miss him every day and knowing places like this exist in the world give me great peace of mind and it puts gratitude and healing into my heart and soul. Thank you for your journey, Greg and thank you for allowing your story to be shared with all of us. You remind me so much of my Papa and what he went through. Love to you and your precious family 🖤

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

  • @elisewalther6142
    @elisewalther6142 4 роки тому +14

    My husband died of dementia 5 weeks ago. He was diagnosed 8 years ago. I kept him at home until the 4 last months were I couldn't manage it on my own. It was a hard but also beautiful time. The brain is severely damaged, but the affect and tenderness remain. He spent the last weeks of his life in a nursing home, here in France were we live, and was very very well looked after. I was with him every day and could even sleep there, if I wished. But indeed, it was very expensive, but it didn't matter to me, because I knew he didn't have years to live. I miss him terribly...

    • @sylvievicenza179
      @sylvievicenza179 4 роки тому

      Élise je t offre mes sympathies.

    • @puddlespickles8810
      @puddlespickles8810 4 роки тому

      Elise im so very sorry to hear, you have to remember, you was with him every step of the way, with this journey, im sure he will be looking down now, thanking you and wanting you to enjoy your life, because this condition puts life into perspective,

  • @violetbrown3817
    @violetbrown3817 4 роки тому +14

    I am so sorry for your loss. My father developed it in 2013 and died from it in 2015. The disease has no mercy or remorse.

  • @user4488
    @user4488 2 роки тому +30

    This is a place I would want to live should I suffer from dementia. I take my hat off to these people who offer this profound care.

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

    • @marygachwe488
      @marygachwe488 Рік тому

      ​@@blackfeel9172

    • @blackfeel9172
      @blackfeel9172 Рік тому

      @@marygachwe488 hi baby

  • @christinedavis5813
    @christinedavis5813 Рік тому +6

    There are No Words Except Thank You To all the people who made this place happen in Denmark you are Something special to have this Place From the UK

  • @janetbrowning9089
    @janetbrowning9089 4 роки тому +98

    This breaks my heart...I hate terminal illnesses...they all just plain suck!! I lost my husband, when he was just 51 to his 3rd & final bout with cancer, that he got from Agent Orange, when he was stationed in VietNam during the war there. I hurt so bad losing him...we had lost our baby daughter 20 years prior to his death, when she was just 8 months old...I am 70 & alone now. Last year I lost my baby sister who was born Down's, at the age of 58 with what started out as dementia & then went into full blown Alzheimer's. I had already lost my Dad in 2009 to cancer too...I helped my mother care for him...my other brothers & sisters all had families & obligations & I didn't, so it seemed I was the only one who could help out. I took care of my hubby too, when he was dying...at home for 13 months & then at the VA hospital for the last 5. I stayed with him the entire time...I went with him in the ambulance & never left until after he passed away...wherever he was, was home for me too. I have lost numerous friends to cancer too...there is no one else here anymore, that I am close to or really know...so, I stay alone. I can't really leave to do much anyway, as I have medical issues now too...the only place I make it to, is the hospital for shots, blood draws or doctor appointments. It's OK...I am not feeling sorry for myself, but I so hate hearing that others are out there suffering with terminal illnesses...it breaks my heart all over again, every time I hear their stories...but, I want to hear them...because I care. I wish them all Blessings, hugs & love...from someone who has been there on the other side looking in & desperate, but unable to do anything to really stop what was happening to the person I loved so much...I think the hardest part of all these diseases is having to give in to not being in charge of yourself or your life any longer.🙏💖RIP Greg & I say a prayer for Janet...

    • @shellyb.5224
      @shellyb.5224 4 роки тому +14

      Janet, I really appreciate your comment. Your comment was written 3 mos ago so I don't know if you will ever see my reply. Please hang in there and meet other people. It's so obvious to me that you have a lot to give to others.
      My husband has CBD (Corticobasal Degeneration, a form of Atypical Parkinson's with dementia). We have been married 4-1/2 years, he's been having symptoms for the whole time but we didn't see it at first. He's 59 now, I'm 56.
      We must all give to others of ourselves, as that is the best gift we can give anyone. I truly hope you are doing ok and I'm praying right now for your health, and that your loneliness dissipates into a love filled life.

    • @janetbrowning9089
      @janetbrowning9089 4 роки тому +12

      @@shellyb.5224 I, too, will pray for both of you, but it still breaks my heart every time I hear stories like this. I do understand what you are saying and that you are well meaning, but it's hard for me to meet other people, because of my medical issues now and also because I am not outgoing...I never have been one to be really out there socializing. I did, however, have a wonderful life with my husband...he was the first man I ever dated and I was lucky enough to marry him, as well. He was such a good person, with a huge heart and beautiful soul and our baby was so beautiful and sweet too. I know where they are, they are not suffering any longer, but I still grieve for them both every day. When he was in the service, we both loved it...I was so alive then and was fortunate enough to join him in Korea and Germany...I so loved both places so much...the people in both places were so loving and giving. I have lived a good life, believe me and if I had to do it all over again, I would make the exact same choices...I would just pray to have them both a lot longer...like I am pretty certain you and your hubby may well being doing now too. Hugs, Blessings and love to you both and thank you for taking the time to write this comment...💖🙏💖💑

    • @marilynwisbey9446
      @marilynwisbey9446 4 роки тому +8

      Janet your a angel 🌹🙏me too , nursed mum with Alszemiers , dad with a stroke! God bless you x

    • @janetbrowning9089
      @janetbrowning9089 4 роки тому +8

      @@marilynwisbey9446 Thank you, but I'm not an angel...I've just done what I did out of love, but thank you so much and may God Bless you as well, my friend. We have both been there and we understand the pain of seeing someone we love fade from us.😊🙏💖

    • @justelleslife507
      @justelleslife507 4 роки тому +6

      @@janetbrowning9089 I too am all alone but not for the same reasons as you, if you lived near me I would visit you and be your friend so you wouldn't be alone. We must be around the same age as my brother (died 2004) was also in Viet Nam. The hardest thing we all go through is the separation of those we love through death, my definition is: You leaving your body, they see us but we can't see them.

  • @nickicouture7297
    @nickicouture7297 Рік тому +9

    The dementia village is so sweet. I would work there if I could.
    I used to work the LTC wing at a nursing home and the dementia patients had my heart ♥️

  • @puddlespickles8810
    @puddlespickles8810 4 роки тому +175

    Denmark is amazing, wish we had this in the uk, they have more staff then patients, now that tells you a lot

    • @raegruder4626
      @raegruder4626 4 роки тому

      I was going to say something, I just can't remember

    • @michellelammi787
      @michellelammi787 3 роки тому +3

      Who will pay for it all? These things are not cheap. And the dementia residents in Denmark are clearly not very far along in their journey. There sufferers in a whole lot worse condition. They can be violent and unpredictable. They could never live in places like that one in Denmark.

    • @tmfromdenmark9158
      @tmfromdenmark9158 3 роки тому +9

      @@michellelammi787
      How do you know?
      Denmark can afford this, because we pay a high tax, and I do it gladly. We have 2 houses 2 cars, so if you have a high income you pay more in taxes.
      That how it works.
      I have my grandma in this home. They know how to handle dementia, and therefore the residents does not get upset or afraid.... You know clearly nothing about this.

    • @wonderfulwenna2710
      @wonderfulwenna2710 3 роки тому +1

      TM Denmark I hope they will build some of these towns in Canada, such a great idea for everyone😊

    • @taraalan1131
      @taraalan1131 3 роки тому

      TM Denmark In UK , people have to sell their homes to pay for their care unless they have unlimited capital or Health Insurance. As we have - at present- got the NHS , many people don’t have Insurance. I completely understand the previous comment.

  • @Hana.Behl-Lecter
    @Hana.Behl-Lecter 4 роки тому +20

    The village is such a brilliant place that everyone deserves access to. Especially that their partners/family can stay there too...that's so important!

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

  • @lauralaura2293
    @lauralaura2293 4 роки тому +36

    Greg such a wonderful man...rest in peace!

  • @iSpike
    @iSpike 5 років тому +68

    RIP Greg mate. You Sir will LIVE ON in the hearts of all those who loved and still love you. On day I’ll meet you on the other side. Bless you Nicole 🙏🏻

    • @claudiosalib774
      @claudiosalib774 4 роки тому +7

      It is very confronting to see this lovely couple, Mr Greg Kelly and his delightful wife, Mrs Janet Kelly of a forty year marriage experience what must have been a terrifyingly horrid stage in their lives. Mr Kelly was quite an imposing man despite his diagnosis and would have intimidated anyone daring enough to get in his way. His wife however seems the opposite and appears as a loving angelic wife whom cared profoundly for him and would have been willing to sacrifice anything to keep her husband from leaving her side to avoid entering a nursing home. The couple's overseas trip to Denmark was an eye opener for any wealthy Western country willing to adopt a similar strategy in dealing with the onset of early Alzheimer's for younger citizens. This documentary has been both a heartwarming and emotionally charged account of fierce independence whilst allowing the viewer the privilege of being educated to matters that we hope will never need to face ourselves. It was sad to learn at the end of the documentary that Mr Kelly had passed away. A documentary of required viewing for anyone wanting an insight to our latent final calamity.😔

  • @joannclinedinst2729
    @joannclinedinst2729 Рік тому +5

    I lost my husband September 2014 its sad t watch them dissapear I was blessed 4half yrs to take care of him at home prayers for all who have gone through this

  • @sexyscorpio8087
    @sexyscorpio8087 3 роки тому +16

    WHEN I SAW THIS. I CRIED BECAUSE I LOST MY OWN. GREG. TO THIS ILLNESS. HE'S IN A NURSING HOME RIGHT NOW. HIS B'DAY IS 10//1960. GOD BLESS❤

  • @weepingwillows21
    @weepingwillows21 3 роки тому +11

    Janet, you and every person who's ever cared for anyone with this illness are true survivors. Greg was very lucky to have you love him the way I'm sure you still do today. Many hugs and much love.

    • @digitalisrajzokmuszakirajz2962
      @digitalisrajzokmuszakirajz2962 3 роки тому

      Marian mondta ... Úgy döntöttem, hogy ezt a bejegyzést vagy tanúvallomást nyilvánosságra hozom. A férjemnél tíz évvel ezelőtt diagnosztizálták az Alzheimer-kórt. Nagyon szerettem a férjemet, és szívszorító volt, hogy Alzheimer-kórja kialakult, és mellette állva figyeltem, ahogy csökken a képessége arra, hogy vigyázzon magára, és mindennapi feladatokkal küzd. Elveszi az emlékezetét és végül az alapvető feladatok elvégzésének képességét. Az Alzheimer-kór nem csak a diagnosztizált személyt érinti - gondozójaként is felforgatja a világot, ha a szeretett ember küzd az állapottal. Hogy világos legyen, nincs gyógyszergyógyászat, nincs olyan mágikus tabletta, amely bármilyen jelentős hatást gyakorolna a betegség progresszív lefelé tartó lefolyására. Addig nem, amíg használunk egy BRONGEE nevű gyógynövény gyógyszert, amely véget vet neki. Jól van és a legjobb életét éli. Bár lehet más más lehetőség is. Soha ne titkolja saját sikerútját. Nem lehet szégyen. Lépjen kapcsolatba Dr. Rohannal a dr.rohanronjohn@gmail.com címen. Ez neked is segíthet12:35 PM

  • @bikinggal1
    @bikinggal1 4 роки тому +30

    I would rather die suddenly..and I would wish that on any family member too...so horrible this disease

    • @donnabonn1892
      @donnabonn1892 3 роки тому +2

      Did he commit suicide.?
      The sudden death.

    • @frcluc
      @frcluc 3 роки тому

      @@donnabonn1892 I tbought the same thing. But that's better than having to live with the disease and hurt everyone around you in the process.

  • @lindauribe6872
    @lindauribe6872 4 роки тому +31

    I lost my husband a few months ago to the same thing. I feel your loss 🙏.

    • @CharlotteWebb1952
      @CharlotteWebb1952 4 роки тому +3

      I am so very sorry. I'm sending you hugs and love.

    • @yarnpower
      @yarnpower 3 роки тому +1

      So sorry for your loss. My clever mother-in-law suffered from it for 7 years. It is so sad to slowly lose them.

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

  • @dbkyhere9229
    @dbkyhere9229 4 роки тому +52

    Thank you for showing what’s possible for some, and my condolences to Greg’s Family!❤️🙏

  • @shelleyledgett9237
    @shelleyledgett9237 4 роки тому +72

    Denmark has a wonderful attitude about this disease

  • @Kiwiwanderer
    @Kiwiwanderer 3 роки тому +16

    Beautiful caring wife. What a good human being.

  • @karenlouks3636
    @karenlouks3636 4 роки тому +242

    United States of America needs to listen to this and do something about our own care they don't do enough for the elderly when a person gets to that stage cost so much just to live with the worst care it's barbaric

    • @TakaPvP
      @TakaPvP 4 роки тому +12

      You better not give the person who made you, fed you , cleaned you, loved you, cried for you, to a goddamn stranger in a strange home!

    • @aircamflyer
      @aircamflyer 4 роки тому +15

      @ASG66 What kind of person are you? I may not totally agree with Karen's statement but, I treat everyone with respect. ...except petulant children like yourself.

    • @aircamflyer
      @aircamflyer 4 роки тому +16

      @@TakaPvP Most facilities are good and some are excellent. I care for my wife at home and promised that I'd keep her there. That said, I have had her stay at a daycare a few times when I had to do something. She enjoyed every minute of it despite my hesitation to leave her there. It was like leaving your child at kindergarten the first time.

    • @aircamflyer
      @aircamflyer 4 роки тому +20

      Under the present administration, there have been many changes to the dementia care community. I'm on several committees and a congressional delegate to congress as an advocate for caregiver support and long term care options.
      I am actually planning a care facility similar to this.

    • @karenlouks3636
      @karenlouks3636 4 роки тому +1

      How different how similar and how many it is not run like this one I don't think it'll work I thought that you'd be soon nursing homes do not work too many greedy people run them what's up nothing needs a deceitful still have to prove what you say to me

  • @deedeegreen8338
    @deedeegreen8338 4 роки тому +18

    That village is a brilliant idea. My father died from Dementia related illness, and one of the saddest thing to witness, is the lack of structure and socialization for the patients. Dad had wonderful care where he was, but the patients just languish. What that village offers is a sense of some control over their lives, plus the fact that they have their own apartments, but are still cared for 24-7. And the tracking device is crucial. There are too many stories of Dementia patients who wander away and some perish. I wish we had that here in Canada.

  • @susiepoo51
    @susiepoo51 4 роки тому +84

    A tracker would be good to use BEFORE the wandering starts.

    • @TheBrytstarr
      @TheBrytstarr 3 роки тому

      The USA is BIG on tracking its citizens and it's only going to get worse..

  • @purpleviolet207
    @purpleviolet207 4 роки тому +11

    So sorry for your loss. I'm mourning my mom who also passed away from dementia and heart disease on February 23rd. 2019. My deepest sympathy to you and your family. ♥️♥️♥️♥️

  • @joancahill6039
    @joancahill6039 5 років тому +41

    As a dementia specific nurse I love this stories although heartbreaking; it raises awareness to this disease; thank you so much for sharing; rip Greg : xxx

    • @claudiosalib774
      @claudiosalib774 4 роки тому +3

      It is very confronting to see this lovely couple, Mr Greg Kelly and his delightful wife, Mrs Janet Kelly of a forty year marriage experience what must have been a terrifyingly horrid stage in their lives. Mr Kelly was quite an imposing man despite his diagnosis and would have intimidated anyone daring enough to get in his way. His wife however seems the opposite and appears as a loving angelic wife whom cared profoundly for him and would have been willing to sacrifice anything to keep her husband from leaving her side to avoid entering a nursing home. The couple's overseas trip to Denmark was an eye opener for any wealthy Western country willing to adopt a similar strategy in dealing with the onset of early Alzheimer's for younger citizens. This documentary has been both a heartwarming and emotionally charged account of fierce independence whilst allowing the viewer the privilege of being educated to matters that we hope will never need to face ourselves. It was sad to learn at the end of the documentary that Mr Kelly had passed away. A documentary of required viewing for anyone wanting an insight to our latent final calamity.😔

    • @claudiosalib774
      @claudiosalib774 4 роки тому +1

      @family tea and lots of yarn. Thank you.

  • @kr5289
    @kr5289 4 роки тому +109

    my mom got this in her 60s and we took care of her till the Lord called her home I can tell you that if you know the Lord you are much better off than here on earth living with this terrible illness

    • @user-jc8py7dw7r
      @user-jc8py7dw7r 4 роки тому +8

      Kenneth Russell This isn’t the place to discuss your religion.

    • @Lifeisshortmakeitcount
      @Lifeisshortmakeitcount 4 роки тому +4

      S. G. Looks like the vote is 36 to one.

    • @krisc5508
      @krisc5508 4 роки тому +19

      @@user-jc8py7dw7r , and you have no right to tell others what to do . if she wants to talk about the Lord she has every right to .

    • @Secular-Serenity
      @Secular-Serenity 4 роки тому +2

      Oh stop marketing your religion. This is a serious subject.

    • @kr5289
      @kr5289 4 роки тому +5

      @@Secular-Serenity Sorry didn't mean it in an offensive way at all. I know exactly what your going through.

  • @nickywilks7928
    @nickywilks7928 4 роки тому +20

    Wow, life can be so cruel. This is an eye opener that's for sure.

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

  • @jesusistheanswer2074
    @jesusistheanswer2074 5 років тому +29

    What a beautiful idea! Thank you for raising awareness of such things, all people deserve care and this is truly wonderful.

  • @nbrown8464
    @nbrown8464 Рік тому +7

    God bless Greg Kelly, his wife Janet and their family. What an amazing story. Thank you for sharing it with us. And thanks also goes to Australia for creating a village for those of us with dementia!❤

  • @melaniejonker8828
    @melaniejonker8828 2 роки тому +10

    We could do with more of these 'towns/villages'! I would stay there without doubt.
    RIP Mr Greg.

    • @hoodatheist5549
      @hoodatheist5549 2 роки тому +1

      it sounds nice, it will drive you crazy.

  • @kkdoc7864
    @kkdoc7864 3 роки тому +20

    What makes me extremely angry is that it took 4 YEARS to diagnose him. Unforgivable. I’ve seen that happen when incompetent drs think it’s not possible for people in their 50’s or even younger to develop dementia.

  • @carolking6355
    @carolking6355 4 роки тому +14

    I really appreciated this film. Thank you for being brave enough to do this. My husband had a heart attack at 69. He had retired at 67 from a very responsible management position.
    He put the occasional lapses of memory down to that only I felt something was wrong. Over 3 years I took him to several doctors who made me feel very silly. One day I was telling a new dr. who I was seeing on my own behalf a funny story about my husband. He didn’t laugh and said bluntly that he had Alzheimer’s. The next day we went back to his dr. and I demanded a brain scan.
    He had a large hole in the frontal lobe. We continued together for eight years but over the last 6 months he developed bowel cancer. He went into care 3 weeks ago but is too frail for treatment.
    Luckily I have his enduring power of attorney as even at nearly 80 his dr. Wanted to give him chemo and radiation. He even wrote me a letter threatening me that he would have
    that taken off me. I talk to my husband every day by phone and often he sounds quite normal although he never knows what he had for his last meal and can’t picture his home. He feels he is different
    to the other residents and still asks if he is always going to be in there. It is very sad. I was given an antibiotic 3 months ago called Nitrofuritoin for a bladder infection and it paralysed
    my feet and some fingers. The nerve damage is irreversible. That is why he had to go into care. Thank you again so much for being brave enough both of you to take this film and for you his
    wife to share.

    • @dp7047
      @dp7047 4 роки тому +1

      Macrobid did that to you? Woww

    • @Sashazur
      @Sashazur 4 роки тому +2

      It can’t be easy to decide to withhold cancer treatment from your husband but it seems like a wise decision; you need to report that doctor for interfering. You also should talk to an attorney about the injury you got from the antibiotic. Some money would be helpful to you right now.

  • @ed7519
    @ed7519 4 роки тому +22

    Anyone who has a heart who would like to do Dementia caregiving it's a growing profession worldwide. Assisted living residences always can use volunteers as well. Thank you to those Angel's who reach out and care for the most vulnerable among us. 💗

  • @DubTheG
    @DubTheG Рік тому +5

    Rest easy dear friend.. Dementia is such a terrifying, earth shattering disease.. My deepest condolences to Mrs. Kelly.. My heart shattered for her when she said she would prefer to nurse him herself and be with him until the end.. life is such a cruel blessing

  • @sweetbeeluvera1450
    @sweetbeeluvera1450 3 роки тому +13

    You know it's sad to say this but I'm glad he didn't linger on with this disease and was spared the worst of it! RIP friend may your wife find some peace in all this!

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

  • @lowesonia8551
    @lowesonia8551 4 роки тому +31

    Very Sorry for this Loving Couple. It seems so unfair when you look young that your faculties disappear. It is sad when your life span is taken away so insidiously. My respect to Greg's devoted Wife.

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

  • @jennywinget1144
    @jennywinget1144 4 роки тому +28

    This was a very enlighting video and also sad. I am sorry for your loss Janet.

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

  • @tooba1819
    @tooba1819 3 роки тому +3

    Is anyone else bursting in tears after watching this???? I'm just grateful to have maybe more time with my loved one now!

  • @jo-anncleroux4528
    @jo-anncleroux4528 Рік тому +2

    I just lost my husband on October 17,2022 he was with me at home. He was 57 years old.

  • @HDWorldclass
    @HDWorldclass 4 роки тому +5

    Rest In Peace now Greg , you didn’t have to suffer too much longer . Janet Thankyou for sharing this and I hope life treats you gently now

  • @poppykok5
    @poppykok5 4 роки тому +18

    This was so deeply, darkly & profoundly difficult to watch...I feel almost "empty" inside just imagining the horrific grief families & patients must endure...

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

    • @poppykok5
      @poppykok5 Рік тому

      Black Feel...Your comment couldn't be any more irrelevant to this story!!! What does it have to do with such a sense of profound grief & loss of life the families & friends must be grappling with???

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Hi baby I mean be good morning to
      Each other can help renew the world do you believe it

    • @blackfeel9172
      @blackfeel9172 Рік тому

      @@poppykok5 hi baby

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Hi how are you doing baby

  • @honeybuzzard2843
    @honeybuzzard2843 4 роки тому +27

    RIP Big Kell
    Beautiful Couple

  • @annetteelliott1494
    @annetteelliott1494 3 роки тому +10

    At 75 and in exellent health, losing my independence is my biggest fear.....

  • @myrtleesther8855
    @myrtleesther8855 3 роки тому +10

    so sad when 2 swans are separated by this awful condition even before the final parting. prayers said for you both.

  • @dr.barrycohn5461
    @dr.barrycohn5461 Рік тому +1

    Only 59. Whoa! Thanks for this look into one man's life.

  • @excessmeteor9704
    @excessmeteor9704 3 роки тому +11

    So much love to Greg and family. Also Denmark you’re amazing care facility should be the standard of care everywhere!

  • @favoritemelodies9995
    @favoritemelodies9995 4 роки тому +14

    So heartbreaking...Such a devastating condition...

  • @pearlyq3560
    @pearlyq3560 5 років тому +8

    Deepest Sympathy. Very sad and touching. God Bless from Canada.

  • @higgyrow
    @higgyrow 3 роки тому +25

    We are so far behind in New Zealand to how Denmark approach and respect people with dementia. I hope that we can adopt the Denmark methodology. Thank you

    • @franklinstephen3268
      @franklinstephen3268 Рік тому

      Hello 👋 how are you doing?

    • @blackfeel9172
      @blackfeel9172 Рік тому

      Don’t think you can attain total awareness and whole enlightenment without proper discipline and practice. This is egomania. Appropriate rituals channel your emotions and life energy toward the light. Without the discipline to practice them, you will tumble constantly backward into darkness A negative outlook is dangerous. When you say, “It can’t get any worse!” You’re essentially challenging the universe to do exactly that.”

    • @debratansey6074
      @debratansey6074 Рік тому

      Same in UK its shocking

  • @Marycedarcreek
    @Marycedarcreek Рік тому +6

    The story is a sad one but also inspiring. He was blessed that he was so loved. And the facility looked like a good one. I judge them by going in unannounced and seeing how the nurses are reponding with patients and if most patients can smile. I might even ask a couple of them if they had a good lunch today. It is something very hard to face if it's us or a loved one going through it. Seems something is wrong in Austrailia, that could be looked into, considering how many cases there are. But what a touching story. Thank you 🙂

  • @tedrobinson5743
    @tedrobinson5743 5 років тому +12

    You've Got me Crying Watching This.. God Bless

  • @Anth4044
    @Anth4044 4 роки тому +14

    What a beautiful couple, RIP GREG🙏💔

  • @cametientaucoeur
    @cametientaucoeur 4 роки тому +30

    When my father in law had early onset dementia he would run off in the car. He wanted to keep his car keys. I had my mother in law have a car key cut that did not fit & put on his ring.
    He then would come out & ask us to help, we would offer to drive with our good keys & all was fixed. Jeanne

    • @ninajohnson2137
      @ninajohnson2137 3 роки тому

      Thanks for this!

    • @sturs100
      @sturs100 3 роки тому

      Thankyou for sharing experience with this illness, I want to learn and you presented problem and solution

  • @maryc7830
    @maryc7830 Рік тому +5

    My mother has dementia. And if you ask her she said she doesn’t. It’s very stressful . I only wish for the best. ❤

    • @Harry-fk5of
      @Harry-fk5of 10 місяців тому +1

      That was my grandmother, she would say 'oh I just forget things now' but in a matter-of-fact kind of way. Even when she needed 24-hour care she wouldn't accept that she had dementia, I think it was her way of holding onto the very little control she had so we just went along with it and agreed with her that she just forgets things (I mean she wasn't wrong haha) and instead always focused on what was happening in the moment.

  • @keithsteffen5770
    @keithsteffen5770 Рік тому +3

    Such a sad story. I could feel the love they have for one another. It must have been so hard for her to lose him that way.. Keith (In Florida USA)

  • @jeannemccloskey9416
    @jeannemccloskey9416 Рік тому +3

    Thank you for this glimpse in a place that looks happy and satisfying as compared to the dementia care wings of independent/dependent living apartments that I have seen in Illinois/U.S. I appreciate Janet & Greg's story and hope Janet is doing okay now, having lost the love of her life so soon. What a love story. I wish my story was so uplifting. My 77 yr old husband with Alzheimer's will not admit, accept/go along with in any way his diagnosis. His diagnosis was 6 years ago but I know he had this coming for many years before that. He is at home and I know it will get more and more difficult. I know he will resent anyone else coming to take care of him. He is not social, does not make friends easily and only hobbies were the puttering and fixing of things around the house. He can't do those now as his memory is gone and cannot follow any steps. He is healthy as a horse physically. So what do I do??? I just take him everywhere I can. He needs to get out and see different things. I manage it all at home and try to mitigate any of the troublesome things he might do at home. Fortunately he doesn't walk out of the house. I will watch him forever, partly because of the vow I took 22 years ago to 'in sickness and in health' and the expense of having him go somewhere that he would hate is unreal. Who has $10k a month? Thanks for letting me run on.....

  • @SILSAL67
    @SILSAL67 Рік тому +4

    This needs to be a model for the US in how to care for the elderly and dementia souls!!!