The Grief of the Chronic Pain Patient

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  • Опубліковано 6 жов 2024

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  • @sometomatoe
    @sometomatoe 3 роки тому +59

    This is well-intentioned, but off the mark IMO. When suffering grief from something that happened in the past, it's possible to look ahead to acceptance. But serious chronic pain happens fresh every day. As a pain patient, I would describe myself as more traumatized than grieving (though of course I am grieving too).

    • @theycallmelivelyeveryday1809
      @theycallmelivelyeveryday1809 3 роки тому +4

      How do u handle this new pain daily and loneliness? I feel invisible. Uncontrolled pain in an addict recovered...rules my quality of life. @ this point it nill.

    • @PhuriousStyles
      @PhuriousStyles 2 роки тому +8

      You grieve the person you was, you're traumatised by the experience of dealing with the people supposed to help you I find, only my view of course

    • @sleepyhermit5758
      @sleepyhermit5758 2 роки тому +3

      And for those of us constantly in pain since we were young it's just this is the hell life is.

    • @Rls_0523
      @Rls_0523 9 місяців тому

      @@theycallmelivelyeveryday1809I certainly haven’t found a way. I’ve been fighting for years with every breath just to get to the next doctor that might help me, only to be let down again. They don’t care that you are in so much pain all day every day that you would rather them put you out for good than give you anything that might take the edge off of the pain enough that you can fully inhale and exhale just once. My VEDS, MCAS and POTS have gotten even worse in the past couple of years and continue to. I really don’t know how I’ve made it this far and can’t promise anything day to day now. I don’t know what my limit is, I just know I’m well beyond what I thought it would’ve been.

  • @nightowl6260
    @nightowl6260 3 роки тому +34

    If you are in your 60's and you have chronic pain that prevents you from pursuing even the most simple goals or tasks of daily life, it is an unacceptable quality of life. Why suffer through daily pain for another morning of oatmeal? Why struggle to dress when there ore no enjoyable activities. Gone are goals of travel or concerts. It can be an actual state of existence of living death, daily. It is not a life.

    • @angelakamara9821
      @angelakamara9821 3 роки тому +7

      Chronic pain is more than suffering to dread another day another night .no one can relate to your our chronic pain drs push you aside stop all kinds of pain relief it you and the pain .but rest assured when I go through this constant stomach pain that feels like razor blades are being twisted inside my stomach like ie just eaten poison which comes on so sudden when it feels like it srcreaming in agony the one thing I allways do is scream out to god for help asking Jesus to touch my pain I’m tired of taking so much meds morphine injections ect there is no help for us suffers who endure pain beyond I wish and pray for anyone who is in constant pain that the lord touches you. And at least ease your chronic pain

    • @lauraann4014
      @lauraann4014 3 роки тому +5

      Sky Lark, this has been my life for 19 years now, I do absolutely nothing apart from struggling to feed myself, and don’t know how I have lived this life for such a long time, I’m 64 now. You are right it’s not a life. Take care of yourself 🌸

    • @PVRTYANIMAL
      @PVRTYANIMAL Рік тому +1

      Yeah I’m 27 with that reality not easy. At least count your blessings and the years you had.

    • @MegKampen
      @MegKampen Рік тому

      You get morphine? Most Pain patients don't get anything.@@angelakamara9821

    • @fairyduckling
      @fairyduckling Місяць тому

      i know how you feel. as a 20 year old living with chronic pain, it can be really hard to look forward to the next day of more pain. you can still find good in life, but its hard to even want to look for it when every small task takes incredible amounts of effort

  • @hillbillycat6588
    @hillbillycat6588 2 роки тому +14

    Being physically and mentally abused by state government and society on top of being in all day crying pain is terrible!!!!! Shamed and abused

  • @neilapeace
    @neilapeace 3 роки тому +27

    Im just trying to walk day by day. The Constant pain is not in allegiance with inner spirituality. Pain takes me to a whole different level.

  • @vickicarnes6860
    @vickicarnes6860 2 роки тому +11

    I am a untreated chronic pain pts. Because of that I greive for my losses as well. I can no longer work, I'm raising my grands to the best of my ability. I cannot longer sleep. I lost the last 2 things that gave me happiness while in pain because I can no longer hike or camp, hell I can't clean my house as well as needed. I'm to the point I hate my life!! My doctor's obviously don't care and all it would take is a little pain meds to help me function, cope sleep and eat but oh no, I might take a pain pill and fall into the heroin epidemic smh how can a doctor be so stupid? And these are the same docs who couldn't give me enough pain meds that now call me a drug seeker. I even went to er very sick and in pain. The do must have called me a drug seeker 20x. He also told me " my kidney scan came back just fine as he expected!!" That morning I got a call before daylight who told me I had a tumor on my kidney which turned out to be cancer!! I still plan on telling him he was so concerned I was drug seeking he missed the kidney cancer if I can find him!!

    • @christined9210
      @christined9210 Рік тому +1

      So sorry about your pain and suffering. Sadly, this is happening to most people suffering from debilitating pain. They are treated as drug seekers no matter how legitimate their condition is. We are in a dark time where Dr's and nurses are extremely sadistic. They have no empathy and quite frankly, I believe they are sociopaths. This treatment of vulnerable people is barbaric. These Dr's and nurses have no conscience. They don't care if we suffer and die in agony. This is the world we live in now. This is being aggressively censored also. God help us all

  • @thedognoseknows4451
    @thedognoseknows4451 3 роки тому +10

    We as chronic pain victims can not reach acceptance.

  • @angelakamara9821
    @angelakamara9821 3 роки тому +19

    I’ve had chronic pain for years cancer to other illnesses to chronic stomach pain that never subsides had nurses come in to give morphine injections but over a year now even the nurses and drs gave up on me so I was left to manage an uncontrollable pain even now I’m still suffering like someone commented what’s the purpose of going on in so much pain I feel this way every single day the only true help I have is god when I’m screaming in agonising pain I scream to god to get me through my family are so evil knowing I’m so sick and neglected me before I was diagnosed with cancer I kept telling them I have cancer they every time basically laughed at me where were they when I cripple up in pain being admitted into hospital having chemo loosing all my hair turning into a skeleton even now they don’t bother so yes I do think what’s the point of all this I can not control all this pain when it’s uncontrollable but I have to fight and trust in god it’s not easy either way no one should suffer like this but there’s one thing I do know it’s better to suffer here on earth then to suffer eternal torment I pray for everyone who’s so sick it will one day subside just hold on to that thought god sees everything and angles write down all hand over your pain to god as we ourself s can’t handle it only god can

    • @elizabethcomer8795
      @elizabethcomer8795 2 роки тому +2

      Thank you, Dear Angela. I am hopeless about my pain. I got hope from your writing. I wish that my gratitude could soften your pain and make you feel very loved and appreciated in your considerate words to me and many others. May The Lord touch you, body and soul.

  • @hillbillycat6588
    @hillbillycat6588 2 роки тому +10

    My gif!!!!! This is not anything to do with our heads. It’s my spine with three solid black disks. Dead discs and I am denied any medicine. I can’t jump through hoops to get medicine I cant tide in a car every month to go get pain meds. I really can’t even go out my door with out more suffering!!!!

    • @greg9069
      @greg9069 9 місяців тому +1

      How are you now? Did you find a doctor? I’m so sorry, I feel your pain.

  • @shahilagh
    @shahilagh 3 роки тому +22

    I am an academic ... I feel quite angry and then sad when I see healthy colleagues who have all I wished to have complain about small things that I wished I had ..like how their beautiful child is an obstacle to their tenure.... I said you are d doing great don’t worry you lL become full professor soon ..... it makes me think how self oriented they are ....Seeing these have made me feel really alone in this world as most people r just like that

  • @longlakeshore
    @longlakeshore 2 роки тому +9

    May lack awareness of feeling grief? Are you kidding me? This isn't grief that heals and goes away because the pain never goes away. People who aren't in chronic pain don't understand it because they don't live it.

    • @PVRTYANIMAL
      @PVRTYANIMAL Рік тому +1

      Yeah this guy really hasn’t studied pain if he doesn’t realize this simple connection. To be honest it’s embarrassing what he’s saying because it really has nothing to do with the process.

  • @omshomestead
    @omshomestead 3 роки тому +29

    In chronic pain you live in groundhogs day of hell

    • @PVRTYANIMAL
      @PVRTYANIMAL Рік тому +3

      I’ve said that a million times over. Finally someone else gets it. My heart goes out to you.

    • @briansinger4313
      @briansinger4313 2 місяці тому

      So true. I feel like as soon as I wake up, the torture begins.

    • @briansinger4313
      @briansinger4313 2 місяці тому

      I really hope that you are feeling better these days.

  • @rachellewhite4054
    @rachellewhite4054 2 роки тому +12

    I can’t even go through the stages of grief because daily pain takes over all of me. There’s no room in my brain for accepting, denial, bargaining. I just want the pain gone, but that will never happen. Our situations have only been exaggerated by the fact that so many people are dying via opioids that those that need those opioids have to suck it up, and remain in agonizing pain. What is the point of it all.

    • @MegKampen
      @MegKampen Рік тому

      There is no opiate crisis. It's a lie. We have herion laced with fentanyl from China coming through the southern border and sold to addicts crisis. Why don't they do something about that? They can't because its too wide spread. They just want to get rid of us because we are the weakest link. We are costing them too much money. Many of us don't work, we are disabled or too old. We contribute nothing. It's like Nazi, Germany all over again.

  • @wallygater
    @wallygater 4 роки тому +7

    This video is so real I’m glad this doctor brought it out. I had suffered a stroke at the peak of my law enforcement career. I worked through the loss and started to move on until I was diagnosed with Arachnoiditis after spinal surgery. Arachnoiditis was much worse, not just the pain, but I have been trapped in my bed for two years now. I am hopeful that treatments might become available where I can sit or at least walk.

    • @Cryptic_Muse
      @Cryptic_Muse 4 роки тому +3

      I hope things get better for you.

    • @PVRTYANIMAL
      @PVRTYANIMAL Рік тому

      My heart goes out to you. People really don’t understand but it truly strips you of all dignity and any future of a decent life. Everyday I struggle I totally relate to this and thank you ❤

  • @edwarddunlap7344
    @edwarddunlap7344 3 роки тому +9

    there's no since talking to a brick wall , so we suffer on and on !

    • @PVRTYANIMAL
      @PVRTYANIMAL Рік тому +3

      These doctors really live on another planet when it comes to stuff like this.

  • @Cryptic_Muse
    @Cryptic_Muse 4 роки тому +16

    I live in Maryland and have suffered from severe debilitating chronic pain for years and no one would help me at the hospitals here in Howard County and my primary care doctor just stopped prescribing me the pain meds I needed to function out of nowhere one day and after waiting over three months to get into pain management while hardly able to walk or shower I was for some reason treated like some sort of drug addict so I ended up just going to a methadone rehab for heroin addicts even though I have never even done heroin or abused any meds but I was THAT desperate to be out of pain and began to feel I had limited options so yeah I have been on methadone for awhile but I would not suggest it for chronic pain, no. I think there are better medications. Maybe it works for some people and I am grateful to have been able to use it to continue living some form of life but it is not for me. At this point I am willing to give medical marijuana a try. This has been a hell of a process and absolutely unnecessary.

    • @irenehansen9366
      @irenehansen9366 3 роки тому +6

      I almost contracted with a methadone clinic for my Chronic pain. thank god my friend who was with me said THIS IS NOT WHERE YOU BELONG! I was desperate to get some sort of relief for my pain. I don't know anything about street drugs but was treated like a drug addict. Very humiliating.

    • @julians7268
      @julians7268 3 роки тому +5

      My doctor stopped prescribing my long acting pain medication and when I asked what they expected me to do they suggested I could go to a methadone clinic... act like I'm an addict. It's been 4 years, and my life is unraveling at the seams. My condition is progressing, which we knew would happen, and the short acting pain medication is less and less effective so it is a compound issue for me.
      I feel your pain. We chronic pain sufferers are the lepers of our age. Nobody wants us, nobody understands us, they blame us for societies woes, call us liars and torture us continuously... all the while they are taking our money!
      Life isn't fair. I've always known that, but in this age of social justice the bending over backwards to accommodate and validate people stops short of one group and that is chronic pain sufferers. I support accommodating people, I just wish that a sliver of that compassion and understanding would trickle down to us.
      I have Dercums Disease. I will continue to get worse and worse as time passes, and the worst part is that it doesn't impact life expectancy. So, I likely have 40 to 60 years left of this hell. We deserve better.
      I am sorry life dealt you this hand. I wish you all the best and pray that one day society might start treating us like the human beings we are.

    • @greatestever8976
      @greatestever8976 2 роки тому +3

      The epidemic is that they aren't treating people with pain like they desperately need. My step brother had terrible back pain from abuse he suffered as a child & couldn't get his pills so he killed himself. My roommate has chronic pain after a botched surgery but they refuse to raise his pain meds a measly 5 mg. They are making him go thru all sorts of invasive procedures and putting him on other meds with bad side effects. It appears the drs just want him dead. I have fibromyalgia and became destitute looking for help with my pain. Now I spend most of my days in bed. It's a wicked world we're living in, that's for sure. No matter what, I wont let it take away my joy, laughter, or love.

    • @knoxx1111
      @knoxx1111 2 роки тому +2

      @@greatestever8976 I'm so sorry for the loss of your brother and pain. 🖤

    • @greatestever8976
      @greatestever8976 2 роки тому +1

      @@knoxx1111 thank you💞

  • @adelissahunsley
    @adelissahunsley 2 роки тому +7

    I was basically just told recently I can't be on any stronger meds than I am on til I lose some weight. Once again, trying to shame me for needing it. They claim it is because my body can't handle it but I am sure my body isn't doing so well with the high bp that happens when in extreme pain either. I have lymphedema as a result of cancer surgery. I was always in the 200+ pound group But prednisone prescriptions from someone who didn't know or care about other ways to treat my auto-inflammatory conditions made me balloon up to 300 pounds. I physically can't get out of bed most days other than to use the bathroom and have to talk myself into that knowing the pain that will come. I have cut out sugar, drink 8+ glasses of water, and I am treated like a criminal for getting fat.

  • @Sketch1994
    @Sketch1994 3 роки тому +11

    Or you can manage their pain and give them the old self back to them before they grief it out. Why is patching pain unethical if "you are not treating the source" but patching 3rd grade consequences is so ok?

  • @MegKampen
    @MegKampen Рік тому +3

    He is talking about the 5 stages of grief when we are grieving over the loss of a loved one or a job, but you began to heal and move on. With chronic pain that never happens because it doesn't go away. It like someone who is being sexually abused and raped and it still happening so how can they grieve and move on when it's still happening. It like being in the middle of a war.

  • @mikeduncan2353
    @mikeduncan2353 Рік тому +4

    The only grief i have is making the surgeon rich because there is no after care it doesnt matter if you hurt or not its not them so they dont care

  • @brianbyrne4443
    @brianbyrne4443 3 роки тому +3

    ME = FAILED BACK SYNDROME = PTSD +”LOSS OF MY MUM = HELL = I WANT A PAIN FREE LIFE EVEN IF IM 💀

  • @kmosher8
    @kmosher8 3 роки тому +3

    our grief is made so much worse because of how inhumanely the medical system treats us. we are in worse shape because the government got involved in patient care and punished the people who never were addicts or ever became one. addiction is an epidemic because when horrific pain goes untreated and people are cut off bc of politics and are abandoned with no alternative the end result is to get pain relief in any way possible and the black market is al;ways available. or be like me and end up in a suboxone c linic surrounded by junkies and being a slave to the clinic to have access to subs while being treated like a child unable to help myself lying i was an addict so i could get these meds that ended up making me really sick and having hallucinations and bad sleep walking episodes. and getting cut off with zero discussion or comunication bc i took one klonopin to stop the awful anxiety it gave me. thank God i found Kratom and i am now in control over my body and treatment. you either commit suicide, go to the streets or take alternative drugs to pain meds that are so awful with side effetcs and ten times worse wd then the opiates. id rather be a junkie. they have so much help and treatments and support while pain sufferers have nothing at all.it was so easy to get in that suboxone clinic but impossible to get pain meds so u do what u have to to survive and its a game u play with the doctors. being studied like a lab rat at every pain appointment and them just waiting for that one red flag that isnt even a red flag they just make shit up and imagine things. on edge all the time knowing you are either gonna get cut off or immediatly be judged and labled a drug seeker no matter your history or condition and have zero basis for that assumption they spread the lie that every human who takes one drug once is immediatly an addict and a junkie for life from one dose. like 1 percent of people that take pain meds end up addicted and it would have happened without a opiate script. addicts are pre disposed. every pharma drug comes with a novel list of side effects that are so dibilitating and deadly but are given like candy. the worst risk from opiates is addiction and someone how that became a worse condition then the sick effects people get from most pharma drugs the worst beiong psychiatric meds. those meds are so scary and have so many side effects and hurts miollions more people but yeah addiction is the biggest problem i guess. people arent dropinng dead from pain meds or even so much heroin. its fentynal and nothing is done to stop that stuff from killing people but they are doing everything to stop people from getting pain meds in every immoral unethical sway possible.and and pain pills have nothing to do with the overdoses but the more they become harder to get then fentynal the worse the epidemic will get as it already has. if an addict doesnt choose aqddiction i sure as hell didnt choose my pain condition

  • @glynisebeaka1727
    @glynisebeaka1727 3 роки тому +2

    I believe that my pain comes from the loss of my mother, and that I did not do everything in my power to take care of her.

    • @edwarddunlap7344
      @edwarddunlap7344 3 роки тому +2

      pain in the heart, not from broken BONES !

    • @michealcheng2949
      @michealcheng2949 3 роки тому

      i have been suffering from herpes for 6 years now, am so happy that i meet DR Rorpopor herbal on you-tube who cured me totally

  • @briansinger4313
    @briansinger4313 2 місяці тому

    The loss and grief mentioned in the video has been compounded exponentially by the US government's War on Chronic Pain Patients.
    There was no reason to discontinue my pain meds, I had taken them for 25 years without issue. I have been in constant pain for 30 years.
    I absolutely HATE the federal government.

  • @mcoz6934
    @mcoz6934 2 роки тому +2

    AMEN!!
    "The PHYSICAL presence of other Christians is a source of INCOMPARABLE joy and strength to the believer.... The prisoner, the sick person, the Christian living in the diaspora recognizes in the NEARNESS of the fellow Christian a PHYSICAL sign of the gracious presence of the triune God."
    -Deitrich Bonhoeffer

    • @PVRTYANIMAL
      @PVRTYANIMAL Рік тому

      Maybe it’s time for a mental health check up man…

    • @mcoz6934
      @mcoz6934 Рік тому

      @@PVRTYANIMAL 🤔 Ya think? For me, or for you?