What Chronic Pain Has Taught Me About Resilience | Trung Ngo | TEDxCentennialCollegeToronto
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- Опубліковано 31 тра 2024
- In this talk, Trung Ngo proposes an interdisciplinary solution to address chronic pain and pain management. When faced with adversity, why do some people become stronger while others break down?
In the past decade, Trung Ngo has been exploring this question while treating people with complex, chronic pain at Mount Sinai Hospital.
Dr. Ngo has worked with leading clinicians and academics in pain rehabilitation and has published research in peer-reviewed journals. In 2017, he founded Novah Healthcare, a community-based clinic that offers an interdisciplinary approach to pain management. He also speaks regularly at public events in his quest to educate the community about chronic pain.
Outside of work, he is mastering the art of changing diapers. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx
The part where he said “imagine you have a severe headache that never goes away and nobody believes you” I started crying... because I don’t have to imagine. I live that.
Try earthing, it's good for almost all health problems including headache, migraine. Go DIY a grounding mat, pillow or sheet to use at home. No need to buy, it's free and effortless.
Wish u well. Meditation has been the single best thing for my headaches
Looks like we’re in the same boat then..
Unfortunately I’m right there with you!😔
I live that too
chronic pain taught me ,NO ONE without the PAIN knows or cares !
Yes sir...Im living it as well
I live with constant joint pain in the hands and fingers and even my daughter’s dad doesn’t care my foster mom thinks that i could have rheumatoid arthritis, but I don’t know i think that she may be right but doctors aren’t willing to help me
@@daniellejohnson2373 It maybe they don't know how.
Thousands complain but it lands on deaf ears. A new system is what looks like the answer, not controlled by the bill payers
@@daniellejohnson2373 watch mikaela Peter sons ted x talk
As someone w severe chronic pain all I can say is we’re ALL resilient for still being here while having to work three times as hard as anyone else just to feel ok.
You are so right i live with chronic pain. What keeps me smiling at isiah 33:24 no one will say i am sick in jehovah gods new world here on earth like in the garden of eden it was jehovah gods original purpose for mankind. Not like as many religions teach when you die you go to heaven. Speak with one of Jehovah's witness to find out more ❤❤❤
Daily chronic pain takes away your independence, hobbies, relationships, identity. You are living a game of losing. Chronic pain is not a choice! And resilience is not a cure! When you suffer from chronic pain you learn to pretend that everything is alright, go above and beyond to do activities in an ableism society and learn to numb your emotions. At the end of the day, all I crave for is for physical relief. The absolute and whole sensation of feeling like a weightless feather.
please try kratom !
This is clearly a case of 'there is chronic pain' and 'there is chronic pain'. Millions of people have chronic pain. I belonged to the first group of chronic pain sufferers, since I was 13. But I managed to go to school, uni, get a job, have relationships, social life, travel etc. Then age 33, I had an accident and then the other chronic pain' hit. The kind that takes all that away, no surgery, no pain medication, no amount of yoga/meditation/exercise/PT takes away (of course they help), but it leaves you so so so very lonely and hopeless. I don't feel like a failure because I no longer participate in what society expects me to do - work full time, have kids, family, hobbies, go out, be social etc. I have accepted my new life and try to make the best of it, but resilient? What other option do we have if we are still breathing right now?
I feel your pains 😢 who feels it knows it.
17 years here so far. Buy the ticket take the ride. Hang in there.
20 years here, seems like 40. I try to stay in gratitude, but most days are seriously for the birds. Hang tough all. 🙏❤️
ok, you might try kratom !
Chronic pain is the worst. Would much rather be dead. If you don't experience it you have no idea
I just wish i never existed
@@Shnaug same...
Dear Lucid, you are so right,if you don't have it,you don't get it
It's funny right? All these healthy people thinking how this was just "sooooo inspirational!" yet to ppl with actual pain this is just borderline ablist nonesense no chronically ill person would ever preach.
@@Encentix absolutely
It's real easy for you to say if it just emotional but to physically not be able to do something is different. It takes a different toll on your mind and body. Yes you can always make a good situation out of a bad one but some of us can't just get better by thinking that way
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Exactly. Unless you've been through or are in chronic pain you just can't relate.
What does it matter if a person cannot relate? To feel as though someone relates is merely a comfort blanket until a solution can be found. It says nothing for a persons ability to help others find solutions. Does a doctor have to personally have survived every illness to understand how to treat it?
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I have knee pain and I'm concerned I might have to switch career or get surgery at the worst. But my sensible self knows if I avoid aggravating it outside of work doing heavy exercises I shouldn't and stretching I will be ok. That being said I don't have serious chronic pain so I don't know if positive talk can cure something so terrible.
I’ve lived with extreme pain in my hips for 3 years now. I’m 21 with 2 hip replacements. I was a world class athlete for years winning across the nation. I lost all that in an instant. I’ve been struggling to find meaning in life ever since. All my brain can think about is how much pain I’m in. Every step. Every move. I just don’t know what to do anymore
I hope it gets better
i am so very sorry. sending you lots of hugs and love. life is so hard Landon. :(
Hi you have to keep fighting. I am in the same position but I wasn't a athlete . It's horrible and no one will ever understand. Your a soilder now and your fighting in a war that no one else can see . It's horrific but it's going to be ok . You have to hold in there and you will find a way . I'm sorry for what your going though but don't let it make you hate. You can and will do this I believe in you and luv you so keep up that fight and even though they can't see it feel it you can and you will prevail . Be strong
May I ask what happened which led to the situation you're in? Or it just happened randomly? For me, I randomly have had pain on the top of my foot and has no rhyme or reason.. Been like this for 3 years and I'm hoping something will change soon.
Also, I recommend the book The Mindbody Prescription by Dr. John E Sarno. Only book I've ever read twice, and also the only thing which has given somewhat long term result so far
Praying boss
No one understands until you have experienced it… Nature is both beautiful and cruel
the government has taught people ,when someone says PAIN , to answer LIER !
Chronic pain and suffering are NOT just choices people can make and have control over.
I can’t control having rheumatoid arthritis yes I do try do whatever my joints will allow me to do around the house before the pain becomes unbearable
@@daniellejohnson2373 try kratom !
Living with chronic pain all my life as a young person has been difficult. I try not to let the fact I'm sick all the time determine my worth, but when your constantly in pain, constantly uncomfortable, often the only thing you feel like you can dwell on IS that pain. I have an illness called fibromyalgia, and I deal with managing the pain every single day. It makes me depressed sometimes. I can't really do much about it. Even though I have a wonderful mom that takes care of me, loves me, and is there for emotional support, I still feel extremely depressed.
Man humans are very good at focusing on negatives..
try kratom, it works !
@@EDD519 That's pretty expensive for daily use (like, compared to cannabis) unless you have a cheap source, but I think it's a pretty good suggestion to try. It's too bad it can't be prescribed and covered by insurance.
Chronic pain is real, and there’s a good chance you can’t overcome it. The best advice I’ve ever received is to acknowledge it wholly. Don’t try to ignore it, acknowledge it. Being in chronic pain has many unique perspectives that profoundly affect mentality. You truly can’t just move on. Trust me, if it’s possible biologically, we would have. You have to acknowledge and shape your life around it. Finding a community has been the most helpful. Having someone be in the pain with me is the best. I recommend finding community.
you know any good forums ?? the social offers in Scandinavia sucks for this kind of thing
@@frankieboyseje I’m so sorry I don’t! I found my community through hospital stays. I will keep you posted if I hear of anything. Good luck with everything
Great post
Sciatic pain is truly something that I wish no one experiences at the age that I have.😢 Im 21 and this has truly become an extremely debilitating thing for me.
I started experiencing it at 12. Battled depression, sometimes I wonder how I did it. I'm now 21 and refocusing
Exactly the same here brother, just turned 22. Spent my pretty much my whole 21-st year at home in pain. The psychical pain is bad but to me the mental pain is worst. All the things I miss out on, my outlet that was the gym and fighting sports I can’t do know. I can work a few hours a day but after that I am to tired and I have to much pain to actually do things I enjoy. I feel your pain brother, stay strong, it will get better one day. The harshest battles make the greatest warriors, you are being prepared to do something great friend. Keep hope and invest the little energy you have into the people that actually care about you; that will show brutally when you are not around your friends and family as much as you were, so some people stop contacting you or checking in on you. The ones that stay loyal are the ones to keep💪🏼👊🏼
@@danny9905 Thanks a lot man. Hope your doing good!💯
@@danny9905 one way or another we're all gonna make it somehow.. i don't know why but we have to
❤️❤️❤️❤️❤️❤️❤️❤️
I liked your video.. Only i disagree in the point that we can not choose how the pain is effecting our lives.. Pain which is chronic will in most cases (with me it happened after 9 years of pain) result in depression and mental problems.. These are things which we can not choose.. It happenes on completely unconscious level.. There is not only the pain itself but also a deep deep grief which we are feeling everyday..
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It’s an individual thing. Very subjective. Some are more resilient than others. But that doesn’t mean it doesn’t effect them. It just means they don’t let it keep them down. Also I’ve met ppl with autoimmune disorders & yet they don’t get anxiety, simply because they don’t really think about it. I can attest that perspective is everything.
It’s hard to listen to this man bc he doesn’t feel what we feel. He’s trying though.
Im only 21 and I have been living with severe chronic pain for the last four and a half years. College has been very hard. Suicidal ideation and cutting is constantly on my mind as well as clinical depression and anxiety. Doctors have misdiagnosed me over three times and still aren’t able to treat me. Believe me I’ve tried so so so many things (mainly opioids at the moment). It hurts to use my arm at all. It started in the brachial plexus area but then spread down to my hand, neck and now (started this year) back too. I have zero friends and no longer live in home with my family because i am at school. I try to be grateful for what I do have, which I recognize, but I also feel guilty to admit I’m suffering because I’m blessed in many other ways, if that makes sense (especially after his testimony). I am missing out in so many college things, and opportunities which I am grieving in a way. (In addition to grieving my life before this started). Anyways that’s my venting that no one asked for.
Idk chronic pain just makes me want to die/disappear
Monoke Shoten, Please hang on. Don't give up. You're not Alone!! I too am a chronic pain patient. Please join "Don't Punish Pain National Rally " and Don't punish pain rally in your state. On Facebook. We are fighting for our rights. We will win!
I feel you.. I hope you feel better
Same man.
Me too
I don’t know, at this point I’m starting to see Monoke’s point of view right now. But I guess you all know this feeling, just hoping it’s a fleeting moment. It’s amazing what pain can do to people. How it slowly pushes all the people out of your life either purposely or unconsciously. I was once recognized as the most outgoing and popular, need-to-do-well students in HS. 20 years later, I’m starting to not recognize that this person was ever real or if he had died slowly sometime between my first hemolytic pain crisis occurrence up to now. Even with the meds, like today, I just don’t see the point of pretending anymore that this life was ever worth living..
Yes, I have chronic pain, and it is constant, from waking me up many times a night through the entire day and evening. Yes people's lives are completely destroyed by pain. I disagree with you saying. you can choose how pain affects your life. Messages like this are really bad for society. really horrible to be allowed to say categorize people in pain with these descriptions.
I hated this talk so much especially since him himself isn't dealing with chronic pain.
try some kratom ,it works !
I'm lying in bed with cronic pain. This video does literally nothing to help my pain. Random stories about people, fantastic advice
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try some kratom , it works against pain .
Too simplistic...until you’ve lived for years with incurable severe pain that never goes away, I don’t believe u can really understand...but hopefully others will hear something here that helps them.
Cynthia darling, this is for all the people who "claim" they have chronic pain but it's not unbearable. There is a very specific difference. if you missed he mentioned the Opioid Epidemic earlier in the video. It is simple for those whose pain is not primarily physical. now I've had chronic back pain I'm 25 now since 19 . I'm young now so it doesnt hurt, but sometimes I'll hit the top step if the stairs and I cant move my back straight for a few seconds and it hurts really bad. a vision of what is to come. this videos so people like me who havent had the bad effects yet to work better and become better people and take care of themselves. and that way he will HAVE more time for people who actually have been living years with some serious pain and no relief. Resilience can be it's own remedy. in a way but you have to decode this message.
Escu I’ve had chronic pain for 4 months I feel so lost I’ve lost motivation for everything
@@ZZ-bq2lp May God give you the strength to survive and heal you. Listen to Robert Clancys healing videos.
Beatriz Melendez thank you 🙏
Here, here! I was resilient the first couple of years after herniating my L4 disk at work, then followed 4 lumbar surgeries (2 to correct mishaps), including a 2-level fusion, which is now causing the disks above and below to break down.
My resilience packed up and left around year 5 of suffering in severe pain. I'm now at the end of year 8, but maybe I am resilient, because I'm STILL HERE to type this message.
Amazing quote by Epictetus: "during my illness, my conversations were not about my physical state; I did not waste my visitors time with things of that sort, but went on discussing philosophy, and concentrated on one point in particular: how the mind can participate in the sensations of the body and yet maintain its serenity, and focus on its own well-being. Nor did I let my doctors strut about like grandees. I went on living my life the way it should be lived."
Wtf 😂
Been struggling with chronic pelvic numbness and pain it’s taught me that life isn’t about you it’s about how adapt to whatever situation your put in. Hang in there everyone let’s keep our minds at ease.
right bro. cause the government just wants you to SUFFER !
I don't understand how its acceptable to put trivial labels on chronic pain patients like that. Imagine the outrage if a patient of some other illness like cancer was given equivalent advice, being told they’re not healing because of their lack of resilience.
"You wouldn't tell": good thing that he didn't do that then. If you need to win an argument by putting words in someone's mouth you have already lost.
I think you’re not seeing my point, so let me explain. Chronic pain is a very complex condition that is an individual experience, varying considerably physically and psychologically from patient to patient. However, he seemed to trivialise this fact, compartmentalising patients into a few very simple patient types with derogatory names. That’s why I think this video only serves to alienate those who still suffer from chronic pain after trying what he calls “being resilient”. It’s very easy to judge people if you’re not the one experiencing their pain.
I’m not saying his approach to healing is wrong. Some may benefit from being told they’re catastrophising, but to make it sound like resilience is all that people who suffer from chronic pain are missing is totally blind. I get it, a lot of the time the cause of chronic pain is very hard to pinpoint, so mental intervention might sometimes be the only way of improving quality of life.
However, if that’s the approach to treating chronic pain from the go, the actual cause of the pain might be overlooked, and patients are left to suffer with pain they could have treated physically, if only a doctor had just listened to the patient and considered many different diagnoses. In fact, this was exactly my experience. I suffered from chronic pain in my neck for the last 2 years, and yes some doctors told me to toughen up, be resilient, and believe me I was. I kept doing neck and shoulder physio, kept going to different doctors only to see puzzled faces of doctors not knowing why I was still in pain. Finally, one doctor managed to pinpoint I had Facet joint pain, and that there were indeed other injection treatment methods I could try, and not just “mental” treatments.
Yes, I spent 2 years in pain, because the many doctors I saw before weren’t creative enough and “resilient” enough themselves in actually identifying the cause of pain. Instead they just handed out painkillers and told me to toughen up. Isn’t it nice for the doctor to be able to take the weight off their shoulders, and blame the condition on the lack of resilience of the patient? So I hope you now understand my “You wouldn’t tell” metaphor. If you discredit someone’s argument without even trying to listen to their view first, you’ve already lost.
@@asdfghjkl41114 You need resilience if you've got chronic pain. Your body has legitimately changed from the norm. Mine has chronic pain, chronic deformities, bone disease, nerve scarring, failed surgeries and arthritis. I've done all I can and am literally stuck now. I can only get worse and can never get better. I want comfort, so I am fighting for comfort but accepting the pain. A lot of pain patients overdramatize their pain. You need to be realistic. Stop saying "Everything hurts" or "I'm an 11 on a scale of 1-10". By being overdramatic you cause problems for the rest of us. I have different types of pain and different levels in my body. I can pinpoint my bad areas and do gain a sort of domino effect by making everything hurt if I don't care for my pain areas. The fact you were even given pain pills is more than some of us can say. Try being 12 and told to deal with it when your elbow has shattered and your surgery was malpractice ruining your joint and you couldn't sue cause the doctor was on the run. Try being my age now and having to fight for help, being told 30 is still too young for arthritis. While we all suffer from pain, some people really aren't resilient. Seeing someone with a papercut complain nonstop for a week like they've broken their arm is kinda sad. I am not discrediting their pain, but some people are just super sensitive. My father has had bones snapped and bounce back from it like nothing. After my first surgery, I got frustrated more than anything and wasn't really in pain. My mother has had 60 stomach surgeries and still cares for her mother and us kids. We've all got tons of conditions and we're still living. Meanwhile someone with one of our conditions whines and complains and says they can't work and lives off disability. That is bad resilience whether you want to admit it or not. Your body is supposed to learn to cope with pain. I find it hard that people can't deal with pain after many years of it always being there. Sure I've had bad days, but I have responsibilities and a life to life. I can't just give up.
@No one I’m very sorry if I offended you. I didn’t mean to alienate you or discredit resilience as a way of healing for people who actually may not be able to find a cure. What I was attempting to point out was, for those of us who are lucky enough to have physical interventions that work, being prescribed resilience is a long winded way to relief from pain. I can see that my condition is a lot milder than yours, but that does not mean I am supposed to give up on finding a physical cure and suffice with mental relief. I think trying to find a physical cure no matter what some people or doctors may tell you is also a form of resilience. But again I suppose I am a part of the lucky few that actually managed to find a physical relief.
Louse- I agree 100 %
I'm writing this for anyone who didn't find an answer in this video, we are all both, I don't think you can categorise people into either or categories of (resilient or victims), those subjects should be dealt with compasion which is the biggest struggle for someone with chronic pain (you are expected to live like you don't have it), the standards of the status quo expectations out of a functional person are draining to you (not necessarily impossible), so far I feel that my life has been pretty productive and successful although no one ever witnesses my physical or mental setbacks, at those times I do align more with the (victim) description not in the mindset he described though, the thoughts that enter my head are like (why should I keep going if I'm in too much pain or fatigue to feel the pleasure of my own accomplishments) (why should I bother hang out with others when I am in too much pain to enjoy it or blend in) but at the same time I try to think that even those good feelings I couldn't feel would've been temporarily, maybe meaning isn't tied to those feelings, I feel grateful for the people in my life even if they don't understand this, the best thing in the situation is that there is always someone who would understand (a community of people like you), I wish I had the energy to actually feel like a victim like the guy in the video described 😂, my best advice would be you don't have enough energy to do something you hate, whilst it might make sense for someone else to endure things (majors, careers, people) they don't like for a reason or a reward like money and status, it wouldn't make sense for you to spend so much energy for an outcome you won't get to enjoy, your energy and tolerance is scarce but it's there, tailor your life to what would work for you even if it was too simple or unaccomplished for someone else
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Brilliant post.
Chronic pain kills your excitement for anything, when in constant pain and you want trying learn something, you can’t. It has over 15 years and the only reason I’m still here is my lovely daughter.
The doctor-hopper part doesn't sit well with me? Like, be resilient but don't try to find cure. Basically, the message is just suffer and put yourself as a priority, but if you're unproductive and can't be independant, then you're making yourself a victim? Sorry, but this is a very weak message to people who have been in pain for years now. It is very clear to me that this doctor had no personal experience with chronic pain because only people who don't experience it can tell you something like this
M P ... Amen...your words hit my sentiments exactly
I agree. He is totally out of touch with people that can’t get better.
If I didn't get a second and 3rd opinion I wouldn't know I have 4 herniated cervical discs that crushed nerves, so yeah it's best to keep searching when your body is telling you something's not right. And my dad had pain in his bladder went from doctor to doctor for a year finally found one that found he has bladder cancer and now it's too late.
Some doctors are better than others so never feel it's wrong getting as many different opinions as U want ✌️
Exactly!
I spent 11 years with a misdiagnosis while going from one doctor to the next searching for a cure to get my once-productive and pain-free life back. It took becoming visually impaired from a degenerative eye disease to connect the dots on what was really wrong with me. I referred myself to a geneticist who specialized in what I suspected I might have and the rest is history. I continue to get worse with age, but at least I know what is wrong with me and now I don't bother chasing doctors and magic cures, even if I still have to see doctors, physical therapists, etc., way too much. I just have to accept it and the current depression and anxiety from my disease and comorbid conditions, compounded by severe isolation, for the past twenty years. In all honesty, doctors just don't care to see or treat the whole person, but I also don't live in Canada with socialized healthcare.
With all due respect, this guy is oversimplifying matters. Go listen instead to what Jordan Peterson has to say about pain and suffering. He really get it.
I've been on opiods for 8 years, I wouldn't be able to live if it wasn't for pain medication. The opiod crisis in my opinion is based of people who abuse the system and most aren't even prescribed opiods who succumb to it.
So emotional pain is the same as physical Chronic pain?
I’ve had both and I strongly disagree. My body hurts me a lot worse than any anxiety I’ve had. I have myositis
Yeah your 3 miscarriages = having pain everyday for years, guys out of touch. Yeah we understand that resilience has to be exercised, infact people who are in chronic pain have to be stronger than anyone else and it's being strong for too long that hurts us.
True words of wisdom
Agreed
I can't be strong anymore. He had a kid in the end... My spine is rapidly getting worse and I can't even find a girlfriend.
Very, very true!
He didn’t say it was the same thing. He said the lessons he learned from his pain patients helped him get through that hardship in his life.
I get so tired of know it alls blaming hurt or injured people for the pain, anguish and oftentimes disability, they suffer due to accidents, illnesses or the hateful, selfish, vicious behavior or actions of others. We simply endure as best we can the drastic changes in our lives over which we have no control. We live the best we can with what we have, trusting God to help us to be productive with unfailing hope. More often than not, we say we are good just to spare ourselves the self righteous, all knowing, perfection of those who couldn't care less about how we're doing or feeling. Most of us NEVER called ourselves "victims", we were labeled as such. Do we have days where we feel as though we can't make it? Of course. Yet, we continue to ride, go forth and greet each day of God's New Mercy with hope and confidence.
Sound like you have a little category for everyone. How nice to be you and be able to judge others.
To any health professional Those who can't walk in other shoes should not assume for others
To Mary..I wish you blessings of peace love Along with your loved ones
He has no experience and he didn't even mention how a person with an incurable chronic illness perseveres and endures pain get through life
The fact that he compares his temporary situation of having 3 miscarriages with chronic pain shows that he doesn't understand what chronic means. In most of our situations our pain is debilitating (as in it interferes in ALL aspects of our lives. We're not living life as usual with just one small aspect of it going wrong... it's ALL gone) and there is NO END IN SIGHT. When I found out I couldn't have kids, it was barely a blip on my radar compared to all of the other losses I had experienced due to my chronic pain... but sure, it's my lack of resilience that make our situations different, duh. I have NEVER heard of an entire team working 5 days a week with a single patient, ever. The average wait time just to get into a pain clinic in Canada is 3 years, so I don't know what fantasy world you live in where patient get that level of care. I can't even get most of my doctors to slow down long enough to hear me on my medical stuff, but sure, this sounds like a real thing.... enough with the victim blaming already.
He also STARVED AND WAS ALMOST MURDERED while on a boat.
@@momosauker and while that must have been a terrible experience, what's your point? I've been in constant pain for over 20 years... bad experiences don't make you smarter, they just happen.
I went to a pain rehab in America that worked on me for 4 hours a day/5 days a week. It was an entire team of people
@@markborkowski965 most people don’t get this level of care in America. I had 3 recommendations from doctors for chronic pain programs like this. I was turned down before I ever even got on the phone with the receptionist.
Thank you Trung. As someone going through chronic pain right now, at the same time as the breakup of my closest long term relationship, this really struck home. I was becoming desperate and hopeless. I cried a little. Thank you for reminding me to focus back on what i can do now
Praying you brother. I’m in the same boat pain keeps me up at night and wakes me up in the morning
i have a shattered L3 and i've slowly lost my ability to walk so telling me my anguish and the torture I go through is simply a choice is insulting on the highest level, I dare you to try to walk ( or crawl rather ) a mile in my body l0l
Did he just say suffering iis a choice my god imagine been stabbed day n night from the inside and saying suffering that pain is a choice argh 😭 oh I'd love to see him feeling knifing pain 24 hours of the fkn day see then if he'd say people r complaining I'm out
Of pain you could wish only for one thing: that it should stop. Nothing in the world was so bad as physical pain. In the face of pain there are no heroes
Those that live with it are heroes to me. It takes courage and bravery to live with Chronic Pain.
I understand how it feels to feel defeated in the face of pain
@@Override.Health heroes are people who save others
Living with chronic pain doesn't save anyone
The def of hero according to the dictionary : a person who is admired for their courage, outstanding achievements, or noble qualities.
A lot of people who deal with chronic pain match these criteria.
Read a book, talk to a friend, try better next time
I can identify with this message on sooo many levels. My sorority sister sent this to me at a time I needed some strength. She had no idea. I prayed and took a walk and she sent this message. Resilience is my new mantra!🥰
Please don't compare miscarriages to a life of permanent chronic pain. Just don't.
I completely agree. They are on two completely different planets.
The point was that he was able to learn from people w/ chronic pain... quit acting entitled.
Exactly! It's obvious that he hasn't a single CLUE.
yea they're pathetic but only from our perspective ...
God bless you all!
This guy clearly has never lived with chronic pain himself. So out of touch.
Yes, only someone who lives with chronic pain understands what it's like. The pain saps you of energy and joy, which makes it so hard to be positive.
All these years of medical research n we get this
Awful. Categorising people in patronising, over simplistic identities. The attitude of seeing productivity as a person's worth. To be living in chronic pain and look for support online during difficult times and find this sort of smug, "suffering is a choice" rhetoric really sucks. Arrogant, thoughtless.
Thank you
Especially coming from a man that compares the agony of living years or decades in non stop physical pain to his wife having a few miscarriages where in the end they have a successful pregnancy. It's infuriating.
The speaker does not have any idea about chronic pain , this is why she thinks that suffering is a choice!
I absolutely agree, a multi disciplinary team is the key to making a plan that includes living that evolves with time and includes the supports needed to live with dignity and see a future.
11:58 "Resilient people are able to let go of their expectations of how things should be and they're open to different possibilities"
I've suffered from severe chronic pelvic pain for years. This statement is a slap in the face to people like me. I've been open to any opportunity along my path through pain. I've had a major career change, I've travelled the world, I've done many things most people without pain wouldn't only because I was lucky enough for my lines of work to afford me those opportunities. One opportunity I will NEVER have is to be pain free. I wish I could expect that and knowing that I can't have one seemingly simple thing is NOT a relatable emotional state through a miscarriage. It is a deeply personal longing not beyond but from within ones own mortal vessel.
I am left grieving every day for a future I can't have, a past person I wish I still was, and a present filled with smug doctors like this with no practical solutions beyond the success metric in medical literature that aims for a 30% - 50% reduction in pain. Sounds like a lot when you aren't suffering. Would you like 30% less suffering or 100% less suffering?
I've had chronic pelvic pain since 2009 so I understand where you are coming from. I can not even sit down normally to have a meal. For what it's worth, you are not alone. ❤
The presenter seems like a nice guy but his speech is way off the target.
I think many resilient people will go through this "doctor shopping" phase he speaks of. It's kind of a derogatory term but people who are natural problem solvers will hunt for answers. It's normal.
Thats the exact thing ive been saying we need a team of doctors who work together..... its the ideal treatment
This is the rare "inspirational" video that actually inspires me.
I agree I hope this gets more views as it was really helpful. One of my favorite Ted talks
Just reading the comments and it’s truly heartbreaking to read about the debilitating chronic pain that many people are in 😔
I agree with some comments that this talk seems to be most helpful for those with a lower level of pain - like myself. I’ve suffered with chronic pain in my feet for 4 years. It doesn’t affect me when I’m not walking so I able to live quite fully in many ways, however as an outdoors person and a young mum who has to walk, it has certainly taken it’s toll, mentally. The pain is exhausting and is getting worse. Trying not to worry about it getting even worse is hard, but letting go of what life would be without it is the hardest. I have found this talk really useful because I know when I focus on looking after myself, looking for different interests and focusing on what I can do, it truly really helps me be happier. I realise that this can’t necessarily be the case for others with worse pain.
What do you think happens in a country like the US where you have to pay thousands of dollars for any type of care if you can afford it at all. I had gallbladder surgery which was supposed to be in and out and ended up with a postoperative bleed with 4 transfusions and another surgery to stop and drain the bleeding. Then you get the bill for nearly $9,000 dollars out of pocket. People in the US don’t often get any help or care and die every day from being denied the help you need.
The white man has to make money somehow. And his daughters have to live extremely high qualities of life, the highest on the earth to be quite frank
Somebody's got to pay for it
One of the best I have listened
Hard chronic pain is the worst thing that can happen
”No winter lasts forever; no spring skips its turn.” ~ Hal Borland
Not all winters are equal and, from a practical perspective, some winters do indeed last forever.
A winter in southern Mexico is warmer than spring or summer in Antarctica. A person can't wait out an ice age.
That's one of those pleasant quotes that helps no one like "Hope springs eternal from the human heart" but I know you are trying to help. God Bless you.
Im only 21 and I have been living with severe chronic pain for the last four and a half years. College has been very hard. Suicidal ideation and cutting is constantly on my mind as well as clinical depression and anxiety. Doctors have misdiagnosed me over three times and still aren’t able to treat me. Believe me I’ve tried so so so many things (mainly opioids at the moment). It hurts to use my arm at all. It started in the brachial plexus area but then spread down to my hand, neck and now (started this year) back too. I have zero friends and no longer live in home with my family because i am at school. I try to be grateful for what I do have, which I recognize, but I also feel guilty to admit I’m suffering because I’m blessed in many other ways, if that makes sense (especially after his testimony). I am missing out in so many college things, and opportunities which I am grieving in a way. (In addition to grieving my life before this started). Anyways that’s my venting that no one asked for . Glad you have made sense of your pain.
Chronic illness teaches you that you literally had everything you ever needed when you were born as a healthy baby or at least a "fresh" human. But since humans do crazy things like dangerous activities, driving fast, sports, taking risks, doing movie stunts, eating inorganic food over and over again, eating unclean foods over and over again, we get injured or ill and then get reminded "ahaaaaa I had gold but didn't realize it" to me that is the biggest lesson here. There's times where I get 30 minutes of sleep at night, then go to the supermarket in the morning with bloodshot red eyes and extreme body pain only to look at a healthy kid running around or a healthy couple kissing and holdings hands and I think "wow it must be good" aside from money or any monetary goal, the real money is having your health in my opinion. If I could do it over again I would not live in a big city and prefer to live in a quiet village in Africa where there is fresh air, barefoot walking, garden eating, and absolutely no chance of spontaneous illness because the pressure of making physical money is very low.
I feel you. Im 24 and having pain since 2 years. I am constantly envying people my age, younger and older people who have no pain.
Love this perspective.
Um no. Many are born with genetic disorders and illnesses snd it had nothing to do with “doing crazy things.” It was completely out of their control. But I agree people need to be aware and grateful of what good they do have.
Amen to that my life long chronic allergies have been exhausting along with neuropathy...
So my life is a mess. I am the victim. I need to focus on being a single dad and I need to find my way. I am stronger from this.
You got this man :)
You are a strong man.. blessings of peace love to you and your loved ones
I’m so sorry, Jir Ficco, although I’m not a dad, I go through chronic discomfort and it’s the worst. Worse than any emotional or existential crisis I’ve been through. I am suicidal daily, and nothing satisfies me like it used to before. Stay strong. Your kids need you. I’m sorry you have to go through this you have all my empathy!
Everyone look at TMS Dr schubiner
The best speech I have ever seen
This is fantastic
Thank you Trung. I found this presentation very interesting. I took some real gems from this 🙏
This guy makes it all seem so simple. I’m not buying it.
He speaks from the viewpoint of someone who doesn’t actually have it. He gets to judge others.
Great video, really valuable insights!
How do you do it, if without meds, you can't walk, brush your hair, and worse of it , be treated like nothing. I have pain 24 , I keep falling because of pain. Get hurt, it happens on daily basis. I am an artist. If I could sit, and move my arm, I could at least make some money.
Doctor, Until you've lived with chronic pain then you have no idea how hard it is to live daily. I'm actively taking action but it is the most difficult thing I've dealt with and I've been shot 5 times. I have daily suicidal thoughts that come out of nowhere. I take medication, therapy, etc and they just come. What you're talking about is unrealistic. Half the time I can't get proper health care and even when I do it's very temporary relief. Imagine having to deal with daily life problems, etc and your head is pounding non stop or you want to rip your spine from your body.
I am literally at my wit's end with all over chronic pain im 32 single mother work full time, i am just exhausted from it.. I am tired of taking painkillers I am sick of cortisone injections sick of physio sick of exercises, I am fed up, I just keeps it all insidetand tonight i just sat down and cried, trying to find some answers
.. I am so close to giving up
Don’t give up! See other doctors, get second opinions, research other modalities. Make it your mission to get better, even a little bit everyday. But don’t ever give in.
It sucks living with joint hypermobility syndrome, fibromyalgia, ulcerative interstitial cystitis and polyarthralgia. Chronic pain is unfortunately with me every second of my life.
I never understood what it is. I am suffering from this and I never knew its both Physical, Emotional and Mentally. Now I understand.
In 2017 I did too much gym exercises onto my cervical muscles added to my new 9 to 5 job in front of the pc. The result? Chronic back pain with chronic headache up to now, 6 years of anxiety because of my lack of lucidity and focus (severe brain fog) during even simple conversation. I went to every branch of doctors and chiropractors, no one solved my problems. Now I'm going to another physiotherapist, very wise guy, I have faith, I don't wanna suffer anymore.
I suffer from chronic pain; I’ve had IBS since I was born, and I have Sciatica. I have felt tied down my entire life by these two things. I am definitely a catastrophizer! I stay home and don’t go out because “What if I get sick the one time that I go out?” I hate living with this mindset. :(
There's help out the. Therapy such as CBT helps a lot. There's also a youtube channel called Pain Free You that helps a lot with pain caused by stress. He offers a group session for 100 bucks a month and it's once a week. Worth a shot if you haven't tried either. I'm currently doing CBT myself and plan on joining that group I spoke of. I suffer from panic attacks and chronic back pain. Hope you get better.
TRY KRATOM !
Check out the YT channel Pain Free You. He even talks about IBS and Sciatica and how fear can keep the pain/symptoms going. Sounds like you have alot of fear by reading your comment... You should definitely check it out. He also share success stories and im quite sure one or more of them are with people who dealt with IBS and became pain/symptom free with his approach. He himself had backpain and sciatica for 13 years and is now pain free
Check out the YT channel Pain Free You. He even talks about IBS and Sciatica and how fear can keep the pain/symptoms going. Sounds like you have alot of fear by reading your comment... You should definitely check it out. He also share success stories and im quite sure one or more of them are with people who dealt with IBS and became pain/symptom free with his approach. He himself had backpain and sciatica for 13 years and is now pain free
Thank you for sharing a chronic pain Warrior in pain 24/7 and seeing other Warriors sojournings it's amazing😇♥️
What if your adversity is a condition that can't be fixed? What if after making every optimization in your life possible you still feel miserable because the condition is just that agonizing?
I have chronic fatigue and it hasn't yet been confirmed nor denied if it will be life long condition, but I'm extremely worried that it will be. What will I do then? No amount of optimization could fill the void of feeling unfulfilled in life. I used to write, watch series, read books, program, play rhythm games as a top player, go to school, talk with friends... there's big things I want to do, but with this fatigue I can barely even take a shower...
Any advice is appreciated
Felling same as you bro may God be with you🥲🥺🥺 don't loose hope
look into the carnivore diet
This is not very helpful as it suggests that chronic pain is the result of a person’s personality, willpower (or lack thereof) and simple resilience. In essence, it places blame on the person suffering from chronic pain and it makes light of the real physical limitations pain can result in.
Of course attitude, self-care and mental flexibility play a role. However, suggesting that chronic pain can be overcome by resilience or a change in attitude is misguided and unhelpful. Anyone suffering from chronic pain would change their mindset and attitude in a second if that’s all it took!
To anyone who sees this and suffers from chronic pain: do you have any tips that help you cope with it? Or things you tried that didn’t help or made things worse?
acceptance of the situation and therefore the ability to focus on other things helped me a lot. your pain wont go away, cause your body is like it is. i too suffer from chronic pain. i m okay with it, even though there are times where i really cant ignore it cause it hurts so freakin bad everywhere in my whole body. but it doesnt change if i concentrate on it. i will just feel worse. do whatever you like. just dont allow your pain to highjack your life. pain is real, but surrender is choice. (:
@@alexg8038 that's it. im 18 now, it's been 6 years since i got Rheumatoid arthritis, i can say the two most valuable lessons i have learnt 1. acceptance of the present 2. understanding that you have choices in every situation you are in. this makes my life so much easier even if i get severe pain.
Counseling and find a doctor that listens and respects you and vice versa. I went decades with awful doctors until I made it a mission to change that. Ditched the VA and spent out of pocket costs I never should have paid for but it has changed my life. I also studied food as medicine and natural resources such as vitamins and super foods. I did experiments of gummy vitamins, liquids, or tinctures to see what worked and what my body responded to. I tried nightshade/caffeine/chocolate/gluten free diets 6 weeks on, 2-4 weeks off, 8 weeks on, 4 weeks off and so forth. This was to really find response rates and not placebo effects.
After my surgery 1.5 years ago I lost the little energy I did gain and now I am figuring out a regimen with diy capsules of various powders such as turmeric, diamanté, goat weed, Ashwaganda, and many many more. It will take time.
Pain and energy keeps me less active than I would like to admit so I am ordering a yoga trapeze to help stretch and limber without the impact that causes more issues.
It’s slow going but it’s not up to anyone else but me to find improvements through trial and error.
Kratom Herb
I sugger from chronic sciatica in my legs since 2 years now. It startes around the time I graduated from PT school.
Its more functional for me. I struggle to sit for prolonged time, eg in theatres, stand in qeues. I have a choice to exercise and feel better or do nothing and face the consequence of pain.
Its the choices, every minute i have a choice to be more conscious of how im sitting. Some days I cant get out of bed bcoz of pain. I take a walk on my bad days.
I can say from my experience, that not just from the perspective of pain but also addiction that getting to know your patient/client and trying to understand their OVER ALL life situation...mind, body, soul,...learning to take accountability for my actions was what saved my life...im kinda like Teresa...I had my colon removed still complications...j pouch, renal failure ect... went through domestic abuse...lost my kids, my home, my career, delt with addiction problems...n that's just the surface, im still right in the middle of it...and I've experimented...trying to see if i got treated different playing the pleaser..and the go getter...or both...its so hard to find a happy balance cause it really depends on what area you apply these skills to, I looked this up cause im struggling with pain meds n dont want to take them and have beat them before but i had amazing support and i went back on them prepared and knkwing it would be temporary but it's eating me aluve inside...i pushed everyone away this time cause i felt ashamed that in a sense I've failed by my own learned skills that changing my negative core beliefs and repeating the positive changes that completely changed my life for the better and it is not fitting to my current life circumstances and in a sense im being or playing the hypocryte and to top it off im too ashamed to get ahold if the one person ive ever truly been honest to about actually wanting to change, and asking for help openly to go to him now and openly tell him i failed my self i let my own negativity drive me away and right back into bad habbits...already knowing what i did and knowing what i need to change but cant see my self doing it with out a different environment...i feel like ive got a pretty good handle on my co-dependancy on people it would truly hurt the thought of never seeing some of the certain people again...but my fear is that now ive become fixated on my environment having to be a certain way in order for me to achieve in a sense what i consider my own self perfection of working on and strengthening my skils on a day to day basis to the point that not one bit of doubt fills me or my belief that i alone can achieve ny own sucess and happiness and attain what i need in order to share and lead my children towards the same skills and positive/ changes and foward moving lifestyle...my question is:
am i now co- dependant on a certain enviroment or way of thinking or is it just as simple as missing certain people and parts of my life i want and do not know how to get.
TRY KRATOM !
What stands in the way becomes the way.
True in certain situations for certain people
This video is a two sided story...yes we do have control of some parts of our health depending on our effort and the quality of health care.. some people try so hard to heal but can't heal aka people on wheelchair..some people do recover..you can have a great positive attitude but are still sick.. there is no absolute solution..some situations are hopeless and some are not... attitude towards your self matter...but who can blame an angry sick person who suffers from chronic pain... depending on people for survival as a sick person leaves you vulnerable to mental or physical abuse especially from your own community who has the same issues not even mentioning the so called normals who don't get you.. everyone's stories are different.. depending on the pain you can still volunteer or help others or like Some people become home bound with chronic pain...
When no one behaves as if they want to help me like im a burden & dont want to help has made me worse and hopeless i struggle with self love so how can i expect people to love me
I'm so sorry to hear that Renee. I can almost guarantee that the people around you care more than you think. I'm sure you're doing a lot to not be a burden and you should worry less and focus on healing ❤
Renee please find someone near you who practices reiki and timeline therapy. Be open to it. It helps understand why you feel the way you do. It will help with self love and you deserve to live happy within yourself. Sending you love and light and a massive hug from Yarra Valley Melbourne Australia 🌏 🤗💜
I must be the healthiest person ever because all I do is go to medical doctors.
I would believe you if we all had the same brain we dont so we all dont have choices i disagree
Okay I ll take responsibility, like I haven't been doing it for every second since the apkn started a decade ago. Thanks genius
I tried to give this guy the benefit of the doubt.
Its been 1 yr or Sciatica and i lost everything my health, my hobbies, my social life...
wow thats a tough ride
I'm not even near Toronto, lost my insurance. 11yrs with this pain.
I hope you feel better
I'm not on my parents insurance anymore so I had to get my own but I can't pay for it and I gotta find a doctor.
This is insulting. You have an example of a lady that got better. Some of us do not have an option of getting better. Some of us have strong minds but we can’t do much with it. We are stuck in our own heads and our own dreams of what we could do if we could just get off the couch longer than an hour or two.
I had to have my tubes tied because I don’t have the physical energy or ability to have any children. Also having kids could have killed me. I used to do volunteer work at animal sanctuary’s. Now I can’t. It has nothing to do with negative thoughts. I have a rare connective tissue disorder. People with my disease do not get better. I accept my fate and I deal with pretty well but you Sir are just insulting.
This video was not insulting. I have a condition that won’t get better as well. Look at it this way. Yes you cannot do things you normally couldn’t do before and your body feels like it’s against you. Your ego is in the way from staying positive. That’s a truth I have been there. Find a way to live in the present and ways to make you happy. Some or a lot of things are not reachable but not everything. Don’t take life so personally. You missed the point of the video so did many others.
🥺
I ruined my life Being a good natured, yes person. I'm 23 and have had chronic back pain for 2yrs. primary care, neurologist, and physically therapist I've been to only make it worse in their lack of attentiveness and general indifference to my situation, they get paid either way. I tried killing myself taking 10 sleeping pills, drinking a whole bottle of rum and taking a bath. My boyfriend came home and found me thrashing around in the bathtub. I still want to die and did even before the physical pain. I'm not as strong as I thought I was.
💜🌈
do not listen to this video, he clearly does not experience chronic pain. he is blaming his patients for being (understandably) hopeless about their disability. you are valued. you are important and you deserve to take up space on this earth just as anyone else
İ have cubital tunnel syndrome I've been having pain for 2 years now. I'll get a surgery this summer but im scared
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It turned it isn't cubital, but they don't knoe what it is. Don't know how to fix it
I have eds, mcas, pots, lost all my teeth, had back surgery at 38, been in pain most my life, im really tired of it.
Never give up chronic pain is part of life no quick fix for that dont go into depression
when adversity legit cripples you, the path of resilience does not exist .
I have occipital neuralgia post nerve decompression surgery. Still in constant pain everyday. But I get up, go to work, exercise, and make time for my family. Always pushing through the pain and staying busy. What else can you do?
I don’t know if this is still active but I’ve built machines that would make a lot of money but I can’t get past the pain the pain is too much
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He doesn't seem to have a clue..
I'm from India, I'm 26, preparing for Civil services Exam. Got Slipped Disc coz of Long sitting and bad Posture... Its been more than 10 months now, i have consulted to many doctors physiotherapist, but not getting any good result... And pain is getting chronic day by day.. please anyone help me out.. what should i do :-(( this pain haunts me alot, i couldn't go anywhere, couldn't sit without back support :-(
Watch videos of Dr. Howard Schubiner! This video is nearly worthless
Same situation brother I'm also from India and I'm suffering from chronic neck pain and it's really haunting.. My life is ruining bcoz of this pain, all the hopes and dreams are slowly disappearing..
I deal with chronic sciatica pain and bad peripheral neuropathy in my left foot. I just cannot understand why God won't allow the insurance to easily and quickly approve the therapies all my doctors say I need. Even after this I am struggling with understanding chronic pain.
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chiropractor hip adjustment he will put you on your side also perhaps correct your knee / pelvis only do this 3 times no more it will worsen you if you overdo it
You hear the figure of speech but Damn they were all literally in the same boat
Am I a victim. I had back surgery and came out with my abdominal wall paralysis. Chronic pain destroyed my career and took my choice for children away. Now we are fighting the CDC for adquate pain medication
I dont agree. sorry. I dont want to be resilient anymore.
Amen to that. I've been in chronic pain since i was a teenager. My life has been defined by the pain, the trying to function, the guilt that comes from being a 'failure', the guilt foisted on me by a few psychiatrists who tried to (and in one case did) convince me that my pain was all in my head or not as bad as it was, the guilt from my family and friends who think I am a drug addict. I am just so tired. I'm tired of all of that, and mostly, I am tired of managing a chronic illness. Suffering is not optional, pain demands to be felt. This guy's point of view is toxic. He's the kind of guy who makes people like me feel worse. I've tried his way of doing things, and it led me to attempt suicide. Not because i'm weak, but because i've had to be strong for too long.
Daniel Tate I hope you have a nice day today. Take it easy, is my mantra to myself. Does it work for u too?
I hope you’re okay. I promise your resilience is appreciated and you owe it to yourself, you’ve fought for so long and proven yourself wrong so many times
@@danieltate2006 I wish I could give you a soft, loving hug, Daniel. I'm in the very same boat as you are. I've had 4 lumbar spine surgeries (including 2-level fusion) and am left with mind-blowing agony. I am 56 years old, and did have a great legal career until 2012, when my world was blown up. No one -- and I mean NO ONE -- will EVER understand what we go through until they have had to live through it.
I hope you find your peace.
@@danieltate2006 what is your illness if u don't mind me asking
Omg I have had a chronic left sided headaches for 11 years now, with no end in sight. I was going to try an get some inspiration from some videos. I need help so bad. But this didn't help, it made me feel worse. Have you ever tried doing anything with a headache? It's not that easy.
I have headaches because of my Jaw TMJ. Since wearing a mouth guard at night it helps.
How are you now 🥺
@@nikkiattree65 TMJ is a fuckry
Very thought provoking. I’d like to think that I am a resilient type person having overcome many adversities in my life. I recognize many people who fit in other categories as well (victim, catastophizer, go getters, yes people, etc...) all who suffer with some form of pain.
Very insightful.
I don't think that chronic pain contributes to the opioid epidemic nearly as much as doctors over prescribing them for acute injuries and post-op. This guy is so out of touch it hurts.
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I agree with the resslience part, also was nice to see the progress aswell the caterogies. I do feel you were bit condecending. Until you have gotten chronic pain you dont know how painfull and numbing it is. I think most people would not even give it to their worst enemy. Each day i get the feeling of a bug crawling on my neck and shoulder pinching it. At times you want to accept it as you said, but same as your miscarriage you never stopped. So whats wrong being a doctor shopper to fix their problem? At end of the day we just have to have hope and motivation, but at the end of the day life is unfair. The incopentence and uninvolment of doctors is sad aswell. You have the cards you are dealt and its your choice how wisely you play.
sooo over-simplified