Great video. Really appreciated! Helps so much to see people making their way out of this. I am suffering from muscle weakness and all sorts of „little failures“ of the nervous system like a bit forgetfulness, tired eyes and blurry vision, muscle coordination, tickling in the arm and legs, digestion problems, sleep problems, moderate fatigue, mood swings… etc… After three month I came to the same conclusion like you… Meditation and good sleep are a very powerful tools but you have to find the right balance of not becoming inactive. There will be setbacks once you overdid it with your activity level but this is to show you how far you can go… next time take it a tiny bit further. I am like half way through the recovery process and went from not being able to walk the stairs to long walks with my son. Next will be a little bit of exercise like yoga with a tiny bit of maybe push ups or so… pacing really seems to be the key. Also a very low carb diet ( ie ketogenic ) is extremely helpful in my opinion. Once your body isn’t busy digesting the more or less crappy foods we all eat on a daily basis it can easier switch into healing mode. A strict keto diet even helps with improved autophagy in every cell of your body so mitochondrial function is being restored quicker. Avoiding the foods that make your insulin and blood sugar go on a rollercoaster ride (like coffee, sugar, to many fruits, bread, etc) all the time is very helpful. It fights inflammation in your body and calms the nervous system a lot. Takes a while though. I found that Quercetin, Zinc, high doses of Vitamin D with K2, Vitamin C helped a lot. Don’t overdo the supplements unless your doc tells you to. For sleeping it’s really helpful to take L-Tryptophan on an empty stomach in higher doses 1/2 an hour before going to be. It’s very calming for the night as it is a pre-form of melatonin. Also Ashwanganda is very very helpful to me. It really balances me A LOT. Takes a while to work it’s magic in the body but the effect on the wrecked nervous system is totally great. Patience is key i guess… get off your phone, newsfeeds, TV screens, etc… everything that stresses you out has to leave… I see it as a chance to free myself from toxic relationships, toxic foods, toxic mindset, etc. It can either be the opportunity of a lifetime to tidy up your life and to make your way out of it and become stronger than before or getting stuck with LC and the average news channels that tell you there is no cure for this ( what a nonsense ).
Glad you enjoyed the video! The balance between resting and not becoming inactive is so tough to strike. Definitely struggle to find it a lot of the time! So glad to hear that you’re halfway to recovery and can do long walks again 😊. I’ve not tried keto, but what has helped me is only eating solid food in an 8 hour window (between 1 pm and 9 pm), so my body isn’t constantly digesting. We are on very similar supplements too! I’m also trying to see this is as a time to regroup. Work out what toxic behaviours/ relationships/ mindsets I have and almost create a new life from scratch. I think when dealing with a health challenge like this, it’s a chance to face things you have been avoiding. Thanks so much for your note 😊
@@naimaella Keto is tough to be honest. The first days are a struggle to say the least but once your body switched into ketosis and you manage to stay there its a bliss. No more cravings. A clear head. Better sleep. Its a lot of work though to find the right food especially when you are vegetarian. Plus the cooking is very time intense. 16 - 8 intermittent fasting is great! Its definitely a game changer for the digestion. I am sitting on my sofa right now noticing that the short bike ride today was way too much. Yes its tough to find the right balance. My neighbor suffers from LC / fatigue as well and he got in touch with a fatigue coach who helps him with pacing techniques. Its definitely the time to turn inwards and to find shelter from literally everything that stress you out in this world. Its actually a time to thrive as a human being as you will definitely come out stronger than you were before. Its indeed like starting from scratch. I just finished reading this book about the vagus nerv. It was an eyeopener! Corona messes with your ANS and the vagus nerv plays an essential role in regulating almost every organ in your body. It even helps regulating your glucose levels in your blood which might explain why keto is a good option in supporting the healing process. Its rather easy to stimulate the vagus nerv with different exercises, breathing techniques, meditation and yoga. There is heaps of stuff here on youtube. Stay strong! You will be cured. It just takes time. Your body went through a traumatic experience and you gently have to show him the way out of this. Much love
@@joshuaschwarm4 Will second the fasting, it does make a HUGE difference! Yes, the PACE protocol is EVERYTHING!!! I love your statement " Your body went through a traumatic experience and you gently have to show him the way out of this." What a wonderful perspective! - Wishing you wellness! 🖤
Thanks for this as for the past 6 months discovered I must heal my nervous system (which western medicine has failed to address). I do similar as you, although I call my meditation "napping". I shut everything down to quiet and rest. I learned from a YT video that any activity, even watching tv, listening to music, etc takes energy. So my "napping" I don't expend energy. It's a long, slow road this way you described, but well worth it. Journaling my activities daily, I see my progress.
You're right there is a lot to unlearn about our "always on" culture in order to start seeing progress, but I agree that it is worth it. It's something I wish I had known two years ago 😊. I hope you continue to improve!
I had Covid in early July with a super sore throat, felt like strep but it wasn’t. Haven’t felt right since. Nice to see videos like this! Box breathing is good, they do that in the military.
Yes!!! These are all great ways to retrain the dysregulation. Diet helps me because my digestion has suffered. I have cut out meaningless carbs, caffeine and sugar. Stressors of all sorts trigger the dysregulation. Whether it’s Covid or emotional stress. I find that lowering any stressors helps relieve symptoms. Meditation and brain retraining has been game changers. Finding ways to get as much sleep as possible helps with healing. Sometimes this takes supplements or maybe medication depending on how severe it is. Chronic Fatigue or Long Covid is all dysregulation of the autonomic nervous system. I wish the doctors would catch up.
Great insight to the nervous system, I am 6 months in and staring to see recovery in the distance, I had big issues with digestion and anxiety, fatigue and weight loss, I couldn't eat for nearly two months as symptoms were too bad. I'm starting to get out more now and hoping to work soon as I haven't been able too since the new year. I found breathing exercises the most helpful, a basic diet and rest the only things to get me mobile again. Resetting everything pretty much and working from scratch. Many thanks for the video, good luck going forward.
Naima, you’re so strong. I watch your video religiously because it makes me feel heard. I am suffering from long covid for 10 months now. Although I’ve gotten better but there are days where I feel everything all over again. Some days my heart just starts beating fast out of nowhere and I start feeling faint and shaky. I have to lay down for hours so it can past. A few days ago, my heart rate starting going down very fast and I felt like I was choking. It was so scary. I have many different symptoms and I don’t know how to get better. I have been exercising, eating healthy, taking supplements, fasting and tried low histamine diet. I would do anything to be healthy again.
Thanks and I know the feeling well 🤗. It can be so hard when it feels like we're throwing so much at recovery and nothing is sticking. What you're describing - dizziness/ high HR/ feeling faint sounds a lot like Pots/ dysautonomia. Have you done a test for that? Mention that to your doctor if you haven't already. I used to have these horrible jolts in my heart that were absolutely terrifying- they've mostly gone away with time and with beta blockers. I really hope things start to improve for you soon 🙂
I been dealing with this 3 years buckle up folks i hate to break it to you guys it dosent go away on its own as soon as you get sick again with anything it all will comes back I’ve had moment we’re I think I’m recovered then the kids get me sick with a cold or any other bug and bam I’m back to square one with all the symptoms back full force… sorry guys I know it’s not what you want to hear however it’s the truth I’ve tried ALL supplements light therapy acupuncture cryo therapy hyperbaric oxygen I mean everything and only have minimal results
Thanks for sharing all these videos. Aside from yoga, have you tried any other exercise routines? I've got the adrenaline dysautonomia, with pots, palpitations, and a weak parasympathetic response. The most improvement I've made is from daily morning hikes and short runs in the evening. When I push my heart to 140-150 bpm (10 minute run) or 110-130 bpm (45 minute hike), my heart rate stays low the rest of the day and my nervous system functions normally again. After a few weeks of this, digestion and food allergies also go away! On the other hand, when I skip this routine for more than a few days, palpitations and allergy symptoms start to come back. I think this cardio routine (or "heart rate training") is setting a boundary for the sympathetic response: telling my nervous system "THIS is the only time my heart should race like that."
Hey John that's great 😊. I'm glad you're seeing a difference when exercising. Did you slowly build up or have you been able to maintain some movement since your diagnosis? Unfortunately I'm not able to exercise yet. I have exercise intolerance and my HR can reach 130-150 BPM when walking up the stairs. Beta blockers are helping to lower my HR, but I'm waiting for my symptoms to be more stable before I take the plunge. My aim is to next year start introducing exercises lying down and build up from there. But it is a slow process.
@@naimaella You're exactly where I was when I restarted. At first, I practiced standing for a few minutes at time, then sitting back down, till my heart returned to resting. After 2 weeks, I progressed to walking (walk 2 minutes, sit for 1 minute), and after four months of walking, I progressed to running. There's a psychological barrier to exercise intolerance that's difficult to bypass after being bed bound for such a long time - start slow and push yourself in very small increments. Good luck!
@@naimaella I'm in the same position you are. My Dr just told me last visit my system is crashing again, to the point that using a cane isn't enough and is prescribing me a rolling walker with a seat or a wheelchair. I just wanted you to know that you aren't alone. 🖤
I am seven months in my LC and I started exercising last week. Some light cardio. For five minutes and I wanted to build up from there or weekly. I am already crashed. For four days now. I feel like I can’t get ahead. It’s so frustrating. How did you incorporate exercise into your life Without crashing?
Hi Naima, always nice to see you’ve posted a video! I sometimes wish we could meet and have a good natter… because long covid is very erm… lonely lol … also I love ur bookshelf First of all, this video is so relevant. Once the heavy long covid symptoms calm down, through rest and pacing, I’ve began noticing I’m always stressed by the smallest of things (over sensitive nervous system) and sometimes they’re such silly little things that I feelshocked to have such a grave bodily response … however I’ve accepted that long covid has alternative my nervous system to hypersensitivity I also trace my chronic fatigue back to stress and trauma. It started with IBS…I constantly felt unsafe and still do, keeping my body in fight or flight… it all began after a very sudden death of a very close loved one Anyway, since realising, my main focus is to KEEP calm the best way and to practise calming strategies… which is very helpful so far Thank you for your suggestion… I’m going to add them to my list… I must also add that there’s a programmed for chronic fatigue and ME that focuses mainly on calming the nervous system and “when” to intervene with safety signals etc … it’s around 3.6k 🤦🏻♀️ that’s why I haven’t jumped on it but it feels so relevant… and after seeing your video, and your thoughts, it resonates even more… just out of budget
Hi Khatija, Thanks so much! You’re right this is such a lonely and isolating experience - it’s so hard to get others who haven’t been through this to understand. It sounds like you’ve been through so much 💛. I completely get what you mean about this outsized response to stress - things like doing paperwork, a difficult phone call etc can almost tip me over the edge some days. It’s so frustrating how expensive some of these programs are - they’re not affordable for so many of us who either cant work or are working part-time due to illness… I’d really recommend Yoga Nidra and stasis (here are the free on-boarding videos and then it’s $5 per month). I also did the free intro videos for the ANS rewire program (it gets recommended to me a lot in the comments) and I’d say it’s worth checking out. If you have chronic pain, I absolutely love an app called Curable- it’s great for calming down the nervous system especially when in a flare and really helped me get through times when I had too much pain for me to handle. www.curablehealth.com P.s. The bookshelf is my grandma’s - hope to one day have as big a collection 🥲
I heard about this last week too, from the only member of my NHS LC team. I'm in a similar boat, it's like being a car with access to only two gears trying to do 80mph up the motorway - over revving. SIBO is linked to FMS and I think if one has had Cyto Storm then it could play a part in LC. I know if I don't do my breathing, light meditation etc, then things get worse, ergo sat in pain struggling as I write this (so trying to go with it whilst, hopefully, helping others).
It's quite a long process retraining our bodies to react more "normally" to the day to day, but you're right it's about consistency and keeping it as part of our routines. Hope the pain eases soon and you start to feel a bit better 🙂
Ooo, I shall have to check out the yoga nidra links. Thanks for another inspiring video! I practice chanting twice a day, which imo is a form of breath work, and can be a parasympathetic activator. I took up auxiliary percussion (eg maracas) a few years ago, and the chau gong in the past couple of years. Definite parasympathetic activators, especially deep gong vibes, which are felt as much as heard. I find singing along to favourite songs can help clear sympathetic energy and be good breath work. ♡♡♡
Yay let me know if you enjoy the Yoga Nidra. I've heard good things about chanting and singing - both for parasympathetic activation and also to regulate breathing with long COVID. My singing voice leaves a lot to be desired lol, but I will give it a go when I'm feeling brave 😅.
@@naimaella for sure, for me, it is only SPECIAL occassions when I sing without the stereo going enough to limit how much anyone else could observe ME. lol.
Thank you for posting this video. Going to incorporate these 3 things into my daily life. I feel about 75% better but, the heart rate/POTs like symptoms still occur. Hopefully, that’ll change with time and practice. No caffeine tho? I’m going to weep 😢😂
Yay let me know how you get on with them. Once they became a habit, I started to really look forward to these calm moments in my day. Haha I know - I miss coffee a lot especially in the morning. I probably have one per month now because some days I can't resist 😄
@@naimaella yeah I def will. Gotta make it habit and play around with the times I’ll do it. So far so good. Hahaha yeahhhh I don’t blame you for still grabbing one. It’s too good! It’s not our fault!
Anyone having numbness& tingling in your hands& feet and also around your mouth? Having tremors? Sometimes I wonder if it might be MS? But had covid July of this year. Started all this afterwards.
@@PollyHistor Thank you dor your reply.How did they determine that you have small fiber neuropathy? Did they do a punch biopsy? Did they prescribe you any medicine for that? When did you start all your symptoms ? Did you have these internal vibrations? How are you feeling now?
@@carmella88 I'm glad it's going away! I have a host of other things to go with it right now and it's like hell really. I sure hope it starts going away soon!
@@carmella88 nerve pain into my jaw, high blood pressure, anxiety, trouble regulating all my systems. I was healthy at the end of November and now I feel really terrible and worse.
Can you make a video for each of the 3 things - breath work, yoga nidra, and diet - in more depth? Each topic is worthy of its own discussion, don't you think? Especially if you credit these things with substantial improvement in your quality-of-life.
Good idea - I really want to get an expert to speak about diet and Long Covid because from my experience it's very important, but I'm very keen to learn more. Particularly how different diets impact different symptoms/ manifestations of the illness.
Gracias por tu video. Puedes dar las recomendaciones en español. Tengo long covid severo desde hace mas se un año y muy agradecida si me informas tu experiencia. Gracias
I was basically 9 months in and then about the 7th month of started being consistent at meditation and now my symptoms and they are almost 100% at times even when I feel like I'm going to crash I don't anymore yes about 3 months it takes that's where I'm at now I went into the chronic fatigue syndrome community I caught covid back in February I was already coming from my spiritual background so I knew what I needed to do I went back to working out for a two straight months now that's when I had a real setback couldn't even walk so I decided to stay home for 2 months and then I started drinking tea green tea and I noticed a huge difference Ginger and green tea and what this does he gets rid of free radicals also cleanses the lungs I've also gave this information to the long covid clinic and a friend of mine who was struggling with her lung no longer struggles make sure you can get the decaffeinated one if you want and turmeric also helps her brain inflammation I use also a sleep tea like valerian root chamomile it just makes sure it sleeps tea and melatonin and this is all I've done I haven't cut my coffee out but at first I did need to do that but it doesn't affect me as much throughout the day but I was thinking of cutting it out again I'm here if you want to talk
Wow that's so great to hear that you're almost back to 100%. What type of meditation was it exactly? And what type of green tea. I have cut out caffeine for the time being to see if it will help regulate my palpitations/ breathlessness.
@@naimaella I'm currently in bed crashing right now decided to cut coffee out. Just don't want it over stimulate my brain anymore I've been through this once in my twenties think it lasted 4 years until I decided just to get some rest if you want to chat I'm here.
@@naimaella ua-cam.com/video/w4Mdjubef0s/v-deo.html this is an affirmations video that I listen listen to sometimes I forget to listen to it but it's a very helpful thing keep your mind positive.
Glad it was helpful. Me too - four times and each time it sets me back. One of the biggest challenges is that we still have to be careful when the world is "moving on". I hope you start to bounce back soon
Gracias por el video. Actualmente estoy casi en el segundo mes desde la infección En mi caso, lo que mas se destaca es la depresión y la ansiedad. Las palpitaciones se fueron al mes. Ahora sobrellevo la depresion como puedo y suplemento con vit b zinc y magnesio. Creo que el hierro me esta ayudando tambien, asi que por eso me parecr buenisimo incorporar las legumbres. Un saludo
Hola - hablo un poco de español. El consecuencia de la salud mental son muchos difíciles para mi también. Tuve depresion durante muchos meses y aumentó mi fatiga. Espero que tu puedes te descansar así que los primero meses son mucho importante para tu recuperación. Un saludo 💛
Wim Hoff breathing is not a good practice for most people. It will make you dizzy and hyperventilate. Please be careful when recommending such breathwork. I instead recommend Anulom Vilom yoga breathing. Yoga Nidra is an awesome exercise for relaxation. I would definitely recommend it.
Does anyone have muscle twitching and constant burping dizziness? I’m a long hauler VET going on three years buckle up folks it’s going to be a long ride🤦🏽♂️
@@lynb87 there are three that I come back to 1) square breathing (inhale for 4, hold for 4, exhale for 4, hold for 4) 2. inhale for 4 exhale for 6 3) putting my finger on my right nostril and breathing through my left nostril. All are great for down regulating the nervous system. A great place to start is by doing the Stasis on-boarding videos www.stasis.life- they are free and then have a more detailed program if you pay. There's enough to get started with if you find what you like from the intro vids. Now I use www.breathewithjames.com he does a free session every Thurs on his Instagram live too.
@@naimaella thanks, I've tried breathing and yoga but not in a structured way that ensures it stays part of my routine. Will have another look at stasis. I found the breath counter for free but nothing else.
The sound editing is very trendy. Alas it's very annoying. When will people learn. Anyway let's this not cloud my judgement on the content which is very good. Thanks.
Great video. Really appreciated! Helps so much to see people making their way out of this.
I am suffering from muscle weakness and all sorts of „little failures“ of the nervous system like a bit forgetfulness, tired eyes and blurry vision, muscle coordination, tickling in the arm and legs, digestion problems, sleep problems, moderate fatigue, mood swings… etc…
After three month I came to the same conclusion like you…
Meditation and good sleep are a very powerful tools but you have to find the right balance of not becoming inactive.
There will be setbacks once you overdid it with your activity level but this is to show you how far you can go… next time take it a tiny bit further.
I am like half way through the recovery process and went from not being able to walk the stairs to long walks with my son.
Next will be a little bit of exercise like yoga with a tiny bit of maybe push ups or so… pacing really seems to be the key.
Also a very low carb diet ( ie ketogenic ) is extremely helpful in my opinion. Once your body isn’t busy digesting the more or less crappy foods we all eat on a daily basis it can easier switch into healing mode. A strict keto diet even helps with improved autophagy in every cell of your body so mitochondrial function is being restored quicker.
Avoiding the foods that make your insulin and blood sugar go on a rollercoaster ride (like coffee, sugar, to many fruits, bread, etc) all the time is very helpful. It fights inflammation in your body and calms the nervous system a lot. Takes a while though.
I found that Quercetin, Zinc, high doses of Vitamin D with K2, Vitamin C helped a lot. Don’t overdo the supplements unless your doc tells you to.
For sleeping it’s really helpful to take L-Tryptophan on an empty stomach in higher doses 1/2 an hour before going to be. It’s very calming for the night as it is a pre-form of melatonin.
Also Ashwanganda is very very helpful to me. It really balances me A LOT. Takes a while to work it’s magic in the body but the effect on the wrecked nervous system is totally great.
Patience is key i guess… get off your phone, newsfeeds, TV screens, etc… everything that stresses you out has to leave…
I see it as a chance to free myself from toxic relationships, toxic foods, toxic mindset, etc.
It can either be the opportunity of a lifetime to tidy up your life and to make your way out of it and become stronger than before or getting stuck with LC and the average news channels that tell you there is no cure for this ( what a nonsense ).
Glad you enjoyed the video!
The balance between resting and not becoming inactive is so tough to strike. Definitely struggle to find it a lot of the time!
So glad to hear that you’re halfway to recovery and can do long walks again 😊.
I’ve not tried keto, but what has helped me is only eating solid food in an 8 hour window (between 1 pm and 9 pm), so my body isn’t constantly digesting. We are on very similar supplements too!
I’m also trying to see this is as a time to regroup. Work out what toxic behaviours/ relationships/ mindsets I have and almost create a new life from scratch. I think when dealing with a health challenge like this, it’s a chance to face things you have been avoiding.
Thanks so much for your note 😊
@@naimaella Keto is tough to be honest. The first days are a struggle to say the least but once your body switched into ketosis and you manage to stay there its a bliss. No more cravings. A clear head. Better sleep.
Its a lot of work though to find the right food especially when you are vegetarian. Plus the cooking is very time intense.
16 - 8 intermittent fasting is great! Its definitely a game changer for the digestion.
I am sitting on my sofa right now noticing that the short bike ride today was way too much. Yes its tough to find the right balance. My neighbor suffers from LC / fatigue as well and he got in touch with a fatigue coach who helps him with pacing techniques.
Its definitely the time to turn inwards and to find shelter from literally everything that stress you out in this world. Its actually a time to thrive as a human being as you will definitely come out stronger than you were before. Its indeed like starting from scratch.
I just finished reading this book about the vagus nerv. It was an eyeopener! Corona messes with your ANS and the vagus nerv plays an essential role in regulating almost every organ in your body. It even helps regulating your glucose levels in your blood which might explain why keto is a good option in supporting the healing process.
Its rather easy to stimulate the vagus nerv with different exercises, breathing techniques, meditation and yoga. There is heaps of stuff here on youtube.
Stay strong! You will be cured. It just takes time. Your body went through a traumatic experience and you gently have to show him the way out of this.
Much love
@@joshuaschwarm4 Will second the fasting, it does make a HUGE difference! Yes, the PACE protocol is EVERYTHING!!! I love your statement " Your body went through a traumatic experience and you gently have to show him the way out of this." What a wonderful perspective! - Wishing you wellness! 🖤
Thanks for this as for the past 6 months discovered I must heal my nervous system (which western medicine has failed to address). I do similar as you, although I call my meditation "napping". I shut everything down to quiet and rest. I learned from a YT video that any activity, even watching tv, listening to music, etc takes energy. So my "napping" I don't expend energy. It's a long, slow road this way you described, but well worth it. Journaling my activities daily, I see my progress.
You're right there is a lot to unlearn about our "always on" culture in order to start seeing progress, but I agree that it is worth it. It's something I wish I had known two years ago 😊. I hope you continue to improve!
Proteins shake....Huel ! 2 bottle everyday ....
I had Covid in early July with a super sore throat, felt like strep but it wasn’t. Haven’t felt right since. Nice to see videos like this! Box breathing is good, they do that in the military.
Yes!!! These are all great ways to retrain the dysregulation. Diet helps me because my digestion has suffered. I have cut out meaningless carbs, caffeine and sugar. Stressors of all sorts trigger the dysregulation. Whether it’s Covid or emotional stress. I find that lowering any stressors helps relieve symptoms. Meditation and brain retraining has been game changers. Finding ways to get as much sleep as possible helps with healing. Sometimes this takes supplements or maybe medication depending on how severe it is. Chronic Fatigue or Long Covid is all dysregulation of the autonomic nervous system. I wish the doctors would catch up.
Great insight to the nervous system, I am 6 months in and staring to see recovery in the distance, I had big issues with digestion and anxiety, fatigue and weight loss, I couldn't eat for nearly two months as symptoms were too bad. I'm starting to get out more now and hoping to work soon as I haven't been able too since the new year.
I found breathing exercises the most helpful, a basic diet and rest the only things to get me mobile again.
Resetting everything pretty much and working from scratch.
Many thanks for the video, good luck going forward.
I'm glad you're starting to see the improvements and recovery in the distance. The first six months were the hardest for me too!
Naima, you’re so strong. I watch your video religiously because it makes me feel heard. I am suffering from long covid for 10 months now. Although I’ve gotten better but there are days where I feel everything all over again. Some days my heart just starts beating fast out of nowhere and I start feeling faint and shaky. I have to lay down for hours so it can past. A few days ago, my heart rate starting going down very fast and I felt like I was choking. It was so scary. I have many different symptoms and I don’t know how to get better. I have been exercising, eating healthy, taking supplements, fasting and tried low histamine diet. I would do anything to be healthy again.
Thanks and I know the feeling well 🤗. It can be so hard when it feels like we're throwing so much at recovery and nothing is sticking.
What you're describing - dizziness/ high HR/ feeling faint sounds a lot like Pots/ dysautonomia. Have you done a test for that? Mention that to your doctor if you haven't already.
I used to have these horrible jolts in my heart that were absolutely terrifying- they've mostly gone away with time and with beta blockers.
I really hope things start to improve for you soon 🙂
@@naimaella I will do the pots test to see if I have that. Jolts sounds so scary. I am glad you’re doing better.
I been dealing with this 3 years buckle up folks i hate to break it to you guys it dosent go away on its own as soon as you get sick again with anything it all will comes back I’ve had moment we’re I think I’m recovered then the kids get me sick with a cold or any other bug and bam I’m back to square one with all the symptoms back full force… sorry guys I know it’s not what you want to hear however it’s the truth I’ve tried ALL supplements light therapy acupuncture cryo therapy hyperbaric oxygen I mean everything and only have minimal results
@ Kanwal Bibi
How you feeling today?
@@MK-gy1ug doing better than before, can’t complain
Thanks for sharing all these videos. Aside from yoga, have you tried any other exercise routines?
I've got the adrenaline dysautonomia, with pots, palpitations, and a weak parasympathetic response. The most improvement I've made is from daily morning hikes and short runs in the evening. When I push my heart to 140-150 bpm (10 minute run) or 110-130 bpm (45 minute hike), my heart rate stays low the rest of the day and my nervous system functions normally again. After a few weeks of this, digestion and food allergies also go away! On the other hand, when I skip this routine for more than a few days, palpitations and allergy symptoms start to come back.
I think this cardio routine (or "heart rate training") is setting a boundary for the sympathetic response: telling my nervous system "THIS is the only time my heart should race like that."
Hey John that's great 😊. I'm glad you're seeing a difference when exercising. Did you slowly build up or have you been able to maintain some movement since your diagnosis?
Unfortunately I'm not able to exercise yet. I have exercise intolerance and my HR can reach 130-150 BPM when walking up the stairs. Beta blockers are helping to lower my HR, but I'm waiting for my symptoms to be more stable before I take the plunge. My aim is to next year start introducing exercises lying down and build up from there. But it is a slow process.
@@naimaella You're exactly where I was when I restarted. At first, I practiced standing for a few minutes at time, then sitting back down, till my heart returned to resting. After 2 weeks, I progressed to walking (walk 2 minutes, sit for 1 minute), and after four months of walking, I progressed to running. There's a psychological barrier to exercise intolerance that's difficult to bypass after being bed bound for such a long time - start slow and push yourself in very small increments. Good luck!
@@naimaella I'm in the same position you are. My Dr just told me last visit my system is crashing again, to the point that using a cane isn't enough and is prescribing me a rolling walker with a seat or a wheelchair. I just wanted you to know that you aren't alone. 🖤
@@JohnSummerford This is wonderfully encouraging to hear!! So happy to hear that you've literally got your stride back! 🖤
I am seven months in my LC and I started exercising last week. Some light cardio. For five minutes and I wanted to build up from there or weekly. I am already crashed. For four days now. I feel like I can’t get ahead. It’s so frustrating. How did you incorporate exercise into your life Without crashing?
Hi Naima, always nice to see you’ve posted a video! I sometimes wish we could meet and have a good natter… because long covid is very erm… lonely lol … also I love ur bookshelf
First of all, this video is so relevant. Once the heavy long covid symptoms calm down, through rest and pacing, I’ve began noticing I’m always stressed by the smallest of things (over sensitive nervous system) and sometimes they’re such silly little things that I feelshocked to have such a grave bodily response … however I’ve accepted that long covid has alternative my nervous system to hypersensitivity
I also trace my chronic fatigue back to stress and trauma. It started with IBS…I constantly felt unsafe and still do, keeping my body in fight or flight… it all began after a very sudden death of a very close loved one
Anyway, since realising, my main focus is to KEEP calm the best way and to practise calming strategies… which is very helpful so far
Thank you for your suggestion… I’m going to add them to my list…
I must also add that there’s a programmed for chronic fatigue and ME that focuses mainly on calming the nervous system and “when” to intervene with safety signals etc … it’s around 3.6k 🤦🏻♀️ that’s why I haven’t jumped on it but it feels so relevant… and after seeing your video, and your thoughts, it resonates even more… just out of budget
Hi Khatija,
Thanks so much! You’re right this is such a lonely and isolating experience - it’s so hard to get others who haven’t been through this to understand.
It sounds like you’ve been through so much 💛. I completely get what you mean about this outsized response to stress - things like doing paperwork, a difficult phone call etc can almost tip me over the edge some days.
It’s so frustrating how expensive some of these programs are - they’re not affordable for so many of us who either cant work or are working part-time due to illness… I’d really recommend Yoga Nidra and stasis (here are the free on-boarding videos and then it’s $5 per month). I also did the free intro videos for the ANS rewire program (it gets recommended to me a lot in the comments) and I’d say it’s worth checking out.
If you have chronic pain, I absolutely love an app called Curable- it’s great for calming down the nervous system especially when in a flare and really helped me get through times when I had too much pain for me to handle. www.curablehealth.com
P.s. The bookshelf is my grandma’s - hope to one day have as big a collection 🥲
I heard about this last week too, from the only member of my NHS LC team.
I'm in a similar boat, it's like being a car with access to only two gears trying to do 80mph up the motorway - over revving.
SIBO is linked to FMS and I think if one has had Cyto Storm then it could play a part in LC.
I know if I don't do my breathing, light meditation etc, then things get worse, ergo sat in pain struggling as I write this (so trying to go with it whilst, hopefully, helping others).
It's quite a long process retraining our bodies to react more "normally" to the day to day, but you're right it's about consistency and keeping it as part of our routines.
Hope the pain eases soon and you start to feel a bit better 🙂
@@naimaella Bless you, thanks, you too😊👍✌️🤞
Thank you for the lovely video.🥰
Ooo, I shall have to check out the yoga nidra links.
Thanks for another inspiring video!
I practice chanting twice a day, which imo is a form of breath work, and can be a parasympathetic activator.
I took up auxiliary percussion (eg maracas) a few years ago, and the chau gong in the past couple of years. Definite parasympathetic activators, especially deep gong vibes, which are felt as much as heard.
I find singing along to favourite songs can help clear sympathetic energy and be good breath work.
♡♡♡
Yay let me know if you enjoy the Yoga Nidra. I've heard good things about chanting and singing - both for parasympathetic activation and also to regulate breathing with long COVID.
My singing voice leaves a lot to be desired lol, but I will give it a go when I'm feeling brave 😅.
@@naimaella for sure, for me, it is only SPECIAL occassions when I sing without the stereo going enough to limit how much anyone else could observe ME. lol.
@@qaphqa haha 💛
Wow I've just looked up the blurb and it looks right up my street. I'll order it soon - thanks for the recommendation.
Thank you for posting this video. Going to incorporate these 3 things into my daily life. I feel about 75% better but, the heart rate/POTs like symptoms still occur. Hopefully, that’ll change with time and practice.
No caffeine tho? I’m going to weep 😢😂
Yay let me know how you get on with them. Once they became a habit, I started to really look forward to these calm moments in my day.
Haha I know - I miss coffee a lot especially in the morning. I probably have one per month now because some days I can't resist 😄
@@naimaella yeah I def will. Gotta make it habit and play around with the times I’ll do it. So far so good.
Hahaha yeahhhh I don’t blame you for still grabbing one. It’s too good! It’s not our fault!
@@jakjak789 I am having pots too. I havent had coffee in about 3 weeks heavy coffee drinker and cannabis user and now nothing so sad
Anyone having numbness& tingling in your hands& feet and also around your mouth? Having tremors? Sometimes I wonder if it might be MS? But had covid July of this year. Started all this afterwards.
Yes
@@PollyHistor I have been seeing many doctors,have appt with neurology in July. Slowly improving,but it sure has been a long road.
@@PollyHistor Thank you dor your reply.How did they determine that you have small fiber neuropathy? Did they do a punch biopsy? Did they prescribe you any medicine for that? When did you start all your symptoms ? Did you have these internal vibrations? How are you feeling now?
Thank you for sharing. It has helped me a lot for the past half year.
Thanks I'm glad you're enjoying enjoying the videos. I hope you're having a good day so far 🙂
Sometimes I feel like my heart drops like as if I'm on a roller coaster. And I wake up with intense heart racing dreams etc. 😪
Wow! Me too. It's so awful
@@myrtle9471 mines mostly gone but it was awful. I hope it never comes back
@@carmella88 I'm glad it's going away! I have a host of other things to go with it right now and it's like hell really. I sure hope it starts going away soon!
@@myrtle9471 what are your other symptoms
@@carmella88 nerve pain into my jaw, high blood pressure, anxiety, trouble regulating all my systems. I was healthy at the end of November and now I feel really terrible and worse.
Can you make a video for each of the 3 things - breath work, yoga nidra, and diet - in more depth? Each topic is worthy of its own discussion, don't you think? Especially if you credit these things with substantial improvement in your quality-of-life.
oops, looks like you already to linked to some yoga videos. It might still be worth expanding upon theb other two topics.
Good idea - I really want to get an expert to speak about diet and Long Covid because from my experience it's very important, but I'm very keen to learn more. Particularly how different diets impact different symptoms/ manifestations of the illness.
Awesome video! Thank you
Long covid is the same as cfs, it's a hypersensitive nervous system but the doctors won't say
Gracias por tu video. Puedes dar las recomendaciones en español.
Tengo long covid severo desde hace mas se un año y muy agradecida si me informas tu experiencia.
Gracias
thank you. very helpful ❤
I was basically 9 months in and then about the 7th month of started being consistent at meditation and now my symptoms and they are almost 100% at times even when I feel like I'm going to crash I don't anymore yes about 3 months it takes that's where I'm at now I went into the chronic fatigue syndrome community I caught covid back in February I was already coming from my spiritual background so I knew what I needed to do I went back to working out for a two straight months now that's when I had a real setback couldn't even walk so I decided to stay home for 2 months and then I started drinking tea green tea and I noticed a huge difference Ginger and green tea and what this does he gets rid of free radicals also cleanses the lungs I've also gave this information to the long covid clinic and a friend of mine who was struggling with her lung no longer struggles make sure you can get the decaffeinated one if you want and turmeric also helps her brain inflammation I use also a sleep tea like valerian root chamomile it just makes sure it sleeps tea and melatonin and this is all I've done I haven't cut my coffee out but at first I did need to do that but it doesn't affect me as much throughout the day but I was thinking of cutting it out again I'm here if you want to talk
Wow that's so great to hear that you're almost back to 100%. What type of meditation was it exactly?
And what type of green tea. I have cut out caffeine for the time being to see if it will help regulate my palpitations/ breathlessness.
@@naimaella ua-cam.com/video/i6PpEMyOt-I/v-deo.html
@@naimaella I'm currently in bed crashing right now decided to cut coffee out. Just don't want it over stimulate my brain anymore I've been through this once in my twenties think it lasted 4 years until I decided just to get some rest if you want to chat I'm here.
@@naimaella ua-cam.com/video/w4Mdjubef0s/v-deo.html this is an affirmations video that I listen listen to sometimes I forget to listen to it but it's a very helpful thing keep your mind positive.
@@naimaella I sent you the meditation. On the 1st video
Thank you for a great and informative video. I have had covid 4 times, and I have long covid for the second time. This is worse than the first time,
Glad it was helpful. Me too - four times and each time it sets me back. One of the biggest challenges is that we still have to be careful when the world is "moving on". I hope you start to bounce back soon
Hello Naima.....are you recovering from your last setback as mentioned in your previous video?.....hope so..
Hi Don thanks for asking. I'm doing a lot better than two months ago and it does feel like I'm turning a corner, but it's a slow process 🙂
@@naimaella great news.....
Hi Naima, have you tried paxlovid and if so did it help your LC?
No I haven't tried paxlovid. I definitely would if I got reinfected.
Gracias por el video. Actualmente estoy casi en el segundo mes desde la infección
En mi caso, lo que mas se destaca es la depresión y la ansiedad. Las palpitaciones se fueron al mes.
Ahora sobrellevo la depresion como puedo y suplemento con vit b zinc y magnesio. Creo que el hierro me esta ayudando tambien, asi que por eso me parecr buenisimo incorporar las legumbres. Un saludo
Hola - hablo un poco de español. El consecuencia de la salud mental son muchos difíciles para mi también. Tuve depresion durante muchos meses y aumentó mi fatiga. Espero que tu puedes te descansar así que los primero meses son mucho importante para tu recuperación. Un saludo 💛
Thank you so much
Did you have internal tremors? If yes, what helped
No only very rarely and they went away with time.
My husband had this and they went away after about a week or so
Have your internal tremors improved?
@@PollyHistor yes a lot I hardly get them now
Wim Hoff breathing is not a good practice for most people. It will make you dizzy and hyperventilate. Please be careful when recommending such breathwork. I instead recommend Anulom Vilom yoga breathing.
Yoga Nidra is an awesome exercise for relaxation. I would definitely recommend it.
Does anyone have muscle twitching and constant burping dizziness? I’m a long hauler VET going on three years buckle up folks it’s going to be a long ride🤦🏽♂️
The numbness tingling pin in the foot feeling bone pain is very tiring
Did u fully recover?
How much time a day do you do breath work?
I do it 2-3 times a day for 10-20 minutes each time then I follow it up with Yoga Nidra as well
@@naimaella thank-you. I see a lot of advice but very rarely how long to do things for.
@@naimaella is there a breath work routine you do the most? E.g. inhale for 4, out for 8. Are there videos with more detail?
@@lynb87 there are three that I come back to 1) square breathing (inhale for 4, hold for 4, exhale for 4, hold for 4) 2. inhale for 4 exhale for 6 3) putting my finger on my right nostril and breathing through my left nostril. All are great for down regulating the nervous system.
A great place to start is by doing the Stasis on-boarding videos www.stasis.life- they are free and then have a more detailed program if you pay. There's enough to get started with if you find what you like from the intro vids. Now I use www.breathewithjames.com he does a free session every Thurs on his Instagram live too.
@@naimaella thanks, I've tried breathing and yoga but not in a structured way that ensures it stays part of my routine.
Will have another look at stasis. I found the breath counter for free but nothing else.
Wim hof breathing way increases cortisol in blood. Buteyko way is OK.
Anyone tried Benfotiamine and Alphalipoic acid... try it
Black seed oil
What about it?
Melatonin
Try taking Vitamin B1
Yes I have been taking high doses of this seems to help
@@carmella88 with which symptoms has it helped?
@@jhonybraavo heart palpitations pots symptoms mostly.
Have you ever felt presyncope
I'm not sure - I've had a feeling where I stand up and everything goes dark and then light again. Is that what that is? Wbu?
Well, I'm not sure either. Sometimes I feel like I'm going to faint but I come back pretty quickly and my heart rate goes up immediately
The sound editing is very trendy. Alas it's very annoying. When will people learn. Anyway let's this not cloud my judgement on the content which is very good. Thanks.
Yoga nidra aka Shavasan?
Yoga nidra is in corpse pose yes but it’s a meditation technique. I link some examples in the description bar
Yoga nidra is in corpse pose yes but it’s a meditation technique. I link some examples in the description bar