3 Components - Work with the Nervous System (Autonomic Nervous System) - Meditation - Therapy - Dealing with past trauma - changing life cirumstances - Brain Training - Treating the condition like a phobia - You are scared of everything (foods, people, cirumstances) You become an expert in being sick. - Teaching the brain that the world is safe. - Gradual exposure therapy is pacing. - Looking at underlying infections - Adressing the gut, nutrition, heavy metals and molds in the body.Healing the gut is crucial
Yes, Calming down the nervous system was key for me to getting better. In my first year I was stuck in Fight or Flight. I was only getting 4 hours of not even propper sleep a day. I learned about the nervous system and did all the things to calm it down, meditation, natural remedies, meds, breathwork, HRV feedback. I was trying to take control over my nervous system, but it just would not calm down. Right when I hit the one year mark, I got reinfected and crashed to very severe ME. This was where I gave up. And THIS was a turning point for me. I gave up trying to control things. I let go. I let my body do its thing. And this was when my nervous system switched to recovery. All of the sudden I went from 4 hours of sleep to 20 hours of sleep per day. Good, restful sleep. And I started getting better. From Bell 5 to Bell 20 within 6 months, which felt insanly rapid.
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
currently dating someone with ME/CFS and i love and support them so much. One time while at school, (6th form) They crashed and were sat in the corner with headphones on. I say with them, told them how much i loved them, held their hand and cuddled with them. They managed to push through the day and crashed again at home, but, when i was cuddling with them and was Non- verbal. They leaned towards me and whimpered “Thank you” and when i got home, i burst into tears. Thank you for this ❤❤❤
I don't agree with the pacing exercise approach to Long Covid. I've had LC for almost a year now and my GP here in the UK told me to exercise no matter what and every time I do, I crash. Even if my session is light or it's a walk in the forrest, and before this I was an extremely fit rock climber. I eventually switched Drs in the practice and she told me not to exercise at all and that is also the advice from the leading LC researchers/Drs here in the UK. I know some people are claiming to have success with pacing, but I'm more convinced this is a media driven story that's pushing people further into trouble. My real progress kicked in once I really looked at my gut health and I've made huge leaps forward.
Are you talking about probiotics? Cause theres a research showing correlation of poor gut health and long covid. I did a stool test and found out my level of healthy microbes is much lower than the norm so I was prescribed concentrated dose of probiotics and also follow a more gut healthy diet. It definitely helped me to improve thou the recovery progress is slow. For exercise, I only slowly resumed cautiously light level of exercise (to the point just before severe pem kicks in) which I think helps but it is really hard to get it right so I understand why some ppl say you shouldn't exercise. Actually it should be called conditioning other than exercise since you shouldn't be stressing your body. I was also very active in rock climbing before long covid hits in May this year. Wish you a speedy recovery.
If you have post exercise malaise (PEM), & Everytime you exert yourself, you get really fatigued and kind of flu like afterward (there is typically a lag time btwn when you exerted yourself, and when you feel those symptoms. It can be anywhere between a couple days to a week or more. You have used up all your energy. It means stop or you'll cause further worsening or prolongation of symptoms, & possible damage
@@northernflicker1111 I've been taking Symprove here in the UK.. it's live bacteria developed by a Dr in the NHS. I'm coming to the end of my 3mth cycle.. I can't say for sure it's helped, but I am so much better and I have gone through some strange moments with my gut.. I recently found out our Gall Bladder holds the second most amount of the ACE2 receptor that covid binds to... and that last week they discovered a bacterial issue in the gut is causing low Seratonin in LC patients.. which means that Cortisol, Testerone and now Seratonin are all low,...and Seratonin is producded in the gut.. I feel like it's starting to make sense now...
I cant thank you enough Raelan. Your videos gave me hope on my recovery journey and I wouldn't have healed without your channel. Your channel is a lighthouse in this dark sea of dysautonmia.
Raelen your channel was a huge part of helping me recover. Digging into childhood traumas, emotional suppression, pacing etc were what led me to recover. Thank you from the bottom of my heart 💙
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Could you talk about emotional suppression a little bit. She had a guest on recently, who recovered from over 10 yrs of chronic back pain. He has a method he teaches, starting w/ validating and feeling your emotions.
@@saintejeannedarc9460 Irene Lyon has a great channel, among others, that talk about physiological symptoms like those seen in CFS and other conditions as communicaton by your unconscious alerting you to toxic unprocessed emotions that are stored in you. They are a result of the unhealthy cultural behaviours (like emotional suppression). Because we were taught from a young age to bury our feelings, they don't just disappear, they sit in our physiology and actually affect our behavioural patterns and overall health. There are a variety of tools to help access and process these trapped emotions, like journaling, all with a massive emphasis on self compassion - validating and acknowledging what has affected us over the years - no matter how small the event was. Gabor Mate, who I urge you to check out if you haven't already, says that trauma isn't what happens to us, but what happens inside of us as a result. As a way of coping, we buried our experiences and our minds became disconnected from our bodies and its sensations, and ultimately disconnected from who we are. Reconnect your mind, your consciousness back into the body and the unconscious, and begin processing all the pain - that is the path to freedom.
Yes! This is what it took me months of research-- and numerous medical tests--to understand on my own. Now ready to address it. I subscribed and look forward to learning more.
Going to a therapist? Having a career? Trauma therapy? Having relationships? I’m glad to hear there are people with long Covid that can do these things. Many of us can hardly get out of bed.
@@breezylyn2168 maybe it’s time to start a dating app for long covid sufferers. “I like being in bed a lot, eating the same three bland foods repeatedly, knowing the staff at the ER by first name, and imagining what it would be like to take long romantic walks on the beach.”
Exactly! Most advice seems to be toward young former athletes. I can’t identify. I’m older and was , again I say was, moderately active. COVID has destroyed my life for 16 months.
What a shame that there is a focus on what can't be done. People are at very different levels of ability, and there is something here for everyone. It's totally possible to do nervous system work from your bed. You may just have to shorten and adjust your sessions according to your capability level@@lindavid794
Yeah exactly. As soon as she mentioned those things, I realised she didn't know what she was talking about!! Mild Long Covid is NOT the same as severe ME/CFS - but it sure can develop into it if you don't rest when you need to!
Hi, I recently recovered from a long covid since I was positive with covid 19 in October 2022. I'm in my 30s, was moderately active (running and hiking) before covid, but afterwards I struggled with long covid. I had fatigue, couldn't walk before I had to sit down and rest, I was diagnosed with chronic obstructive pulmonary disease and was prescribed Symbicort. I couldn't work out for more than 15 minutes. I started eliminating food that causes inflammation such as red meat, deep fries and white sugar from my diet, and incorporating more strength training instead of primarily cardio, especially core training. I took multivitamins, ramped up my water intake and made sure I had enough vitamin D. Now's the third month I've been feeling my normal self again.
After about 3 years into it and slowly but steadily making progress: Raelan you are so right with everything! Atm I am 3 months practicing DNRS and now I understand what was wrong. I am really happy with the results but it is still a long way to go. Btw your videos are always calming my nervous system and I can not thank you enough for your work!
Beautiful work I think one of the main things that keep the illnes going is reading negative peoples comments about it, We are all human and if person A can heal then why can’t person B. Whenever you see negative comments about recovery legit delete them,
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
@@ezza1236Why delete negative comments? Surely people who don't believe in this system or it has had zero effect on their illness are entitled to say so. You can't gauge the statistics of people's recovery if you only focus on the positive comments.
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
The government shouldn’t be banning all medications that can help us. Believe me, they are! Reminds me of AIDS pandemic in the insane AZT 90’s trials. What were the buyers clubs bringing back to this country? Are they banning those same natural medicines? Watch Dallas buyers club. You tell me.
The WHO sadly is implicated in the cover up. They are also political puppets. Only God knows what goes one on those labs funded by the US and what they are hiding.
Unfortunately case studies have long been dismissed as anedotal, and are not given much credit by science. They rarely make it into medical journals :(
I’ve tried the brain training thing for two years, I’m not scared of anything but every time I exercise I’m bed ridden for days or weeks after trying it, I’ve attempted to push through it and makes it even worse. I think this goes quite a bit beyond being scared of exercise. I have viral feelings, sore throat and body aches everytime I try lifting weights. This is wu wu silly advice for most people with the CFS symptoms. I was a stellar athlete before this.
I think you are misunderstanding. If exercising makes you ill then don't do it, or just do what you can without symptoms. You then very very slowly build on that, teaching and strengthening your nervous system over time. I've never heard anyone recommend that you push through with CFS. The key to recovery is stopping the push and crash cycle, not increasing it. Many of our internal alarms are unconscious. We may not feel threatened by something, but our nervous system is registering the event as a threat unconsciously.
I tend to agree - this may work for some, but not if underlying areas are not dealt with, like adrenals, thyroid, liver, kidney, pineal gland ... mitochondria are hit by covid, hot baths can help, they help me - really hot, get in and run it up with Epsom salts, and take 1-2 litres in with you. Weigh yourself before and after, rehydrate. Hot/cold baths also really good for the immune system. Saunas, IR saunas, then supporting the body where it is crashing. As far as I am concerned this is not brain training, I am not afraid of exercise, as you say, it refuses to do what I used to do. Thyroid levels are wrong in different countries, and if you have the symptoms, TSH is not optimal, then thyroid may well be part of the problem. Sleep is huge, and is stress related.
Raelen, I think I have this from getting sick at the start of 2023, I'm 6-7 months in and it still remains. Sometimes I don't know if I can have a normal life again. Thank you for making these videos. I don't feel quite so alone knowing you and other people have been through this.
OMG Raelan, this is a GAME CHANGER. My LC started in January and it def has progressed to where it's obvious today it's turned into ME/CFS. I fought that for a bit there and kept pushing myself, stressing myself, only to relapse obviously, or get worse. For me it happened due to a big life change I made willingly, which taught me now in hindsight, that changes when possible need to be gradual, not sudden. It costed me my health, but the advice you are giving us here, is amazing. It says the hard truth, which is, it's us. It depends on us, and that's why no doctor or supplement is healing us. It's up to us. Lots of love, thank you for your work!
Thank you Raelan for summing up the things the recovered community has been trying to say for so long repeatedly. My biggest key to a full recovery was understanding that this issue was my autonomic nervous system and not some undiagnosed disease that was going to kill me. Especially after being cleared by my doctors. This was a brain-body illness for me and realizing that was huge. I don’t like the phrase mind-body because people think I’m saying the illness is “all in your head”. The issue needs resolving with brain rewiring. It just so happens that your brain is located in your head 😅 Doesn’t mean your symptoms aren’t real or made up. Very real symptoms. Very real condition. Very real approach to recovery as well. Recovery is also very real too. All these recovery stories aren’t made up. Keep doing what you do Raelan. The community loves ya and so do all of us over at Recovery Jumpstart!
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
I just discovered this channel. This video was like a light bulb going on in my head - I have become afraid of literally everything and I didn’t even realize it. “I don’t want to…” because I won’t have the energy, it’ll hurt, I’ll be too tired after, it’ll make me worse, etc etc etc. Everything.
You articulate the keys to recovery succinctly and brilliantly, Raelan! The way you've synthesized the common threads from close to 100 interviews is a massive contribution to this field and community. Thank you for all you do! I'm thrilled that the pivotal role of the brain and nervous system is being understood by a wider audience! It took me 13 painful years to discover this approach in 2018 and once I did, it skyrocketed my recovery. I am passionate to share this knowledge so people can avoid more suffering than necessary! Neuroscience is proving how stress impacts our brain and nervous system, and how to unwind those patterns by finding a felt sense of safety in our body. The symptoms are 100% real and it's not our fault. It's biology. But thankfully with new understandings and practices, we can recover! It can take dedication but it's empowering and life-giving work. Wishing everyone wellbeing and love on their journey! ❤
Yep. I went from completely bedridden to almost there in less than a year. If you can believe, accept and TREAT this as a (very) severe anxiety disorder, you will recover. It's undeniable. It's very physical and it's very real, but it all stems from your brain. Take responsibility and take action. This is the conversation we should all be having, all the time. Thank you Raelan for highlighting!
I love that you said to treat like a very severe anxiety disorder. I'm hearing people say this more and more who have recovered...that it's teaching your brain that you are safe and really gradual exposure. xx
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
@@becoming_a_betty I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Great video Raelan! It took me 14-15 years of treating the symptoms I had in my body, before I learned that they were caused by me being stuck in a fight, flight, freeze state. I've been doing brain retraining and doing things to better manage my stress for the last few months. I'm seeing subtle but consistent improvements in my symptoms. This information is SO important to not just CFS but so many other conditions too!
Wow, Raelan my favorite video of yours (of all the great videos)! You summed up all this complicated information in such an articulate, intelligent way :). After over 40 years of chronic fatigue I'm again inspired and motivated❣
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Reading through the comment section i can at this point with confidence utter myself that the majority of the people seems like they had a mild case of long covid. MOST people get well on their own in 12-16 months. Paceing, meditation or not. The people in our medical group with long covid are extremely ill. They are strong minded people and fighters, but their problems are clinical like a damaged nerveus system making them unable to breath normaly or they lack the ability to perform normal gas exchange. Long covid needs to be categorized. Viral fatigue is well known and the majority gets well in 12-16 months.
I think putting the blame on those suffering for not having their brain perfectly ok is ridiculous, especially since Covid infects the brain, and somehow the patient is supposed to correct this ??? No and it puts the blame on the patient.........
@@jayverasummer Yes, but damaged lungs/gas exchange, heart tissue damage, brain matter damage, microclotting, vagus nerve thickening/inflammation and the list goes oooooon. These are actual clinical findings. Long covid and ME/CFS are similar in symptoms and att the same time very different looking at parameters regarding organs after infection.
You’re an incredible gift to the world. This video alone can be a GREAT resource for people to share with their doctors. Of they can’t cure these conditions, but at least they will have an understanding of what their patients are going through- all because of your persistence and dedication to this channel, and a fantastic summary video. Sending you much gratitude and love!! 💕😊
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Hi Raelan. Thank you for everything you provide on your channel :) I developed a 'mystery' illness about a year after chemo/radiation for cervical cancer. My theory is my immune system was still weak and I caught a virus that flicked the autonomic nervous system switch. The red herring was a high ANA reading and the endless hunt to find an autoimmune condition when nothing specific was showing up. My symptoms are more in line with fibro/cfs. I appreciate your take on how the brain can block our bodies natural ability to heal. I certainly experienced a huge threat to my survival and I really don't think my body understands that it's in the past now. Thank you :)
Yes! Calming my nervous system is working for me, and I know that rewiring my brain has to be the next thing. Keep putting the message out there Raelan, such great charitable work.
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
100% agree with this Raelan. Its definitely important to address co infections/gut health if needed but that is not going to make you recover alone. The calming of the nervous system and the brain retraining (including pacing in here) are the biggest pieces for sure 💖
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Two full years in- I was where you say until I fainted, again, (outside) and damaged my spleen. Still not recovered from that and I have now had a TIA. This is much more than fear even though I know that’s a large factor when attempting to regain regular life. I’ve also learned to note the medical field does the body first and when they can’t figure it out, they tell you it’s your brain. It’s a thing. I am very glad for your recovery and for others. I feel Covid needed to be addressed like a poison more than a virus. It was different. I would like to discuss more about the cycles that happen with LH. Most people feel so cruddy, they aren’t noticing there is a cycle for things like brain fog, erratic BP, tiredness and nausea, mouth sores etc. All of the work towards health is very interesting and how we use the brain is absolutely a part of what needs healing. Thank you for this information and for all the helpful comments added.
@@breezylyn2168 and they stare at you with that look like you’re not all there describing it. It’s NEW - not being described incorrectly by the patient.
I have just found this channel and after being ill for 10 difficult months with LC. I was beginning to wonder if I was ever going to improve and I have to say that listening to a few of these videos (the short ones I can manage!) I feel a glimmer of hope being rekindled. Thank you Raelan. I have just bought your book!
An excellent summation and simplification of what it is to go through MECFS. It all boils down to the fact that our Autonomic Nervous System has gone out of whack. When that happens it produces the variety of symptoms that occur....and they're all different for everyone!!! That's why the typical American doctor, who is not trained to recognize MECFS, has no clue of what's going on!!! Since I have been going through my own process of healing, even my Raynaud's Syndrome has gone away!! Thanks again for your channel and all your insight. I especially liked your interview with Dr. Myhill. In the meantime, I have read some books about the brain. My favorite one was entitled Neuroscience and the Fruit of the Spirit by Bryan Spoon. Also, books by Dr Norman Doidge. With love and blessings for helping me, and many through MECFS, Miss Monique 🙂🌷🙏🎶🎉💕☺️
@@kathy.7475 wonderful my mother has it and ms I have it in little fingers I've had me decades now that's better it's fybromyalgia now though still have fatigue has it cured your pain
So true. Took me 2 years to finally get proper testing done with a neurologist and get my long Covid diagnosed as dysautonomia. The nervous system is so important! I think this may be related to CFS as well. Especially because people tend to develop dysautonomia after an infection like the flu or, now, covid. I recommend to everyone to see a neurologist and rule this out, because there is more and more evidence that long covid / long flu are a form of dysautonomiA with a few other issues as well
Raelynn I’ve learned so much from you and your interviews especially how to minute by minute battle to keep yourself relaxed at first. Thank you for everything
Awesome Raelan! For me, the only thing I stumbled across was your channel (i was searching for answers) and from then on I was following a trail of advice of people who knew how to recover. Thankyou SO much for being a big part of my journey! It's exciting to be present for your steps of drawing patterns and conclusions from all your many interviews. I think it lines up pretty well with my recovery approach too. The only thing I'd add is that comorbidities might not only be infections, e.g. autoimmune conditions, genetic disorders, neurodiverse conditions, I believe are contributing factors for me. Some of these things could fit in the categories you listed - I appreciate that it's a broad brush summary. 🙌 Thanks again. Will be sharing.
After watching so many of your videos and then doing ANS REWIRE I got to 100 percent recovery after five years of CFS. I got covid in Feb and am starting again. But now I have all these amazing tools, including meditation and brain retraining. What I would emphasize is that in the acute stages of flare up, rest is key, and pacing, NOT doing anything to expand the energy envelope. Graded exercise therapy/expanding the envelope comes a bit after an acute flare up. If the body needs rest, it truly just does.
@@markleonard4452 I practice the REWIRE method, which is to recognize a thought about my symptoms or my illness, end the thought, wind down the arousal, initiate a new perspective, etc. In a flare up this can happen a hundred times a day as there is frequent thoughts of symptoms and/or "Illness confirmation thoughts"
@@Truerealism747 are you sure? I was told and research shows that we all lose gray matter over time due to aging. I have listened to many doctors say that with Covid the gray matter doesn’t seem to be coming back.
@@reuniteamerica I have personally experienced and seen too many cases of people recovering or improving all sorts of health issues in ways that their doctor told them would be 'impossible', to take those kinds of statements from doctors too seriously. They are trained in their field but there is a whole world out there of different approaches to health that can often have very positive impact that they often somehow have no clue about. So basically I wouldn't get discouraged too easily if they told you that!
People who recovered before there were recovery stories is truly amazing! Thank you so much for all the work you are doing and putting the stories out there for us to learn from!
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Im got severe long covid with microclotting . Horrible nausea ... anyone have any suggestions? Ive become infunctionable.. i need help really bad. My veins are blowing out. I have two in my legs that are like extension cords. And all the ones in my feet are breaking . Something is very wrong They just found inter cranial brain swelling as well .with eye problems ... somebody ... i need help . They ve been trying for a year and im just getting sicker .
I'm so sorry you are this sick, howbare you now? I had ME/CFS in the 2010's. Fasting helped me at a time, as I discovered the 5:2 lifestyle. A while later I learned about the nobelprize winner who showed autophagy lowers inflammation in the brain. Then I supposed thats what happened to me. Ten years later I now have long covid and fasting doesn't seem to help the same way. I'm puzzled.
Breezy, go and see a Chinese Medicine lady. I just had my neck lymph glands drained, really painful, but it was obvious something was wrong with it. I have felt AMAZING since, like my old self. The effect has been so overwhelming and now I'm just waiting to see if I crash again... I also had lots of neuro problems, eye pain, migraines etc... I can't promise it will work for you... but it's worth having a consultation... because no Western doctors can be bothered to even sit there and talk about it...
A single session of EMDR has sorted my 14 monthd of long covid. This ties in with your nervous system/brain training theories. The session dealt with (false) core beliefs from childhood.
EMDR helped me alot as well, but nothing was ever mentioned about far past beliefs. I would love to hear about that. Everything we processed was within the year of my "crash"
@@FreshAgenda I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Maybe the reason why all the tests come back negative is because they haven’t developed a test for ME/ CFS? You could test for a hundred different allergens only to find out you are allergic to one they didn’t test for. Just a thought. Going on my fourth year of being bedridden with this disease and no matter what I do makes it better; so discouraging. Blessed Be
@@pedroribeiro7334 I was confined to my bed about 97% of the time because of my lack of energy, etc.. If I had enough energy to take a shower I would probably be stuck in bed for the next two to three weeks. The only time I would be able to get out of bed was to go to the bathroom. I finally found out that I had breast implant illness and after my surgery to have them removed I got my life back. Doctors were of NO help to me and if it wasn’t for my constant research and unwillingness to just give up I would still be bedridden. I was lucky compared to so many other people who have CFS and suffer so greatly every day.
I was tested for auto immune diseases and after these were negative I was told, "you have chronic fatigue syndrom. This is new to me and really overwhelming. Stress has always been with me. As a teacher stress is part of the job. This will be my last year teaching. There are lots of reasons but often as teacher we do it to ourselves. I was the teacher who took work home every weekend and stayed late. Finally, in my 50' I stopped doing this. I don't stress about work anymore, I enjoy my last year with my students. I do have a functional doctor and get acupunture, take supplements; acupunture helps me a lot but can be expensive. Over winter break I am going to focus on my diet and beginning meditation. For me, though it's not the fear of going for a walk, it's literally the pain I will be in the next day. I love to be outside and have been depressed but it's counter intuitive to do something that you know will cause you pain. It's not fear that keeps me from doing things it's pain and the need to get myself to work. Hopefully this will change and I will get back to doing the things I love outside Thank you for sharing this video.
I so wished I know what I now know five years ago. I agree with you repairing the nervous system is central to recovery. And it is not that black and white. I see CFS/ME as a form of burn out. And for me there are/were underlying issues of lack of self care and stress management. the body calls us out for us to 're align' with ourselves. What's happening in the world is a mirror of how we treat ourselves. I also start to become more aware of my thoughts, how I can harness them positively without ignoring and dismissing my feelings, as brain training can also be a risk. As other people have said I too like all your interviews. They give me hope to get better myself, my experiences are becoming more a shared experience and they give me ideas. Thank you! and you look so healthy, that too is good to see.
there is not a lot to be done, we suffer from tissue scarring, extensive tissue scarring caused by inflammatory cytokines, which we know never fully recovers, and any activity involving areas where tissues have been scarred are weakened for life and could potentially sustain further injury further progressing the tissue damage and symptoms we present with, we must limit ourselves each and every day or face relapses, we feel better for a small amount of time and we start performing any sort of activity and either later that same day or the next its all over again.
The best Video i never Heard ! You say what i feel deep inside. Now i'm Stoll very stock, but i Stoll have hope for myself. Never Heard at something like this
I agree with everything except leaving out emotional repression and limiting beliefs. Rebecca Tolin, who is mentioned, healed in the Dr. Sarno method and one key thing about his method is acknowledging and feeling emotions in the body that we have suppressed and repressed. Along with working on emotional repression is seeing where we are operating from "not good enough" etc. Why are people overachievers or people pleasers to the point they sacrifice their wellbeing? It is because during childhood that was their coping mechanism to get out of the feeling of not good enough. The best way to be is to know we are good enough and do things out of choice and not out of fear of not being good enough.
Another point: Post Exertional Malaise is *now* the main diagnostic criteria for ME, so if someone has fatigue but not PEM, then they don't have ME! That's another reason for recovery: they didn't have it in the first place (ie they had a *temporary* bout of fatigue, not a permanent one & often *rest* allows folks to cover from this type of fatigue, most often caused by *overdoing things or a busy/ stressful lifestyle* akin more to *adrenal fatigue/ exhaustion* rather than ME/ CFS/ long covid. Temporary can often be 3 to 4 years rather than the arbitrary 6 months the doctors state is temporary). There are a lot of possibilities that many folks (especially doctors & patients) don't consider or aren't *aware* of🙏
Additionally, both Chronic Lymes & Long Covid have POTS in common. My cardiologist said Every one of his patients diagnosed with POTS have also been diagnosed with Chronic Lymes.
I'm not sure what you mean by the other way around But... they are finding many long covid also have chronic lymes. I hope that helps. If not I will try again
Thank you for your amazing videos, Raelan. I also recovered a few years ago, but have just come down with Covid. I'm feeling confident that I will fully recover! Knowledge is Power! ❤
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
I remember just 6 months ago, I was pacing and it was working but similarly it wasn’t. I was convinced there were missing pieces to my journey of recovery and it took me hours of research to find your channel. I am so grateful that I did… because each video has given me more insight on recovery- from learning about brain retraining, compassion, self beliefs, reinventing yourself, healing and letting go of people pleasing etc…. I thank you so much for pushing yourself to create this channel and helping me and so many others - during my time of research I also came across some horrible long-covid practitioners who went as far as instilling more fear… (e.g you will never be able to have children as ur body hasn’t enough energy) etc etc … and getting people hooked on their expensive programmes! I am so so thankful that something in me felt it was a red flag and that I kept moving forward until I found you… ❤
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
As a new viewer, and now subscriber, who has he going through the cycle of having episodes where I have the same symptoms that leaves me tired and in bed for days on end, just want will enough to function for a few hours before being rest again, having had every test and scan under the sun that came back negative and just being told by my doctor that in the end I will just have to live with it I'm a little confused by this video. I completely agree with everything you say, and your right in what you say, it will help people who are afraid to go back to how they are living before, missing with people, doing exercise, eating more healthily, but I think you are confusing many different experiences into one and saying that everyone can be "fixed" when I don't believe this to be the case, some people like me who have to live with it. I'm not negative, I try to eat healthy most of the time, I go out with friends when I'm feeling up to it, I love to run, so when I can I get out into the wild and go for 15km runs, but I have to accept that what I have will never go away, and I'm not sad about this it's just how things are. Some people aren't like this and it may just be a lingering infection that these changes will see them back to normal and it's great that you are giving this advice based on your experiences, personal and with those you've spoken to, I'm sure it will help many, and resonate with those that have been through this and recovered, but I think Long COVID and ME, for example, are completely different, and whilst the first is fairly new and be completely different (whilst having similarities in terms of symptoms). Everyone is different and in the end I think the first think I say anyone suffering would be it's positive, because from my own experience if you aren't things can spiral and get worse and worse which brings in mental health issues along with the underlying medical ones. But in the end at some point you have to do the best you can, strive to be better, try new things and see if they improve things, and maybe in the end there will be a breakthrough, but I don't think there's a one size fits all solution, some people will just have to learn to live the condition they have, rest up, eat well and rinse and repeat if and when it again. I'll have to watch more of your videos as I can't judge on one interview, but thanks again for the advice, and even if something doesn't work for you it's great to know what certain things have worked for others, and to try things if there's something I haven't tried yet, it may help a lot.
It was my seeing a naturopath that has made the difference for me. She recognized immediately that it was an out of balance nervous system. My primary care doctor just said I had generalized anxiety disorder and needed to be on medication.
I had covid in Feb 2022. March I got so sick w the worst cold ever! Fatigue set in and I didn’t start feeling 85-90% better until august. Well, middle of august I got COVID again for a 2nd time! Then October I got sick for a month with a virus. Then November I got a bad cold. January/Feb of this year I apparently got COVID again for a 3rd time because the dr told me I had a spike in my antibodies. I’m losing my mind!!!! The fatigue is debilitating!!! Some days I’ll feel 80% ok but then I’ll overdo it and crash. My body is shot from everything I got within 12 months.
The reason that lab results of long covid patients come back normal is because most patients can only do bloodwork which shows only a part of your health, if you really want to know whats going on inside the cells more specialized tests are required. The big labs are already seeing that there are a lot of weird biomarkers in long covid patients but cannot find the cause yet unfortunately, there ate a lot of hints that mitochondrial dysregulstion (which controls the nervous system) plays a big part.
Thank you so much for your video ! I like when u do a synthesis ! Very powerful ! i am planning to do a brain training program and your video helps a lot ! 🙏
Thank you Raelan, this summary was very useful for my wife. Thank you for this, a very timely reminder the key issues. We have both listened to this together, we are a year in this month with my wife’s illness. The three main points hit the target. The power of the mind and predictive reasoning or thinking ahead of events and training the mind to consider and invoke the positive outcomes (over a negative anticipated outcome), seems to be very important in the journey in my Teresa’s case. I’m convinced that the brain and heart have the capacity to influence our physical and emotional processes. We are using mindfulness, diet and using gut health, no sugar/alcohol, the latest is the Perrins technique starting next week. Onwards and upwards.
100% agree with this from my own recovery experience! I'm at 90%, last piece is returning to vigorous exercise & full time work. I know I can get there by continuing to address these aspects. :)
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Yes I recommend the adrenal fatigue approach, healthy diet, eat when you rise don’t wait too long, healthy snacks periodically every hour or two and there a healthy snack an hour before bed. Dr Wilson has a book.
brilliantly said, number one, check, number 2 check . both of these are really helping, i just need to focus before i do anything to calm myself and re-train. I often only think after but i’ll get there
I think though peoples severity of disease is very different so their length of recovery will be different. I know that’s true of long covid, dysautonomia and pots symptoms can be among the most debilitating but some never had those issues. I do believe in mindset and being stuck in flight fight because I’ve experienced that as well, but I think recovery length will vary.
there are people who were completely asymptomatic and are now long haulers for 3 years, severity while does play a role, it is far from the only factor involved.
Yeeessss!!! on point! So, I think why it isn't "discovered" by medicine is that they are looking in the wrong place - this is kind of a neurological/psycosomatic illness. Thank you so much for everything you do! You bring light to us!
Thanks! One year after I got covid initially I am still dealing with symptoms and I do recognize much of what I have so far found to be effective in what you share here. Although the intensity of some of my symptoms (like dizziness, palpitations) has significantly decreased, I am generally feeling so much weaker, more tired and also more anxious about everything than I was a year ago. Dealing with this on top of another chronic health condition has really worn me out. I do try to work on the fears, and if I look at things objectively I can see that most of the time when I do go out I feel pretty ok, yet there are still experiences when I go for a cup of tea with a friend or something and I do start feeling unwell, dizzy, shortness of breath... and this then brings back the fear and sort of proves me that it is not just an irrational fear. Finding this very difficult to handle at the moment. I am curious also if anybody recognizes that entering into a building/cafe/other specific space somehow triggers the symptoms? As if there is something in the change of air that my body has difficulty adjusting to. There are specific locations that tend to trigger this especially strongly for me and I can't relate that to anxiety or anything like that. I'm glad there are success stories out there and thank you for sharing, I was starting to feel quite desperate at this point so this helps to find back my courage!
Hi Esther! Did you catch the interview with Dr. Sally Riggs? She shared some insights that might be helpful in dealing with the shutdown response. Wishing you all the best! 💫❤️
Hi Raelan thanks so much for this, I love love your videos. Have you conisdered interviewing Simon Pimenta from the site ME/CFS Explored? He recovered and now teaches brain retraining but also shares a lot of information through videos and seminars for free.
This video makes it seem like there is a quick mindset fix. It's hard for me to give somebody the benefit of the doubt, who claims people can see improvement within days and "just have to do the things I'm talking about." The nature of these conditions is that they are highly individual. Researchers have been looking into long covid for years, without finding even the slightest evidence for an effective treatment. For me, the first time it just randomly disappeared. I didn't do anything special in the weeks before. Same story with two friends. Sadly, I got reinfected and I'm back to square one.
Hi Raelan, an where you've been - plenty of tests done, and no physical issues. Nervous system reacts exactly as you describe, I'm almost bedbound, can barely leave the house. When you say brain training, what is really the essence? Everyone talks about it, but doing 2-3x a day some visualisation and affirmative suggestions 'everything is ok, it's just my nervous system', these things don't do the trick entirely, even though a positive pull factor can be observed. Really would appreciate bulletpoints of the brain exercises you were doing! Love from Berlin
I developed varicose veins and venous insufficiency after COVID even though I have none of the risk factors. Covid has been found to damage the endothelial cells that line the vein walls, causing actual damage. I would see this as “being broken”. Do these same concepts you’re speaking about apply to those of us with actual damage to our bodies or does this only apply to people who had much milder cases of what they think is long Covid? My tests aren’t “coming back fine with a clean bill of health.” I have ultrasound proof of vein wall/valve damage. I have endoscopic ultrasound proof of chronic gastritis, gallbladder sludge, and pancreatic hyperechogenicity in my pancreatic duct. I have AMA in my blood work which points to a liver autoimmune disease. I went from being completely healthy to having actual evidence showing up on tests that show my body is being physical damaged and changed after Covid with no other explanation. Does any of this advice apply to me? Can I heal? Or am I actually broken?😢
I love you! If there's anything I can do to help your channel I would do it. i actually have quite an intersting story regardinfg long covid and the circumstances under which i caught it
I love this channel so much ! It is very helpful! There is actually proof that people with CFS, POTS and long covid are experiencing neuroinflammation deep inside the brain..so future therapies and treatment will address the neuroinflammation aspect ..Vagal stimulation is also something that is being researched. I personally found LDN in low intermittent doses to be SUPER helpful for CFS and dysautonomia. Also florinef as I have low aldosterone and low blood volume.
Its not coming out more and more about some me/cfs also having cervical instability and spinal issues which can complicate things. I addressed all of the other things including lyme co-infections but took over 30 years to realise these other issues were a big player
Re testing: my microbiome testing certainly was not healthy/normal. Many if not most CFS/ME are lacking healthy lactobaccilus, bifidobacterium, and non-pathogenic e coli. I'm not saying this is the cause and fixing it is the cure. And it is not easy to fix, either. But to me there is obvious connection, a big contributing factor. I am interested in the brain training discussed in other videos, though. This is the second video on this channel I've watched. (First saw Raelan on Dr. Been)
3 Components
- Work with the Nervous System (Autonomic Nervous System)
- Meditation
- Therapy
- Dealing with past trauma
- changing life cirumstances
- Brain Training
- Treating the condition like a phobia
- You are scared of everything (foods, people, cirumstances) You become an expert in being sick.
- Teaching the brain that the world is safe.
- Gradual exposure therapy is pacing.
- Looking at underlying infections
- Adressing the gut, nutrition, heavy metals and molds in the body.Healing the gut is crucial
I legit saved this and and recovery now seems so close for me!
Yes, Calming down the nervous system was key for me to getting better. In my first year I was stuck in Fight or Flight. I was only getting 4 hours of not even propper sleep a day. I learned about the nervous system and did all the things to calm it down, meditation, natural remedies, meds, breathwork, HRV feedback. I was trying to take control over my nervous system, but it just would not calm down. Right when I hit the one year mark, I got reinfected and crashed to very severe ME. This was where I gave up. And THIS was a turning point for me. I gave up trying to control things. I let go. I let my body do its thing. And this was when my nervous system switched to recovery. All of the sudden I went from 4 hours of sleep to 20 hours of sleep per day. Good, restful sleep. And I started getting better. From Bell 5 to Bell 20 within 6 months, which felt insanly rapid.
What were your symptoms?
Your story is gold. Thank you very much, wish you all the best.
Raelan, what would have we done without you... You are so generous. Because of you, so many people are healing. Thank you so much for everything. 💕
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Enjoy recovery - it can and does come back.
I. Lo g covid recovery
I'd love be guess on show
Agreed, except for cause of symptoms. Perhaps consider the presentations of
Ed Dowd. His data makes conclusions irrefutable.
currently dating someone with ME/CFS and i love and support them so much. One time while at school, (6th form) They crashed and were sat in the corner with headphones on. I say with them, told them how much i loved them, held their hand and cuddled with them. They managed to push through the day and crashed again at home, but, when i was cuddling with them and was Non- verbal. They leaned towards me and whimpered “Thank you” and when i got home, i burst into tears. Thank you for this ❤❤❤
I don't agree with the pacing exercise approach to Long Covid. I've had LC for almost a year now and my GP here in the UK told me to exercise no matter what and every time I do, I crash. Even if my session is light or it's a walk in the forrest, and before this I was an extremely fit rock climber. I eventually switched Drs in the practice and she told me not to exercise at all and that is also the advice from the leading LC researchers/Drs here in the UK. I know some people are claiming to have success with pacing, but I'm more convinced this is a media driven story that's pushing people further into trouble. My real progress kicked in once I really looked at my gut health and I've made huge leaps forward.
Still majorly struggling with my gut 3.5 years in. What has helped you the most regarding the gut? 🙏
Are you talking about probiotics? Cause theres a research showing correlation of poor gut health and long covid. I did a stool test and found out my level of healthy microbes is much lower than the norm so I was prescribed concentrated dose of probiotics and also follow a more gut healthy diet. It definitely helped me to improve thou the recovery progress is slow. For exercise, I only slowly resumed cautiously light level of exercise (to the point just before severe pem kicks in) which I think helps but it is really hard to get it right so I understand why some ppl say you shouldn't exercise. Actually it should be called conditioning other than exercise since you shouldn't be stressing your body. I was also very active in rock climbing before long covid hits in May this year. Wish you a speedy recovery.
@@northernflicker1111you can look into probiotics for long covid haulers. There are some research out there.
If you have post exercise malaise (PEM), & Everytime you exert yourself, you get really fatigued and kind of flu like afterward (there is typically a lag time btwn when you exerted yourself, and when you feel those symptoms. It can be anywhere between a couple days to a week or more.
You have used up all your energy. It means stop or you'll cause further worsening or prolongation of symptoms, & possible damage
@@northernflicker1111 I've been taking Symprove here in the UK.. it's live bacteria developed by a Dr in the NHS. I'm coming to the end of my 3mth cycle.. I can't say for sure it's helped, but I am so much better and I have gone through some strange moments with my gut.. I recently found out our Gall Bladder holds the second most amount of the ACE2 receptor that covid binds to... and that last week they discovered a bacterial issue in the gut is causing low Seratonin in LC patients.. which means that Cortisol, Testerone and now Seratonin are all low,...and Seratonin is producded in the gut.. I feel like it's starting to make sense now...
I cant thank you enough Raelan. Your videos gave me hope on my recovery journey and I wouldn't have healed without your channel. Your channel is a lighthouse in this dark sea of dysautonmia.
Raelen your channel was a huge part of helping me recover. Digging into childhood traumas, emotional suppression, pacing etc were what led me to recover. Thank you from the bottom of my heart 💙
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Could you talk about emotional suppression a little bit. She had a guest on recently, who recovered from over 10 yrs of chronic back pain. He has a method he teaches, starting w/ validating and feeling your emotions.
@@saintejeannedarc9460 Irene Lyon has a great channel, among others, that talk about physiological symptoms like those seen in CFS and other conditions as communicaton by your unconscious alerting you to toxic unprocessed emotions that are stored in you. They are a result of the unhealthy cultural behaviours (like emotional suppression). Because we were taught from a young age to bury our feelings, they don't just disappear, they sit in our physiology and actually affect our behavioural patterns and overall health.
There are a variety of tools to help access and process these trapped emotions, like journaling, all with a massive emphasis on self compassion - validating and acknowledging what has affected us over the years - no matter how small the event was. Gabor Mate, who I urge you to check out if you haven't already, says that trauma isn't what happens to us, but what happens inside of us as a result. As a way of coping, we buried our experiences and our minds became disconnected from our bodies and its sensations, and ultimately disconnected from who we are. Reconnect your mind, your consciousness back into the body and the unconscious, and begin processing all the pain - that is the path to freedom.
Blah blah blah 10 minutes to say absolutely nothing concrete.
Yes! This is what it took me months of research-- and numerous medical tests--to understand on my own. Now ready to address it. I subscribed and look forward to learning more.
This is exactly how I healed. This is the golden ticket 🎫 Thank you, Raelen!
Always nice to hear when someone gets better, well done x
This Video is literally LIFE SAVING. Thank you so much for summarizing the most important healing techniques!
So glad it helped! Thanks for watching. 😊 ❤️
Going to a therapist? Having a career? Trauma therapy? Having relationships? I’m glad to hear there are people with long Covid that can do these things. Many of us can hardly get out of bed.
I can't 😢
@@breezylyn2168 maybe it’s time to start a dating app for long covid sufferers.
“I like being in bed a lot, eating the same three bland foods repeatedly, knowing the staff at the ER by first name, and imagining what it would be like to take long romantic walks on the beach.”
Exactly! Most advice seems to be toward young former athletes. I can’t identify. I’m older and was , again I say was, moderately active. COVID has destroyed my life for 16 months.
What a shame that there is a focus on what can't be done. People are at very different levels of ability, and there is something here for everyone. It's totally possible to do nervous system work from your bed. You may just have to shorten and adjust your sessions according to your capability level@@lindavid794
Yeah exactly. As soon as she mentioned those things, I realised she didn't know what she was talking about!! Mild Long Covid is NOT the same as severe ME/CFS - but it sure can develop into it if you don't rest when you need to!
Hi, I recently recovered from a long covid since I was positive with covid 19 in October 2022. I'm in my 30s, was moderately active (running and hiking) before covid, but afterwards I struggled with long covid. I had fatigue, couldn't walk before I had to sit down and rest, I was diagnosed with chronic obstructive pulmonary disease and was prescribed Symbicort. I couldn't work out for more than 15 minutes. I started eliminating food that causes inflammation such as red meat, deep fries and white sugar from my diet, and incorporating more strength training instead of primarily cardio, especially core training. I took multivitamins, ramped up my water intake and made sure I had enough vitamin D. Now's the third month I've been feeling my normal self again.
Do you feel the vitamin d helped? About a week ago I started taking 10,000 iu with mag and k2
Very similar story here... With the exception I still haven't recovered 😭
After about 3 years into it and slowly but steadily making progress: Raelan you are so right with everything! Atm I am 3 months practicing DNRS and now I understand what was wrong. I am really happy with the results but it is still a long way to go. Btw your videos are always calming my nervous system and I can not thank you enough for your work!
What is dnrs?
@@DarkoFitCoach Dynamic Neural Retraining System. It is a brain retraining program.
Beautiful work
I think one of the main things that keep the illnes going is reading negative peoples comments about it,
We are all human and if person A can heal then why can’t person B. Whenever you see negative comments about recovery legit delete them,
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
@@ezza1236Why delete negative comments? Surely people who don't believe in this system or it has had zero effect on their illness are entitled to say so. You can't gauge the statistics of people's recovery if you only focus on the positive comments.
Your channel should be taken under consideration by the WHO and the scientific community. So thankful to you and your wonderful guests ❤
Every doctor who handles cfs patients should prescribe watching Raelans channel.
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
The government shouldn’t be banning all medications that can help us. Believe me, they are! Reminds me of AIDS pandemic in the insane AZT 90’s trials. What were the buyers clubs bringing back to this country? Are they banning those same natural medicines? Watch Dallas buyers club. You tell me.
The WHO sadly is implicated in the cover up. They are also political puppets. Only God knows what goes one on those labs funded by the US and what they are hiding.
Unfortunately case studies have long been dismissed as anedotal, and are not given much credit by science. They rarely make it into medical journals :(
I’ve tried the brain training thing for two years, I’m not scared of anything but every time I exercise I’m bed ridden for days or weeks after trying it, I’ve attempted to push through it and makes it even worse. I think this goes quite a bit beyond being scared of exercise. I have viral feelings, sore throat and body aches everytime I try lifting weights. This is wu wu silly advice for most people with the CFS symptoms. I was a stellar athlete before this.
I think you are misunderstanding. If exercising makes you ill then don't do it, or just do what you can without symptoms. You then very very slowly build on that, teaching and strengthening your nervous system over time. I've never heard anyone recommend that you push through with CFS. The key to recovery is stopping the push and crash cycle, not increasing it.
Many of our internal alarms are unconscious. We may not feel threatened by something, but our nervous system is registering the event as a threat unconsciously.
Go and find yourself a good Chinese Medicine lady!
I tend to agree - this may work for some, but not if underlying areas are not dealt with, like adrenals, thyroid, liver, kidney, pineal gland ... mitochondria are hit by covid, hot baths can help, they help me - really hot, get in and run it up with Epsom salts, and take 1-2 litres in with you. Weigh yourself before and after, rehydrate. Hot/cold baths also really good for the immune system. Saunas, IR saunas, then supporting the body where it is crashing. As far as I am concerned this is not brain training, I am not afraid of exercise, as you say, it refuses to do what I used to do. Thyroid levels are wrong in different countries, and if you have the symptoms, TSH is not optimal, then thyroid may well be part of the problem.
Sleep is huge, and is stress related.
Raelen, I think I have this from getting sick at the start of 2023, I'm 6-7 months in and it still remains. Sometimes I don't know if I can have a normal life again. Thank you for making these videos. I don't feel quite so alone knowing you and other people have been through this.
OMG Raelan, this is a GAME CHANGER. My LC started in January and it def has progressed to where it's obvious today it's turned into ME/CFS. I fought that for a bit there and kept pushing myself, stressing myself, only to relapse obviously, or get worse. For me it happened due to a big life change I made willingly, which taught me now in hindsight, that changes when possible need to be gradual, not sudden.
It costed me my health, but the advice you are giving us here, is amazing. It says the hard truth, which is, it's us. It depends on us, and that's why no doctor or supplement is healing us. It's up to us. Lots of love, thank you for your work!
Thank you Raelan for summing up the things the recovered community has been trying to say for so long repeatedly.
My biggest key to a full recovery was understanding that this issue was my autonomic nervous system and not some undiagnosed disease that was going to kill me. Especially after being cleared by my doctors.
This was a brain-body illness for me and realizing that was huge. I don’t like the phrase mind-body because people think I’m saying the illness is “all in your head”. The issue needs resolving with brain rewiring. It just so happens that your brain is located in your head 😅
Doesn’t mean your symptoms aren’t real or made up. Very real symptoms. Very real condition. Very real approach to recovery as well. Recovery is also very real too. All these recovery stories aren’t made up.
Keep doing what you do Raelan. The community loves ya and so do all of us over at Recovery Jumpstart!
So many struggling souls need to hear this.
Junior, what were really the brain training exercises you were doing on a daily basis? I do visualisation and affirmations-what else?
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
I just discovered this channel. This video was like a light bulb going on in my head - I have become afraid of literally everything and I didn’t even realize it. “I don’t want to…” because I won’t have the energy, it’ll hurt, I’ll be too tired after, it’ll make me worse, etc etc etc. Everything.
This does make totally sense I’ve been struggling for 15 month can’t work I need to re program my brain thank you for this video 🙏🏻
You articulate the keys to recovery succinctly and brilliantly, Raelan! The way you've synthesized the common threads from close to 100 interviews is a massive contribution to this field and community. Thank you for all you do!
I'm thrilled that the pivotal role of the brain and nervous system is being understood by a wider audience! It took me 13 painful years to discover this approach in 2018 and once I did, it skyrocketed my recovery. I am passionate to share this knowledge so people can avoid more suffering than necessary!
Neuroscience is proving how stress impacts our brain and nervous system, and how to unwind those patterns by finding a felt sense of safety in our body. The symptoms are 100% real and it's not our fault. It's biology. But thankfully with new understandings and practices, we can recover! It can take dedication but it's empowering and life-giving work.
Wishing everyone wellbeing and love on their journey! ❤
Yep. I went from completely bedridden to almost there in less than a year. If you can believe, accept and TREAT this as a (very) severe anxiety disorder, you will recover. It's undeniable. It's very physical and it's very real, but it all stems from your brain. Take responsibility and take action.
This is the conversation we should all be having, all the time. Thank you Raelan for highlighting!
I love that you said to treat like a very severe anxiety disorder. I'm hearing people say this more and more who have recovered...that it's teaching your brain that you are safe and really gradual exposure. xx
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
@@becoming_a_betty I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Did you have chronic.muscle.pains.
Did you have chronic.muscle.pains.
Great video Raelan! It took me 14-15 years of treating the symptoms I had in my body, before I learned that they were caused by me being stuck in a fight, flight, freeze state.
I've been doing brain retraining and doing things to better manage my stress for the last few months. I'm seeing subtle but consistent improvements in my symptoms. This information is SO important to not just CFS but so many other conditions too!
Hi Jim, what sorts of exercises you were doing?
@@AlexSelf-Help I'm doing somatic tracking, meditation, and visualization.
@@jim8779 somatic tracking? Did you have chronic pain?
@@AlexSelf-Help Yes, I have chronic pain from Fibromyalgia and I have Chronic Fatigue Syndrome.
Wow, Raelan my favorite video of yours (of all the great videos)! You summed up all this complicated information in such an articulate, intelligent way :). After over 40 years of chronic fatigue I'm again inspired and motivated❣
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Reading through the comment section i can at this point with confidence utter myself that the majority of the people seems like they had a mild case of long covid. MOST people get well on their own in 12-16 months. Paceing, meditation or not. The people in our medical group with long covid are extremely ill. They are strong minded people and fighters, but their problems are clinical like a damaged nerveus system making them unable to breath normaly or they lack the ability to perform normal gas exchange. Long covid needs to be categorized. Viral fatigue is well known and the majority gets well in 12-16 months.
I think putting the blame on those suffering for not having their brain perfectly ok is ridiculous, especially since Covid infects the brain, and somehow the patient is supposed to correct this ??? No and it puts the blame on the patient.........
Look at her old interviews. She interviews people who were sick for decades with chronic fatigue syndrome and recovered.
@@jayverasummer Yes, but damaged lungs/gas exchange, heart tissue damage, brain matter damage, microclotting, vagus nerve thickening/inflammation and the list goes oooooon. These are actual clinical findings. Long covid and ME/CFS are similar in symptoms and att the same time very different looking at parameters regarding organs after infection.
You’re an incredible gift to the world. This video alone can be a GREAT resource for people to share with their doctors. Of they can’t cure these conditions, but at least they will have an understanding of what their patients are going through- all because of your persistence and dedication to this channel, and a fantastic summary video. Sending you much gratitude and love!! 💕😊
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Hi Raelan. Thank you for everything you provide on your channel :) I developed a 'mystery' illness about a year after chemo/radiation for cervical cancer. My theory is my immune system was still weak and I caught a virus that flicked the autonomic nervous system switch. The red herring was a high ANA reading and the endless hunt to find an autoimmune condition when nothing specific was showing up. My symptoms are more in line with fibro/cfs.
I appreciate your take on how the brain can block our bodies natural ability to heal. I certainly experienced a huge threat to my survival and I really don't think my body understands that it's in the past now. Thank you :)
Yes! Calming my nervous system is working for me, and I know that rewiring my brain has to be the next thing. Keep putting the message out there Raelan, such great charitable work.
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
2:43 Three components of recovery
3:04 NERVOUS SYSTEM
5:43 BRAIN TRAINING
9:12 UNDERLYING INFECTIONS, GUT ISSUES ETC
100% agree with this Raelan. Its definitely important to address co infections/gut health if needed but that is not going to make you recover alone. The calming of the nervous system and the brain retraining (including pacing in here) are the biggest pieces for sure 💖
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Two full years in- I was where you say until I fainted, again, (outside) and damaged my spleen. Still not recovered from that and I have now had a TIA. This is much more than fear even though I know that’s a large factor when attempting to regain regular life. I’ve also learned to note the medical field does the body first and when they can’t figure it out, they tell you it’s your brain. It’s a thing.
I am very glad for your recovery and for others. I feel Covid needed to be addressed like a poison more than a virus. It was different. I would like to discuss more about the cycles that happen with LH. Most people feel so cruddy, they aren’t noticing there is a cycle for things like brain fog, erratic BP, tiredness and nausea, mouth sores etc. All of the work towards health is very interesting and how we use the brain is absolutely a part of what needs healing. Thank you for this information and for all the helpful comments added.
Your right . Mines in cycles
@@breezylyn2168 and they stare at you with that look like you’re not all there describing it. It’s NEW - not being described incorrectly by the patient.
@@Smooshes786
I’m so sorry. 😢There are Chinese herbs that can help the spleen. ❤
@@PeaceIsYeshua thank you. I read about hyacinth and should follow up- will do that. Thanks for reminder!
@@Smooshes786
You’re so welcome!! The Chinese herb for this is Stephana Astragalus in case you want to look into it also. 😀
I have just found this channel and after being ill for 10 difficult months with LC. I was beginning to wonder if I was ever going to improve and I have to say that listening to a few of these videos (the short ones I can manage!) I feel a glimmer of hope being rekindled. Thank you Raelan. I have just bought your book!
This is one of your best videos ever Raelan!
An excellent summation and simplification of what it is to go through MECFS. It all boils down to the fact that our Autonomic Nervous System has gone out of whack. When that happens it produces the variety of symptoms that occur....and they're all different for everyone!!! That's why the typical American doctor, who is not trained to recognize MECFS, has no clue of what's going on!!!
Since I have been going through my own process of healing, even my Raynaud's Syndrome has gone away!!
Thanks again for your channel and all your insight. I especially liked your interview with Dr. Myhill.
In the meantime, I have read some books about the brain. My favorite one was entitled Neuroscience and the Fruit of the Spirit by Bryan Spoon. Also, books by Dr Norman Doidge.
With love and blessings for helping me, and many through MECFS,
Miss Monique 🙂🌷🙏🎶🎉💕☺️
My Raynaud’s has gone away too.
@@kathy.7475 wonderful my mother has it and ms I have it in little fingers I've had me decades now that's better it's fybromyalgia now though still have fatigue has it cured your pain
So true. Took me 2 years to finally get proper testing done with a neurologist and get my long Covid diagnosed as dysautonomia. The nervous system is so important! I think this may be related to CFS as well. Especially because people tend to develop dysautonomia after an infection like the flu or, now, covid. I recommend to everyone to see a neurologist and rule this out, because there is more and more evidence that long covid / long flu are a form of dysautonomiA with a few other issues as well
I got diagnosed but was given anything to help.
@@katiamek1 have you got chronic muscle tension with it isn't dysautonomia part if me fybromyalgia pots
You are a form a positivity and hope for me.
Thank you. ❤
-Former nurse, former runner long hauler.
This was such a wonderful video Raelan!!! I think the 3 findings were so on point, and putting them each into perspective. You're the best!!!!
Thanks Raelan, put together so well, your channel has helped me immensely 🙌🥰
Some people are still trying but not healed.Thank you for the videos.
I understand that selling hope helps, because hope helps, but this sure seems reductionist. Maybe it's because of the format (12 minute video).
It is well intentioned garbage.
Raelynn I’ve learned so much from you and your interviews especially how to minute by minute battle to keep yourself relaxed at first. Thank you for everything
Thank you again for helping me calm my nervous system ❤
Awesome Raelan! For me, the only thing I stumbled across was your channel (i was searching for answers) and from then on I was following a trail of advice of people who knew how to recover. Thankyou SO much for being a big part of my journey!
It's exciting to be present for your steps of drawing patterns and conclusions from all your many interviews. I think it lines up pretty well with my recovery approach too. The only thing I'd add is that comorbidities might not only be infections, e.g. autoimmune conditions, genetic disorders, neurodiverse conditions, I believe are contributing factors for me. Some of these things could fit in the categories you listed - I appreciate that it's a broad brush summary.
🙌 Thanks again. Will be sharing.
After watching so many of your videos and then doing ANS REWIRE I got to 100 percent recovery after five years of CFS. I got covid in Feb and am starting again. But now I have all these amazing tools, including meditation and brain retraining.
What I would emphasize is that in the acute stages of flare up, rest is key, and pacing, NOT doing anything to expand the energy envelope. Graded exercise therapy/expanding the envelope comes a bit after an acute flare up. If the body needs rest, it truly just does.
Great tips! What types of things do you do for your brain retraining?;
@@markleonard4452 I practice the REWIRE method, which is to recognize a thought about my symptoms or my illness, end the thought, wind down the arousal, initiate a new perspective, etc. In a flare up this can happen a hundred times a day as there is frequent thoughts of symptoms and/or "Illness confirmation thoughts"
What’s frustrating is that everyone else is getting health care. When the gray matter is diminished, good luck ever recovering! That’s me😞
The grey matter comes back when it repairers apparantly
@@Truerealism747 are you sure? I was told and research shows that we all lose gray matter over time due to aging. I have listened to many doctors say that with Covid the gray matter doesn’t seem to be coming back.
@@reuniteamerica I have personally experienced and seen too many cases of people recovering or improving all sorts of health issues in ways that their doctor told them would be 'impossible', to take those kinds of statements from doctors too seriously. They are trained in their field but there is a whole world out there of different approaches to health that can often have very positive impact that they often somehow have no clue about. So basically I wouldn't get discouraged too easily if they told you that!
The brain recovers more slowly. Help it with an anti inflammatory diet.
Providing hope and comfort to someone who's really suffering with this. Thank you!
Nailed it!!! so spot on Raelan👏💚
People who recovered before there were recovery stories is truly amazing! Thank you so much for all the work you are doing and putting the stories out there for us to learn from!
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Im got severe long covid with microclotting . Horrible nausea ... anyone have any suggestions? Ive become infunctionable.. i need help really bad. My veins are blowing out. I have two in my legs that are like extension cords. And all the ones in my feet are breaking . Something is very wrong
They just found inter cranial brain swelling as well .with eye problems ... somebody ... i need help . They ve been trying for a year and im just getting sicker .
Nattokinase and serraoeptase to dissolve the protein clots and Covid. ❤
I'm so sorry you are this sick, howbare you now? I had ME/CFS in the 2010's.
Fasting helped me at a time, as I discovered the 5:2 lifestyle. A while later I learned about the nobelprize winner who showed autophagy lowers inflammation in the brain. Then I supposed thats what happened to me.
Ten years later I now have long covid and fasting doesn't seem to help the same way. I'm puzzled.
Breezy, go and see a Chinese Medicine lady. I just had my neck lymph glands drained, really painful, but it was obvious something was wrong with it. I have felt AMAZING since, like my old self. The effect has been so overwhelming and now I'm just waiting to see if I crash again... I also had lots of neuro problems, eye pain, migraines etc... I can't promise it will work for you... but it's worth having a consultation... because no Western doctors can be bothered to even sit there and talk about it...
A single session of EMDR has sorted my 14 monthd of long covid. This ties in with your nervous system/brain training theories. The session dealt with (false) core beliefs from childhood.
EMDR helped me alot as well, but nothing was ever mentioned about far past beliefs. I would love to hear about that.
Everything we processed was within the year of my "crash"
What is EMDR?
Can you explain how the exercise worked for you? Many thanks
@@FreshAgenda I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
Could you recommend the EMDR practitioner you worked with please? Grace
Maybe the reason why all the tests come back negative is because they haven’t developed a test for ME/ CFS? You could test for a hundred different allergens only to find out you are allergic to one they didn’t test for. Just a thought. Going on my fourth year of being bedridden with this disease and no matter what I do makes it better; so discouraging. Blessed Be
What do u mean bedridden? Everday in bed?
@@pedroribeiro7334 I was confined to my bed about 97% of the time because of my lack of energy, etc.. If I had enough energy to take a shower I would probably be stuck in bed for the next two to three weeks. The only time I would be able to get out of bed was to go to the bathroom. I finally found out that I had breast implant illness and after my surgery to have them removed I got my life back. Doctors were of NO help to me and if it wasn’t for my constant research and unwillingness to just give up I would still be bedridden. I was lucky compared to so many other people who have CFS and suffer so greatly every day.
I was tested for auto immune diseases and after these were negative I was told, "you have chronic fatigue syndrom. This is new to me and really overwhelming. Stress has always been with me. As a teacher stress is part of the job. This will be my last year teaching. There are lots of reasons but often as teacher we do it to ourselves. I was the teacher who took work home every weekend and stayed late. Finally, in my 50' I stopped doing this. I don't stress about work anymore, I enjoy my last year with my students. I do have a functional doctor and get acupunture, take supplements; acupunture helps me a lot but can be expensive. Over winter break I am going to focus on my diet and beginning meditation. For me, though it's not the fear of going for a walk, it's literally the pain I will be in the next day. I love to be outside and have been depressed but it's counter intuitive to do something that you know will cause you pain. It's not fear that keeps me from doing things it's pain and the need to get myself to work. Hopefully this will change and I will get back to doing the things I love outside Thank you for sharing this video.
I so wished I know what I now know five years ago. I agree with you repairing the nervous system is central to recovery. And it is not that black and white. I see CFS/ME as a form of burn out. And for me there are/were underlying issues of lack of self care and stress management. the body calls us out for us to 're align' with ourselves. What's happening in the world is a mirror of how we treat ourselves. I also start to become more aware of my thoughts, how I can harness them positively without ignoring and dismissing my feelings, as brain training can also be a risk. As other people have said I too like all your interviews. They give me hope to get better myself, my experiences are becoming more a shared experience and they give me ideas. Thank you! and you look so healthy, that too is good to see.
there is not a lot to be done, we suffer from tissue scarring, extensive tissue scarring caused by inflammatory cytokines, which we know never fully recovers, and any activity involving areas where tissues have been scarred are weakened for life and could potentially sustain further injury further progressing the tissue damage and symptoms we present with, we must limit ourselves each and every day or face relapses, we feel better for a small amount of time and we start performing any sort of activity and either later that same day or the next its all over again.
Dr schubiner says this is not the case in his brains and he has done the brain repaired though we can relapse
The best Video i never Heard ! You say what i feel deep inside. Now i'm Stoll very stock, but i Stoll have hope for myself. Never Heard at something like this
I'm so glad it was helpful. Hang in there, you're not alone on this journey! ❤️❤️
I agree with everything except leaving out emotional repression and limiting beliefs. Rebecca Tolin, who is mentioned, healed in the Dr. Sarno method and one key thing about his method is acknowledging and feeling emotions in the body that we have suppressed and repressed. Along with working on emotional repression is seeing where we are operating from "not good enough" etc. Why are people overachievers or people pleasers to the point they sacrifice their wellbeing? It is because during childhood that was their coping mechanism to get out of the feeling of not good enough. The best way to be is to know we are good enough and do things out of choice and not out of fear of not being good enough.
Thank You Raelan !!! Do you find age to be a factor in recovering. In my 50s and cant beat the Long Covid.
Another point: Post Exertional Malaise is *now* the main diagnostic criteria for ME, so if someone has fatigue but not PEM, then they don't have ME! That's another reason for recovery: they didn't have it in the first place (ie they had a *temporary* bout of fatigue, not a permanent one & often *rest* allows folks to cover from this type of fatigue, most often caused by *overdoing things or a busy/ stressful lifestyle* akin more to *adrenal fatigue/ exhaustion* rather than ME/ CFS/ long covid. Temporary can often be 3 to 4 years rather than the arbitrary 6 months the doctors state is temporary). There are a lot of possibilities that many folks (especially doctors & patients) don't consider or aren't *aware* of🙏
Additionally, both Chronic Lymes & Long Covid have POTS in common. My cardiologist said Every one of his patients diagnosed with POTS have also been diagnosed with Chronic Lymes.
Does it go the other way around? I have long covid, No Pots. Mine is more nerve/muscles related.
I'm not sure what you mean by the other way around But... they are finding many long covid also have chronic lymes. I hope that helps. If not I will try again
Hi. It also could be caused by Epstein bar virus EBV and others
Thank you for your amazing videos, Raelan. I also recovered a few years ago, but have just come down with Covid. I'm feeling confident that I will fully recover! Knowledge is Power! ❤
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
I remember just 6 months ago, I was pacing and it was working but similarly it wasn’t. I was convinced there were missing pieces to my journey of recovery and it took me hours of research to find your channel. I am so grateful that I did… because each video has given me more insight on recovery- from learning about brain retraining, compassion, self beliefs, reinventing yourself, healing and letting go of people pleasing etc…. I thank you so much for pushing yourself to create this channel and helping me and so many others - during my time of research I also came across some horrible long-covid practitioners who went as far as instilling more fear… (e.g you will never be able to have children as ur body hasn’t enough energy) etc etc … and getting people hooked on their expensive programmes! I am so so thankful that something in me felt it was a red flag and that I kept moving forward until I found you… ❤
P.S I wrote this before I’ve watched the video and a generalised comment of your appreciated for all ur videos
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
I had chatgpt summarize your video in about
Wow! Thank you! I am struggling a lot with my recovery.... Thanks for your work ❤
Please just keep at it! ❤️❤️❤️
First one starts at 3:20
As a new viewer, and now subscriber, who has he going through the cycle of having episodes where I have the same symptoms that leaves me tired and in bed for days on end, just want will enough to function for a few hours before being rest again, having had every test and scan under the sun that came back negative and just being told by my doctor that in the end I will just have to live with it I'm a little confused by this video.
I completely agree with everything you say, and your right in what you say, it will help people who are afraid to go back to how they are living before, missing with people, doing exercise, eating more healthily, but I think you are confusing many different experiences into one and saying that everyone can be "fixed" when I don't believe this to be the case, some people like me who have to live with it.
I'm not negative, I try to eat healthy most of the time, I go out with friends when I'm feeling up to it, I love to run, so when I can I get out into the wild and go for 15km runs, but I have to accept that what I have will never go away, and I'm not sad about this it's just how things are. Some people aren't like this and it may just be a lingering infection that these changes will see them back to normal and it's great that you are giving this advice based on your experiences, personal and with those you've spoken to, I'm sure it will help many, and resonate with those that have been through this and recovered, but I think Long COVID and ME, for example, are completely different, and whilst the first is fairly new and be completely different (whilst having similarities in terms of symptoms).
Everyone is different and in the end I think the first think I say anyone suffering would be it's positive, because from my own experience if you aren't things can spiral and get worse and worse which brings in mental health issues along with the underlying medical ones. But in the end at some point you have to do the best you can, strive to be better, try new things and see if they improve things, and maybe in the end there will be a breakthrough, but I don't think there's a one size fits all solution, some people will just have to learn to live the condition they have, rest up, eat well and rinse and repeat if and when it again.
I'll have to watch more of your videos as I can't judge on one interview, but thanks again for the advice, and even if something doesn't work for you it's great to know what certain things have worked for others, and to try things if there's something I haven't tried yet, it may help a lot.
I love you Raelan, ty ❤
It was my seeing a naturopath that has made the difference for me. She recognized immediately that it was an out of balance nervous system. My primary care doctor just said I had generalized anxiety disorder and needed to be on medication.
What did the naturopath prescribe did you rewire program to
I'm doing DNRS brain retraining program.
@@kathy.7475 is that helping the most or combination
Thank you Raelen. This is an excellent video, as are all your other ones. Hugely helpful, practical and reassuring. Thank you for all you do. 🙏❤
I had covid in Feb 2022. March I got so sick w the worst cold ever! Fatigue set in and I didn’t start feeling 85-90% better until august. Well, middle of august I got COVID again for a 2nd time!
Then October I got sick for a month with a virus. Then November I got a bad cold.
January/Feb of this year I apparently got COVID again for a 3rd time because the dr told me I had a spike in my antibodies.
I’m losing my mind!!!! The fatigue is debilitating!!!
Some days I’ll feel 80% ok but then I’ll overdo it and crash.
My body is shot from everything I got within 12 months.
Wow this describes what I'm going through to a TEE.
The reason that lab results of long covid patients come back normal is because most patients can only do bloodwork which shows only a part of your health, if you really want to know whats going on inside the cells more specialized tests are required.
The big labs are already seeing that there are a lot of weird biomarkers in long covid patients but cannot find the cause yet unfortunately, there ate a lot of hints that mitochondrial dysregulstion (which controls the nervous system) plays a big part.
Yes, I am doing gradual exposure with safety....but why did I get better to 70% after pregnancy...JOY, CALM
Thank you so much for your video ! I like when u do a synthesis ! Very powerful ! i am planning to do a brain training program and your video helps a lot ! 🙏
Thank you Raelan, this summary was very useful for my wife. Thank you for this, a very timely reminder the key issues. We have both listened to this together, we are a year in this month with my wife’s illness. The three main points hit the target. The power of the mind and predictive reasoning or thinking ahead of events and training the mind to consider and invoke the positive outcomes (over a negative anticipated outcome), seems to be very important in the journey in my Teresa’s case. I’m convinced that the brain and heart have the capacity to influence our physical and emotional processes. We are using mindfulness, diet and using gut health, no sugar/alcohol, the latest is the Perrins technique starting next week. Onwards and upwards.
100% agree with this from my own recovery experience! I'm at 90%, last piece is returning to vigorous exercise & full time work. I know I can get there by continuing to address these aspects. :)
I reccomend prolonged f/a/s/t/I/n/g. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing r/e/s/v/e/r/a/t/r/o/l & q/u/e/r/c/I/t/I/n. This triggers autophagy and clears the blood of spike proteins. FY I must use code so UA-cam dosent delete my comment. Cheers!
How are you?
You are a treasure Raelan!❤
I can relate so much to what you are saying-thank you 🙏
Yup very relatable, for me diet was important for healing cause I was chronically undereating leaving no resources for my body to heal
this is such an important point and so often overlooked. It's proving to be one of the keys for me too.
Yes I recommend the adrenal fatigue approach, healthy diet, eat when you rise don’t wait too long, healthy snacks periodically every hour or two and there a healthy snack an hour before bed. Dr Wilson has a book.
brilliantly said, number one, check, number 2 check . both of these are really helping, i just need to focus before i do anything to calm myself and re-train. I often only think after but i’ll get there
I’m grateful that Dr Mobeen introduced me to your channel 🙏
I think though peoples severity of disease is very different so their length of recovery will be different. I know that’s true of long covid, dysautonomia and pots symptoms can be among the most debilitating but some never had those issues. I do believe in mindset and being stuck in flight fight because I’ve experienced that as well, but I think recovery length will vary.
there are people who were completely asymptomatic and are now long haulers for 3 years, severity while does play a role, it is far from the only factor involved.
Yeeessss!!! on point! So, I think why it isn't "discovered" by medicine is that they are looking in the wrong place - this is kind of a neurological/psycosomatic illness. Thank you so much for everything you do! You bring light to us!
Thanks! One year after I got covid initially I am still dealing with symptoms and I do recognize much of what I have so far found to be effective in what you share here. Although the intensity of some of my symptoms (like dizziness, palpitations) has significantly decreased, I am generally feeling so much weaker, more tired and also more anxious about everything than I was a year ago. Dealing with this on top of another chronic health condition has really worn me out. I do try to work on the fears, and if I look at things objectively I can see that most of the time when I do go out I feel pretty ok, yet there are still experiences when I go for a cup of tea with a friend or something and I do start feeling unwell, dizzy, shortness of breath... and this then brings back the fear and sort of proves me that it is not just an irrational fear. Finding this very difficult to handle at the moment. I am curious also if anybody recognizes that entering into a building/cafe/other specific space somehow triggers the symptoms? As if there is something in the change of air that my body has difficulty adjusting to. There are specific locations that tend to trigger this especially strongly for me and I can't relate that to anxiety or anything like that.
I'm glad there are success stories out there and thank you for sharing, I was starting to feel quite desperate at this point so this helps to find back my courage!
Hi Esther! Did you catch the interview with Dr. Sally Riggs? She shared some insights that might be helpful in dealing with the shutdown response. Wishing you all the best! 💫❤️
@@RaelanAgle Thanks, I will check it out!
Hi Raelan thanks so much for this, I love love your videos. Have you conisdered interviewing Simon Pimenta from the site ME/CFS Explored? He recovered and now teaches brain retraining but also shares a lot of information through videos and seminars for free.
hi Jon, thanks for that pointer! I just watched Simon Pimenta's explain-the-condition video and it is one of the best out there.
👍🏻 Total agreement. Thanks Raelan 💗
This video makes it seem like there is a quick mindset fix. It's hard for me to give somebody the benefit of the doubt, who claims people can see improvement within days and "just have to do the things I'm talking about." The nature of these conditions is that they are highly individual. Researchers have been looking into long covid for years, without finding even the slightest evidence for an effective treatment. For me, the first time it just randomly disappeared. I didn't do anything special in the weeks before. Same story with two friends. Sadly, I got reinfected and I'm back to square one.
Hi Raelan, an where you've been - plenty of tests done, and no physical issues. Nervous system reacts exactly as you describe, I'm almost bedbound, can barely leave the house. When you say brain training, what is really the essence? Everyone talks about it, but doing 2-3x a day some visualisation and affirmative suggestions 'everything is ok, it's just my nervous system', these things don't do the trick entirely, even though a positive pull factor can be observed. Really would appreciate bulletpoints of the brain exercises you were doing! Love from Berlin
I developed varicose veins and venous insufficiency after COVID even though I have none of the risk factors. Covid has been found to damage the endothelial cells that line the vein walls, causing actual damage. I would see this as “being broken”.
Do these same concepts you’re speaking about apply to those of us with actual damage to our bodies or does this only apply to people who had much milder cases of what they think is long Covid?
My tests aren’t “coming back fine with a clean bill of health.” I have ultrasound proof of vein wall/valve damage. I have endoscopic ultrasound proof of chronic gastritis, gallbladder sludge, and pancreatic hyperechogenicity in my pancreatic duct. I have AMA in my blood work which points to a liver autoimmune disease. I went from being completely healthy to having actual evidence showing up on tests that show my body is being physical damaged and changed after Covid with no other explanation.
Does any of this advice apply to me? Can I heal? Or am I actually broken?😢
I love you! If there's anything I can do to help your channel I would do it. i actually have quite an intersting story regardinfg long covid and the circumstances under which i caught it
I agree 100% !!! Thank you so much Realan!!
Great video 10/10!
I love this channel so much ! It is very helpful! There is actually proof that people with CFS, POTS and long covid are experiencing neuroinflammation deep inside the brain..so future therapies and treatment will address the neuroinflammation aspect ..Vagal stimulation is also something that is being researched. I personally found LDN in low intermittent doses to be SUPER helpful for CFS and dysautonomia. Also florinef as I have low aldosterone and low blood volume.
Ime.on ldn though it helps fatigue maybe IBS not helping chronic muscle pain upper body has I helped yours so you don't take it eve ryday?
Anyone else has to listen to Raelen at 0.75 speed to be able to follow? 😂 (Raelen, I just envy your energy)
Whoever invents an easy way to be the observer and look fear straight in the eyes will make bank 💸💸
That would be a Buddhist monk or nun. 😊
I AM getting better again....excellent video Raelyn
Its not coming out more and more about some me/cfs also having cervical instability and spinal issues which can complicate things. I addressed all of the other things including lyme co-infections but took over 30 years to realise these other issues were a big player
Are you a reiki master by any chance??
Has the interview you mention that is coming up been released yet? I can’t find it on the channel?
Re testing: my microbiome testing certainly was not healthy/normal. Many if not most CFS/ME are lacking healthy lactobaccilus, bifidobacterium, and non-pathogenic e coli. I'm not saying this is the cause and fixing it is the cure. And it is not easy to fix, either. But to me there is obvious connection, a big contributing factor. I am interested in the brain training discussed in other videos, though. This is the second video on this channel I've watched. (First saw Raelan on Dr. Been)