Hey Naima, I also had Long Covid for 2 years now and slowly managed to get better with lots of rest and good diet, but after reinfection 2 months ago I am now back at the bottom again. I think we can get better faster this time since we know all the things things we have to do. It still will take a lot of patience.
Hey Thomas - you have such a similar timeline to me... yes exactly so much of the early months of my last infection were spent stressed and trying to self-diagnose. At least we can avoid some of that. I hope you start to see improvements soon!
I am in the same place … I felt a lot better after seven months of struggle and have relapsed this past two weeks. I too think I was reinfected and maybe didn’t realize it right away… I’m back to sleeping 20/24 hours a day … I didn’t know there was this chance of relapse till it happened and I found you on here. Thank you for sharing , it made me feel less alone , and like I’m not going insane. Sending positive Vibes your way … may we find a way to fix this someday soon 🤗
Ah it's so hard isn't it. Feeling like we are right back at the beginning after weeks or months of improvement. This is the hardest part of this illness... I hope you start to improve really soon. Sending positive vibes to you too 💛.
Same here. Covid July 2020. Doing well until last Winter. Starting over this time using pacing which works well for me along with beta blocker, diet, etc. My mind wants to go but my body says no. Hang in there. We'll all get through this. Thanks for sharing your story.
You sum it up so well - I often wake up with my head telling my body to pack my whole day with activities and my body tells me to slow down! Yes we will get through this. Hope your symptoms are not too bad today 🙂.
Very brave and generous of you to share your recovery journey. Hopefully you are much better now as I can see this video is a year ago. I too found that reinfection definitely caused a major set back - starting all over again, and with some new symptoms to add to the list. Wishing you well.
Dear Naïma, it is great to see you looking so strong in yourself and beautiful, all the more so in the context of your setback. As mentioned before, I am otherwise disabled, and find your videos helpful and inspirational. Earlier this week I wanted to go back to bed for a while, which I normally avoid other than to sleep / other bed activities. I thought of you and the advice we had shared with each other and went ahead and had a little lie down. Limiting anti-inflammatory foods is so challenging! Thank you for the solidarity in trying to do as well as is sensible. ❤️
Ah thanks your message made me smile 😊. Yes I think sometimes listening to your body to work out intuitively what you need is more important than the rules and routines we've put in place. With food I used to beat myself up about not being able to eat "anti inflammatory enough", but think being gradual about what to cut out and occasionally having something I'm craving, is working ok for me. Have a great weekend!
@@naimaella thank you, dear comrade. I wish you a happy weekend, too, and, of course, recovery from the Setback. I am so sorry that happened to you, and so angry that was allowed to happen to you. (Re)infection risk can be mitigated at an individual level, but meaningful action NEEDS to happen at a public health level. I am angry and sorry and rrrr that you and so many have been set up to go through this. We have been betrayed by our "leaders"; may their cruelty fall. ♡
Yes it definitely has taken an emotional toll. But I have seen improvements in the last couple weeks - as you know it's a slow process. Hope you're doing well 🙂
So helpful. I agree that it is important to be engaged in our own recovery. It is such a difficult thing to do when we have been used to living life without having to really consider how our body supports us.
Long coovid seams to be autoimmune. Vitamin C foods. B vitamins, sunlight, exercise. Also night gut health and night histamine levels related to long covid. Also POTS fluid therapy might help. Consult Dr beforehand.
The his has happened to me !! After 5 months of doing great I am now back to step one !! Thank you for sharing it helps to know someone knows exactly how I feel .
Hi Naima, I’ve been bedbound for the last year. I’ve started have some improvements. Keep up the great work you’re doing great and I hope you start getting back on track soon I believe you can
I’m so glad you’re starting to see some improvements 💜. Thanks keep telling myself if I stick to my routines it’ll start to improve again. We will get there 😊.
I just had a relapse last week after getting my vaccine (bivalent) and I completely felt every word that you said in this video, thank u so much for helping me not feel so alone
@@jessemendoza2991 unfortunately yes :( and it's taking me baby steps again to be able to stand up for more than 5 minutes. Fatigue, chest pain and heaviness, tachycardia, difficult to breath, back pain... all back at the same level as it was during the infection :( plus the sadness of feeling everything again and have to depend on someone else
I'm so sorry Lizzy it's so difficult having to go through this so many times. If you find it comforting I am doing so much better since I filmed this video, but it took time. Hang in there I hope things improve for you soon 💛
@@naimaella thank u so much Naima, just after a terrible night of nonsleep because of the pain, reading your response gives me a little hope, thank you for everything you share with us through your channel
Hi. I’ve been laid up with long Covid for 5 months. After a recommendation I had vitamin injections and vitamin intravenous drips. These were vitamin D, B12 jabs and vitamin C with a B complex in the drip. The results were amazing. My breathing problems were resolved as was the brain fog. My heart rate has also dropped back to normal. I’m continuing to have the vitamin infusions and while it’s fair to say that I’m not ready to go back to the gym yet, I feel as though I’m getting my life back. Has anyone tried this approach ?
I’m so sorry. I have/had long Covid. PLEASE LOOK INTO OZONE THERAPY!! I had so many issues. I couldn’t work or drive and barely socialize. I did 5 treatments on one month. I’m feeling so much closer to normal. It’s life changing. I’m so happy and I wish you all a speedy recovery. Please look into this life changing treatment!!!
Also had Covid March 2020 and long covid was almost same as acute for 8 mos. Also was in diagnosis process for neuromuscular disease thought my life was over. Jan of 2021 started on mestinon and very slowly regained some strength, lung capacity. In June 2022 had pos covid test and wasn't as bad as first time. Oct 9 got all covid sx again but tested neg, should have repeated but was too sick to care. Now back to being able to do 2-3 ADL in a day...shower today? Dishes? Really is hard to tell what is covid related and what is Myasthenia Gravis but I guarantee the idiot MD who told me is normal aging was full of dooky. This all is painfully real. I wish you luck, be gentle with yourself.
Are u ok ? Where are u now? My kids and i have severe long covid and were at 1 year .we just got reinfected... im terrified. I already noticed im jumpy. That was my first noticable symptoms at the very beginning. Im terrified
I want to add, if you feel like a flu/cold/viral infection coming on, “elderberry” (i make it in a tea form) stops the virus attaching itself to your cells, it could work and sipping on that (herbal) tea may hopefully stop your illness in its track and stop a relapse even. Elderberry good for the heart and chronic fatigue too
Hi Naima, I am wondering if you were vaccinated before you believe you got reinfected? I also have long-covid since March 2020 and am wondering if the vaccines are offering us any protection against relapse with reinfection. I wish you all the best in your continued recovery. Thank you for your sharing
Hey Sarah - I've been reinfected a couple of times now and each time I have been fully vaccinated. Unfortunately the vaccine only protects against Long Covid by 15%. I think several factors play into the severity of the reinfection, so now I wear an n95 each time I'm indoors and only meet people 1-2-1 with ventilation
Hi Naima, my main symptoms are fatigue and a head that turns to concrete. Every time I have a setback, as now, I can trace it back to overstepping my energy limitation and the trouble is that, at the time, you don't realise it. Could you have been that doing that or are you pretty sure that you got covid again?
Hey Don, Thanks for your note 😊. Yes I know exactly what you mean - what's different about this time is that I haven't bounced back from it, even though it's been three months. Whatever has set me back has changed my baseline as well... that's what is confusing about it. Still trying to piece things together unfortunately... I'm definitely not back at "square one", but this is my theory at the moment ua-cam.com/video/WcTeP8-XBrQ/v-deo.html
Please try beef glandular supplements..Several comments out there claiming they work very well for long covid..I just started today Beef Liver, Heart, Kidney, Pancreas, Spleen, brain and adrenal glands..
Hey Rocky - for me it felt worse because before getting COVID the first time I was very healthy. My acute phase when I was first infected wasn't severe compared to Long Covid symptoms. Now it feels like the slightest thing can set off symptoms - reinfection, cold, change of season etc. It feels like I'm often operating at a deficit.
@@naimaella very much hope you are improving again. there are many different types of auto antibodies that may play a role in the pathofysiology of LC. The most well known aab's are rheumatic aab's which play a role in diseases like rheumatoid arthritis, lupus, etc. There are some studies suggesting covid may trigger some reumatoid disease, mainly those that are vascular, like lupus. An immunologist can test for these aab's. You can also have elevated r-antibodies without testing positive for a specific r-disease, like i do. Furthermore, there are so called functional GPCR aab's which play a role in microvascular which are suspected to play a role in the LC pathology and for which medication will be tested in a clinical trial soon. Thanks for posting the vid. I'm also a 'first waver' and just suffered a relapse since 1 month. I also suffer mainly dysautonomia symptoms (dizzyness, severe insomnia, palpitations/pots, tinnitus). Not easy to stay positive but good we have some tools ready now. Also chasing off-label treatments atm. if you care for a 'sparring chat' to exchange some ideas just let me know.
Hey Naima, I also had Long Covid for 2 years now and slowly managed to get better with lots of rest and good diet, but after reinfection 2 months ago I am now back at the bottom again. I think we can get better faster this time since we know all the things things we have to do. It still will take a lot of patience.
Hey Thomas - you have such a similar timeline to me... yes exactly so much of the early months of my last infection were spent stressed and trying to self-diagnose. At least we can avoid some of that. I hope you start to see improvements soon!
I am in the same place … I felt a lot better after seven months of struggle and have relapsed this past two weeks. I too think I was reinfected and maybe didn’t realize it right away… I’m back to sleeping 20/24 hours a day … I didn’t know there was this chance of relapse till it happened and I found you on here. Thank you for sharing , it made me feel less alone , and like I’m not going insane. Sending positive Vibes your way … may we find a way to fix this someday soon 🤗
Ah it's so hard isn't it. Feeling like we are right back at the beginning after weeks or months of improvement. This is the hardest part of this illness...
I hope you start to improve really soon. Sending positive vibes to you too 💛.
Same here. Covid July 2020. Doing well until last Winter. Starting over this time using pacing which works well for me along with beta blocker, diet, etc. My mind wants to go but my body says no. Hang in there. We'll all get through this. Thanks for sharing your story.
You sum it up so well - I often wake up with my head telling my body to pack my whole day with activities and my body tells me to slow down!
Yes we will get through this. Hope your symptoms are not too bad today 🙂.
Very brave and generous of you to share your recovery journey. Hopefully you are much better now as I can see this video is a year ago. I too found that reinfection definitely caused a major set back - starting all over again, and with some new symptoms to add to the list. Wishing you well.
Dear Naïma, it is great to see you looking so strong in yourself and beautiful, all the more so in the context of your setback.
As mentioned before, I am otherwise disabled, and find your videos helpful and inspirational. Earlier this week I wanted to go back to bed for a while, which I normally avoid other than to sleep / other bed activities. I thought of you and the advice we had shared with each other and went ahead and had a little lie down.
Limiting anti-inflammatory foods is so challenging! Thank you for the solidarity in trying to do as well as is sensible.
❤️
Ah thanks your message made me smile 😊.
Yes I think sometimes listening to your body to work out intuitively what you need is more important than the rules and routines we've put in place. With food I used to beat myself up about not being able to eat "anti inflammatory enough", but think being gradual about what to cut out and occasionally having something I'm craving, is working ok for me.
Have a great weekend!
@@naimaella thank you, dear comrade. I wish you a happy weekend, too, and, of course, recovery from the Setback.
I am so sorry that happened to you, and so angry that was allowed to happen to you. (Re)infection risk can be mitigated at an individual level, but meaningful action NEEDS to happen at a public health level. I am angry and sorry and rrrr that you and so many have been set up to go through this. We have been betrayed by our "leaders"; may their cruelty fall.
♡
So sorry to hear you’ve had a relapse in health, it is very trying emotionally. I try to focus on the good bits that remain.
Yes it definitely has taken an emotional toll. But I have seen improvements in the last couple weeks - as you know it's a slow process. Hope you're doing well 🙂
So helpful. I agree that it is important to be engaged in our own recovery. It is such a difficult thing to do when we have been used to living life without having to really consider how our body supports us.
Definitely - I used to see recovery as something to "get through", but we have to be so connected to our bodies to work out what we need and when.
Long coovid seams to be autoimmune. Vitamin C foods. B vitamins, sunlight, exercise. Also night gut health and night histamine levels related to long covid. Also POTS fluid therapy might help. Consult Dr beforehand.
The his has happened to me !! After 5 months of doing great I am now back to step one !! Thank you for sharing it helps to know someone knows exactly how I feel .
Naima I hope you recover with more speed than the last go around. I believe you will. The best of thoughts for you.
Thanks so much - luckily it feels I'm slowly turning a corner now. Will keep at it. Hope you're doing well 🙂
Hi Naima, I’ve been bedbound for the last year. I’ve started have some improvements. Keep up the great work you’re doing great and I hope you start getting back on track soon I believe you can
I’m so glad you’re starting to see some improvements 💜.
Thanks keep telling myself if I stick to my routines it’ll start to improve again. We will get there 😊.
I just had a relapse last week after getting my vaccine (bivalent) and I completely felt every word that you said in this video, thank u so much for helping me not feel so alone
Did it bring on the symptoms as the same in the past?
@@jessemendoza2991 unfortunately yes :( and it's taking me baby steps again to be able to stand up for more than 5 minutes. Fatigue, chest pain and heaviness, tachycardia, difficult to breath, back pain... all back at the same level as it was during the infection :( plus the sadness of feeling everything again and have to depend on someone else
I'm so sorry Lizzy it's so difficult having to go through this so many times. If you find it comforting I am doing so much better since I filmed this video, but it took time. Hang in there I hope things improve for you soon 💛
@@naimaella thank u so much Naima, just after a terrible night of nonsleep because of the pain, reading your response gives me a little hope, thank you for everything you share with us through your channel
Hi. I’ve been laid up with long Covid for 5 months. After a recommendation I had vitamin injections and vitamin intravenous drips. These were vitamin D, B12 jabs and vitamin C with a B complex in the drip. The results were amazing. My breathing problems were resolved as was the brain fog. My heart rate has also dropped back to normal. I’m continuing to have the vitamin infusions and while it’s fair to say that I’m not ready to go back to the gym yet, I feel as though I’m getting my life back. Has anyone tried this approach ?
Were you prescribed these vitamin injections ? Did you know if you were deficient ?
I’m so sorry. I have/had long Covid. PLEASE LOOK INTO OZONE THERAPY!! I had so many issues. I couldn’t work or drive and barely socialize. I did 5 treatments on one month. I’m feeling so much closer to normal. It’s life changing. I’m so happy and I wish you all a speedy recovery. Please look into this life changing treatment!!!
Where are you now ? What helped you the most ? Whats ozone therapy?
Also had Covid March 2020 and long covid was almost same as acute for 8 mos. Also was in diagnosis process for neuromuscular disease thought my life was over. Jan of 2021 started on mestinon and very slowly regained some strength, lung capacity. In June 2022 had pos covid test and wasn't as bad as first time. Oct 9 got all covid sx again but tested neg, should have repeated but was too sick to care. Now back to being able to do 2-3 ADL in a day...shower today? Dishes? Really is hard to tell what is covid related and what is Myasthenia Gravis but I guarantee the idiot MD who told me is normal aging was full of dooky. This all is painfully real. I wish you luck, be gentle with yourself.
Raw onion is a game changer. I'm 95% cured now!
Are u ok ? Where are u now? My kids and i have severe long covid and were at 1 year .we just got reinfected... im terrified. I already noticed im jumpy. That was my first noticable symptoms at the very beginning. Im terrified
💙 had a relapse last month and trying to get back 😪
I want to add, if you feel like a flu/cold/viral infection coming on, “elderberry” (i make it in a tea form) stops the virus attaching itself to your cells, it could work and sipping on that (herbal) tea may hopefully stop your illness in its track and stop a relapse even. Elderberry good for the heart and chronic fatigue too
Ugh it's the worst feeling. Hope it doesn't last too long for you 💙
Very interesting about the elderberry tea I will look to get some just in case. Thanks for the tip 😊
Quercetin and black seed oil daily plus high dose vitamin d3.
Hi Naima, I am wondering if you were vaccinated before you believe you got reinfected? I also have long-covid since March 2020 and am wondering if the vaccines are offering us any protection against relapse with reinfection. I wish you all the best in your continued recovery. Thank you for your sharing
Hey Sarah - I've been reinfected a couple of times now and each time I have been fully vaccinated. Unfortunately the vaccine only protects against Long Covid by 15%. I think several factors play into the severity of the reinfection, so now I wear an n95 each time I'm indoors and only meet people 1-2-1 with ventilation
@@naimaella Thanks for sharing. I am trying to find the balance for myself and my level of safety. Wishing you continued and improved wellness!
Hi Naima, my main symptoms are fatigue and a head that turns to concrete. Every time I have a setback, as now, I can trace it back to overstepping my energy limitation and the trouble is that, at the time, you don't realise it. Could you have been that doing that or are you pretty sure that you got covid again?
Hey Don,
Thanks for your note 😊.
Yes I know exactly what you mean - what's different about this time is that I haven't bounced back from it, even though it's been three months. Whatever has set me back has changed my baseline as well... that's what is confusing about it. Still trying to piece things together unfortunately...
I'm definitely not back at "square one", but this is my theory at the moment ua-cam.com/video/WcTeP8-XBrQ/v-deo.html
@@naimaella keep us posted and keep your chin up.....forever hopeful, all the best..
@@dongee1664 thanks I will do. Have a great weekend 🙂
Please try beef glandular supplements..Several comments out there claiming they work very well for long covid..I just started today Beef Liver, Heart, Kidney, Pancreas, Spleen, brain and adrenal glands..
Thanks for the tip. Let me know how you get on with it too!
Hi, I am wondering that compared to your first infection, does the second infection feel worse, milder, or the same?
Hey Rocky - for me it felt worse because before getting COVID the first time I was very healthy. My acute phase when I was first infected wasn't severe compared to Long Covid symptoms.
Now it feels like the slightest thing can set off symptoms - reinfection, cold, change of season etc. It feels like I'm often operating at a deficit.
Black seed oil .
Have you done auto antibody testing?
No unfortunately I've never been offered it. What does it entail?
@@naimaella very much hope you are improving again. there are many different types of auto antibodies that may play a role in the pathofysiology of LC. The most well known aab's are rheumatic aab's which play a role in diseases like rheumatoid arthritis, lupus, etc. There are some studies suggesting covid may trigger some reumatoid disease, mainly those that are vascular, like lupus. An immunologist can test for these aab's. You can also have elevated r-antibodies without testing positive for a specific r-disease, like i do. Furthermore, there are so called functional GPCR aab's which play a role in microvascular which are suspected to play a role in the LC pathology and for which medication will be tested in a clinical trial soon. Thanks for posting the vid. I'm also a 'first waver' and just suffered a relapse since 1 month. I also suffer mainly dysautonomia symptoms (dizzyness, severe insomnia, palpitations/pots, tinnitus). Not easy to stay positive but good we have some tools ready now. Also chasing off-label treatments atm. if you care for a 'sparring chat' to exchange some ideas just let me know.
You take Anti-histamine.