Getting to Know-and Treat-Central Sensitization
Вставка
- Опубліковано 23 гру 2024
- Central pain conditions are often misdiagnosed and improperly treated. But many, including trigeminal neuralgia, CRPS, phantom limb pain, postherpetic neuralgia, fibromyalgia and others can respond well to ketamine infusions. Dr Joshi discusses the conditions, the infusion, and the results.
Just graduated from Mayo Clinics pain rehab program focusing on this. I am starting to get parts of my life back now after hitting rock bottom. I wanted to end it all at one point, but not anymore, I actually get a few things done throughout the day... and that is the most important thing to me. I am starting to live again. Anyone out there suffering, please feel free to reach out to me, nothing groundbreaking just a few things that have helped I can share. I am such an advocate for people in this state now, I want to help everyone who is feeling what I am still but at least getting through.
@@CharlieAguero weirdly no medications ever really tended to work on me. Through the program we learned why that is. Chronic pain is way more complex than acute pain and unfortunately most if not all meds eventually lose effectiveness. The most effective things have been general life diet improvements, breathing techniques, kindness to your body more consistently rather than rushing then crashing on a good day. Meditation which I really struggled with and still kinda do, but it does help the overall day to day. Its a lot of stuff we all should do and things we had to actually practice to learn again.
@@Goblin1986p Yeah I just reached out to Dr Joshi, but I'm also going to chat ucla and reay was thinking about the Mayo clinic, did you do the 3 week in patient thing?
@@CharlieAguero Yep! It was wonderful.
@@CharlieAguero They joke about it at the beginning that people leave saying "wow, I just spent 3 weeks learning how to breathe" but honestly its a lot of classes on why you are feeling why you are, how the brain works, and the top medical research so far on what they are finding with chronic pain. You find that although every person in the program is completely different ...one person may have chronic migraines, one may be sensitive to touch, myself was lower back and neck spasms. We all essentially had the same life symptoms. We were all doing the same things day to day, feeling somewhat the same way etc. We had to retrain our thinking a lot and the support in the program is wonderful.
I'm Beth. I'm in chronic pain for 5 years now. I'm miserable. I wanted to reach out to you.
As someone with a spinal injury (L1 compound burst fracture) & 2 pain disorders (central pain syndrome & CNS pain syndrome) I really love this channel. I was fascinated by neuroscience before my injury at 16, & I want to know everything about my own conditions, & whether anything more can be done to give me the life I've never had. (Sadly ketamine did not improve pain, just got nauseous & disoriented. It was insufflated, so maybe an infusion would be different. & for those who'd judge me; instead, maybe ask why I was so desperate for relief, & why I was unable to find help from professionals. The pain clinics all closed, & my GP knows nothing about treating chronic pain.)
Some have healed using mind-body techniques. I’m not one of them but there are way too many cases to totally ignore. Check out Dr Howard Schubiner. The research on pain is horribly lacking. Practitioners are not informed and insurance covers only certain tests and procedures. We’re fending for ourselves. Hope you find relief.
How are you now schubiner is curing losds
Ketamine made my pain worse 😢for over a MONTH!! It was horrible. I still have not gotten over it, mentally I mean…. Physically I’m back to my baseline of just being in P A I N all the time or most of the time. The more I read, I’m really not sure why this Dr thought it was a good idea? Ohhhhh I forgot $$$ maybe?
after a bus accident in 2010 I have developed central sensitization, its been years and I am only now beginning to understand why I have so much pain . I take pain medication but limit its use, its very helpful to finally have someone explain it to me, , so I have something to work with, people don't underhand my pain and depression, and I will mention the ketamine to my doctor, thank you :-)
Every type of fibromyalgia known includes damage to the dorsal horn and root ganglion which is the sensory and pain nerve signal carrying part of the spinal cord and which transmits these nerve signals to the brain. It’s the damage to this structure that allows the central sensitization to occur. The three most powerful NMDA antagonists are also the three most powerful inhibitory neuropeptides within the dorsal horn and root ganglion; GABA, endorphins, and endo-cannabinoids. It’s no coincidence the most commonly used medications directly correspond to these neurotransmitters. It’s also no coincidence that research is finding that Fibromyalgia and ME/CFS are in a state of endorphin deficiency; for some of these people, opioids are a form of “endorphin replacement therapy.”
keir farnum Opioids work. Too bad they are off the list now.
Thank you for your video. I have central sensitisation after a botched up L4-L5 discectomy and fusion op (x2). The pain is 24/7. It's hard.
Rebecca Chitham Yes it is.
Agreed!
I just returned home from Mayo Clinic and was told I have Central Sensitization. They have a 16 day intense program to help you get your life back. I have had RSD since 1993 and was bitten by a spider 4 1/2 years ago. Since then I have really lost my health to the point of affecting my walking, numbness in fingertips as well as numbness throughout my legs, and feet, tremors, horrible spasms in my legs, feet and fingers. I will not be able to return to Mayo Clinic anytime soon so I feel I may not be able to find the kind of treatment that is needed to regain my health. I will be looking into possibly getting Ketamine infusions. In fact I was evaluated at a clinic in Knoxville Tn and told they could help me. I changed my mind about the infusions after reading the many different results that patients had experienced. I would truly appreciate any comments regarding Ketamine infusions.
I was burned when i was 3 head to toe by soup i was living normally until i was 10 then it started it has been 5 years im 15 at the moment and it sucks i know i have nothing on some of you guys but i just wanted to share; thank you for reading
@Official_Dolor253 I hope you find relief. 🙏🏼 Live your life. You might have to find new ways or times to do things, but do them. 🎉
Has anyone here managed to get rid of this or at least improve significantly since the problem started? Is anyone able to sit at a desk comfortably or easily sustain a full time job? Iv’e had constant pain for the last 3 years and it’s difficult to find any position or posture where my body doesn’t feel tired or painful. I’m 29 years old and used to be very active and lovely, but this has completely changed me. It’s mentally and physically exhausting. Complete life changer. Ketamine here I come.
Try dr.sarnos TMS
Go to Mayo's Pain Rehabilitation Clinic. They specifically treat CSS
Just here to say i am experiencing the same. 3 years into not being able to sit or stand for long periods, even stretching flares it up terribly. I wish more content was out there on how much it can affect emoployment opporrunities.
How do I find a doctor that treats this? I was diagnosed at Cleveland Clinic, but I live 1000 miles away.
Look for a pain clinic, they should be able to help.
Mayo clinics have a program for it
I have had CRPS since I fell at work in 1993. Thank you for your excellent ,concise explanation. I will be able to show this and explain to friends and family without "losing them in a lot of details". It's too bad that I have only been treated with opiates for all these years, as it's taken a long time for the medical profession to take an active interest in CRPS.
Hi Lynne, Is your pain widespread or limited to a particular area? I’m suffering a lot not from CPRS excatly but my pain is a lot similar to what people having CPRS suffer from. Would love to talk furthur! Do reply
This happen to me 25 years ago TMS therapy trying to do now
The background music drove me nuts. There was absoluty NUTS.,,,,
Can it work even if a person still has semi-active arthritis?
just tell us how and where to treat this.
So who is the ketamine plug?
So all the aches and pains I feel all over my body is hyperalegsis, and this procedure will stop all my pain in my body
Who is this Dr?
It's not a disease! It's neuroplasticity. The nervous system is adaptable & as it can learn pain it can also unlearn pain..often by reducing fear, focus, attention & frustration etc Go live our life as best you can & your brain will let go of the connection to pain in time as you rewire other pathways to joy, pleasure etc your brain is just perceiving danger at the moment and by worrying about the pain we're reinforcing it as a problem when it's not instead be indifferent as best as you can and your brain will give it a backseat a bit like the algebra we learnt when we were at school!
True!!!
@@j0e1s2s3no, there’s more to it then believing in $h!t omg
Whisky helps. And whiskey. 👍🏼
Background music LOUD!! Ironic because we have issues with this. How insensitive of you too not know this.
Hyper vigilance
Yep but at least they are finally recognizing this awful disorder and now at least we have a name for it. They need to rethink the videos. They may be cool 😎 to many but they are a neurological insult to CS sufferers.
It is not loud and learn proper grammar please
You say these are forms of Central Sensitization. I say they are symptoms.
What are your symptoms?
I'm hypersensitive to all bright or flashing lights (especially fluorescents), smells, sharp or repetitive sounds, textures in foods and clothing, temperatures, easily startled, severely allergic to dogs and blooming bushes or trees, get migraines easily.
Am hyperaware of phoniness in people and political figures...geez, I'm a pain in the rear, even to myself! I don't remember the symptoms always being as severe as they are now, but were always there, although I barely have memories of being a child.
How do you handle your symptoms?
@@Rollwithit699 same 😓
@@Rollwithit699 how are you doing?
@@blancprod It's been a very enlightening year. About six months ago I was diagnosed with ADHD and Asperger's which explained a lot, was good to discover.
Last week a neurologist said I have SFN (small fiber neuropathy) and was then referred to rheumatologist to test for Sjogren's syndrome.
I'm SO tired of doctors. However, I finally understand why I have the burning body pain, itching, dry eyes, mouth, etc.
I am definitely stopping the search for WHY now! Good grief.
@@Rollwithit699 yeah sounds good for you, glad to hear it. I think my mothers situation is different to yours though
@ 9;20 you state 4 categories of pain, "Would it be "IMPOSSIBLE" to have more than 1 of these pain conditions or even "All 4 of these pain conditions?" I suffered severe workplace injury, "Multiple Spinal Trauma" What followed was "Gross Negligence, Medical Malpractice, Fraud, even my MRI scans were "DELIBERATELY Misread" to allow Workers Compensation to cutoff benefits. Pardon Me but we are living in times were Doctors are selling their "OPINIONS" for "HUGE" sums of $CASH$ why should anyone trust what you are saying?
Bruce Junker I have also been down the road you are on. All 4 can and do occur simultaneously. I have been at this for over 20 years. What we need to do is calm down the neural system. Think of it as a fabric that innervates everything. It affects everything. That’s the key. One thing causes everything. When we begin to see symptoms reducing or even going away or shifting and moving we then can know we are on the right track. Now we can begin to identify the triggers and many of these are subconscious emotional triggers that can be challenging to identify and even more challenging to modify. Our doctors are mostly clueless still and the one medicine they threw at it is opiates and now those are being restricted. There is hope but it takes a lot of work and I for one have been fully disabled by this life stealing disorder. But now we have a name for it and that’s a good start, may God bless you with a steady improvement and a cure.
4 categories of pain: nocioceptive, neuropathic, inflammatory, central sensitization.
I live with all four of these categories of pain. It’s completely changed who I am as person. It’s disabled me and it’s been a 12 year struggle to survive and still be here. Iatrogenic injuries are becoming the norm. It’s very disillusioning.
@@elizabethmcleod246 hi Elizabeth! I would love to talk as I am a new patient of neuropathy pain in my entire body. It’s horrible and everyday is just a struggle... Please let me know how can I get in touch with you or mail me nik_knd@yahoo.com ❤️
@@nikitak5430 What kind of neuropathy do you have?
GOOD LOOKING DOCTOR!