I'm in tears watching this...I'm a "fibro warrior" too. No one understands, or cares about what I go thru on a daily basis. Sending love & light to all my fibro sisters & brothers💜💜💜
Have you heard of Donna Eden? She had MS, now she doesn’t. For the past 30 years she has taught something called Eden Energy Medicine. A way to understand autoimmune & powerful self-care techniques. My videos explain more: start with the 10 minute Daily Energy Routine, at your own pace, for 30 days & see. Blessings, Nicola xx
I've had fibromyalgia for 21 years and what has frustrated me most has been the medical community. I've been to specialists hoping to get referrals for the right therapies (not necessarily medications; the meds are horrible), and the blood work would come back perfect and they'd act like it was due to my 'depression'. They would not even give me the chance to explain why that is/was not the case. The pain is real; and yes depression can make things worse, or you can get depressed from living with pain 24/7, but please hear us out, take our pain seriously and guide us, help us.
Beetroot Bonanza : We do not know what would be right. What we know is that help, if any, will definitely NOT come from people with your attitude towards pain sufferers.
Vicky Manson I agree I have it for 30 years I think I have it longer from childhood the last few years I feel every day I’m dying slowly & is getting closer I have no more fighting on me my husband & most of my family don’t really try to talk about or get informed I move to my spare room & I don’t get out of my room anymore I leave day by day every day is a fight with my mind depression & anxiety become extreme.. I become allergic & sensitive (MCS) to almost everything I can not smell anything even food & I become extremely sick become allergic so no pain pills & no inflammation meds or any depression or allergies meds or sleeping pills I take nothing the pain becomes so unbearable , the doctors they don’t even want nothing to do with me Soon’s they know they cannot prescribe any meds , they ask me why I’m there they don’t care .. I feel for you & everyone else I pray & hope soon will be better for everyone & they find a cure or they care enough to help everyone with Fibromyalgia in medical field Soft hugs 😔💜🦋
I find that to be one of the worst parts of this illness. Just remember that Lupus was seen in the same way not too long ago. They were told that it was in their heads also and we all know that it's a serious disease. Hang in there.
That kind of lack of support just makes things so much worse. Occasionally, my husband will become frustrated with how I have had to change how I do things or how restrictive my limits can be now and try to pull that crap on me. I remind him that I am not now, nor have ever been some weakling. I may have a chronic illness (or four!), but I'm still a badass bitch who regularly pushes myself through pain that would knock him on his ass and keep him there! Just because I'm not as good on my feet as I used to be doesn't mean I can't stand up for myself! 😁
That is one of the worst effects of fibro, that it isolates you. You don't feel like doing much and when you do, there are limits which slow you down so you become a drag on anyone with you. You're no fun to be with. It's a lonely disease.
I've only watched about 15 seconds and I'm already annoyed that it's called "women in pain". I know this has often been characterized as a "women's disease" (which is probably why doctors still don't take it seriously) but as a man with fibromyalgia I'm already angry that the BBC managed to misscharacterize it.
seriosuly one of the hardest things to deal with yet, i'm 21, male and have crohns, osteoperosis and fibromyalgia and due to how long it took for doctors to diagnose all of these, most of the times all i heard was get this guy to a psychiatrist or go to a temple and do stuff like prayers and it'll. Being an athiest it was super hard for me to stay calm during all of this and a lot of times i've been doubting myself as well as to if i'm crazy and just making it up in my head. i seriously hate it whenever a doctor didn't understood the problem and simply stated i have depression or i'm crazy, once i had so much pain that i was crying in the hospital emergency section and i felt more pain while being touched, so the doctor said take me to a psychiatrist (again) and i was so pissed off as to why if they can't figure out the problem they just label the patient as a lunatic (sorry for the spelling errors, my fingers really hurt while typing so i tend to mistype more often)
Even as a woman with fibromyalgia, that was my first thought. It’s an unfair prejudice that makes it even harder for men to be diagnosed, when it’s already a nightmare getting doctors and benefits agencies to believe you.
same here to be fair I mean men get this as well im in so much pain i can't even move some days so seeing that did irritate me as well it's like men with fibro are forgotten
Research fight or flight and the parasympathetic nervous system. Eating a cleaner diet and resetting the nervous system with mindfulness and meditation (5 mins per day to start). Drink pure water. Also spend more time in nature and be kinder to yourself. My symptoms dissapeared when I started doing these things... no symptoms for 13 years now, after suffering for 6 years with the condition, I also healed my interstitial cystitis at the same time, which I had had for 18 years. I have ADHD so these things are achievable for most people, if I can do it! What I have learned: The trauma response can cause the body to get stuck in fight or flight. When this happens the body cannot heal, all blood is directed to the muscles to fight or run. Cut stress out of your life, stop watching drama programs and horror movies, yes this means all soap opera`s too! Your subconscious thinks the drama is real and your body tenses up and releases adrenaline and cortisol. Cut off toxic friends, cut out as much stress as you can from your life. Learn to create healthy boundaries in your relationships. Listen to music with positive messages only. " The long-term activation of the stress response system and too much exposure to cortisol and other stress hormones can disrupt almost all the body's processes. This puts you at higher risk of many health problems". Change your environment, Reset, for better health. :)
I’ve had a girl tell me to my face that I’m a liar. My dad doesn’t believe me either. BUT I got a new doctor that does believe me and that makes all the difference!
I hate Fibromyalgia it hurts so much and I hate being judged for it by strangers who just see me and can't feel my pain, I got diagnosed at fifteen and was so relieved they believed me about the pain
Hi Eve, Thank you for writing in. Your frustration seems to be common with so many people who suffer with the same condition. I hope you found this video useful.
Try drinking 6 glasses of fresh organic carrot juice every day for 30 days, with some flaxseed and oats scattered throughout the day, and see what happens ! 😁
I was diagnosed at 15 as well, honestly its just so difficult to see my classmates achieving so much when some days i need others to open my water bottle.
EVE! God Bless you! How long had you been having symptoms before DX? I was 15 in 1980. Diagnosed in 88. But my ENTIRE LIFE , Docs believed my mothers accounts and observations and mine as i got older. I think I have it easy not having concious memory of not having pain. My spirit just went with it. But if u had life without pain prior, its Devastating. but my life had no time I missed ALOT of school. But graduated and did 1 yr College. Had 3 kids, 5 yrs apart took care of a lot more. Still do. Lol. At its worst, its worse than uncomfort or pain. But i just keep moving. Then... Soon as i feel i can pass out, im down. I like to be up at dawn. And crash shortly after dark. I sleep 6 to 8 hrs, when i open my eyes, i say GET UP. From the day in 88 when i just had my girst baby, and this Doc who was from Harvard University and was a participant in a ten yr study on FIBROMYOCITIS later changed to Fibromyalgia, and just Covering for my doc who was at a conference on the same. told me what it was I was his first patient after the study ended he saw and i had Fibromyocitis.. ! Blew my mind! Rheumatologist who confirmed it , told me " its not going to kill you. But there will be times you wish you were dead.. And i laughed... I never wished it, but felt like it quite often.. Lol
Look up “fibromyalgia central sensitisation” on UA-cam. This condition is starting to be understood. My cure came from sirpa in the uk (aka dr sarno tms in the us)
2115 virgo 13 please my mom who is 62 is having this curse of a sickness ever since 2011 until now !! Her pain used to be un believable out of this world !! Pls any tips on how to cope with it ?!!
Have you heard of Donna Eden? She had MS, now she doesn’t. For the past 30 years she has taught something called Eden Energy Medicine. A way to understand autoimmune & powerful self-care techniques. My videos explain more: start with the 10 minute Daily Energy Routine, at your own pace, for 30 days & see. Blessings, Nicola xx
My Fiancé has Fibromyalgia.. he felt so much pain.. He had to leave examinations because of it.. one day he told me we should just be friends.. I knew fibromyalgia causes behavioural changes and he was distancing himself in order to keep me away from getting hurt.. but I will always love him.. Through thick and thin
Aren't you just amazing! I had fibro when I met my current partner 3 years ago. I was in the thick of it. The pain also made me develop bipolar symptoms. He stuck with me through it despite me emphatically asking "are you sure?!" and his love and support helped me immeasurable. We are still together to this day and I am out of pain and out of mental health issues. Both you and him and any partner that stays I have utter respect for
@@TheLoveweaver I do feel very fortunate to have him in my life. In terms of getting better, I did so many different things. From exploring many different forms of exercise, seeing a naturopath about my gut and cleaning my gut and diet - there were foods that were making it worse. Focused on how I wanted to feel and just started getting curious on what would help me to get better. It has been a tough journey! Really exhausting and at many points I wanted to give up. I am so greatful to be where I am now.
I was diagnosed with fibromyalgia today after so many years of pain. I was told many times by doctors that there was nothing wrong with me and today was the first time someone believed me. Although i'm so relieved to know what it is, I can't help but cry thinking about how much it has affected my life already. It feels good knowing I am not alone in this battle though ❤️ Sending my love to everyone else going through this pain.
It's that awful point you find yourself too that's like: "everything in my body is screaming at me to lay down" but deep down you know you're still going to wake up feeling the same way. Only you'll lay staring at the ceiling, becoming increasingly frustrated at the fact you WANT and NEED to get things done, but can't. Constant limbo
Chronic pain is a type of ongoing pain that can be similar to the aches and exhaustion you might experience with the flu or after an intense workout. It can also come in flares that make you feel like you've been hit by a car. However, chronic pain is often invisible to others, making it difficult for people to understand how someone can feel this way all the time. This is often why I try to Escape into books or video games, whatever little distractions keep me from thinking about my chronic pain.
Hi I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure
I've had the disease since a small child, along with EDS- Ehlers Danlos Syndrome. Don't give up on trying to get a diagnosis. Change doctors if need be. No one took my pain seriously until I was 43 years. I'm now 54. All those years, I could have been supported. Not even my parents believed me. They would state..."Stop moaning you're a hypochondriac, and it's growing pains that all.
@@LarissaCadorin Absolutely I do. I’ve given up golfing, tennis, swimming, bowling, you name it. I just try to do some walking when I’m well enough and weather permits.
Yeah, that was a hard lesson for me when I came down with it 22 years ago. I was super active physically. The idea that doing something physical would put me in bed for several days was pretty tough to cope with. This is inflammation all over your body, including the nerves and brain which explains the brain fog. anything you can do to reduce inflammation (diet, fasting, herbs, low carbs) can help.
@David And you are an expert? I have an academic background in public health, epidemiology and medical research. I think that it may serve you better to keep an open mind because the truth is that there is more we do not know than what we do know about the mechanics of these kinds of illnesses.
Perhaps thats due to under developed muscles and atrophy. When your muscles hurt, they compensate, using wrong muscle for the wrong action. Hirt muscle gets used less and less and another gets burdened. To awaken them and reduce pain, u have to tolerate an increase of pain temporarily to retrain muscle groups to do the work they are intended to do. Its greuling but worth t he mental energy you put in and if maitained, it could be years if u would have to do it again.
I have the same problem most of the time. Don’t take this as me trying to fix you, you might’ve tried it already, but have you tried yoga? I don’t do the meditation part, just the stretches and I try to limit how much I do it but I did find that the stretching was a lot better for my pain. Dunno If it would help you or not :/ Just got someone asking me if I’d tried cutting foods out of my diet like they knew what i was going through so plz don’t think I’m trying to ‘fix you’. Just wanna offer some help :)
I’m one of those few men that have it. I’ve had it for around fifteen or so years. Mine has gotten worse as I’ve gotten older. Because I have no choice, I’m still working at a job that’s fiscally demanding, and of course, I eventually get punished for over working myself. Fibromyalgia, the gift that keeps on giving.....
Me too. Look up “fibromyalgia central sensitisation” on UA-cam. This condition is starting to be understood. My cure came from sirpa in the uk (aka dr sarno tms in the us)
This made me cry! Even though the pain is there, it really makes such a huge difference to actually know that there is a name for what is wrong with you. To know that there are other people like you out there! After years in pain, I was diagnosed earlier this year. To all of you living with this condition, I feel your pain, literally❤
I adopted a couple small dogs from the rescue center to encourage me to go out. Sometimes I manage to take them for a walk 5 consecutive days, other days I just manage to take them just very short walks around the block. But then on other days I can't manage to take them out at all. The longest I have ever had not taking them out is 6 days. But I did my research before I got them to make sure I chose a breed that did not need much exercise was happy to spend time inside and was not noisy or yappy. They are also great company and are happy to lay with me and snuggle when I am feeling low. Plus because I need to feed them, clean up after them and generally take care of them it makes me get out of bed everyday and keep moving even if I don't actually take them out for exercise. I understand that not everyone is in a position to own a dog ( I am very fortunate to live in a ground floor apartment with a garden) but it has deffinetly helped me. I used to have a cat before I had the dogs and even that helped as having a little fury thing to cuddle up to and talk to was very therapeutic.
Have you heard of Donna Eden? She had MS, now she doesn’t. For the past 30 years she has taught something called Eden Energy Medicine. A way to understand autoimmune & powerful self-care techniques. My videos explain more: start with the 10 minute Daily Energy Routine, at your own pace, for 30 days & see. Blessings, Nicola xx
this video makes me feel so seen. especially when she says like "you could be completely, absolutely fine one minute and then all of a sudden you can't walk" so relatable 💔
I've suffered CFS/ME for 26 years, it wrecked a professional sporting career at age 26 and also any advancement in my chosen working profession. At times I have almost given up but for raising a daughter by myself as a solo father so I know how people here feel as fibromyalgia has much in common with CFS/ME. Chronic pain has been a major part of my problems along with bone crushing fatigue. I have about 2 good hours in me per day. Shattered is not enough of a word. Much love and care from NSW Australia.
May the Lord comfort and bless you! I can't imagine what you must deal with. There are a lot of us out there in pain and barely able to function. Something has caused these diseases to multiply. God Bless and stay strong.
I feel the exact same hopefully you found some sort of recovery. Has anything helped you? my doctor wants to put me on Cymbalta and I’m hesitant but I’m probably going to start it soon
@@DMac-uv1bl Cymbalta didn't help me nor did heaps of other antidepressants. I've tried everything, guess for now I'll have to live with it. Thanks for your comment :)
I'm so fed up of people that don't believe that someone has this It can't be seen. If we could see this Physically there would be so much more understanding. My mum has this and she manages her pain. I'm very proud of her because she does so well considering she's always in pain.
I've become a hermit. .I've gotten to the point where I don't even want to get my meds from the pharmacy because just getting dressed and getting in a car to get there is a challenge. .she's talking about movement and I understand the importance of moving as much as you can but for some of us it's almost impossible. .when I over do it I'm down for days. .I'd rather do as little as possible and not feel as bad pain wise even if that means sitting or laying on my couch or bed. ..I watch a lot of fybromyalgia videos from all different kinds of people and I do believe that when your young you can accomplish more as far as movement and exercise but when you're my age, I'm 61 it's way more harder. .I remember when I first started noticing that my body was not functioning like it should and I would have aches and pains and fatigue along with little tell tell signs. ..it wasn't until after my last child at 31 and I was never the same. .yrs went by and I ignored and pushed through things that I guess I shouldn't have but I had never heard of fybromyalgia at that time It wasn't till I hit 50 that my body just said that's it. .your done. ..a couple yrs later I went to the dr and was diagnosed with fybromyalgia put on vicadin and my world changed. .I could once again be myself at least half way. .I could take walks ,go shopping, vacation, work, cook and yes enjoy sex and most of all breath normally until the war on drugs. .they took away my pain meds and tried to feed me depression meds and alot of other poison pills that I refuse to take. ..I am on gabapentin but want to get off them as well. .so now I can't hardly walk through my house without feeling like I need an oxygen machine and once again I'm on the couch. .don't get me wrong. .when I get mad at this horrible disease I get up and wash clothes. .wash dishes mop the floor and do little odds and ends knowing I'll be down again for 3 or 4 days But like we all do. .we get up and try again knowing what the outcome will be. .unless you have a truly empath with lots of understanding and empathy for a partner or family members then they do not understand. .there's no way they can unless they are walking in your shoes. ..this rant was not to say that the younger women and men that have fybromyalgia aren't in pain and suffering. .I'm only saying do whatever you can right now because I do believe it gets worse the older you get. ..at least thats the way it was for me. .
My dad is 50, he's had it since he was 20 and he says it's gotton slightly better for him. He goes swimming often. There was a time where he was wheelchair/bed bound, depressed, put on morphine.. but I think it's proof that it can improve for some people. I'm 18 and I may have fibro but I'm not diagnosed.. whatever I have I hope it gets better as I find ways to manage it and cope
Hello Baggerchic, I am also in my sixties, and I have have the same kind of fibro experience, becoming a hermit, and neighbors, acquaintances and friends thinking I am being difficult or antisocial. And saying to myself exactly the same thing: "I feel like I've been run over by a mac truck. " Mac truck, Mac truck, Mac truck. This has been my best description for all over body pain, since, like, forever. Except that it comes and goes, not constant, not predictable. Like getting hit by a mac truck, there is this ridiculous feeling of being "surprised." Some days I can feel good enogh to forget that I have limitations, and so overdo it and go down again for days. Pain meds are not a fix and not a "high." Pain meds make pain more bearable. If your doctor took away your best pain meds I suggest you keep shopping for another doctor who can understand that you have an illness not an addiction. If anyone will look past the headlines and hype about the opioid "crisis" they will learn that the crisis is about ILLEGAL acquisition of meds, or not taking doses as specified by the doctor. I "fired" several doctors until I did my research and found one with extensive experience with HIV patients. I thought he would have more compassion, experience and knowledge, and I was right. Although I have tried and still use various "complementary" pain management techniques, he understands that Vicodin is the best RX available for my condition as of right now. I wish for you to have better success in the future in getting the help you need and deserve.
@@realtinobrien2140 Thank you for posting Realtin.It is one day at a time for you and your Dad and indeed all of us with fibromyalgia.I know of a woman who has fibro.and recently her teenage daughter has developed it also.It must be so hard on parents to experience this happening in their own child.I find it helpful to try to remember what my sister,who is a specialist says..'The body wants to heal itself'..the body is always trying hard to heal itself.Finally..the kindest people I have met have suffered in the past.I would never have developed empathy without having gone through this.Being able to support one another is a priceless gift in its own right.Gra mor.
Cougarsamurai I was diagnosed with fibro and now with CRPS. What you wrote about it being a migraine all over, is exactly what I have said... Only with being on fire.
I don't know if it's fibromyolgia or myofacial pain but i have this kind of pain since i was around that age now the pain is mostly left side i hope we recover for the power of allah (god)
Shuti... I am with you love... began this painful journey at age 10 and now I’m 46. All we can do is take it day by day. I’m glad your still here to fight. Love from Texas ❤️
@@lymarie1974 36 suffering from chronic pain? wow what do you do with ur life? i' m 21 and i'm student but a lot of times i cant focus on school stuff beacuse of the pain, its so difficult
I've recently been diagnosed with fibromyalgia...the pain is very real! It's intense and constant. There are many many conditions that cannot be seen which people expect are real........FIBROMYALGIA IS REAL, WE DO NOT IMAGINE IT PEOPLE....
And we don't moan about it like others do because we are so used to it I didn't know everyone else didn't feel pain everyday. never thought about it to me it was normal 😢
I was diagnosed with fibromyalgia 18 years ago (my last pregnancy ) after a very difficult and sad pregnancy with my twins, I had a epidural with my twins first one I had with 4 births...my spinal cord was punctured which ended up leaving me paralyzed from my neck down for 3 days. I never quite felt the same afterwards , I started having a lot of stomach issues then found out when I went back for my 6 week check up that I had ( cervical )cancerous cells, which came from hpv( human papillomavirus ) to have a cone biopsy . I guess my son was about 8 months old when I started having severe pain in my hands and wrists so bad it would wake me up from sleep, it felt like I had tight hair bands wrapped around my wrist cutting off circulation and my hands and wrists would swell up, turn purple and I had severe throbbing pain. I was told it was carpal tunnel syndrome, then the pain started going all through my body. I thought I was losing my mind, finally I was diagnosed with fibromyalgia, it has steadily gotten worse and the older I get the more severe it gets. I have IBS and digestive issues, copd, asthma, the fibromyalgia has made me hypersensitive to touch sound smells , I have fibro fog, memory loss, it's affected my vision which is already bad since childhood, my hearing, my speech. I used to love to write and had beautiful handwriting now I'm lucky if I can even scribble my name let alone remember it and just like this text I've had to go over it time after time because I can't see and can't even speak complete sentences without sounding like I don't understand my own language. I can't and don't even want to have conversations with people anymore because it's hard and it tires me so easily. I have no attention span, fibromyalgia has robbed me of my life. I get so frustrated because people look at you like you're lying and say you don't look sick, it makes me so damn angry . I can't even walk straight most days because I'm so weak and in so much pain, I've also become extremely clusmy and have no core balance. I have CFS on top of it all, mornings are the worst part of the day for me it takes every ounce of everything I have to get out of bed because I'm in so much pain I can barely walk and I wake up so confused, don't even know where I am and what's going on like I've woken up from a terrifying nightmare. I just pray for a cure before I get any worse, older or die . So to anyone with fibromyalgia. I completely understand and you're not alone. We should all unite together for support and strength because only we understand ......SENDING OUT LOVE AND BLESSINGS TO ALL THE FIBRO WARRIORS 😍😘🤩
Yeah! It's really hard to deal with pain and other problems that come along with it like fatigue, mood swings, depression.the much more difficult part is how to explain this to others around us. People see this as an excuse and never understand and sometimes they even say that you have gone mad and pain is an excuse. God bless us all those who suffer this condition
My mom literally died to this illness, She had no will to want to live due to this illness. Thank you for posting this! because my mom never moved due to this!
I have a loved one Diagnosed with Fibro. The downside her specialist said it was the worst he has come across to date this was a few years back but a bit discouraging. Some of her family and friends don't think she has it others say it's in her head even doctors who said she should see a therapist and her own father forcing her to get a physiological check at the hospital. Either way to give you an idea of her condition she uses forarm crutches on a good day. Most the time she needs to be pushed in a wheelchair we don't have money for a scooter, etc. On a bad day shes in her bed pretty much crying in her own way sometimes her entire body is flailing around when shes having a really bad attack I mean what you see in the movies when someone just got kicked as hard as possible in the unmentionables. Sometimes her feet and hands mostly the tips will go so dark they are more black then blue. She spend a lot of time in bed not getting any sleep just to have a couple hours of energy. Even then sometimes her brain is so foggy she can't think at all and a lot of times can't even recall what happen the night before when this happens. It's one the hardest things I have witnessed and I love her so much and plan to be at her side till I die. I'm her full time caregiver. I really hate my country because they treat the disabled like crap we are over 50% under the poverty they give not even a cent for Caregiving yet she could have 4+ Hours of PSW Service but not if a loved one does it. We live a hard life financially and because of the disability. She has taken so many types of drugs, etc she has some that help but she had a lot of reactions to others. We be lucky to get some fruit and vegetables in our diets the government tells us to go to the food bank that is what their for. Gives you an idea what kind of place Canada really is when it comes to the Disabled. They make the Disability Support programs like their temporary to help get you back to work yet not everyone can. To make things worse she was becoming a Teacher in Uni 2nd year when this all struck her. Guess what she wanted to do? She wanted to help children with developmental issues and she was already an teacher assistant for it. She is one the most postie people I have ever met. I'm Sorry those with Fibro this might been a bit hard for you to read. This was more for those outside of Fibro who don't really know what it's like for someone who suffers on the more extreme side of things. It's made me really angry for others who have Disabilities in Canada to stand up for them and fight for them. A lot of times on my spare time I spend it helping others. It's really change my prospective and next time you come across someone with a disability don't just look the other way ignoring them thinking that would be rude pretending they don't exist. Instead think of how their day to day life must be. Do they get enough food? Are they being helped enough? Etc. It's time we stop ignoring people with Disabilities even more so those with invisible disabilities.
Hi I understand I have severe fibromyalgia and ME. I got a scooter from the mobility trusts web site, Email them about my condition and detail of my finances they gave me a beautiful scooter worth £3000 it took me about 8 months to proof I need it by email then they sent a occupational Therapist to come and assess me and then I got it in a week. It was a great blessing to me can only use it on a good part of the day.
Kane Hart - Let's Plays I’m sorry to hear what you all go thru on a daily basis. I say “you all” because even tho you don’t suffer with fibromyalgia you care for someone who has it so you know exactly what it is like. I hope one day the scientists will find something to help us. I am Tired of being tired and tired of being in pain.
Kane Hart - Let's Plays 😭God bless you ...We need so much more people like you in this world 😰I wish I could post your comment everywhere I stop social media long time could handle any more I cannot stop crying what you wrote just touched me .. Thank You........ xxx💜
My girlfriend has this and it's honestly the most cruel thing you can imagine. At least cancer kills you, this vicious disease let's you just live out a miserable life in almost constant pain. Bless her she stays positive and together we find the joy we can in life but this really does prove there is no God.
It doesn't prove there is no God. I would read up on the topic of God and suffering a great deal more. If anything it proves that there is an enemy, a Satan who will use anything and everything to attack us, including our bodies, our health. Satan exists to kill and destroy. He is in his last time of having any control and is very angry over it. If he can steal your soul from having trust in the living Creator he will. Don't let him. God will be with you through your suffering if you let Him. I have severe chronic pain and fatigue. I know what your girlfriend is suffering. I have a genetic crippling neuromuscular disease called CMT in addition to Fibromyalgia ♡ I pray you find peace and healing.
@@joannepereira5080 I'm so grateful to hear this, so thankful I gave you something good that I can still help someone, even though I am stuck in my home because of a crippled body. You gave me a sweet gift of words that encourage me also. If I can help someone else it gives me renewed purpose! I have 4 grown kids and many grandkids and I want to inspire them to keep persevering and not to lose hope in an often dark world. Their Dad died on Father's day 2018. We had divorced in 1992. Their was some years estrangement that took many years to be healed so they felt they lost him again and way too soon. I couldn't be with my kids for that except through words and I don't know if it was enough. I have a son who has really struggled! But you gave me hope to keep encouraging people. If I can just help 1 person have hope for 1 day it is all worth it. God is still working miracles through everyone of us so we must keep persevering. Praise God!! Much love and many blessings to you dear and Thank you ♡
i can't express how comforting this video is. my pain began when i was 11 and worsened over the years and i went from being on the track and field team, volleyball team, student council, chess club and debate club to having to drop all of my sports teams and barely being able to go into school as most days my pain wouldn't allow me to even get out of bed. this then led me into a very dark mental place and feeling isolated and hopeless and as my mental health declined the more the doctors i saw questioned my pain despite it pre dating my mental health struggles. it took me 5 years of going to countless doctor before i got my diagnosis on my first visit to a specialist and i remember my mother and i sitting together in complete shock at finally having an answer. i remember getting home and crying in relief of finally having a diagnosis while then dealing with the knowledge that i didn't really get any answers and i now had to slowly work on it. thankfully in the nearly two years since my diagnosis i've met others with fibro and have slowly become more active and feel much better mentally and have more of a handle on my pain. it is incredibly comforting to hear other people's stories and to see i am not alone so thank you, and to anyone reading this who feels alone, there are others going through the same thing who would be glad to help if you reached out, you can find a support system ♡ believe me.
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I’ve suffered from fibromyalgia for 11 years now. I was only 20 when the symptoms started and now at 31 I feel like I’m 91. Currently sat in agony as my knees have seized up for no apparent reason 😭.
When jess started explaining how some people doesn't believe it's real brought me back to all those doctors that said the same thing. Long story short hearing something relatable makes me cry out of happiness knowing I'm not alone.
Exercise? When IF I can drag myself up to complete one task in a day, I'm so worn out, and riddled with pain, I'm done, and can't move anymore. Like a big pile of bricks on top of me. When I do get a little energy to do something, I have to do things that need to be done. I don't have people to do anything for me.
I also dont have people to look out for me the constant fatique and pain kills me everyday dont even know if i have fybro . But pain in my body long time and chronic fatigue
Thank you so much for sharing your stories. Just received diagnosis, although had this pain for 7 years on-off. Couldn’t dare to see doctor in case he says “ it’s in your head”. But decided to see doctor today so that I have a “ NAME” for this pain so I don’t have to keep explaining why I my muscles hurt. Allah is so merciful. ❤ All praises to God. At least I live in an era, where I have “ NAME” for this pain.
I have fibromyalgia. I'm 22, and barely have a social life anymore. I had to leave school and can't find work that wont make the pain worse or unmanageable. I hate this
Blair Thompson Yes, i completely understand. it took many, many years for me to be diagnosed. I’m much older than you, but I know people your age with Fibro. Hang in there! And stay away from any pain killers. They only make it worse. Try working on your diet and keep moving. Essential oils are very helpful for me. I use frankincense and myrrh for muscle pain and doeterra mitomax and their deep blue rub. Good luck and God Bless. ❤️🙏
Hisservant S thank you!! I use medical marijuana and it helps me. I also use cupping as well. It helps with my tight muscles. I’m so glad essential oils helps you 💖. I think essential oils can be so helpful. I don’t take any pain killers, they don’t really help the problem. Sending you lots of positive vibes. We aren’t alone 💖
Same here, I interrupted my studies in University because of this. And I can’t even plan for the future because working or studying long-term takes so much resolve, fatigue and pain. I don’t know what the future holds...
My heart goes out to every fibro sufferer. I have severe arthritis and the pain is hellish on and off, but at least I don't have the add on "bonuses" that fibromyalgia gives its sufferers. ☹
I was just diagnosed with fibro and it's incredibly releaving and scary at the same time. I'm 21 and I've barely lived. Now I have no idea how I'm supposed to have a normal job one day. I'm currently in rehab trying to lean how to live with the pain. If anyone is in a similiar situation feel free to reach out and we can be there for each other
I'm 19 I just got diagnosed. I have played tennis my whole life and am training to be a chemist where we have labs for hours on end standing. It's been terrible. Idk how to deal with this tbh I feel dejected especially because fibro has struck me when I'm so young. I'm sorry you feel my pain. I hope you're doing goof
It is so relieving to see that I am not the only one going through this pain. I think the most effective thing that helps me get through my days are having a sense of humor. I am lucky to have kids that get me when I am down and out and also love to join me in the humor of the situation because I know if I take life too serious, I would not survive this illness. I hope that someday I will be able to find a mate that will love me and accept me for who I am.
I had a fabulous sense of humor. I was witty and made others laugh. Now, 50 years of INCREASING pain has made every waking moment hell. Nothing is funny.
It steals life and joy from all who suffer and those young kids who will start to suffer soon. I live in US and they have really started listening but, theres no help out there,but pain meds. Which they don't give. There is someone for everyone, my sons pray daily for mates. Vitamins d and b are very important. And anyway you can get rest. Even when sleep is not to be found
Well I am a 70 yr. old male and I was diagnosed with it a couple of yrs. ago. I also have arthritis, heart disease and being tested for cancer. This video was very helpful, because I feel a little more sane now knowing this stuff is real and it REALLY HURTS. I feel like someone is beating me with a baseball bat. I can't sleep anymore because I Can't get settled down, there is no comfortable position to get in. Thanks for the video, I don't feel so alone now.
It took years to get my diagnosis thanks to a GP who believed me and sent me for referral. A Dr in the same practice told me outright that he didn’t believe Fibro was a real condition … sending love to you all.
I’m so glad I was recommended this video. I’m 21 now, and have had fibro since 18. And I used to be a dancer and it’s so hard not being able to do what I loved most as much as before and having trouble even walking many days. I felt so ashamed of it and hid it from everyone, but recently came forward through UA-cam when I was feeling really emotional about it. I shared the video with friends/family so they understand and so that hopefully if anyone else has a chronic pain disorder they won’t feel alone. 💗
I know when I started dealing with fibromyalgia. I was 13 and had just started to experience the pain of puberty. Then everything began to hurt and ache, things began to burn and feel like every muscle was tearing itself apart. I went from being somewhat active and doing things, like walking or biking, to laying down on the floor and hoping for some relief from the constant pain. I'm 31 and, even with medication and physical therapy, I'm still in near constant agony. I hope some day there is a cure for all of us suffering from this, because this is a personal hell.
Sorry to pee on everyone’s fireworks here(IM A MAN BTW)but I’ve had Fibromyalgia for nine years now. It came on following a kidney transplant then gas gangrene/sepsis/stroke/ type 2 myocardial infarction and several weeks on ITU/HDU then a ward. Men get this too unfortunately !
I just wonder. So is more pain when you walk then sites still? I have to stand up because then is less pain and walk around ,but not to long then its foot pain.
I would say the most pain I feel is when I have to stand still, like trying to stand and cook at the stovetop, or waiting in line for meds, stuff like that. Basically, everything from my lower back down to my ankles feels like it is seizing up and there have been a few times where I ended up sitting on the floor because I literally couldn't stand anymore.
It's such a debilitating condition, yet the sufferers i hear from and speak too, are some of the most lovely people imaginable. I've had fibro 8 yrs, and my condition is getting worse. But hearing from people like this, gives me hope.
My fibromyalgia came on in my late 50’s. Getting medical help is like I’m talking in English but the doctors don’t understand English. They just order tests after looking at you for months and years. To me it has many symptoms. My opinion is my nerves are screaming from the tiniest movement. Like snapping your fingers hard and the nerves are raw. The pain is creepy, it is severe and I can envision the nerves, vessels, muscle and skin being damaged from the movement like I’m crushing and tearing my internal nerves, muscles, and pretty much everything inside. I am stiff and my ankles, legs, hips, elbows etc., and it’s sporadic. I can’t stand or walk when I wake up with pain, cramping, stiffness and I kind of shuffle for awhile in the mornings. If I sit too long everything kicks in and I can hardly get up and move because I’m so stiff. I just turned 63 and can’t believe I will have this forever. I’m sick of it! It’s embarrassing when I’m in public. I hope I didn’t pass it on to my children.
Our Fibro was caused by the sever trauma to us in childhood. We have DID and seems most that do have Fibro. Where finding that the vagus nerve seems to be the main cause of Fibro. If the vagus nerve is affected it causes so many many issues. IBS, ANXIETY, INSOMNIA, FIBRO, DEGURATIVE DISEASE. ETC. Keep up the fight and hugs to all who suffer from Fibro and illnesses like this.
I have had this crap since the 1980's. It has gotten worse over time. The sense of the quality of pain changes too. Rug burn, sun burn under the skin, electrical prickles, deep aches, rubbed with steel wool, sudden stabs of pain..these are some of the sensations I feel. The mental/emotional mix is another mess entirely. Hate it. It has limited my life possibilities.
Hi I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure
Bawling after the intro. This is the most accurate anything I have ever seen on this!!! Thank you, thank you for this!!!!! Diagnosed 8 months after 2 years and a nervous break down.
Senura Kaduwela thank you for your warm thoughts and blessings. But what some people don’t understand is that fibromyalgia can’t be cured. You will never get better from fibromyalgia. You can only manage pain and try to live as happy of a life as possible :-)
Love this video, I'm 16 and have been living with fibro for as long as I can remember. I wish I could go to school and see people but it takes control of my life. Slowly I'm trying to get better but stress doesn't help at all but stress is a very common thing for me. I just feel unlucky
Whenever pain comes the first thought is always that death seems like such a desirable option. I don't know how people live with chronic pain for decades. It's been two years for me and I'm already so sick and tired of hurting all the time😢
All I did was scream out "my back!" It was so painfull and the nurses just ignored me not giving me anything not even a hot pack and the doctor only just walked in right before my daughter was arriving. Luckily the labour was only 3 and a half hours though and she came out half asleep!
Periods are worse than birth sometimes or just as sore for me. Even other day when my Raynaud's flared up I told my mum if rather give birth than feel that pain coming in from the cold 😢
I was diagnosed at age of 5yrs old im.now 33 and i cant explain how far ive come.. i can work ok only so many hours but ive come a long way.. ive even joined a gym which gives me so much more energy.. never left fibro define who u are.. fibro has been my life but it will never take my life anymore.. love to u all 💪💜
I'm crying right now as I'm viewing this. I've had this ailment for 7 years now, not a day without pain. I still work as a preschool teacher, but it's getting harder and harder for me.
Absolutely in tears. I keep watching this for comfort. I wish more people could understand what we go thru. I just feel like I’m dying 24/7 or that it would be better for me to not be here as the life I was working towards is now forever out of reach. I can’t stop grieving. How do you get to that acceptance. I haven’t achieved it yet...
Yes thank you for sharing this I wish more people would understand about fibromyalgia affects your whole life that makes you not be able to sleep people think you're crazy sometimes it's so bad it makes you cry it makes me depressed that makes you want to give up on life altogether at times when the pain is so bad you don't think you can take it another day
I was diagnosed with ' fibro - demon ' when I was 17 and trust me, my life kind of plummeted deep down to hell. A body so weak and painfully torturing that I fell into deep depression, anxiety and had to quit my degree. 7 years have passed and my parents still don't believe this exists and want me to do more, more and more. I get so exhausted sometimes when I lie down to sleep, I wake up after 10 - 12 hours of deathly sleep. This condition is a sort of disability - a hidden slow poison working your body down like crazy and it is INVISIBLE !!! I want to overcome this crap.
I am so glad you made this video. I am in years watching as I can feel exactly how the ladies are describing it. Till now I knew the pain but not the name. Thank you for letting me know what I'm going through. Thank you. God bless you
I’m 16, I’ve been diagnosed with fibromyalgia a few months ago. I had to stop my passion of trapeze due to fatigue, lack of strength but mainly tender points. When I told my doctor about all of my symptoms, she laughed and sent me home telling me I’m a hypochondriac. I lived on overdoses of painkillers for months. I find school difficult due to fibro fog, I have lost friends since I don’t have enough energy to talk. No one understands the extent of pain and everything else I go through. Even my best friend kept telling me I’m not in pain and I am looking for attention. I have overdone myself almost every day over the Christmas and I can even move anymore. I am sick and tired of people telling me that I’m only young and to get over myself but I won’t let this condition destroy my life I have so much to live and experience
*I hope some of you will see this message. I started to have Chronic Pains since I was 9 years old. I am 17 now, finally battling with Chronic Pains, Fatigue, Headaches, EMF Sensitivities, Plantar Fasciitis, Unknown Illness, ++++ Etc... Recently, I discovered that there is a * clear link * between Fibromyalgia + EMF Sensitivities + Plantar Fasciitis, due to lack of Iodine. Because of " Iodine Deficiency ", somehow our body behave this way, due to lack of it. If you see this message, please check into " Iodine Deficiency ", because it saved my life. Now most of my symptoms I described above is gone!*
Google or do a YT search on the FM/a blood test. It’s a blood test used to diagnose fibro. There’s a clinic out in California trying to get a trial going to test a possible treatment. Maybe some good news coming I hope!
I like the meme sort of things I see on PInterest like top 10 things not to say to someone with Fibromyalgia. Or other more sarcastic ones that you can print off and give people, so they know it’s not just you saying something.
32yrs plus of fibromyalgia oh my the pain is excruciating. I've said many times to GPs family work. Imagine being trampled on buy elephants or run over by a 30ton truck back and torch then having yiur body wired upto a lorry battery and keep being zapped by the constant current. Burning water trickling on yiur body thousands of ants crawling up and down . Then seizing up like you have concrete inbyiur body so so drained fatigue you can just struggle a sentence together that's if fibro fog let's you remember a sentence and who yiu are. It's so scary at times. Now I just live with it. At time crying with the pain the pain if even clothes on me and even a bed sheet. I'm freezing I'm burning pounding headache but still just holding down a job ir I'll go insane and I need the money as I rented private home. I live to see my grandson I cry many times as I can't do daily things with him I've learnt now not to punish myself and my young grandson understands my pain he goes there a car space nanny with the wheelchair that will help you nearer the shop or use yiyr stick nanny to passage ball itsvok we can play that way. 💙 i liv for my grandson and son but oh my yo be pain free would be like winning the lottery. Bless you all. I'm bearly 59 i hope one day there's a cure. Xx
I don't have fybro, but I've lived with harsh pain my whole life and I'm 36. It will continue to progress in my right leg too, due to my disability. It's a horrible thing to live with. I hope these movent sessions help them. J.
I've just lost my beloved job of 15 years because of my fibro. Retired through ill health at 55 because I need to walk with a stick, can't carry stuff, can't cope with stairs etc etc Now I'm having to apply for benefits to live on and pay my rent. Every day my pain takes me to a dark place that makes me feel life isn't worth living anymore. No one really cares because they don't see whats wrong with me. I'm all alone, and fibro has stolen my life.
@Anne Hedonia my heart goes out to you. I wish YT had private messages too so we could communicate. Your email made me both happy and sad, happy to know someone cares but sad for all you have been through. Gentlest hugs and much love. x
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With lots of love to all.. I am also suffering with the condition, don't remember since when but diagnosed 7 years back... I know its very difficult but possible to live as normal as others.. I am a physician, a mother of 2(one of which is CF)... Taking care of home and outside affairs.. I am sharing this to encourage all of us.. I know it hurts, it hurts alot, people say you are a dr and you take analgesics.. But at times I can't help it as I want to show myself as good and strong as people and family think of me....the thing helps most is to count your blessings.. ❤️
I was diagnosed when I was 11. I fell on my back in a garage on a part where the concrete was broken and half was raised up about 3 inches and that's when it triggered mine. Unfortunately it's also hereditary, my grandmother has it, her son (my uncle) got it, skipped my mom, skipped my older sister and got me. I'm now 25 and still living with this invisible illness. I move around like an old woman and I would get up and have to walk around groaning I'd jokingly say I'm too old for this until one day it dawned on me, I'm too young for this. To make matters worse I look young to everyone, I look 16 or 18 at the most to everyone, so I appear 16, I'm legally 25, yet I have the body of a 90 year old. It's very confusing to be 3 different ages. I hate not being taken seriously and this makes matters worse. I can't stand when people say it's in your head, if they lived in any of our bodies for even one hour they'd want to kill themselves. We're not weak because of our pain, but we're actually stronger for still trying to live and be active with the pain plaguing our bodies on a daily basis. I told my mom I had a low pain intolerance but she reminded me that I actually have a high pain intolerance because if anyone felt the pain I was in at that moment they'd be on the floor crying and screaming. It really helped me put my pain into perspective. When I was diagnosed I asked my dad if there was a cure or for how long I'd have it, he didn't hold back and told me the truth, that this was something I would have to deal with the rest of my life, but when I was in pain, to take the medications I needed right away instead of letting it build and build until I was in agony. By telling me these things simply I didn't build any fanciful hopes of not being in pain, but instead of how to manage it. I had and still have a good support system. Find you one as well, and know you are strong for enduring this pain, the days of major weakness that you can hardly move an inch without being out of breath and feeling as though someone has taken all the blood from your body and is trying to drag you down through the center of the earth. You're doing well. I've tried to explain what Fibromyalgia is to others and failed in the past, or simply said I have it and they're like, oh I'm sorry but you can tell they have no idea what that is. You wish they could grasp what that means for you. Then one day I figured out how to explain it. The cold. You know how the weather effects us greatly, especially the cold. So when a normal person gets cold, their muscles contract and tighten, (I show them by tightening my fist) but then when they warm up, their muscles loosen and that's it (release fist slowly) (Now tighten your fist again) when someone with Fibro gets cold, their muscles contract, and tighten, now you've warmed up, (keep your fist held tight and try to let it go but resist and strain against from clenching your fist) Our brain says to let go, but the muscles don't receive that message, and confuses the brain, causing pain in our muscles that won't listen and vice versa. This is the best way I can explain it. When I've had people do this with their fists to show how painful it is you can see a lightbulb go off in their heads and they get it, just that small idea of what it means to have a chronic pain disorder that effects every muscle in your body.
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I’m in the US and would love to find a program like this. I feel so isolated and misunderstood. I’ve been going through this after a MVA in 2010 I suffered from whiplash. About two years later I noticed this “strange” pain during a massage. Fatigue is overwhelming at times.
I’ve been battling ankylosing spondylitis for nearly forty years, and fibromyalgia for the past ten or so. This year of 2024 has been my worst ever so far as physical pain is concerned. Any doctor who makes light of my pain- you’ve all heard that “it’s in your head, you’re overweight, you don’t exercise enough, everyone with an autoimmune disorder automatically thinks he’s got fibromyalgia”-gets fired immediately and replaced with a human being. I know this video is five years old, but I wish all of you ladies the very best in compassion and care from your medicos and your loved ones. God bless and keep all of you. Rest well tonight, and feel free and light on your feet tomorrow!
Imagine having bipolar 1 disorder and fibromyalgia, lol my whole family thinks im crazy , and not a single person believes me, and yes i am tired, i am cranky all the time, im depressed.
I no longer have fibro or bipolar, but for a few months, my fibro got so bad that my depression turned into bipolar. I can certainly empathise. I found that loving all facets of myself during the highs and lows helped. I hope you have some people who can love and respect you as you are. If not, I am sure there is a community out there who can.
It's easy when you have a mental health issue for them to discount anything else you say. I was misdiagnoised as having bipolar (turns out I have aspergers) and pretty much anything I brought up it was 'lets increase your meds' and God forbid you have emotions and then they assume its signially another breakdown.
Omigod, it is so validating to hear someone say for 10 years doctor's said "it was all in your head," because for me, it's been 7 years. I just got diagnosed this week.
I was diagnosed with Fibromyalgia in Middle School. Chronic pain, nausea and dizziness, almost 24/7. It's unbearable and the worst part is my periods tend to "blow out" all at once and its extremely humiliating. It's like I crapped my pants. I get severe anxiety whenever I try to leave the house.
I'm going on #35 years of no help or no one believes I'm telling the truth about this... So I made up my own streaches ... Sometimes I can do more.. some days I lay in bed... I keep on moving.. and trying to lose weight.. I've lost#7... Myself how I fight the depression... ???? I choose joy... when I wake up.. before I move and know if it is going to be a good day or a bad day.. I just make it in myself that no matter what... Today's going to be a good day 😎👍💓🙏🏼
jenniferrobinson2000 That's me. .and then trying to move around like that you feel like your body weighs 2 tons. .seriously. .it's like its all you can do to drag one leg in front of the other and hope you make it to wherever you're going That's my experience. .so all this exercise that they keep telling us to do. ..well maybe for some, but I believe it depends on the severity of your fybromyalgia. ..everybody is different with different pain and pain levels. .some people can still hold down a job. ..I couldn't work 5 minutes and I would drop right there. .. I never really had the severe burning. .I do have it on the back of my head and that's bad because you can't even lay on a pillow but that comes and goes. .my feet burn more than anything And hands ache alot. .just holding a cell phone for to long and I suffer for days But I do understand how you feel. .you're not alone
Burning feet,fatigue, stabbing pain, itching, daily migraines etc. It never ends. Moving is good but true light exercise leaves me unable to move. I tried PT for the back pain and it caused more pain than it helped. They gave up on me and were genuinely sorry it didn't work.
My mom had fibromyalgia (now passed away) I have fibromyalgia (diagnosed 33 years) ago and now my 22 year old son has fibromyalgia. Fibromyalgia has been around since the 1800's~you would Think the medical community would have SOME IDEAS by now!
It’s so painful and depressing! One day you can be fine and two days after can’t even get up from bed. I have cardio issues and fibromyalgia. The struggle is REAL! 😪
I've had this now for 40 plus years. Mine was early trauma as child, and a car accident at6 flew out of car door onto Highway. As a teen I suffered everyday only to find at 19 I had auto immune desease, lupus, know none of my bloodwork shows much on certain days of the month, but in a fybro flare my blood work is crazy. I have been tested positive for R.A. and 4 different kind of arthritis. It's my body at war. I had momo as a teen very light case, but it feels like I never got over it. I always say my body hates me! That's exactly how it feels. I've had drs. Tell me Im wierd for 40 years. My hubby didn't believe me until he heard it from dr. Himself! He also didn't believe one day I was ok and next wham. I'm sorry but God forgive me I prayed for just one day he'd know what I was feeling. He has been diagnosed for last 10 years. I don't know what brought his on. My sister and I had not seen each other or talked for 5 years. Our first words were I have fybromyalgia. My granddaughter has it at 27, my daughter says she's in pain everyday but not that bad,so she says she doesn't have it. I think moving everyday is crucial but know your limits! Because fybro gets worse over the years. Enjoy every moment you can when you can, because there may not be anymore. When the worst of my pain 15 years ago air across my body put me in tears. The gravity on our planet makes me cringe 4 times a day. Sleep is impossible, but thanking God they are doing research daily to figure it out. Drs. Aren't taught how to treat it! That's a specialist job. So don't expect help from them. I tell my dr what I need and she helps with what I suggest. I was on mega amounts of pain meds 14 years ago but that was all taken away as most know. The stats are climbing daily from those diagnosed so why aren't thier fybro drs?I have sent 15 plus people to drs because by their walk stance and breathing I know they have it. I call it the fybro walk. It doesn't help anyone to know they have it when I can't help them. I've lost relationships and jobs over fybro. Trying to keep the faith and live in gratitude daily,minute by minute when your curled in fetal position rocking yourself to just ease pain, from no where. I really think aliens infected us with this insidious ailments. I know your pain, keep moving forward be your own best friend, keep daily journals of pain,times next to prayer level and write at least 10 times a day. Documentation has saved me. I've lent out 4 years of journals to med student working on doctorates. We all sound like same women, I've had my teeth pulled because fybro set in my jaws. Don't do it please. So what can I give you to help. Get support, stay away from chemicals, no alcohol ,or sweets or smoking, or caffeine even though caffeine keeps you going, it really hurts in the long run. Drink plenty of water, when you can't get up try and record whats happening. Keep your mind on gentle things,good music,keep sound down. Truthfully I believe is put yourself back in the womb. Quiet dark place soft sounds, floating in water warm best and gentle fragrance. My pain can be set off by detergent iles. Hair dryers can be helpful to put warm air on body. Air conditioners can really do damage, it's hard for fybro people to regulate body temperature. Have colrs you enjoy around, declutter everything around you. Cleaning is hell, have just a few items you can control. Dishes are killers for me. When you feel ok cook lots and freeze it. Somedays putting food in microwave is too much. Try not to lose your passion in life, impossible right. Don't give up, breathe thats something fybro people don't do, we hold our breath! God be with you all. Pray answers come quickly
I’ve had it 23 yrs. Thank you for this. There’s got to be something we are missing in our bodies!! Prayers for all you beautiful ladies 🙏🏼🙏🏼🙏🏼🙏🏼 Mine was triggered by spinal meningitis!!
*I hope you will see this message. I started to have Chronic Pains since I was 9 years old. I am 17 now, finally battling with Chronic Pains, Fatigue, Headaches, EMF Sensitivities, Plantar Fasciitis, Unknown Illness, ++++ Etc... Recently, I discovered that there is a * clear link * between Fibromyalgia + EMF Sensitivities + Plantar Fasciitis, due to lack of Iodine. Because of " Iodine Deficiency ", somehow our body behave this way, due to lack of it. If you see this message, please check into " Iodine Deficiency ", because it saved my life. Now most of my symptoms I described above is gone!*
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
4 years ago I was diagnosed with FIBROYALGIA and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including FIBROYALGIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for FIBROYALGIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now totally free from FIBROYALGIA , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I so fed up with people mocking it. As the new "bad back'" however I did get a diagnosis from a consultant. I was just grateful to find I was not cuckoo.
Twenty plus years, with the pains and exhaustion I have become so clumsy, inept and isolated that l very rarely see anyone or do anything. l've lost interest in everything, even personal health and eating. l managed a tailor's in Beverly Hills and met Sammy Davis Jr., Barry White, and many many others, in their own homes. I toured the 'states, Canada, Argentina and Europe with rock bands. l played football for hours with my two sons, often four or five days in a row. One day/week/month i couldn't get out of bed. l don't feel sorry for myself but l am envious that you're all so positive and active and l do share every moment of happiness with you. No more alcohol or weed, no more Zomorph, Diazepam and just a few co-codamol now. l know meditation and relaxation well, but when l'm crawling out of my skin, getting through the next five minutes is my only concern and everything else goes out of the window. My heart goes out to all sufferers, whether it's F..M.., M.E., Epstein Barre, C.F.S. or whatever. Today l made it to a "Drop-In coffee and cake morning" for the first time ever...I was just going to say 'l'm lonely'. l was the only one who showed up. All l can do is laugh to myself. One day it'll all make sense.
I'm in tears watching this...I'm a "fibro warrior" too. No one understands, or cares about what I go thru on a daily basis. Sending love & light to all my fibro sisters & brothers💜💜💜
❤
Even though majority of sufferers composed of women, men have more sharp pain like me.
🙏
♥🙏🕊
Have you heard of Donna Eden? She had MS, now she doesn’t. For the past 30 years she has taught something called Eden Energy Medicine. A way to understand autoimmune & powerful self-care techniques. My videos explain more: start with the 10 minute Daily Energy Routine, at your own pace, for 30 days & see. Blessings, Nicola xx
I've had fibromyalgia for 21 years and what has frustrated me most has been the medical community. I've been to specialists hoping to get referrals for the right therapies (not necessarily medications; the meds are horrible), and the blood work would come back perfect and they'd act like it was due to my 'depression'. They would not even give me the chance to explain why that is/was not the case. The pain is real; and yes depression can make things worse, or you can get depressed from living with pain 24/7, but please hear us out, take our pain seriously and guide us, help us.
What are the 'right therapies' you should have been referred to in your opinion?
Had???
Amen to that I totally agree with you.I wish ppl would take it seriously.
Beetroot Bonanza : We do not know what would be right. What we know is that help, if any, will definitely NOT come from people with your attitude towards pain sufferers.
Vicky Manson I agree I have it for 30 years I think I have it longer from childhood the last few years I feel every day I’m dying slowly & is getting closer I have no more fighting on me my husband & most of my family don’t really try to talk about or get informed I move to my spare room & I don’t get out of my room anymore I leave day by day every day is a fight with my mind depression & anxiety become extreme.. I become allergic & sensitive (MCS) to almost everything I can not smell anything even food & I become extremely sick become allergic so no pain pills & no inflammation meds or any depression or allergies meds or sleeping pills I take nothing the pain becomes so unbearable , the doctors they don’t even want nothing to do with me Soon’s they know they cannot prescribe any meds , they ask me why I’m there they don’t care .. I feel for you & everyone else I pray & hope soon will be better for everyone & they find a cure or they care enough to help everyone with Fibromyalgia in medical field Soft hugs 😔💜🦋
The worst thing is that most people think that "It's all in your head" or that "You're just being weak"... :'(
Exactly 😭
I find that to be one of the worst parts of this illness. Just remember that Lupus was seen in the same way not too long ago. They were told that it was in their heads also and we all know that it's a serious disease. Hang in there.
Amen. It's even harder when your family doesn't understand or believe you.
Doctors laugh at me and disability denies me help, now I am homeless and can barely move. God help me!
That kind of lack of support just makes things so much worse. Occasionally, my husband will become frustrated with how I have had to change how I do things or how restrictive my limits can be now and try to pull that crap on me. I remind him that I am not now, nor have ever been some weakling. I may have a chronic illness (or four!), but I'm still a badass bitch who regularly pushes myself through pain that would knock him on his ass and keep him there! Just because I'm not as good on my feet as I used to be doesn't mean I can't stand up for myself! 😁
Usually I am crying from the pain of being alone and isolated, with this videoI'm crying from the relief of mutual understanding and community
Changing Tides try high dose of CBD oil.
Exactly how I feel right now, I’m hysterically crying
me too... I cry all the time cause no one understand. We suffer with tears and silence. Love you all
I got it at 9 and i have 80+ more years of this disorder. Just thinking of that kills me
That is one of the worst effects of fibro, that it isolates you. You don't feel like doing much and when you do, there are limits which slow you down so you become a drag on anyone with you. You're no fun to be with. It's a lonely disease.
I've only watched about 15 seconds and I'm already annoyed that it's called "women in pain". I know this has often been characterized as a "women's disease" (which is probably why doctors still don't take it seriously) but as a man with fibromyalgia I'm already angry that the BBC managed to misscharacterize it.
Me too
MEN have fibromyalgia at the same rates as women! The difference is men generally never report it. some men won't report it because of the stigma!
seriosuly one of the hardest things to deal with yet, i'm 21, male and have crohns, osteoperosis and fibromyalgia and due to how long it took for doctors to diagnose all of these, most of the times all i heard was get this guy to a psychiatrist or go to a temple and do stuff like prayers and it'll. Being an athiest it was super hard for me to stay calm during all of this and a lot of times i've been doubting myself as well as to if i'm crazy and just making it up in my head. i seriously hate it whenever a doctor didn't understood the problem and simply stated i have depression or i'm crazy, once i had so much pain that i was crying in the hospital emergency section and i felt more pain while being touched, so the doctor said take me to a psychiatrist (again) and i was so pissed off as to why if they can't figure out the problem they just label the patient as a lunatic (sorry for the spelling errors, my fingers really hurt while typing so i tend to mistype more often)
Even as a woman with fibromyalgia, that was my first thought. It’s an unfair prejudice that makes it even harder for men to be diagnosed, when it’s already a nightmare getting doctors and benefits agencies to believe you.
same here to be fair
I mean men get this as well im in so much pain i can't even move some days so seeing that did irritate me as well it's like men with fibro are forgotten
I'm crying so much right now. Only the ones who live in chronic pain can understand the struggle.
Research fight or flight and the parasympathetic nervous system. Eating a cleaner diet and resetting the nervous system with mindfulness and meditation (5 mins per day to start). Drink pure water. Also spend more time in nature and be kinder to yourself. My symptoms dissapeared when I started doing these things... no symptoms for 13 years now, after suffering for 6 years with the condition, I also healed my interstitial cystitis at the same time, which I had had for 18 years. I have ADHD so these things are achievable for most people, if I can do it!
What I have learned: The trauma response can cause the body to get stuck in fight or flight. When this happens the body cannot heal, all blood is directed to the muscles to fight or run.
Cut stress out of your life, stop watching drama programs and horror movies, yes this means all soap opera`s too! Your subconscious thinks the drama is real and your body tenses up and releases adrenaline and cortisol. Cut off toxic friends, cut out as much stress as you can from your life. Learn to create healthy boundaries in your relationships. Listen to music with positive messages only.
" The long-term activation of the stress response system and too much exposure to cortisol and other stress hormones can disrupt almost all the body's processes. This puts you at higher risk of many health problems".
Change your environment, Reset, for better health. :)
I don't talk about it because it feels like nobody believes me. It actually can get quite depressing.
I believe you I got FM too
I’ve had a girl tell me to my face that I’m a liar. My dad doesn’t believe me either. BUT I got a new doctor that does believe me and that makes all the difference!
💜😔💜🌷
Philly Aime I’m so sorry I wish people would think of the condition as Real Because it is !
Normal'sWayOverrated that’s great
I hate Fibromyalgia it hurts so much and I hate being judged for it by strangers who just see me and can't feel my pain, I got diagnosed at fifteen and was so relieved they believed me about the pain
Hi Eve, Thank you for writing in. Your frustration seems to be common with so many people who suffer with the same condition. I hope you found this video useful.
@@bbcstories YES!!!!! I *HATE* hearing, "Well ya look alright!" Ughhhh!!
Try drinking 6 glasses of fresh organic carrot juice every day for 30 days, with some flaxseed and oats scattered throughout the day, and see what happens ! 😁
I was diagnosed at 15 as well, honestly its just so difficult to see my classmates achieving so much when some days i need others to open my water bottle.
EVE! God Bless you!
How long had you been having symptoms before DX?
I was 15 in 1980. Diagnosed in 88. But my ENTIRE LIFE , Docs believed my mothers accounts and observations and mine as i got older.
I think I have it easy not having concious memory of not having pain. My spirit just went with it.
But if u had life without pain prior, its Devastating. but my life had no time
I missed ALOT of school. But graduated and did 1 yr College. Had 3 kids, 5 yrs apart took care of a lot more. Still do. Lol.
At its worst, its worse than uncomfort or pain. But i just keep moving. Then... Soon as i feel i can pass out, im down. I like to be up at dawn. And crash shortly after dark. I sleep 6 to 8 hrs, when i open my eyes, i say GET UP.
From the day in 88 when i just had my girst baby, and this Doc who was from Harvard University and was a participant in a ten yr study on FIBROMYOCITIS later changed to Fibromyalgia, and just Covering for my doc who was at a conference on the same. told me what it was
I was his first patient after the study ended he saw and i had Fibromyocitis.. !
Blew my mind!
Rheumatologist who confirmed it , told me " its not going to kill you. But there will be times you wish you were dead.. And i laughed... I never wished it, but felt like it quite often.. Lol
Fibromyalgia for 15 years! It’s slowly killing me! Physically and mentally!
Look up “fibromyalgia central sensitisation” on UA-cam. This condition is starting to be understood. My cure came from sirpa in the uk (aka dr sarno tms in the us)
2115 virgo 13 please my mom who is 62 is having this curse of a sickness ever since 2011 until now !! Her pain used to be un believable out of this world !! Pls any tips on how to cope with it ?!!
Its killing my mom as well..shes at the end of her fight..I have no words..
Have you heard of Donna Eden? She had MS, now she doesn’t. For the past 30 years she has taught something called Eden Energy Medicine. A way to understand autoimmune & powerful self-care techniques. My videos explain more: start with the 10 minute Daily Energy Routine, at your own pace, for 30 days & see. Blessings, Nicola xx
2115virgo13 I hear you darling. I can totally relate. Hugs to you 🥰
My Fiancé has Fibromyalgia.. he felt so much pain.. He had to leave examinations because of it.. one day he told me we should just be friends.. I knew fibromyalgia causes behavioural changes and he was distancing himself in order to keep me away from getting hurt.. but I will always love him.. Through thick and thin
Aren't you just amazing! I had fibro when I met my current partner 3 years ago. I was in the thick of it. The pain also made me develop bipolar symptoms. He stuck with me through it despite me emphatically asking "are you sure?!" and his love and support helped me immeasurable. We are still together to this day and I am out of pain and out of mental health issues. Both you and him and any partner that stays I have utter respect for
💜
@@sweetspacesessions9813 that's so awesome! You have a wonderful partner. How have you overcome your pain?
@@TheLoveweaver I do feel very fortunate to have him in my life. In terms of getting better, I did so many different things. From exploring many different forms of exercise, seeing a naturopath about my gut and cleaning my gut and diet - there were foods that were making it worse. Focused on how I wanted to feel and just started getting curious on what would help me to get better. It has been a tough journey! Really exhausting and at many points I wanted to give up. I am so greatful to be where I am now.
@@sweetspacesessions9813 oh, okay! Thank you for responding so quickly. I really appreciate it. I wish you continued health & happiness! 🤗
I was diagnosed with fibromyalgia today after so many years of pain. I was told many times by doctors that there was nothing wrong with me and today was the first time someone believed me. Although i'm so relieved to know what it is, I can't help but cry thinking about how much it has affected my life already. It feels good knowing I am not alone in this battle though ❤️ Sending my love to everyone else going through this pain.
Swimming can help
I find walking in the pool very good, but I need to pace myself regarding exercises. If I over do it I’m hopelessly tired the next day. 😉
Fibro has absolutely wrecked my life...
thc oil or CBD will help with the pain
Samuel Aubrey it didn’t help me either. I actually felt sick with the taste.
It’s the THC that helps me
@@sapphirepokemonfan same here!
Amanda R James sameeee
It's that awful point you find yourself too that's like: "everything in my body is screaming at me to lay down" but deep down you know you're still going to wake up feeling the same way. Only you'll lay staring at the ceiling, becoming increasingly frustrated at the fact you WANT and NEED to get things done, but can't. Constant limbo
Chronic pain is a type of ongoing pain that can be similar to the aches and exhaustion you might experience with the flu or after an intense workout. It can also come in flares that make you feel like you've been hit by a car. However, chronic pain is often invisible to others, making it difficult for people to understand how someone can feel this way all the time.
This is often why I try to Escape into books or video games, whatever little distractions keep me from thinking about my chronic pain.
Hi I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure
I’m positive I have this , haven’t been diagnosed yet but it’s been constant and began 4 months ago. Hurts all over even getting out of bed .
I've had the disease since a small child, along with EDS- Ehlers Danlos Syndrome.
Don't give up on trying to get a diagnosis. Change doctors if need be. No one took my pain seriously until I was 43 years. I'm now 54. All those years, I could have been supported. Not even my parents believed me. They would state..."Stop moaning you're a hypochondriac, and it's growing pains that all.
Do you feel a lot of pain after exercise because of EDS? Does fibromyalgia get worse? greetings
@@LarissaCadorin Absolutely I do. I’ve given up golfing, tennis, swimming, bowling, you name it. I just try to do some walking when I’m well enough and weather permits.
I have fibromyalgia 15 years and I find the more movement , the worse my pain is without question.
Yeah, that was a hard lesson for me when I came down with it 22 years ago. I was super active physically. The idea that doing something physical would put me in bed for several days was pretty tough to cope with. This is inflammation all over your body, including the nerves and brain which explains the brain fog. anything you can do to reduce inflammation (diet, fasting, herbs, low carbs) can help.
ME TOO!!!
@David And you are an expert? I have an academic background in public health, epidemiology and medical research. I think that it may serve you better to keep an open mind because the truth is that there is more we do not know than what we do know about the mechanics of these kinds of illnesses.
Perhaps thats due to under developed muscles and atrophy.
When your muscles hurt, they compensate, using wrong muscle for the wrong action. Hirt muscle gets used less and less and another gets burdened. To awaken them and reduce pain, u have to tolerate an increase of pain temporarily to retrain muscle groups to do the work they are intended to do. Its greuling but worth t he mental energy you put in and if maitained, it could be years if u would have to do it again.
I have the same problem most of the time. Don’t take this as me trying to fix you, you might’ve tried it already, but have you tried yoga? I don’t do the meditation part, just the stretches and I try to limit how much I do it but I did find that the stretching was a lot better for my pain. Dunno If it would help you or not :/
Just got someone asking me if I’d tried cutting foods out of my diet like they knew what i was going through so plz don’t think I’m trying to ‘fix you’. Just wanna offer some help :)
I’m one of those few men that have it. I’ve had it for around fifteen or so years. Mine has gotten worse as I’ve gotten older. Because I have no choice, I’m still working at a job that’s fiscally demanding, and of course, I eventually get punished for over working myself. Fibromyalgia, the gift that keeps on giving.....
we have same story bro , it got worse as I got older .Im suffering this pain since I was a child
Rodney Unajan Hang in there, and don’t give up. Life must go on, we need to do our best to mange the pain. Peace to you.......
I'm with you Bro - but keep going - I need to know I'm not the only man suffering. :)
Me too.
Look up “fibromyalgia central sensitisation” on UA-cam. This condition is starting to be understood. My cure came from sirpa in the uk (aka dr sarno tms in the us)
Redsorgum my husband has fibromyalgia
Sometimes he wakes up saying it feels like someone is pulling his arms off
This made me cry! Even though the pain is there, it really makes such a huge difference to actually know that there is a name for what is wrong with you. To know that there are other people like you out there! After years in pain, I was diagnosed earlier this year. To all of you living with this condition, I feel your pain, literally❤
Sometimes I Dont leave the house for days or for a week. Longest time is 17 days.
I adopted a couple small dogs from the rescue center to encourage me to go out. Sometimes I manage to take them for a walk 5 consecutive days, other days I just manage to take them just very short walks around the block. But then on other days I can't manage to take them out at all. The longest I have ever had not taking them out is 6 days. But I did my research before I got them to make sure I chose a breed that did not need much exercise was happy to spend time inside and was not noisy or yappy.
They are also great company and are happy to lay with me and snuggle when I am feeling low. Plus because I need to feed them, clean up after them and generally take care of them it makes me get out of bed everyday and keep moving even if I don't actually take them out for exercise. I understand that not everyone is in a position to own a dog ( I am very fortunate to live in a ground floor apartment with a garden) but it has deffinetly helped me.
I used to have a cat before I had the dogs and even that helped as having a little fury thing to cuddle up to and talk to was very therapeutic.
I thought I was the only one. 😟♥🙏🕊
I wish I could stay home, I have to work as waitress, it's killing me, but I have no money, and it's cold outside cannot live in car in Canada.
Have you heard of Donna Eden? She had MS, now she doesn’t. For the past 30 years she has taught something called Eden Energy Medicine. A way to understand autoimmune & powerful self-care techniques. My videos explain more: start with the 10 minute Daily Energy Routine, at your own pace, for 30 days & see. Blessings, Nicola xx
Xoxox
this video makes me feel so seen. especially when she says like "you could be completely, absolutely fine one minute and then all of a sudden you can't walk" so relatable 💔
I've suffered CFS/ME for 26 years, it wrecked a professional sporting career at age 26 and also any advancement in my chosen working profession. At times I have almost given up but for raising a daughter by myself as a solo father so I know how people here feel as fibromyalgia has much in common with CFS/ME. Chronic pain has been a major part of my problems along with bone crushing fatigue. I have about 2 good hours in me per day. Shattered is not enough of a word. Much love and care from NSW Australia.
May the Lord comfort and bless you! I can't imagine what you must deal with. There are a lot of us out there in pain and barely able to function. Something has caused these diseases to multiply. God Bless and stay strong.
🤗 back to you...also from NSW Australia🐨
I feel the exact same hopefully you found some sort of recovery. Has anything helped you? my doctor wants to put me on Cymbalta and I’m hesitant but I’m probably going to start it soon
@@DMac-uv1bl Cymbalta didn't help me nor did heaps of other antidepressants. I've tried everything, guess for now I'll have to live with it. Thanks for your comment :)
@@hisservants8003 Thanks God Bless You!
I'm so fed up of people that don't believe that someone has this It can't be seen. If we could see this Physically there would be so much more understanding. My mum has this and she manages her pain. I'm very proud of her because she does so well considering she's always in pain.
Oh but it is not invisible I assure you. That's a common lie. There's plenty of visual proof.
I've become a hermit. .I've gotten to the point where I don't even want to get my meds from the pharmacy because just getting dressed and getting in a car to get there is a challenge. .she's talking about movement and I understand the importance of moving as much as you can but for some of us it's almost impossible. .when I over do it I'm down for days. .I'd rather do as little as possible and not feel as bad pain wise even if that means sitting or laying on my couch or bed. ..I watch a lot of fybromyalgia videos from all different kinds of people and I do believe that when your young you can accomplish more as far as movement and exercise but when you're my age, I'm 61 it's way more harder. .I remember when I first started noticing that my body was not functioning like it should and I would have aches and pains and fatigue along with little tell tell signs. ..it wasn't until after my last child at 31 and I was never the same. .yrs went by and I ignored and pushed through things that I guess I shouldn't have but I had never heard of fybromyalgia at that time
It wasn't till I hit 50 that my body just said that's it. .your done. ..a couple yrs later I went to the dr and was diagnosed with fybromyalgia put on vicadin and my world changed. .I could once again be myself at least half way. .I could take walks ,go shopping, vacation, work, cook and yes enjoy sex and most of all breath normally until the war on drugs. .they took away my pain meds and tried to feed me depression meds and alot of other poison pills that I refuse to take. ..I am on gabapentin but want to get off them as well. .so now I can't hardly walk through my house without feeling like I need an oxygen machine and once again I'm on the couch. .don't get me wrong. .when I get mad at this horrible disease I get up and wash clothes. .wash dishes mop the floor and do little odds and ends knowing I'll be down again for 3 or 4 days
But like we all do. .we get up and try again knowing what the outcome will be. .unless you have a truly empath with lots of understanding and empathy for a partner or family members then they do not understand. .there's no way they can unless they are walking in your shoes. ..this rant was not to say that the younger women and men that have fybromyalgia aren't in pain and suffering. .I'm only saying do whatever you can right now because I do believe it gets worse the older you get. ..at least thats the way it was for me. .
My dad is 50, he's had it since he was 20 and he says it's gotton slightly better for him. He goes swimming often. There was a time where he was wheelchair/bed bound, depressed, put on morphine.. but I think it's proof that it can improve for some people. I'm 18 and I may have fibro but I'm not diagnosed.. whatever I have I hope it gets better as I find ways to manage it and cope
I've also become a hermit, I'm just overwhelmed by the most simple things
Hello Baggerchic, I am also in my sixties, and I have have the same kind of fibro experience, becoming a hermit, and neighbors, acquaintances and friends thinking I am being difficult or antisocial. And saying to myself exactly the same thing: "I feel like I've been run over by a mac truck. " Mac truck, Mac truck, Mac truck. This has been my best description for all over body pain, since, like, forever. Except that it comes and goes, not constant, not predictable. Like getting hit by a mac truck, there is this ridiculous feeling of being "surprised." Some days I can feel good enogh to forget that I have limitations, and so overdo it and go down again for days.
Pain meds are not a fix and not a "high." Pain meds make pain more bearable. If your doctor took away your best pain meds I suggest you keep shopping for another doctor who can understand that you have an illness not an addiction. If anyone will look past the headlines and hype about the opioid "crisis" they will learn that the crisis is about ILLEGAL acquisition of meds, or not taking doses as specified by the doctor. I "fired" several doctors until I did my research and found one with extensive experience with HIV patients. I thought he would have more compassion, experience and knowledge, and I was right. Although I have tried and still use various "complementary" pain management techniques, he understands that Vicodin is the best RX available for my condition as of right now.
I wish for you to have better success in the future in getting the help you need and deserve.
Trisha Ferrand well said, I’m a long-standing sufferer. At least we aren’t alone. Gentle hugs 🤗 x
@@realtinobrien2140 Thank you for posting Realtin.It is one day at a time for you and your Dad and indeed all of us with fibromyalgia.I know of a woman who has fibro.and recently her teenage daughter has developed it also.It must be so hard on parents to experience this happening in their own child.I find it helpful to try to remember what my sister,who is a specialist says..'The body wants to heal itself'..the body is always trying hard to heal itself.Finally..the kindest people I have met have suffered in the past.I would never have developed empathy without having gone through this.Being able to support one another is a priceless gift in its own right.Gra mor.
Best description Ive heard is that it's like having a migraine all over your body.
Cougarsamurai I was diagnosed with fibro and now with CRPS. What you wrote about it being a migraine all over, is exactly what I have said... Only with being on fire.
Worst sometimes!
yes or a pain similar to tooth ache
@@siobhanvictorian3669 It's chronic regional pain syndrome
My body feels like it's turning inside out the pain is so bad
I have had fibromyalgia when I was 11 and life has been so difficult . I can't even put it into words .
I don't know if it's fibromyolgia or myofacial pain but i have this kind of pain since i was around that age now the pain is mostly left side i hope we recover for the power of allah (god)
Shuti... I am with you love... began this painful journey at age 10 and now I’m 46. All we can do is take it day by day. I’m glad your still here to fight. Love from Texas ❤️
@@lymarie1974 36 suffering from chronic pain? wow
what do you do with ur life?
i' m 21 and i'm student but a lot of times i cant focus on school stuff beacuse of the pain, its so difficult
@@ezion593k just do one thing at a time. Try to focus on one small goal. I know it’s hard.
@@ezion593k yeah same i'm student everyday i face these pain in my upper part neck shoulders......what should i do to get rid of!
I've recently been diagnosed with fibromyalgia...the pain is very real! It's intense and constant. There are many many conditions that cannot be seen which people expect are real........FIBROMYALGIA IS REAL, WE DO NOT IMAGINE IT PEOPLE....
U should use wheatgrass juice it does miracle work for fibro patients
And we don't moan about it like others do because we are so used to it I didn't know everyone else didn't feel pain everyday. never thought about it to me it was normal 😢
I was diagnosed with fibromyalgia 18 years ago (my last pregnancy ) after a very difficult and sad pregnancy with my twins, I had a epidural with my twins first one I had with 4 births...my spinal cord was punctured which ended up leaving me paralyzed from my neck down for 3 days. I never quite felt the same afterwards , I started having a lot of stomach issues then found out when I went back for my 6 week check up that I had ( cervical )cancerous cells, which came from hpv( human papillomavirus ) to have a cone biopsy . I guess my son was about 8 months old when I started having severe pain in my hands and wrists so bad it would wake me up from sleep, it felt like I had tight hair bands wrapped around my wrist cutting off circulation and my hands and wrists would swell up, turn purple and I had severe throbbing pain. I was told it was carpal tunnel syndrome, then the pain started going all through my body. I thought I was losing my mind, finally I was diagnosed with fibromyalgia, it has steadily gotten worse and the older I get the more severe it gets. I have IBS and digestive issues, copd, asthma, the fibromyalgia has made me hypersensitive to touch sound smells , I have fibro fog, memory loss, it's affected my vision which is already bad since childhood, my hearing, my speech. I used to love to write and had beautiful handwriting now I'm lucky if I can even scribble my name let alone remember it and just like this text I've had to go over it time after time because I can't see and can't even speak complete sentences without sounding like I don't understand my own language. I can't and don't even want to have conversations with people anymore because it's hard and it tires me so easily. I have no attention span, fibromyalgia has robbed me of my life. I get so frustrated because people look at you like you're lying and say you don't look sick, it makes me so damn angry . I can't even walk straight most days because I'm so weak and in so much pain, I've also become extremely clusmy and have no core balance. I have CFS on top of it all, mornings are the worst part of the day for me it takes every ounce of everything I have to get out of bed because I'm in so much pain I can barely walk and I wake up so confused, don't even know where I am and what's going on like I've woken up from a terrifying nightmare. I just pray for a cure before I get any worse, older or die . So to anyone with fibromyalgia. I completely understand and you're not alone. We should all unite together for support and strength because only we understand ......SENDING OUT LOVE AND BLESSINGS TO ALL THE FIBRO WARRIORS 😍😘🤩
Yeah! It's really hard to deal with pain and other problems that come along with it like fatigue, mood swings, depression.the much more difficult part is how to explain this to others around us. People see this as an excuse and never understand and sometimes they even say that you have gone mad and pain is an excuse. God bless us all those who suffer this condition
I pray every day to feel good for a day.
My mom literally died to this illness, She had no will to want to live due to this illness. Thank you for posting this! because my mom never moved due to this!
I have a loved one Diagnosed with Fibro. The downside her specialist said it was the worst he has come across to date this was a few years back but a bit discouraging. Some of her family and friends don't think she has it others say it's in her head even doctors who said she should see a therapist and her own father forcing her to get a physiological check at the hospital. Either way to give you an idea of her condition she uses forarm crutches on a good day. Most the time she needs to be pushed in a wheelchair we don't have money for a scooter, etc.
On a bad day shes in her bed pretty much crying in her own way sometimes her entire body is flailing around when shes having a really bad attack I mean what you see in the movies when someone just got kicked as hard as possible in the unmentionables. Sometimes her feet and hands mostly the tips will go so dark they are more black then blue. She spend a lot of time in bed not getting any sleep just to have a couple hours of energy. Even then sometimes her brain is so foggy she can't think at all and a lot of times can't even recall what happen the night before when this happens. It's one the hardest things I have witnessed and I love her so much and plan to be at her side till I die.
I'm her full time caregiver. I really hate my country because they treat the disabled like crap we are over 50% under the poverty they give not even a cent for Caregiving yet she could have 4+ Hours of PSW Service but not if a loved one does it. We live a hard life financially and because of the disability. She has taken so many types of drugs, etc she has some that help but she had a lot of reactions to others. We be lucky to get some fruit and vegetables in our diets the government tells us to go to the food bank that is what their for. Gives you an idea what kind of place Canada really is when it comes to the Disabled. They make the Disability Support programs like their temporary to help get you back to work yet not everyone can.
To make things worse she was becoming a Teacher in Uni 2nd year when this all struck her. Guess what she wanted to do? She wanted to help children with developmental issues and she was already an teacher assistant for it. She is one the most postie people I have ever met.
I'm Sorry those with Fibro this might been a bit hard for you to read. This was more for those outside of Fibro who don't really know what it's like for someone who suffers on the more extreme side of things.
It's made me really angry for others who have Disabilities in Canada to stand up for them and fight for them. A lot of times on my spare time I spend it helping others. It's really change my prospective and next time you come across someone with a disability don't just look the other way ignoring them thinking that would be rude pretending they don't exist. Instead think of how their day to day life must be. Do they get enough food? Are they being helped enough? Etc. It's time we stop ignoring people with Disabilities even more so those with invisible disabilities.
Kane Hart -
Hi I understand I have severe fibromyalgia and ME.
I got a scooter from the mobility trusts web site, Email them about my condition and detail of my finances they gave me a beautiful scooter worth £3000 it took me about 8 months to proof I need it by email then they sent a occupational Therapist to come and assess me and then I got it in a week.
It was a great blessing to me can only use it on a good part of the day.
Annmarie123ize that’s awesome they helped you out with a
Scooter!
Kane Hart - Let's Plays I’m sorry to hear what you all go thru on a daily basis. I say “you all” because even tho you don’t suffer with fibromyalgia you care for someone who has it so you know exactly what it is like. I hope one day the scientists will find something to help us. I am
Tired of being tired and tired of being in pain.
Kane Hart - Let's Plays 😭God bless you ...We need so much more people like you in this world 😰I wish I could post your comment everywhere I stop social media long time could handle any more I cannot stop crying what you wrote just touched me .. Thank You........ xxx💜
My girlfriend has this and it's honestly the most cruel thing you can imagine. At least cancer kills you, this vicious disease let's you just live out a miserable life in almost constant pain. Bless her she stays positive and together we find the joy we can in life but this really does prove there is no God.
It doesn't prove there is no God. I would read up on the topic of God and suffering a great deal more.
If anything it proves that there is an enemy, a Satan who will use anything and everything to attack us, including our bodies, our health. Satan exists to kill and destroy. He is in his last time of having any control and is very angry over it. If he can steal your soul from having trust in the living Creator he will.
Don't let him.
God will be with you through your suffering if you let Him.
I have severe chronic pain and fatigue. I know what your girlfriend is suffering. I have a genetic crippling neuromuscular disease called CMT in addition to Fibromyalgia ♡
I pray you find peace and healing.
Tracie Becker 😢I Thank You I need it to read today your comment really touched my heart & my soul God bless Xx Love & Light 💜✨✨
@@joannepereira5080 I'm so grateful to hear this, so thankful I gave you something good that I can still help someone, even though I am stuck in my home because of a crippled body. You gave me a sweet gift of words that encourage me also. If I can help someone else it gives me renewed purpose! I have 4 grown kids and many grandkids and I want to inspire them to keep persevering and not to lose hope in an often dark world. Their Dad died on Father's day 2018. We had divorced in 1992. Their was some years estrangement that took many years to be healed so they felt they lost him again and way too soon. I couldn't be with my kids for that except through words and I don't know if it was enough.
I have a son who has really struggled!
But you gave me hope to keep encouraging people.
If I can just help 1 person have hope for 1 day it is all worth it.
God is still working miracles through everyone of us so we must keep persevering. Praise God!!
Much love and many blessings to you dear and
Thank you ♡
@@traciebecker6669... Praying for you and your family. ♥🙏🕊
@@justpassingthru3186 Thank you, that's always a good thing to have prayer. It gives hope.
i can't express how comforting this video is. my pain began when i was 11 and worsened over the years and i went from being on the track and field team, volleyball team, student council, chess club and debate club to having to drop all of my sports teams and barely being able to go into school as most days my pain wouldn't allow me to even get out of bed. this then led me into a very dark mental place and feeling isolated and hopeless and as my mental health declined the more the doctors i saw questioned my pain despite it pre dating my mental health struggles. it took me 5 years of going to countless doctor before i got my diagnosis on my first visit to a specialist and i remember my mother and i sitting together in complete shock at finally having an answer. i remember getting home and crying in relief of finally having a diagnosis while then dealing with the knowledge that i didn't really get any answers and i now had to slowly work on it. thankfully in the nearly two years since my diagnosis i've met others with fibro and have slowly become more active and feel much better mentally and have more of a handle on my pain. it is incredibly comforting to hear other people's stories and to see i am not alone so thank you, and to anyone reading this who feels alone, there are others going through the same thing who would be glad to help if you reached out, you can find a support system ♡ believe me.
Fibromyalgia is a serious and recurring disease which can't be cured through drugs or injections by the Nigeria doctors but the best way to deal with fibromyalgia is by taking natural herbs medicine for it and is only few Nigeria doctors that know about this herbal medicine from Dr Ojiezele.. I have read about Dr Ojiezele the great herbalist doctor from Nigeria who can cure disease with his powerful herbal medicine. for the people suffering from the following diseases, Herpes, Cancer,weLupus, Arthritis, Also, HSV1 and HSV2, Hepatitis, Diabetes, Hps,Infections ETC should contact him for his herbal medicine because i am a living testimony and i was cured of fibromyalgia . , i sent him what he requested and he sent me his medicine which i took for 2 weeks and today when i went for test i was tested fibromyalgia negative. you can reach him through his email : ( drojiezele@gmail.com) or whatsapp number : +2348064539246 will help you out faster and reliable..
Contact Dr Ojiezele herbal home
I’ve suffered from fibromyalgia for 11 years now. I was only 20 when the symptoms started and now at 31 I feel like I’m 91. Currently sat in agony as my knees have seized up for no apparent reason 😭.
💜🌷💜
When jess started explaining how some people doesn't believe it's real brought me back to all those doctors that said the same thing. Long story short hearing something relatable makes me cry out of happiness knowing I'm not alone.
Exercise? When IF I can drag myself up to complete one task in a day, I'm so worn out, and riddled with pain, I'm done, and can't move anymore. Like a big pile of bricks on top of me. When I do get a little energy to do something, I have to do things that need to be done. I don't have people to do anything for me.
Hey how are you still holding on?
I also dont have people to look out for me the constant fatique and pain kills me everyday dont even know if i have fybro . But pain in my body long time and chronic fatigue
Thank you so much for sharing your stories. Just received diagnosis, although had this pain for 7 years on-off. Couldn’t dare to see doctor in case he says “ it’s in your head”. But decided to see doctor today so that I have a “ NAME” for this pain so I don’t have to keep explaining why I my muscles hurt. Allah is so merciful. ❤ All praises to God. At least I live in an era, where I have “ NAME” for this pain.
I have fibromyalgia. I'm 22, and barely have a social life anymore. I had to leave school and can't find work that wont make the pain worse or unmanageable. I hate this
I'm so sorry so many of you young people have this!
no ok I developed my symptoms at age 20 but didn’t get diagnosed until 2017. I’m 26 now. I also don’t have much of a life. It’s so hard 😞
Blair Thompson Yes, i completely understand. it took many, many years for me to be diagnosed. I’m much older than you, but I know people your age with Fibro. Hang in there! And stay away from any pain killers. They only make it worse. Try working on your diet and keep moving. Essential oils are very helpful for me. I use frankincense and myrrh for muscle pain and doeterra mitomax and their deep blue rub. Good luck and God Bless. ❤️🙏
Hisservant S thank you!! I use medical marijuana and it helps me. I also use cupping as well. It helps with my tight muscles. I’m so glad essential oils helps you 💖. I think essential oils can be so helpful. I don’t take any pain killers, they don’t really help the problem. Sending you lots of positive vibes. We aren’t alone 💖
Same here, I interrupted my studies in University because of this. And I can’t even plan for the future because working or studying long-term takes so much resolve, fatigue and pain. I don’t know what the future holds...
My heart goes out to every fibro sufferer. I have severe arthritis and the pain is hellish on and off, but at least I don't have the add on "bonuses" that fibromyalgia gives its sufferers. ☹
I was just diagnosed with fibro and it's incredibly releaving and scary at the same time. I'm 21 and I've barely lived. Now I have no idea how I'm supposed to have a normal job one day. I'm currently in rehab trying to lean how to live with the pain. If anyone is in a similiar situation feel free to reach out and we can be there for each other
I'm 19 I just got diagnosed. I have played tennis my whole life and am training to be a chemist where we have labs for hours on end standing. It's been terrible. Idk how to deal with this tbh I feel dejected especially because fibro has struck me when I'm so young. I'm sorry you feel my pain. I hope you're doing goof
It is so relieving to see that I am not the only one going through this pain. I think the most effective thing that helps me get through my days are having a sense of humor. I am lucky to have kids that get me when I am down and out and also love to join me in the humor of the situation because I know if I take life too serious, I would not survive this illness. I hope that someday I will be able to find a mate that will love me and accept me for who I am.
I had a fabulous sense of humor. I was witty and made others laugh. Now, 50 years of INCREASING pain has made every waking moment hell. Nothing is funny.
It steals life and joy from all who suffer and those young kids who will start to suffer soon. I live in US and they have really started listening but, theres no help out there,but pain meds. Which they don't give. There is someone for everyone, my sons pray daily for mates. Vitamins d and b are very important. And anyway you can get rest. Even when sleep is not to be found
Fellow fibromyalgia patient here. 10 years and still going
I hate being a man with Fibromyalgia it feels like even more people say "Oh its in your head" and I even hear "You cant have that you are a man"
Well I am a 70 yr. old male and I was diagnosed with it a couple of yrs. ago. I also have arthritis, heart disease and being tested for cancer. This video was very helpful, because I feel a little more sane now knowing this stuff is real and it REALLY HURTS. I feel like someone is beating me with a baseball bat. I can't sleep anymore because I Can't get settled down, there is no comfortable position to get in. Thanks for the video, I don't feel so alone now.
Oh no Mickael, you're not alone.. Sending you a gental hug.
It took years to get my diagnosis thanks to a GP who believed me and sent me for referral. A Dr in the same practice told me outright that he didn’t believe Fibro was a real condition … sending love to you all.
I’m so glad I was recommended this video. I’m 21 now, and have had fibro since 18. And I used to be a dancer and it’s so hard not being able to do what I loved most as much as before and having trouble even walking many days. I felt so ashamed of it and hid it from everyone, but recently came forward through UA-cam when I was feeling really emotional about it. I shared the video with friends/family so they understand and so that hopefully if anyone else has a chronic pain disorder they won’t feel alone. 💗
Occasionally I watch videos like this just to remind myself that there are people out there who are going through much worse
situation than I am
I know when I started dealing with fibromyalgia. I was 13 and had just started to experience the pain of puberty. Then everything began to hurt and ache, things began to burn and feel like every muscle was tearing itself apart. I went from being somewhat active and doing things, like walking or biking, to laying down on the floor and hoping for some relief from the constant pain.
I'm 31 and, even with medication and physical therapy, I'm still in near constant agony. I hope some day there is a cure for all of us suffering from this, because this is a personal hell.
Go bless you good health ameen
W
Sorry to pee on everyone’s fireworks here(IM A MAN BTW)but I’ve had Fibromyalgia for nine years now. It came on following a kidney transplant then gas gangrene/sepsis/stroke/ type 2 myocardial infarction and several weeks on ITU/HDU then a ward.
Men get this too unfortunately !
I just wonder. So is more pain when you walk then sites still? I have to stand up because then is less pain and walk around ,but not to long then its foot pain.
I would say the most pain I feel is when I have to stand still, like trying to stand and cook at the stovetop, or waiting in line for meds, stuff like that.
Basically, everything from my lower back down to my ankles feels like it is seizing up and there have been a few times where I ended up sitting on the floor because I literally couldn't stand anymore.
It's such a debilitating condition, yet the sufferers i hear from and speak too, are some of the most lovely people imaginable. I've had fibro 8 yrs, and my condition is getting worse. But hearing from people like this, gives me hope.
Thank you for this
My fibromyalgia came on in my late 50’s. Getting medical help is like I’m talking in English but the doctors don’t understand English. They just order tests after looking at you for months and years. To me it has many symptoms. My opinion is my nerves are screaming from the tiniest movement. Like snapping your fingers hard and the nerves are raw. The pain is creepy, it is severe and I can envision the nerves, vessels, muscle and skin being damaged from the movement like I’m crushing and tearing my internal nerves, muscles, and pretty much everything inside. I am stiff and my ankles, legs, hips, elbows etc., and it’s sporadic. I can’t stand or walk when I wake up with pain, cramping, stiffness and I kind of shuffle for awhile in the mornings. If I sit too long everything kicks in and I can hardly get up and move because I’m so stiff. I just turned 63 and can’t believe I will have this forever. I’m sick of it! It’s embarrassing when I’m in public. I hope I didn’t pass it on to my children.
Thank you ladies for managing to verbalise what our pain feels like. I couldn't for the life of me explain mine.
Our Fibro was caused by the sever trauma to us in childhood. We have DID and seems most that do have Fibro. Where finding that the vagus nerve seems to be the main cause of Fibro. If the vagus nerve is affected it causes so many many issues. IBS, ANXIETY, INSOMNIA, FIBRO, DEGURATIVE DISEASE. ETC. Keep up the fight and hugs to all who suffer from Fibro and illnesses like this.
I have had this crap since the 1980's. It has gotten worse over time. The sense of the quality of pain changes too. Rug burn, sun burn under the skin, electrical prickles, deep aches, rubbed with steel wool, sudden stabs of pain..these are some of the sensations I feel. The mental/emotional mix is another mess entirely. Hate it. It has limited my life possibilities.
The same 💜😔💜
I was just diagnosed yesturday and have Ben struggling since birthing my son in 2012 I ma in tears for the first time I feel understood
Hi.i m also suffering from 2012 after the birth of my baby boy.but i diagnosed before 2 years after gallbladder surgery.
Hi I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure
@@larssonmaria8090 reAlly? What kind I do herbal medication
Bawling after the intro. This is the most accurate anything I have ever seen on this!!! Thank you, thank you for this!!!!! Diagnosed 8 months after 2 years and a nervous break down.
Poor souls 😞 How horrible and painful it must be . Hope they become healthy and happy again . May the triple gem bless you all ❤️
Thanks, love. Blessed be
Gracias, thanks😘
Senura Kaduwela thank you for your warm thoughts and blessings. But what some people don’t understand is that fibromyalgia can’t be cured. You will never get better from fibromyalgia. You can only manage pain and try to live as happy of a life as possible :-)
Love this video, I'm 16 and have been living with fibro for as long as I can remember. I wish I could go to school and see people but it takes control of my life. Slowly I'm trying to get better but stress doesn't help at all but stress is a very common thing for me. I just feel unlucky
Whenever pain comes the first thought is always that death seems like such a desirable option. I don't know how people live with chronic pain for decades. It's been two years for me and I'm already so sick and tired of hurting all the time😢
I can't even begin to imagine how painful this is while giving birth.
Fibromyalgia tends to worsen during your period so i can't imagine either 😭
I'm pretty sure most people with this disease don't even bother having children.
@@エストラダカイラ I had no idea this explains so much!
All I did was scream out "my back!" It was so painfull and the nurses just ignored me not giving me anything not even a hot pack and the doctor only just walked in right before my daughter was arriving. Luckily the labour was only 3 and a half hours though and she came out half asleep!
Periods are worse than birth sometimes or just as sore for me. Even other day when my Raynaud's flared up I told my mum if rather give birth than feel that pain coming in from the cold 😢
I was diagnosed at age of 5yrs old im.now 33 and i cant explain how far ive come.. i can work ok only so many hours but ive come a long way.. ive even joined a gym which gives me so much more energy.. never left fibro define who u are.. fibro has been my life but it will never take my life anymore.. love to u all 💪💜
I'm crying right now as I'm viewing this. I've had this ailment for 7 years now, not a day without pain. I still work as a preschool teacher, but it's getting harder and harder for me.
Best video I've came across. Thank you
Absolutely in tears. I keep watching this for comfort. I wish more people could understand what we go thru. I just feel like I’m dying 24/7 or that it would be better for me to not be here as the life I was working towards is now forever out of reach. I can’t stop grieving. How do you get to that acceptance. I haven’t achieved it yet...
me neither. I don't know how to feel about the rest of my life
I don’t know either... sending big gentle hugs
@@astrochaos gentle hugs back!
Yes thank you for sharing this I wish more people would understand about fibromyalgia affects your whole life that makes you not be able to sleep people think you're crazy sometimes it's so bad it makes you cry it makes me depressed that makes you want to give up on life altogether at times when the pain is so bad you don't think you can take it another day
Been there. God Bless!
YES IT DOES FEEL LIKE THIS!! I have it and hate.it. Thanks for making people more aware! Mine came through major serious stress.
I was diagnosed with ' fibro - demon ' when I was 17 and trust me, my life kind of plummeted deep down to hell. A body so weak and painfully torturing that I fell into deep depression, anxiety and had to quit my degree. 7 years have passed and my parents still don't believe this exists and want me to do more, more and more. I get so exhausted sometimes when I lie down to sleep, I wake up after 10 - 12 hours of deathly sleep. This condition is a sort of disability - a hidden slow poison working your body down like crazy and it is INVISIBLE !!! I want to overcome this crap.
I am so glad you made this video. I am in years watching as I can feel exactly how the ladies are describing it. Till now I knew the pain but not the name. Thank you for letting me know what I'm going through. Thank you. God bless you
I’m 16, I’ve been diagnosed with fibromyalgia a few months ago. I had to stop my passion of trapeze due to fatigue, lack of strength but mainly tender points. When I told my doctor about all of my symptoms, she laughed and sent me home telling me I’m a hypochondriac. I lived on overdoses of painkillers for months. I find school difficult due to fibro fog, I have lost friends since I don’t have enough energy to talk. No one understands the extent of pain and everything else I go through. Even my best friend kept telling me I’m not in pain and I am looking for attention. I have overdone myself almost every day over the Christmas and I can even move anymore. I am sick and tired of people telling me that I’m only young and to get over myself but I won’t let this condition destroy my life I have so much to live and experience
*I hope some of you will see this message. I started to have Chronic Pains since I was 9 years old. I am 17 now, finally battling with Chronic Pains, Fatigue, Headaches, EMF Sensitivities, Plantar Fasciitis, Unknown Illness, ++++ Etc... Recently, I discovered that there is a * clear link * between Fibromyalgia + EMF Sensitivities + Plantar Fasciitis, due to lack of Iodine. Because of " Iodine Deficiency ", somehow our body behave this way, due to lack of it. If you see this message, please check into " Iodine Deficiency ", because it saved my life. Now most of my symptoms I described above is gone!*
Google or do a YT search on the FM/a blood test. It’s a blood test used to diagnose fibro. There’s a clinic out in California trying to get a trial going to test a possible treatment. Maybe some good news coming I hope!
I like the meme sort of things I see on PInterest like top 10 things not to say to someone with Fibromyalgia. Or other more sarcastic ones that you can print off and give people, so they know it’s not just you saying something.
32yrs plus of fibromyalgia oh my the pain is excruciating. I've said many times to GPs family work. Imagine being trampled on buy elephants or run over by a 30ton truck back and torch then having yiur body wired upto a lorry battery and keep being zapped by the constant current. Burning water trickling on yiur body thousands of ants crawling up and down . Then seizing up like you have concrete inbyiur body so so drained fatigue you can just struggle a sentence together that's if fibro fog let's you remember a sentence and who yiu are. It's so scary at times. Now I just live with it. At time crying with the pain the pain if even clothes on me and even a bed sheet. I'm freezing I'm burning pounding headache but still just holding down a job ir I'll go insane and I need the money as I rented private home. I live to see my grandson I cry many times as I can't do daily things with him I've learnt now not to punish myself and my young grandson understands my pain he goes there a car space nanny with the wheelchair that will help you nearer the shop or use yiyr stick nanny to passage ball itsvok we can play that way. 💙 i liv for my grandson and son but oh my yo be pain free would be like winning the lottery. Bless you all. I'm bearly 59 i hope one day there's a cure. Xx
I don't have fybro, but I've lived with harsh pain my whole life and I'm 36. It will continue to progress in my right leg too, due to my disability. It's a horrible thing to live with. I hope these movent sessions help them. J.
Watching this helped so much! I’m in pain everyday…and it just effects my days so much! Thank you for the video!
I've just lost my beloved job of 15 years because of my fibro. Retired through ill health at 55 because I need to walk with a stick, can't carry stuff, can't cope with stairs etc etc Now I'm having to apply for benefits to live on and pay my rent. Every day my pain takes me to a dark place that makes me feel life isn't worth living anymore. No one really cares because they don't see whats wrong with me. I'm all alone, and fibro has stolen my life.
@Anne Hedonia my heart goes out to you. I wish YT had private messages too so we could communicate. Your email made me both happy and sad, happy to know someone cares but sad for all you have been through. Gentlest hugs and much love. x
@Anne Hedonia thank you, and much love to you too my friend. x
Jehovah God cares for you ....Very much JW.ORG
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With lots of love to all.. I am also suffering with the condition, don't remember since when but diagnosed 7 years back... I know its very difficult but possible to live as normal as others.. I am a physician, a mother of 2(one of which is CF)... Taking care of home and outside affairs.. I am sharing this to encourage all of us.. I know it hurts, it hurts alot, people say you are a dr and you take analgesics.. But at times I can't help it as I want to show myself as good and strong as people and family think of me....the thing helps most is to count your blessings.. ❤️
Ur a physician and u have this condition
One minute in and I’m crying to hear the descriptions of how all these people feel and it’s my daily struggle 😢
I was diagnosed when I was 11. I fell on my back in a garage on a part where the concrete was broken and half was raised up about 3 inches and that's when it triggered mine. Unfortunately it's also hereditary, my grandmother has it, her son (my uncle) got it, skipped my mom, skipped my older sister and got me. I'm now 25 and still living with this invisible illness. I move around like an old woman and I would get up and have to walk around groaning I'd jokingly say I'm too old for this until one day it dawned on me, I'm too young for this. To make matters worse I look young to everyone, I look 16 or 18 at the most to everyone, so I appear 16, I'm legally 25, yet I have the body of a 90 year old. It's very confusing to be 3 different ages. I hate not being taken seriously and this makes matters worse. I can't stand when people say it's in your head, if they lived in any of our bodies for even one hour they'd want to kill themselves. We're not weak because of our pain, but we're actually stronger for still trying to live and be active with the pain plaguing our bodies on a daily basis. I told my mom I had a low pain intolerance but she reminded me that I actually have a high pain intolerance because if anyone felt the pain I was in at that moment they'd be on the floor crying and screaming. It really helped me put my pain into perspective. When I was diagnosed I asked my dad if there was a cure or for how long I'd have it, he didn't hold back and told me the truth, that this was something I would have to deal with the rest of my life, but when I was in pain, to take the medications I needed right away instead of letting it build and build until I was in agony. By telling me these things simply I didn't build any fanciful hopes of not being in pain, but instead of how to manage it. I had and still have a good support system. Find you one as well, and know you are strong for enduring this pain, the days of major weakness that you can hardly move an inch without being out of breath and feeling as though someone has taken all the blood from your body and is trying to drag you down through the center of the earth. You're doing well.
I've tried to explain what Fibromyalgia is to others and failed in the past, or simply said I have it and they're like, oh I'm sorry but you can tell they have no idea what that is. You wish they could grasp what that means for you. Then one day I figured out how to explain it. The cold. You know how the weather effects us greatly, especially the cold. So when a normal person gets cold, their muscles contract and tighten, (I show them by tightening my fist) but then when they warm up, their muscles loosen and that's it (release fist slowly)
(Now tighten your fist again) when someone with Fibro gets cold, their muscles contract, and tighten, now you've warmed up, (keep your fist held tight and try to let it go but resist and strain against from clenching your fist) Our brain says to let go, but the muscles don't receive that message, and confuses the brain, causing pain in our muscles that won't listen and vice versa. This is the best way I can explain it. When I've had people do this with their fists to show how painful it is you can see a lightbulb go off in their heads and they get it, just that small idea of what it means to have a chronic pain disorder that effects every muscle in your body.
Thank you to these ladies for raising awareness and explaining what I feel daily xxx
4 years ago I was diagnosed with FIBROYALGIA and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including FIBROYALGIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for FIBROYALGIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now totally free from FIBROYALGIA , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
This helped me get a better understanding of my dads pain! 😩❤️
I’m in the US and would love to find a program like this. I feel so isolated and misunderstood. I’ve been going through this after a MVA in 2010 I suffered from whiplash. About two years later I noticed this “strange” pain during a massage. Fatigue is overwhelming at times.
This is My Life... The best documentary of fybromialgia...👍🏻
I’ve been battling ankylosing spondylitis for nearly forty years, and fibromyalgia for the past ten or so. This year of 2024 has been my worst ever so far as physical pain is concerned. Any doctor who makes light of my pain- you’ve all heard that “it’s in your head, you’re overweight, you don’t exercise enough, everyone with an autoimmune disorder automatically thinks he’s got fibromyalgia”-gets fired immediately and replaced with a human being. I know this video is five years old, but I wish all of you ladies the very best in compassion and care from your medicos and your loved ones. God bless and keep all of you. Rest well tonight, and feel free and light on your feet tomorrow!
Imagine having bipolar 1 disorder and fibromyalgia, lol my whole family thinks im crazy , and not a single person believes me, and yes i am tired, i am cranky all the time, im depressed.
You aren't crazy 💓 they dont understand you and that's ok.....
I have bi polar and fibro as well!! It’s hell.
I no longer have fibro or bipolar, but for a few months, my fibro got so bad that my depression turned into bipolar. I can certainly empathise. I found that loving all facets of myself during the highs and lows helped. I hope you have some people who can love and respect you as you are. If not, I am sure there is a community out there who can.
It's easy when you have a mental health issue for them to discount anything else you say. I was misdiagnoised as having bipolar (turns out I have aspergers) and pretty much anything I brought up it was 'lets increase your meds' and God forbid you have emotions and then they assume its signially another breakdown.
I hope you are hanging in there. I'm also bipolar and have fibromyalgia. Sending you virtual hugs
Omigod, it is so validating to hear someone say for 10 years doctor's said "it was all in your head," because for me, it's been 7 years. I just got diagnosed this week.
I was diagnosed with Fibromyalgia in Middle School. Chronic pain, nausea and dizziness, almost 24/7. It's unbearable and the worst part is my periods tend to "blow out" all at once and its extremely humiliating. It's like I crapped my pants. I get severe anxiety whenever I try to leave the house.
I'm going on #35 years of no help or no one believes I'm telling the truth about this... So I made up my own streaches ... Sometimes I can do more.. some days I lay in bed... I keep on moving.. and trying to lose weight.. I've lost#7... Myself how I fight the depression... ???? I choose joy... when I wake up.. before I move and know if it is going to be a good day or a bad day.. I just make it in myself that no matter what... Today's going to be a good day 😎👍💓🙏🏼
The real pain is when you are with someone that dont get you at all , and all they think were you fakin it .
Stress causes flare ups that I am just getting over one that lasted 2 weeks
It's the worse pain ever like being run over mac truck,then it backing up running over you again!!!
jenniferrobinson2000
That's me. .and then trying to move around like that you feel like your body weighs 2 tons. .seriously. .it's like its all you can do to drag one leg in front of the other and hope you make it to wherever you're going
That's my experience. .so all this exercise that they keep telling us to do. ..well maybe for some, but I believe it depends on the severity of your fybromyalgia. ..everybody is different with different pain and pain levels. .some people can still hold down a job. ..I couldn't work 5 minutes and I would drop right there. ..
I never really had the severe burning. .I do have it on the back of my head and that's bad because you can't even lay on a pillow but that comes and goes. .my feet burn more than anything
And hands ache alot. .just holding a cell phone for to long and I suffer for days
But I do understand how you feel. .you're not alone
Burning feet,fatigue, stabbing pain, itching, daily migraines etc. It never ends. Moving is good but true light exercise leaves me unable to move. I tried PT for the back pain and it caused more pain than it helped. They gave up on me and were genuinely sorry it didn't work.
I got really pissed off when a cardiologist told me fibromyalgia wasn't an actual illness.
My mom had fibromyalgia (now passed away) I have fibromyalgia (diagnosed 33 years) ago and now my 22 year old son has fibromyalgia.
Fibromyalgia has been around since the 1800's~you would Think the medical community would have SOME IDEAS by now!
There are so many of us suffering. Be kind to people you never know what they may be going through. I have become a burden. It is so heart wrenching.
It’s so painful and depressing!
One day you can be fine and two days after can’t even get up from bed.
I have cardio issues and fibromyalgia.
The struggle is REAL! 😪
Hi I'm just wondering do you get heart palpitations with fibro? I've been trying to get answers from my doctors...not able to really help.
I've had this now for 40 plus years. Mine was early trauma as child, and a car accident at6 flew out of car door onto Highway. As a teen I suffered everyday only to find at 19 I had auto immune desease, lupus, know none of my bloodwork shows much on certain days of the month, but in a fybro flare my blood work is crazy. I have been tested positive for R.A. and 4 different kind of arthritis. It's my body at war. I had momo as a teen very light case, but it feels like I never got over it. I always say my body hates me! That's exactly how it feels. I've had drs. Tell me Im wierd for 40 years. My hubby didn't believe me until he heard it from dr. Himself! He also didn't believe one day I was ok and next wham. I'm sorry but God forgive me I prayed for just one day he'd know what I was feeling. He has been diagnosed for last 10 years. I don't know what brought his on. My sister and I had not seen each other or talked for 5 years. Our first words were I have fybromyalgia. My granddaughter has it at 27, my daughter says she's in pain everyday but not that bad,so she says she doesn't have it. I think moving everyday is crucial but know your limits! Because fybro gets worse over the years. Enjoy every moment you can when you can, because there may not be anymore. When the worst of my pain 15 years ago air across my body put me in tears. The gravity on our planet makes me cringe 4 times a day. Sleep is impossible, but thanking God they are doing research daily to figure it out. Drs. Aren't taught how to treat it! That's a specialist job. So don't expect help from them. I tell my dr what I need and she helps with what I suggest. I was on mega amounts of pain meds 14 years ago but that was all taken away as most know. The stats are climbing daily from those diagnosed so why aren't thier fybro drs?I have sent 15 plus people to drs because by their walk stance and breathing I know they have it. I call it the fybro walk. It doesn't help anyone to know they have it when I can't help them. I've lost relationships and jobs over fybro. Trying to keep the faith and live in gratitude daily,minute by minute when your curled in fetal position rocking yourself to just ease pain, from no where. I really think aliens infected us with this insidious ailments. I know your pain, keep moving forward be your own best friend, keep daily journals of pain,times next to prayer level and write at least 10 times a day. Documentation has saved me. I've lent out 4 years of journals to med student working on doctorates. We all sound like same women, I've had my teeth pulled because fybro set in my jaws. Don't do it please. So what can I give you to help. Get support, stay away from chemicals, no alcohol ,or sweets or smoking, or caffeine even though caffeine keeps you going, it really hurts in the long run. Drink plenty of water, when you can't get up try and record whats happening. Keep your mind on gentle things,good music,keep sound down. Truthfully I believe is put yourself back in the womb. Quiet dark place soft sounds, floating in water warm best and gentle fragrance. My pain can be set off by detergent iles. Hair dryers can be helpful to put warm air on body. Air conditioners can really do damage, it's hard for fybro people to regulate body temperature. Have colrs you enjoy around, declutter everything around you. Cleaning is hell, have just a few items you can control. Dishes are killers for me. When you feel ok cook lots and freeze it. Somedays putting food in microwave is too much. Try not to lose your passion in life, impossible right. Don't give up, breathe thats something fybro people don't do, we hold our breath! God be with you all. Pray answers come quickly
Remember no one knows your body better than you do! 💯Sending l💜ve out to my spoonies 💜💜💜
Tears...no words..just understanding tears
I’ve had it 23 yrs. Thank you for this. There’s got to be something we are missing in our bodies!! Prayers for all you beautiful ladies 🙏🏼🙏🏼🙏🏼🙏🏼 Mine was triggered by spinal meningitis!!
*I hope you will see this message. I started to have Chronic Pains since I was 9 years old. I am 17 now, finally battling with Chronic Pains, Fatigue, Headaches, EMF Sensitivities, Plantar Fasciitis, Unknown Illness, ++++ Etc... Recently, I discovered that there is a * clear link * between Fibromyalgia + EMF Sensitivities + Plantar Fasciitis, due to lack of Iodine. Because of " Iodine Deficiency ", somehow our body behave this way, due to lack of it. If you see this message, please check into " Iodine Deficiency ", because it saved my life. Now most of my symptoms I described above is gone!*
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
4 years ago I was diagnosed with FIBROYALGIA and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including FIBROYALGIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for FIBROYALGIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now totally free from FIBROYALGIA , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Why is it hard for people to understand the pain. My kids do not even want to here about it
Not being the mom you wanted to be for your children 😭 so true. Had me cry like a baby.
This made me cry, because it described my exact situation. I cant give up. I need help, doctors dont believe me. Never give up.
I so fed up with people mocking it. As the new "bad back'" however I did get a diagnosis from a consultant. I was just grateful to find I was not cuckoo.
Twenty plus years, with the pains and exhaustion I have become so clumsy, inept and isolated that l very rarely see anyone or do anything. l've lost interest in everything, even personal health and eating. l managed a tailor's in Beverly Hills and met Sammy Davis Jr., Barry White, and many many others, in their own homes. I toured the 'states, Canada, Argentina and Europe with rock bands. l played football for hours with my two sons, often four or five days in a row. One day/week/month i couldn't get out of bed. l don't feel sorry for myself but l am envious that you're all so positive and active and l do share every moment of happiness with you. No more alcohol or weed, no more Zomorph, Diazepam and just a few co-codamol now. l know meditation and relaxation well, but when l'm crawling out of my skin, getting through the next five minutes is my only concern and everything else goes out of the window. My heart goes out to all sufferers, whether it's F..M.., M.E., Epstein Barre, C.F.S. or whatever.
Today l made it to a "Drop-In coffee and cake morning" for the first time ever...I was just going to say 'l'm lonely'. l was the only one who showed up. All l can do is laugh to myself. One day it'll all make sense.