0:39 you've made my life so much I don't sleep much because I'm so excited to watch your😂 I had a stroke pre-christmas and two heart attacks. I'm from New Zealand. You're helping me save my life 🧬 Thank you Charles King Christchurch new Zealand
I just got diagnosed with cerebral ataxia. I’m 64, always active, played sports late into life. But looking back did notice problems. Balance, walking, eyes, head movement all a problem. Will take your videos to heart.
I'm actually crying right now. I am so glad I found your channel. I had the left half of my cerebellum removed due to an avm. I had a procedure done, but everything went wrong and I had to have emergency brain surgery and they just removed the whole left side of my cerebellum.. I woke up completely paralyzed. I had to relearn how to walk and talk. I was in my early 20s, so I was too old to get help if I was a child and I was too young to get help if I was a senior. I was in a lost area. I have done and tried many things. I have been to many physical therapists, but they don't do anything to help all of the issues I have. This definitely includes balance issues as well as ataxia. My surgery was 16 years ago, but I want to do everything I can to be the best version I can be. I think I'm going to look into a neuro physical therapist. I honestly didn't know this was a specialty. I have really been let done by all of the professionals I feel. I still try to keep a positive attitude and try to live my life the best I can. Sorry this was so long. I am just overwhelmed and blessed that I found you. Thank you.
I'm so sorry you have had this problem for so many years - I feel sorry for myself and I've only had it for 1.5 yrs. I finally saw a Neurologist last year and he actually gave me a diagnosis of Spinocerebellar Ataxia, what a relief that was to finally have a diagnosis. He can't do anything to help but it might be useful for you to look at all these replies. I do wish you all the best with your recovery and I hope you get your life back. Warmest regards, Carol
I have been struggling with balance issues and walking issues for a little over a year now and they still don't have a diagnosis in neurology here I am getting a second opinion in April of 2022 at the University at UW and I am excited I also need to exercise more but I've been so overwhelmed with this because my whole life has been about good balance and good walking blah blah blah I am freaked out and hope they can come with something and make what I have like I used to be. I guess power is knowledge I am grateful everyday for a lot of things. But I'm not sure if this is permanent or not yet, I hope not. Thank you for all of your comments I don't feel alone
Thank you once again for sharing the above exercise.. it drives a factor that yes we can do the same and get well soon. My problem is i am not able to flex my limbs . Need some one help to the same. Even if they do my feet slide down . Please guide me how to correct the same.. Thank you
I am currently 51 years old, I finally was diagnosed with Friedreich's ataxia 25 years ago. Your video's and exercises are a great help! I try to stay active by working out. I'm still able to drive, I drive better than I walk. I use a rolling walker to get around.
@@faisaltasiu5421 thank you for giving us a hope. I also suffer from ataxia disease. Where can I find them and order this medicaments. Thanks in advance for yor help🙏!
I have had #Ataxia# since I was 7 and I am 39 now. A lot of doctors don't even know what Ataxia is so I am so glad that I found your video . Thank you so so much.!
My husband has struggled with ataxia for several years. He has had MS for over 40 years and struggles with balance problems. I'm definitely going to have him do these exercises. Thank you so much for your videos!
#ataxia 8 years post. I get bored of the Exercises (Trunk, Quadruped, etc.) They do help if you do them every day like/through yoga/Pilates Thank you for everything you do!
Oh I’m so happy to have found this! Brain Tumor warrior here and these videos are great!! They finally put me in therapy and I am beyond grateful for what I'm learning! I never knew the term “Ataxia” before my physical therapist. I even said “tremors” to my doctor and he just said “that’s not what they are” but he never explained it. There really should be more female doctors. Anyway, now I am home watching UA-cam videos how I can exercise to help improve it! Very cool.
Ataxia#. I have seen 4 Neurologists and take every test known to medicine(that was the quote from the last Doctor) but he said "what you have will not get better but will probably get worse maybe PT will help" but wont diagnose as Ataxia. only Ataxia Doctor here in Metro Atlanta gave apt for July 2023. I can't walk with out staggering, stairs I must have helper. This has been coming on since my Extensive Spine Surgery. I have been a professional Ballet Dancer and and Gymnast ( came to late to that game). I have to get this out to someone who UNDERSTANDS. I have started doing your exercises for several issues. The Balance Corner is really hard for me right now. I can't tell you how happy I am to find you.....I'm a fit and determined to lady of a tiny 83. Bless You.
Thank you! I am 80, and had a TBI (two, actually, within 2 weeks of each other)and am working on balance, strength, and posture. I "graduated " from Home Health last month and am going to a PT at an office now. Standing in a corner with feet just wide enough not to fall was my first exercise, and then I got to the point where I could stand with feet touching each other. I am glad to be reminded--still need to do it. I also started going to a chiropractor and an acupuncturist.
#Ataxia Now 62 y/o -was diagnosed in 2019 with Cerebellar Ataxia. Genetic testing has not found a 'smoking gun.' In me the condition is mild and progressing slowly. With the help of PT and Speech therapy our goal is to slow the progress of the disease as much as possible. Your well prepared, lucid presentation dovetails so well with other valued resources. Thanks kindly for your help and encouragement.
Hi I am 43 yrs old, I was diagnosed with cerebral Palsy by the age of one: through physical therapy I can now walk, although with some tremoring. I still do my SLR on my own in my home and I just started to do some of your exercises on this channel because I feel that I have a wide gait. Thank you #ATAXIA
Thank you thank you thank you for this video! I learned more about myself in this 15 min video than I have from any other source. You just explained my entire life. I was dx’d by a geneticist last year at age 51. Both my teen girls have it as well, but both suffer much more than I did at their age. It breaks my mama heart. I wish more docs were knowledgeable about EDS!! I’ve been accused of making things up my entire life by both family and doctors (dx as either “conversion disorder”, or just flat out lying). So, truly, thank you for believing us, educating us and educating other providers!!!
Your video hits exactly on what I've been experiencing for the past 8 months. I have been seen by a neurologist, had an MRI of the brain, auditory exam, blood work-ups and other than peripheral nephropathy, doctors can't find a cause of my balance issues. In your video, you describe exactly what I am experiencing. Thank you!😀
Hi Ron I’m so sorry for your problem🙏🏽my mother has the exact same issue and doctors couldn’t find the cause of that. And unfortunately it’s getting worse.did you find anything new?or some medicine or exercise that can help? I will be so glad if you can share your information with me🙏🏽
Thank you - I just had an MRI and have sever atrophy in my ceribreleme and I'm confident that along with doing many of your exercise has kept me on my feet - thank to God for blessing my efforts to keep walking (making new pathways) Thank you !
I am 64 years old. I suffered a massive stroke that affected my sense of balance. I did physical therapy and occupational therapy post the stroke and I felt like while it helped it was not really suited for the kind of stroke recovery I was dealing with. I am so glad and grateful that a good friend found this video for me.
Thanks so much for this video. I am a doctor of physical therapy as well and I appreciate the clarity of your explanation. I have an uncle who had cerebellar stroke and in need of exercises and I shared this video to him, who is in the Philippines. More power!
My Wife has Ataxia due to a severe mid-brain Stroke. I’m her caregiver and helping her through her rehab challenges. The information in your videos is excellent. #Ataxia
I’ve been recently diagnosed with Parkinsonism while browsing the net I came across your videos .I showed them to my physiotherapist and he too acknowledged the need to do some of your exercises as some we are already doing. Live in India and we don’t have any trained neuro physiotherapist it the physiotherapist who is all in one.I’m really grateful to you for sharing your videos.once again thank you 😊
Thank you so much for doing these videos! I have been so depressed and kind of given up on trying to do any kind of PT. Your videos have been so educational and inspiring for me! I have MS I am partially paralyzed and I also had a CDF surgery two years ago so thank you again your videos have motivated me to learn to walk better and give me so much hope and well to try
My daughter has ataxia, due to cerebilitis, she received treatment but when she tries to walk she moves to one side. The video is helping us, thank you so much.
I got cerebral Ataxia from a Covid-19 infection - I think at the time my immune system was a bit weaker than it should have been and so the virus moved in for a few days and decided to move the furniture around... It's frustrating thinking and feeling normal and trying to speak to a friend and everything comes to a halt. I have disarthria too so even though I feel like I always did - my brain lost its ability to enunciate my words. Hard to explain since I always took these things for granted so didn't really think about them a whole lot. Now everything's changed I realise just how much effort goes into interacting with the world. I seem to plan my outing in my head and might actually leave the house two hours later - but if anything unplanned or unexpected suddenly happens it's like my brain has to reboot and I stop dead in my tracks until my heads back online and figuring out what to do next. I don't feel disabled really - it's annoying but I feel like I always did - just interact with the world like I always did. But I'm far from suffering. Could be far worse.
I am glad with your comment. I have (self diagnosis) ataxia symptoms since the cov infection and or spritz. At first my foot started to turn inwards while walking, then balance problems occurred. Then my pelvis became unstable with very painful muscle contractions. And with a right leg paralysis. I still cannot lift my leg high enough to walk up the stairs. after almost 3 years .Now weakness is getting worse. But have less pain. I found out that food is also a big player in the whole situation. Carbohydrates/grains result in swelling the upper legs en painful knees and hips. Besides cutting carbohydrates I also do prolonged fasting, like 48- 62 hours, to bring some peace and relaxation into my body and hopefully help with muscle healing through autophagy. I went to a PT for months but her practice only made the pain far worse. I hope that adding these dedicated ataxia exercises will bring somewhat more stability and strength back. 😊
My 80 year old sister has had cerebellar ataxia for about 8 years and is struggling in all the ways you described in the video, so I'm going to share this now with her. There is very little practical support for this in UK. Thank you for highlighting this!
I have chiari malformation and my cerebellum is being crushed by herniation into the spinal column. Balance issues are the worst symptoms however I have all of the other ones like swallowing, nystagmus and more ataxia type symptoms. I am going to try these exercises thank you.
#ataxia My sister just had a stroke at 37 years old and has ataxia, this was very helpful for me as one of her supports and will definitely help her incorporate the standing with feet together! Thank you!
Hi! I am 59 years old, I had two strokes in 2016 with no damage and major paralysis of my right side and I couldn't swallow. Thank God that with therapy I resumed walking and piano playing, sewing, etc. then in 2018 I had another stroke which weakened the right side and damaged my vocal cords. Thanks to God and a change of meds, I think the strokes are controlled. Lately I've been diagnosed with Patulous Eustachian Ear and dizziness. Thank you for these exercises, as I have seen some improvement in the dizziness!
#Ataxia SCA2 I was diagnosed with SCA2 back in May of this year. I am currently seeing a physical therapist to help with my balance issues. The exercises in this video are similar to others I've seen for slowing down the effects of SCA2. Thank you so much for the video and bringing attention to this disease. Pray for me and others as we fight the effects of Ataxia.
I am really glad that I found this channel my ataxia developed some time after I was diagnosed with Tardive Dystonia. I have fallen and hit my head so many times that I feel it's a miracle I'm alive at all. I did some Tai Chi which helped a lot (until covid closed the classes.).
Thanks again for a great video and explanation. This is what I needed for my love one that had a stroke due to a Malformation that leaked on the left cerebellum. Thanks God that Malformation was removed back in December 2019 and we are back to training. Based on what you mention in this video and now I remember some of the therapists lingo that of course I didn't know what they were saying and have to asked them again and again it looks that it is a matter of time...and training. I can see now why the Dr. In Physical Medicine and the Neurologist are so positive when they both told me it will be fine as soon all that area gets healed... Thank you, God Bless you.
I have SCA3 I got it from my father …I haven’t been diagnosed officially but I am showing symptoms now I am on a cane now..I’m happy I found this channel.
KARINE WERNER SO GLAD TO HAVEW FOUND YOU, HAVE BEEN DEALING WITH THAT FOR 10 YEARS (MISDIAGNOSED AS VERTIGO BY TOP NEUROLOGISTS.) YOUR SPECIFIC EXPLANATION OF ATAXIA SHOW ME AS HAVING ALL THESE SYMPTOMS. BUT YOU GIVE ME HOPE THAT I CAN HELP BY WORKING ON IT WITH THE SUGGESTION YOU OUTLINED SO WELL.THANK YOU SO MUCH.
I have been diagnosed with NPH and my balance has been affected so I think some of these exercises will be beneficial in addition to me going to a specialized neurological rehabilitation for my physical therapy.
#Ataxia 3 years ago I had 5 bilateral strokes and 2 brain seizures. As a result I have ataxia and vision problems. I am unable to stand with out holding onto something. I constantly feel as if I’m going to fall. In working with my physical therapist it has been decided that a wheelchair is now a permanent part of my life and I will be able to walk using a walker in and around the house. This video is giving me hope. Thank you.
Thank you so much for addressing this rare disease which robs us from all quality of life. I do your exercises for Ataxia often, but I do have a question. Will these exercises actually cause regeneration of our brain cerebellum? If not, please explain how they can help us with our balance. Thank you!
# Ataxia diagnosed in 2020. Had exposures to organic solvents in the drinking water at Camp Lejeune and MCAS El TORO. No walking problems until hospitalized with Covid in 2020
Ataxia really sucks but the good news is that after stroke you are getting better IF you exercise---even after several years! The problem are compensatory moves though after some time. Thanks for the exercises! i already know that it will take some time for me to perfect them.
#ataxia You are what I've been looking for since 2015. Fantastic!. I had a Haemorrhagic stroke which later caused Hypertrophic Olivary degeneration which left me virtually left me with no balance. Can't wait to start these exercises! Thank you !!
@@donreed5358 I had a hemorrhagic stroke in 2013 and had no balance problems until 18 months later. After having an MRI scan it was found I developed a rare condition caused by the stroke called "Hypertrophic Olivary Degeneration" causing severe balance loss, Nystagmus and a right arm intention tremor. I'm working every day on Dr Tobias's exercises and slowly seeing improvements during the exercises but still have the constant fear of falling out in the street.
Hello Dr. Tobias #Ataxia. I want to tank you for your videos. They really help people, who have suffered from a physical issue. I have been struggling for 21 years with ataxia. I found your videos and I already started to exercise. I believe that your videos would be of help. Thanks for them. Ricardo Leon
Hi. My name is Sabah. I am from Africa. Your videos are a life changer for my brother who is a stroke survivor. We are a very backward country. Therapists do not believe in recovery. But my sister and I are reaching for the stars. We believe our brother will fully recover God willing. We thank God we found your videos. My brother is 36. He had his stroke 2 months ago. He lost ability to talk and has right side paralysis. The left side of his brain is fully destroyed. But we started your exercises a few weeks ago and pur brother is walking with a walker now. Our goal is to help him to master stairs cuz I live in 5th floor and I want to take care of him when he leaves the hospital. Please dr. Help me. And share your best tips for hand and arm recovery. God bless you. You are the best. Thanks and we are grateful forever.
@@edgarlopez1640 thank you so much for your nice words. We sure will not give up till he gets his life back God willing. I wish you the best of everything.
I also had a massive stroke one year now. I had the exact symptoms as your brother had. I am a nurse by profession. I still go to therapy twice a week. We don’t have neuro therapist close by. I found Dr Tobias’channel and I’ve been following her videos. She’s helped me with my recovery. I was able to go up and down the stairs with my husband’s assistance. It was difficult but the more he practice the more confident he becomes. I also lost my speech and right side paralysis. I wish him well.
I am an Ataxia sufferer but myself doesnt listen to me or do anything about it and will seek medical help Thank goodness by listening to you I have a better understanding of this condition
Thank you so much Dr Tobias for your extremely helpful and informative videos. I have ms so supination, ataxia etc oh, and of course all with a sprinkling of pain. The exercises start tomorrow.
Hi Jeremy, thank you for sharing your story. I have lots of videos on supination. This is a good one to start with: ua-cam.com/video/iWEtH-A_6uk/v-deo.html
Thanks for the list of exercises. These are the most important, and the explanation on behind why they are important is a good reminder. I don't think I was officially diagnosed with ataxia, but yea. Still have a hard time standing with my feet together, so I got a balance pad to just stand on with my eyes shut.
#Ataxia : My stroke was Oct 2021 where I had a brain bleed in my left hemisphere that did not require a operation. Improvements have been steady, but now my main focus is figuring out how to write and eat using my right hand. I’ll proceed with the exercises you demonstrate in the presentation and see how it goes. Thanks and very clear in your explanation
I am 62 I 've lesion in brain also Scattered blood vessels damaging my White matter....but there is Hope... Blood pressure under control No alcohol no tequila never again Off balance ...you helped me a lot!! Thank youuuuu
I have ataxia I believe which has worsened because of a fall where I broke my left hip and left wrist. I am 80 years old and prior to my accident I have been having problems with my balance and now the problem is worse. I have been doing exercises for balance, but not sure how effective they have been. Thank you very much for your expertise in this matter. I will take advantage of your exercises.
I have been diagnosed with Ataxia based on the shaky and jerky movements of my left arm. My left side suffers from hemiparesis due to a hemorrhagic stroke suffered in September 2023. My left leg doesn’t seem to be affected. I really appreciate you addressing this as there is little information out there about how to treat it including from my medical and therapy team. That is frustrating as it has greatly impacted my recovery and day to day living. My left arm knocks things over when I’m trying to prepare meals or keeps me from tying a shoelace, carrying anything etc. #ataxia.
I am super glad to have found you and your videos. I have a diagnosis of Superficial Siderosis that has affected my hearing, balance, bladder problems, ataxia, etc. thank you for your explanations and especially for the exercises
Thank you for another fantastic video. While I haven't been officially diagnosed with Ataxia, a lot of the symptoms you describe are strikingly familiar, as working in construction most of my life, and having great balance. I'm sure these excersises will help restore that balance I'm walking with a quad cane now looking forward to the day when I can ditch the cane. Thanks for all your hard work 👍
9:459:459:459:45 Edward in Santa Monica California, thank you.... I've had two strokes in 4 years the first one I walked out of the ER in less than a week. The second one was two and a half years ago and very difficult. I thought it was in the back of the skull area of the brain. I have watched your videos of not to try to help me rehab myself because rehab has been very short-lived in my situation. One thing I have learned from having two strokes at 51 is you must try really hard it's a force of will to make the brain rewire itself and create new neural connections. I regained a lot of myself back of the first time the second time has been really challenging thankfully I haven't had a stroke again but now I know to call this balance issue. I've always had a hard time putting my shirt with both strokes I've had to retrain myself how to hand write the first time and did it pretty quickly within less than a year, I was running after the first one forcing myself to Chase my daughter. This is not so easy the second time around but to all you guys out there who have had similar issues. You must persist and force yourself to do things that you think you can't. I have severe balances issues. I thought I had gotten over but they seem to reappear after a bout with covid. 4 months ago. But now I'm trying to play guitar again which I have been playing for decades. I was completely paralyzed on the right side from head to toe I couldn't move my arm or bend my finger... Cook clean..... etc. I have been watching your videos for two and a half years and I thank you very very very very very very much they have been extremely helpful. Sometimes the health system fails us, and I had only about 1 and a half months of rehab.
#ataxia OHHHHHHHHHHHH, Thank You! I have had 4 spinal MRIs...I have ataxia, after many mis dx, I started with cervical myelopathy. My gait (wide) and BALANCE is now a BIG problem. I can't walk w/o help. thank you for your video.
So good I have ataxia I am 87. My balance is not good also very light headed, as if I have been drinking this is constant. I only have these two symptoms. Thank you.
Thank you Tara! Your vids have been very helpful and informative. I've been diagnosed with MSA-C with ataxia recently. Do you have any exercises for MSA patients?
Im really glad I found this. Not know what to do and struggling everyday especially since im a chef. My doctor says its will take a year to get back to normal but didn't give me a plan. So here I am. Thank you doctor for these beginner exercise. Its very scary going day to day. Lets go guys we got this!!!!😊
THANK you! I was diagnosed almost 20 years ago (unknown - hereditary ) control is a big issue How do you recommend getting over the "FEARS" that come with balance issues?
#ataxia I am 7 years post stroke. I have had 2 strokes: one a block, the other a bleed, with both the result of an AVM on my brain stem. The second stroke, a bleed, affected the cerabellum. I have balance and coordination problems so this video really helped. I would love to have more like them. Thank you so much, Dr. Tobias, for what you do!
Me too. In 2014 a bleeding AVM on brain stem. I can walk about 300 feet now. Goal is to get completely out of WC. Praying hard! I'll pray for y'all too!❤
Hello! I want to thank you for your input. I have balance problems and I attribute my problems to the lamotrigine I have been taking for my epilepsy. I am 65 and thankful to have what I have. There are others with intense problems. Please pass it on. VA is not very helpful in Gainesville. So I thank you for your help. Oh by the way, you are a very pretty woman who depicts all that is hurtful and can be overcome
#ataxia Thank You! I have been trying to get community physio help with this for almost a year. Does anyone else have episodic ataxia as a result of a Covid infection? Mine comes and goes. Sometimes I can walk normally for a short time and then it becomes ataxic or it just happens when I get up in the morning or after sitting down for a while. I had M.E. With very slight ataxic gait before that. I also have slurred speech.
Hello jojo! Yes, my ataxia is also intermittent. I am gluten intolerant and research says that gluten in all grains can cause neuro damage in those genetically susceptible. Check out Dr. Peter Osborne on You Tube. I also notice that my walking will be worse when I get fatigued. It is always mostly normal in the mornings. I too believe I have ME/CFS, as my brain feels inflamed often. I get migraine headaches with or without the inflammation feeling. The reason I am mentioning this is becuz I firmly believe that the latent Epstein-Barre virus, like Covid, is the main trigger for the inflammation that caused antibodies to attack my nerves. Working with GF/DF diet, supplements and now hoping these excercises will be helpful. Going to start on them ASAP! Hope you all benefit from them as well. Our brains are so important to health, must commit to protocols with determination for perseverance. Take care and Best wishes for your success!
I have ataxia. Had a brain tumour removed from my cerebellum in 2007 and am finally going to get serious about my balance. Had to learn to walk again, and cannot write it too wheeled bike. Thank you for this video, I am looking forward to listening to more.
#ataxia I first started going through this hell in 2001...20 years later I jogged for the first time more than a few steps, I actually ran windsprints across the back yard. They weren't pretty and I'm still not graceful...but I did them. It's a very embarrassing disease.
Shane- Keep going. Movement matters. I did same on my living room carpeted floor to the couch. Lol. Wish they made body armour for safety for this. Maybe marshmallow suits w helmets🙃 Good luck.
I just learn the simple term called Ataxia. Throughout my life I always had the problem with coordination which now gets worse as I get older. Yjaml you fhe video, It will be challenging for me to do those simple exercises.
I recently started having balance problems, I feel as if I'm going to tip forwards all the thim. It's like I've literally forgotten how to walk. It's worse with in public with movement. I'm fairly healthy. Been diagnosed with type 2 diabetes but not on any medication as the doctors told me I'm only slightly over what I should be. I do have back of head pains but feels more like frost bite. Neck ach to sometimes. It's really starting to get me down as I just don't want to leave the house. My, ears feel full at times, like they need to pop. It's juat so frustrating. I don't smoke or drink either.
Ataxia Spino -Cerebellar initial diagnosis ? 11:5011:50 after Gene test heterozygous variant for SCN9A, which is a variant of uncertain significance, and not clearly related with and specific neuropathies. I had 3 concussion over 5 years age 64-69 this is when my gait balance and Atrophy began prior I was climbing running active! You are magnifico and your work is helping 😢 Rey
Anyone find their condition worse when you go out ie leave your comfort zone. Like I'm fine around the house/work but once I go outside I'm allover the place.
phillip you are so right there, its then that you realise you are struggling to do every day normal things and you sort of have to double check you are doing nearly every thing right !
I have not had a stroke. I started falling. I have fallen 15 times. The last time I fell, I broke my left arm and a rod was placed in my arm. No one could tell me why I am falling. I cannot walk without assistance. I have difficulty moving my right leg. My balance is terrible.
Mine is on the left and my balance sucks , started 2 years ago woke up very dizzy and poor balance, I am learning now to walk without cane I'm only 40 it's so embarrassing people think I'm drunk and I don't even drink I hate Ataxia
Thanks for your great vidoes. I have cerabellar atrophy/apraxia, Brown's-Sequard Syndrome, and Retinitis Pigentosa. Balance and knee hyperextension (in one leg) have been major issues for me. You have inspired me to perform appropriate exercises at home in addition to my physical therapy visits.
Dear Dr. Tara, many thanks again for a super video. I was fine with balance until 1 yr post stroke, getting foggy brain days with constant furniture walking. It turned out to be a lack of the E and D vitamins, which seem to deplete rapidly in healing processes. That was easy to fix. Not so easy to fix are balance problems when the foot rolls and cramps in the middle of the walking due to stress from noise and fright to fall. That is why I love your standing exercises in many of your videos. It is always back to square one, standing, recollecting strength and balance and then slowly moving on. So lots of greetings and thank yous from Germany again. 🌻🌻🌻🌻🏵🏵🏵🌼🌼🌼
Hi Nina! Yes, I forgot to mention vitamin deficiencies in the video but I do mention it in a blog post. Thanks again for your amazing comments. They are alway gold. :) Chico and I sending love to Germany. :)
I am being evaluated for being constantly slightly off balance and I would like to try these exercises, but I have had bilateral total knee joints replacement - so I can't crawl or take a crawl position on the floor or on a mat or bed - I complained to the orthopedic surgeon at one of my check-ups and he said that is normal - It helps you walk and go up and down stairs but forget taking a position on your hands and knees.
Exercises Laying down 1. Heel to knee Goal smooth movement 5:45 2. Bridging variations 6:30 3. Sitting tall variations 6:50 4. On all 4s raise a leg (yoga) quadriped variations 7:50 Sitting Standing with narrow base. Goal no sway 8:50 Next video head, eye movement etc.
Hello, I have not been officially diagnosed with having Ataxia, but when I was receiving PT through Home Health, my therapist told me that I had ataxia on my right side. I have Chiari Malformation, surgery in 2020. I'm 42, no children. I'm glad that someone has covered this, hope to see more on this from you. Thanks 😊
Doc, thanks for all the information! It really helps. I try to watch all the commercials because its the only thing I can do in return. As long as its not the micronutrient guy who loves chlorella. Somehow he really makes my stomach turn!!! But the others I stay with! Thanks so much again Doc!
🙏 Thank you for watching. It means a lot to me that you would take this extra step for my benefit. I am happy to do what I do and I hope my videos continue to help you..........btw, I will keep an eye out for the ad you mentioned. I now need context 😂
0:39 you've made my life so much I don't sleep much because I'm so excited to watch your😂 I had a stroke pre-christmas and two heart attacks. I'm from New Zealand. You're helping me save my life 🧬
Thank you
Charles King Christchurch new Zealand
I just got diagnosed with cerebral ataxia. I’m 64, always active, played sports late into life. But looking back did notice problems.
Balance, walking, eyes, head movement all a problem.
Will take your videos to heart.
Me too
I'm actually crying right now. I am so glad I found your channel. I had the left half of my cerebellum removed due to an avm. I had a procedure done, but everything went wrong and I had to have emergency brain surgery and they just removed the whole left side of my cerebellum.. I woke up completely paralyzed. I had to relearn how to walk and talk. I was in my early 20s, so I was too old to get help if I was a child and I was too young to get help if I was a senior. I was in a lost area. I have done and tried many things. I have been to many physical therapists, but they don't do anything to help all of the issues I have. This definitely includes balance issues as well as ataxia. My surgery was 16 years ago, but I want to do everything I can to be the best version I can be. I think I'm going to look into a neuro physical therapist. I honestly didn't know this was a specialty. I have really been let done by all of the professionals I feel. I still try to keep a positive attitude and try to live my life the best I can. Sorry this was so long. I am just overwhelmed and blessed that I found you. Thank you.
Ataxia
I'm so sorry you have had this problem for so many years - I feel sorry for myself and I've only had it for 1.5 yrs. I finally saw a Neurologist last year and he actually gave me a diagnosis of Spinocerebellar Ataxia, what a relief that was to finally have a diagnosis. He can't do anything to help but it might be useful for you to look at all these replies. I do wish you all the best with your recovery and I hope you get your life back. Warmest regards, Carol
I also had AVM surgery , they did embolation which caused some strok in my crebellum , i can not keep banlance in the begining, now i am recovering
I have been struggling with balance issues and walking issues for a little over a year now and they still don't have a diagnosis in neurology here I am getting a second opinion in April of 2022 at the University at UW and I am excited I also need to exercise more but I've been so overwhelmed with this because my whole life has been about good balance and good walking blah blah blah I am freaked out and hope they can come with something and make what I have like I used to be. I guess power is knowledge I am grateful everyday for a lot of things. But I'm not sure if this is permanent or not yet, I hope not. Thank you for all of your comments I don't feel alone
Thank you once again for sharing the above exercise.. it drives a factor that yes we can do the same and get well soon. My problem is i am not able to flex my limbs . Need some one help to the same. Even if they do my feet slide down . Please guide me how to correct the same.. Thank you
Ataxia diagnosed in 1965 and still going!
Howw please the solution??
I am currently 51 years old, I finally was diagnosed with Friedreich's ataxia 25 years ago. Your video's and exercises are a great help! I try to stay active by working out. I'm still able to drive, I drive better than I walk. I use a rolling walker to get around.
Hi, I was diagnosed with Fredericks Ataxia 2 years ago, still getting "used" this, I am going to have a genetic test next month
Lynn, I understand about the driving, I do too!!
“Ataxia (I was a yoga exercise instructor). I was able to through all the exercises and hope so much I recover. Thank you so so so much.
I am a retired teacher 58 years.i have dificalty in talking
Due exises ofdepretion dose.plz hel
Plz help
@@sherazbegum7510 I on b9b ok jbii book b9ijbj you
Hi there is a herbal cure for ataxia, I was recently cured using dr nafuar herbal medicine and now I’m perfectly better
@@faisaltasiu5421 thank you for giving us a hope. I also suffer from ataxia disease.
Where can I find them and order this medicaments.
Thanks in advance for yor help🙏!
I have had #Ataxia# since I was 7 and I am 39 now. A lot of doctors don't even know what Ataxia is so I am so glad that I found your video . Thank you so so much.!
I was diagnosed in 2020 with cerebral ataxia at 42. So glad I found this
My husband has genetic ataxia SCA6. Your video is very helpful. He is wheelchair bound and struggles with speaking, fine motor skills, and tremors.
My husband has struggled with ataxia for several years. He has had MS for over 40 years and struggles with balance problems. I'm definitely going to have him do these exercises. Thank you so much for your videos!
🧡 this is exactly y I’m here!
MS for 51 year's
#Ataxia
Ataxia suffering
#ataxia 8 years post. I get bored of the Exercises (Trunk, Quadruped, etc.) They do help if you do them every day like/through yoga/Pilates
Thank you for everything you do!
Oh I’m so happy to have found this! Brain Tumor warrior here and these videos are great!!
They finally put me in therapy and I am beyond grateful for what I'm learning! I never knew the term “Ataxia” before my physical therapist. I even said “tremors” to my doctor and he just said “that’s not what they are” but he never explained it. There really should be more female doctors.
Anyway, now I am home watching UA-cam videos how I can exercise to help improve it! Very cool.
Ataxia#. I have seen 4 Neurologists and take every test known to medicine(that was the quote from the last Doctor) but he said "what you have will not get better but will probably get worse maybe PT will help" but wont diagnose as Ataxia. only Ataxia Doctor here in Metro Atlanta gave apt for July 2023. I can't walk with out staggering, stairs I must have helper. This has been coming on since my Extensive Spine Surgery. I have been a professional Ballet Dancer and and Gymnast ( came to late to that game). I have to get this out to someone who UNDERSTANDS. I have started doing your exercises for several issues. The Balance Corner is really hard for me right now. I can't tell you how happy I am to find you.....I'm a fit and determined to lady of a tiny 83. Bless You.
Thank you! I am 80, and had a TBI (two, actually, within 2 weeks of each other)and am working on balance, strength, and posture. I "graduated " from Home Health last month and am going to a PT at an office now. Standing in a corner with feet just wide enough not to fall was my first exercise, and then I got to the point where I could stand with feet touching each other. I am glad to be reminded--still need to do it. I also started going to a chiropractor and an acupuncturist.
My Mum has ataxia post stroke. Your videos are incredible. So easy to understand and informative. I wish we lived in Orlando! Thanks from the UK 😃
#Ataxia Now 62 y/o -was diagnosed in 2019 with Cerebellar Ataxia. Genetic testing has not found a 'smoking gun.' In me the condition is mild and progressing slowly. With the help of PT and Speech therapy our goal is to slow the progress of the disease as much as possible.
Your well prepared, lucid presentation dovetails so well with other valued resources. Thanks kindly for your help and encouragement.
Hi I am 43 yrs old, I was diagnosed with cerebral Palsy by the age of one: through physical therapy I can now walk, although with some tremoring. I still do my SLR on my own in my home and I just started to do some of your exercises on this channel because I feel that I have a wide gait. Thank you
#ATAXIA
Thank you thank you thank you for this video! I learned more about myself in this 15 min video than I have from any other source. You just explained my entire life. I was dx’d by a geneticist last year at age 51. Both my teen girls have it as well, but both suffer much more than I did at their age. It breaks my mama heart. I wish more docs were knowledgeable about EDS!! I’ve been accused of making things up my entire life by both family and doctors (dx as either “conversion disorder”, or just flat out lying). So, truly, thank you for believing us, educating us and educating other providers!!!
Your video hits exactly on what I've been experiencing for the past 8 months. I have been seen by a neurologist, had an MRI of the brain, auditory exam, blood work-ups and other than peripheral nephropathy, doctors can't find a cause of my balance issues. In your video, you describe exactly what I am experiencing. Thank you!😀
Hi Ron I’m so sorry for your problem🙏🏽my mother has the exact same issue and doctors couldn’t find the cause of that. And unfortunately it’s getting worse.did you find anything new?or some medicine or exercise that can help? I will be so glad if you can share your information with me🙏🏽
Did u get headache also
same for me. nothing shows up but I have lost my balance and topple over. 6 months in hospital last year
This video is the best sign of hope I've seen in what has been a long standing, troubling issue. Thank you for this
Thank you - I just had an MRI and have sever atrophy in my ceribreleme and I'm confident that along with doing many of your exercise has kept me on my feet - thank to God for blessing my efforts to keep walking (making new pathways) Thank you !
How old are you?
Is there any improvement in your condition?
@@Hi22213do you have Ataxia
59 nope, that's expected, but my faith is strong and HE holds my fast
@@Hi22213
I am 64 years old. I suffered a massive stroke that affected my sense of balance. I did physical therapy and occupational therapy post the stroke and I felt like while it helped it was not really suited for the kind of stroke recovery I was dealing with. I am so glad and grateful that a good friend found this video for me.
Thanks so much for this video. I am a doctor of physical therapy as well and I appreciate the clarity of your explanation. I have an uncle who had cerebellar stroke and in need of exercises and I shared this video to him, who is in the Philippines. More power!
With the onslaught of the healthcare system, covid-19, civil unrest, you're a becon in one hell-of-a storm. Thank you. You're priceless.#Ataxia.
My Wife has Ataxia due to a severe mid-brain Stroke. I’m her caregiver and helping her through her rehab challenges. The information in your videos is excellent. #Ataxia
Great routine of exercises #ataxia (and Mal de debarquement )
How she doing now
I’ve been recently diagnosed with Parkinsonism while browsing the net I came across your videos .I showed them to my physiotherapist and he too acknowledged the need to do some of your exercises as some we are already doing. Live in India and we don’t have any trained neuro physiotherapist it the physiotherapist who is all in one.I’m really grateful to you for sharing your videos.once again thank you 😊
Thank you so much for doing these videos! I have been so depressed and kind of given up on trying to do any kind of PT. Your videos have been so educational and inspiring for me! I have MS I am partially paralyzed and I also had a CDF surgery two years ago so thank you again your videos have motivated me to learn to walk better and give me so much hope and well to try
My daughter has ataxia, due to cerebilitis, she received treatment but when she tries to walk she moves to one side. The video is helping us, thank you so much.
How’s your daughter now what treatment she got what were her symptoms
Thank you ! I have ataxia since my cerebellum stroke. It’s been almost one year now, your videos really help.
How are UA-cam now?
I got cerebral Ataxia from a Covid-19 infection - I think at the time my immune system was a bit weaker than it should have been and so the virus moved in for a few days and decided to move the furniture around...
It's frustrating thinking and feeling normal and trying to speak to a friend and everything comes to a halt. I have disarthria too so even though I feel like I always did - my brain lost its ability to enunciate my words. Hard to explain since I always took these things for granted so didn't really think about them a whole lot. Now everything's changed I realise just how much effort goes into interacting with the world.
I seem to plan my outing in my head and might actually leave the house two hours later - but if anything unplanned or unexpected suddenly happens it's like my brain has to reboot and I stop dead in my tracks until my heads back online and figuring out what to do next. I don't feel disabled really - it's annoying but I feel like I always did - just interact with the world like I always did. But I'm far from suffering. Could be far worse.
I am glad with your comment. I have (self diagnosis) ataxia symptoms since the cov infection and or spritz. At first my foot started to turn inwards while walking, then balance problems occurred. Then my pelvis became unstable with very painful muscle contractions. And with a right leg paralysis. I still cannot lift my leg high enough to walk up the stairs. after almost 3 years .Now weakness is getting worse. But have less pain. I found out that food is also a big player in the whole situation. Carbohydrates/grains result in swelling the upper legs en painful knees and hips. Besides cutting carbohydrates I also do prolonged fasting, like 48- 62 hours, to bring some peace and relaxation into my body and hopefully help with muscle healing through autophagy. I went to a PT for months but her practice only made the pain far worse. I hope that adding these dedicated ataxia exercises will bring somewhat more stability and strength back. 😊
My 80 year old sister has had cerebellar ataxia for about 8 years and is struggling in all the ways you described in the video, so I'm going to share this now with her. There is very little practical support for this in UK. Thank you for highlighting this!
I have chiari malformation and my cerebellum is being crushed by herniation into the spinal column. Balance issues are the worst symptoms however I have all of the other ones like swallowing, nystagmus and more ataxia type symptoms. I am going to try these exercises thank you.
#ataxia My sister just had a stroke at 37 years old and has ataxia, this was very helpful for me as one of her supports and will definitely help her incorporate the standing with feet together! Thank you!
Hi! I am 59 years old, I had two strokes in 2016 with no damage and major paralysis of my right side and I couldn't swallow. Thank God that with therapy I resumed walking and piano playing, sewing, etc. then in 2018 I had another stroke which weakened the right side and damaged my vocal cords. Thanks to God and a change of meds, I think the strokes are controlled. Lately I've been diagnosed with Patulous Eustachian Ear and dizziness. Thank you for these exercises, as I have seen some improvement in the dizziness!
#Ataxia SCA2 I was diagnosed with SCA2 back in May of this year. I am currently seeing a physical therapist to help with my balance issues. The exercises in this video are similar to others I've seen for slowing down the effects of SCA2. Thank you so much for the video and bringing attention to this disease. Pray for me and others as we fight the effects of Ataxia.
I also am struggling with sca2
I’m suffering from SCA 2 too
I am really glad that I found this channel my ataxia developed some time after I was diagnosed with Tardive Dystonia. I have fallen and hit my head so many times that I feel it's a miracle I'm alive at all. I did some Tai Chi which helped a lot (until covid closed the classes.).
Thanks again for a great video and explanation. This is what I needed for my love one that had a stroke due to a Malformation that leaked on the left cerebellum. Thanks God that Malformation was removed back in December 2019 and we are back to training. Based on what you mention in this video and now I remember some of the therapists lingo that of course I didn't know what they were saying and have to asked them again and again it looks that it is a matter of time...and training. I can see now why the Dr. In Physical Medicine and the Neurologist are so positive when they both told me it will be fine as soon all that area gets healed... Thank you, God Bless you.
I have SCA3 I got it from my father …I haven’t been diagnosed officially but I am showing symptoms now I am on a cane now..I’m happy I found this channel.
Thank you so much, so glad I found your exercise. I am having a bit of a problem with balance. Thank you again,
KARINE WERNER
SO GLAD TO HAVEW FOUND YOU, HAVE BEEN DEALING WITH THAT FOR 10 YEARS (MISDIAGNOSED AS VERTIGO BY TOP NEUROLOGISTS.) YOUR SPECIFIC EXPLANATION OF ATAXIA SHOW ME AS HAVING ALL THESE SYMPTOMS. BUT YOU GIVE ME HOPE THAT I CAN HELP BY WORKING ON IT WITH THE SUGGESTION YOU OUTLINED SO WELL.THANK YOU SO MUCH.
I have been diagnosed with NPH and my balance has been affected so I think some of these exercises will be beneficial in addition to me going to a specialized neurological rehabilitation for my physical therapy.
#Ataxia 3 years ago I had 5 bilateral strokes and 2 brain seizures. As a result I have ataxia and vision problems. I am unable to stand with out holding onto something. I constantly feel as if I’m going to fall. In working with my physical therapist it has been decided that a wheelchair is now a permanent part of my life and I will be able to walk using a walker in and around the house. This video is giving me hope. Thank you.
Thank you so much for addressing this rare disease which robs us from all quality of life. I do your exercises for Ataxia often, but I do have a question. Will these exercises actually cause regeneration of our brain cerebellum? If not, please explain how they can help us with our balance. Thank you!
# Ataxia diagnosed in 2020. Had exposures to organic solvents in the drinking water at Camp Lejeune and MCAS El TORO. No walking problems until hospitalized with Covid in 2020
Ataxia really sucks but the good news is that after stroke you are getting better IF you exercise---even after several years! The problem are compensatory moves though after some time. Thanks for the exercises! i already know that it will take some time for me to perfect them.
Great explanation , you are number 1 in world gives explanation about cerebellum disease
I haven't been diagnosed with Ataxia, but I sure feel like I have it. I have balance, walking, movement problems.
I have recently been diagnosed with ataxia. These videos are some of the best that I've seen. Thank you so much!
#ataxia You are what I've been looking for since 2015. Fantastic!. I had a Haemorrhagic stroke which later caused Hypertrophic Olivary degeneration which left me virtually left me with no balance. Can't wait to start these exercises! Thank you !!
#ataxi I believe I have ataxia. Stroke 7 years ago. Balance problems for last 3 years.
@@donreed5358 I had a hemorrhagic stroke in 2013 and had no balance problems until 18 months later. After having an MRI scan it was found I developed a rare condition caused by the stroke called "Hypertrophic Olivary Degeneration" causing severe balance loss, Nystagmus and a right arm intention tremor. I'm working every day on Dr Tobias's exercises and slowly seeing improvements during the exercises but still have the constant fear of falling out in the street.
Hi there is a herbal cure for ataxia I got cured using dr nafuar herbal medicine and now I’m perfectly fine thanks dr nafuar
@@TonyAnderson54 Wow, that's great you are getting results! I am encouraged by your message. Please update us on your progress to date.
Hello Dr. Tobias
#Ataxia. I want to tank you for your videos. They really help people, who have suffered from a physical issue. I have been struggling for 21 years with ataxia. I found your videos and I already started to exercise. I believe that your videos would be of help. Thanks for them.
Ricardo Leon
#ataxia Just what I need right now! Imagine #ataxia plus numb legs and feet 😖.
Thanks a lot and can’t wait for the next video!! ♥️♥️♥️
Friedreich's ataxia patient here. I love your channel. #ataxia
Hi. My name is Sabah. I am from Africa. Your videos are a life changer for my brother who is a stroke survivor. We are a very backward country. Therapists do not believe in recovery. But my sister and I are reaching for the stars. We believe our brother will fully recover God willing. We thank God we found your videos. My brother is 36. He had his stroke 2 months ago. He lost ability to talk and has right side paralysis. The left side of his brain is fully destroyed. But we started your exercises a few weeks ago and pur brother is walking with a walker now. Our goal is to help him to master stairs cuz I live in 5th floor and I want to take care of him when he leaves the hospital. Please dr. Help me. And share your best tips for hand and arm recovery. God bless you. You are the best. Thanks and we are grateful forever.
God bless you don't lose hope just work hard i wish your brother to be healed
@@edgarlopez1640 thank you so much for your nice words. We sure will not give up till he gets his life back God willing. I wish you the best of everything.
I also had a massive stroke one year now. I had the exact symptoms as your brother had. I am a nurse by profession. I still go to therapy twice a week. We don’t have neuro therapist close by. I found Dr Tobias’channel and I’ve been following her videos. She’s helped me with my recovery. I was able to go up and down the stairs with my husband’s assistance. It was difficult but the more he practice the more confident he becomes. I also lost my speech and right side paralysis. I wish him well.
I am believing that GOD is going to heal you right now in THE NAME OF JESUS CHRIST AS OUR LORD AND SAVIOUR AMEN
What's the difference between Ataxia,Dizziness?
I am an Ataxia sufferer but myself doesnt listen to me or do anything about it and will seek medical help
Thank goodness by listening to you I have a better understanding of this condition
Thank you so much Dr Tobias for your extremely helpful and informative videos. I have ms so supination, ataxia etc oh, and of course all with a sprinkling of pain. The exercises start tomorrow.
Hi Jeremy, thank you for sharing your story. I have lots of videos on supination. This is a good one to start with: ua-cam.com/video/iWEtH-A_6uk/v-deo.html
I do not suffer with ataxia however I am working with somebody who does and I appreciate all of your knowledge. Thank you.
Thanks for the list of exercises. These are the most important, and the explanation on behind why they are important is a good reminder. I don't think I was officially diagnosed with ataxia, but yea. Still have a hard time standing with my feet together, so I got a balance pad to just stand on with my eyes shut.
I have CMT, had a stroke 11-30-21, # ataxia.
Im so thankful for you and your help
You are a wealth of knowledge. Thank you so much for making these videos❤️
Hi Thanh! Thank you for watching. I hope it was helpful.
#Ataxia : My stroke was Oct 2021 where I had a brain bleed in my left hemisphere that did not require a operation. Improvements have been steady, but now my main focus is figuring out how to write and eat using my right hand. I’ll proceed with the exercises you demonstrate in the presentation and see how it goes. Thanks and very clear in your explanation
Ataxia
I am 62 I 've lesion in brain also
Scattered blood vessels damaging my White matter....but there is Hope...
Blood pressure under control
No alcohol no tequila never again
Off balance ...you helped me a lot!!
Thank youuuuu
Thank you. I have Ataxia, and it is a never-ending fight. Thanks for the tools! #Ataxia.
I have ataxia I believe which has worsened because of a fall where I broke my left hip and left wrist. I am 80 years old and prior to my accident I have been having problems with my balance and now the problem is worse. I have been doing exercises for balance, but not sure how effective they have been. Thank you very much for your expertise in this matter. I will take advantage of your exercises.
Thank you for watching Barbara! I always recommend people who have a history of falls work with a therapist in person :)
Since I have been working the exercises for balance. My balance has improved.
Thank you. I work on my balance daily.
I have been diagnosed with Ataxia based on the shaky and jerky movements of my left arm. My left side suffers from hemiparesis due to a hemorrhagic stroke suffered in September 2023. My left leg doesn’t seem to be affected. I really appreciate you addressing this as there is little information out there about how to treat it including from my medical and therapy team. That is frustrating as it has greatly impacted my recovery and day to day living. My left arm knocks things over when I’m trying to prepare meals or keeps me from tying a shoelace, carrying anything etc. #ataxia.
There’s a name for what’s going on with me! Thank you 🙏
I am super glad to have found you and your videos. I have a diagnosis of Superficial Siderosis that has affected my hearing, balance, bladder problems, ataxia, etc. thank you for your explanations and especially for the exercises
Thank you for another fantastic video. While I haven't been officially diagnosed with Ataxia, a lot of the symptoms you describe are strikingly familiar, as working in construction most of my life, and having great balance. I'm sure these excersises will help restore that balance
I'm walking with a quad cane now looking forward to the day when I can ditch the cane. Thanks for all your hard work 👍
9:45 9:45 9:45 9:45 Edward in Santa Monica California, thank you.... I've had two strokes in 4 years the first one I walked out of the ER in less than a week. The second one was two and a half years ago and very difficult. I thought it was in the back of the skull area of the brain. I have watched your videos of not to try to help me rehab myself because rehab has been very short-lived in my situation. One thing I have learned from having two strokes at 51 is you must try really hard it's a force of will to make the brain rewire itself and create new neural connections. I regained a lot of myself back of the first time the second time has been really challenging thankfully I haven't had a stroke again but now I know to call this balance issue. I've always had a hard time putting my shirt with both strokes I've had to retrain myself how to hand write the first time and did it pretty quickly within less than a year, I was running after the first one forcing myself to Chase my daughter. This is not so easy the second time around but to all you guys out there who have had similar issues. You must persist and force yourself to do things that you think you can't. I have severe balances issues. I thought I had gotten over but they seem to reappear after a bout with covid. 4 months ago. But now I'm trying to play guitar again which I have been playing for decades. I was completely paralyzed on the right side from head to toe I couldn't move my arm or bend my finger... Cook clean..... etc.
I have been watching your videos for two and a half years and I thank you very very very very very very much they have been extremely helpful. Sometimes the health system fails us, and I had only about 1 and a half months of rehab.
#ataxia OHHHHHHHHHHHH, Thank You! I have had 4 spinal MRIs...I have ataxia, after many mis dx, I started with cervical myelopathy. My gait (wide) and BALANCE is now a BIG problem. I can't walk w/o help. thank you for your video.
Same! I am 33 never had a stroke but the anxiety is bad everyday.
So good I have ataxia I am 87. My balance is not good also very light headed, as if I have been drinking this is constant. I only have these two symptoms.
Thank you.
#ataxia FINALLY! This is EXACTLY ME! I could cry I needed this so much.
My 3 year old baby is ataxic... i am also very worried about her..
hi Gloria - you are not alone!
#my friend of mine has Ataxia. Excited to tell him about your exercises. How Wonderful.
Thank you Tara! Your vids have been very helpful and informative. I've been diagnosed with MSA-C with ataxia recently.
Do you have any exercises for MSA patients?
Im really glad I found this. Not know what to do and struggling everyday especially since im a chef. My doctor says its will take a year to get back to normal but didn't give me a plan. So here I am. Thank you doctor for these beginner exercise. Its very scary going day to day. Lets go guys we got this!!!!😊
Did you see a neurologist @Yu-kneek
THANK you! I was diagnosed almost 20 years ago (unknown - hereditary ) control is a big issue How do you recommend getting over the "FEARS" that come with balance issues?
Hi there is a herbal cure for it, I was recently cured using dr nafuar herbal medicine now I’m feeling better and okay
@Anjana Rakesh ua-cam.com/channels/63ZzkkWvMxOgtH_8pcSAXg.html
@Anjana Rakesh that’s his UA-cam link
@@faisaltasiu5421 how can I get it
#ataxia I am 7 years post stroke. I have had 2 strokes: one a block, the other a bleed, with both the result of an AVM on my brain stem. The second stroke, a bleed, affected the cerabellum. I have balance and coordination problems so this video really helped. I would love to have more like them. Thank you so much, Dr. Tobias, for what you do!
I also had an avm in my cerebellum though. They removed the left half of my cerebellum and I now have balance issues, ataxia, and some other stuff.
Me too. In 2014 a bleeding AVM on brain stem. I can walk about 300 feet now. Goal is to get completely out of WC. Praying hard! I'll pray for y'all too!❤
I am almost four years stroke. I am having a lot of trouble with my balance.
Hello! I want to thank you for your input. I have balance problems and I attribute my problems to the lamotrigine I have been taking for my epilepsy. I am 65 and thankful to have what I have. There are others with intense problems. Please pass it on. VA is not very helpful in Gainesville. So I thank you for your help. Oh by the way, you are a very pretty woman who depicts all that is hurtful and can be overcome
#ataxia Thank You! I have been trying to get community physio help with this for almost a year. Does anyone else have episodic ataxia as a result of a Covid infection? Mine comes and goes. Sometimes I can walk normally for a short time and then it becomes ataxic or it just happens when I get up in the morning or after sitting down for a while. I had M.E. With very slight ataxic gait before that. I also have slurred speech.
Hello jojo! Yes, my ataxia is also intermittent. I am gluten intolerant and research says that gluten in all grains can cause neuro damage in those genetically susceptible. Check out Dr. Peter Osborne on You Tube. I also notice that my walking will be worse when I get fatigued. It is always mostly normal in the mornings. I too believe I have ME/CFS, as my brain feels inflamed often. I get migraine headaches with or without the inflammation feeling. The reason I am mentioning this is becuz I firmly believe that the latent Epstein-Barre virus, like Covid, is the main trigger for the inflammation that caused antibodies to attack my nerves. Working with GF/DF diet, supplements and now hoping these excercises will be helpful. Going to start on them ASAP! Hope you all benefit from them as well. Our brains are so important to health, must commit to protocols with determination for perseverance. Take care and Best wishes for your success!
@@lauragott2122 hi Laura! How do you find help with me/CFS and treating Epstein Barr .?
I have ataxia. Had a brain tumour removed from my cerebellum in 2007 and am finally going to get serious about my balance. Had to learn to walk again, and cannot write it too wheeled bike. Thank you for this video, I am looking forward to listening to more.
#ataxia I first started going through this hell in 2001...20 years later I jogged for the first time more than a few steps, I actually ran windsprints across the back yard. They weren't pretty and I'm still not graceful...but I did them. It's a very embarrassing disease.
Shane- Keep going. Movement matters. I did same on my living room carpeted floor to the couch. Lol. Wish they made body armour for safety for this. Maybe marshmallow suits w helmets🙃 Good luck.
Yes that's the worse part it's so embarrassing #ataxia
I want to give thanks to dr nafuar for permanently curing me and making me whole again now I’m totally free and okay
I know, I walk and I'm sure people think I'm drunk!
yep, i have ataxia and starting P.T. next week. came here to learn what to expect. doing so well with O.T. and will continue.
Nice video, I will show this at one of my Virtual Ataxia Support Group Meetings. #Ataxia
Hi Lisa, my mom was diagnose this year and it’s been extremely tough. Do u think you could connect me with that group? Or could I connect with you?
I just learn the simple term called Ataxia. Throughout my life I always had the problem with coordination which now gets worse as I get older. Yjaml you fhe video, It will be challenging for me to do those simple exercises.
I'm a year post stroke and I'm struggling with balance when standing on one leg, i hope these exercises will help.thank you
athi, God bless you, Im with you(well, I’m left side paralyzed from stroke).Im 1 year and 8 months post.
Grandma from New Zealand ..yes I have ataxia..this is a great video ..I can Walk ok but it’s a bit of an effort! Thank you
I recently started having balance problems, I feel as if I'm going to tip forwards all the thim. It's like I've literally forgotten how to walk. It's worse with in public with movement. I'm fairly healthy. Been diagnosed with type 2 diabetes but not on any medication as the doctors told me I'm only slightly over what I should be. I do have back of head pains but feels more like frost bite. Neck ach to sometimes. It's really starting to get me down as I just don't want to leave the house. My, ears feel full at times, like they need to pop. It's juat so frustrating. I don't smoke or drink either.
Look up peripheral vascular/nerve disease to see if that is similar to your symptoms.
Ataxia Spino -Cerebellar initial diagnosis ? 11:50 11:50 after Gene test heterozygous variant for SCN9A, which is a variant of uncertain significance, and not clearly related with and specific neuropathies. I had 3 concussion over 5 years age 64-69 this is when my gait balance and Atrophy began prior I was climbing running active! You are magnifico and your work is helping 😢 Rey
Anyone find their condition worse when you go out ie leave your comfort zone. Like I'm fine around the house/work but once I go outside I'm allover the place.
Hi Philip! this is an excellent question and one that has come up a few times recently. So I will be addressing this soon in a video! Stay tuned!
phillip you are so right there, its then that you realise you are struggling to do every day normal things and you sort of have to double check you are doing nearly every thing right !
You are so brilliant at sharing you’re knowledge such a help for my patients
I have not had a stroke. I started falling. I have fallen 15 times. The last time I fell, I broke my left arm and a rod was placed in my arm. No one could tell me why I am falling. I cannot walk without assistance. I have difficulty moving my right leg. My balance is terrible.
Mine is on the left and my balance sucks , started 2 years ago woke up very dizzy and poor balance, I am learning now to walk without cane I'm only 40 it's so embarrassing people think I'm drunk and I don't even drink I hate Ataxia
Hope you had a CT scan.
Thanks for your great vidoes. I have cerabellar atrophy/apraxia, Brown's-Sequard Syndrome, and Retinitis Pigentosa. Balance and knee hyperextension (in one leg) have been major issues for me. You have inspired me to perform appropriate exercises at home in addition to my physical therapy visits.
Dear Dr. Tara, many thanks again for a super video. I was fine with balance until 1 yr post stroke, getting foggy brain days with constant furniture walking. It turned out to be a lack of the E and D vitamins, which seem to deplete rapidly in healing processes. That was easy to fix.
Not so easy to fix are balance problems when the foot rolls and cramps in the middle of the walking due to stress from noise and fright to fall.
That is why I love your standing exercises in many of your videos. It is always back to square one, standing, recollecting strength and balance and then slowly moving on.
So lots of greetings and thank yous from Germany again.
🌻🌻🌻🌻🏵🏵🏵🌼🌼🌼
Hi Nina! Yes, I forgot to mention vitamin deficiencies in the video but I do mention it in a blog post. Thanks again for your amazing comments. They are alway gold. :) Chico and I sending love to Germany. :)
‘£araxia
#ataxia
I am being evaluated for being constantly slightly off balance and I would like to try these exercises, but I have had bilateral total knee joints replacement - so I can't crawl or take a crawl position on the floor or on a mat or bed - I complained to the orthopedic surgeon at one of my check-ups and he said that is normal - It helps you walk and go up and down stairs but forget taking a position on your hands and knees.
Exercises
Laying down
1. Heel to knee Goal smooth movement 5:45
2. Bridging variations 6:30
3. Sitting tall variations 6:50
4. On all 4s raise a leg (yoga) quadriped variations 7:50
Sitting
Standing with narrow base. Goal no sway 8:50
Next video head, eye movement etc.
I live in Trinidad & Tobago. had right sided 2011. thanx for d info. God bless.
Thank you for this video. Wife has ataxia from a brain stem cav mal and subsequent surgery. Will definitely be running her through these exercises
#Ataxia ; this video wasn't making sense to me @ first ... tthen i saw the exercises an i had an, "AHA", moment lol. Cracked myself up
Hello, I have not been officially diagnosed with having Ataxia, but when I was receiving PT through Home Health, my therapist told me that I had ataxia on my right side. I have Chiari Malformation, surgery in 2020. I'm 42, no children. I'm glad that someone has covered this, hope to see more on this from you. Thanks 😊
#ataxia
Thank you!
Doc, thanks for all the information! It really helps. I try to watch all the commercials because its the only thing I can do in return. As long as its not the micronutrient guy who loves chlorella. Somehow he really makes my stomach turn!!! But the others I stay with! Thanks so much again Doc!
🙏 Thank you for watching. It means a lot to me that you would take this extra step for my benefit. I am happy to do what I do and I hope my videos continue to help you..........btw, I will keep an eye out for the ad you mentioned. I now need context 😂