I'm a Sri Lankan laddy .I have been suffering from spinocerebellar ataxia since 1996.. Prof. N.Senanayake ( neurologist ) diagnosed that I have degeneration in my cerebellar .I done MRI scan in 1999. .After tjhat I got treatment .fortunately my speech anb hand writing is well but I have walking difficulties .I can't walk on straight line and climb up or down stairs without help of others 😢. I do physiotherapy at my home everyday .Now l'm 48 years . I'm waiting for treatment for this .By the way thank u very much your video .
Could you please help me by sharing my contents with your friends group/ college group. I put huge efforts in making these videos but unfortunately not a lot of people are watching this.
As a microbiology professor , I wanted to take a moment to express my sincere gratitude for generously sharing your knowledge and expertise through your educational videos. Your dedication to creating informative content has been incredibly valuable to me and countless others. I would also like to express my curiosity about the software programs you may utilize to create your instructional materials and presentations. As someone interested in exploring the world of microbiology further, I would be grateful for any insights or recommendations you can offer. Once again, thank you for your dedication to education and for sharing your expertise with the world 💙🙏
I make all the graphics using powerpoint. In a comprehensive course I also teach how one can create such graphics only @12$. In case you want to know more email us at arpanparichha1994@gmail.com
Hi. As you are experts in this area can I ask if you have any experience of anyone using physical exercise in the form of challenging balance with speed amplitude and complexity with the hope of stimulating neurplasticity to create possible new pathways to help overcome or slow down the progressive symptoms. Can you advise on avenues I could explore in this area. Thanks in advance
yes exercise , specially that focus on balancing and motor gait will be beneficial. The conditions will be better mannaged but not cured. But all this has to be done under the guodance of a physician.
Hi dear try to learn more about this .... any one can help me with some informations or doctors ? What type medication, my cousin she's 3 yrs old, she's born in Brazil and the doctors don't know much about ...any doctor in USA someone can recommend ( sorry about my English) thank you so much for your time God bless all 🙏💖
I'm a Sri Lankan laddy .I have been suffering from spinocerebellar ataxia since 1996.. Prof. N.Senanayake ( neurologist ) diagnosed that I have degeneration in my cerebellar .I done MRI scan in 1999. .After tjhat I got treatment .fortunately my speech anb hand writing is well but I have walking difficulties .I can't walk on straight line and climb up or down stairs without help of others 😢. I do physiotherapy at my home everyday .Now l'm 48 years . I'm waiting for treatment for this .By the way thank u very much your video .
I am so sorry to hear about your situation. While there is no cure, physiotheraph will be very usefull in this case.
Thank you so much for this, I had a patient with this disease and had never heard of it before. This was an excellent video to inform myself on :)
Could you please help me by sharing my contents with your friends group/ college group. I put huge efforts in making these videos but unfortunately not a lot of people are watching this.
As a microbiology professor , I wanted to take a moment to express my sincere gratitude for generously sharing your knowledge and expertise through your educational videos. Your dedication to creating informative content has been incredibly valuable to me and countless others.
I would also like to express my curiosity about the software programs you may utilize to create your instructional materials and presentations. As someone interested in exploring the world of microbiology further, I would be grateful for any insights or recommendations you can offer.
Once again, thank you for your dedication to education and for sharing your expertise with the world 💙🙏
I make all the graphics using powerpoint. In a comprehensive course I also teach how one can create such graphics only @12$. In case you want to know more email us at arpanparichha1994@gmail.com
Excellent Video and I have SCA One
I am so sorry to hear that
My son had 7. This disease of Horrible but my son was so Happy and Never complained
i am so sorry to hear this
Are there still gene groups that have not been studied in genetic ataxias? For example, SCA16 and SCA48
yes many things regarding sca is poorly studied
Hi. As you are experts in this area can I ask if you have any experience of anyone using physical exercise in the form of challenging balance with speed amplitude and complexity with the hope of stimulating neurplasticity to create possible new pathways to help overcome or slow down the progressive symptoms. Can you advise on avenues I could explore in this area. Thanks in advance
yes exercise , specially that focus on balancing and motor gait will be beneficial. The conditions will be better mannaged but not cured. But all this has to be done under the guodance of a physician.
@@animatedbiologywitharpan thanks for your reply🙂
Can lond term use of sodium Valporate cause ataxia?
yes it can, sodium valproate has many side effects
@@animatedbiologywitharpan how about Keppra?
Hi sir
I am suffering from SCA , My age is 28+years , what should i do , kindly give me ur valluble suggestions
My uncle also🙂
Regular exercise can keep you to do day today work.
Yep, but ut also depends on the severity
tretmnet possible？
there is no cure , but supportive treatment can mannage the symptoms
@@animatedbiologywitharpan from where supportive treatment is possible？
Take Neurotherapy Treatment.
It has wonderful result.No medicine. No pain.
I'm suffering from freidrich ataxia I'm doing exercise everyday
Take care man
@@animatedbiologywitharpan balance kab tak theek hoga exercise se?
Í am also suffering from freidrich ataxia do u get any relief
@@sanatariq8231 ji ha little bit improvement
@@sanatariq8231 where are you from?
I have SCA and medication is expensive 😢
I am so sorry to hear that.
Plz help
Hi dear try to learn more about this .... any one can help me with some informations or doctors ?
What type medication, my cousin she's 3 yrs old, she's born in Brazil and the doctors don't know much about ...any doctor in USA someone can recommend ( sorry about my English) thank you so much for your time God bless all 🙏💖
How to solving ataxia my walking was different
Physiotherapy can be usefull to get a better walking posture
I have FA
here is an explanation on FA ua-cam.com/video/6JqWhSBOJU4/v-deo.htmlsi=NbpAmb2eSX387ZQU
😢
Delhi AIIMS me treatment chal rha h mera
Stay strong man
𝗔𝗽𝗸𝗮 𝗽𝗿𝗼𝗯𝗹𝗺 𝗸𝘆𝗮𝘀𝗮 𝗵𝗮𝗶
Kis cheez ka bhai..how old are u...meko help chahiye bhai...plz if u can guide me...
iska treatment kya hai please help..