Ataxia: Relearn standing and walking
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- Опубліковано 21 вер 2024
- Ataxia is a movement disorder caused by damage to the cerebellum that can cause symptoms such as poor movement coordination, “jerky” movements, slurred speech, involuntary rapid eye movement, difficulty writing, picking up small objects, and/or moving the fingers fine motor, and unsteady gait. In this video you will learn exercises for ataxia. This is part one in a two part series.
Ataxia and balance disorders Part one: • Ataxia and Balance dis...
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I experienced a stroke about two months ago. I went to the VA. Most of my therapists are very professional and concerned but they are very restricted with resources. I had to turn to outside sources . My wife introduced me to your channel and I have gained a wealth of knowledge through it! We have mimicked a great many of your therapy exercises and I have come a long way!! Your balance advice has been phenomenal!! You are a great therapist. Thank you.
I have sent you a VERY small gift of $50. I will send more when I am able.
Thank you for publishing! I love your work!!
Hi, my name is Mile and I live in Vienna Austria . In 2018 I had massive stroke. Now in the wheelchair, ataxia on the left side. I have physical therapy constantly since stroke and I am quite familiar with your exercises. I have to say that very often watching your videos gives me additional strength to continue and try something new. Thanks.
#Ataxia
My neuromuscular recovery therapist had me do the tandem exercises in the tall kneeling position after I showed her your tall kneeling exercise. Talk about tough and then she made me hold a 2lb dumbbell while we did the arm movements.
Just wanted to let you know even other PT’s are watching your videos. So grateful for you!
Yes, many PTs are watching, Just wish they would hit that subscribe button ;) I am glad it is helping them (PTs) to help you!!
It's so encouraging and supportive to see these videos, this community, and the optimism. THANK YOU @ataxia
exercises look so easy when YOU do them. But ME? i hope that one day--ME TOO!
So i overdid it for few days and now i can't even stretch MY LEG because only one hurts meaning i used mostly that leg! The other one is not paralyzed, looks normal, but i have problems with sensations, and obviosly i don't use that leg that much. How to achieve symmetry when you don't quite feel one side?
A very good video for anyone with balance problems. And she didn’t spend too much time talking before getting into the exercises.
I'm a new grad (PT) and I just wanna say thank you for all these videos! You put everything together so concisely, it's a great refresher as I'm starting to see more patients with various ataxia diagnoses and I will definitely be using some of these exercises in my own practice!
#ataxia. I've had cerebellar ataxia for over 20 years and use these exercises often plus a little gym work. I taught myself to walk again by walking on grass as it feels safer. It took about 5 years to figure it out but studied my own body as I got very little or no help from doctors. The problem I can't get to solving is the wobble when walking I presume it's down to the core .
Hi my mother has the exact same issue but doctors couldn’t find that is ataxia or not but she has wobble and extreme dizziness.what exercises do you use that improve your situation?
@@GGhazalGh hi Ghazal
I've been studying my cerebellar ataxia for 20 years like your mother doctors couldn't tell me much only to say your going to be in a wheelchair for the rest of your life, I proved them wrong. I basically listened to my own body I started going to the gym in 2014 and slowly built my strength and muscles I haven't used in years . I started using a walker for years then tried using a walking stick on grass areas and just practice walking pushing myself, it is frustrating for a while but the stronger you get it also helped with my balance. I still have the wobble and trying to find a solution to fix it. I also suffer sometimes with dizziness and not sure what causes it. I basically became my own doctor physiotherapist. Core strength will help the wobbly walking I'm still looking for answers.
thank you, it is encouraging to read this
#ataxia. I have been a NYC paramedic for 40 years. I have not been approved for a CT Scan yet. Open areas and quick body/head turns scare me as I have fallen before. I can not get up from the floor if I do. I don't seem to have leg strength. I need to pull myself up stairs and I need a step stool to get into high vehicles. Another thing I have noticed is I can't purposefully sneeze or cough, only as a reflex. I also physically can not speak well.. Now because I can't perform my job duties I am unemployed waiting for disability. Your channel has been more helpful than my neurologist. Thank you.
GREAT explanation about eyes - that would explain why it's SO difficult for me to walk when cars are zooming by. #ataxia
busy roads or cities with people, I also go in panic mode when crossing busy roads and legs freeze , fancy getting in touch ? I find alcohol help calm it a bit.
Hi there is a herbal cure for ataxia and I was cured permanently and now I’m perfectly fine all thanks to dr nafuar
@@ARIMA0717 can you please tell me the name of the herbal medicine?
@@thokchomchelsea3150 check *dr nafuar* on UA-cam
#ataxia
I am a wheelchair senior almost 70 years old, I went from a cane, to a Walker, to a scooter and now I ride a portable wheel chair. I have had ataxia for the last 15 years. At that time, support groups made me really depressed I was told to go there by some professional doctor in the field, but they were telling there story and showing videos which I already knew about the symptoms and how it affects the body. I wanted to know about a cure for my ataxia, I was told they were doing over in Japan experimental treatments, but at that time. You had to be 30 years old or under which I didn't fit the criteria and that was very depressing. I was watching your video on excersising when your balance does not function properly, this is the first time I have made a comment about my condition. I am the type of person who is very impatient and want things now but it's hard to get motivated to do at this stage of life, your exercises. I am so confused
Sir I am suffered from Friedrich ataxia and I am only 23 years old can you please elaborate how can I be a part of this experimental treatments in Japan please reply sir I am from India n how much money it will take
The bridging really helped my core a lot
Thanks Dr. Such simple exercise with powerful results. Blessings to you.
#Ataxia.
I have only recently discovered your videos! It hemisphere CVA 14 years ago and have begun following your balance exercises, today. I lost my Right Temporal and Right Parietal lobes. My inner thigh muscles of my left leg are much stronger than the muscles on the outside of my thigh. So, I stand frequently with my feet together and am trying to learn to stand with my feet shoulder width apart. And here I am trying to stand in a corner with my feet together and not fall over.😋
Hi there is a herbal cure for ataxia thanks to dr nafuar herbal medicine that cured me and saved me
Mulțumesc doamna❤❤❤
I love seeing your little dog
Thank you very much Dr. Tara. You have helped me more than you can know. Particularly, I found your exercises on ataxia and relearning standing and walking extremely invaluable. Thanks again I had a hemorrhagic stroke in October 2017 that affected my right side. Your videos have me rekindling hope again and exercising. Thank you Dr. Tara.
My sister had a cerebellar hemorrhagic stroke 2 months before. Now thanks to firstly God and then physiotherapy she is able to walk even if she loses her balance sometimes. She has also dysmetria on her right arm. She could not improve her arm yet. I just wanna know how are you know? Is this temporary
Thankyou for taking the time to do these videos 🙏
Thank you for your time and effort I had a brain bleed that caused a couple of strokes had 3 brain surgery s went from wheelchair to now working with a Walker started you exercises but had set back fell and broke my hip just now able to near weight on so back to square one but I will keep working on my balance and strengting my. Core&legs thanks for your time
#ataxia cannot overstate how grateful I am for this miniseries. SO GRATEFUL. Any resources, websites, channels, accounts, experts, books, exercises, ANYTHING for nystagmus? It’s basically ataxia in the eyes, it’s my worst deficit.
I am getting so much stronger @ better, I exercise with u everyday. Thank you
Thank You so very much, after c7-6-5-4-3 fusion I had a t5-6 lamenectomy 5 days after cervical. I was partially paralyzed a month later , it was diagnosed as AIDP, acute inflammatory demylineating polyneuropathy. It’s been a very long recovery process, using some of your techniques in the last couple weeks has given me hope of walking unsupported again. Thank you
Dr Tara Tobais thank you for your #ataxia because of a incomplete development of the brain which causes my epilepsy & now a stroke patient, thank you for these exercises . I may not be able to stand with my feet together But, this exercises were good, my PT taught me all the floor exercises, The sitting to standing with a mobile chair is new to me but I will certainly use it
Thank you so much Appreciated. This will help me as I injured my leg and am having problems walking and balancing properly.
When you are out there learning walking skills get some skateboard fall gear for knees the elbows and padded shorts and wrist guards all for protection and confidence from ataxia
Ray, I love this idea! Thanks for sharing!! Also check out the walker link in the description. It is literally the best walker on the market for ataxia due to its heavy base.
Stage attaia
Thank you for knowledge ❤this video are helpful,I will adapt it to my patient. I’m PT student.
#ataxia
wonderfull. i knew some of these exercises but i missed the interconnections between them and their purpose. now instead of mudded water i see all crystal clear. thank you so very much
This channel is amazing!
These are very helpful exercises.
My sister has ataxia trying to figure out how yo get her motivated to do PT! These videos are helping me devise a program for her:) #ataxia
Thank you. Your awesome and great with explaining the exercises. God bless
Always appreciate your encouragement Thanks!
Thanks for the videos. They are very helpful. God bless you.
both videos on ataxia series are great!
I have friedreich's ataxia. Your attention to this subject and problems is very helpful to me. Thank you for understanding. #ataxia
Great exercises,! Thank you for sharing🌻
#ataxia. RN who can't work right now. I see vestibular therapist but I am going to add in the core exercises you show here. Thanks for these videos
# cerebral ataxia. Thanks, Charlie
Want to practice walking skills outside? Practice, practice, practice inside first, create a trail through the house. I did 25,000 steps. Watch how to fall videos, learn how to get up on your own, carry a phone, get a helmet and fall gear. Falls may happen if prepared feels like falling on a mattress. Get a metronome to increase speed and gait distance. Sneaky ataxia. Received a high dose over a long period of time of vit. B6 in my multivitamins. Will take me 2 to 6 months to clear it. Check the net and your bottle.
Thank you a lot for your guidence realising problem
#ataxia Genetic, balance, gait, slight slurred speech at this stage but everything getting worse including typing on keyboard without mis hitting keys. Keep videos coming please.
Our baby at 2 years old is diagnosed of Cerebellar Ataxia. We found it very difficult to do the therapy considering his age. He used to be a very happy and energetic kid. Hope you can help us in his condition. A little advise and prayers will do.
Thank you for the suggestions!!!!
Looks easy while watching, but difficult to do. Can stand with feet together (10 minutes), half tandem ( 10 minutes) and tandem ( 2 minutes) with hands by my side. Can do tandem for long time leaning to the wall. However, with hands extended and clasped, can not stand as I loose balance. Did not understand.
Yet to try head movement. I have walker or chair next to me for safety.
Thank you for this! I have Ataxia SCA2 and need exercises I can do at home.
Thanks a trillion. You are really very helpful.
So informative, it’d be great if you can do more videos on Parkinson’s disease and related movement disorders
I second this! Please 🙏
🏵🧡🏵 Dr. Tara, love your balance exercises! It is always good to go to these basics as everything builds on them. I always build chair and table walls around me while doing balance tricks 🤣🤣 my PT finds that funny every time again and we have fun with my building attack every exercise lesson. But it gives more security and balance 🏵🌻🏵 Have a happy day!!
Hi Nina! Happy Sunday! Yes, I call it "building boundaries". #1 PT hack for working on your balance. I love the idea of using furniture! Anything have that won't move. And than just, as you say, have a little fun :)
Thanks for the wonderful video ❤️. I noticed that in the description you attributed slurred speech to Ataxia, is there a remedy for this that you could share with us thank you so much for all your time and effort
Thank you! I’ve been diagnosed with cerebral ataxia and these vids are helpful.#ataxia
Another informative video. Thank you!
If you see future comments or questions from me 99% of the time is because my past PTs didn't, wouldn't, couldn't or think it wasn't important to spent 15 minutes or less you spend to explain. Why I'm doing a exercise. IIt was just do this exercise. Thats why I'm treating my pt with. DITYGI= DO IT TIL YOU GOT IT.
#ataxia. Had a meningioma tumor removed off cerebellum. Appreciate your videos on the subject.
MS Spastics is Increasing. Dizziness is constant. CVA recovery verses MS. Is there similar progress between these conditions? Thanks
thank you, I'm getting there faster after 12 years post stroke.
I have better balance when I look straight ahead , not down at the floor or my feet
How does this work for people with autism who want to walk, but can't because they are titrating off of medication that impedes their ability to walk? Are you not familiar with this? There are many people with autism and epilepsy, for example, that experience drug induced ataxia caused by changes in medications. Yet, the person with autism doesn't comprehend this and when they want to walk in this unsteady gait phase you're dealing with a person who is non verbal and frustrated now who wants to walk, but can't walk but there's little support to keep them safe during this time. Clearly this is an issue nobody really understands as if you chemically restrain them during these times you risk further ataxia from things like Versed and other benzos to control their agitation which creates a vicious cycle of unsafe gait and need for elevated staffing to keep them safe. What do you suggest therefore in patients like this?
#ataxia I have Myelopathy which first presented as episodic ataxia. ACDF of C3-C4 and C5-C6 with hazy spinal signal cord signal on MRI.
very valuable information ma'am.
Keep going,great work!
Can you make a real time exercise for Ataxia patient, so I can follow it daily. I have difficulty in remember the exercise you suggested.
I recorded them from my laptop onto my phone
Loosingbalance, when eyes are closed. Is this Ataxia?
Thanks!
Thank you so much!
#Ataxia You gave me so much hope. Thank you!
#Ataxia Great video, lots of valuable instructions.
#Ataxia. I had a hemorrhagic stroke in 2013 followed 18 months later by hypertrophic olivary degeneration which caused severe balance loss and nystagmus. I'm really excited about doing your exercises. I'm in Australia, what sort of physiotherapist should I be looking for?
Grate thanks
I am so glad I found these videos! Very helpful! #Ataxia
Thank you!
This is what I'm dealing with right now
Mam have good luck with health and prosperity mam I am victom of spin cerebral atxia type 1 I have many problem like balcing walking taking so what I do please guide me
It's possible, never give up.
What is possible?
#Ataxia, CP, please keep them coming, the standing with feet together is helpful. I overthink things, don't know if u have any tricks for automation. Really appreciate your work
#ataxia What I'm currently struggling with is walking down very slight grades, as my hips and affected foot seem to slam on the brakes when I sense a down grade. I do suffer from ataxia, but have been using the foam pad when doing these and I seem to slightly process my surroundings better when walking. I still am learning to walk without looking at my feet.
Diagnosed with ataxia and nystagmus
like like like ...and love. Thank you Dr.
Thanks for sharing ..
SO GREAT! Thank you :) # ataxia
Great video,doctor, how do you help a stroke victim with virtigo?
Thank you so much! #Idiopathic cerebellar atrophy
Good information.
Thank you!! #ataxia
I have Ataxia.
I cannot seem to able to bring my toes together. I live in a tropical country & here ppl wear flip flops/ slippers.
Pls recommend some exercises for the toes.
#ataxia
I'm a nuerologial stroke patient unable to walk and talk requesting you to help me how to control drooling it has become a problem
#Ataxia
Copper deficiency along with several other vitamins ( E, D, B12, iron ..) deficiencies caused my ataxia. I have malabsorption/ malnutrition issues following a gastric surgery.
#ataxia Genetic, balance, eye movement, swallowing, double vision
#ataxia very helpful
I can relate to this, with my condition #ataxia
Ataxia and nystagmus Ugg!
I feel your pain!
#Ataia I just tell people this is my normal walk..( they think I am about to fall)
Doing these excercise can any recover from ataxia 100%.....kindly explain
Looking for exercises for Trendelenburg Gait
I find I become nauseated from the motion . Is this common?from Ontario Canada
I have tremore due to stroke. How and what exercise can i easily do. Thanks dr
☝🏾ataxia
#ataxia you are the best!
I have weakness of rt arm and rt leg. It's been over 2 years. Doctors don't know why. I limp and drag my rt foot. Done everything but no improvement.
#ataxia
Thank you again so much
#ataxia SCA 2
Madam I want exercise for hemiplegia upper limb in chronic case of hemiplegia