Wasn't that precious! She had such a look of "I'm in heaven" on her fuzzy lil face. It was adorable! I actually rewound and paused it at 8:38 a couple times just to lengthen the smile she was putting on my face! LOL
Hey y'all, I wanted to add something about Ketamine. Many people have found it to be more effective/the effects last longer when you can get infusions over a few hours for a few days in a row. (Example: 4 hour infusions once a day for four days.) Everyone is different, our protocols may vary. I would be open to trying this approach, but my insurance will not cover it and we would have to pay out of pocket (it is pricy). I cannot say if the longer infusions would work better for me because I have never done them, but I just want y'all to be aware of other practices with Ketamine!
Chronically Jaquie I must say I found SCIG from Mary Frey and you. I use to get Gammaglobulin shots in my butt as a kid. But the SCIG has helped me feel better. I learn more about my chronic illnesses from y'all.
Jaquie have you checked to see if the pharmacy lab that makes this med has a patient assistance program for this medication. There's a lot of patient Assistance programs out there....Find out who makes it, and inquire if that pharmacy lab will help you ! www.needymeds.com
Chronically Jaquie I just heard you say you want to get those injections for your hip and if they work for you then I'm going to talk to a dr for my hips. I was born with my hips messed up. My right hip is my worse hip and it dislocated last week and I managed to pop it back in.. I am seriously glad you have fantastic drs who want to help. My experience with drs is they say I'm faking it so I stopped going period.
Harlow is the best! Glad she was able to let you know what was happening. The way she was sleeping on your lap was like “mama is ok now so I’ll just stay close and take a nap”. Such a good dog. Feel better soon. Lots of love from my pup and I in texas
Harlow is an awesome dog. Youve done such a great job training her. I love goldens. I just lost both my goldens within 6 months of each other. First time in my life Ive been without a dog.....give Hippo a scratch for me! Hugs to you too Jacq.
Chronically Jaquie - thanks. My son, girlfriend and their puppy moved in with us for a while until they bought a house. Well they're going to be moving next week and I think I'm going to miss the dog. Haha. ( they are moving out of town. 😥
Harlow is seriously such an amazing dog. The obedience, love, compassion, and dedication is absolutely astounding. She truly is a special one for sure. And the way she was snuggling in your lap at 8:31 almost brought a dang tear to my eye.
Glad to hear the weather is cooler, we've been there twice this year and it was extremely hot! I love the heat though, I grew up in Florida, and I'm finally moving my family to Florida in less than a month!😁🌴🌊☀️
8:32 is the scene of total heart melt. Not only at the extreme cuteness but also at the things she's saying. It's so amazingly wonderful how she picks up on these things on her own! I'm so glad you have a dog that can do this
It is so wonderful the awareness work you do. I have learned so much in the past few months from following your blog. I think I have a better grasp on chronic illnesses and when in doubt, not be afraid to ask questions.
Thank you as always for sharing not only the helpful information about chronic illness but also your wonderful perspective and positivity! Your gratitude for the small things and attitude of "keep moving forward" are an encouragement to me and a reminder that it's okay to be thankful for things that other people might not understand or would minimize. For example, I wasn't feeling well the other day but woke up from a nap to find that my parakeet had left his favorite ball right by the side of my bed. It really is the little things that make a difference! :)Great job, Harlow! She is so precious.
go harlow!! 💪🏼🐕 seeing her alert and the safety she gives you makes me impossibly more excited to be paired with my future service dog. it’s so true that chronic illness doesn’t play fair sometimes and that doing everything you’re supposed sometimes doesn’t stop flares. it’s so frustrating but good to know you’re not alone in that. 💕🥄
You made a very good choice when you chose Harlow as your service dog and furry family member. She is wonderful at catching on to your problems, even though she was not taught some of them. Love to watch your videos and learn from them. Thank you for them. Hugs to you all.
Its nice to hear you explain how chronic pain causes exhaustion. I wish it were easier to explain to those who never have had problems with chronic pain. If only they could walk in our shoes for a week.
Or even a day Teresa Simpson! I often wish I could touch members of my family and people, who doubt your pain, and give them a taste of the reality we live every day. Gentle hugs to you xx
Teresa Simpson ...exactly! Pain is completely exhausting, for days sometimes, or more. I feel like every time I try to explain why I can't exercise, I can't have lunch, or work etc, I get the eye rolls or deer in headlights look. I guess I don't explain myself well. I'm with you, it's why I love Jaquie's vids. She's so articulate. I think she would be an incredible teacher.
I'm glad you've gotten some relief and I hope your wheel chair comes!! Also, Harlow brought tears to my eyes when she alerted and then would not let you up. She is so special and I know you are so blessed to have her. 💜
Thank God for Harlow, she knows her stuff! Everyone is different with their fight in whatever chronic problem they have. You are right when you say "we still smile and have a good life" it does get tough but we do what we have to to get that life. Keep smiling Jaquie.
The connection you have with Harlow is amazing. I teared up a little when you were talking about smiling and laughing while you were still in pain. I too am a chronic pain warrior and it felt good to know someone else understands that even though I'm laughing or smiling I'm still in pain. Most people think that must not be the case if you are laughing. It was good to see you feeling better in the beginning of your video. It always seems like you take one step forward and two steps back, I know that from experience. All you can do is listen to your body and take it easy. I keep you and your family in my prayers everyday. How's your dad doing? You haven't said anything about him in awhile.
He is good but I do not talk about him frequently because I respect his privacy. He does not mind being on the vlogs when we are together but he does not want to be a main feature of them. Totally understand you on the pain
Yay! I hope you get your wheel chair tomorrow! And I am so glad Harlow is able to warn you in advance about those things, very useful and keeps you safe. Good girl, Harlow 😊💖
I'm paralyzed from the neck down and have some rare complications. I tell you this only so you know how truly special you are. Your vlogs make me smile every time I watch them and I look forward to them everyday. Your genuineness and positivity are amazing and uplifting. Thank you to you and your family for sharing your journey and adventures with us. You make life more bearable.
I love how positive you are. I have chronic diseases and none of them are fun but I keep moving forward like you. I know where your coming from. Harlow is the best and sweet. God bless. Tell jedd hello from all of us. I love you.
Yay for cooler weather! Good girl Harlow, pretty amazing how its just instinct! I hope your chair will arrive before your trip, most likely will help you enjoy better 💜💚
Awwww! Harlow is such a cutie! Love golden retrievers! My family and I just had to put our thirteen year old golden retriever Max down on Sunday and it was the hardest thing to do, but the good thing is that he no longer suffering from his neurological conditions and arthritis. We miss him so much! We never got Max certified for me, but I did work with him and knew a lot of commands, worked really well with myself, my van, and wheelchair. Seeing Harlow makes me really happy. By the way, I live in Jax Beach, Florida! I have been really chilly since the cold front. Lol! Take care!
Sorry about your loss, that is so hard :( Sounds like you did a great job with him! There is actually no certification for service dogs though (in the US). You can learn more in my service dog 101 video. So maybe you two were closer than you think!
I just love Harlow! I had a golden..She got sick and I had t put her down. It haunts me every day and I think of her every day and its been 9 years. I wish dogs lived as long as we do. She is such a love! Her are some head pats for her woof!
I relate so much to being thankful to any pain relief. I’ve been exhausted from having a constant headache. The last few days I’ve had a little more energy and have took advantage of it.
Harlow was/is amazing. The ketamine update was interesting, too. I've had those experiences of relief from chronic pain and it's fairly overwhelming. It makes me happy to hear you get relief safely. "Keep moving forward" is becoming part of my vocabulary. Thanks!
Before you were aware of your spike in blood pressure I could hear you sounding out of breath or being a bit breathless. I am glad Harlow is persistent and that you figured out what was wrong and that you gave her so much praise and credit for letting you know something was up. I hope you are feeling better and have a good trip. I love that Harlow enjoys her toys.
Honestly, it is very frustrating. I haven't had help about my health, so I don't have much luck with family understanding, or jobs because I can't stand long enough, didnt finish school because that's when all my health completely crashed. Its hard when all you did was sports and stay active, now those same people can't even walk to the kitchen or be able to get up stairs most days because you will fall. You will get many bruises. I find myself becoming fatigued to the point where I usually sleep 15/24 hours a day... Just gotta hang in there and try to keep our heads up.
I was also very active, doing Martial Arts 6 days a week. Then BAM, it hit me. It is not easy, and times are often tough, but so are we! You are not alone
Jacquie, Harlow is the cutest! It's so amazing how she can go from playful pup to working dog just like that. That is so important and amazing. I love you videos so much, they make my day every time. I'm so happy that your feeding tube is fixed. It's so crazy how quickly your condition began to degrade as soon as your formula is taken away. It really shows how much the right formula and the feeding tube is helping. Also I believe what is going on with your eye is either a stye or a blocked tear duct. Use a warm compress to help keep the swelling down and I suggest a doctor because if it is a stye it might lead to an infection because of your immune system. I love your channel and I with you the best! Mickey
Sendin love and light hope you find something that works for you, i've been dealing with pots/cfs/fibro/meniers/as and pcos since i've been 12 (now 36), and your 100% right waking up everyday in pain is hard, paint on a smile and keep going but it's terrible. Hope you have a good trip and have the energy to enjoy
SAME!! Whenever I plan a trip I HAVE to give myself AT LEAST one full day of rest (so no packing or anything; I must do literally NOTHING but rest) both before the travel-day and after the return-travel-day. For this reason I actually can't go on trips where I'd be staying somewhere for less than two nights because I'd just end up spending the whole trip recovering from the travelling it took to get there. It definitely is a little ridiculous and funny when you think about it - us sick people have to plan little"mini-vacations" to prepare for, and then recover from, the main vacations haha. I've always believed and said that laughter is one of the most important things when it comes to winning the battle against your illnesses, even if that laughter is at your own expense haha. My pup and I send you all the love and spoons from Canada!!
Crazy how 70 is cooler in Florida, but is hot up here in PNW Washington. I hate the heat, so low 50's to high 40's is perfect for me! My husband is from east Texas and hates the heat also. He was stationed in Jacksonville, Florida for a majority of his time in the Navy.
I don't know how uploading youtube videos and making sure to have subtitles works, but I'm so glad your videos have really well done subtitles! (Hearing impared person here)
Good Job Harlow! Jacquie, I love you guys and I hope you keep conquering all you challenges! Xoxoxoxo, from North Carolina, Linda. Ps- I'm so happy you met the Frey Life! They are amazing like You, Judd, Harlow, and your Dear friends Janice, Paul , and pups. 🤗
Darn you lol I thought I was actually gonna be able to get through one of your videos without crying because I'm too sensitive but that was Just a really beautiful moment with Harlow and you
Don’t take just cold weather outfits. You’ll trigger a heat wave! I had a friend who traveled to Arizona one Easter for work, and she was the only one in her group who had a cold weather outfit. Her Christmas card that year was a picture of her next to a snowy cactus!
Thank you for the Ketamine infusion update. I have degenerative disc disease and Ankylosing Spondilitis tied to my genetic blood factor hla b 27. I always knew this pain could come (from the possibility of acquiring Spondilitis). Just never ready when it happens over a large area of your body in your 30's. I have tried Torodol in my hip for pain relief while waiting for a long term plan, and it is helpful. I have also done a round of high dose steriod infusions from my neuro eye doctor. It was a few years ago and it worked amazing! The only issue is that it can be very very hard on your other organs, so at this stage we are trying to find a way to help the pain without it. Glad you got some relief from Ketamine and you explain things so well. Proud of you.
In addition to my POTS, I have inappropriate tachycardia. My HR spikes in 180s, even when laying down. Its exhausting. I am glad you have Harlow to warn you. I want a service dog, but know there is no way to train alerts like that.
I love seeing your videos. I live in Miami and I have a Siberian Husky Epilepsy dog. :) And, yes, now with the cooler temperatures is definitely a relief. :)
That is so cool learning about ketamine treatments. I just started Botox treatments for my migraines on Saturday. I hate having heart rate spikes I have been having a lot lately.
I am so happy that you can enjoy being outdoors☺☺ BUT, me and my family are coming to Englewood Nov 8th (from Michigan), and we would love warmer weather for the week, then you can have your cooler weather back😉😉😎😎
I've never been to Florida but I hear it's very hot. Here in Wisconsin we've been in the 40s and everyone's just pulling out the long sleeve shirts but now we're going into 30s and 20s so we're sorta bringing out sweatshirts once it gets to 10 ish degrees we start wearing jackets 😂 I just find it funny Edit: also that 70 degrees is chilly for southern states! 70 degrees here is very high except for summer then we get up to 105 degrees we range from -25 to 105 degrees 😂😂
This isn’t really related to this vlog, but I wanted to say that at work when I’m asking customers if they want a five or ten pence bag I use my hands so show the numbers (I have autism too so I have quite exaggerated hand movements). But now whenever I flash five pence I always expect Harlow to bark 😂 She is such a brilliant dog :) x
Ahh just wrote a long comment and my browser refreshed. -_- 1) Yep the armrests just get in the way 2) Looks like you got the Tilite ZRA. Your casters say ZRA? I know they can paint titanium nowadays. 3) Read your manual about maintenance. Ignore the warnings about transferring. You're gonna have to get in your chair somehow. lol It's a bit ridiculous. 4) The power assist wheels are great for you, but the chair will be easy to push with the regular wheels too, because the frame is so light. Sometimes I think my husband pushed me and nope, it's just because my chair is THAT light. (and I'm getting stronger) 5) I took my anti tippers off early on, but that's just me. Definitely leave them on until you're comfortable with your chair. 6) Looks like they did a great job on the fit. Look up "wheelchair propulsion" on UA-cam and make sure your arms at 10 and 2 when you push to avoid injuries. I had to bring my wheels forward. Love the taper they did at the bottom. It fits you perfectly! and the most important.... 7) Any weight you add to your chair changes your center of gravity. This means you'll TIP if you have too much weight in the front of back. If I forget I have a heavy backpack on my chair and stand up, my chair hits the ground! Whoops. lol And lastly, enjoy every moment of your newfound freedom!! :)
That is awesome that you haven't had no head pain.. Myself is so amazing we're usually extremely grateful that will take whatever we can get even if it's just for a couple of days or even an hour or what not we always thankful for the little things😊😊🤗🤗
I would some pain management. I have bulging disks from t12 down to s1...also a stenosis and arthritis. My average heart rate with out my heart meds resting rate is 140. With my meds I stay at 101-105. Also I am hard of hearing. I'm feeling blessed that so far my puppy seems to be eager to train and help me already. Just gotta keep that up! I'm hoping she passes the testing for Service dog.
The Hippo is never obnoxious you aren't listening to her lol... I just love Harlow ❤❤❤
Jus gie yes! She’s like moooom pay attention, i’m telling you important stuff
Lol "the dog is always right" is something I often tell people!
Harlow’s skills are so on point. 👍🏼
Harlow is like "Human don't push me away I'm trying to help you"
Alison N
So true! "Woman you should know by now don't question me!" 😂
Harlow tucked into your legs is the cutest thing I have ever seen
Wasn't that precious! She had such a look of "I'm in heaven" on her fuzzy lil face. It was adorable! I actually rewound and paused it at 8:38 a couple times just to lengthen the smile she was putting on my face! LOL
Ahhhh.. The squishy cute face... I can't even!! 🐶😍🐾
The new sandwich toy is overthrowing Hippo’s old purple dinosaur as her favorite HAHAHA
She finally destroyed it but she also has the blue dragon. However, she does REALLY like the pizza and sandwich lol
Who *doesn't* like food though?XD
Hey y'all, I wanted to add something about Ketamine. Many people have found it to be more effective/the effects last longer when you can get infusions over a few hours for a few days in a row. (Example: 4 hour infusions once a day for four days.) Everyone is different, our protocols may vary. I would be open to trying this approach, but my insurance will not cover it and we would have to pay out of pocket (it is pricy). I cannot say if the longer infusions would work better for me because I have never done them, but I just want y'all to be aware of other practices with Ketamine!
Chronically Jaquie I must say I found SCIG from Mary Frey and you. I use to get Gammaglobulin shots in my butt as a kid. But the SCIG has helped me feel better. I learn more about my chronic illnesses from y'all.
Chronically Jaquie nice
Jaquie have you checked to see if the pharmacy lab that makes this med has a patient assistance program for this medication. There's a lot of patient Assistance programs out there....Find out who makes it, and inquire if that pharmacy lab will help you !
www.needymeds.com
Chronically Jaquie love insurance companies (hard sarcasm lol) I'm glad you're feeling better and I'm glad you're doing well on the ketamine
Chronically Jaquie I just heard you say you want to get those injections for your hip and if they work for you then I'm going to talk to a dr for my hips. I was born with my hips messed up. My right hip is my worse hip and it dislocated last week and I managed to pop it back in.. I am seriously glad you have fantastic drs who want to help. My experience with drs is they say I'm faking it so I stopped going period.
Harlow is the best! Glad she was able to let you know what was happening. The way she was sleeping on your lap was like “mama is ok now so I’ll just stay close and take a nap”. Such a good dog. Feel better soon. Lots of love from my pup and I in texas
Harlow is an awesome dog. Youve done such a great job training her. I love goldens. I just lost both my goldens within 6 months of each other. First time in my life Ive been without a dog.....give Hippo a scratch for me! Hugs to you too Jacq.
Sorry to hear that :( They are amazing dogs!
Chronically Jaquie - thanks. My son, girlfriend and their puppy moved in with us for a while until they bought a house. Well they're going to be moving next week and I think I'm going to miss the dog. Haha. ( they are moving out of town. 😥
Harlow is seriously such an amazing dog. The obedience, love, compassion, and dedication is absolutely astounding. She truly is a special one for sure. And the way she was snuggling in your lap at 8:31 almost brought a dang tear to my eye.
My favorite temperatures are in the 70's. Hippo is so cute. It's so good that you have her.
Harlow melts my heart!!
Glad to hear the weather is cooler, we've been there twice this year and it was extremely hot! I love the heat though, I grew up in Florida, and I'm finally moving my family to Florida in less than a month!😁🌴🌊☀️
Ok that harlow montage was literally the cutest thing ever
Ha I am glad you liked it!
8:32 is the scene of total heart melt. Not only at the extreme cuteness but also at the things she's saying. It's so amazingly wonderful how she picks up on these things on her own! I'm so glad you have a dog that can do this
Harlow is such a good girl. Got a bit misty eyed when she was laying her head on your legs not wanting you to stand. Dogs are awesome like that.
It is so wonderful the awareness work you do. I have learned so much in the past few months from following your blog. I think I have a better grasp on chronic illnesses and when in doubt, not be afraid to ask questions.
So happy to hear that! :)
Thank you as always for sharing not only the helpful information about chronic illness but also your wonderful perspective and positivity! Your gratitude for the small things and attitude of "keep moving forward" are an encouragement to me and a reminder that it's okay to be thankful for things that other people might not understand or would minimize. For example, I wasn't feeling well the other day but woke up from a nap to find that my parakeet had left his favorite ball right by the side of my bed. It really is the little things that make a difference! :)Great job, Harlow! She is so precious.
go harlow!! 💪🏼🐕 seeing her alert and the safety she gives you makes me impossibly more excited to be paired with my future service dog. it’s so true that chronic illness doesn’t play fair sometimes and that doing everything you’re supposed sometimes doesn’t stop flares. it’s so frustrating but good to know you’re not alone in that. 💕🥄
You made a very good choice when you chose Harlow as your service dog and furry family member. She is wonderful at catching on to your problems, even though she was not taught some of them. Love to watch your videos and learn from them. Thank you for them. Hugs to you all.
Its nice to hear you explain how chronic pain causes exhaustion. I wish it were easier to explain to those who never have had problems with chronic pain. If only they could walk in our shoes for a week.
Or even a day Teresa Simpson! I often wish I could touch members of my family and people, who doubt your pain, and give them a taste of the reality we live every day. Gentle hugs to you xx
Gentle hugs in return. I often say a week; mainly because it would more like stick with them. lol
True... a week would be memorable!! :D
Teresa Simpson ...exactly! Pain is completely exhausting, for days sometimes, or more. I feel like every time I try to explain why I can't exercise, I can't have lunch, or work etc, I get the eye rolls or deer in headlights look. I guess I don't explain myself well. I'm with you, it's why I love Jaquie's vids. She's so articulate. I think she would be an incredible teacher.
I'm glad you've gotten some relief and I hope your wheel chair comes!! Also, Harlow brought tears to my eyes when she alerted and then would not let you up. She is so special and I know you are so blessed to have her. 💜
So I impressive to see Harlow looking after you. She's a fabulous dog. And it's easy to see she is adored! Wishing you a good day tomorrow.
Awwww sweet Harlow, such a smart companion ❤️ I'm excited for you that it's cooler and your chair is on its way. Take care ❤️
Thank God for Harlow, she knows her stuff! Everyone is different with their fight in whatever chronic problem they have. You are right when you say "we still smile and have a good life" it does get tough but we do what we have to to get that life. Keep smiling Jaquie.
The connection you have with Harlow is amazing. I teared up a little when you were talking about smiling and laughing while you were still in pain. I too am a chronic pain warrior and it felt good to know someone else understands that even though I'm laughing or smiling I'm still in pain. Most people think that must not be the case if you are laughing. It was good to see you feeling better in the beginning of your video. It always seems like you take one step forward and two steps back, I know that from experience. All you can do is listen to your body and take it easy. I keep you and your family in my prayers everyday. How's your dad doing? You haven't said anything about him in awhile.
He is good but I do not talk about him frequently because I respect his privacy. He does not mind being on the vlogs when we are together but he does not want to be a main feature of them. Totally understand you on the pain
Yay! I hope you get your wheel chair tomorrow! And I am so glad Harlow is able to warn you in advance about those things, very useful and keeps you safe. Good girl, Harlow 😊💖
I'm paralyzed from the neck down and have some rare complications. I tell you this only so you know how truly special you are. Your vlogs make me smile every time I watch them and I look forward to them everyday. Your genuineness and positivity are amazing and uplifting. Thank you to you and your family for sharing your journey and adventures with us. You make life more bearable.
Thank you for sharing, this made me smile (:
Oh my Lord... Good girl Harlow!! Alerting is always so sweet to watch... I hope you’re doing okay... Can’t wait to see your chair!
Harlow is your Angel. God bless all service dogs.
I love how positive you are. I have chronic diseases and none of them are fun but I keep moving forward like you. I know where your coming from. Harlow is the best and sweet. God bless. Tell jedd hello from all of us. I love you.
It's so reassuring knowing you have Harlow there to help you.
Awe yay Harlow! Look at those perfect breath checks!
Yay for cooler weather! Good girl Harlow, pretty amazing how its just instinct! I hope your chair will arrive before your trip, most likely will help you enjoy better 💜💚
Awwww! Harlow is such a cutie! Love golden retrievers! My family and I just had to put our thirteen year old golden retriever Max down on Sunday and it was the hardest thing to do, but the good thing is that he no longer suffering from his neurological conditions and arthritis. We miss him so much! We never got Max certified for me, but I did work with him and knew a lot of commands, worked really well with myself, my van, and wheelchair. Seeing Harlow makes me really happy. By the way, I live in Jax Beach, Florida! I have been really chilly since the cold front. Lol! Take care!
Sorry about your loss, that is so hard :( Sounds like you did a great job with him! There is actually no certification for service dogs though (in the US). You can learn more in my service dog 101 video. So maybe you two were closer than you think!
Hippo has soooo adorable. She is great at alerting u. What a great dog.
Harlow's such a good service dog and she's ridiculously cute. At 8:40 she looks so puppyish! Good Harlow!
Good alert Harlow. Glad your doing better.
I just love Harlow! I had a golden..She got sick and I had t put her down. It haunts me every day and I think of her every day and its been 9 years. I wish dogs lived as long as we do. She is such a love! Her are some head pats for her woof!
It's going to be 56 degrees here in Texas on Friday. I can't wait to open all my windows and doors and let the fresh air in.
I relate so much to being thankful to any pain relief. I’ve been exhausted from having a constant headache. The last few days I’ve had a little more energy and have took advantage of it.
Harlow was/is amazing. The ketamine update was interesting, too. I've had those experiences of relief from chronic pain and it's fairly overwhelming. It makes me happy to hear you get relief safely. "Keep moving forward" is becoming part of my vocabulary. Thanks!
Before you were aware of your spike in blood pressure I could hear you sounding out of breath or being a bit breathless. I am glad Harlow is persistent and that you figured out what was wrong and that you gave her so much praise and credit for letting you know something was up. I hope you are feeling better and have a good trip. I love that Harlow enjoys her toys.
Harlow between your legs like that is the sweetest thing. Love her ♡♡
I love your editing style and I'm so impressed at how much you seem to improve every day. I hope you're having a great day💕
Hi Jaquie, I saw that you and Mary ,Frey Life, have found each other. That is awesome. You are both such positive people. Stay well ✨🍁✨
Honestly, it is very frustrating. I haven't had help about my health, so I don't have much luck with family understanding, or jobs because I can't stand long enough, didnt finish school because that's when all my health completely crashed. Its hard when all you did was sports and stay active, now those same people can't even walk to the kitchen or be able to get up stairs most days because you will fall. You will get many bruises. I find myself becoming fatigued to the point where I usually sleep 15/24 hours a day... Just gotta hang in there and try to keep our heads up.
I was also very active, doing Martial Arts 6 days a week. Then BAM, it hit me. It is not easy, and times are often tough, but so are we! You are not alone
Chronically Jaquie that means so much that you replied ❤ I appreciate it so much!!! I hope your plans go well for the weekend!!
Jacquie,
Harlow is the cutest! It's so amazing how she can go from playful pup to working dog just like that. That is so important and amazing. I love you videos so much, they make my day every time. I'm so happy that your feeding tube is fixed. It's so crazy how quickly your condition began to degrade as soon as your formula is taken away. It really shows how much the right formula and the feeding tube is helping. Also I believe what is going on with your eye is either a stye or a blocked tear duct. Use a warm compress to help keep the swelling down and I suggest a doctor because if it is a stye it might lead to an infection because of your immune system. I love your channel and I with you the best!
Mickey
Harlow is such an angel!
70 degrees for us Chicagoans is beach weather 😂😂😂
Kenya D shorts, t-shirt, and flip flop weather!
Same with Canada
north ave time lmao
Sendin love and light hope you find something that works for you, i've been dealing with pots/cfs/fibro/meniers/as and pcos since i've been 12 (now 36), and your 100% right waking up everyday in pain is hard, paint on a smile and keep going but it's terrible.
Hope you have a good trip and have the energy to enjoy
SAME!! Whenever I plan a trip I HAVE to give myself AT LEAST one full day of rest (so no packing or anything; I must do literally NOTHING but rest) both before the travel-day and after the return-travel-day. For this reason I actually can't go on trips where I'd be staying somewhere for less than two nights because I'd just end up spending the whole trip recovering from the travelling it took to get there. It definitely is a little ridiculous and funny when you think about it - us sick people have to plan little"mini-vacations" to prepare for, and then recover from, the main vacations haha. I've always believed and said that laughter is one of the most important things when it comes to winning the battle against your illnesses, even if that laughter is at your own expense haha. My pup and I send you all the love and spoons from Canada!!
Crazy how 70 is cooler in Florida, but is hot up here in PNW Washington.
I hate the heat, so low 50's to high 40's is perfect for me! My husband is from east Texas and hates the heat also. He was stationed in Jacksonville, Florida for a majority of his time in the Navy.
I don't know how uploading youtube videos and making sure to have subtitles works, but I'm so glad your videos have really well done subtitles! (Hearing impared person here)
I feel like you need a special sound effect when Harlow catches the ball mid-air! :-) Also love your leggings so cute!
Hi Jaquie, SPECIAL hello to Harlow today😊
Good Job Harlow! Jacquie, I love you guys and I hope you keep conquering all you challenges! Xoxoxoxo, from North Carolina, Linda. Ps- I'm so happy you met the Frey Life! They are amazing like You, Judd, Harlow, and your Dear friends Janice, Paul , and pups. 🤗
Darn you lol I thought I was actually gonna be able to get through one of your videos without crying because I'm too sensitive but that was Just a really beautiful moment with Harlow and you
I cry because I need a Harlow in my life, but few dogs are as amazing as her!
You are so right Chronic Illinesses do not play fair. When you have more than one it gets hard to get through the day
Don’t take just cold weather outfits. You’ll trigger a heat wave!
I had a friend who traveled to Arizona one Easter for work, and she was the only one in her group who had a cold weather outfit. Her Christmas card that year was a picture of her next to a snowy cactus!
Haha I have shorts too!
Harlow is the best. Sending prayers. ❤️
I can't get over how CUTE Harlow was when she was in between your legs at 8:43
Harlow is an amazing animal. You are so fortunate to have her.
I'm actuly so excited for you to get your wheelchair 😊
Thank you for the Ketamine infusion update. I have degenerative disc disease and Ankylosing Spondilitis tied to my genetic blood factor hla b 27. I always knew this pain could come (from the possibility of acquiring Spondilitis). Just never ready when it happens over a large area of your body in your 30's. I have tried Torodol in my hip for pain relief while waiting for a long term plan, and it is helpful. I have also done a round of high dose steriod infusions from my neuro eye doctor. It was a few years ago and it worked amazing! The only issue is that it can be very very hard on your other organs, so at this stage we are trying to find a way to help the pain without it. Glad you got some relief from Ketamine and you explain things so well. Proud of you.
In addition to my POTS, I have inappropriate tachycardia. My HR spikes in 180s, even when laying down. Its exhausting. I am glad you have Harlow to warn you. I want a service dog, but know there is no way to train alerts like that.
Good job Harlow! I'm so proud of her
Harlow is showing that she's worried about ya girl.🙏🙏💉💊🐊🌴💝💝💝💝🐾🐾🐾🐈🐕😷
I love seeing your videos. I live in Miami and I have a Siberian Husky Epilepsy dog. :) And, yes, now with the cooler temperatures is definitely a relief. :)
That is so cool learning about ketamine treatments. I just started Botox treatments for my migraines on Saturday. I hate having heart rate spikes I have been having a lot lately.
I am so happy that you can enjoy being outdoors☺☺ BUT, me and my family are coming to Englewood Nov 8th (from Michigan), and we would love warmer weather for the week, then you can have your cooler weather back😉😉😎😎
Much love for you and Harlow!
6:34 Good job, Harlow! Keep going until Jaquie understands!
7:50 You let your health come first, which is exactly what you should be doing.
Thank you for all of the information you give us. It has helped me and my friends who each of us have some of your conditions. Peace to you.
Your so brave with the stuff you deal with!!!
Training her to talk, I'm not sure would be very helpful. If she's like most dogs, all she'd says would be "Is that for me?" and "Can I have some?"
Thanks for your honesty you help me stay positive too
I love how even you blood pressure thing is pink too!
I've never been to Florida but I hear it's very hot. Here in Wisconsin we've been in the 40s and everyone's just pulling out the long sleeve shirts but now we're going into 30s and 20s so we're sorta bringing out sweatshirts once it gets to 10 ish degrees we start wearing jackets 😂 I just find it funny
Edit: also that 70 degrees is chilly for southern states! 70 degrees here is very high except for summer then we get up to 105 degrees we range from -25 to 105 degrees 😂😂
I love your tights! That pattern is awesome
I wish Arizona would get with the program with its weather. It's still in the high 90s and low 100s here ! 💀
This isn’t really related to this vlog, but I wanted to say that at work when I’m asking customers if they want a five or ten pence bag I use my hands so show the numbers (I have autism too so I have quite exaggerated hand movements). But now whenever I flash five pence I always expect Harlow to bark 😂 She is such a brilliant dog :) x
Harlow is an angel in a puppy suit :)
Hippo is so cute it makes me tear up somethings 😂 Golden’s are beautiful
Loving the weather in Miami too!
You just need to move all that here to Oregon. This summer we had maybe 40 days over 90 degrees, and most days are under 80.
Ahh just wrote a long comment and my browser refreshed. -_-
1) Yep the armrests just get in the way
2) Looks like you got the Tilite ZRA. Your casters say ZRA? I know they can paint titanium nowadays.
3) Read your manual about maintenance. Ignore the warnings about transferring. You're gonna have to get in your chair somehow. lol It's a bit ridiculous.
4) The power assist wheels are great for you, but the chair will be easy to push with the regular wheels too, because the frame is so light. Sometimes I think my husband pushed me and nope, it's just because my chair is THAT light. (and I'm getting stronger)
5) I took my anti tippers off early on, but that's just me. Definitely leave them on until you're comfortable with your chair.
6) Looks like they did a great job on the fit. Look up "wheelchair propulsion" on UA-cam and make sure your arms at 10 and 2 when you push to avoid injuries. I had to bring my wheels forward. Love the taper they did at the bottom. It fits you perfectly!
and the most important....
7) Any weight you add to your chair changes your center of gravity. This means you'll TIP if you have too much weight in the front of back. If I forget I have a heavy backpack on my chair and stand up, my chair hits the ground! Whoops. lol
And lastly, enjoy every moment of your newfound freedom!! :)
That is awesome that you haven't had no head pain.. Myself is so amazing we're usually extremely grateful that will take whatever we can get even if it's just for a couple of days or even an hour or what not we always thankful for the little things😊😊🤗🤗
Yay new video. I love you guys!!
I just love Harlow!
Hippo is such a good girl 💖💖
Harlow is so good.💜
Stay strong and positive. God bless you both and love to you both
I would some pain management. I have bulging disks from t12 down to s1...also a stenosis and arthritis.
My average heart rate with out my heart meds resting rate is 140. With my meds I stay at 101-105.
Also I am hard of hearing.
I'm feeling blessed that so far my puppy seems to be eager to train and help me already. Just gotta keep that up! I'm hoping she passes the testing for Service dog.
Harlow the hero!!!!!!!!!
You and Harlow make my heart happy
You are amazing! Keep up the good work!!!
Good girl, Hippo ❤️❤️❤️
Good job Harlow😀
Harlow looked so sad that you were in pain