ME/CFS Evening Routine 2020. An Evening with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.
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- Опубліковано 16 чер 2024
- This is my 2020 Evening Routine with CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis). Otherwise known as what evenings are like for me. Unfortunately, my evening routine isn’t super aesthetic but that’s because I keep it simple to conserve energy (also I’m a student living in an affordable rented house, so the kitchen etc isn’t cute).
Is there anything essential to your evening routine that isn’t in mine? let me know!
(I reply to comments)
My name is Elinor, I am a 21-year-old sociology student who has been living with ME/CFS for 5 years and has recently started making UA-cam Videos about my experience!
This video does not necessarily reflect everyone's experience with ME/CFS because we are all different and have different experiences. This is because ME/CFS can be different than I have experienced, and each person’s situation will be different and therefore each person’s story will be different!
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Follow me on Instagram / ellellell_brown
Thank you so much for watching!! Make sure to like, comment, and subscribe (we are so close to 100 subscribers) to see more videos from me every SUNDAY!
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#Myalgicencephalomeylitis
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Watch Next: MECFS Morning Routine ua-cam.com/video/dZHN-DPUY74/v-deo.html
You look incredible with or without makeup or whether your hair is done. Whatever you can manage and makes you feel good!
Thankyou! i def agree!
Hello my lovely! Firstly congrats on hitting 100! That’s absolutely amazing 💖 I really loved this - very realistic, but still positive and fun to watch! Your editing is so good. Well done my lovely 💖💖
Thank you so much, it really means a lot to me that you like my videos !! 💖💖
This was a great video! I know what you mean about those extra steps being so hard sometimes! I definitely need to get back into cutting blue light before bed.
The extra steps are the worst! im working on cutting blue light, but i forget a lot... ooops...
I'd love to see you make a bullet journal video as it's something I want to start doing.
I’ll definitely think about it as I love my bullet journal!!
Also, would you consider doing a video on a ‘what I eat in a day’? I’d love to see quick and easy meals when your CFS is bad 💖
I dont really have a specific diet like you do, I just go for easy stuff that doesn't make me feel worse. I could definitely do a what i eat in a day though !!
Elinor Brown that would be great! I know haha, but I’d still like to see easy meals you like to make for yourself? I can then adapt them so I can eat them 💖
@@ShannonEmelia oh thats true ! my housemate suggested I do something like 'low spoons meals'. (that's kinda the same as what you're suggesting, right ?) would that type of thing be useful ??
Elinor Brown yes defo! Anything that’s easy to eat or easy to make would be great! 💖
Spotted 👀
you looked super cute x
Fab evening vlog 😊 also don’t bother taking my makeup off at night 😂 it takes so much effort just to put it on 😂 xx
Thankyou x and it's nice to know I'm not alone in not bothering ! xx
I know the struggle. How many times i’ve layed in bed trying to remember whether i already took my sleeping meds.
I'm terrible at remembering, quite often it'll be 2am and i'll be wondering why i cant fall asleep and then i realize that i haven't taken my evening meds!!
Does your doctor believe in ME and what treatments have you tried?
I don't currently have a good GP, I had a fantastic GP for years, (luckily throughout when i was really bad) but she has retired now, so I'm currently on the look out for a new long term GP that understands. I haven't come across many doctors who don't believe in it luckily!! I've had Graded Exercise Therapy and Cognitive Behaviour Therapy, (there are videos on my channel about both treatments) I'm also on medication for various symptoms.