I want to tell you how much I appreciate your videos. They have meant so much to me. Though we are quite different, I am 57 living in California with my wife , we share the illness of ME/CFS. Your realness, acceptance and spirit have moved me and inspired me. Your videos about mobility aids have been amazing, but so is this video. Thank you so much. I am a fan .
This time last year I was working full time and was even covering as manager until they hired a new one, now most days I struggle to even get out of bed. At home I furniture walk or use my crutches. Out of the house 75% of the time I'm in my wheelchair the rest I'm using my crutches. I'm still grieving the person I used to be and trying to accept the person I am now but it's difficult. Seeing videos like this help so much and give me the courage to keep on going with the knowledge that I'm not alone in this ❤
loved this, elinor! i resonate so deeply with the hard emotions felt when realizing how easily you tire out, flare up, etc. i've been going through a similar process as i'm learning what it is my symptoms mean (seeking diagnosis) and what my "rules" are. thank you for your vulnerability, you're making so many of us feel less alone. much love 💞💞
I hope you had a good birthday!🎉 Birthdays are so difficult. I got sick when I was sixteen and am now nineteen and keep getting worse every year. Holidays and also family members birthdays are difficult as well. It was my moms birthday last week and I was too ill to go to dinner with everyone else. Things like that can really be a punch to the gut.😢 On another note- I think your outfit is so pretty! I love that lavender jumper.💜
Having obvious days where you can easily compare your state of health can be a great encouragement when things are on the up but it’s hard not to get disheartened when things seem to be going down. Hopefully the next one will show an upturn now that university is over 🤞🏼🤞🏼💜💜
My birthday is on Monday and it will be my first birthday diagnosed… so I totally understand your feelings. I love your videos, you make me feel so much less alone. ❤️
Hi Elinor. Subscribed today after watching a few of your vlogs. It’s nice to see that you have your days mostly mapped out. I’m retired myself, so time to search around YT and fill my head with rumours and other assorted rubbish. I’m looking forward to seeing more videos of your life journey and how you cope with the downs whilst enjoying lots of ups, and I know you will. Take care. Jeff
I love watching your videos! I'm newly diagnoses with ME/CFS and adapting to my new life has been really hard. I've learned alot of helpful tips from you :)
Thank you so much for this video Elinor. I've been in a really bad flare the last couple weeks after having had an upswing in my symptoms for the last few months, and seeing this made me feel less alone
Thank you Elinor, you are very brave to video this. I am over 10 years in with Lyme. Learning to pace yourself is so important. As is learning to say no. Having a hobby helps. I do some craft which I can do in bed and rest when I need to. That way I feel I have achieved something. A computer stand to rest the book on helps. Not overdoing it on good days is the secret ❤
Really glad you’re sharing this! I’ve recently been diagnosed but still struggle with accepting it’s actually true. But this day really reflects my average day. I have to figure out how to finish my grad studies while not making myself worse and your videos help a lot 💖
Hi Elinor, thank you for the vlog. I was wondering if you could let me know how you were diagnosed, I find the doctor very dismissive and just says its a vitamin d deficiency and stress, it’s a little disheartening
I have given up on a diagnosis having suffered since I was 15, I’m 50 this year - I just do my best to get through each day, I am a single mum to teenagers so I have to work I have no choice so a diagnosis would change nothing for me. The doctors have always been pretty dismissive, it feels like a fight and when you are already ill you don’t want to have to keep fighting
It’s not a lack of motivation, it’s more that you are ‘disabled’ because if you are anything like me, you find that your mind and body are hardly ever in synch, if my head feels well and willing my body doesn’t and vice versa - it’s a daily battle. Depression is a factor but it’s as a result of constantly having no energy to do the things you want to do. Imagine a day of your life when you have spent it walking round and round a shopping centre all day until you are so exhausted you have to go home, crash out and sleep, next morning after sleep you are refreshed and ready to go again, well, with this condition you are never refreshed, you are living a really tired day over and over without any recovery…that’s what it’s like
Elinor, please ask your mum if she ever heard of an English pop group named Herman’s Hermits? They made a song called “ Mrs Brown, you’ve got a lovely daughter.” Give it a listen and smile. Jeff
I feel the need to recommend these books to people with this illness and many many others- as I am also one of them. Medical Medium "Brain Saver" by Anthony William. The methods are working. Someone told me about it and I feel like I owe them everything for it. I've done my own research on natural medicine and the science behind the way the body works and how these illnesses happen- and they are the same as this book. Please consider.
@ yes, I have for years and haven’t been able to work so I have been educating myself and trying pretty much everything I can. One thing I recommend anyone with chronic fatigue or fibromyalgia range of symptoms, is LDN (low dose naltrexone). Look into this!! And join subreddits for CFS and other symptoms you may have or diagnoses you may have received. Not to make you feel worse (be mindful about negativity), but people share so many things that I’ve found that have helped me! On another note, I do suspect my condition has something to do with long covid that reactivated Epstein Barr, because I had mono and repeated strep throat as a kid. (I have no answers from doctors). If you have, or even haven’t had covid before, I also HIGHLY recommend reading “healing therapies for long covid” by vir mccoy. It’s incredibly informative for chronic illness of any kind really. It goes into everything, extensive alternative treatments and remedies.
مرحبا لا يستحق ان تعبدي مخلوق ضعيف يموت لم يخلقكي فقط خالقك يستحق ان تعبديه وحده لا شريك له من فضلكي تعرفي على الاسلام الحياة قصيرة تنتهي في اي وقت ونعود لربنا ليحاسبنا اني ناصح لكي امين وشكرا
I want to tell you how much I appreciate your videos. They have meant so much to me. Though we are quite different, I am 57 living in California with my wife , we share the illness of ME/CFS. Your realness, acceptance and spirit have moved me and inspired me. Your videos about mobility aids have been amazing, but so is this video. Thank you so much. I am a fan .
44 here 27 years fybromyalgia muscle pains worst symptoms bow with ldn are you hypermobile
This time last year I was working full time and was even covering as manager until they hired a new one, now most days I struggle to even get out of bed.
At home I furniture walk or use my crutches. Out of the house 75% of the time I'm in my wheelchair the rest I'm using my crutches.
I'm still grieving the person I used to be and trying to accept the person I am now but it's difficult.
Seeing videos like this help so much and give me the courage to keep on going with the knowledge that I'm not alone in this ❤
I like this kind of content. Also congratz on graduating. I’m about to get my high school degree at the age of 30.
Congratulations! 🎉
thank you so much, seeing someone else with cfs makes me feel less alone
loved this, elinor! i resonate so deeply with the hard emotions felt when realizing how easily you tire out, flare up, etc. i've been going through a similar process as i'm learning what it is my symptoms mean (seeking diagnosis) and what my "rules" are. thank you for your vulnerability, you're making so many of us feel less alone. much love 💞💞
Lol..''no one cares about lunch''...so true!
I’m also a chronically ill person. Love ur outfit and nails!
I hope you had a good birthday!🎉 Birthdays are so difficult. I got sick when I was sixteen and am now nineteen and keep getting worse every year. Holidays and also family members birthdays are difficult as well. It was my moms birthday last week and I was too ill to go to dinner with everyone else. Things like that can really be a punch to the gut.😢 On another note- I think your outfit is so pretty! I love that lavender jumper.💜
Thank you so much for sharing this. It makes me feel so much less alone to see someone else with days so similar to my own.
Also happy birthday :)
Having obvious days where you can easily compare your state of health can be a great encouragement when things are on the up but it’s hard not to get disheartened when things seem to be going down. Hopefully the next one will show an upturn now that university is over 🤞🏼🤞🏼💜💜
My comfort show is “Call the midwives”
I love call the midwife!! 💛 such a good comfort show!
My birthday is on Monday and it will be my first birthday diagnosed… so I totally understand your feelings. I love your videos, you make me feel so much less alone. ❤️
Hi Elinor. Subscribed today after watching a few of your vlogs. It’s nice to see that you have your days mostly mapped out. I’m retired myself, so time to search around YT and fill my head with rumours and other assorted rubbish. I’m looking forward to seeing more videos of your life journey and how you cope with the downs whilst enjoying lots of ups, and I know you will. Take care. Jeff
I love watching your videos! I'm newly diagnoses with ME/CFS and adapting to my new life has been really hard. I've learned alot of helpful tips from you :)
What isME
@@diannelynn9876 Myalgic Encephalomyelitis formerly known as Chronic Fatigue Syndrome
Thank you so much for this video Elinor. I've been in a really bad flare the last couple weeks after having had an upswing in my symptoms for the last few months, and seeing this made me feel less alone
What kind of cereal is that, definitely doesn’t look like American cereal. The after breakfast nap looked heavenly!
In Italy the cereal is called "Chocos"... I suppose they're like "Cocoa Pops" but in a different form
Thank you Elinor, you are very brave to video this. I am over 10 years in with Lyme. Learning to pace yourself is so important. As is learning to say no. Having a hobby helps. I do some craft which I can do in bed and rest when I need to. That way I feel I have achieved something. A computer stand to rest the book on helps. Not overdoing it on good days is the secret ❤
Happy birthday! 🎉😄🎁🎈
If you don't mind sharing, what tablets do you take and how do you find they help if they do?
Really glad you’re sharing this! I’ve recently been diagnosed but still struggle with accepting it’s actually true. But this day really reflects my average day. I have to figure out how to finish my grad studies while not making myself worse and your videos help a lot 💖
Love your videos. Not many youtubers to watch that have the disability as me.
I live in chronic pain, and it sucks
Beautiful ❤
❤
Hi Elinor, thank you for the vlog. I was wondering if you could let me know how you were diagnosed, I find the doctor very dismissive and just says its a vitamin d deficiency and stress, it’s a little disheartening
I have given up on a diagnosis having suffered since I was 15, I’m 50 this year - I just do my best to get through each day, I am a single mum to teenagers so I have to work I have no choice so a diagnosis would change nothing for me. The doctors have always been pretty dismissive, it feels like a fight and when you are already ill you don’t want to have to keep fighting
If you’re awake at 9.30pm and going to read, that’s pretty normal. Is some of this more depression and lack of motivation?
It’s not a lack of motivation, it’s more that you are ‘disabled’ because if you are anything like me, you find that your mind and body are hardly ever in synch, if my head feels well and willing my body doesn’t and vice versa - it’s a daily battle. Depression is a factor but it’s as a result of constantly having no energy to do the things you want to do. Imagine a day of your life when you have spent it walking round and round a shopping centre all day until you are so exhausted you have to go home, crash out and sleep, next morning after sleep you are refreshed and ready to go again, well, with this condition you are never refreshed, you are living a really tired day over and over without any recovery…that’s what it’s like
Elinor, please ask your mum if she ever heard of an English pop group named Herman’s Hermits? They made a song called “ Mrs Brown, you’ve got a lovely daughter.” Give it a listen and smile. Jeff
I feel the need to recommend these books to people with this illness and many many others- as I am also one of them. Medical Medium "Brain Saver" by Anthony William. The methods are working. Someone told me about it and I feel like I owe them everything for it. I've done my own research on natural medicine and the science behind the way the body works and how these illnesses happen- and they are the same as this book. Please consider.
Do you have this illness? Did it work for you or are you just giving “advice”
@ yes, I have for years and haven’t been able to work so I have been educating myself and trying pretty much everything I can. One thing I recommend anyone with chronic fatigue or fibromyalgia range of symptoms, is LDN (low dose naltrexone). Look into this!!
And join subreddits for CFS and other symptoms you may have or diagnoses you may have received. Not to make you feel worse (be mindful about negativity), but people share so many things that I’ve found that have helped me!
On another note, I do suspect my condition has something to do with long covid that reactivated Epstein Barr, because I had mono and repeated strep throat as a kid. (I have no answers from doctors).
If you have, or even haven’t had covid before, I also HIGHLY recommend reading “healing therapies for long covid” by vir mccoy. It’s incredibly informative for chronic illness of any kind really. It goes into everything, extensive alternative treatments and remedies.
مرحبا لا يستحق ان تعبدي مخلوق ضعيف يموت لم يخلقكي فقط خالقك يستحق ان تعبديه وحده لا شريك له من فضلكي تعرفي على الاسلام الحياة قصيرة تنتهي في اي وقت ونعود لربنا ليحاسبنا اني ناصح لكي امين وشكرا