My Bloodwork Results: Lupus & Hemolytic Anemia
Вставка
- Опубліковано 8 сер 2023
- In this video, I'll be sharing my bloodwork results with you specific to lupus and hemolytic anemia. I'll discuss my bloodwork results and share my experience with both conditions. I hope that by learning about my experience, you can get a better understanding of what you're dealing with and find the support you need to get through this tough time.
--------------------------
→ Check out my blog
healwithsamantha.com
→ Show my favorite things on LTK
www.shopltk.com/explore/healw...
--------------------------
Follow me on Social Media:
↪ Instagram: / healwithsamantha
↪ Facebook: / livehopelupus
--------------------------
Try out Purple Carrot (Get $20 off): purple-carrot.wk5q.net/c/2622...
--------------------------
BUSINESS INQUIRES ONLY:
samantha@redefined-agency.com
--------------------------
My name is Samantha Boothe and I have been creating advocacy videos on UA-cam since 2009. This channel was formerly known as Live Hope Lupus and was created in order to start a community for those living with chronic illnesses. In September 2019, I transitioned to a plant-based diet and I have found my body is responding well to it. Along with my lifestyle change, I am learning to alter my focus more on the positive. My current content will focus on my healing journey, what food I am eating, and everyday life. I will still be posting an occasional update about my health. I hope you all are ready to join me on this crazy journey of healing. We are all learning how to navigate this life together. If you have subscribed, thank you! I appreciate your support and look forward to talking with you all in the comments.
--------------------------
DISCLAIMER: This content within this video is not medical advice. The purpose of these videos are for general education and to share my own experience. This content should not be used to self-diagnose or self-treat any health condition. Please consult a healthcare professional before attempting anything in this video.
#Lupus #HemolyticAnemia
Thanks so much for sharing your journey. Daily living can be challenging as we get older. it gets soo hard to wake up every day to live. Work out eat well take meds and supplements the schedule is quite exhausting. All your efforts and hard work are paying off - i am shouting hope you hear me?
YOU LOOK AMAZING SAM!!!
Hi Samantha. It feels like it takes 3 doctors to figure this out. No one will give me a definitive diagnosis.
I've got my first rheumatologist appointment on Saturday, after showing i have anti ccp antibodies in my blood. I have been in chronic pain for 4 years and had numerous mri's on my spine and brain but nothing shows up, accept normal wear and tear for someone my age (59) I can hardly walk because my spine feels like its being crushed. Plus neck/shoulder/hands/stomach etc pains really get me down. I'm trying not hard not to hope to get a diagnosis because the disappointment I
experience hits really hard. Especially when they say nothing wrong and its past trumor trapped in my body 😢
Thanks for sharing, Samantha! Hugs from Portugal.
AHHHH love to see such great looking numbers 🎉 i just had some labs done and i only got my cbc back so far but thank god its looking good 🎉 usually if somethings wrong my white count hits the floor so I’m happy 🥰
Glad i found your channel. I am newly diagnosed but sick for 12 years.
Thank you for sharing ❤❤❤
Hello and thank you. I go back to the doctor for lab work at the end of this month. I was diagnosed this year. You are showing proof that everything is going to work out. I have been a vegetarian for bout 5 years. I am just now adding fish to my diet. Try protein shakes. That’s what I used to assist with my protein. Keep sharing it helps those that are new. Thank you once again.
I'm impressed by your anti-dsDNA levels! Mine have always been crazy high. I have UCTD (basically a Venn diagram of Lupus, Sjogren's, and RA-mine leans more toward Lupus). No nephritis, thankfully, and my levels have improved dramatically since starting Benlysta. It's still positive but it's the lowest it's ever been for me. I used to watch your videos years ago when I first got sick, so I'm happy to see you're doing so well! Which immunosuppressant(s) are you currently taking? I just came off MTX after three years this time around and only take prednisone as needed, which is huge for me because for the longest time I needed MTX, Ben, AND pred.
Samantha! ❤ thankful for still sharing with us. Your numbers look awesome. You look so happy and healthy. I will be moving over to more plant based. Hopefully lupus will be into Remission. Do you have any suggestions so vasculitis? Glad your doing well! Have you thought about babies?
Hello! Thank you. Good luck on your plant based journey. I think eating more plant based has been beneficial for me, I hope you have good results as well.
I have only had experience with vasculitis in my eye. They gave me prednisone to treat it at the time. I would check with your doctor on the best route to take.
As for babies, I am still considering. Since I am 30 now, it may happen soon as long as my numbers are stable. :)
Thanks for sharing. I don't have lupus, but you guys keep appearing in my feed, and it was nice to see how strong you are. I don't know what I have. I had to take iron for a while for being anemic, but my kind or whatever was where I didn't need a blood transfusion, but my red blood cells were smaller and not getting enough oxygen. I am not concerned about that, and it seems odd to me. My oxygen is fine. I'm a fatty diabetic though.
Yeah, time to get my routine blood work done. My complements are always low :( trying to get them up.
I seen a rheumatologist two years ago and he diagnosed me with Lupus and has not ordered any labs since.
Mixed Connective Tissue Disease (MCTD) is often misdiagnosed or wrongly diagnosed by doctors, which is frustrating. MCTD is much more specific than the term/dx that gets too loosely thrown around. It's also not just an umbrella term; it's more specific than that. It is a combination of a positive U1-RNP antibody in the presence of an overlap of 3 specific autoimmune diseases, those being Systemic Lupus Erythematosus (SLE), Polymyositis (PM), and Systemic Sclerosis/Scleroderma (SSc). Often doctors will give a MCTD diagnosis when what they really mean is either: a) Undifferentiated Connective Tissue Disease (UCTD) where a patient has some elements of autoimmune connective tissue diseases (AI-CTDs) without really fitting the box for one in particular; or 2) a combination of two or more accurately diagnosed specific AI-CTDs. For example, while I have "a mix of AI-CTDs", I don't have MCTD. My AI-CTDs are Antisynthetase Syndrome (ASS) with Polymyositis (PM), and Relapsing Polychondritis (RP). I also have other autoimmune diseases that aren't connective tissue diseases (they're gastrointestinal, dermatological, and neurological), and a connective tissue disorder that is genetic, not autoimmune. I have 5 positive autoantibodies: PL-7, gastric parietal cell, anti-ganglioside GM1, cold agglutinins, ANA (in two patterns - speckled and mitotic spindle).
I had several bloodwork results flag included positive ANA, RNP and a bunch of the kidney numbers. But since my numbers aren’t super, super high she told me to come back in a year. I’m so sick I can’t imagine waiting a year to do anything. 😢
Oh man, that is such a bummer. A year is a long time to wait. Do you have symptoms as well?
@@HealWithSamantha yes, very symptomatic including 9 of the 11 lupus criteria. I’m in the process of waiting for a second opinion.
@@faithmomlife1504 Okay, good. That was going to be my suggestion! Sorry to hear you are in pain and dealing with this.
Take all your labs and get a second opinion
Thanks for sharing. The low globulin and elevated Bilirubin are more an indicator of liver damage or disease, not to do with a vegan diet, more likely a result of medication. Would like to see your lactate level too.
ME TOO GIRL! hemolytic anemia and lupus 🧛🏻♀️💜
Helpful info thanks. Have lupus, raynauds, sjogrens. Would be interested to see update on medications you have tried and your experience with them if you have time. I take plaquenil and have taken prednisone but feel unsure about trying the injections.
This is a great video idea. I can definitely plan on filming an overview of my experience.
Hi Samantha Thank you! This video helped me to understand how to read ANA test results. My daughter suffers from some kinds of autoimmune disease. Now I figure learning about lupus and RA is a key. Please give us suggestions about autoimmune diet that are very helpful for you.
I have ana postive but I have sjogrens and I was iron deficiency anaemia
Thank you for sharing
How are you being treated? Do you use diet and lifestyle?
My most recent CRP was 20. Before that it was 53. I’m still undiagnosed with anything for sure other than I do have Lyme disease. My ANA was negative but my symptoms are pointing to Lupus.
Sam, at one stage you followed Dr G's protocol. Did you return eating animal products?
Hi Samantha, is it possible to have RA with a negative RF and positive lupus blood test results?
My wife has many symptoms of Lupus. What do you think is necessary to tell the doctor? I hear they hardly ever diagnose Lupus.
Demand an ANA, CRP, ESR test for starters. You can also order these privately, but no insurance covers it.
Hi Samantha, are you on cellcept?
I’m curious as to how you got these crisp results, all mine from a hospitalization in 2019 were “abnormal” without much clarity.
Plz help lol really no joke so the Dr thought I had MS my ANA was negative but all of my blood work is showing inflammation:( my liver is good my kidney are good so he said I could have lupus or connective tissue disease I’m so lost now idk what’s going on so is it possible for me to have autoimmune and the ANA show nothing:(
Were your Monocytes and Neutrophils ever elevated with Lupus?
What exactly do you eat ? Im kind of vegan too just some time fish but i dont have good weith
Is it every time you catch Covid you get hemolytic anemia because I have costochondritis tmj vcd slipping rib not sure if I have rheumatoid arthritis dont know what tests to get for diagnosis but for me I caught Covid this Christmas and ive got jaundice and other symptoms currently waiting on blood test results but in your situation do you see your hemolytic anemia coming back after Covid or not sorry if this is a bother
You did Dr.s Brooke Protocol that didnt work?😢
I'm curious about this also she didn't do an update after finishing the protocol