I was a lab technician who worked in autoimmune and reading ANAs was one of my jobs. Interesting to learn how things have changed in the 10 years since I retired.
I'm so thankful for this particular video and l was so stressed out with my ANA Centromere patters, and your video has calmed me. I am hoping on Thursday when my doctor reads my test results that he will pay clear attention to these results and pay attention to how l have been feeling. And most importantly that he will care. Thank you so much for being available for us all with your informative videos.
It’s great to have you back doctor. I was just looking for you on the web last week and this first episode today has really made me feel great. You look good. I hope you are feeling well. Patricia.
Really appreciate this video. I have really bad anxiety and health anxiety. My doctor wouldn’t do anything and said it’s all my anxiety causing some of my symptoms. Which is mainly brain fog, feeling off in my head and some headaches. I did the function health labs and got a positive ANA with Dense Fine Speckled pattern and started freaking out immediately. But I really don’t have any symptoms except for about 2 weeks of brain fog recently and I had it in 2019/2020. So I’m trying to relax myself and your video really helped. Thank you!
I am so happy to see you on UA-cam again. It feel like I just went to visit my Rheumatologist which I wish it was you. I am Maria the one who did the painting for you. Hope to see you soon.
This is really helpful for reassuring me that I should've indeed been dissatisfied when my rheumatologist dismissed my ANA results in an instant just because I didn't remember having a malar rash.
I have 2 types: Homogeneous Pattern 1:160 and Speckled Pattern 1:40; I have NO symptoms at all! Guess i should still have further tests even though they are fairly low?
NUCLEOLAR that’s what my ANA IFA said….. and titer 1:1280 ….. I’m suspecting Sjogren’s (thanks UA-cam) but rheumatologist only to ask about Lupus/fibromyalgia symptoms…. I have freezing extremities including butt 😮in winter, and episodes of burning feet in summer, restless legs and arthritis pain in hands that comes and goes. Swollen neck glands and throat pain- the ENT says it’s just from vocal damage. dry mouth and a little dry eyes (could be meds though) if anyone reading this could comment if they have these issues that be great. I’m at anxiety/ research craze right now. Thanks Doctor- I just subscribed
@ no, I will look that up too. Thank you for commenting. I was prescribed Neurontin for my neuropathy symptoms (that come and go) but I’m worried about side effects…. and it might not even work on the hand pain .
My ANA comes out 1:1280 homogeneous pattern with a lot of symptoms. Further tests came back with elevated RF and Chromatin. I was diagnosed with Lupus. This was 6 years ago. Since then, I’ve developed a few other AI conditions that go hand in hand with Lupus, as well as Lupus complications. Good job in explaining ANA
@@lavanyathammineni6200 I have no idea about vit C. I dont think it matters really. You either have these antibodies or don't. I don't believe they are affected by vit c
@@lavanyathammineni6200 and maybe some healthy ppl can have them too but at the smaller titer. I think the cut off is 1:360. If at or above, there is a good chance you have AI disease, of course if you are bothered by symptoms as well
My ANA was positive with 1:640 homogonous and 1:320 speckled pattern, but all of the specific antibody tests were negative. It’s so confusing and honestly there’s no good info on mixed pattern out there. My other blood work was fine except for low HDL, CL, and Creatinone. My symptoms are becoming more and more debilitating. I’m constantly getting periods of several days when I literally can’t get out of bed and my whole body hurts. Plus a bunch of other random symptoms… i’m currently waiting on a rheumatologist appt but i fear it’s gonna be a difficult path to a diagnosis
Been dealing with pain since 2011, diagnosed fibromyalgia immediately without ruling out other conditions. I have ANA 1:640 speckled pattern. HLA-B27 positive, slightly elevated aPTT- but still fibromyalgia 🤷🏻
In Feb. 2023, my stain was Nuclear Speckled. In June 2023, my stain was Nuclear Centromere. In Jan. 2024, it said Mitotic Intercellul Bridge. In Oct 2024, my stain is Nuclear Centromere again…HELP! I’m EVERYWHERE! I STILL don’t have a diagnosis but I feel HORRIBLE!😩
What is recommended of someone who tested positive, nuclear, dense fine speckled (1:320), but doesn’t have any other symptoms worth mentioning? The test was done through function health testing and this result has caused quite a bit of concern.
I have an ANA of 1:320, high esr and crp. Multiple joints with pain and multiple other conditions. My first round of antibody test have come back neg. Should my rheumatologist continue with more lab tests? I've been suffering for over 5 years now.
My understanding is that 320 points to possible AI condition but it doesn’t have to mean that one is present. Your # is sort of a cut off point for suspicion. If you have other conditions, antibodies can be a little elevated but, most importantly, if you have joint pain with high ESR and CRP that should be treated. Hope you are getting some help already.
Check into AVISE testing by Exagen. It is a highly sensitive test. If you call the company, they can tell you names of doctors in your area who are familiar with the testing and the results. You’ve been suffering for five years, so that should tell you something. You know your body.
My ana 1:320 to 1:640, speckled. Docs do near nothing aside from sed rate, crp n told them neg zero concern despite agony, being bedbound, super stiff, weak, exhaustion, zero life decades
My ana and speckled pattern 1:160 came back positive. Drs did a 12 panel ana and all the panels were low positive. But Drs said it's negative and I don't have lupus.. I have a lot of musculoskeletal issues and psoriasis. Extreme fatigue, hair loss, lack of sleep and lots of nerve pain, numbness, tingling, prickly feeling and burning but the Drs say still no lupus.. esr, ana, CK and components c3,c4 elevated.
@@jaco0712 nothing. I see my rheumatologist again this month but I believe they are going to refer me to another Dr out of state.. I'm also dealing with cervical radiculopathy
@@jaco0712 nothing.. I'm still waiting to see rheumatologist out of town that my rheumatologist is referring me to. I was just diagnosed with radiculopathy and fibromyalgia...
@@jaco0712 just had a repeat of some test and my esr is 50 and crp is 1.31... also found out inhave a fibroid tumor that 10cm.. im getting tested for some stomach issues as well.. im 53 still not post menopausal.. haven't had a cycle since end of September 2023.
@@moniquemo2203 thank you! Husband has elevated Sedrate (99), crp, c3, 1:160 titer, speckled Ana and several other “off labs. We have an apt in 2 weeks to discuss with the doc. Should we be scared?
I have a positive ANA, dense fine speckled pattern and 180 titer. I was diagnosed with autoimmune hypothyroidism with multi nodules and enlarged thyroid. I feel like I have another auto immune disease because I have extreme fatigue, joint pain, facial rash and many more symptoms. My endocrinologist referred me to a rheumatologist and the rheumatologist said my chances of having another autoimmune disease were low. My dsdna and smith were negative. C3 was normal but c4 was elevated. I was feeling good at the time of those blood test. Had just finished taking amoxicillin for a UTI. Any thoughts or maybe a different rheumatologist. He seems very disinterested in everything. Thanks
I have hypothyroidism with at least one nodule and have elevated ANA speckled pattern. Can't remember exact type pattern or level because I have not looked at results in a long time. I am very ill and have symptoms you listed with more. Endocrinologist I saw last gaslit me entirely even though I was referred by my PCP for the above symptoms and 40 yrs of hypothyroidism and now very low serum cortisol. My PCP is concerned about possible addisons disease so the Endo was supposed to help with this. Time to start over finding another endo after waited months to see him. At least my PCP who is an NP is being very helpful and is angred by the gaslighting I have received by a lot of drs. She is not afraid to confront this behavior by including my experiences in her chart notes. She is the first PCP I have had who actually does what she can to advocate for me despite only having a few minutes at an appt to address my MANY health conditions and very complicated history.
Question: are anti-centromere antibodies never/rarely found in SLE? Thirty years ago, I had that pattern (as well as ANA speckled/homogenous over the years.) Due to symptoms was diagnosed with ",an autoimmune disease that most closely resembles SLE, or Lupus for short. 😂" While I did check off the C R E & T of Crest, proceeding as though it was SLE worked and I finally went into a seemingly durable remission after a rough initial 8 years. Now, there's a question of Sjogren's. **Sigh*" Just always been curious. Thanks for your informative videos.
I’m Ana positive with cytoplasmic pattern and my doctors act confused. Why is it they don’t know it can be associated with Lupus, Hepatitis, dermatomyositis?? So frustrating. I already meet the Lupus point criteria. I have major weight loss, severe stomach pain, numbness, Raynauds, joint pain, muscle weakness photosensitive rashes, burning knuckle rash, dry mouth and eyes, blood vessel inflammation, blood in urine from my kidney bleeding and still no diagnosis! After 3 years that finally suspect Lupus but won’t say for sure. I just want to feel better! Any tips or advice from anyone is appreciated! The burning knuckle rash has me thinking more Dermatomyositis.
Ask them to give it a try and treat you as if you have Lupus, just to see if it works. For example, get on Plaquenile for a few months and see if it helps your symptoms. Don’t push for diagnosis but rather for treatment of your symptoms.
@@DJ-nk4dq thank you, I was wondering why they haven't tried that route yet but ironically was just diagnosed today via lymph node biopsy. Of course I didnt want any disease but I knew I was sick just a matter of what it was or what they could do to treat me and get my quality of life back.
I’m so confused. I was diagnosed with Antiphospholipid Syndrome in 2000 after PEs , stillborn daughter at 36 weeks, migraine and TIA symptoms as well as other symptoms. After years of being followed at Cedar Sinai I was finally diagnosed with Lupus by a rheumatology attending dr in 2011. By that time I had already had PE x 5 , bunches of TIAs and numerous superficial clots. I moved in 2020 and the new rheumatologist doesn’t think I have Lupus. I have symptoms of Lupus as well. Thing is that he’s convinced I don’t because I have dense fine specked patten 1:320 and I think one was 1:6 something. Any suggestions would be greatly appreciated. As far as I know even Antiphospholipid Syndrome is an autoimmune disease so how can I not have an autoimmune disease?
I can totally relate I’ve had a few ANA results back positive 1:320 homogenous pattern. My Rheumatologist doesn’t think I have lupus because I don’t present all the “classical” symptoms of lupus. It’s frustrating because I have a lot going on and with no specific answer.
My mother was diagnosed with Lupus back in the early 1980's. She was put on medication for it, but later was told it was a misdiagnosis, that she did not have it but actually some rare form of Cirosis of the liver. Seems its one they still have a hard time diagnosing.
@@ericapoe Lupus and other auto immune disease symptoms are so similar to Lyme's. You must be properly tested and doctors are not willing to dig deeper. A pill fixes all 😉
I just had testing done after 3 weeks of pain in my fingers and wrists that changed location daily, came on out of nowhere, finally went to dr tuesday and today pain is gone. Ana was positive and i was hopeful i just had an infection causing that. But now came back with 1:320 and a speckled pattern and im so worried about lupus. Idk what the chances are i dont actually have an autoimmune disorder with these findings though 😪 got a referral today to rheum
I have a positive ANA titer 1:160 nuclear homogeneous pattern my dr diagnosed me with seronegative rheumatoid arthritis. In your opinion Dr. Ortiz would you start a patient with hydroxychloroquine at this point or wait till the patient test positive for another autoimmune disorder?
It’s so depressing because I can’t even get in to see a rheumatologist😢 I’m living with the symptoms and it affects the quality of my daily life. My NP ran ANA and one came back positive. They did another with a panel. She said you do not have an autoimmune disease. It’s so hard when living with symptoms that has changed the quality and be told you’re fine. Any recommendations? Could an internal medicine doctor help?
I have had 2 ANA tests, 6 months apart. Both tests were speckled, 1:640. I feel fatigued all the time, and other symptoms. I just want answers and a diagnosis at this point.
Hi sorry to hear this...i had the same thing over 15years ago...the rheumatologist said we will just have to wait...i said wait for what? He said for your symptoms to get worse...i was so annoyed...i have scleroderma
That's what mine was too. I'm waiting to hear back from my doctor what this means. On the portal it says something about Sjogrens syndrome and systemic sclerosis/polymyositis. Have you heard anymore?
At this point I am being treated for Limited Cutaneous Scleroderma. Systemic sclerosis but a limited form of it. After further testing they found anti- centromere antibodies. Hopefully you find some answers
I am suffering with sjogrens for 5 years now and because my test was negative, NO ONE will help me. Dry throat is so bad, my thyroid is obviously messed up now.
Can you please possibly help me understand my results. I am currently diagnosed with Ehlers danlos syndrome, POTS, SLE, then IC. My ANA pattern is always speckled however, I am always also positive for centromere antibodies. My rheumatologist is confused because my ANA pattern is not centromere. She has redone blood tests for this three times and it's always positive. She's doing one more test in April to check for the centromere antibodies again. Any thoughts on what could be going on? I questioned her about if my Speckled ANA pattern could change into the Centromere pattern in which she said no. I also remember an older video in which you said blood work can show signs of things to come up later in life, so I'm concerned about the Centromere antibodies that have been consistently showing up. I'm not sure if I need to go to another rheumatologist for a second opinion. Any advice would be so incredibly helpful thank you.
I was referred to a Rheumatologist for a positive ANA ration1:80 speckled cytoplasmic musculoskeletal type and she blew it off with no further testing saying i did not have Lupus. Total waste of my day and money. The medical profession has gone straight to H*ll.
I am suffering from ankylosing spondylitis. I m 40 yr old. My penis is hanging down and is becoming very loose and soft. Is this happening because of my illness??
Hi I had a positive Ana My Teter was 1:320 Pattern nuclear dense fine speckled I read that a nuclear dense fine speckled means I don’t really of autoimmune?
@@lavanyathammineni6200 hi I have the same symptoms I have been having. I recently saw a rheumatologist and I am scheduled for blood work next week to test specific antibodies. When I saw the doctor he wasn’t too concerned image anything but blood work will dig deeper.
It’s so depressing because I can’t even get in to see a rheumatologist😢 I’m living with the symptoms and it affects the quality of my daily life. My NP ran ANA and one came back positive. They did another with a panel. She said you do not have an autoimmune disease. It’s so hard when living with symptoms that has changed the quality and be told you’re fine. Any recommendations? Could an internal medicine doctor help?
@@loungezingergood advice. I just had to do this with cardiologists even though I have a previously already diagnosed heart condition because specialists in my area are so booked for months.
I have been wondering same thing about just trying to find a general internal med dr to actually be my PCP because it takes so long to see a Rheum and other specialists. Was thinking maybe an internist would be more equipped to deal with my immediate complicated health issues than a family practice MD or NP.
I was a lab technician who worked in autoimmune and reading ANAs was one of my jobs. Interesting to learn how things have changed in the 10 years since I retired.
Welcome back to UA-cam, Dr. Ortiz! Your great information and videos were truly missed by our community. So happy to see you back!
I love your presentation! You give serious and helpful information but add a touch of humor and a refreshing amount of honesty! Appreciate you!
❤
I'm so thankful for this particular video and l was so stressed out with my ANA Centromere patters, and your video has calmed me.
I am hoping on Thursday when my doctor reads my test results that he will pay clear attention to these results and pay attention to how l have been feeling.
And most importantly that he will care.
Thank you so much for being available for us all with your informative videos.
It’s great to have you back doctor. I was just looking for you on the web last week and this first episode today has really made me feel great. You look good. I hope you are feeling well. Patricia.
This lady has a calming demeanor..
Love the depth of discussion ❤
Really appreciate this video. I have really bad anxiety and health anxiety. My doctor wouldn’t do anything and said it’s all my anxiety causing some of my symptoms. Which is mainly brain fog, feeling off in my head and some headaches. I did the function health labs and got a positive ANA with Dense Fine Speckled pattern and started freaking out immediately. But I really don’t have any symptoms except for about 2 weeks of brain fog recently and I had it in 2019/2020. So I’m trying to relax myself and your video really helped. Thank you!
I am so happy to see you on UA-cam again. It feel like I just went to visit my Rheumatologist which I wish it was you. I am Maria the one who did the painting for you. Hope to see you soon.
This is really helpful for reassuring me that I should've indeed been dissatisfied when my rheumatologist dismissed my ANA results in an instant just because I didn't remember having a malar rash.
So good to see u here again. These videos r really helpful
I have 2 types: Homogeneous Pattern 1:160 and Speckled Pattern 1:40; I have NO symptoms at all! Guess i should still have further tests even though they are fairly low?
Very helpful. I just got results back and this helped confirmed I have lupus. Next stop is endocrinology
Good luck to you on your journey, I hope you are clear but if not, are able to control it fully.
@@kristen34896 I’m sorry about the diagnosis but at least you now know what it is. I also have Hashimoto and was seen for that by an endocrinologist
My friend has ANA test positive but ANA profile is negative.
She is confused what is the next step?thanks
NUCLEOLAR that’s what my ANA IFA said….. and titer 1:1280 ….. I’m suspecting Sjogren’s (thanks UA-cam) but rheumatologist only to ask about Lupus/fibromyalgia symptoms…. I have freezing extremities including butt 😮in winter, and episodes of burning feet in summer, restless legs and arthritis pain in hands that comes and goes. Swollen neck glands and throat pain- the ENT says it’s just from vocal damage. dry mouth and a little dry eyes (could be meds though) if anyone reading this could comment if they have these issues that be great. I’m at anxiety/ research craze right now. Thanks Doctor- I just subscribed
Did you look into autoimmune atrophic gastritis?
@ no, I will look that up too. Thank you for commenting. I was prescribed Neurontin for my neuropathy symptoms (that come and go) but I’m worried about side effects…. and it might not even work on the hand pain .
My ANA comes out 1:1280 homogeneous pattern with a lot of symptoms. Further tests came back with elevated RF and Chromatin. I was diagnosed with Lupus. This was 6 years ago. Since then, I’ve developed a few other AI conditions that go hand in hand with Lupus, as well as Lupus complications. Good job in explaining ANA
Do we need to stop vitamin c supplements before ANA panel
Are you managing it ok? A prayer for you.
I am actually going through the long term disability process now
@@lavanyathammineni6200 I have no idea about vit C. I dont think it matters really. You either have these antibodies or don't. I don't believe they are affected by vit c
@@lavanyathammineni6200 and maybe some healthy ppl can have them too but at the smaller titer. I think the cut off is 1:360. If at or above, there is a good chance you have AI disease, of course if you are bothered by symptoms as well
Thank you so much for your information. Very helpful!!❤
My ANA was positive with 1:640 homogonous and 1:320 speckled pattern, but all of the specific antibody tests were negative. It’s so confusing and honestly there’s no good info on mixed pattern out there. My other blood work was fine except for low HDL, CL, and Creatinone. My symptoms are becoming more and more debilitating. I’m constantly getting periods of several days when I literally can’t get out of bed and my whole body hurts. Plus a bunch of other random symptoms… i’m currently waiting on a rheumatologist appt but i fear it’s gonna be a difficult path to a diagnosis
Thank you. This was very helpful. 🙏
Does it matter if you take the ANA test when you are in a flare up or not?
Great new video!
Been dealing with pain since 2011, diagnosed fibromyalgia immediately without ruling out other conditions. I have ANA 1:640 speckled pattern. HLA-B27 positive, slightly elevated aPTT- but still fibromyalgia 🤷🏻
That's the most sensible info I've seen will Ginger fix it
I wish you could have talked about mixed pattern. I had a test come back yesterday that showed this. Need more information.
In Feb. 2023, my stain was Nuclear Speckled. In June 2023, my stain was Nuclear Centromere. In Jan. 2024, it said Mitotic Intercellul Bridge. In Oct 2024, my stain is Nuclear Centromere again…HELP! I’m EVERYWHERE! I STILL don’t have a diagnosis but I feel HORRIBLE!😩
You rock!
Can you tell me anything about the Centriole Mitotic pattern? Thank you for posting♥️🤗
Hi, thanks for this video! Very helpful! What does the titre result mean, please?
What is recommended of someone who tested positive, nuclear, dense fine speckled (1:320), but doesn’t have any other symptoms worth mentioning? The test was done through function health testing and this result has caused quite a bit of concern.
I have an ANA of 1:320, high esr and crp. Multiple joints with pain and multiple other conditions. My first round of antibody test have come back neg. Should my rheumatologist continue with more lab tests? I've been suffering for over 5 years now.
My understanding is that 320 points to possible AI condition but it doesn’t have to mean that one is present. Your # is sort of a cut off point for suspicion. If you have other conditions, antibodies can be a little elevated but, most importantly, if you have joint pain with high ESR and CRP that should be treated. Hope you are getting some help already.
I do have joint pain and both my CRP and ESR are elevated but the doctors seem to blow me off so I have given up and will have to deal with it myself.
@@CallOnJesus sorry to hear. Hope you find some relief
Check into AVISE testing by Exagen. It is a highly sensitive test. If you call the company, they can tell you names of doctors in your area who are familiar with the testing and the results. You’ve been suffering for five years, so that should tell you something. You know your body.
@@Lifeisgood-t3d thank you so nuch!
Mine was positive and speckled, positive SSA but negative SSB, IM CONFUSED sjogrens was positive
any update ? ANA HEp-2 Positive IFA
Pattern. Centromere
Intensity. +++
End Point Titer 1:320
for Mom
My ana 1:320 to 1:640, speckled. Docs do near nothing aside from sed rate, crp n told them neg zero concern despite agony, being bedbound, super stiff, weak, exhaustion, zero life decades
You need a new rheumatologist.
I totally hear you and can relate xx
Most doctors are lazy grifters.
And lack the virtue needed to do the right thing.
My ana and speckled pattern 1:160 came back positive. Drs did a 12 panel ana and all the panels were low positive. But Drs said it's negative and I don't have lupus.. I have a lot of musculoskeletal issues and psoriasis. Extreme fatigue, hair loss, lack of sleep and lots of nerve pain, numbness, tingling, prickly feeling and burning but the Drs say still no lupus.. esr, ana, CK and components c3,c4 elevated.
@moniquemo2203 what ever became if this?
@@jaco0712 nothing. I see my rheumatologist again this month but I believe they are going to refer me to another Dr out of state.. I'm also dealing with cervical radiculopathy
@@jaco0712 nothing.. I'm still waiting to see rheumatologist out of town that my rheumatologist is referring me to. I was just diagnosed with radiculopathy and fibromyalgia...
@@jaco0712 just had a repeat of some test and my esr is 50 and crp is 1.31... also found out inhave a fibroid tumor that 10cm.. im getting tested for some stomach issues as well.. im 53 still not post menopausal.. haven't had a cycle since end of September 2023.
@@moniquemo2203 thank you! Husband has elevated Sedrate (99), crp, c3, 1:160 titer, speckled Ana and several other “off labs. We have an apt in 2 weeks to discuss with the doc. Should we be scared?
I have a positive ANA, dense fine speckled pattern and 180 titer. I was diagnosed with autoimmune hypothyroidism with multi nodules and enlarged thyroid. I feel like I have another auto immune disease because I have extreme fatigue, joint pain, facial rash and many more symptoms. My endocrinologist referred me to a rheumatologist and the rheumatologist said my chances of having another autoimmune disease were low. My dsdna and smith were negative. C3 was normal but c4 was elevated. I was feeling good at the time of those blood test. Had just finished taking amoxicillin for a UTI. Any thoughts or maybe a different rheumatologist. He seems very disinterested in everything. Thanks
Keep getting multiple opinions!
I have hypothyroidism with at least one nodule and have elevated ANA speckled pattern. Can't remember exact type pattern or level because I have not looked at results in a long time. I am very ill and have symptoms you listed with more. Endocrinologist I saw last gaslit me entirely even though I was referred by my PCP for the above symptoms and 40 yrs of hypothyroidism and now very low serum cortisol. My PCP is concerned about possible addisons disease so the Endo was supposed to help with this. Time to start over finding another endo after waited months to see him. At least my PCP who is an NP is being very helpful and is angred by the gaslighting I have received by a lot of drs. She is not afraid to confront this behavior by including my experiences in her chart notes. She is the first PCP I have had who actually does what she can to advocate for me despite only having a few minutes at an appt to address my MANY health conditions and very complicated history.
If a parent has SLE is it more common for you to get it? Is it linked?
Thanks
My Ana titer is 1:40 diffuse. What does this mean?
My ANA Pattern - N/A under Value. 😊
Question: are anti-centromere antibodies never/rarely found in SLE? Thirty years ago, I had that pattern (as well as ANA speckled/homogenous over the years.) Due to symptoms was diagnosed with ",an autoimmune disease that most closely resembles SLE, or Lupus for short. 😂" While I did check off the C R E & T of Crest, proceeding as though it was SLE worked and I finally went into a seemingly durable remission after a rough initial 8 years.
Now, there's a question of Sjogren's. **Sigh*"
Just always been curious.
Thanks for your informative videos.
I had a negative ANA but a positive dsdna with a high titer. I have a lot of symptoms that match lupus. Should I still see a rheumatologist?
I got ANA pattern golgi apparatus and no one seems to know what this means. I have so many symptoms.
Thanks got diagnosed with a titer and pattern
I’m Ana positive with cytoplasmic pattern and my doctors act confused. Why is it they don’t know it can be associated with Lupus, Hepatitis, dermatomyositis?? So frustrating. I already meet the Lupus point criteria. I have major weight loss, severe stomach pain, numbness, Raynauds, joint pain, muscle weakness photosensitive rashes, burning knuckle rash, dry mouth and eyes, blood vessel inflammation, blood in urine from my kidney bleeding and still no diagnosis! After 3 years that finally suspect Lupus but won’t say for sure. I just want to feel better! Any tips or advice from anyone is appreciated! The burning knuckle rash has me thinking more Dermatomyositis.
Ask them to give it a try and treat you as if you have Lupus, just to see if it works. For example, get on Plaquenile for a few months and see if it helps your symptoms. Don’t push for diagnosis but rather for treatment of your symptoms.
@@DJ-nk4dq thank you, I was wondering why they haven't tried that route yet but ironically was just diagnosed today via lymph node biopsy. Of course I didnt want any disease but I knew I was sick just a matter of what it was or what they could do to treat me and get my quality of life back.
@@DJ-nk4dq Lupus that is.
@@nopressurenodiamonds5566 A prayer and wish for the best for you on your journey.
My situation has been similar. Just confused drs and passing the buck one specialist to the other.
I’m so confused. I was diagnosed with Antiphospholipid Syndrome in 2000 after PEs , stillborn daughter at 36 weeks, migraine and TIA symptoms as well as other symptoms. After years of being followed at Cedar Sinai I was finally diagnosed with Lupus by a rheumatology attending dr in 2011. By that time I had already had PE x 5 , bunches of TIAs and numerous superficial clots. I moved in 2020 and the new rheumatologist doesn’t think I have Lupus. I have symptoms of Lupus as well. Thing is that he’s convinced I don’t because I have dense fine specked patten 1:320 and I think one was 1:6 something. Any suggestions would be greatly appreciated. As far as I know even Antiphospholipid Syndrome is an autoimmune disease so how can I not have an autoimmune disease?
I can totally relate I’ve had a few ANA results back positive 1:320 homogenous pattern. My Rheumatologist doesn’t think I have lupus because I don’t present all the “classical” symptoms of lupus. It’s frustrating because I have a lot going on and with no specific answer.
My mother was diagnosed with Lupus back in the early 1980's. She was put on medication for it, but later was told it was a misdiagnosis, that she did not have it but actually some rare form of Cirosis of the liver. Seems its one they still have a hard time diagnosing.
@@ericapoeHave you been checked for Lyme's disease?
@@bridgetocross not that I know of
@@ericapoe Lupus and other auto immune disease symptoms are so similar to Lyme's. You must be properly tested and doctors are not willing to dig deeper. A pill fixes all 😉
I just had testing done after 3 weeks of pain in my fingers and wrists that changed location daily, came on out of nowhere, finally went to dr tuesday and today pain is gone. Ana was positive and i was hopeful i just had an infection causing that. But now came back with 1:320 and a speckled pattern and im so worried about lupus. Idk what the chances are i dont actually have an autoimmune disorder with these findings though 😪 got a referral today to rheum
my ANA just came back as
Homogeneous 1:320
Speckled 1:640
Centromere 1:640
... All of them are high :/
Is the IFA standard for the anti-ds dna? Thank you.
I have a positive ANA titer 1:160 nuclear homogeneous pattern my dr diagnosed me with seronegative rheumatoid arthritis. In your opinion Dr. Ortiz would you start a patient with hydroxychloroquine at this point or wait till the patient test positive for another autoimmune disorder?
It’s so depressing because I can’t even get in to see a rheumatologist😢 I’m living with the symptoms and it affects the quality of my daily life. My NP ran ANA and one came back positive. They did another with a panel. She said you do not have an autoimmune disease. It’s so hard when living with symptoms that has changed the quality and be told you’re fine. Any recommendations? Could an internal medicine doctor help?
Have you been able to find one? I called every one that takes my insurance until I found a quick appointment.
Hi, you didn't cover nucleolar with few dots
What does a Mitotic, Intercellular Bridge pattern mean with a ANA Titer 1:80?
Is a positive ANA A way of testing for Celiac Disease?
I have had 2 ANA tests, 6 months apart. Both tests were speckled, 1:640. I feel fatigued all the time, and other symptoms. I just want answers and a diagnosis at this point.
Have you tried Tylenol and losing weight ?
Patients go to doctors for relief from their symptoms
Hi sorry to hear this...i had the same thing over 15years ago...the rheumatologist said we will just have to wait...i said wait for what? He said for your symptoms to get worse...i was so annoyed...i have scleroderma
@@shahriarchowdhury1263 shame on you
@@shahriarchowdhury1263lol
Mine was Nucleolar 1:1280
I didn’t hear her list this one. Anyone have ideas?
That's what mine was too. I'm waiting to hear back from my doctor what this means. On the portal it says something about Sjogrens syndrome and systemic sclerosis/polymyositis. Have you heard anymore?
At this point I am being treated for Limited Cutaneous Scleroderma. Systemic sclerosis but a limited form of it. After further testing they found anti- centromere antibodies. Hopefully you find some answers
I am suffering with sjogrens for 5 years now and because my test was negative, NO ONE will help me. Dry throat is so bad, my thyroid is obviously messed up now.
Can you please possibly help me understand my results. I am currently diagnosed with Ehlers danlos syndrome, POTS, SLE, then IC. My ANA pattern is always speckled however, I am always also positive for centromere antibodies. My rheumatologist is confused because my ANA pattern is not centromere. She has redone blood tests for this three times and it's always positive. She's doing one more test in April to check for the centromere antibodies again. Any thoughts on what could be going on? I questioned her about if my Speckled ANA pattern could change into the Centromere pattern in which she said no. I also remember an older video in which you said blood work can show signs of things to come up later in life, so I'm concerned about the Centromere antibodies that have been consistently showing up. I'm not sure if I need to go to another rheumatologist for a second opinion. Any advice would be so incredibly helpful thank you.
How do we get this test????
normal blood test and go to a doctor first so they can see if you rlly need it and then they can give the recommendations
Mine was 1160 and 1320
Im having alot of weird symptoms
I'm negative on everything except antihistone any words or wisdom on drug induced lupus? Thxss
How is your health now? Was it cure? Your health is better now?
mine are always speckled
I was referred to a Rheumatologist for a positive ANA ration1:80 speckled cytoplasmic musculoskeletal type and she blew it off with no further testing saying i did not have Lupus. Total waste of my day and money. The medical profession has gone straight to H*ll.
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I am suffering from ankylosing spondylitis. I m 40 yr old. My penis is hanging down and is becoming very loose and soft. Is this happening because of my illness??
The two are not connected.
Dude, ask you doctor to refer you to Urology. Drop penis
My pattern was nucleolar, you didn't mention that one.
Mine was too
Same :/
I believe that’s homegeneous
Are You Looking For Video Editor And Thumbnail Designer?
You said the way the do the test can influence a result…what does that mean?
What if you get a positive ANA and high anti-dsdna?
M
Hi I had a positive Ana
My Teter was 1:320
Pattern nuclear dense fine speckled
I read that a nuclear dense fine speckled means I don’t really of autoimmune?
I had a positive ana now 2 years later I have pulmonary fibrosis and RA. When I was in my 20's diagnosed with Addison's disease.
I got the same test result , how are you now
@@lavanyathammineni6200 hi I have the same symptoms I have been having. I recently saw a rheumatologist and I am scheduled for blood work next week to test specific antibodies. When I saw the doctor he wasn’t too concerned image anything but blood work will dig deeper.
@daviddelguercio8458 any updates? What are your #’s?
@@lavanyathammineni6200same here? What doctors said? Are you ok now??
It’s so depressing because I can’t even get in to see a rheumatologist😢 I’m living with the symptoms and it affects the quality of my daily life. My NP ran ANA and one came back positive. They did another with a panel. She said you do not have an autoimmune disease. It’s so hard when living with symptoms that has changed the quality and be told you’re fine. Any recommendations? Could an internal medicine doctor help?
Call every one in your area that takes your insurance and dont be afraid to set like 5 appointments for multiple opinions. Thats what I just did.
@@loungezingergood advice. I just had to do this with cardiologists even though I have a previously already diagnosed heart condition because specialists in my area are so booked for months.
I have been wondering same thing about just trying to find a general internal med dr to actually be my PCP because it takes so long to see a Rheum and other specialists. Was thinking maybe an internist would be more equipped to deal with my immediate complicated health issues than a family practice MD or NP.