Howdy from Incline Village Nevada. As the first patient=prototype selected by Drs Cheney and Peterson to represent "a new syndrome" I can explain the creation of CFS from a survivors point of view. The CDC did not allow us to give input on the name. They had a need to trivialize the Lake Tahoe outbreak as the scare was destroying the ski tourism economy. When Gidget Faubion of the Portland Oregon National EBV Association learned that the CDC intended to rename EBV syndrome as CFS, she and cancer specialist Seymour Grufferman tried putting the "ID" Immune Dysfunction in the name to prevent the CDC from going ahead with a name no one would take seriously. The immune dysfunction was validated by the CDC in the Tahoe outbreak so it was an actual reason for convening the Holmes committee and creating a new syndrome. The CDC rushed to do this before that evidence passed peer review to make it appear the CFS syndrome was devoid of any actual reasons for being created, aside from fatigue. This "error" was never corrected. The foundational evidence was never put back into the syndrome.
Howdy from Incline Village Nevada.
As the first patient=prototype selected by Drs Cheney and Peterson to represent "a new syndrome" I can explain the creation of CFS from a survivors point of view.
The CDC did not allow us to give input on the name. They had a need to trivialize the Lake Tahoe outbreak as the scare was destroying the ski tourism economy.
When Gidget Faubion of the Portland Oregon National EBV Association learned that the CDC intended to rename EBV syndrome as CFS, she and cancer specialist Seymour Grufferman tried putting the "ID" Immune Dysfunction in the name to prevent the CDC from going ahead with a name no one would take seriously.
The immune dysfunction was validated by the CDC in the Tahoe outbreak so it was an actual reason for convening the Holmes committee and creating a new syndrome.
The CDC rushed to do this before that evidence passed peer review to make it appear the CFS syndrome was devoid of any actual reasons for being created, aside from fatigue.
This "error" was never corrected. The foundational evidence was never put back into the syndrome.