Відео

Howdy from Incline Village Nevada. As the first patient=prototype selected by Drs Cheney and Peterson to represent "a new syndrome" I can explain the creation of CFS from a survivors point of view. The CDC did not allow us to give input on the name. They had a need to trivialize the Lake Tahoe outbreak as the scare was destroying the ski tourism economy. When Gidget Faubion of the Portland Oregon National EBV Association learned that the CDC intended to rename EBV syndrome as CFS, she and cancer specialist Seymour Grufferman tried putting the "ID" Immune Dysfunction in the name to prevent the CDC from going ahead with a name no one would take seriously. The immune dysfunction was validated by the CDC in the Tahoe outbreak so it was an actual reason for convening the Holmes committee and creating a new syndrome. The CDC rushed to do this before that evidence passed peer review to make it appear the CFS syndrome was devoid of any actual reasons for being created, aside from fatigue. This "error" was never corrected. The foundational evidence was never put back into the syndrome.

Depressing.

We need a cure or true treatment. Please

Acupressure doing good things, lots of my longcovid patiënts (and I with them) feel strongly the starting point of the kidney meridian next to the little toe. Blood stasis, yes, see it a lot, can be resolved. Further lots of syndromes together, individual diversity. Thank you for this video. Gives affirmation.

Lynch Pines

Fahey Islands

If overworked from a job and responsibilities along with overeating unhealthy food. Not getting enough sleep. Staying stressed. You are in unhealthy condition even if you don't notice symptoms. Once something overwhelming happens, the sick body can't handle it.

Thank you so so so much, Dr.Anthony made me understand better my health problems and also how to explain it to others who does not understand, and the information he presents it with a perfect bullet points , that is clearly explained without any unessacery info here and there. Thank you thank you

South Carolina- severe ME/cfs

Excellent, A+

Generational trauma certainly is a significantly contributing factor. 😢

I BELIEVE THIS IS A DYSFUNCTION OF THE HPA AXIS, NOT INFECTIOUS, AND DEFINITELY NOT "DEPRESSION." IT IS SIMPLE. A "SUBCLINICAL" DYSFUNCTION. THE "CURE" IS SIMPLE. SCIENTIFIC LAZINESS AND NEGLIGENCE

I want to know where the cure is. There are so many chronic illnesses out there that have medications of some kind that’ll help an individual at least feel human again. We suffer from a horrible debilitating illnesses and absolutely no one has jumped on the ball and given us anything that’ll help us. If you don’t have it you wouldn’t understand. I want a life again, but it’s absolutely impossible for me to hardly do anything. If you have the money and are willing to travel to see one of the very few specialist on the illness, the waitlist is a mile long. This is a major illness, it’s not something that doctors should roll their eyes about and not believe that it actually exists, because plenty of doctors still do that. I wasn’t a depressed person before I got CFS, I did with my children, I worked, I had a pretty decent life. Doctors should have enough care about the human beings they treat enough to know we need something to help us. I’m sick and tired of being sick and tired. It is depressing when you see everyone around you being able to go and do all of these things while you know that a simple shopping trip could leave you absolutely exhausted for days. I’m lucky enough to have people that can do things for me, but my mother shouldn’t have to take care of her 40 year old daughter, it’s the time in her life in which I should be taking care of her. I’ve already known 2 people who have unalived themselves because of this illness, but I’m sure there are hundreds if not thousands of individuals worldwide that have done the same. All of these years and the only thing a doctor can do is put a band aid on some of your symptoms. There should be something out there by now that would help us. No complete cure is one thing, but we’ve gotten nothing!

Is this all in research now?

I have had great success with acupuncture with electrical impulses running through the needles

I have been looking and searching libraries years ago trying to find out through all kinds of medical books, internet information etc l have been in pain in my body since a child, my mother was Dutch my father met her while stationed in Germany during WW11 , l would always complain to my mother about the pain in my legs , l would describe it as “ having a screen door in my legs which l know now that it must have been numbness and pain ! she would say’ awe honey that’s just growing pains, during my child my dad’s saved enough money up so my mom plus the rest of us could go to Amsterdam for my mother had not seen her family in 12 years we landed up staying for 2 years, for my parents were thinking of moving there,my brothers and l attended school, which there school system would give health exams every 6 months, during my health examination a young female doctor wanted me to walk from one end of the room to another and noticed that l had a mild case of Scoliosis, l had what the Dutch called a Gibs bed made to lay in every night to straighten my spine , but l neglected to do this for it was very uncomfortable, as much as my mother would have liked me to do that , she would wake me at night and say “ you need to use this darling but l was stupid and didn’t listen of course l developed spurs also looking back l recalled a lot more symptoms, like popping my hip out of joint always twisting my ankles while skating, just a lot of things going on my husband told me Honey you seemed to be doubled jointed , putting my thumb to my forearm , l remember getting sick at school from drinking a pint size cartoon of milk , having car sickness and getting sick on the boat coming back to America l was terrible sick had to stay outside so the fresh air could blow in my face while my daddy would bring me 7 up to try and ease my nausea, l had 4 brothers none of them got sick only me , l had problems with my pregnancies, tonsils, voice hearing everything think you could name l had , l also had Rheumatic fever as a child , l became allergic to Pennicillan because of streptococcus infection always sick , l learned from all my doing research all my life l finally run across the autonomic system, ehlers Danlos syndrome autoimmune diseases, my father passing away at 47 years old my mother telling me little bits and pieces of his life’s journey and us kids witnessing his sickness and death how the medical system couldn’t find anything wrong in the beginning and how eventually he was in so much pain doctors told my mom he had so many things going on they had to do an autopsy to find his final diagnosis and cause of death “ A stroke he had a enlarged heart a tumor, some other things l don’t remember but l guarantee you he had vascular Eds I am all most one hundred 💯 percent sure , l am in so much pain in my hands right now as much as l would like to share a little more of my journey of being treated like dirt by a primary care physician and others through the years, he seems to believe that your body ‘ he knows more then you and your just an old lady that is seeking drugs , attention or something else l can’t for the life of me figure that mean doc out , l am too sick to go through much more of him or anyone else like him , nobody seems to care thank you for listening to me and please reply and let me know what steps to take and how to get some help “ God is allowing me to me here on this earth for a reason l hope with my information someone else can be understood and treated better than me 🙏🇺🇸🙏❤️🙏🥰💕🤔

26:55 this is very interesting to learn that the scan is important to receive when flared up. It’s empowering to know these protocols and why testing results could vary.

Medical help for ME/CFS - Dr. Svetlana Blitshteyn (Buffalo, York, Dysautonomia Clinic online) and Bateman-Horne Center (Utah). Not a cure, but several steps can help.

How exactly is ME/CFS Diagnosed???

If we have an ME/CFS and FM association in America why are so many physicians ignorant about it. Why isn’t this in mandated CE credits?

Why dose of Pyridosigmine differs. In the table it says 234mg but in comments it says 60mg.

MOLD EXPOSURE. For me, that was the issue. Took MANY years to confirm this. Best to all of you!

Thinking and praying for us all. And our families.

Imposible

This was very informative. Thank you.

was told Intravenous IV-IG can reduce Small Fiber Neuropathy via regular Intravenous administration. Recently I was introduced to a oral capsules by METACURE. The Revive Alpha Lipoic Complex with Curcumin is much faster than Intravenous IV-IG and ALA. The SEVERE NERVE PAIN, TINGLING AND BURNING are reduced about 90% to 100% in one to two weeks. The NUMBNESS is slowly going down though takes much longer.

Loved his emphasis on REMOVING the source of mold. All the sprays, bleach, candles, Himalayan salt lights, etc. in the world will not solve the problem. Wash. Scrub. Wipe. Cut out if necessary. Thanks for providing this content. I wish I had seen something like this 5 years ago.

Thanks for this ! I’d like more mold related content especially healing from toxic exposure on a budget and the connection between mold and ME/CFS

22:13 I will say that while I agree with most of the presenter's advice, I would recommend the anti-mold fogging system from EC3, who make a range of anti-mold botanical products. It works well as a generalized anti-spore volumetric fill, which is useful once you have removed the exposure source.

very edifying - thank you!

❤

If these abnormalities show up in scans why isn’t that used to diagnose the disease?

Thanks

Dr. Felsenstein is an amazing doctor. I feel extremely grateful to finally have a Dr working with me rather than what often felt like against me. After 20 yrs of living with a complicated illness like ME/CFS, I finally feel heard, as well as taking care of. Dr.Felsenstein is compassionate & supportive. I love how we work "together" to improve my symptoms. I fought this illness alone for so many years. It is so nice to finally have a Dr who is on my team. We ( the ME/CFS community) need more Dr's like her, Please train some.

Thank you for your message and all you do! 🇦🇺

I SO agree with what you are saying. Some psych issues aren't due to emotions, but to biology/ physiology. (Sorry, not well versed in science!) I had a massive head injury due to car accident. Head repeatedly slammed against steering wheel, bending wheel and breaking bones from eyebrow to jawbone. 3 months post accident, in a blink, world changed. Short term memory, sudden sporadic bouts of crying/deep depression with no reason, OCD like behavior, etc. Psychiatrist put me on STRONG anti-psychotic drugs, which kept me numb, and deemed me mentally ill. Didn't matter that Pre accident, I held retail management position, graduated a year early from high school, had a very high IQ, had friends, did things, took care of self. After two weeks on the drugs, I found myself reaching for them long before scheduled time of dosage. I immediately threw them out and never returned for treatment. Why don't these Phd's look at body before diagnosing mind?

To all those who suffer from ME/CFS. Don't take any more covid shots if you took any to start with!

I have given myelgiya! I suffer chronic fatigue extremely pain in the body! Nd more! Any remedy!? Thank you!

Thank you for your wisdom and your advice ☺️. You are such a great example to all of us who have MECFS. You keep persevering despite how you might feel. May God continue to bless you and your family 💐☺️🙏🕊️. With love, Miss Monique ❤️

My me/cfs started with Lyme 4 years ago. Tests say lyme is gone but fatigue etc are there

I am a mother of a severely ill daughter with ME/CFS. We live in a small country in Europe. Our experiences are the same as those of people all around the world. She's been ill for 14 and severe for 7 years. Our visits to doctors were very traumatic and damaging to us both. I've developed anxiety disorder. We are abandoned from our family and friends. People like Ed Yong have tremendous positive impact on our lives. We admire and respect him deeply.

Jeez too many ads. Lost interest.

Wow. He really makes me feel optimistic about the future. He gives no hope in all his observations of this illness

When is Ampligen going to be approved in United States. Many people including myself are suffering from chronic fatigue syndrome and feel like nothing is being done for us. We feel ignored

So glad for all the symptoms being understood now, drs used to be dismissive when mentioning these symptoms , I'm also intolerant to lithium batteries and masts, people think you are nuts if I say I can't use lithium batteries!!!!

Yes because of nathsayers, many people will not admit they have CFS, eg, i tell people i have long covid, CFS IS A bad title for the illness too

In uk- nhs, in 10 min appt. Can only discuss one symptom, my varied symptoms spanned 7 yrs, nobody connecting dots till finally covid and flu put me from mild to severe

I feel better now🙂 Thanks for the uplifting words!… Stay strong 💪🏼 ❤

Applying for disability was the most humiliating experience of my life. They pretty much accuse you of being a liar.

That city librarian was an angel here walking around.