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Life After the Fontan
Приєднався 26 жов 2020
Welcome to my channel! My name is Marissa, I'm 24, and I was born with 6 complex congenital heart defects (CHD). Congenital Heart Defects are the most common birth defect, impacting 1 in 100 births. A CHD can be described as a structural anomaly which occurs while a baby is developing in the uterus. Most CHDs require surgery, lifelong care, long-term medications, and more. I'm so excited to bring my passionate advocacy for Congenital Heart Defects to this new platform! Please remember to like, subscribe, and tune in if you want to learn more about living with CHD.
Check out this website to learn more about Congenital Heart Defects; achaheart.org
Check out this website to learn more about Congenital Heart Defects; achaheart.org
ALIVECOR KARDIA MOBILE 6L EKG
Welcome back to my channel!
Have you ever considered purchasing an at home EKG device? Do you have a history of troubling heart palpitations for which you're searching for answers?
Check out my newest video where I review the Alivecor Kardia Mobile 6L personal EKG device, the only FDA approved device for at home EKGs!
In this video, I will explain how to use the device, show an example of what it looks like when recording an EKG, share my pros and cons, and whether or not I would purchase this again!
As always, check out achaheart.org for more information on Congenital Heart Defects!
Created by InShot
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Have you ever considered purchasing an at home EKG device? Do you have a history of troubling heart palpitations for which you're searching for answers?
Check out my newest video where I review the Alivecor Kardia Mobile 6L personal EKG device, the only FDA approved device for at home EKGs!
In this video, I will explain how to use the device, show an example of what it looks like when recording an EKG, share my pros and cons, and whether or not I would purchase this again!
As always, check out achaheart.org for more information on Congenital Heart Defects!
Created by InShot
inshot.cc/share/youtube.html
Переглядів: 37 230
Відео
RELATIONSHIPS & CHD- Part 2
Переглядів 9413 роки тому
Welcome back to my channel with a 2 part series, "Relationships & CHD"!!! This is the 2nd video in our series! Be sure to check out part 1 before watching part 2! In this video, Ben will be asking me questions about what it is like being the CHD’er in our relationship! I will offer personal stories, tips and suggestions for others in CHD, and will even share a cute video towards the end! As alw...
RELATIONSHIPS & CHD- Part 1
Переглядів 1,2 тис.3 роки тому
Welcome back to my channel with a 2 part series, "Relationships & CHD"!!! In this video, I will be asking Ben questions about what it is like to be in a relationship with a "CHDer", submitted by my viewers! Interested to learn when and how he first learned about my CHD? Unsure how to best support your significant other with CHD and looking for advice? Wondering what dating will be like for your...
MY IMPLANTABLE LOOP RECORDER
Переглядів 68 тис.3 роки тому
Have you ever heard of an Implantable Loop Recorder? Are you interested in learning more about what this is, why it's used, and how to use it? Tune into my latest video to hear the answers to all of these questions AND more! After facing many technical difficulties, this new video is finally up for my videos! Feel free to share with anyone that would benefit from learning about Implantable Loop...
EXERCISE STRESS TEST
Переглядів 6 тис.3 роки тому
Ever wondered what an Exercise Stress Test looks like? Want to know what they mean to me? Check out my newest video- Exercise Stress Test! Watch as I bring my viewers with me to my most recent Exercise Stress Test, something I’ve been doing yearly since I was 11 (2007). Please remember to subscribe to my channel and share this video with others!Check out all of my social medias! Facebook: Life ...
20 MYTHS & FACTS OF CHD
Переглядів 1,9 тис.3 роки тому
HAPPY HEART WEEK!To celebrate heart week, I decided to record this video discusses 20 myths and facts pertaining to Congenital Heart Defects. Do you know how many heart defects exist? Is there a cure to CHD? What are the warning signs? Check out this video to learn the answers to these questions and more! I encourage you to educate at least one person on the most common birth defect before hear...
MY JOURNEY TO BECOMING A NURSE
Переглядів 1,2 тис.3 роки тому
Happy (late) New Year! I took a few weeks off to celebrate the holidays, but I'm back with one of my favorite videos yet!! I'm often asked about how my CHD impacts my nursing career... have you ever wondered the same? Are you a CHDer looking to become a nurse? Does you child with a CHD want to become a nurse? Check out my video to hear my answers to come of the most common questions I am asked....
MY HEART
Переглядів 1,7 тис.4 роки тому
The long awaited video has arrived… My Heart! My defects, my surgeries, fetal circulation, and then complications I face as a Fontan. I was born with 6 Complex Congenital Heart Defects- Pulmonary Atresia, Ventricular Septal Defect, Congenitally Corrected Transposition of the Great Arteries, Ventricular Inversion, Bilateral Superior Vena Cavas, and Dextrocardia.. want to understand what those ar...
MY CARDIAC CATH
Переглядів 12 тис.4 роки тому
Welcome to my channel! In this video, I talk my viewers through my experience with my third CARDIAC CATHETERIZATION! I share what led to this procedure, what happened on the day of cath, my recovery process, and the unfortunate complication I am being treated for! Want to learn more about living with a Single Ventricle Congenital Heart Defect/ FONTAN- tune in to hear more! Check out my previous...
GOODBYE GALL BLADDER
Переглядів 33 тис.4 роки тому
Welcome to my channel! In this video, I talk my viewers through my experience with my Gall Bladder surgery! I share what led to this surgery, what happened on the day of surgery, and my recovery process! Want to learn more about living with a Single Ventricle Congenital Heart Defect/ FONTAN- tune in to hear more! Check out my previously uploaded videos where I discuss MY STORY of living with CH...
WEARING A HOLTER MONITOR
Переглядів 94 тис.4 роки тому
Welcome to my channel! In this video, I talk my viewers through how to place a HOLTER MONITOR (MCOT). I share my opinions on this monitor, as well as a few general tips and tricks for wearing a holter monitor. Don't know what a HOLTER MONITOR is? You're in the right place- check my video to find out! Want to learn more about living with a Single Ventricle Congenital Heart Defect/ FONTAN- tune i...
MY STORY (part 2)
Переглядів 8044 роки тому
Thank you for checking out my video, “My Story: Part 2”. If you haven’t watched Part 1 yet, please check it our on my channel! Remember to like this video, subscribe to my channel, and turn on notifications so you can be one of the first to see my new videos! Videos too look out for!: -My Heart -My Journey to Become a Nurse -Wearing a Holter Monitor -Goodbye Gallbladder -Cardiac Cath -And more!...
MY STORY (part 1)
Переглядів 1,2 тис.4 роки тому
Thank you for checking out my video, “My Story: Part 1”. Remember to like this video, subscribe to my channel, and turn on notifications so you can be one of the first to see my new videos! Are you interested in learning more about what it’s like to live with a Single Ventricle heart defect? Stay tuned for the release of “My Story: Part 2”. Videos too look out for!: -My Heart -My Journey to Bec...
WELCOME TO MY CHANNEL
Переглядів 1,1 тис.4 роки тому
Thanks for checking out my first video! Remember to subscribe to my page and turn notifications ON in order to hear when my next video is posted. Inside secret- video #2 is already in the works!!! Check out achaheart.org to learn more about Congenital Heart Defects, the number 1 birth defect! Copyright info; Music: Someday Musician: Alexander Delarge Site: icons8.com/music/
Kardiamobile 6L does not detect heart attack or previous heart attack.
I noticed this video is from three ago and then nothing posted afterwards. Does anyone know why? I hope she's still doing well 🙏
Well done you explained it great ,I've had one fitted over a week ago ,was a little bit difficult for me cause I have breast implants from cancer ,so did take longer to find a position suitable, it's hard to work out if I'm having flutters they come and go so quickly, do the hospital let you know if they can tell from the monitor...
God bless!
I am scheduled to have a Right and Left Heart Catheterization this week. Thank you for the informative video.
You explained it well in January of 2025 I will be getting one implanted to check my heart rhythm due to signs of a stroke I had in March
I woke up this morning. Seems like my heart is beating. Good to go. Just saved &99.00
What is Wi-Fi for ? Why is a cell phone needed ? Those were not explained.
Excellent explanation.
Your explanation was so helpful to me as I just got my loop recorder inserted on October 29/24 & your explanation was very helpful. I have CHD & DiGeorge syndrome & now life with AFIB. I’m almost 50 & I am very grateful for this video of yours. So thank you so very much ❤.
Gonzalez Matthew Thompson Ronald Anderson Richard
Kuvalis Dam
I am having surgery first time gallbladder surgery October 11 2024
@@MichelleYvetteSalazar after surgery plz share your experience
I hope you’re doing well! We would love to hear more from you. 😊
I am having one put in tomorrow
Me too 😅
Although this is not convenient, the alternative is to call 911 or go to an ER, which takes a very long time. 😅
How do i meet a girl like you
I'm here for one reason. To alert people how difficult it is to replace the battery on the 6L. It requires a screwdriver that nobody has. My little set of drivers doesn't have anything small enough. And an eyeglass repair kit doesn't have it either. It requires a P 00 drive. I had to order a set from the Big A. When it arrives, I'll update this comment after I've replaced the battery. But c'mon Alivecor. Do better. Ok, I got the battery and the screwdriver. I have to be fair, replacing the battery was straightforward. Not difficult at all. The most difficult thing was getting the fresh battery out of its packaging. But for the unit, the old battery popped out, new battery slipped in and the back and screws aligned easily. I should be good for maybe 2 years.
King Parks
My daughter is 15 years old, 11 years post-Fontan and was recently diagnosed with Heart Failure. I have looked for videos of people with Fontans for quite awhile. I’m so happy to have found you! We just started a channel to share her story as well, hoping to bring hope to others.
My daughter just got scheduled for this procedure. Thank you for the info.!
How come no more videos
Thank you for a very informative and reassuring video, im having one fitted a fortnight from now 16th September 2024, I've been terrified but you have put me at more ease than I had before viewing your presentation, again thank you ever so much, love from David, the cowardly lion. ♥️♥️
Thank you for sharing your experience with the Cardi Cath. I am 57 years old and in excellent physical condition, however, after a long time of high cholesterol (LDL0 I had a CT with contrast of my heart. What prompted this was my calcium score doubled in 5 years from 92 to 190. After the CT, they found that my coronary arteries are 80% blocked. I have a stress test next week with echocardiogram and we will see if a cardi cath is in my future. (My GP says yes) I am less afraid, but still scared after watching your video. We will see how this proceeds. My cardiologist also said to me that I need to address my gall bladder. I have a 2cm gall stone that has been there for years. I have never had any issues with it, but it showed itself in previous MRI's for other parts of my body. The cardiologist says that if I leave it I could develop cancer. WHAT?? I really don't want to remove my gall bladder, but would be curious of your experience with this surgery and post op changes. I only bring this up because you have had this surgery. Thank you again for sharing your experience and I wish the best with hopes of you getting the answers you need.
I am scheduled to have my gall bladder removed on October 8, 2024. Mine, too, is at 4% according to the HIDA scan. A bit scared of surgery, but know it has to be done. Praying everything goes well.
Mine is Oct 15. I have an attack twice a year and it's like knocking on deaths door.
How is your surgery go
@@syedadilsyed3570 surgery went well ❤️🩹 third day beginning and able to almost be back to normal. I still have to take it easy and sore. In one week I should be good and after two I should be nearly healed. Thanks.
@@tresjolieme81 I'll be praying for you that all goes well. I was anxious but it went smoothly. You'll be fine. Godspeed.
@@bryankreinhart plz pray for me
You’re a sweetheart! Thank you!
Are you single?
Is there any pain after the procedure
Thank you -and I hope you all of the best on your health journey!
Thank you for sharing , im so scared to have this done in two weeks time this has helped a little im just terrified x
Awesome job! I am getting a monitor next week and your video really helped me have some idea what to expect.
Marissa, you are my hero!🎉
Girl, you did a great job explaining what this device is all about. They need to hire you to be their human example 😂. Great job!! I'm going to have one next month. You made this look easy. Thank you so much for sharing your experience.❤❤❤
I'm about to have one implanted. I've seen a couple procedure videos. From them and that detail you went into it seems like a very simple process. I very much know what you mean by cutting down on ER visits. I think also to a large degree it can also help with reducing anxiety which as we all know can make things worse. Thank you again for making this video and prayers tp you and your family!
Prayers. 🙏 I get my implant the end of October.
Can you describe what each lead does? Like is lead to for p waves, location of electrical paths etc etc. I just want to know which is for p waves personally. But thx for the video
How long did you have to wait to be able to drive again after your loop recorder insertion? I am having this done soon and want to know what to expect in that regard.
I was jazz cuz finally they could see the various antics my heart does, inc. Pheochromacytome, but as soon as you mentioned needing internet, I was sunk. Being on SSI, I can't afford it. I have no neighbors (my closest friend died last March) & I only get to town once a week.😢 But Thanks anyway for the brief moment of hope.
It’s horrible kept waking me up screaming at me 🤪
Very informative, thank you
I have the loop recorder implanted 4days ago. Please, does anyone know if the base is supposed dark or light up when plugged in. That’s continuously lite up
Why he didn’t try other dose or other medication before the implant
Thank you sharing
Heart failure patient here. My cardiologist recommended one of these to more accurately assess my bradycardia when it gets bad. Hoping to capture episodes of bigemini and PACs to share with my cardiologist.
Do you know Jesus is a messenger of God
Thank you ❤
The main problem we have is trying to change the battery. We have followed the UA-cam instructions and can’t get the cover with two little prongs to snap down over the battery. Afraid it will break, so hubby is not using it right now. Can you help?
You did an AMAZING 🤩 Job explaining everything about the device!!!! I am 56 with 2 sons that are young men around your age and they were worried. I sent them this video and they were SO relieved. For that, thank you! You should be proud of yourself and as a parent, I know your parents are proud of you! Good luck in your journey!!!
For those, like me, who ITCH LIKE MAD because of these or Myzio, tips and tricks I've learned: the area should be clean, but skip the abrasion. It falls off anyway. Skip alcohol if you have very sensitive skin. Just slap it on. Then tape is down with athletic tape on both wings. It works to hold it on much better and you don't have the itching! Extra step that I tried, but don't know if it actually helped: spraying the area with flonase and drying it first. The athletic tape works better in exercise, if you're just way sweatier than others, and showers. Also, the HCOT advantages over MyZio is that MyZoi doesn't give you the placement guide or replacement strips. Also, her complaints about the Bluetooth connection was the same for me.
Thank you for the great explanation of your experience with your ilr. ❤
I just learned yesterday my doctor recommended one. The abalition didn't take with needing to use propathol. I'm 73 and your video really helped me. One question: Does it affect what type of tops you can wear? Great presentation as I am on both sides of the microphone. Reach out & let's talk. Coach