Life After the Fontan
Life After the Fontan
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ALIVECOR KARDIA MOBILE 6L EKG
Welcome back to my channel!
Have you ever considered purchasing an at home EKG device? Do you have a history of troubling heart palpitations for which you're searching for answers?
Check out my newest video where I review the Alivecor Kardia Mobile 6L personal EKG device, the only FDA approved device for at home EKGs!
In this video, I will explain how to use the device, show an example of what it looks like when recording an EKG, share my pros and cons, and whether or not I would purchase this again!
As always, check out achaheart.org for more information on Congenital Heart Defects!
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Переглядів: 33 212

Відео

RELATIONSHIPS & CHD- Part 2
Переглядів 8922 роки тому
Welcome back to my channel with a 2 part series, "Relationships & CHD"!!! This is the 2nd video in our series! Be sure to check out part 1 before watching part 2! In this video, Ben will be asking me questions about what it is like being the CHD’er in our relationship! I will offer personal stories, tips and suggestions for others in CHD, and will even share a cute video towards the end! As alw...
RELATIONSHIPS & CHD- Part 1
Переглядів 1,2 тис.3 роки тому
Welcome back to my channel with a 2 part series, "Relationships & CHD"!!! In this video, I will be asking Ben questions about what it is like to be in a relationship with a "CHDer", submitted by my viewers! Interested to learn when and how he first learned about my CHD? Unsure how to best support your significant other with CHD and looking for advice? Wondering what dating will be like for your...
MY IMPLANTABLE LOOP RECORDER
Переглядів 62 тис.3 роки тому
Have you ever heard of an Implantable Loop Recorder? Are you interested in learning more about what this is, why it's used, and how to use it? Tune into my latest video to hear the answers to all of these questions AND more! After facing many technical difficulties, this new video is finally up for my videos! Feel free to share with anyone that would benefit from learning about Implantable Loop...
EXERCISE STRESS TEST
Переглядів 6 тис.3 роки тому
Ever wondered what an Exercise Stress Test looks like? Want to know what they mean to me? Check out my newest video- Exercise Stress Test! Watch as I bring my viewers with me to my most recent Exercise Stress Test, something I’ve been doing yearly since I was 11 (2007). Please remember to subscribe to my channel and share this video with others!Check out all of my social medias! Facebook: Life ...
20 MYTHS & FACTS OF CHD
Переглядів 1,8 тис.3 роки тому
HAPPY HEART WEEK!To celebrate heart week, I decided to record this video discusses 20 myths and facts pertaining to Congenital Heart Defects. Do you know how many heart defects exist? Is there a cure to CHD? What are the warning signs? Check out this video to learn the answers to these questions and more! I encourage you to educate at least one person on the most common birth defect before hear...
MY JOURNEY TO BECOMING A NURSE
Переглядів 1,1 тис.3 роки тому
Happy (late) New Year! I took a few weeks off to celebrate the holidays, but I'm back with one of my favorite videos yet!! I'm often asked about how my CHD impacts my nursing career... have you ever wondered the same? Are you a CHDer looking to become a nurse? Does you child with a CHD want to become a nurse? Check out my video to hear my answers to come of the most common questions I am asked....
MY HEART
Переглядів 1,6 тис.3 роки тому
The long awaited video has arrived… My Heart! My defects, my surgeries, fetal circulation, and then complications I face as a Fontan. I was born with 6 Complex Congenital Heart Defects- Pulmonary Atresia, Ventricular Septal Defect, Congenitally Corrected Transposition of the Great Arteries, Ventricular Inversion, Bilateral Superior Vena Cavas, and Dextrocardia.. want to understand what those ar...
MY CARDIAC CATH
Переглядів 11 тис.3 роки тому
Welcome to my channel! In this video, I talk my viewers through my experience with my third CARDIAC CATHETERIZATION! I share what led to this procedure, what happened on the day of cath, my recovery process, and the unfortunate complication I am being treated for! Want to learn more about living with a Single Ventricle Congenital Heart Defect/ FONTAN- tune in to hear more! Check out my previous...
GOODBYE GALL BLADDER
Переглядів 29 тис.3 роки тому
Welcome to my channel! In this video, I talk my viewers through my experience with my Gall Bladder surgery! I share what led to this surgery, what happened on the day of surgery, and my recovery process! Want to learn more about living with a Single Ventricle Congenital Heart Defect/ FONTAN- tune in to hear more! Check out my previously uploaded videos where I discuss MY STORY of living with CH...
WEARING A HOLTER MONITOR
Переглядів 89 тис.3 роки тому
Welcome to my channel! In this video, I talk my viewers through how to place a HOLTER MONITOR (MCOT). I share my opinions on this monitor, as well as a few general tips and tricks for wearing a holter monitor. Don't know what a HOLTER MONITOR is? You're in the right place- check my video to find out! Want to learn more about living with a Single Ventricle Congenital Heart Defect/ FONTAN- tune i...
MY STORY (part 2)
Переглядів 7513 роки тому
Thank you for checking out my video, “My Story: Part 2”. If you haven’t watched Part 1 yet, please check it our on my channel! Remember to like this video, subscribe to my channel, and turn on notifications so you can be one of the first to see my new videos! Videos too look out for!: -My Heart -My Journey to Become a Nurse -Wearing a Holter Monitor -Goodbye Gallbladder -Cardiac Cath -And more!...
MY STORY (part 1)
Переглядів 1,2 тис.3 роки тому
Thank you for checking out my video, “My Story: Part 1”. Remember to like this video, subscribe to my channel, and turn on notifications so you can be one of the first to see my new videos! Are you interested in learning more about what it’s like to live with a Single Ventricle heart defect? Stay tuned for the release of “My Story: Part 2”. Videos too look out for!: -My Heart -My Journey to Bec...
WELCOME TO MY CHANNEL
Переглядів 1,1 тис.3 роки тому
Thanks for checking out my first video! Remember to subscribe to my page and turn notifications ON in order to hear when my next video is posted. Inside secret- video #2 is already in the works!!! Check out achaheart.org to learn more about Congenital Heart Defects, the number 1 birth defect! Copyright info; Music: Someday Musician: Alexander Delarge Site: icons8.com/music/

КОМЕНТАРІ

  • @yolandawashington8883
    @yolandawashington8883 День тому

    Marissa, you are my hero!🎉

  • @yolandawashington8883
    @yolandawashington8883 День тому

    Girl, you did a great job explaining what this device is all about. They need to hire you to be their human example 😂. Great job!! I'm going to have one next month. You made this look easy. Thank you so much for sharing your experience.❤❤❤

  • @brianwalter8094
    @brianwalter8094 3 дні тому

    I'm about to have one implanted. I've seen a couple procedure videos. From them and that detail you went into it seems like a very simple process. I very much know what you mean by cutting down on ER visits. I think also to a large degree it can also help with reducing anxiety which as we all know can make things worse. Thank you again for making this video and prayers tp you and your family!

  • @samaelmartinus3273
    @samaelmartinus3273 6 днів тому

    Can you describe what each lead does? Like is lead to for p waves, location of electrical paths etc etc. I just want to know which is for p waves personally. But thx for the video

  • @2908Ruby
    @2908Ruby 9 днів тому

    How long did you have to wait to be able to drive again after your loop recorder insertion? I am having this done soon and want to know what to expect in that regard.

  • @madamrockford2508
    @madamrockford2508 14 днів тому

    I was jazz cuz finally they could see the various antics my heart does, inc. Pheochromacytome, but as soon as you mentioned needing internet, I was sunk. Being on SSI, I can't afford it. I have no neighbors (my closest friend died last March) & I only get to town once a week.😢 But Thanks anyway for the brief moment of hope.

  • @stephanieacierno2584
    @stephanieacierno2584 15 днів тому

    It’s horrible kept waking me up screaming at me 🤪

  • @monicamonica68
    @monicamonica68 25 днів тому

    Very informative, thank you

  • @menemisan
    @menemisan 26 днів тому

    I have the loop recorder implanted 4days ago. Please, does anyone know if the base is supposed dark or light up when plugged in. That’s continuously lite up

  • @KayKay-iq8om
    @KayKay-iq8om 28 днів тому

    Why he didn’t try other dose or other medication before the implant

  • @gloriaromero9685
    @gloriaromero9685 29 днів тому

    Thank you sharing

  • @user-yk3bc5ne3g
    @user-yk3bc5ne3g Місяць тому

    Heart failure patient here. My cardiologist recommended one of these to more accurately assess my bradycardia when it gets bad. Hoping to capture episodes of bigemini and PACs to share with my cardiologist.

  • @ytc257
    @ytc257 Місяць тому

    Do you know Jesus is a messenger of God

  • @shanadavis4524
    @shanadavis4524 Місяць тому

    Thank you ❤

  • @lindahays1157
    @lindahays1157 Місяць тому

    The main problem we have is trying to change the battery. We have followed the UA-cam instructions and can’t get the cover with two little prongs to snap down over the battery. Afraid it will break, so hubby is not using it right now. Can you help?

  • @mattfecteau8100
    @mattfecteau8100 Місяць тому

    You did an AMAZING 🤩 Job explaining everything about the device!!!! I am 56 with 2 sons that are young men around your age and they were worried. I sent them this video and they were SO relieved. For that, thank you! You should be proud of yourself and as a parent, I know your parents are proud of you! Good luck in your journey!!!

  • @amandadelecosse1661
    @amandadelecosse1661 Місяць тому

    For those, like me, who ITCH LIKE MAD because of these or Myzio, tips and tricks I've learned: the area should be clean, but skip the abrasion. It falls off anyway. Skip alcohol if you have very sensitive skin. Just slap it on. Then tape is down with athletic tape on both wings. It works to hold it on much better and you don't have the itching! Extra step that I tried, but don't know if it actually helped: spraying the area with flonase and drying it first. The athletic tape works better in exercise, if you're just way sweatier than others, and showers. Also, the HCOT advantages over MyZio is that MyZoi doesn't give you the placement guide or replacement strips. Also, her complaints about the Bluetooth connection was the same for me.

  • @gaeber2010
    @gaeber2010 2 місяці тому

    Thank you for the great explanation of your experience with your ilr. ❤

  • @coachjudy8442
    @coachjudy8442 2 місяці тому

    I just learned yesterday my doctor recommended one. The abalition didn't take with needing to use propathol. I'm 73 and your video really helped me. One question: Does it affect what type of tops you can wear? Great presentation as I am on both sides of the microphone. Reach out & let's talk. Coach

  • @marudharvlogAk
    @marudharvlogAk 2 місяці тому

    My gallbladder surgery 16days complete I am so happy ❤

  • @vukasinmitrovic2918
    @vukasinmitrovic2918 2 місяці тому

    thankyou so much for this info. I'll be having an implant tomorrow morning. bless your soul...

  • @divya_rana
    @divya_rana 2 місяці тому

    Hey !! Are you alright ?? Not posting videos .

  • @miescuelitavirtual7262
    @miescuelitavirtual7262 2 місяці тому

    BLA BLA BLA ACCION PLEASE

  • @johnnygoode3021
    @johnnygoode3021 2 місяці тому

    nice couple!!

  • @johnnygoode3021
    @johnnygoode3021 2 місяці тому

    your spirits is awesome!!

  • @jeromeknasinski3862
    @jeromeknasinski3862 2 місяці тому

    I just found your very informative video and i liked it a lot... Ive had my Kardia Mobile for a year or more. Question How do i change the battery...im at about half life.

  • @lipika575
    @lipika575 2 місяці тому

    Where did u get it done ?

  • @verahill2102
    @verahill2102 3 місяці тому

    Thank you for explaining. I am getting one in 2 weeks

  • @shozos6672
    @shozos6672 3 місяці тому

    You're a beautiful person, inside and outside!!! Thank you for the video. I'll wear this patch (Zio Patch) in two weeks.

  • @andrewk7800
    @andrewk7800 3 місяці тому

    How have you been after the surgery?

  • @andrewk7800
    @andrewk7800 3 місяці тому

    Mine was 7% functional. No gallstones. Had pain, bloating, gastric reflux, diarrhea, fatigue, nausea, constipation, and had yellow and white stool. Had this for 3 years and was misdiagnosed and gaslighted by doctors. Finally i fought for a hida scan and it came back as Gallbladder dysfunction (Failure). 7% function! Lol I tried everything to stop it and manage the symptoms with limited results. Cbd oil, Curcumin, NAC and gastritis supplements helped a lot. I feel i have no choice but get it out. My surgery is this friday.. i hope everything works out and i have a good recovery.

  • @vickijeanbyrd28
    @vickijeanbyrd28 3 місяці тому

    I have Brdycardia, I bought th device my question is the 3M patch on the bak ND the tray... what do they do? I can't get my phone to recognize it?

  • @vanessahampton1111
    @vanessahampton1111 3 місяці тому

    I’m currently resting in bed after surgery. I was determined to see if I could save mine. The last attack was the worst I have ever had, thought I was dying. Well its out now and I hope it’s onwards and upwards now ❤

    • @jenny2tone242
      @jenny2tone242 3 місяці тому

      Hi hope you are feeling ok. I had mine out on Monday.

    • @vanessahampton1111
      @vanessahampton1111 3 місяці тому

      @@jenny2tone242 hope your ok too 💕

    • @jenny2tone242
      @jenny2tone242 3 місяці тому

      @@vanessahampton1111 Yes I am thank you ❤️👍🏻

  • @jessicamatthews1132
    @jessicamatthews1132 3 місяці тому

    im having mine through the wrist friday

  • @xoloveskhun7008
    @xoloveskhun7008 4 місяці тому

    Can you go to work right after or does the doctor gives you sick leaves of so, how many days ? Thx in advance ?

  • @Von199X
    @Von199X 4 місяці тому

    Can you sit days after the surgey? I have a desk job at home I need to sit for long hours

  • @realnurse2696
    @realnurse2696 4 місяці тому

    Retired nurse here with the exact same diagnosis. My EF was 7%. Going for my surgery very soon. It took about 5 months and 5 tests before the problem was finally identified. It was the most painful and frustrating 5 months ever.

    • @magn18
      @magn18 2 місяці тому

      Sorry you had to experience that, hope your surgery goes well! What kind of symptoms were you having?

    • @realnurse2696
      @realnurse2696 2 місяці тому

      @@magn18 stabbing pain in the upper right quadrant, especially after eating. Bloating, full feeling all the time, which was worse in the mornings. Nausea.

  • @muffin2u63
    @muffin2u63 4 місяці тому

    Please let us know how you are doing? I've enjoyed watching your vlogs on your journey and hope that you are doing well.

  • @ShahzadQuraishi27
    @ShahzadQuraishi27 4 місяці тому

    😢😢

  • @jmiller3579
    @jmiller3579 4 місяці тому

    Waiting for your next video…. Prayers for you

  • @emmabateman7553
    @emmabateman7553 4 місяці тому

    lol, I think I should make sure my husband has notes on his phone, he calls my defect tricustard acheesia lol.

  • @user-ue3yz6tr3u
    @user-ue3yz6tr3u 4 місяці тому

    I will personally recommend you to drohanon who has proven to me that herbs are real he helped me get rid of my bad breath in 3 days thank you sir,🥰🥰

  • @Rebecca-mk8wv
    @Rebecca-mk8wv 4 місяці тому

    Does anyone know why on my ecg, the aVL would be negative ?

  • @ariellezellis-paley9909
    @ariellezellis-paley9909 4 місяці тому

    I experienced this this past Saturday night . Had the same tests . They were questioning if I should do a HIDA scan or not . I remained in the ER the whole time. They decided not to do the HIDA scan and go straight to surgery.

    • @ariellezellis-paley9909
      @ariellezellis-paley9909 4 місяці тому

      I will say they had me leave that night . And it led me to not be able to get out of bed at night . Idk it was scary to just have surgery and then be sent home right after 😢

  • @annefurman7833
    @annefurman7833 4 місяці тому

    Thank you! I will have one implanted next month.

  • @janiswestwater8847
    @janiswestwater8847 4 місяці тому

    Thank you so much for this. I had my heart loop recorder put in about 4 months ago. I have had no problems up to now, but as i have fibromyalgia which causes severe brain fog, tonight my brain just forgot how to send the message over to my cardiologist i found this video, you explained so clearly and my memory kicked back into action, and i sent it over Wonderful video Thankyou x

    • @janiswestwater8847
      @janiswestwater8847 4 місяці тому

      Forgot to say i have been diagnosed with artriel fibrillation.

  • @IntenseCity
    @IntenseCity 4 місяці тому

    The Apple Watch Series 7 is also FDA cleared btw, is it it? Just that it is only a single lead

  • @tishadarling4690
    @tishadarling4690 4 місяці тому

    Left the ER because they mentioned this surgery, they said it had to be done. Wrong, I’ve lived 20 years with gallbladder issues, I’m sure I’ll die with them. My gallbladder is infected or something, I’ll just take antibiotics and I’ll be fine.

    • @eshjane
      @eshjane 4 місяці тому

      Be careful. I had gall stones in my pancreas. You could die. Get the surgery please.

    • @JudeAussie
      @JudeAussie 3 місяці тому

      My father died from complications of pancreatitis as a result of choosing to ignore years of gallbladder pain. I’m having mine out in 2 weeks time. Not going to make the same mistake.

  • @elizabethcarr2337
    @elizabethcarr2337 4 місяці тому

    Thank you so much for the video. I'm on the waiting list in the UK for one. Feel at ease about having one now 😊

  • @rachelrodgers9171
    @rachelrodgers9171 4 місяці тому

    9:21 It has been so many years since I heard the music of an ice cream truck. I lived in Modesto, California during my childhood and heard them daily. I moved to a small foothills town in 1985 and there's none up here.