Відео

So jealous of your travels…How do you manage all your travel? Is it part of your employment? Or just lucky and make it work with your goals? Anyway so glad you are living life to fullest and your PsA is so well controlled!

thank you currently i am in the process of getting diagnosed my psychologist suggested i have cyclothymia and i am still not sure so looked for people with cyclothymia experiences and yours helped me the most up till now

Question: that metotrexate is weekly, by injection right? I've noticed that when I take it on a Friday, then by the next Thursday it already starts to wear off and symptoms become more severe. Like weekly is not enough and it should be half the dose twice per week. I don't know if anybody ever tested the hypothesis that this is more efficient.

Glad mtx is working for you! There’s a lot of fear around taking a gets basically a chemo drug I was on it two years for PsA on the max recommended dose (9 pills/week). Worked great and really brought my inflammation numbers down. The first year was great and I felt like I was starting to return to some semblance of normal The second year though… not so much. I started to see the liver enzymes climb and I was starting to have digestive issues because of it. And I was getting sick a lot. My rheumatologist noted this and lowered the dose. I went into another flare, which I expected. But when it didn’t let up after four months, I felt I was back at square one. After much research, I determined mtx wasn’t the answer for me. I have a very physical job and couldn’t afford joints that were too swollen and painful to even twist a doorknob. I felt like I was 80, not 50! My rheumatologist wanted to put me on an expensive biologic instead, which didn’t sit well with me. So I quit him. Quit my mtx too. Cold turkey. It was scary but it felt right for me. I know several people who are treating autoimmunes naturally, including seronegatives arthritis, so I decided to try that route while searching for a new doc. I became more strict with my gluten free diet, went grain free following a paleo/lower carb plan, then added in daily CBG/CBD… wow was all I can say. I’m feeling better now than I did when on the max mtx dose. Better than I have in decades. My gut was more f-ed up than I realized. I’ve been off mtx since last January… and no flares, no swelling. I can do my job without an Advil (which I DEFINITELY couldn’t brag about when on mtx) Not advocating ditching a doctor or meds, but i do encourage everyone to look outside the limited box rheumatologists work out of. Question any change in your bloodwork. Keep track of the trends, and correlate that with how you feel. And be your own advocate if something feels off. Not once was diet change recommended as a path, and my rheumatologist completely shut down the medical cannabis conversation when I brought it up. Sad really… Enjoyed hearing your journey. Hopefully your treatment will continue to work for you and not have any serious negative effects. Blessings!

Make videos on the psoriasis part of your journey. If you can share anything useful for us long-term suffers of psoriasis

I’m going onto in December. First video I’ve found of yours. Gonna do a deep dive now thanks for the hope

Hi! I'm starting methotrexate tomorrow and I am petrified about taking it. Iv had anxiety about taking it for the past two weeks since my last Rheumatology appt. I will be taking 6 15mg in one go every Sunday then folic acid the following day for a 3 month course. I'm worried about the side effects, i have 3 young children and really concerned. Thank you for your videos I feel a little better about things. Kind regards 💙

Your voice is so soothing and calming.

Quality mate glad all is good.. meant to be having these injections in the next couple weeks, just wondering about gyms? I train in a sweaty mma gym and am worried about infection.. do you go to the gym and if so have you had any issues? Cheers

Your psoriasis was ve ry mild. Mine is horrible and im wbaiting t o see if my insurance approves it

I will be taking my first dose of Methotrexate tomorrow. I am very nervous but after watching your video I am feeling more positive. Thank you.

Ive watched all your videos, theyre inspiring,and helpful to everyone having to go on these drugs. Thanks pal.

For me Adalimumab worked only for 3months

Well done! Have you consider reducing methotrexate yet? My son is symptom free and started a Biologic end of July. I would like him to reduce the methotrexate as it does seem to have a mild side effect on him the next day - tiredness and mood

I have borderline personality disorder. So totally relate to this.

What does it look lie to day to day living with cyclothymia ? It's very nuanced. It's how to regulate those emotions. and even the linguistic language we choose lie "self pity" are old words from a time when we didn't speak/express. My parents got on with it. I admire that. It's confusing generationally. I'm 40 and struggle with a diagnosis of major depressive disorder. I think we just have to have a line between how people can cope with suggestions that aren't realisitic on a day to day. You to my mind are solid. You are adapative. However if you have those ASD sensitivies plus depression on top then the 'normal' types of society can overcome that easier. Aversion therapy is good. It wors but cements shame and you're a piece of shit (how I'dsay to myself). Good to see your videos and hope your pain is getting better. I've got a long story bro and ain't we all

I’ve just been prescribed this biologic . You videos are really helping me. Thank you x

Good to hear your doing well fella. Your videos have helped me make the decision to try biologics and im about to have my first injection this Wednesday hopefully all will go well 🤞🤞

Blueberries, Salmon, Sardines... carnivore mainly.. Omega3 . Clavicle joint for me.. then Achilles / sole .. This has now convinced me to go full on carnivore.. plus blueberries.. Good luck on your journey.

Went to see a rheumatologist today and he is considering Humera

Fluoxetine at the 2010s for depression/anxiety was like ritalin for ADHD back in the 90s I was also on it two times. The numbness thing made it so that we could not experience the highs and lows of life - and learn how to deal with them as adults. And when psychologiets/psychiatrists ask you how you feel and you say "numb"/struggle to explain, they get frustrated and keep you on their meds. They are experimenting on the population en masse but insulate themselves from the known (and should have known) consequences.

Glad to hear you’re still well my friend. For me, I saw a rheumatologist for the first time last week. I’ve basically been diagnosed, I think my doctors waiting for some lab tests to come back to make it official. Ive just been given an anti inflammatory at the moment as my symptoms are mild (knock on wood). I think maybe I’ll get sulfalizine a bit down the line. My doctor is big on functional medicine so he recommended a number of supplements that are good for people with PsA. All in all it seems to be helping. I’m just hoping my elbow goes back to normal now so I can start doing what I want to in the gym again. Keep making the videos my man!

It makes me laugh how i too wake up each morning and before i open my eyes i lay there and wiggle all my fingers . I can gauge my day by their stiffness, swelling , and painfulness. Love your astute descriptions. I too “hobble “ around sometimes . Maybe the fellow who made up the word hobble had PsA! Great video, thanks!

You have described vague back pain before, plus this description about how it is hard to get up from the floor/ - me too! Then when i saw a picture of the pelvic rim entheses- i saw why i had pain and stiffness there with these and other activities! Take a look! I wonder if you had pain there. I have it in the posterior rim and anterior insertions, too.

How are your hand X-rays? Do y have a lot of erosions where your flares have been worse ? My right index finger has flared at least 8 times and i have an erosion exactly where the pain was !!hope you are well, and that we both have great outcomes and somehow make the most out of this strange disease. I love your attitude ! We seem like kindred spirits.

I’m on methotrexate , week 9. Have to do 12 wks mtx before my insurance will allow a biologic. Currently Having a flare (all my fingers stiff and swollen DIP’s blew up overnight a few weeks ago ) along with all my usual chronic Enthesitis tender sore spots, so i am currently also on a 6 wk prednisone 15->5 mg slow taper. All labs pristine- but had a high platelet count once. Thx for sharing! I too just returned from a trip (to Italy!) so drank more alcohol than usual- but my lft’s ok so far! Thank goodness . Back to water !

Fluoxetine stays in your system for 5 weeks. Even stopping them slowly, and when you stop, they’re still floating in your system. Could be a few weeks after you stop that you start feeling bad again.

My bloods just go through to my nhs app, what is it your using exactly?

starting it is the worst i thought i was going nuts. but thats all SSRIs when u first start. now after a year on it its the best thing ever! helps with my OCD and anxiety with only 10mg. might up it to 20mg for my seasonal depression

Just watched this second vid and my symptoms are so similar other than the feet part. My scalp has been bad for years (spots, itching flaking) but managed with shampoo just about. But over the last 4-6 months my fingers have been in severe pain. Eventually when waking I would have to break my index finger. I was also getting shoulder, lower back, jaw, knee and neck pain. I’ve had X-rays and ultrasound and I have cysts, spurs and joint damage. First scan showed fluid too. I went away on holiday to france for 3 weeks and took 2 weeks of 15mg of Prednisone from my GP which calmed everything down including my scalp. But then visiting a specialist in Manchester she has put it down to osteoarthritis because of the lack of swelling. and that she didn’t have the previous ultrasound showing fluid. I’m trying to get help as I know this is not Osteoarthritis as it’s come on too fast. The aggressive progression is terrifying especially having been fit and healthy. At 46 i’m not young but this has been a total shock. I’ve been to see my GP again last week and told him my concerns so we are waiting for the letter from the specialist. All the time suffering with now grinding sounds in my thumbs and neck. A massive thanks for sharing. My youtube ahoyleisure is all about campervans but I may share what I’m going through as the early diagnosis to save joints is crucial. A massive thanks for taking the time to share ❤

This is horrible advice this is common sense

Thanks so much for sharing. Like you I’ve always been physical and PSA has turned me into a 90 yr old. Hobbling around, can’t make fists. Sore in almost every joint! I had about a year build up of getting progressively worse and was finally diagnosed. I’m excited to start injecting Methotrexate if it lifts me out of this hell. I start in 2 days. Gawd I hope to get my life back. You’ve been an inspiration to me all the way over here in Canada.

I think I'm an alcoholic, i have cyclothymia and used to drink and smoke weed every day

I’m hoping you will update. Thank you in advance!

Ive been prescribed to go on it. I have tested positive for the HL AB27 gene and have been diagnosed with spondalarthropathy and inflimation in my si joints. I've been getting flare-ups for 20 years.im 36 now. Im keen to take it, but im hesitant because of my asthma. And i struggle enough with chest infections when i get a cold or whatever. Dont know how bad it's gonna be if i surpress my immune system...thanks for the update.

Are you still on it and what update can you give?

I HOPE NO ONES SPINE CATCHES PSA COZ WHEN SPINE STIFF YOU CANT MOVE YOU CANT DO ANYTHING YOU ALWAYS ON BED

I AM NOT TRYING TO TERRIFY YOU BUT AFTER 15 YEARS OF PSORIASIS I GOT HIT AND MY BONE CRACKED AND SINCE THEN I HAVE BEEN SUFFERING WITH PSA MY SPINE MY CERVICAL MY NECK I HOPE NO ONE FACES THIS BUT THIS IS A NIGHTMARE LIFE LIKE THIS ON NSAID EVERYDAY IS VERY DIFFICULT FIRST IT WAS PSORIASIS AND NOW PSA I BELIEVE GOD HAS ALL HIS REASONS TO TORTURE US FOR OUR OLD SINS IN MY CASE I KNOW MINE HOPE OTHERS REALISES THAT TOO

Needing to think my thoughts out...... Never have i ever heard a better explanation!!!! Your doing great job!! Great video!!! Just got my diagnosis, and totally relate to everything you said!

❤

Great videos, have helped me out no end, thanks!

I’m so happy to hear you are getting relief from your psoriatic arthritis. I have the same condition. I was prescribed methotrexate, which they had to stop after six months because it was damaging my liver. They then prescribed arava which gave me the most awful pains in my stomach so I stopped taking it. They now want to prescribe yuflyma which is newer version of humira. I am so nervous at the thought of taking it. Your videos give me hope, enjoy your travels. Keep safe and well.😎

That's great news ! Very happy for you🎉 Will ask my rheumatologist abou it at my next appointment. Just wondering if you have tried medical marijuana at all? I've tried the cbd oil in drop form but not successful! So I'm about to try the drops with thc oil which I hope will help😮 will let you know if they do as may be helpful to someone else! Cheers from Oz 🦘

Thank you so much 😊

Are you still on the carnivore diet?

I think it is so important that you are making these videos. Cyclothymia is not talked about that often, and you help so many people like us. I am not diagnosed yet but I really think I have it. And you really make it feel like it is managable, so thank you so much!

I’ve been on Humira for 2 years for Rheumatoid arthritis. It worked overnight for me too. Hope it’s still working well!

We sell lamps that treat better and cost less than one injection. And if not you get refund.

We're you able to get off the SSRIs or still need them?

Hey bro, just wanted to let you know how helpful these vids have been. I've been having symptoms for about a year, which I now think are Psoriatic Arthritis. Thankfully everything has been mild so far - mild scalp psoriasis, two on and off again swollen fingers and some mild pain in others, one swollen toe, and what I'm guessing is mild enthesitis in an elbow. I pray to God it stays that way. Got an appointment with a rheumatologist in about 3 weeks. Looking at the internet with this has been wild, sometimes it's hard not to get anxiety over it. It's amazing to see someone going through something similar (although I think your symptoms sounded more severe than mine) and doing well on the other side. Keep it up please!