I HAVE COVID | Being High-Risk & Receiving Monoclonal Antibodies
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- Опубліковано 13 чер 2022
- COVID-19 finally caught up to me. It was an experience for sure. I definitely am thankful that I was able to prepare my body with the vaccines before catching the virus. Being on immunosuppressant medications, it puts me at a higher risk. I am also thankful for the help of my family and husband. Without them, I probably wouldn’t have been able to receive the monoclonal antibodies which made a huge difference! There were times where I wasn’t able to talk or concentrate much.
If you had COVID, how was your experience?
Thank you for all your kind messages. I really appreciate you all and hope you all are well.
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My name is Samantha Wayne and I have been creating advocacy videos on UA-cam since 2009. This channel was formerly known as Live Hope Lupus and was created in order to start a community for those living with chronic illnesses. In September 2019, I transitioned to a plant-based diet and I have found my body is responding well to it. Along with my lifestyle change, I am learning to alter my focus more on the positive. My current content will focus on my healing journey, what food I am eating, and everyday life. I will still be posting an occasional update about my health. I hope you all are ready to join me on this crazy journey of healing. We are all learning how to navigate this life together. If you have subscribed, thank you! I appreciate your support and look forward to talking with you all in the comments.
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DISCLAIMER: This content within this video is not medical advice. The purpose of these videos are for general education and to share my own experience. This content should not be used to self-diagnose or self-treat any health condition. Please consult a healthcare professional before attempting anything in this video.
I got COVID twice even though I never left the house for the whole pandemic, as I am just always sick...lupus is new to me, but makes sense now, also the vaccine I got 2, and I wonder if I should have gotten it knowing now I have lupus and have had for 24 years UNTREATED and undiagnosed till now.
It's all so crazy, people need to have others who understand to talk to, because I've never seen or met anyone with the same issues I have and until I learned lupus, I was convinced i was just...crazy 😢.
The world is judgmental and mean, not sure how I came across you, but you are a nice young lady.
The lupus videos are the first time in my 38 years that I have and see people I identify with, that's scary, it's like being an alien...
We love you Sam and are grateful for you sharing your story along with your experiences to help many others going through the same thing or something similar. Amazing, in-depth video!!
glad to hear you are doing better, prayers for continued healing.
So glad you’re ok.
Prayers for your. Healing 🙏🙏🙏
I am glad you are feeling better!
Thank you for sharing your experience. I hope you continue to improve with no further complications.
Hey, I knew you were going to be OK! You are strong! That treatment did wonders for me too. . I’m hoping you continue to recover to 100% and don’t have any long-term effects! Thank you for all your insight on lupus that you give us all the time, we appreciate it! You are such a plenum of knowledge and it has helped me tremendously!! Feel better! 🙂🙂
Thank you, Robert!
Stay strong! 🙏💐❤️
yay Mom!💪🏼
So glad you are feeling better! I'm just getting over it myself and I feel you on the sweats and brain fog! Hope you continue to feel better and better
Gute Besserung!
How are you feeling? Hope you are feeling well. New in your channel I also have COVID but thank god for the meds I doing though some wave. Thank you so much so much for the information sending you god blessings 🥰
I'm having my 2nd booster next week. My 5th shot. Hadn't had COVID yet but I'm basically isolated and double masked when I go out. I shop at 6am for groceries and don't go to other stores. I'm glad to hear that the vaccines help protect you. It's scary being immunocompromised and not knowing how this is going to affect you.
Right there with you Samantha. After about 2 weeks, starting to get over symptoms. Started with a mild, stuffy nose, light cough. 3 days in, high fever, fatigue...felt like the flu. And it was my 28th wedding anniversary trip. 😲
Hubby and I quarantined the whole time. 🤧😞 Tested when we returned home...both positive...and fully vaccinated and boosted. As you said, thank goodness for vaccines.👍🏽 Sending you many prayers and gentle hugs. 🙏🏽💜
Oh no. The worse timing, that was always my fear. Glad you are starting to get over symptoms now!
I appreciate your comforting words at the end of the vid, I definitely have to watch myself for the constant worry/stress of getting sick/COVID - I know the stress only makes me feel worse. I haven't gotten COVID at all despite exposure, and am more comfortable with getting vaccine shots at this stage. I had been nervous about reacting to them but my post-shot experiences have been pretty underwhelming! I was diagnosed with Sjogrens and SLE last year. Very glad you're making it through this and your mom found you treatment - super mom! Here's hoping there's no long-term symptoms. Thanks again for making this video.
So glad you’re feeling better. Where did you get the antibodies? I live in Phoenix and just curious the type of facilities where you can get that. Is it a prescription or shots or one time shot? Thanks!
My health was doing well. I was in remission after years of flares. Was on track to finally possibly be able to try to conceive. After the second vaccine my health has not been good. I am having unexplained shortness of breathe. My doctor can’t figure it out. My arrhythmia that has been well controlled since 2002 has gotten worse. I’m having palpitations daily, heart racing and my fatigue has been horrible. August will be one year since I got the second shot and am still dealing with these symptoms. I feel like I am an unfortunate rare one who had a bad reaction. I haven’t gotten any boosters due to this.
Oh wow, I am sorry you’re dealing with this. I understand some of that frustration as thoughts of conceiving are on my mind as well.
It is terribly frustrating when there are setbacks in health. Thank you for sharing and I hope you’re able to get some answers to this. My anemia flared soon after one of the vaccines and sometimes I wonder if that was the cause.
I had Covid five months ago and I’m still struggling with fatigue. In addition to everything you mentioned I also lost my sense of taste and smell for a couple of months. And I had the worst aches - every part of my body was causing pain (even my diaphragm every time I took a breath). I hadn’t been diagnosed with Sjogrens when I had Covid so it was really difficult to work out what was happening. As my doctor says I have compounded fatigue ( I also had mono during 2021).
I haven't got it so far, but am afraid. So glad you got the infusion it is very hard to find
Goodness, I am so happy you were able to get monoclonal antibodies. It makes a huge difference in recovery but it is hard to find in some states. Just keep taking it easy and hopefully you don't go into a flare after you've recovered. I've known a few people who ended up flaring pretty horribly after (but their lupus symptoms weren't very well controlled prior so that might be the difference). Anyways, thank you for sharing! Please keep us posted.
I was actually going to share my bloodwork results as they looked great but now those are probably not valid. I’m hoping they stay the same but time will tell.
I was actually going to share my bloodwork results as they looked great but now those are probably not valid. I’m hoping they stay the same but time will tell.
My heart dropped when I saw your title. I am glad you are ok. I am boosted once, but I am still terrified (autoimmune warrior).
Sorry you got COVID. Good to see I are doing better.
This is such a concern for me. It is so hard to avoid it.
I am so sorry you had to go through that! I am currently going through a flare and have been in severe pain for a month now. The pain wakes me up at night and I have been getting hot flashes on top of the pain for several weeks as well. I am hoping I don’t get Covid especially currently with the flare I am in.
I’m thankful. For you Sam! Thanks for sharing continue to inform us…are you still doing Dr Goldner goodbye lupus protocol?
I am not. I still do the daily green smoothies though and have switched to more of a pescatarian diet with no dairy.
I am not. I still do the daily green smoothies though and have switched to more of a pescatarian diet with no dairy.
Sorry for your troubles, dear. Being ill is no fun. I am new to your channel. In which state do you live?
Was the Goodbye Lupus protocol helpful for you?
Hello Samantha! I am very glad you are doing better. I have question for you…. Did you flare with the COVID vaccines?
I did not. I did however have the typical reaction of fever and fatigue.
@@HealWithSamantha I was also diagnosed with lupus a while back. The COVID vaccine flared me like crazy, I struggled over a year to be able to stabilize.
@@vj7220 I am sorry to hear that you flared so bad! Unfortunately, I have heard that happening to a few people.
I always wanted to know why dr.G protocol didn’t work for you? Did she personally follow you? I’m also asking because I never had the motivation to do the diet, I have chronic fatigue…no life at all!
i just had SLE added to my MCTD diagnosis. i am on Retuxin infusions every six months because i had to stop methotrexate due to liver issues. my doctor wants me to get a forth shot. i have been lucky and haven't gotten it.
How has the Rituxan been for you? Sorry to hear about the new diagnosis!
@@HealWithSamantha it wipes me out for about a week after but then it helps. i really start to notice it wearing off after about five months, that's when i notice that it has been doing some good.
Which monoclonal did you get?
Was it IV or a shot?
It was the IV.
I was wondering about you. I know I hadn’t heard from you in weeks.
Damn