Plastic Surgeon Reacts to Man Whose Skin Falls Apart! EXTREME Bodies Explained!

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  • Опубліковано 22 тра 2024
  • Watch me, a real holistic plastic surgeon, react to the story of a man whose skin disorder causes it to fall apart and rip with every movement! How does he live this way, and what can be done to help him?
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    Woman with 600 lb legs! • Plastic Surgeon Reacts...
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КОМЕНТАРІ • 219

  • @DoctorYoun
    @DoctorYoun  2 місяці тому +23

    Enjoy this video? WATCH THESE NEXT:
    Woman with feet like an elephant! ua-cam.com/video/GVhp_Mj7iJE/v-deo.html
    Woman with 600 lb legs! ua-cam.com/video/tgp-jel-xn0/v-deo.html

    • @alexandralagou448
      @alexandralagou448 Місяць тому

      Dr youn are you shipping your products in europe?( I M WATCHING YOU THE LAST TWO YEARS ,I VISIT YOUR SITE BUT I COULDN T ORDER) thank you

  • @MedicalBillz
    @MedicalBillz 2 місяці тому +897

    40 years of constant agony isn't something I'd even wish on my worst enemy, he's a real trooper for toughing it out and living his life.

    • @janinegrey6937
      @janinegrey6937 2 місяці тому +20

      I can’t bear the thought of being forced to give birth to a child that will suffer all its life as well as the collapsed dreams of the parents. The heartache and torment is ungodly to me!

    • @10191927
      @10191927 2 місяці тому +25

      Lives in agony and he’s a power lifter, that’s raw AF!

    • @ithinkiwoulddie9196
      @ithinkiwoulddie9196 Місяць тому +3

      Agony is a part of life, and humans prevail.

    • @Asmodis4
      @Asmodis4 Місяць тому +10

      @@ithinkiwoulddie9196yes, of course, but there is agony and AGONY, you know?.

    • @ithinkiwoulddie9196
      @ithinkiwoulddie9196 Місяць тому +2

      @@Asmodis4 I say this because it is human to suffer, even if it’s caused by an uncommon factor.

  • @ViolentCabbage-ym7ko
    @ViolentCabbage-ym7ko 2 місяці тому +592

    The mental strength this man has must be extremely strong to live with such a condition. I have nothing but respect for this man

    • @greygremlin1248
      @greygremlin1248 2 місяці тому +5

      When you have a choice choose your best
      When you have no choice DO your best

    • @wrenbyrd1093
      @wrenbyrd1093 Місяць тому

      👍👍

  • @liggerstuxin1
    @liggerstuxin1 2 місяці тому +225

    His childhood pics are so sad. Hard to see a kid hurt so bad

    • @lillymurray8408
      @lillymurray8408 Місяць тому +6

      Imagine all the crying and tears and how his mom must’ve felt seeing that and not being able to really help or make it go away. As a mom myself, that is the most helpless feeling when something is wrong with your baby and you can do nothing to help or make it stop and go away. So so difficult and the looming possibility of death upon your child has to be so scary.

  • @Dana-1bealadyalways
    @Dana-1bealadyalways 2 місяці тому +321

    As soon as I saw him I thought he had been in a fire.
    My great, great, Grandmother, who lived 101 years, had just gotten married. Her and her husband had been married for only 3 months when they had a house fire. He tossed her out of the window into the snow, thereby saving her life. Unfortunately he passed.
    Grandmother was burned over 90% of her body and looked Exactly like this gentleman. Her eyes and lids were the same as was her skin, no hair, no ears. They could have been twins.
    Thanks to this wonderful gentleman, I have spent a great part of my day looking at old photos and remembering Great, Great Grandmother Louise, such wonderful memories..
    Thank you kind Sir.
    May your life be as fulfilling as hers!

    • @artchic528
      @artchic528 Місяць тому +46

      That’s such a bittersweet story. Her husband saved her but couldn’t save himself. Rather, he chose to use his last bit of strength to save her rather than himself. She was truly strong to have lived through the ordeal of losing so much. Especially since burn units back then could only clean and bandage the wounds, and hoped the patient had strength enough to heal. Now there are many more treatment options.

    • @dancingfirefly7761
      @dancingfirefly7761 Місяць тому +18

      It's amazing she survived with that level of damage back then. What was her life like? Did she require constant care? Was her community kind to her?

  • @theazurapristina
    @theazurapristina 2 місяці тому +312

    Im so fortunate to only have acne and eczema. I will NEVER publicly complain about my skin again knowing there are people who have suffered like him

    • @kathleenking47
      @kathleenking47 2 місяці тому

      Try using xylitol for acne
      Wash face with it

    • @ShogoMakishimaxx
      @ShogoMakishimaxx Місяць тому +52

      One thing that my Ex told me that is true:
      "Just because other people are going through something more severe than you are, doesn't diminish what it is that you're going through".
      You have your own problems just like they have their own. It's okay to get upset with your skin and complain sometimes. It's life and you're human. Take care.

    • @wrenbyrd1093
      @wrenbyrd1093 Місяць тому +4

      Since you have eczema, have you ever tried homemade soap from sellers online that make allergen free bars that have their own farm? I saw some on Etsy the other day and thought that might help someone with the most sensitive skin out there. Looks good. 👍👍
      I have some skin issues and can’t use a lot of stuff.

    • @essp3688
      @essp3688 Місяць тому +5

      ​@@ShogoMakishimaxxThat is so true. You can't really compare people's problems to each other, it's experienced differently from person to person. Even something that for most people would be "severe" (using the quotation marks because of how it would vary) doesn't necessarily have to be severe, and even "light" things might be experienced severe for others.
      I do have eczema and it can be tough, especially when it's visible and can be a real obsticle to perform everyday tasks.

  • @dottiepark
    @dottiepark 2 місяці тому +182

    My niece with EB lost the ability to walk because the blisters on her feet were so painful. Also, an experimental medication caused premature closure of the growth plates in her knees and that impacted her gait. She died of sepsis at 25. God rest her sweet soul.

    • @who4743
      @who4743 2 місяці тому +17

      I'm sorry for the loss of your cherished niece. What is one of your fondest memories of her? If you don't mind sharing that is, if you don't that is perfectly fine and understandable.

    • @sapphirejade5029
      @sapphirejade5029 Місяць тому +6

      My deepest condolences to you, family, and friends that knew her well. May your beloved niece roam freely in Heaven.🫂

    • @fairysensitive1
      @fairysensitive1 3 дні тому +2

      My she trust in peace! I’m so sorry for your loss :-(

  • @lavinaacrux1831
    @lavinaacrux1831 2 місяці тому +135

    Dogs don't care what you look like. Thanks for the additional educational commentary, I loved this video and he seems like a nice guy. I hope the remainder of his life is full of love.

  • @mindypatriotangel6064
    @mindypatriotangel6064 2 місяці тому +126

    I grew up with Vitiligo and kids were so cruel to me, I can't imagine how kids were to him. God Bless him.

    • @brendaisthebomb.5910
      @brendaisthebomb.5910 Місяць тому +5

      I have been rercently diagnosed with Vitaligo as well as lifetime of ED. I feel hit. lol It was hard because we were picked on for being slow walking when sore, and even when my brother had a wheelchair at times or crutches which blistered under his arms. My Vitaligo is hands arms and chest so far.

    • @KnockedupNout
      @KnockedupNout Місяць тому +2

      I've never known anyone with this, just curious if you don't mind answering: How do you feel about the way media portrays some that have this? Like the "celebrate it!" attitude, are they doing a disservice to those that have to live with it without media attention? (If that makes sense)

    • @mindypatriotangel6064
      @mindypatriotangel6064 Місяць тому +3

      @@KnockedupNout I don’t think it needs to be celebrated. I think parents should teach their kids to be kind and not make fun of others. It’s an autoimmune disease that needs to be studied. It gets overlooked because it “supposedly” doesn’t kill you. When in fact you usually have other autoimmune diseases as well that get overlooked. Mine started after I received the small pox vaccine in the shoulder.

    • @mindypatriotangel6064
      @mindypatriotangel6064 Місяць тому +1

      @@KnockedupNout I don’t think it needs to be celebrated. I think parents should teach their kids to be kind and not make fun of others. It’s an autoimmune disease that needs to be studied. It gets overlooked. When in fact you usually have other autoimmune diseases as well that get overlooked. Mine started after I received the small pox vaccine in the shoulder.

    • @KnockedupNout
      @KnockedupNout Місяць тому +3

      @@mindypatriotangel6064 That's crazy, I didn't even know it was autoimmune (I mean it makes sense) so I guess that's how helpful the propaganda I've seen is...
      I definitely teach my kids to not judge other people but honestly I think there's not much I actually teach them, they kind of accept others naturally. They are very friendly and they might ask questions but they're never rude and they sense if someone doesn't want to talk about not and they're like 'Ok cool. Let's go play!'

  • @Bruxa1298
    @Bruxa1298 2 місяці тому +78

    Him cosplaying as Deadpool is just hilarious. What a great guy.

    • @brendaisthebomb.5910
      @brendaisthebomb.5910 Місяць тому +1

      no way he cosplays Deadpool too and is a great Doc? Niiice Youn my guy!!

    • @tdelioncourt1268
      @tdelioncourt1268 Місяць тому +3

      @@brendaisthebomb.5910 he meant the patient, there is a picture of him as deadpool, it's hillarious indeed!

  • @heidiowen9415
    @heidiowen9415 Місяць тому +51

    I knew this was EB instantly. I used to b a paediatric plastic surgery nurse and we used to have children with EB admitted for syndactyly release (which Dr. Youn briefly mentioned) and I cannot tell you the constant pain and discomfort these children an adults are in. Any touch can cause skin shearing and blistering. My heart goes out to them and they deserve a huge shout out for their bravery.

  • @paulameeks112
    @paulameeks112 Місяць тому +22

    The offer to carry the Olympic torch was imho, humanity at its highest levels. Look what that did for this man! Some strangers acceptance brought him to self acceptance which birthed hope & the determination to live a life of quality and purpose. Now he passes on his life’s lessons by offering the help to others that he was given. I mean, WOW! WHAT AN HONORABLE MAN!! I would love to hear him speak.

  • @leah__gail
    @leah__gail 2 місяці тому +85

    What a lovely man! Hope he continues to thrive with his condition!

  • @JourneyAlee
    @JourneyAlee 2 місяці тому +77

    Dr Youn, your compassion and empathy are a blessing to behold.

  • @Emily-the_funny_guys
    @Emily-the_funny_guys 2 місяці тому +82

    Dean is well known here in Australia

  • @carmelbrain7399
    @carmelbrain7399 2 місяці тому +40

    Dean is a terrific Ozzie

  • @caroljeanscott5571
    @caroljeanscott5571 2 місяці тому +30

    No matter what medical affliction you are delt with, you always see someone else who is worst off then yourself. I have been around people with chronic conditions pretty well all my life and these people seem to be able to adapt to their medical condition and live life to the fullest. Although some of these people may have to endure many medical procedures, they seem to be able to cope with that situation also. I can see that same drive in this gentleman despite everything he has to deal with. I think it is wonderful that he worked on getting out of a wheel chair so he could carry the Olympic torch and being able to lift a 150 kilos was really inspiring . I feel so bad that people were scared of him. People who live with a disability are always challenged in proving to everybody that they are just as capable of doing everything as an abled body person. This gentlemen has so much to deal with, the fact that as a child not knowing if he would die and the fact that doctors said he would be better off if he died because his condition would only get worst as he got older must of been devastating for his parents. Everybody wants to live no matter what. This man has so much to endure with, always having to deal with his skin condition but I watch his story and I personally think he is an inspiration. There are so many inspiring stories like his on UA-cam of people are accomplishing so much despite their disability. 🥰

  • @barbaracarmichiel7369
    @barbaracarmichiel7369 Місяць тому +16

    This dear man has an amazing attitude and strength.

  • @JiaPia3
    @JiaPia3 2 місяці тому +11

    I feel so bad for this man and other people who have serious conditions like this. we should not take for granted that we can walk, talk, here, see, smell, and touch. Some people lose those senses, so remember how lucky you are to have them.

  • @dextert8188
    @dextert8188 Місяць тому +10

    This brings to tears for this young man...the courage and strength he displayed is remarkable. I wish I could meet him. God bless this man!

  • @spreest9537
    @spreest9537 2 місяці тому +20

    What a cool guy. I would love to have a conversation with him, he seems so wise, but also strong and kind.

    • @dextert8188
      @dextert8188 Місяць тому +3

      You had the same reaction as me. A great inspiration for those of us who complain inconveniences in our daily lives.

  • @wallhagens2001
    @wallhagens2001 28 днів тому +1

    I’ve got Rheumatoid Arthritis and it’s a mental battle as much as a physical one. I can’t imagine having this condition to deal with ever since childhood. This fellow is a psychological superhero for what he’s faced. ❤

  • @lindajohnson2149
    @lindajohnson2149 2 місяці тому +18

    Kudos to Dean and his resilience!

  • @JiaPia3
    @JiaPia3 2 місяці тому +8

    I love dogs so much. I can’t live without them. People with pets even live longer. They really do love you unconditionally no matter how horrible you treat them. That’s why I can’t stand it when anyone abuses a dog. They’re just so innocent and loyal.

  • @barbmoody4892
    @barbmoody4892 Місяць тому +5

    Bless your heart for adopting senior dogs. I know they need homes too but health challenges can be expensive and losing your companion is more frequent. Thank you for taking on these challenges and bring love to these dogs.

  • @geebrewer8186
    @geebrewer8186 Місяць тому +9

    good for him for just carrying on. When people whine and cry about their lives, they need to watch this video and be grateful.

  • @SleepyMoon98
    @SleepyMoon98 2 місяці тому +5

    Oh my gosh… this actually made me cry. I can’t imagine how tough it is to live with this. But on the other hand, WHAT AN AMAZING MAN!!!!!! His outlook on life to keep going and to keep a healthy lifestyle with the odds against him is commendable. What an incredible inspiration

  • @riversong4311
    @riversong4311 Місяць тому +7

    I am late to this story. I watched it with my adult daughters. We thought about his tenacity and his will to live his life on his terms was great. I loved this story.

  • @kdknice888
    @kdknice888 Місяць тому +7

    I just wanted to say that If you have suicidal thoughts, mental trauma, PTSD, or even if you don’t or just going through a thought time or neither just know that I love you and your loved by many and people and if you think that might not be loved by your family or people you know or just anyone just know they might even love you even more than your think. You have a purpose you are beautiful, kind, just be yourself and go after what you want to do. You are amazing, you got this, and things will get better in your life, you will do great things, and so many people and I are proud of you. Your future is bigger than your past and your past does not define you are awesome and a warrior. Don’t hate yourself simply because of your past, forgive yourself, love yourself no matter what because you deserve the world and the great things in it. I love you Have a wonderful beautiful nice day. Also how are you and your family doing today? Hope you feel better and your family.❤️ Be yourself no matter what you are, have, or what to be you are still amazing and you kind and beautiful always you are the light of the world. Stay safe. 💪🏽❤️. Have a beautiful day💯💯💯💯💯💯💯💯

  • @constancehall1231
    @constancehall1231 2 місяці тому +5

    Thank you for showing this video. The next time I feel like complaining about anything, I will remember him and count my blessings. He should be rewarded for his strength and fortitude, both physical and mental. And may God bless him.

  • @CringeLort
    @CringeLort Місяць тому +3

    Bless this brave man.
    I cant imagine the constant pain.

  • @garymucher4082
    @garymucher4082 22 дні тому +1

    He is one extremely strong human being. Amazing what he has gone through in his life time. We complain with illnesses that don't ever register as anything compared to this guy. We all need to be grateful and stop complaining about what life has dealt us when we see such a person to understand there are people with real diseases and problems...

  • @greygremlin1248
    @greygremlin1248 2 місяці тому +5

    If any one deserves any kind of loving its this guy

  • @LadyVenus125
    @LadyVenus125 Місяць тому +3

    Jesus, poor man. I'm so proud that he has the strength to talk about his issues on TV. More power to him. ❤

  • @AdaTomas
    @AdaTomas 2 місяці тому +5

    I’m I the only one who can’t stop watching doctor youn videos? It really helps to educate about plastic surgery.

  • @pernille3841
    @pernille3841 2 місяці тому +4

    He is so strong, in every way, I hope there will be a cure soon! 🙏❤️.

  • @katherinekoza6536
    @katherinekoza6536 2 місяці тому +8

    He sounds like he is an Aussie . What great courage he has to go on .

  • @sandyseibelhager7131
    @sandyseibelhager7131 Місяць тому +4

    I went to high school with a boy with this horrible condition. RIP Bobby!

  • @DravenGal
    @DravenGal Місяць тому +2

    This man is an inspiration. And his dogs love him. That tells me everything I need to know about his heart.

  • @lunaplata4726
    @lunaplata4726 Місяць тому +2

    Dr. Youn you are such a compassionate human being. Thanks for bringing awareness to these conditions.

  • @ebellyfish4256
    @ebellyfish4256 2 місяці тому +3

    Seriously amazing that he lived past childhood. Wow.

  • @mattdeinken6580
    @mattdeinken6580 2 місяці тому +12

    In 2018 I adopted a 9 year old 3 paw papillon,she is now 14

  • @Bonnie_Mairead
    @Bonnie_Mairead Місяць тому

    I heard about this guy recently, he was on the news a while ago. I'm glad you talked about him so I wouldn't forget!!! What a nice guy, I hope he accomplishes many more feats in his years to come!!!

  • @Youtuber5775-
    @Youtuber5775- Місяць тому +1

    After seeing this video of him struggling with a disease that is constantly challenging him and affecting his life, I literally don’t have anything to complain about after seeing this. He is a true inspiration to us all! ❤🎉

  • @Mayayapayapa
    @Mayayapayapa Місяць тому +2

    Poor thing, as someone who has eczema and is super scared of infections, there's no doubt he's probably had a very rough time with them, at least twice.
    I feel for him, even if I don't understand his pain like he does.

  • @sophiemerigold2449
    @sophiemerigold2449 Місяць тому +2

    This is why the paralympics are so important ❤
    Also, this is why animal assistant interventions are so important as well.
    Sports and animals are so good for our souls and mental health

  • @kristaj1392
    @kristaj1392 2 місяці тому +3

    Bless his heart! He has a beautiful soul! ❤

  • @DeannaBrownlee
    @DeannaBrownlee Місяць тому

    I wish all the happiness, comfort, peace and joy for this lovely, brave man.

  • @erikaersland1305
    @erikaersland1305 2 місяці тому +1

    Thank you Dr. Youn for bringing these challenging skin subjects to our awareness. Also, the fact that you and your family focus on rescuing senior dogs says everything I need to know. Thank you!!!! 😊

  • @tanana2070
    @tanana2070 23 дні тому

    What an amazing attitude this man has. God bless him!

  • @reneeblack2783
    @reneeblack2783 2 місяці тому +4

    What a fighter! ❤

  • @lavenderwashington5337
    @lavenderwashington5337 Місяць тому +2

    I believe when I first heard about this condition it was a young boy. I remember the video spoke about and showed how often he has to change his dressings, and how painful! I cried watching, and I legitimately wished that I could take his pain away.

  • @SamSmithVev0
    @SamSmithVev0 2 місяці тому +5

    Wow. Great, informative video. Thanks for the awareness.

  • @norasmith4939
    @norasmith4939 2 місяці тому

    Thank you for reacting. Well explained.

  • @pourquoipas971
    @pourquoipas971 Місяць тому

    What a resilient young man!

  • @StrawBerry-mm1iy
    @StrawBerry-mm1iy 2 місяці тому +4

    It's more like a punishment for him to live life with pain every day for years.. I can only imagine how hard each day must have been for him

  • @nicolecarter3360
    @nicolecarter3360 Місяць тому +1

    @Dr. Youn I've enjoyed your educational videos, they are very entertaining. I must say i love the way you explain medical things in a simple understanding way as if you're talking to an average person, and your video editing is perfect it's not edited like you like hearing yourself medical/big words talk. Thank you.

  • @DANIxDANGER
    @DANIxDANGER Місяць тому +1

    I used to follow a boy named Nicky who had EB, and the pain he would describe that he was in was unimaginable. He is the reason i even know what this disease even is.

  • @louishoyt5104
    @louishoyt5104 26 днів тому

    This man, all props to him!!!!

  • @magnetdesignandadver
    @magnetdesignandadver Місяць тому

    What a strong person for living with this awful condition. It's just awful what some people are dealt. Makes me realise how grateful I should be

  • @InTheMindOfDavid
    @InTheMindOfDavid Місяць тому +1

    Damn dude… that poor man, those poor parents. I don’t even have words, those childhood photos left me speechless.
    With his skin not having that “binding agent” for lack of a better terms, would that also mean his skin isn’t bound to his body? Kinda like he’s wearing a suit, it’s not connected to you so it’s just there freely hanging on our bodies essentially, except for him that “suit” is his skin? Like his face for instance, would that be like he’s wearing a mask but the mask is his own skin and face? Or is the deepest layer of skin bound to his body and it’s just the outer layers that aren’t bound to the deepest layer and eachother?

  • @Watersart___
    @Watersart___ 2 місяці тому +1

    Wish you were MY Doctor. I love your compassion and you are soooo easy on the eyes.❤

  • @ghostdemon7936
    @ghostdemon7936 27 днів тому +1

    Dean is a brave man. What a lovely man too and a true fighter. Go Dean, you're an inspeiration 💪🤘😃

  • @frustratedpanda212
    @frustratedpanda212 2 місяці тому

    His willpower is so strong ❤
    Real fighter.

  • @user-pt8gk8qg4m
    @user-pt8gk8qg4m 24 дні тому +1

    Wow this guy is REAL tuff!!! No pretend about it!! Good for you bro

  • @Iippypegues
    @Iippypegues 12 днів тому

    Bless his heart

  • @carolc.776
    @carolc.776 17 днів тому

    Always puts my problems in perspective.

  • @DJ-wi9yk
    @DJ-wi9yk Місяць тому

    I can not begin to imagine his experiences. He sounds like an Aussie. An Aussie trooper. ❤

  • @littleleah310
    @littleleah310 Місяць тому

    What a unique case 😍 what a beautiful man 🥰

  • @cazdaz3863
    @cazdaz3863 2 місяці тому +1

    Poor gentleman… he must have found it so debilitating as a child and very difficult to understand and has had to come to terms with it in adulthood. His parents have had the worry of losing him their entire life. I have to applaud his resilience in the face of such adversity in spite of the loneliness and rejection from prospective employers and having to live alone with his dog for company.

  • @candacehoover7753
    @candacehoover7753 2 місяці тому +1

    God bless him always ❤

  • @honeybadgernasty
    @honeybadgernasty Місяць тому

    Doc, can you please make a video on the subject of lip lifts. Different types, such as the bullhorn technique, seagull, Italian, corner lip lift, V to Y,
    your personal experience, which one you'd recommend, etc? 🙏

  • @Dontaskme14
    @Dontaskme14 2 місяці тому +2

    EB - There is a documentary from a man named Johnny who had it it's such a hard disease

  • @Hatbox948
    @Hatbox948 2 місяці тому +1

    Poor guy. That must be excruciating. I feel so bad for him.

  • @GenXfrom75
    @GenXfrom75 2 місяці тому +8

    My mother has Bullous Pemphigoid… it’s awful… blisters head to toe. Treated in a burn unit. She’s on prednisone the rest of her life.

    • @39houndsteps
      @39houndsteps Місяць тому +1

      My heart goes out to you and your mum. My dad had this in large areas in the 18 months before he died. It was extremely painful for him and for me to see him going through it. He was treated with high levels of prednisone which then caused his type 2 diabetes to go out of control and required hospitalisation. 🤦‍♀️ bizarrely enough, the doctors thought the bullous p was probably originally caused by a reaction to one of his diabetes drugs. 🤦‍♀️What a circular mess. Anyways after this he was always in al tight balance between enough prednisone to control the bullous pemphigoid, but not enough to cause his blood sugars to go out of control. I wish you and your mum some good fortune

    • @GenXfrom75
      @GenXfrom75 Місяць тому +1

      @@39houndsteps it took the Medical University of South Carolina about three months to diagnose, as it’s rare. And you’re the first person out of many comments on BP to actually know what it is. It’s been an awful journey. They also believe another prescription medication set off the bullous. She was put on Keppra for a bladder infection and it ALSO set off dementia… wild 😢

    • @GenXfrom75
      @GenXfrom75 Місяць тому +1

      @@39houndsteps and I’m so sorry about your dad. Nobody deserves this awful disease. Sorry for your loss , as well.

    • @fionascott3260
      @fionascott3260 28 днів тому +1

      @@GenXfrom75hello, I’m sure Debbie Harry’s partner Chris Stein had this in the late 80’s or 90’s it is a harsh and painful disease God bless 🙏❤️🙏

  • @maryannemaclean8079
    @maryannemaclean8079 Місяць тому +1

    The pain that man must suffer is horrible, I hope you at least have something for pain

  • @sarahmughal5615
    @sarahmughal5615 Місяць тому +1

    I hope he can get cured. I hope he gets to live a healthy life

  • @ea6102
    @ea6102 Місяць тому +1

    Im going through some horrible severe psoriasis right now... I can relate to this man but his is so much worse.skin diseases are horrible and people look at you like you're a monster. I really needed thie videos, treating people as people regardness of skin issues. The constant itching, burning, intense plaques and spots that look like the plague or something covering my entire body .. dealing with insurance... I have been too afraid to even leave my house becauae people just stare. Sorry for the rant but seeing someone being so compassionate to someone with a skin illness is making me emotional

  • @MrScaryPasta
    @MrScaryPasta Місяць тому

    Ooh. 😣 Ouch. That poor poor man. I hope they find a cure for this disease or a way to treat it and reduce the pain. 😢

  • @johnsweeney6072
    @johnsweeney6072 Місяць тому +2

    Tough guy 👍

  • @MermaidMakes
    @MermaidMakes Місяць тому

    I worked with someone who has this skin condition but not this severe. Her girlfriend was my supervisor. They were so cute, and my supervisor would help her get her jacket on and off every day, so it didn’t rub her the wrong way. So…you can have a fulfilling life. As Nightbird once put it “you don’t have to wait for life to get easier to do the things that make you happy”

  • @gabie4632
    @gabie4632 22 дні тому

    Tears running down my Face right now. I feel so sorry for him but i knew, that he didnt whant anyone to feel sorry for him.
    We have some Heros in this World and he is one of them...
    When you think you have a Bad life or that you look Ugly or some People makes you allways sad what ever... Think of this Man, what he can Say or do for his Life or Healt.. He has always Pain and other People didnt whant to be near with him because of how he looks.. I think, he has a Heard of Gold and a verry nice Soul. But he is Alone all the Time. And he Smiles..
    Hope he find real Friends and that he has a Good Life. He Diserve it! 💖💖
    Sry for my English!

  • @KingKyrool
    @KingKyrool Місяць тому +1

    Man everything i think and want to say would be controversial but ill say dear god this man is a trooper...

  • @lindahossler5539
    @lindahossler5539 2 місяці тому +2

    Heartbreaking 💔

  • @elisavalero9604
    @elisavalero9604 2 місяці тому +3

    How does a doctor say that the patient, a child then, would be better off dead??? Even if your quality of life is not adequate and your life expectancy is not very long, don't you have the right to spend time with your parents, breathe, and feel alive and happy when you wake up grateful to have another day with your family? How cruel the doctor is to say that.

    • @suespiria9574
      @suespiria9574 Місяць тому +1

      People with this condition are in constant pain. There is a video on youtube about a mean in Great Britain who had this and in his forties he decided not to have his skin cancer treated (patients with EB often develop skin cancer), effectively ending his life because "it was enough". He still cried from the pain when his mother changed his bandages, even though he lived with it all his life. I would not want my child to live with this agony.

    • @elisavalero9604
      @elisavalero9604 Місяць тому

      And what would you do if your child was born with this disease?@@suespiria9574

  • @caliluv4244
    @caliluv4244 2 місяці тому +3

    Poor fella.😞

  • @wrenbyrd1093
    @wrenbyrd1093 Місяць тому

    Wow, I’m glad that he can find a way to exercise and do things he likes. I’m wondering if he has trouble walking or lifting weights with his skin coming off, or does wrapping it up help enough?
    The corners of my mouth started cracking open years ago, and nothing would help but lip balm with parrafin as an ingredient. Could the parrafin wax that people dip their hands in and coat it help someone with this? Or would that cause more infection? It creates a barrier over the skin so I’m wondering how that would go? 🤔

  • @klutzykate123
    @klutzykate123 20 днів тому +1

    Such an evil disease, this is one of the worst, so sad for these innocent people 😢

  • @darlawittmier1793
    @darlawittmier1793 2 місяці тому +7

    Is there no cure or just supportive measures? Poor guy

    • @TinkSalsa
      @TinkSalsa 2 місяці тому +8

      Just supportive measures to help the skin heal blisters, like bandaging, and a high protein and calorie diet

    • @wrenbyrd1093
      @wrenbyrd1093 Місяць тому

      @@TinkSalsaI wonder if taking a collagen supplement helps? 🤔

  • @Cliff074
    @Cliff074 Місяць тому +1

    OMG, the poor guy! 😮😣😞

  • @josefinbjork1086
    @josefinbjork1086 Місяць тому

    He has the heart of a lion too be that strong and keep going like that i have exema and thats driving me nuts sometiomes cant even imagen what its like too live whit skin that constantly breaks

  • @fancydeer
    @fancydeer Місяць тому

    This guy is badass.

  • @marilynman
    @marilynman 2 місяці тому +1

    Isn't it possible to do skin transplants? Or new skin develops the same condition?

  • @jayceelopeezy2567
    @jayceelopeezy2567 24 дні тому

    Susie, can you please do a video on crooked nail?! 🙏🏼 my nails on my ring fingers & middle fingers are growing out to the left (from your view). Please 🙏🏼 help!!

  • @Sk0p3r420
    @Sk0p3r420 Місяць тому

    This really makes me appreciate that I don't have any condition of any kind.
    Disclaimer: This story isnt for the faint of heart: Since December I really appreciate life itself more than ever as I almost permanently died due to a severe combination of pneumonia, sepsis, gastritis which caused a bleeding tear in the lining of my stomach so I was losing a lot of blood to, had to get multiple blood infusions on top of the iv antibiotics I got 4-5 times a day and it was two different antibiotics I got (this actually turned my stool green and made me shed skin, a lot of skin and it was so dry. My finger tips, hands and feet became very sensitive because i lost the skin and had a pinkish color due to the fresh new skin underneath).
    The tear in the stomach made me throw up a lot of blood and some time later also defecating liquid blood which caused me to have lost a lot blood, thanks to that I also wasn't allowed to drink for the first day, the second day I was allowed to drink still water and few days later I was allowed to drink whatever, during that entire time and the time after the hospital I was only allowed to eat fluid meals like soup. Not that I could even drink w/o problem since due the pneumonia and sepsis my throat was so irritated and if just drank a small sip of water it would hurt like hell and burned for a few minutes after in my whole chest area, this caused another problem as during the time before I was admitted to hospital I was laying sick at home and wasn't able to drink really, as I said it was pure torture, due to that my kidneys started failing as well and I was on the verge of multiple organ failure and of course I was like 5"9feet in the grave at the point of admission.
    I had to be revived twice during my stay at the hospital since I went into septic shock and the blood loss + pneumonia caused my body a lot of stress which I probably wouldn't have survived if I wasn't this young and otherwise entirely . Before that all happened, around a week/week and a half I had just become covid negative and started back working but there I already was kinda short of breath and after two days a pain developed in my right shoulder. This then further developed into me getting as sick as i have never been before even calling the medics around christmas but they just claimed that it probably is just some strained muscle as well even though i was clearly confused and very weak. So then a day later I went to my doctor who first thought that it couldve been meningitis and sent me to a neurologist but luckily for me an internist also tested me which saved me tbh bc it was pneumonia + sepsis + gastritis + kidney failure.
    And you're probably wondering what I experienced while being revived and I'll be honest and scientific about it, so I just saw like glowing hands which kind of comforted me as they felt familiar but I attribute that whole experience to hallucinating bc my body probably sent out dmt at these moments and my brain was trying everything to survive

  • @kathrinsides2838
    @kathrinsides2838 Місяць тому

    OMFG. That looks incredibly painful. I’m less than 10 seconds into this video, and this is heartbreaking to me.

  • @user-zw6ud8tf8m
    @user-zw6ud8tf8m Місяць тому

    God bless

  • @kristagreen5961
    @kristagreen5961 Місяць тому

    Poor, poor man 😢😢😢😢

  • @fionascott3260
    @fionascott3260 28 днів тому

    There are three types of EB.
    I have the coding error on keratase 14, and present with EB simplex and my children have this too.
    It’s a horrible disease and a life of pain especially for EB distrophic or EB junctional.

  • @BlockedMind
    @BlockedMind Місяць тому

    Just out of curiosity, would a skin transplantation work?