Yep…going on maybe 3yrs of it being continuous in both calves. I get them all over, but in other areas like my finger muscles(thumb and index), sometimes the pecs, and muscles right above the knee. Those don’t last as long maybe a couple weeks here or there. These calves are EVERYDAY!!! It’s like it feels good to touch and follow to the source of the twitches but it’s annoying.
exactly the same for me. I get it all over have and have done for as long as I can remember but they stop after a week or 2. The calf and foot twitches are all day everyday for the last 2 years. I saw a specialist and he diagnosed Benign Fasciculation Syndrome.
I have to touch and follow the source myself. Once they start and they last for more than a few seconds I've got to watch them and then touch them for some reason
Same for me too. My right calf and both feet are going all the time and never stop. Do you get cramps too? I’m finding where I twitch I get lots of cramps.
I started getting these in my left leg mainly the calf (everyday) looks just like this. The leg in question has permanent nerve damage from a herniated disc, I also feel the herniated disc has deteriorated further (it was diagnosed 2 years ago, I had alcoholism problems and basically spent 90% of my time the last 2 years sat compacting my spine). Doctor isn't worried at all as fasciculations from herniated discs, especially when it's killing / severely damage the affected limb is extremely common. Unfortunately I was an idiot and doctor googled and big bad came up, spiralled me into insanity and I started getting twitching (nothing to this degree) everywhere. My guess is health anxiety / stress resulting in hyperstimulation / chronic stress disorder which can take months for the body to get back to normal. Also there is a link between benign fasciculation like this / from an injury that can cause it to go widespread, also not helped by stress. So I'm probably in for a very uncomfortable time for the rest of my life potentially... yay...
I was an alcoholic for 20 years and I've been getting this all over my body but really bad in my left calf. It's gotta be alcohol related or neuropathy... cause it can happen in my face too
Had this for 1 year. Started in left calf then to right and now a little in arms and back. Neurologist did EMG, MRI and bloods on CK. All negative and Benign is a word he used, but have to go back in 6 months just incase it isn’t. Annoying and painful at times but my worry on MND has finally abated. Started after a bad Covid infection, so my finger points to that. Not the vaccine - COVID!
@@spaceoddity54 yea still here - mostly calves and feet but get in hands, biceps and eyelids. Doctors don’t give a shit and neuro eliminated the most sinister for now. 2 years now.
@@garethdower9109 thanks for replying. Glad you are ok. I had the same tests done as yourself about 6 months ago. Still twitching every single day all over here and there with the occasional hotspot that can last weeks at a time. I twitch everywhere but the claves and feet are nonstop. It’s so annoying and difficult to just ignore as you always worry worse case. Did you ever go back for your six month check? I’m considering a second EMG now that’s it’s six months since the last. No lack of strength or atrophy that I am aware of.
In most spots it's harmless. But some, for example the middle inside of the calf, it goes really deep and stays pushed in for 3 seconds. And where the calf meets the ankle really sucks too.
I did some research on myself, I believe it can be the following reasons: 1. Prolonged sitting - can cause nerve compression and irritates the tibial & sciatic nerves. (Especially if you are overweight). 2. Bad sitting posture - L4 -> S3 nerve compressions -> can also lead to nerve irritation. keep these nerves neutral when sitting. 3. Electrolyte deficiencies. * Stress & Too much caffeine is making it worse.
May be it is Issacs syndrome... I found several article about this and they called this phenomena as excess peripheral nerve irritation similar to Issacs syndrome.. Is it true?
Same reason for me lol can also be chased by lightly dragging your finger across your skin guessing a scare trigger making my leg twitch stitch ill stop doing and not enough electric lights or sitting in the worst position sleeping or awake is no stranger to me thanks for helping 😂
Taking enough magnesium glycinate has just about cured this for me. I also drink Keto Chow Daily Minerals in 2 liters of water along with 1 1/2 teaspoons of pink salt every day. I seem to need extra electrolytes no matter what my diet is.
@@GBadventure possibly. It may be a combination of things. I used magnesium glycinate along with drinking salt for years but things didn't really click until I upped the magnesium dose and introduced Keto Chow Daily Minerals to the daily mix.
I've had constant and I mean constant 24/7 calf twitching for almost 40 years. I'm 52 and I remember having this since I was a teenager. How much magnesium glycinate do you take each day?
I also have had this for 5 years. Some months are worse than others. Some months it’s seems to disappear completely. It will go to any muscle in my body.
Ever have an MRI to check your lower back for punched nerves? I've had this off and on for 7 years. One doc said it's from a pinched nerve in my lower back. Others said it was just BFS. Left quad. Both calves.
Do you still get them? I started 4 weeks ago in my left calve then a week later the other one, then my feet and now it's 24/7, sering a neurologist tomorrow
I have had fasciculations in both claves with chronically elevated levels of CPK, creatinine, ferritin… for more than 15 y. Recently, fasciculations extended to other parts of my body (upper legs, back, arms …) and I was diagnosed a neuropathy. Still looking for the exact disease… no loss of weight but a lot of muscle and joint pain. Looking for people with similar symptômes.
I'm sorry you're experiencing this. Ive had fasciculations since late 2021, interestingly I have raised ferritin also but low transferrin sat and Serum Iron, no cause has yet been found in my case either
@@spaceoddity54 I’ve been investigating my health issues extensively and recently got diagnosed with two autoimmune diseases: Hashimoto's (though my hormone levels are still within a good range, so no major concerns) and Gougerot-Sjögren (causing dry eyes and mouth). However, I don't think these conditions are directly related to my main problems. In my opinion, they might be a result of chronic inflammation. I've consulted with internists, muscle specialists, and more. But when they see me in relatively good muscular shape, they seem to dismiss the idea of muscle issues-even though I experience significant fasciculations, which they often deny are present. A new electromyogram contradicted a previous one, showing no clear signs of neuropathy. The root cause could be linked to my back issues: severely degenerated intervertebral discs and now, it seems, spinal stenosis. This might explain the muscle atrophy in one of my calves, but I'm not entirely convinced by this theory. I can only manage the pain with daily Voltaren; without it, it's unbearable. Personally, I feel my symptoms resemble rheumatoid arthritis, even though the typical markers aren't present. I believe not all rheumatoid arthritis cases are linked to the same genetic mutation, so I’m still searching for answers. I’m happy to share my experience and connect with others facing similar challenges. I’ve tried various approaches, including modifying my diet (even attempting a carnivore diet), but haven't noticed any significant improvement. Currently, I’m trying magnesium to help with the widespread fasciculations, but after a week, there’s no improvement yet. I’m staying motivated and committed to finding a solution. Wishing everyone facing similar battles courage and strength.
@@Oxynium yea exactly the same. My calves go constantly, mostly smaller twitches but sometimes bigger. I do get twitching in other places too but it’s mostly random and goes off. How long have you been twitching for?
@@spaceoddity54 For a long time, 10+ years. In my case it might be an issue with nerves, I've already had a spinal disc surgery beacuse it was colliding with S1 nerves. I had calves twitches before the surgery (3yrs ago) and I still have them. I am trying to supplement magnesium and calcium, so far to no effect.
@@Oxynium I’ve got some lower back disc degeneration but apparently not touching the nerves. I still sometimes wonder if some inflammation is causing the issue but the neurologist doesn’t believe so. I’ve been twitching for about 9 months now. Started with just eye twitching, then all over random twitching. I noticed about 7 months ago my calves were constantly twitching along with my feet. Had all the relevant tests done i.e. MRI, blood work, EMG and nerve conduction study and they told me it was benign fasciculations. It’s not too bad if you can keep your mind off of it but I’ve had some pretty troubling times with this mentally as I’m sure many have. I’m also taking vitamin B, D and magnesium supplements and like yourself so far no difference.
I have ALS and fasciculations were my first visible symptoms. They are often nothing to worry about but they can also be a sign of something devastating
@@ЯрославРоманюк-ю9т good question that is extremely difficult to answer. Probably, and this is a guess… about a year. I was diagnosed on July 14, 2020 but probably had it at least a year or longer before I really noticed weakness. Another early symptom for me was balance. I started washing my hair with one hand on the shower wall because the slight floor drain grade of my shower was throwing my balance off. I didn’t know what it meant until I started looking back and things started to make sense. Fatigue was also big. I could only last 1/2 as long as I once did in my yard but blamed it on getting older and being out of shape.
@@lovemytide45 thank you for answer,sorry if it i disturbing with those questions.What about location,fasciculation when started was in one zone(arm,leg),or symetrical on both legs/arms?
@@ЯрославРоманюк-ю9т Ask as many questions as you like. I’m a national ambassador for ALS and I actually enjoy talking about it . Mine started in my calves. Left calf specifically. I can’t remember how long before I noticed my fasciculations moving to different areas of my body. I actually thought it was an electrolyte imbalance so I loaded up on potassium because I had not been diagnosed yet. However, ALS can show up in different areas such as arms or neck. Neck is called bulbar onset and it usually progresses faster than others. I’m going to post my story here 👇. I have it saved in my notes and hopefully it will transfer over. There have been some questions about my symptoms and onset. I am typing this in my notes on my iPad and hopefully it will copy/ paste over. Here is part of my story I want to point out that there is NO test to determine ALS. ALS is diagnosed by ruling everything else out so time is crucial. Only 10% of ALS patients are in a clinical trial. First noticeable symptoms The slight grade on the shower floor was throwing me off balance so I would wash my hair with one hand on the wall. Fatigue. I used to spend 6 hours in my yard and I started to last only 3. My gait was off and I slapped my feet when I walked … hindsight, known as Left Foot Drop My legs always felt full of blood. Like they we going to explode after a long day in the gym. Hindsight- my body was incorporating muscles not intended for the heavy lifting of walking which resulted in them being over exerted and full of blood. My wife is a Nurse Practitioner and connected all the dots. She got me in to see a neurologist ASAP. They did an EMG which is a test where they stick passive listening devices into your muscles at various points and listen to the sound of your muscles communicating. EMG has been around a long time. Yes, it hurts like hell…especially when they rammed the probe through the soft tissue under my chin in order to listen to my tongue. They also do a nerve conduction test where they shoot low voltage pulses into your muscles to test the communication between your nerves and muscles… yes, it hurts like hell too. After I was diagnosed locally, me, my wife and my sister drove from Alabama to the Mayo Clinic in Rochester, MN for a confirmation diagnosis. Great facility. Once confirmed we shifted into Clinical Trial mode. I got into a trial at Mass General Hospital in Boston. In my opinion, Mass General has the best neurologist in the world. My wife and I flew from Alabama and stayed in Boston for 5 days a month for 2 years. I received over 35 spinal taps with an experimental drug that has recently been FDA approved. UNFORTUNATELY, I developed severe side effects that were killing me faster than my disease so I had to pull out… after 2 years. It sucked but that’s what clinical trials are for. I am currently on a regimen of newer versions of older drugs until I can get into another trial which is a long shot because my lung function is declining due to my ALS. You must have a certain lung function to qualify for many trials. I am ALWAYS searching for new clinical trials that I can apply for.
Ive had this for a year. Never in my life except for cramping from sports. But seems like ive had weird symptoms post covid vaccine and covid. What scares me most is ALS but from what i keep seeing is benign syndromes and electrolyte deficiency. Hope it gets better!
Mine started in the lower limbs around the time I took my last covid vaccine, (the Moderna one). I've since been diagnosed with Benign Fasciculation Syndrome. As the other reply said, if you don't have muscle waste you can dismiss ALS/MND. (That is what the specialist told me)
My grandfather had ALS so it's a worry, bc I feel like I have more muscle twitching than the average person. I don't think my grandfather had a lot of muscle twitching, though beforehand until he developed it.. Probably lack of sleep and too much caffeine contribute heavily to my twitching.
I have this now. Comes with kinking, numbness, and others symptoms. Mine started after coming off Lyrica or a Pfizer Covid shot. Really sucks as my sleep is effected as well. No my covid shots for me.
@@tomspeed3354 crap.....I started Gabapentin a few months ago to calm it down....not working that well, I hope coming off does not cause issues. Mine is due to a pinched nerve(s) somewhere outside my spine.
@@tomspeed3354Yeah but I've had this issue before I ever started taking gabapentin. Maybe it's making it worse though. Drugs are just terrible for your brain period. I'm getting off em
These are not necessarily benign long term and are generally indicative of a mild to moderate nutrient deficiency (typically a vitamin/mineral). Do yourself a favor and get a micronutrient test. Some preliminary you should ask your provider to run (Mg RBC (not serum, unless you run both together. RBC is a more sensitive Mg test. Mg tests are poor preventative markers and don't really show anything helpful until the body is actually in trouble due to where the majority of Mg is stored in the body). Vitamin D 25 OH, *NOT the 1,25.* Tell Dr DO NOT code VIt D as routine, but as a followup for symptoms of possible deficiency, otherwise INS won't cover and it's ridiculously expensive for just one vitamin when ordered as _routine_. Of Course run a standard CMP. A CMP will pull your general labs like your Sodium, Potassium, and Calcium levels. These are the primary labs anyone should run first, and generally, one or a combination of these nutrients are deficient and are the issue. B Vitamins can also play a role if those primary minerals or Vit D not the issue and should be checked as well. These Vitamins/Minerals can lead to more dangerous symptoms if left unchecked and so ruling these out are a nice start to confirming a truly benign ruling rather than just an assumption, regardless if from a medical professional or not). Keep in mind, it hasn't always been there. The body doesn't just start doing things for no reason. It is trying to tell us something. What is the bigger question. Often times it's not a concerning condition, but that's no reason to ignore, since doing so only creates bigger issues, eventually. Best of Health to Everyone Reading This. May You Live, Long, Healthily, and Prosper.
What proof do you have of what your saying? Some large study done on this exact condition and that's what they found? I doubt it. Keep your know it all Comments to yourself. I've had this for 15 plus years, it never stops, ever. Ive been to multiple doctors and specialists none of them have ever said what you are saying. They all have said it's benign fasciculation syndrome. Which I never agreed with because benign fasciculation syndrome is like your eye twitches for a day then goes away. This is non stop
I have had these for about 6 years, also in other parts of the body. this is so frustrating. I have herniated discs but I don't know if they are related given I have them in other parts of my body. Mine happen almost all the time not just after training or running :(
@@bastawa same here pretty much. Twitches all over the place randomly but 24/7 in the calves and feet. So annoying. I’ve had it for about 3 months now.
@@spaceoddity54 welcome to the club. Btw. you can test vitamine d3, maybe you need to supplement it. In my case when my twitches were very bad I tested it and it was way below the healthy threshold. I do supplement it, but I still get fasciculations and random twitches, I don't get those more violent ones though. Good luck!
Ive had this for a year now its not dehydration . Had serious health issues and stress may be culprit . Its mostly in calves and at night when i lay down . No pain just irratating . Also getting restless leg syndrome at same time
Nobody in medical history has diagnosed this as a disease or disorder if it is thought to be benign.Fasciculations like this are NOT the casual twitches one gets day to day here and there because the local nerve is stimulated.For a start this happens symetrically so that rules that out, the twitching can running along a single nerve and they also come with lots of other symtoms, some life changing.You will not die of it but as you age you will find out that your stamina diminishes greatly.You MUST get an EMG with these symptoms because it can be caused by many other conditions that are not serious.
@@pavelhykl5063 I can yes, but along with the fascinations I have terrible pain in my leg that comes and goes randomly. My doctors still can’t figure it out.
My husband has the exact same thing and has had it for years before covid, to this day we still haven't figured out what it is and doctors haven't told them nothing they claimed it may be neuropathy but we're not sure
@@Oxynium yeah but a lot of people get this all over. Mainly in left calf but can happen anywhere in the body even in the face. Since it's all over the body it has to be neurological
@@spaceoddity54 The same. There are better days and worse days with fasciculations. These days with this extreme heat which is hitting Serbia, I am really anxious and everything is bothering me more than usually.
@@borisvujasinovic1860Ja sam iz BiH i isto tako prije ili poslije korone mi se ovo počelo događati kao tebi, vakcine nikakve nisam primao a vidim mnogo ljudi govori da im se ovo pojavilo otkako su fizera primili. Ne znam da li osjećaš facikulacije u drugim dijelovima tijela, tipa u prsima, vratu (nekada), stomaku, u predjelu ispod srca. Jer ja sam ignorirao trzanje u nogama jer sam mislio da je nedostatak magnezija, međutim samo se proširilo. Nekad ih nema nikako, ovisi o raspoloženju. Kada sam u stresu ili psihički preopterećen tu su. Ja sam mislio da je problem sa srcem jer je lupalo konstantno ispod lijeve strane rebara, međutim sad zna i sa desne, ali rijeđe. Čak i slušalice kad koristim kad sam duže na kompu lijevo uho mi malo trza. Nadam se da si dobro i ako možeš odgovoriti kako se osjećaš, pozdrav druže.
I’m just finding out what this is, I noticed this when I was 13 year old on both calf’s, I have never experienced pain with it at all it doesn’t effect me day to day. I’m 28 year old now is this condition something to worry about?
has anyone with Benign Fasciculation Syndrome nexperienced repeated muscle pulls/tears in thweir calfs when performing ballistic exercise? I started having BFS in my calfs and legs around 4-5 years ago, and so many times when I go for a run my calfs pull/ tear now and I have to stop. Doctors have no idea and have been largely useless. If anyone can provide any advice I would be massively grateful.
How are you doing now? I have twitching in both feet and my right calf constantly which want to cramp all the time too. I do get muscle tears also in my calf.
I have it all over my body my legs back arm even my tongue sometimes I can feel them in my ear even on my head.. it's bfs .. As long as you don't experience lost of muscle weekness don't stress over it you will learn to live with them I did been with them for 12 yrs .. Enjoy life don't stress over it the more you read about it the more you get scared .. Remember if u do see muscle decline do go get check with a neurologist .. My neurologist said I had nothing wrong but I researched my self made a conclusion of bfs..
Both of my calves are like this 24 hours a day for the last couple of years. Should I be worried? I also have trouble with my right hand - my thumb and index finger can’t move properly and are very weak. Everything else normal
Did you end up doing anything about your symptoms? Or did anyone tell you what might be going on? I think I am going through the same as you. My finger and thumbs don't work together. I struggle to do things like zip a zip lock bag closed or tweezing my eyebrows. If I close more then a couple ziploc bags, my pointer and thumb are tremouring like crazy. Along with Weakness. I have never heard of anyone dealing with what I am. What do your hands do?
@@definitelystephanie614 hi there. Yes my GP initially thought it was carpel tunnel syndrome but it wasn’t as no loss of sensation. Then got referred to a neurologist in October who said it’s likely MND/ALS. Since then I’ve had electrical studies, EMG. I’m getting an MRI of head neck and chest next week. I’ve also had immunoglobulin treatment in case it was MMN. It wasn’t. Still not got a diagnosis. Seeing the neurologist again in summer 2023. Hope all is well with you
@isyt thank you very much for the fast response!!! Wow it sounds like they are trying to figure it out for you! Do you mind me asking? Are you in Canada or USA? Or somewhere else possibly? I am in Canada and I am struggling to get the care that it sounds like you are getting, free Healthcare though, so that's its own issues. So far I have received just the emg, nerve conduction test, and those came back normal. Anyways. I am at the very beginning stages of my symptoms, but they sound very simular to yours. How old are you? I am 34. Do you have a tremors in your hands at all? Or just weak?
@@definitelystephanie614 Hi. I’m in the UK (Scotland) so healthcare is free but very slow. In my mid 40s. Not got any tremors. The neurologist said it’s a case of ruling everything out to get a diagnosis as opposed to most conditions that you can rule-in if that makes sense. The scans are to see if there’s any compressed nerves that could be causing it or to see if there’s any other conditions that could mimic it I think (like MS, brain tumours i guess but not sure). I’ve had a slipped disc in my lower back for ten years so I assumed that was causing the calf twitches and I guess it still could be. I don’t see the consultant again until June which is annoying just waiting about wondering if I have MND/ALS. I think they need to see some progression to get a diagnosis. I’ve noticed in the last few days the rest of my hand seems a bit weaker but I’m not sure. Anyway hope you’re ok 👍🏻
@@robbhammel8279 I do have fasciculations in both of my calves 24/7 and sometimes in my feet. It usually effects my left side. But I've found cutting caffeine, staying hydrated with a good diet, and working on stress/anxiety relief has cut it way back. But sometimes they can be really noticable. Usually after being active or on my feet all day. But I haven't gotten it checked yet
@@philliplawton1421 same, but now over a year and very noticeable in feet and calf muscles. Nothing helped and every single medical is clean. But this is not benign for sure, it has to do with some autoimmune condition
Yep…going on maybe 3yrs of it being continuous in both calves. I get them all over, but in other areas like my finger muscles(thumb and index), sometimes the pecs, and muscles right above the knee. Those don’t last as long maybe a couple weeks here or there. These calves are EVERYDAY!!! It’s like it feels good to touch and follow to the source of the twitches but it’s annoying.
exactly the same for me. I get it all over have and have done for as long as I can remember but they stop after a week or 2. The calf and foot twitches are all day everyday for the last 2 years. I saw a specialist and he diagnosed Benign Fasciculation Syndrome.
I have this in both calves. It started around 3 months ago. I'm waiting to see a specialist
I have to touch and follow the source myself. Once they start and they last for more than a few seconds I've got to watch them and then touch them for some reason
@@Westerddsame here. Both feet and my right calf are going constantly and never stop. It’s so annoying. How are you doing now?
Same for me too. My right calf and both feet are going all the time and never stop. Do you get cramps too? I’m finding where I twitch I get lots of cramps.
I started getting these in my left leg mainly the calf (everyday) looks just like this. The leg in question has permanent nerve damage from a herniated disc, I also feel the herniated disc has deteriorated further (it was diagnosed 2 years ago, I had alcoholism problems and basically spent 90% of my time the last 2 years sat compacting my spine).
Doctor isn't worried at all as fasciculations from herniated discs, especially when it's killing / severely damage the affected limb is extremely common.
Unfortunately I was an idiot and doctor googled and big bad came up, spiralled me into insanity and I started getting twitching (nothing to this degree) everywhere. My guess is health anxiety / stress resulting in hyperstimulation / chronic stress disorder which can take months for the body to get back to normal.
Also there is a link between benign fasciculation like this / from an injury that can cause it to go widespread, also not helped by stress. So I'm probably in for a very uncomfortable time for the rest of my life potentially... yay...
How are you doing now? I get this too in my calves 24/7.
I was an alcoholic for 20 years and I've been getting this all over my body but really bad in my left calf. It's gotta be alcohol related or neuropathy... cause it can happen in my face too
Have you had any problems swallowing?
Had this for 1 year. Started in left calf then to right and now a little in arms and back.
Neurologist did EMG, MRI and bloods on CK. All negative and Benign is a word he used, but have to go back in 6 months just incase it isn’t.
Annoying and painful at times but my worry on MND has finally abated.
Started after a bad Covid infection, so my finger points to that. Not the vaccine - COVID!
Do you still have the calf twitching ? Is it 24/7 ?
Yes non stop…letting go of the worry. No loss of strength, no atrophy after 16 months. Hoping its 100% benign
How are you doing now? I have this 24/7 and have done so for many months now in both calves.
@@spaceoddity54 yea still here - mostly calves and feet but get in hands, biceps and eyelids. Doctors don’t give a shit and neuro eliminated the most sinister for now. 2 years now.
@@garethdower9109 thanks for replying. Glad you are ok. I had the same tests done as yourself about 6 months ago. Still twitching every single day all over here and there with the occasional hotspot that can last weeks at a time. I twitch everywhere but the claves and feet are nonstop. It’s so annoying and difficult to just ignore as you always worry worse case. Did you ever go back for your six month check? I’m considering a second EMG now that’s it’s six months since the last. No lack of strength or atrophy that I am aware of.
In most spots it's harmless. But some, for example the middle inside of the calf, it goes really deep and stays pushed in for 3 seconds. And where the calf meets the ankle really sucks too.
I did some research on myself,
I believe it can be the following reasons:
1. Prolonged sitting - can cause nerve compression and irritates the tibial & sciatic nerves. (Especially if you are overweight).
2. Bad sitting posture - L4 -> S3 nerve compressions -> can also lead to nerve irritation. keep these nerves neutral when sitting.
3. Electrolyte deficiencies.
* Stress & Too much caffeine is making it worse.
May be it is Issacs syndrome... I found several article about this and they called this phenomena as excess peripheral nerve irritation similar to Issacs syndrome.. Is it true?
You are right Bro.. it's True..
Same reason for me lol can also be chased by lightly dragging your finger across your skin guessing a scare trigger making my leg twitch stitch ill stop doing and not enough electric lights or sitting in the worst position sleeping or awake is no stranger to me thanks for helping 😂
wow my ass hurts extremly and after a few weeks my bfs started to kick in... maybe it's connected??
Do they only appear during the exercise or do you always have them?
Taking enough magnesium glycinate has just about cured this for me. I also drink Keto Chow Daily Minerals in 2 liters of water along with 1 1/2 teaspoons of pink salt every day. I seem to need extra electrolytes no matter what my diet is.
Enough salt is solution???
@@GBadventure possibly. It may be a combination of things. I used magnesium glycinate along with drinking salt for years but things didn't really click until I upped the magnesium dose and introduced Keto Chow Daily Minerals to the daily mix.
I've had constant and I mean constant 24/7 calf twitching for almost 40 years. I'm 52 and I remember having this since I was a teenager. How much magnesium glycinate do you take each day?
@@texasnative I'd be interested as well
@@briangallagher6624 hello
Had this for 5 years, when I’m stressed or exhausted it’s much worse.
I also have had this for 5 years. Some months are worse than others. Some months it’s seems to disappear completely. It will go to any muscle in my body.
i've had this for 3 months now... looks like in this for a long hole. i guess as long as it's not serious, gonna have to live with it
@@osmanisildak2448are you still getting them? Mine started three months ago.
I have had a less severe version of this my whole life i dont think its an issue
Ever have an MRI to check your lower back for punched nerves? I've had this off and on for 7 years. One doc said it's from a pinched nerve in my lower back. Others said it was just BFS. Left quad. Both calves.
Do you get them in other areas as well?
@@brentpope100 yes but very rarely. Almost never. But I have had them in hamstring, upper back, triceps.
@@brentpope100 how about you?
Do you still get them? I started 4 weeks ago in my left calve then a week later the other one, then my feet and now it's 24/7, sering a neurologist tomorrow
@@jonathonhoggarth6473 I sure do! Off and on.
I have had fasciculations in both claves with chronically elevated levels of CPK, creatinine, ferritin… for more than 15 y. Recently, fasciculations extended to other parts of my body (upper legs, back, arms …) and I was diagnosed a neuropathy. Still looking for the exact disease… no loss of weight but a lot of muscle and joint pain. Looking for people with similar symptômes.
How are you doing now? I have constant twitching in my calves.
I'm sorry you're experiencing this. Ive had fasciculations since late 2021, interestingly I have raised ferritin also but low transferrin sat and Serum Iron, no cause has yet been found in my case either
I also get the muscle pain and joint pain
Bonjour où en êtes vous aujourd'hui ?
J'ai également des fasciculation depuis 1 an maintenant, des douleurs articulations et musculaire
@@spaceoddity54 I’ve been investigating my health issues extensively and recently got diagnosed with two autoimmune diseases: Hashimoto's (though my hormone levels are still within a good range, so no major concerns) and Gougerot-Sjögren (causing dry eyes and mouth). However, I don't think these conditions are directly related to my main problems. In my opinion, they might be a result of chronic inflammation.
I've consulted with internists, muscle specialists, and more. But when they see me in relatively good muscular shape, they seem to dismiss the idea of muscle issues-even though I experience significant fasciculations, which they often deny are present. A new electromyogram contradicted a previous one, showing no clear signs of neuropathy.
The root cause could be linked to my back issues: severely degenerated intervertebral discs and now, it seems, spinal stenosis. This might explain the muscle atrophy in one of my calves, but I'm not entirely convinced by this theory. I can only manage the pain with daily Voltaren; without it, it's unbearable.
Personally, I feel my symptoms resemble rheumatoid arthritis, even though the typical markers aren't present. I believe not all rheumatoid arthritis cases are linked to the same genetic mutation, so I’m still searching for answers.
I’m happy to share my experience and connect with others facing similar challenges. I’ve tried various approaches, including modifying my diet (even attempting a carnivore diet), but haven't noticed any significant improvement. Currently, I’m trying magnesium to help with the widespread fasciculations, but after a week, there’s no improvement yet. I’m staying motivated and committed to finding a solution.
Wishing everyone facing similar battles courage and strength.
Myofascial Release will calm this condition. It will need to be done regularly, but things will improve.
I have had this for 18 years.
Do you still get it now? I have it 24/7.
@@spaceoddity54me too, doesn't matter if I'm tired after work or just woke up. Sometimes they're smaller sometimes larger, on both sides.
@@Oxynium yea exactly the same. My calves go constantly, mostly smaller twitches but sometimes bigger. I do get twitching in other places too but it’s mostly random and goes off. How long have you been twitching for?
@@spaceoddity54 For a long time, 10+ years. In my case it might be an issue with nerves, I've already had a spinal disc surgery beacuse it was colliding with S1 nerves.
I had calves twitches before the surgery (3yrs ago) and I still have them.
I am trying to supplement magnesium and calcium, so far to no effect.
@@Oxynium I’ve got some lower back disc degeneration but apparently not touching the nerves. I still sometimes wonder if some inflammation is causing the issue but the neurologist doesn’t believe so. I’ve been twitching for about 9 months now. Started with just eye twitching, then all over random twitching. I noticed about 7 months ago my calves were constantly twitching along with my feet. Had all the relevant tests done i.e. MRI, blood work, EMG and nerve conduction study and they told me it was benign fasciculations. It’s not too bad if you can keep your mind off of it but I’ve had some pretty troubling times with this mentally as I’m sure many have. I’m also taking vitamin B, D and magnesium supplements and like yourself so far no difference.
I have ALS and fasciculations were my first visible symptoms. They are often nothing to worry about but they can also be a sign of something devastating
How long it takes from start of fasciculations to weakness?
@@ЯрославРоманюк-ю9т good question that is extremely difficult to answer. Probably, and this is a guess… about a year. I was diagnosed on July 14, 2020 but probably had it at least a year or longer before I really noticed weakness. Another early symptom for me was balance. I started washing my hair with one hand on the shower wall because the slight floor drain grade of my shower was throwing my balance off. I didn’t know what it meant until I started looking back and things started to make sense. Fatigue was also big. I could only last 1/2 as long as I once did in my yard but blamed it on getting older and being out of shape.
@@lovemytide45 thank you for answer,sorry if it i disturbing with those questions.What about location,fasciculation when started was in one zone(arm,leg),or symetrical on both legs/arms?
@@ЯрославРоманюк-ю9т Ask as many questions as you like. I’m a national ambassador for ALS and I actually enjoy talking about it . Mine started in my calves. Left calf specifically. I can’t remember how long before I noticed my fasciculations moving to different areas of my body. I actually thought it was an electrolyte imbalance so I loaded up on potassium because I had not been diagnosed yet. However, ALS can show up in different areas such as arms or neck. Neck is called bulbar onset and it usually progresses faster than others. I’m going to post my story here 👇. I have it saved in my notes and hopefully it will transfer over.
There have been some questions about my symptoms and onset. I am typing this in my notes on my iPad and hopefully it will copy/ paste over. Here is part of my story
I want to point out that there is NO test to determine ALS. ALS is diagnosed by ruling everything else out so time is crucial. Only 10% of ALS patients are in a clinical trial.
First noticeable symptoms
The slight grade on the shower floor was throwing me off balance so I would wash my hair with one hand on the wall.
Fatigue. I used to spend 6 hours in my yard and I started to last only 3.
My gait was off and I slapped my feet when I walked … hindsight, known as Left Foot Drop
My legs always felt full of blood. Like they we going to explode after a long day in the gym. Hindsight- my body was incorporating muscles not intended for the heavy lifting of walking which resulted in them being over exerted and full of blood.
My wife is a Nurse Practitioner and connected all the dots. She got me in to see a neurologist ASAP. They did an EMG which is a test where they stick passive listening devices into your muscles at various points and listen to the sound of your muscles communicating. EMG has been around a long time. Yes, it hurts like hell…especially when they rammed the probe through the soft tissue under my chin in order to listen to my tongue. They also do a nerve conduction test where they shoot low voltage pulses into your muscles to test the communication between your nerves and muscles… yes, it hurts like hell too.
After I was diagnosed locally, me, my wife and my sister drove from Alabama to the Mayo Clinic in Rochester, MN for a confirmation diagnosis. Great facility. Once confirmed we shifted into Clinical Trial mode. I got into a trial at Mass General Hospital in Boston. In my opinion, Mass General has the best neurologist in the world. My wife and I flew from Alabama and stayed in Boston for 5 days a month for 2 years. I received over 35 spinal taps with an experimental drug that has recently been FDA approved. UNFORTUNATELY, I developed severe side effects that were killing me faster than my disease so I had to pull out… after 2 years. It sucked but that’s what clinical trials are for.
I am currently on a regimen of newer versions of older drugs until I can get into another trial which is a long shot because my lung function is declining due to my ALS. You must have a certain lung function to qualify for many trials. I am ALWAYS searching for new clinical trials that I can apply for.
Where it is started? All over the body or a leg... arm...?
do you still get these everyday
You got the bubbly ones instead of the stretching ones that contract
Are your calf’s still twitching? Mine have been for 2 years
Same. Both calfs twitching 24/7. Go in for an emg tommorow.
@@wamq29 results?
@@wamq29any update? How are you doing now?
@@LouisPoletti EMG was good. been 2 years now. still have them constant. Looks to be an effect from Covid
@@spaceoddity54 2 years now. Still have them, Think its from Covid, have twitchs all over. some days worse than others.
Ive had this for a year. Never in my life except for cramping from sports. But seems like ive had weird symptoms post covid vaccine and covid. What scares me most is ALS but from what i keep seeing is benign syndromes and electrolyte deficiency. Hope it gets better!
If it was ALS itd be nearly constant and you'd have noticeable muscle wastage. You'll be fine :)
Mine started in the lower limbs around the time I took my last covid vaccine, (the Moderna one). I've since been diagnosed with Benign Fasciculation Syndrome. As the other reply said, if you don't have muscle waste you can dismiss ALS/MND. (That is what the specialist told me)
My grandfather had ALS so it's a worry, bc I feel like I have more muscle twitching than the average person. I don't think my grandfather had a lot of muscle twitching, though beforehand until he developed it.. Probably lack of sleep and too much caffeine contribute heavily to my twitching.
So I have this 24/7 , stops when I'm flexing my legs or moving around
Do you still get it?
@spaceoddity54 yup lol still walk normally
@@Nonkjjjjj annoying isn’t it. I’ve been getting it too 24/7 for 3 months in both feet and right calf. How long you had it for?
@spaceoddity54 I'd say from senior year till now and I'm 30
I have this now. Comes with kinking, numbness, and others symptoms. Mine started after coming off Lyrica or a Pfizer Covid shot. Really sucks as my sleep is effected as well. No my covid shots for me.
Strange I was on Lyrica for numb chin then stopped and after a morphine iv my fasciculations started in my calf now full-body.
Check out video on my channel, I was diagnosed with benign fasciculation syndrome
same but from gabapentin….
@@tomspeed3354 crap.....I started Gabapentin a few months ago to calm it down....not working that well, I hope coming off does not cause issues. Mine is due to a pinched nerve(s) somewhere outside my spine.
@@tomspeed3354Yeah but I've had this issue before I ever started taking gabapentin. Maybe it's making it worse though. Drugs are just terrible for your brain period. I'm getting off em
i have the same, do you also experience pain?
I have the same after Pfizer shot unfortunately
Check out video on my channel, I was diagnosed with benign fasciculation syndrome
Nice. I have experienced this before as well.
Dr. Brandon any resolution?
@@KennyGuyte I don't get them very often.
@@DrBrandonBeaber I understand, contrary for me this is my 6th day and them are constant unless I walk or place the other leg over the other.
Check out video on my channel, I was diagnosed with benign fasciculation syndrome
These are not necessarily benign long term and are generally indicative of a mild to moderate nutrient deficiency (typically a vitamin/mineral). Do yourself a favor and get a micronutrient test. Some preliminary you should ask your provider to run (Mg RBC (not serum, unless you run both together. RBC is a more sensitive Mg test. Mg tests are poor preventative markers and don't really show anything helpful until the body is actually in trouble due to where the majority of Mg is stored in the body). Vitamin D 25 OH, *NOT the 1,25.* Tell Dr DO NOT code VIt D as routine, but as a followup for symptoms of possible deficiency, otherwise INS won't cover and it's ridiculously expensive for just one vitamin when ordered as _routine_. Of Course run a standard CMP. A CMP will pull your general labs like your Sodium, Potassium, and Calcium levels. These are the primary labs anyone should run first, and generally, one or a combination of these nutrients are deficient and are the issue. B Vitamins can also play a role if those primary minerals or Vit D not the issue and should be checked as well. These Vitamins/Minerals can lead to more dangerous symptoms if left unchecked and so ruling these out are a nice start to confirming a truly benign ruling rather than just an assumption, regardless if from a medical professional or not).
Keep in mind, it hasn't always been there. The body doesn't just start doing things for no reason. It is trying to tell us something. What is the bigger question. Often times it's not a concerning condition, but that's no reason to ignore, since doing so only creates bigger issues, eventually. Best of Health to Everyone Reading This. May You Live, Long, Healthily, and Prosper.
What proof do you have of what your saying? Some large study done on this exact condition and that's what they found? I doubt it. Keep your know it all Comments to yourself. I've had this for 15 plus years, it never stops, ever. Ive been to multiple doctors and specialists none of them have ever said what you are saying. They all have said it's benign fasciculation syndrome. Which I never agreed with because benign fasciculation syndrome is like your eye twitches for a day then goes away. This is non stop
I have had these for about 6 years, also in other parts of the body. this is so frustrating. I have herniated discs but I don't know if they are related given I have them in other parts of my body. Mine happen almost all the time not just after training or running :(
It’s annoying isn’t it. I have this in the arches of my feet and right calf constantly. Do you get it 24/7 too?
@@spaceoddity54 yeah I have them almost 24/7. also a lot of twitches in other parts of my body. I hate it.
@@bastawa same here pretty much. Twitches all over the place randomly but 24/7 in the calves and feet. So annoying. I’ve had it for about 3 months now.
@@spaceoddity54 welcome to the club. Btw. you can test vitamine d3, maybe you need to supplement it. In my case when my twitches were very bad I tested it and it was way below the healthy threshold. I do supplement it, but I still get fasciculations and random twitches, I don't get those more violent ones though. Good luck!
Ive had this for a year now its not dehydration . Had serious health issues and stress may be culprit . Its mostly in calves and at night when i lay down . No pain just irratating . Also getting restless leg syndrome at same time
Same here in the calves and feet. I find they want to cramp a lot too.
Mine are a little more intense. 24/7/365 for 4 years now
How are you doing now? Still get them? I have them 24/7 too in calves.
@@spaceoddity54 - They still go 24/7. They seem to have decreased in intensity lately.
Nobody in medical history has diagnosed this as a disease or disorder if it is thought to be benign.Fasciculations like this are NOT the casual twitches one gets day to day here and there because the local nerve is stimulated.For a start this happens symetrically so that rules that out, the twitching can running along a single nerve and they also come with lots of other symtoms, some life changing.You will not die of it but as you age you will find out that your stamina diminishes greatly.You MUST get an EMG with these symptoms because it can be caused by many other conditions that are not serious.
Is bfs classed as a functional neurological disorder?
Not really. It’s a diagnosis by elimination.
What causes this?
Could be many reasons: sleep apnea, overactive thyroid and abnormal levels of calcium and phosphorus in blood
Long Rabit hole of reasons.
corona
Oh my God. I'm so sorry for you.
Bonjour avez vous toujours ces fasciculation
This has been happening to me going on 2 years now. It’s so frustrating.
can you run with that without any other consequences like calf strain.....?
@@pavelhykl5063 I can yes, but along with the fascinations I have terrible pain in my leg that comes and goes randomly. My doctors still can’t figure it out.
@@anthonylopez7942 mine all started six weeks after covid
@@anthonylopez7942 you tried getting an mri or an emg?
My husband has the exact same thing and has had it for years before covid, to this day we still haven't figured out what it is and doctors haven't told them nothing they claimed it may be neuropathy but we're not sure
I have twitching like this on both sides, in my case most likely the cause is spinal disc bulging out and irritating the nerves.
@@Oxynium yeah but a lot of people get this all over. Mainly in left calf but can happen anywhere in the body even in the face. Since it's all over the body it has to be neurological
Identically. Have had it for almost at least six years.
How are you doing now? I get this 24/7 and it’s driving me crazy.
@@spaceoddity54 The same. There are better days and worse days with fasciculations. These days with this extreme heat which is hitting Serbia, I am really anxious and everything is bothering me more than usually.
@@borisvujasinovic1860Ja sam iz BiH i isto tako prije ili poslije korone mi se ovo počelo događati kao tebi, vakcine nikakve nisam primao a vidim mnogo ljudi govori da im se ovo pojavilo otkako su fizera primili. Ne znam da li osjećaš facikulacije u drugim dijelovima tijela, tipa u prsima, vratu (nekada), stomaku, u predjelu ispod srca. Jer ja sam ignorirao trzanje u nogama jer sam mislio da je nedostatak magnezija, međutim samo se proširilo. Nekad ih nema nikako, ovisi o raspoloženju. Kada sam u stresu ili psihički preopterećen tu su. Ja sam mislio da je problem sa srcem jer je lupalo konstantno ispod lijeve strane rebara, međutim sad zna i sa desne, ali rijeđe. Čak i slušalice kad koristim kad sam duže na kompu lijevo uho mi malo trza. Nadam se da si dobro i ako možeš odgovoriti kako se osjećaš, pozdrav druže.
I have for 4 years.
Do you still get it? Is it constant?
I’m just finding out what this is, I noticed this when I was 13 year old on both calf’s, I have never experienced pain with it at all it doesn’t effect me day to day. I’m 28 year old now is this condition something to worry about?
Nope. It’s completely benign, I’m 28 and started around 13 too.
Check out video on my channel, I was diagnosed with benign fasciculation syndrome
Maybe, I will make my own video with my fasciculations on the calves, too.
Check out video on my channel, I was diagnosed with benign fasciculation syndrome
My own video has been just uploaded: ua-cam.com/video/aPIpB73C0so/v-deo.html
has anyone with Benign Fasciculation Syndrome nexperienced repeated muscle pulls/tears in thweir calfs when performing ballistic exercise? I started having BFS in my calfs and legs around 4-5 years ago, and so many times when I go for a run my calfs pull/ tear now and I have to stop. Doctors have no idea and have been largely useless. If anyone can provide any advice I would be massively grateful.
This sounds like me for the past few years unfortunately
How are you doing now? I have twitching in both feet and my right calf constantly which want to cramp all the time too. I do get muscle tears also in my calf.
Mine happens all over my body after I received a nerve block before surgery
I have the same for about 6 months .... constantly
I have had muscle fasciculation for about 5 months, it can happen anywhere on my body, it goes away and comes back,
How are you now?
I have it all over my body my legs back arm even my tongue sometimes I can feel them in my ear even on my head.. it's bfs .. As long as you don't experience lost of muscle weekness don't stress over it you will learn to live with them I did been with them for 12 yrs .. Enjoy life don't stress over it the more you read about it the more you get scared .. Remember if u do see muscle decline do go get check with a neurologist .. My neurologist said I had nothing wrong but I researched my self made a conclusion of bfs..
Had this for half a month now
Ist das eine Frau?
Herniated disc L5 S1
I have similar, all over body. I don't have ALS.
May be it is Issacs syndrome.. Do u have any other problem except this fasciculations??
@@ARtlean_ULtra only tetany and alcalosis.
MS?
BFS
I have this 24/7 for a year now. Both calves.
Same. Been 7 months
@@wamq29 I am very frustrated.
@@dnlgby still no muscle weakness? just the fasciculations?
@@wamq29 only fasiculations. Why weakness?
@@dnlgby just curious if you have gone that long with no weakness so that you can rule out ALS and worry less.
These are like mine, but in both calves 24/7 and elsewhere every day
Same for me.
What did your doc say?
Same for me.
I have had this for 6 months, feels annoying
Same here, started after Pfizer shot, and it is 24/7 like this
Check out video on my channel, I was diagnosed with benign fasciculation syndrome
How long has it been happening to you? It happens to you all the time 24 hours without stopping?
How are you now all good health?
Just massage it
It kinda stops it I think
How are you doing now?
Both of my calves are like this 24 hours a day for the last couple of years. Should I be worried?
I also have trouble with my right hand - my thumb and index finger can’t move properly and are very weak. Everything else normal
I have these as well, nearly 2 years, constant along with pins and needles, and twitching in other spots
Did you end up doing anything about your symptoms? Or did anyone tell you what might be going on?
I think I am going through the same as you. My finger and thumbs don't work together. I struggle to do things like zip a zip lock bag closed or tweezing my eyebrows. If I close more then a couple ziploc bags, my pointer and thumb are tremouring like crazy. Along with Weakness. I have never heard of anyone dealing with what I am. What do your hands do?
@@definitelystephanie614 hi there. Yes my GP initially thought it was carpel tunnel syndrome but it wasn’t as no loss of sensation. Then got referred to a neurologist in October who said it’s likely MND/ALS. Since then I’ve had electrical studies, EMG. I’m getting an MRI of head neck and chest next week.
I’ve also had immunoglobulin treatment in case it was MMN. It wasn’t.
Still not got a diagnosis. Seeing the neurologist again in summer 2023.
Hope all is well with you
@isyt thank you very much for the fast response!!!
Wow it sounds like they are trying to figure it out for you! Do you mind me asking? Are you in Canada or USA? Or somewhere else possibly? I am in Canada and I am struggling to get the care that it sounds like you are getting, free Healthcare though, so that's its own issues.
So far I have received just the emg, nerve conduction test, and those came back normal.
Anyways. I am at the very beginning stages of my symptoms, but they sound very simular to yours. How old are you? I am 34.
Do you have a tremors in your hands at all? Or just weak?
@@definitelystephanie614 Hi. I’m in the UK (Scotland) so healthcare is free but very slow. In my mid 40s. Not got any tremors.
The neurologist said it’s a case of ruling everything out to get a diagnosis as opposed to most conditions that you can rule-in if that makes sense. The scans are to see if there’s any compressed nerves that could be causing it or to see if there’s any other conditions that could mimic it I think (like MS, brain tumours i guess but not sure). I’ve had a slipped disc in my lower back for ten years so I assumed that was causing the calf twitches and I guess it still could be. I don’t see the consultant again until June which is annoying just waiting about wondering if I have MND/ALS. I think they need to see some progression to get a diagnosis. I’ve noticed in the last few days the rest of my hand seems a bit weaker but I’m not sure.
Anyway hope you’re ok 👍🏻
Even I have these but not so much. Mine usually go on for 3-4 seconds and stop. Then again start after sometime.
Met with a neuro 5 mins he told BFS
I don't know if to trust him
Do your twitches stop still or have they gotten worse from 5 months ago when you posted this b
@@Jonathan-do4qb It stopped completely. Mine it seems was due to stress and anxiety .
Lol the day I got my mind of that it stopped.
Check out video on my channel, I was diagnosed with benign fasciculation syndrome
Io oltre alle gambe le ho h24 anche braccio e mano
Magnesium will help
Is no cure for it
Eu gosto de ver isso
This happens to me almost every day for years
Same here, i feel it even around a heart. Do you feel it in area around a heart?
How long?
@@prof.guilhermemarra For a long time. Still happens. Happening as I type this.
@@ludikomentator7568 It could happen almost everywhere.
@@tomascermak9205 Are you sure this does not affect your heart rate?
Got a shot 2 months ago and the twitching will NOT STOP
Can I ask where you were shot?
@@briangallagher6624In both of my arms near my shoulder
Both of my arms near the shoulder
From talking to my Neurologist this is happening after the Covid vaccine for many people.
did he say how to deal with it?
You get any better?
Mine started after receiving the Moderna vaccine
Me after astrazeneca
🎹🎹🎹🎹🎹
J'ai ça depuis 2017
Bonjour, vous avez été diagnostiqué BFS ?
Love when this happens
It is due to lower motor neuron lesion
😱😱😱😱😱😱😱😱😱
Biopsy
Me after astrazeneka
This happened after I got the Phizer shot for Covid
Yeah i think i probably had this after the 3rd vaccine shot.. Has your symptoms gone yet?
Do you regret getting the shot? Just curious.
No only getting worse
@@vincentmorgan4720 feel bad for you man
@@vincentmorgan4720 I also had this after the Pfizer vaccine, I believe it's a very rare collateral
I have this 24/7 😮💨😒
Same here, Pfizer shot caused it in my case, doctors don’t have a clue
Do you have it 24/7 in both feet and calves? That's what I have going on 2 months. Did you get an EMG? Do you still have yours?
@@robbhammel8279 I do have fasciculations in both of my calves 24/7 and sometimes in my feet. It usually effects my left side. But I've found cutting caffeine, staying hydrated with a good diet, and working on stress/anxiety relief has cut it way back. But sometimes they can be really noticable. Usually after being active or on my feet all day.
But I haven't gotten it checked yet
@@philliplawton1421 same, but now over a year and very noticeable in feet and calf muscles. Nothing helped and every single medical is clean. But this is not benign for sure, it has to do with some autoimmune condition
@@CoVerseAU do yours switch constantly in those area even at rest? Do you also get sporadic ones in upper legs, arms and upper body?
Looks like myokymia.
ALS