Benign Fasciculation Syndrome (BFS)- 95% reduction of severe twitching
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- Опубліковано 27 сер 2024
- Hi, this is an update. I've been working on finding a solution to my BFS and leg cramps for almost a year and it seems to be 2 things that cause it and reduce it for me. I hope it helps you too.
My twitching started in April of 2017…hasn’t stopped for a single second since.
I’m going to give an elimination diet a try.
The trouble with BFS is everyone has different triggers. For some people it is gluten, others it is caffeine. I was never a caffeine person. Never drank coffee, or caffeinated drinks and still got BFS. I have cut out gluten and can't say it makes a huge difference, maybe some.
Hi Dave, yeah, I would't say caffeine triggered my BFS, but cutting it sure relieves the symptoms. Cutting out sugar as well helps, and alcohol. you'd be surprised at how many foods and supplements and medicines have caffeine in them, watch out for those.
I went to the movies, bought some candy, and the resulting twitching during the movie was horrible! I’ve made the tough decision to avoid candy at all cost now. I’ll be implementing your advice too.
Hi Craig, thanks for saying hi and leaving a comment. It's good you've stopped with the candy either way for your health :-) Let me know if any of my advice helps so others can benefit too. Thanks and good luck with it all.
You spoke of your sugar intake and this was major for me bc during my episodes, my sugar cravings are out of this world. I just can’t get enough!
Yeah, I'm having a sugar episode as I type this. It is the most addictive substance on the planet that slowly kills us. I might do a video on that. Hey, good luck on your quest for a solution. The electrolytes make a 95% difference for me and the change can be as quick as an hour, but easily the same day. It is like an on/off switch with electrolytes for me, especially potassium and magnesium. Good luck, and God bless.
@@JamesGough1 do you see a correlation between the sugar cravings and the twitching and muscle cramping? I’m not having muscle soreness right now and I’m not craving sugar like I was when my leg muscles felt like I worked out with Arnold Schwarzenegger.
I don't know how you get good rest after eating so much meat in the evening. That's a point of contention for a lot of people specially red meat. They find it difficult to go to sleep and stay asleep they tend to be up and sweaty. I sleep a lot better if I can eat just vegetables for dinner it has not been easy. Grains are also a problem
i had this and found the solution myself, after visits to many doctors, and no answers. I had low ionized calcium. it doesn’t show on normal calcium serum level, because in an alkaline body, calcium binds to albumin and won’t be available causing the nerves to be overexcited. please go to a doctor and have a test for metabolic alkalosis or low ionized calcium. you can look for tetany and calcium for more info, pay special attention to ionized calcium levels. i hope it helps someone to stop living this nightmare. FYI i was in keto too. keto makes ur body alkaline and can cause this in the long run.
Hi, Roberto, that's interesting you mention Keto. Do you have any tips on self testing to discover which electrolyte might be low or how to test for metabolic alkalosis or low ionized calcium? With covid at the moment doctors aren't too interest in seeing patients. Also, what was your remedy for this? How bad was your twitching? How long did you have it? Has it completely gone now? Thanks
What did you do to fix it??
Hello Robert. Are you still twitch free?
Sounds like worse than the drummers
I did notice you have xanthelasma on your eyelids. Those idicate accumulation of cholesterol in your tissues including arteries. Just giving you the heads up. All the best!
Thanks, I know. I lived on Morocco and ate a lot of what turned out to be sugar syrup fake honey with fatty pastries and sugar in mint tea. They appeared during that period. They did reduce a bit. Cholesterol is good for me of course. All the good research has debunked the link with heart issues and our brain his high in cholesterol - look up Ancel Keys and his dodgy research. Although, the type of fat is important. IMO animal is best, although due to getting h pylori a while back, I don't eat as much meat just now. The good greens are good for medicine in certain situations and so I now grow my own veg in my home - microgreens. That way I can be sure they are clean and pure and also 40x higher than a mature plant. It's veg oils that are causing a lot of the heart issues, again according to the research. And lectins are the problem according to the top heart surgeon Stephen Grundy. I wonder why it was named it after greek Oceanids?
My twitching has come back too. It had gone for a while, but then I learned some difficult to swallow facts about the world we live in and my stress levels and emotion started to take a hit and the twitching and even some cramps have come back. My diet hasn't been good. I need to follow my own advice. Clean my diet. Good luck @gymwarrior12. Thanks for contacting me.
Hi! I’ve recently come across the description of this disease and it’s EXACTLY what my symptoms are! I have an appt with a Neurologist in Sept. you mentioned cramping in your legs! That’s me!!!! It feels like I ran a marathon. You’re saying electrolytes help that? Help!
IMO it is 100% linked for me. I put up a video a few weeks ago saying the twitching had stopped, and it had, but I then had a period of high stress and my diet got bad - eating sugar and drinking caffeine - and my twitching and cramps became really bad again. So, i took 1 x mag, 1 x zinc, and a sachet of electrolytes, and things were much better within the hour, the next night the same thing and my legs were back to maybe 80% better. The third night last night and i feel great and its the second of great sleep after months of very broken sleep patterns.
For me, the electrolytes are an on/off switch with the twitching. Re the sleep, I have known for years that ZMA is a potent solution for men who have problems sleeping at night. And that proved again for me. The difference is night and day ;-)
The reason my diet has been so bad is that I had h pylori and it caused me quite a few digestive problems that I now have to work around and it seems to be causing me a problem to balance out my electrolytes. Interesting fact, if you go into hospital, the nurses first job is to check your electrolye levels, and that bag of liquid they might feed into your arm is mostly electrolytes.
@@JamesGough1 my sleeping pattern is the exact same as yours too! Holy moly. This is amazing I found someone else I can talk to about this. I hadn’t slept for 3 nights and now all I want to do is sleep and my body can relax. When I have the anxiety and sleeplessness, it is torture. I’m going to have to take what you took when you said it helped in an hour. I need that! I’m screenshotting your formula and will have it on hand from now on. Thank you! I’ll let you know how it goes.
whats up brother, magnesium helps mine, im late to your updates and stuff but ive had this for years myself. What started mine was antibiotic overload/poisoning that fried or damaged my nerve receptors in my brain, some cool videos on here that show what happens when your receptors aren't fully full anymore but rather cracked and thin and how it causes the twitches and what not through out your body. hope this helps a little in your investigation James!
Hey Josh, thanks for reaching out. If you have some links to video it would be good. I seem to see a lot of people saying something similar to you that it all started after medical intervention. I've added coq10 ubiquinol supps to help with nerve excitability too. Keep in touch.
@@JamesGough1 sir please try magnesium supplement
Does this heal ? Feel like I got the twitches from the covid vaccine.
@@JustRelax-pd5xs yes it may help you
@@JustRelax-pd5xs or i will give you a homoeopath doctor number he is best
Thanks for the video, dude. Especially calves cramps are what driving me crazy, and found also about electrolites,since I eat moderate amounts of carbs but no zero. Tell me something, have you seen doctors? best wishes from Mexico
Hi, thanks. Yes, I did see doctors. They did the knee tapping and all that, but they were mostly checking that I hadn't lost any strength. Yeah, if you are low carb you need to up your electrolytes. Take care and best wishes.
@@JamesGough1 Thanks, James.Take care
ive had this for 11 years! Dr eric berg’s electrolyte powder combined with thornes magnesium helps me alot
Hi, I just said that same thing in a new video yesterday. It is the video reminded me to check my comments. Berg is great :-)
I totally agree with you.. I do drink 2 of the small cup-size coffee every day at the same cafe !! + at night usually have 1- 1.5 cups diet cola.. So, if I had the balls I'd do what you say and quit all caffeine drinks..I do have BFs either in my thigh, which then switches to same place in other thigh (tells me it IS a brain activity/but isn't everything !?)..Last 3 weeks my belly to the left of my belly button has been twitching...Then sometimes (like I'd gather most of us BFS-ers do have) It's an eyelid twitch..
Also, I think it may have some psychological reason for its presence.. You know, how you can sort of stop it by sort of not thinking of it, or thru extreme relaxation..
I wonder if science will ever come up with meds to stop both BFS and TINNITUS which I also have (ringing in head 24/7/365).
btw: Those who DO have tinnitus, do note the noise is due to damage to the cilia in the cochlea. BUT the ringing is in the brain and is why they can't so far, go in and shut it off..And NOTHING sold for it, works ! NOTHING...
I'm sorry to hear that you are suffering from twitching. It has stopped for me now. Have a look at my new video. I don't take electrolytes either. Read the intro to the video because I explain some stuff I forgot to mention in the video (including thiat I don't take electrolytes now). | have had, and have helped people with tinnitus. There is hope there too. I think it is just a matter of turning over every rock for a solution. Good luck and I hope you resolve it soon.
Did you have any muscle pain along with your BFS? I do - with horrible neck/trap tension and what feels like hands numbness/fingertips. Thanks
Hi Rooted rotot. I thought I replied to this a while back. I'm not sure what happens with my replies. Sometimes they just dont seem to get posted. Anyway, no I don't think my BFS is linked to problems in my neck area. However, both me and my gf have suffered from problems there before. For me, my osteopath sorts it out within 1 or 2 visits. However, that doesnt work for me gf. I can sometimes help her with a massage if it isn't too bad. I hope that helps. I would really recommend looking for an osteopath with a good reputation. Good lcuk and let me know how it goes.
whats up man... sounds like you got a slipped disc, numbness is a tell tail of that plus the twitches. go get an MRI of your spin and neck and that will probably give you a positive result. hope this helps man, take care!
@@joshasunto27 Thanks man - I've had two MRI's of the neck and neither has shown evidence of a slipped disc.
@@rootedrotor525 that’s good it’s not in your neck. I have a minor one there and it’s a pain but my 2 larger ones are low on my back. You should request to have your whole spine done. Just a suggestion. Take care and stay safe.
@@joshasunto27 Thanks - I've had the whole spine done as well. I'd check out books by John Sarno on back pain and equivalents. Interesting take. I have a ton of symptoms - not just back pain. More Fibromyalgia type garbage.
I twitch all over the body. Its been 2yrs. I am fed up. I had to leave work due to going several days without sleep coz of the twitches. Please has anybody found any sort of help😢
I'm really sorry to hear that. Did you try the electrolytes and did you stop eating and drinking processed foods, sugars and stimulants like caffeine and alcohol?
Thanks for the video James. If you drink caffeine, would the twitches go away the next day? or about how long would that last?
I think you could test that yourself and get an accurate answer. I'm testing things myself all the time. N=1.
I was in a bad car wreck and since then I started having these twitching. I am seeking answers. I have an herniated disc as well. I twitch all over and the doctors don't know the cause.
Sorry to hear that. Have you tried someone who works with the spine, like a chiropractor or osteopath? Cranial sacral therapy is good too. I used to help people with spine and neck injuries. I hope it is easier to find good practitioners today as with reviews and facebook it should be easier to find people who have good things to say about their work. The good ones will stand out. They should be able to treat most issues in a few treatments. Hey, maybe you have already gone down this path, but from my experience there is little that can't be fixed or improved, it is just a case of knocking on enough doors to find the right person or people to help you. It takes time and work. Good luck.
If l did everything that everyone says stops it, l would be 80 stone. Or 4 stone.
Wat do you mean by 80 stone?
You're right. There is so much info out there. It has taken me 40 years to figure out that most of what we are told by the establishment is designed to make us sick so they can sell us drugs.
Has anyone else found green tea to be a trigger too?
Apart from me, I don't know. I have started a trial of Yerba mate tea. It is supposed to have a calming effect on the system even though it has high caffeine levels. I'm still experimenting with it.
@@JamesGough1 sir start taking vitamin b12 tablets
Hi James. Great video. Can you tell me if you suffer from Anxiety? I know that’s a personal question but a lot of what I research shows a correlation between BFS and Anxiety. I’ve had this since June last year which ramped up my anxiety and now in turn I have tinnitus, which again I put down to stress and anxiety.
Hi, I was suffering from stress, but not anxiety, however, I did suffer from anxiety many years ago. But, imo , I agree your symptoms could be linked. Caffeine and stimulants will ramp up your anxiety and stress. They did/do for me. Have you tried cutting them out yet? You'll be surprised how difficult it is. They are very addictive. Sugar as well can have a negative effect. Good luck. Let me know.
i think i read somewhere tinnitus (like BFS) may be linked to magnesium insufficiency. and that anxiety may actually exacerbate magesium depletion (causing it to excrete into the digestive tract or something)
Is your twitch in one calf or both
Hi, it's in both. yes.
@@JamesGough1 sir possible remedy
what supplements can help this ?
you could try Taurine, Magnesium, Vitamin B and Vitamin D. some people online say those have helped reduce muscle twitching. I think potassium is also important
I'm sorry to hear you suffer from BFS. Electrolytes worked for me. BTW it seems to have stopped for me now. Have a look at my new video. I don't take electrolytes either. Read the intro to the video because I explain some stuff I forgot to mention in the video (including thiat I don't take electrolytes now).
Where do you twitch calves thighs
It's almost all in my calves and feet. When it gets bad, it starts to work its way up my body.
Nothing helps my bfs
Nothing
Yeah, it can seem like that sometimes. A lot of people, including myself, have had some improvement and for some people it has stopped completely, so there is some hope for you too I'm sure. Have you tried all the solutions that you can find to help? Most people and the doctors say that it can be stress that triggers it. Have you looked at that as a possible cause and if it might be looked for some stress relief solutions that could help? Take care and all the best :-)
What's ur symptoms man
Yeah. I go to work and have been awake for days. Just like now. Except I'm off work ill. And finding l only sleep when l can't stay awake anymore. Which doesn't go down well with the wife.
Did you cut greentea too?
Hi, sometimes. It has stopped for me now. Have a look at my new video. I don't take electrolytes either. Read the intro to the video because I explain some stuff I forgot to mention in the video (including thiat I don't take electrolytes now). Good luck and I hope you resolve it soon. and I drink green tea. Even coffee sometimes and it doesn't seem to affect me. However, I got heleobactor pylori the other year and coffee doesn't affect me the same way at all. I think my microbiome has changed.
It has stopped for me now BTW. Have a look at my new video. I don't take electrolytes either. Read the intro to the video because I explain some stuff I forgot to mention in the video (including thiat I don't take electrolytes now).
My neurologist told me at the bottom of our foot there’s a nerve and told me to do this ball exercise which is when you get a ball and rub it at the bottom of your foot it’s been 2 weeks
Since I last had my twitches you should try it out
That's interesting. Could you find out a bit more about it please? There are a lot of nerves at the bottom of the foot: Media Plantal, Lateral Plantal Tibial. Do they sound right? Can you tell us how bad the twitching was, how long you had it for, where you experienced it, and any other info please? And how long did it take you with that method to stop the twitching? Strangely, I have recommended massage a ball at the bottom of the foot to my own patients when I ran clinics years back, but never for BFS. Thanks for the reply.
I saw this exactly same clue in other channel, (Benign-Fasciculation Man), he said to do same thing once he saw a doctor, physical therapist, that suggested him to do that with a ball on the bottom of the foot (very hard) once nervous system may be bounded up and its a way to relief it by rubbin the ball there, like a baseball ball (hard ball), he also experienced not to have fasciculations for 03 days, after doing it he disappeared from UA-cam since September 2020. I´ve doing it since then and up to now no success, mine still here all over my body even the tongue that´s a crazy for me, it makes me feel nuts.
Dear Barney, I hope you are doing fine, regarding this experience about exercise the ball on the bottom of your foot, how was that for you?, any special instruction to do it?, how successful was that for you?
Sorry, Marcelo, I only just found this comment as it was in a "review" bin as potential spam by youtube.
I've just started doing this again.
@@MarceloBelluco I’m doing amazing my neurologist is a life saver I haven’t had twitches since, apply a bit of pressure
Did your tongue ever twitch.?
No, George, never in the tongue, but there are some people who report they have the twitches there also.
@@JamesGough1 sir I have in the chest stomach hand legs hips back 😭 and 😭😭😭😭😭😭😭
I got tongue twitches for the first time today. I've found that most people have them in their legs and arms. I now officially twitch everywhere.
@@annie6891 been twitching now for 16 months body wide in random areas. Mainly after stimulating the muscle with stretching or flexing. Weird phenomenon
@@georgetee5692 I've had them daily ever since I could remember. They don't seem to be triggered by anything in particular but they are worsened by stress and my diet. They do seem to be getting worse though.
i had this and found the solution myself, after visits to many doctors, and no answers. I had low ionized calcium. it doesn’t show on normal calcium serum level, because in an alkaline body, calcium binds to albumin and won’t be available causing the nerves to be overexcited. please go to a doctor and have a test for metabolic alkalosis or low ionized calcium. you can look for tetany and calcium for more info, pay special attention to ionized calcium levels. i hope it helps someone to stop living this nightmare.
Hi Roberto, I mentioned your feedback in my last video. I have bought some calcium tabs and will try to add them to my daily supps intake. I can see how it might affect me and maybe others with BFS. I will try to get to see the doc about getting a test as well, but I'm not to confident they will do it. Let's see :-)
Thanks a lot for letting us know about your solution. If you want to point to any research that would be great. I will try to do a video on what I found soon.
hey Roberto. So how did you fix this? Do you supplement calcium and that works?
So what’s your solution Roberto? Don’t leave us hanging