CONFLICT BETWEEN ABA AND SPEECH OVER AAC DEVICE
Вставка
- Опубліковано 9 тра 2021
- Griffin's speech therapist and ABA therapists are in disagreement on how to move forward with his therapy. Please subscribe to watch our family grow!
Our last video: ABA IS HARDER THAN WE THOUGHT: • ABA IS HARDER THAN WE ...
Check out our Merch: teespring.com/stores/its-our-...
Our recommendations on Amazon: www.amazon.com/shop/influence...
Twitter: / itsourwlife
Instagram: itsourwonderfullife
Facebook: / emilyisnotcrazy
TikTok: whatilovetodo
Podcast: anchor.fm/wonderfullifeofpare...
We are a big family of eight with Mom(Emily), Dad(Will), and our six kids, Harrison, Wyn, Griffin, Sawyer, Posey, and Lindy.
#BigFamily #Therapy #YouAreWonderful
Good for you momma! You deserve a drink or 2 or 3 once in a while. Thank you Will for being such a good dad and hubby!
I know I’m late to the game :) but As an SLP, always best to consult an SLP who is specialized in AAC. They will do a comprehensive AAC evaluation that includes a variety of devices and programs. They will consider a lot of different variables involved in the process of finding a device that best fits their needs!
Also, if you are still using aac- PLEASE ensure you have an SLP running point on how to use his device at home. Communication is a god given right and not about compliance. If the child begins to see the device as a “work device” instead of a way to share thoughts, comment on things, and all the different ways we communicate? You will not see adequate progress!
I love that you AND Will are conquering this together and the kids will benefit by having you both at home. Love and Hugs 🤗❤
as a special ed teacher for 17 years... I would side with the speech therapist and if they are projecting your son to be non verbal they a device would be more practical and give him greater freedom and choice ... I have seen functional communicators with acc devices if they are allowed to have them with them at all time (the same device) .... I have never seen a kid use a communication book well... for communication I would always side with speech therapy
Thsnk goodness for your sweet husband and willingness to help out! God love him! Lots of dads are not good dads but Will is!
It took our family years to get familiar with what we had to do to keep us going. Our oldest daughter is the one with major disabilities (she is 19). We say we take one second at a time. At the end of the day other we are in pieces or we are able to breathe. I KNOW THAT YOU AND WILL ARE AMAZING PEOPLE. It will get better!
Hey guys, please take all this therapy slowly and daily.
I worked ABA and it's really hard on the workers to come into your home and feel your stress. It affects everyone.
Do you have a designated area for them to work? Do you have a way to set up a camera and record them so you feel safe about it all? The therapists will feel less stress but be sure to be able to monitor.
I'm not sure how it works these days but in the long term where else will you get all this help if you give up?
Some of the kids I worked with grew up and graduated high school and became great adults and without the structure of the therapies I don't think they would have done that well.
Hang in there. This will all just be memories before you know it. It goes by very, very quickly.
Thanks for the video Emily
No. Speech therapists are the experts in communication & ABA are the experts in behaviour. If speech needs to try things out, ABA need to deal with it. Sorry to be so blunt, but having worked in medical settings & social care settings, I can see that ABA are crossing a line here. You're the parent & you have the final say. If you need to take time with Griffin to work on it yourself (either you or Will) while you find the right device for Griffin, then ABA have to deal with that. If you want Griffin to be able to use the device while with ABA, then they have to deal with that too. ABA can't be allowed to affect the quality of Griffin's key therapies like communication. Maybe get the speech therapist to speak to ABA.
Does Griffin get speech therapy in school? Maybe the school could be a good resource to ask their thoughts on what to do regarding device only or just teaching the pic cards.
Girl you are the best! You make this whole momming thing so relatable!!!
I love watching your vlogs. Your children are absolutely precious but what I don’t understand and I know it’s not my business or anybody else’s but you moved to Colorado to get help for your sons please don’t give up hang in there things will get better you just have to give them a chance. Sending you prayers 🙏🏻
Emily, your children are so very lucky to have such wonderful, loving parents!
Sending you and Will much love and prayers!
❤🙏❤🙏😘
You've got this!!!
love to see relaxed after a drink! you deserve it!!
Have you talked to the ABA therapists and managers about how you are feeling? Communication is the most important part when you have people in your home. I deal with this when I have therapists in my classroom. At one point I had 7 adults not including me and 15 kids... that was a lot! But communicating with the therapists and discussing how you can help them and how they can help you is important. Because it is your home and they are your kids!
You moved to get services for your children and they clearly need them. Create a spot in your home for the therapists and kids--maybe your downstairs? No, therapy and having people in our homes is not easy for us, but as parents, we need to deal with it and do it for our children.
It is just wild how different devices and apps work so differently for each kid! We originally started with Symbotalk since it was free and my son never really responded well with it, but when Talk To Me Technologies came recently to our Speech appointment, he immediately was attracted to it! (I’m not sure what the app is called yet, we are doing an 8 week loan with therapy and then a 4 week loan at home, so I am really hoping he will be able to communicate with us soon! It seems promising!
Hi from New Zealand 🇳🇿, I'm really glad you took a moment for yourself after the littlies went to bed. It's been a really tough year for you two, more than just the general business of a large family 👪.
Augmentative and Alternative Communication this is what aac stands for Emily.
We Love you Emily! I sincerely do not know how you do it. I absolutely do not like people in my house so I don’t think I would have been able to commit to the ABA therapy daily. You really are strong and don’t give your self enough credit. Keep your head up! We are behind you.
Hi, sending love from Barranquilla, Colombia, you family is awesome and you are so strong. Can you tell me the name of the spinning chair that you have?
I have no experience with what you’re dealing with and all the therapies but making so many decisions must be hard.Praying for you and Will that things become more manageable.Always sending love❤️❤️❤️❤️❤️❤️❤️❤️
Wynn you are such a beautiful girl 🥰 You lost your popsicle and laughed it off even though you must have been disappointed😊👍 Emily and Will you are terrific parents ❤️❤️❤️❤️❤️❤️❤️❤️ Live Lindy popping in with her big grin is the best!!
I love watching your UA-cam channel
You're doing so well Emily and a wee drink won't do you any harm lol stay strong and remember tomoro is another day love to you all sweet family xxx
Emily, It is extremely hard right now. But give it 6 months... I know it sounds like a LONG time but your trying to find the right combination for Griffin and your family. Maybe find an advocate.. for your family.. and family needs. The advocate can help you!!! from someone who has been in the place you are BIG BIG HUGS XX
I watch you tiktok videos and I have been subscribe to your UA-cam channel for 1year now and I just got tiktok 6 months ago and you were the first person I followed
Keep up the aba! The results are worth it!!!
I had the catch 22 of daily carers & services for my parents - people in the house is so disruptive & their constant feedback & information is overwhelming to have to constantly absorb - but I literally couldnt do without giving my parents the best I could find for them! I think the caregiver/mum suffers more - a constant invasion of your private space & constantly worrying about your other children, as well as if its working out for your special needs kids.....hang on in there Emily - ONE day at a time. Love from Scotland x
Hi Emily!I hope you had a wonderful ✨💐Happy Mother's Day✨💐🥂🍾
LOL at tipsy Emily at the end.
I love tipsy Emily 😂😂
You are beautiful. When things calm down would you show us your makeup routine. I have heard you say you like fooling around with makeup and it always looks flawless.
Just when you have time.
I sure would appreciate it.
I need something to help my self esteem. Thank you!
She did a video on how she does her make up very recently. It was 2 weeks ago. It was called GET READY WITH ME | WHAT'S IN MY MAKEUP BAG
Thank you so much.
I must have missed that one.
@@susanleatherwood22 You are welcome!
Are you doing therapy 5 days a week? If so maybe you can try Monday, Wednesday, and Friday. But I know it’s hard to get all the therapists scheduled on certain days. Been there done that
Best ending ever!
Right? 🤣😂🤣😂
Also, what do you mean by ABA wanting time wait for one and only for the speech device? I don’t watch regularly enough I guess I’m sorry, I get so busy!
However what I will say is that I would go with your intuition, choosing one way or the other will not make or break it I promise!
I always felt so much pressure like if I didn’t have Yi communicating before 3 that the world would implode and I would fail him, and as his 3rd birthday came and went, as time passed I started seeing growth in other areas and realized that there is time and there is room for different decisions ❤️ good luck with everything!
Good for u Emily!! You're aloud to be tipsy. 😂
We trailed a lot of different aac apps for my son and he loves touch chat the most. We should be getting our device soon. 😀 my son didn't like pecs it wasn't enough for him.
AAC - Augmented Alternative Communication Device
💜❤️💖🙏🏼🙏🏼🙏🏼
Ok I frigin LOVE U Em and ur kids. I watch all ur tiktok and stuff.... This is WHY U MOVED!!! You moved across the country to as u said give ur special needs kids the BEST POSS LIFE u can. You can do this and if u need a drink girl DRINK! Ur abt the one person in this whole world who i think deserves A DRINK occasionally lol!!!! U can do this!!!
I just got my first like from ur guys i cldnt be more over the moon but i wanna say one more thing. I know i dont know u and i never met ur mom either. But the episodes where u lost her are the only episodes of u channel i literally cant watch. I loss my mom and my BEST friend in 2013. Ppl say it gets better i dont think thats so. Yes the days go by and i think of her passing less in daily life but if i talk abt her or watch like ur ep where ur mom passed i cry so hard i cant breathe. So imo anyway the hurt stays the same i?just dont hurt as often if that makes sense. But i say this because from what u have told us of ur mother shes like mine. She wld tell u right now that YES its hard, but roll up ur sleeves and DO IT. Get it done and ur twins will REAP the rewards!!!!! And i know im a stranger alot of us are on here BUT if u need support or words of encouragement WE GOT YOU GIRLIE!!!! Trust me I KNOW thibgs wld be maybe not easier but def smoother with ur mom backing u up. I know. Im a bartender of 22 yrs and when covid had me out of work for 9 mons last year I KNOW if my mom was here she wld have said dont worry I will help make birthday/christmas happen for my 5 yo son. I?KNOW she wld have. Vut shes gone so i got 2 extra jobs at walmart and a gas station to make it happen. So?i KNOW what its like to lose ur support system even if she just inspired. I know. Ur strong. U can do this. Sorry if i went off and said way too much.
Hi guys ☺️
I’m not sure how everything works there.. not sure if you’re able to answer in a future video or potentially someone in the comments? But hypothetically speaking if you were to stop ABA therapy, that doesn’t mean you’d be unable to go back to it at a later date, does it?
Everyone seems to think if you stop ABA therapy that you’re stopping all therapies for the boys but I don’t sense that’s quite the truth? If they’re in school, are they not already getting additional care / therapy? Could you not speak to your ABA therapists & talk about cutting time back just for a little while, not just for your sakes but for the boys - so not to overwhelm them - & for everything just to settle a bit? Maybe do 1 full day a week rather than 3 half days? And speak to them about how you’re feeling. They’re there to help all of you 💗
You’re at the beginning of your journeys, don’t be so hard on yourselves. It’s such a lot to take in & absorb, & I understand your worries / concerns about not giving the other children enough attention - I’m pretty sure that’s not the case but I understand as parents that’s a very real worry / thought process. Take each day as it comes, talk things through with Will, & maybe you can both talk to ABA about how you’re feeling about things? Xx
Hahaha. Been there.
EMILY !!!! I loved loved your ending OMG !!!!!! i loved it i do the same thing !!!!! I only have a three year old no special neeeds other than DISIPLINE ! he is into definance right now and flushing things down the toiket i work from home and had him at home for a while HE WONT POTTY TRAIN UFGGGGGG. Does ABA NOT take care of your child when theyare threre do they make you take care of your child while they are there if so WHAT IS THE POINT ? What does ABA do and how does it work >
Kids are so cute
Let the specialist work it out. Step back and let them decide. Enjoy the great weather outside with the other kids while these specialist are working with the kids. Close by to hear what’s going on. Mommy time out. I wished pa was that great with working with special need kids.
Wont ABA be there less when they are in school more? Can you cut the number of hours therapist are there? Do the times overlap so there are less hours they are at your home? I think you should voice your concerns with them. Maybe as they get older the boys will need less. Hang in there. BTW I don’t think you need to worry so much about how clean your house is as long as it is safe for the kids. I don’t mean live in filth but if they are there everyday they are going to see some messiness.
Its ok wish I had a drink with you!
I recommend you try AACORN app which is way better than what you’re using 👍👍😁
Its ok EMILY. to have a few drinks i would. To if i had to deal with all the stress. You have to with the kids and school !! And. Therapy with three kids and people in my house every day comeing and going yes MAMA. That is a lot. Will is not going to be a mail man any more ?? Going to be a CNA. THAT IS VERY MUCH HARD WK. AS HARD AS BEING A NURSE DONE THAT OVER 25 YEARS. WHICH HIM LUCK. HUGS TO YOU BOTH YOU ARE GD PARENT'S.
W H A T? 🥺
If peks works for you and your family I’d just still follow through with that! It’s still a form of communication, I’d move to the electronic version when he is older, as for now it can be a distraction.
I am truly sorry that life is very hard with two disabled children, the loss of your mom and so many other issues. Please remember that you're not alone in this. May I ask you to think about those of us that have gone through bad times due to others drinking? Maybe it's better not to include it in the vlog on a family-based channel? Thank you.
I couldn’t agree with you more! Drinking is not the answer to your issues.
Message FatheringAutism Abbie has speech device. Her device seems fairly easy
It is so worth it!!!! Talk to Fathering Autism! The progress that their daughter has made is unbelievable !!!! Pricilla is so worth to about it!!! ABA will change your and their life, you are just in the thick of it right now. Don’t give up it’s for your kids benefit and yours to down the road!!
Priscilla hasn't got five other young children running about has she.
Llllllllllllbkbbkkkkbbbkkk
If you don't know what decision to make, pray about it. Ask God to guide your decision. He wants what's best for Griffin as much if not more than you do.
Amen
Hi why dont you do your videos when the children r not present. A lot of your video is overshadowed by the children wanting to b heard. I love children and you r both great parents but I'm sure it would b much easier for you if the children were not wanting the attention. Listeners would b able to understand what you r saying.
Cavities already ☹☹
Some run in genetics cavities happen