Appreciate the videos.. Having an online meeting with Patterson’s team tomorrow. I’m 15 months in breathing problems, fatigue, headaches. My test results came back showing high blood cell counts in many different types. Hoping they can get me something to help this
I love how detailed you are. Did you deal with insomnia and sleep issues? I’m currently taking zolpidem but it doesn’t keep me asleep and can’t take it on a long term basis
My heart rate is the same. It's always higher in the morning and I'm more prone to anxiety where at night it's a lot lower. It is probably because cortisol is higher in the mornings and decreases later in the day. I had post-viral POTS last year and it went gradually normalized after a couple months then I got covid in January and the symptoms came back with a vengeance. I get panic attacks too so I'm not sure how much of mine is anxiety and how much is POTS.
@@GK-8 last year I used the DARE anxiety app and books by Claire Weekes and by applying the techniques it really helped. Now I am still struggling since covid but it's gradually improving. I think exercise is an important part of improving symptoms as well as water, salt and anti anxiety treatment. ua-cam.com/video/HOTiymOaMGg/v-deo.html
Did you have high levels of VEGF and Rantes (CCL5)? A Patterson doc recommended Maraviroc for me (perhaps just sticking to the LH protocol) but the affiliate doc refused to prescribe because they said i don’t have high vegf or rantes. They just put me on Ivermectin which is having no effect on my main symptoms of head pressure, dizziness, vertigo, and tinnitus. I’ve only had 3 treatments covering the first week so maybe it’s too soon to judge. Not sure what ivermectin is supposed to fix bu it doesn’t seem to work on brain inflammation.
@@neverseenblue11 if you don't mind me asking, what protocol are you referring to? Are you referring to leaving fluvoxamine and starting selzentry, or does your protocol involve something else?
I am feeling you totally, i am ging trough the same since 2 months after a Covid Infection. Hoping it will get better for anyone who has to deal with that. I wanted to ask you if you got the vaccine yet? And if so how was the reaction?
What state do you live in? Does your doctor treat people out of state? I can not find a doctor that is willing to prescribe the medications that Dr Patterson wants me to take. Thanks
Am I the only one having problem with constant immune activation? Feel very warm and sick without having fever. Thankfully I got maraviroc now, so hopefully better in a month or so.
@@neverseenblue11 Very happy for you. i'm following your recovery for some time now, i'm seriously considering Maraviroc and Dr. Patterson . I'm 16 months in no relief also new stuff popping out all the time.
Hey Sam, do you think i can take Rosuvastatin instead of Prevastatin?? Also i've been having those increased heart rate and high blood pressure lately and pop Propranolol.
@@neverseenblue11 thanks for the reply, Samantha. When platelet are activated, will the platelet count be high or low? Also, what is the treatment for that?
@@neverseenblue11 glad u are feeling better and wish a speedy recovery. One question, if maraviroc is helping u then that means all long haulers have viral persistence?
Appreciate the videos.. Having an online meeting with Patterson’s team tomorrow. I’m 15 months in breathing problems, fatigue, headaches. My test results came back showing high blood cell counts in many different types. Hoping they can get me something to help this
How it's going for you so far?
Was Maraviroc the main thing that helped you with fatigue?
Yes!
Can u mention all the things that maraviroc helped with most? Taking maraviroc right now.
@@awakeening863 I just started with Maraviroc too -36h ago. So far just sleepier
@@mr1001nights what's your symptoms?
@@awakeening863 fatigue, brain fog, headache, some orthostatic dizziness & mild tinnitus
I love how detailed you are. Did you deal with insomnia and sleep issues? I’m currently taking zolpidem but it doesn’t keep me asleep and can’t take it on a long term basis
Hi I was wondering how do you ahold of Dr Patterson team?
My heart rate is the same. It's always higher in the morning and I'm more prone to anxiety where at night it's a lot lower. It is probably because cortisol is higher in the mornings and decreases later in the day. I had post-viral POTS last year and it went gradually normalized after a couple months then I got covid in January and the symptoms came back with a vengeance. I get panic attacks too so I'm not sure how much of mine is anxiety and how much is POTS.
Hey. How did you kick it the first time? How are you doing now?
@@GK-8 last year I used the DARE anxiety app and books by Claire Weekes and by applying the techniques it really helped. Now I am still struggling since covid but it's gradually improving. I think exercise is an important part of improving symptoms as well as water, salt and anti anxiety treatment. ua-cam.com/video/HOTiymOaMGg/v-deo.html
Did you have high levels of VEGF and Rantes (CCL5)? A Patterson doc recommended Maraviroc for me (perhaps just sticking to the LH protocol) but the affiliate doc refused to prescribe because they said i don’t have high vegf or rantes. They just put me on Ivermectin which is having no effect on my main symptoms of head pressure, dizziness, vertigo, and tinnitus. I’ve only had 3 treatments covering the first week so maybe it’s too soon to judge. Not sure what ivermectin is supposed to fix bu it doesn’t seem to work on brain inflammation.
How's it going for you now?
Bro, Fluvoxamine u need for all head problems. Just take it 2 weeks, then stop. 50mg x2.
How long did it take for you to start improving? Were you improving before you started the protocol or was it mainly the protocol that helped?
I started improving within a month of starting the protocol. I was in bad shape before the protocol.
@@neverseenblue11 if you don't mind me asking, what protocol are you referring to? Are you referring to leaving fluvoxamine and starting selzentry, or does your protocol involve something else?
I am feeling you totally, i am ging trough the same since 2 months after a Covid Infection. Hoping it will get better for anyone who has to deal with that.
I wanted to ask you if you got the vaccine yet? And if so how was the reaction?
No, the JJ vaccine made my symptoms worse!!!
@@neverseenblue11 that's what they tell me to get my vaccination when I feel better and I'm like I don't know
How did you get rid of the vertigo and brain fog?
Physical therapy with a vestibular PT; he specializes in vertigo and brain injuries
Please update on what the allergist says, thank you for these videos!! Giving me hope
What state do you live in? Does your doctor treat people out of state?
I can not find a doctor that is willing to prescribe the medications that Dr Patterson wants me to take.
Thanks
Am I the only one having problem with constant immune activation? Feel very warm and sick without having fever. Thankfully I got maraviroc now, so hopefully better in a month or so.
Also, i just wanted to ask, have you checked your iL markers again and have they come back down to normal levels??
All my IL were in normal range with IL 10 being slightly elevated.
@@neverseenblue11 Very happy for you. i'm following your recovery for some time now, i'm seriously considering Maraviroc and Dr. Patterson . I'm 16 months in no relief also new stuff popping out all the time.
When taking maraviroc and statins, did the doctor told you to take maraviroc and statins twice daily? Or maraviroc twice but statins once?
What do you eat?
Hey Sam, do you think i can take Rosuvastatin instead of Prevastatin?? Also i've been having those increased heart rate and high blood pressure lately and pop Propranolol.
I dont know about the first one you mentioned. I hope it helps!
When you did maraviroc and statins, did u take statins and maraviroc twice daily, both twice daily ?
Have u tried black seed oil?
What does that help? I have long covid too. I don't feel mentally like myself.
@@hilarymurray7800 its supposed to be antiviral
Thanks for the tip. I had covid last year. I have had a real hard time with brainfog, anxiety, and depression. It feels like life isn't real.
@@hilarymurray7800 have u tried cbd oil and nac?
No I haven't, I will have to get them at the health food store.
Does anyone know what is causing the bulging veins/vasodilation?
Yes, platelette activation
@@neverseenblue11 thanks for the reply, Samantha. When platelet are activated, will the platelet count be high or low? Also, what is the treatment for that?
Is maraviroc works for u?
@@ThànhTrần-333 Yes!! I'm a lot better but still not back to my old self. I know my nerves still need to heal.
@@neverseenblue11 glad u are feeling better and wish a speedy recovery. One question, if maraviroc is helping u then that means all long haulers have viral persistence?
Oh that sucks the fluvoxaminw didn't work for you!
What Fluvoxamine supposed to help with?