What is Pachyonychia Congenita Project?

An introduction to Pachyonychia Congenita, an ultra-rare and extremely painful skin disorder. Pachyonychia Congenita Project (PC Project) a 501(c)3 public charity is fighting for a cure, connecting & helping patients and empowering research. Help make a difference at www.pachyonychia.org.

[@dianeb1976]

Great video! Thank you!

[@Sophie-od6tp]

ua-cam.com/video/K-bKyH93Zy0/v-deo.html
This video helps me also!

[@Rimasvlog.]

when we get treatment for pc?... it's very hard disease which makes our life harder..pls as soon as possible get us a solution for get rid of this rare diseases... I hope u also take a interview to me...I m from Bangladesh.. my father also affected by same diseases..I m as like as my father.

[@Pachyonychia]

Thank you for commenting. We are grateful for you and hope to help soon. We hope you will help by joining the patient registry at www.pachyonychia.org

[@adrian40gheorghe99]

I have pachionychia congeneta plecase help!!!

[@pcproject3289]

@@adrian40gheorghe99 Please contact us at [e-mail] with questions.

[@rameshkumarpurohit789]

इसका ईलाज हो तो मुझे अवगत करायें

[@yammyamm7058]

My brother suffers really bad from this

[@Pachyonychia]

Please invite him to join the PC Family! It is so important for each PCer to complete the questionnaire and consent form to join the International PC research registry at www.pachyonychia.org/patient-registry/ if he has any questions contact [e-mail]

[@CharitysClarity]

I have it also if he is not apart of the PC community please urge him to come join. It’s been amazing for me to find others for support, to not be alone since many of us hide it, and to find doctors and help with the management an the pain. 💕🙏