Kieran, well spoken Sir. I have Olmsted Syndrome and the symptons are very very similar. PC and Olmsted patients go through Hell. I'm nearly 66 and my Dad had it for 80 years. Ive been on Erlotinib for nearly 3 years and it has transpormed my life. The pain and soreness has gone and I can now say I have a GREAT Life. My advice get your Dermatologist to get you Erlotinib he or she may have to refer you on because very few are allowed to perscribe it but push for it. Good Luck my friend . To have PC or Olmsted and win you have to have Courage, I salute you !
Kieran, well spoken Sir. I have Olmsted Syndrome and the symptons are very very similar. PC and Olmsted patients go through Hell. I'm nearly 66 and my Dad had it for 80 years. Ive been on Erlotinib for nearly 3 years and it has transpormed my life. The pain and soreness has gone and I can now say I have a GREAT Life. My advice get your Dermatologist to get you Erlotinib he or she may have to refer you on because very few are allowed to perscribe it but push for it. Good Luck my friend . To have PC or Olmsted and win you have to have Courage, I salute you !
Excellent video Kieren :) very well explained, Hope that you are well other than PC and its inevitable constraints.